2026-05-11T17:41:07-05:00 2025-12-31 Block Advisors 19638 STEVENS CREEK BLVD 220 CUPERTINO CA 95014 990EZ 2025-01-01 454470463 FORGOTTEN DISEASES RESEARCH FOUNDATION % VALERIE NATALE FORG 4085295755 604 MALARIN AVE SANTA CLARA CA 95050 MARTIN O CONNOR PRESIDENT 4085295755 2026-05-11 true Luz Chow P00004338 4082538871 2026-05-11 2025 2025-03-06 01:10:19Z X WWW.FORGOTTENDISEASES.ORG X X 136775 X 135998 777 0 0 0 0 0 0 136775 92449 11 7868 100328 36447 120425 156872 X 120425 156872 0 0 0 0 120425 156872 0 0 120425 156872 X FORGOTTON DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES. CREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES. 98520 98520 MARTIN O'CONNOR PRESIDENT 4.0 12920 0 0 NATALIA LUKOMSKI QUIROZ SECRETARY 0.5 0 0 0 VALERIE NATALE TREASURER 40.0 73500 0 0 HEATHER KERR BOARD MEMBER 0.5 0 0 0 false false false false false false false VALERIE NATALE 604 MALARIN AVE SANTA CLARA CA 95050 4085295755 false false false false false false false false false false true X 92005 20445 72079 86217 135998 406744 0 0 92005 20445 72079 86217 135998 406744 16782 389962 129 1306 325 857 777 3394 0 753 753 410891 0.94906 0.98770 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990EZ PART I LINE 16 Description:MEALS Amount:1000 FORM 990EZ PART I LINE 16 Description:SOFTWARE Amount:155 FORM 990EZ PART I LINE 16 Description:TAX PREPARATION FEE Amount:350 FORM 990EZ PART I LINE 16 Description:TAXES Amount:458