FORGOTTEN DISEASES RESEARCH FOUNDATION: Form 990EZ, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
FORGOTTEN DISEASES RESEARCH FOUNDATION (EIN 45-4470463)
Tax period
2025-01-01 to 2025-12-31
Filed
2026-05-11
IRS object ID
202611319349204601
Schema version
2025v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-05-11T17:41:07-05:00ReturnTs
Tax Period End2025-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Block AdvisorsBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line119638 STEVENS CREEK BLVD 220AddressLine1Txt
CityCUPERTINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP95014ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN454470463EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FORGOTTEN DISEASES RESEARCH FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% VALERIE NATALEInCareOfNm
Business Name ControlFORGBusinessNameControlTxt
Phone4085295755PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySANTA CLARACityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARTIN O CONNORPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone4085295755PhoneNum
Signature2026-05-11SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLuz ChowPreparerPersonNm
PTINP00004338PTIN
Phone4082538871PhoneNum
Preparation2026-05-11PreparationDt
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Website AddressWWW.FORGOTTENDISEASES.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$136,775GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$135,998ContributionsGiftsGrantsEtcAmt
Investment Income$777InvestmentIncomeAmt
Cost Or Other Basis Expense Sale$0CostOrOtherBasisExpenseSaleAmt
Gain Or Loss From Sale Of Assets$0GainOrLossFromSaleOfAssetsAmt
Special Events Direct Expenses$0SpecialEventsDirectExpensesAmt
Special Events Net Income Loss$0SpecialEventsNetIncomeLossAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt
Gross Profit Loss Sls Of Invntry$0GrossProfitLossSlsOfInvntryAmt
Total Revenue$136,775TotalRevenueAmt
Salaries Other Comp Empl Bnft$92,449SalariesOtherCompEmplBnftAmt
Printing Publications Postage$11PrintingPublicationsPostageAmt
Other Expenses Total$7,868OtherExpensesTotalAmt
Total Expenses$100,328TotalExpensesAmt
Excess Or Deficit For Year$36,447ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$120,425NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$156,872NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$120,425BOYAmt
EOY$156,872EOYAmt

Land And Buildings LandAndBuildingsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total Detail OtherAssetsTotalDetail

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$120,425BOYAmt
EOY$156,872EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$120,425BOYAmt
EOY$156,872EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
Primary Exempt PurposeFORGOTTON DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp

FieldValueIRS element (for citing)
Description Program Srvc AccomCREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES.DescriptionProgramSrvcAccomTxt
Program Service Expenses$98,520ProgramServiceExpensesAmt
FieldValueIRS element (for citing)
Total Program Service Expenses$98,520TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (4 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmtEmployee Benefit ProgramEmployeeBenefitProgramAmtExpense Account Other AllwncExpenseAccountOtherAllwncAmt
MARTIN O'CONNOR
PRESIDENT4.0$12,920$0$0
NATALIA LUKOMSKI QUIROZ
SECRETARY0.5$0$0$0
VALERIE NATALE
TREASURER40.0$73,500$0$0
HEATHER KERR
BOARD MEMBER0.5$0$0$0
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonVALERIE NATALEPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySANTA CLARACityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd
FieldValueIRS element (for citing)
Phone4085295755PhoneNum
FieldValueIRS element (for citing)
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Related Org Sect527 OrgfalseRelatedOrgSect527OrgInd
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$92,005CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$20,445CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$72,079CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$86,217CurrentTaxYearMinus1YearAmt
Current Tax Year$135,998CurrentTaxYearAmt
Total$406,744TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$92,005CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$20,445CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$72,079CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$86,217CurrentTaxYearMinus1YearAmt
Current Tax Year$135,998CurrentTaxYearAmt
Total$406,744TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$16,782SubstantialContributorsTotAmt
Public Support Total170$389,962PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$129CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,306CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$325CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$857CurrentTaxYearMinus1YearAmt
Current Tax Year$777CurrentTaxYearAmt
Total$3,394TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$753CurrentTaxYearMinus4YearsAmt
Total$753TotalAmt
FieldValueIRS element (for citing)
Total Support$410,891TotalSupportAmt
Public Support CY1700.94906PublicSupportCY170Pct
Public Support PY1700.98770PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990EZ PART I LINE 16Description:MEALS Amount:1000
FORM 990EZ PART I LINE 16Description:SOFTWARE Amount:155
FORM 990EZ PART I LINE 16Description:TAX PREPARATION FEE Amount:350
FORM 990EZ PART I LINE 16Description:TAXES Amount:458

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