FORGOTTEN DISEASES RESEARCH FOUNDATION: Form 990EZ, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- FORGOTTEN DISEASES RESEARCH FOUNDATION (EIN 45-4470463)
- Tax period
- 2020-01-01 to 2020-12-31
- Filed
- 2021-05-27
- IRS object ID
- 202131489349200818
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-05-27T17:59:47Z | ReturnTs |
| Tax Period End | 2020-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 431871840 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Block Advisors | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 20576 HOMESTEAD RD | AddressLine1Txt |
| City | CUPERTINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 95014 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990EZ | ReturnTypeCd |
| Tax Period Begin | 2020-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 454470463 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FORGOTTEN DISEASES RESEARCH FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FORG | BusinessNameControlTxt |
| Phone | 4085295755 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 604 MALARIN AVE | AddressLine1Txt |
| City | SANTA CLARA | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 95050 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MARTIN O CONNOR | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 4085295755 | PhoneNum |
| Signature | 2021-05-27 | SignatureDt |
| Discuss With Paid Preparer | false | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | MARTIN | PersonFirstNm |
| Person Last | CONNOR | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Luz Chow | PreparerPersonNm |
| PTIN | P00004338 | PTIN |
| Phone | 4087490518 | PhoneNum |
| Preparation | 2021-05-27 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990-EZ IRS990EZ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Website Address | WWW.FORGOTTENDISEASES.ORG | WebsiteAddressTxt |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Gross Receipts | $22,166 | GrossReceiptsAmt |
| Info In Schedule O Part I | Yes (X) | InfoInScheduleOPartIInd |
| Contributions Gifts Grants Etc | $18,855 | ContributionsGiftsGrantsEtcAmt |
| Investment Income | $265 | InvestmentIncomeAmt |
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Other Revenue Total | $3,046 | OtherRevenueTotalAmt |
| Total Revenue | $22,166 | TotalRevenueAmt |
| Fees And Other Pymt To Ind Cntrct | $250 | FeesAndOtherPymtToIndCntrctAmt |
| Other Expenses Total | $16,163 | OtherExpensesTotalAmt |
| Total Expenses | $16,413 | TotalExpensesAmt |
| Excess Or Deficit For Year | $5,753 | ExcessOrDeficitForYearAmt |
| Net Assets Or Fund Balances BOY | $105,618 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $111,371 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part II | Yes (X) | InfoInScheduleOPartIIInd |
Cash Savings And Investments CashSavingsAndInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $105,618 | BOYAmt |
| EOY | $111,894 | EOYAmt |
Form990 Total Assets Form990TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $105,618 | BOYAmt |
| EOY | $111,894 | EOYAmt |
Sum Of Total Liabilities SumOfTotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $523 | EOYAmt |
Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $105,618 | BOYAmt |
| EOY | $111,371 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Exempt Purpose | THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES. | PrimaryExemptPurposeTxt |
Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description Program Srvc Accom | CREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES. | DescriptionProgramSrvcAccomTxt |
| Grants And Allocations | $18,767 | GrantsAndAllocationsAmt |
| Program Service Expenses | $16,413 | ProgramServiceExpensesAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $16,413 | TotalProgramServiceExpensesAmt |
Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (4 entries)
| TitleTitleTxt | Average Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRt | CompensationCompensationAmt |
|---|---|---|
| MARTIN OCONNOR | ||
| PRESIDENT | 4.00 | $0 |
| NATALIA LUKOMSKI QUIROZ | ||
| SECRETARY | 0.50 | $0 |
| HEATHER KERR | ||
| BOARD MEMBER | 0.50 | $0 |
| VALERIE NATALE | ||
| TREASURER | 40.00 | $9,600 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activities Not Previously Rpt | false | ActivitiesNotPreviouslyRptInd |
| Chg Made To Orgnzng Doc Not Rpt | false | ChgMadeToOrgnzngDocNotRptInd |
| Organization Had UBI | false | OrganizationHadUBIInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Organization Dissolved Etc | false | OrganizationDissolvedEtcInd |
| Made Loans To From Officers | false | MadeLoansToFromOfficersInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | VALERIE NATALE | PersonNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 604 MALARIN AVE | AddressLine1Txt |
| City | Santa Clara | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 95050 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4085295755 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Foreign Office | false | ForeignOfficeInd |
| Donor Advised Fnds | false | DonorAdvisedFndsInd |
| Operate Hospital | false | OperateHospitalInd |
| Tanning Services Provided | false | TanningServicesProvidedInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| School Operating | false | SchoolOperatingInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Part VI Of Comp Of Hghst Pd Empl | NONE | PartVIOfCompOfHghstPdEmplTxt |
| Part VI Hghst Pd Cntrct Prof Srvc | NONE | PartVIHghstPdCntrctProfSrvcTxt |
| Filed Schedule A | Yes (true) | FiledScheduleAInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $25,001 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $30,108 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $42,919 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $45,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $21,901 | CurrentTaxYearAmt |
| Total | $165,157 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $25,001 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $30,108 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $42,919 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $45,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $21,901 | CurrentTaxYearAmt |
| Total | $165,157 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $165,157 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $537 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $265 | CurrentTaxYearAmt |
| Total | $802 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $165,959 | TotalSupportAmt |
| Public Support CY170 | 0.99520 | PublicSupportCY170Pct |
| Public Support PY170 | 0.99680 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990-EZ PART I LINE 8 OTHER REVENUE | $3,046 |
| FORM 990-EZ PART I LINE 16 OTHER EXPENSES | SEE DETAILED STATEMENT 2 |
| FORM 990-EZ PART II BALANCE SHEET LINE 26 COLUMN (B) END OF YEAR TOTAL LIABILITIES | $523 EXPENSES REPAID FROM CREDIT CARD |
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