FORGOTTEN DISEASES RESEARCH FOUNDATION: Form 990EZ, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
FORGOTTEN DISEASES RESEARCH FOUNDATION (EIN 45-4470463)
Tax period
2021-01-01 to 2021-12-31
Filed
2022-05-16
IRS object ID
202241369349207419
Schema version
2021v4.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2022-05-16T21:29:27ZReturnTs
Tax Period End2021-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN431871840PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Block AdvisorsBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line119638 STEVENS CREEK BLVD 220AddressLine1Txt
CityCUPERTINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP95014ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2021-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN454470463EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FORGOTTEN DISEASES RESEARCH FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFORGBusinessNameControlTxt
Phone4085295755PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySANTA CLARACityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARTIN O CONNORPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone4085295755PhoneNum
Signature2022-05-16SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstMARTINPersonFirstNm
Person LastCONNORPersonLastNm

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLuz ChowPreparerPersonNm
PTINP00004338PTIN
Phone4082538871PhoneNum
Preparation2022-05-16PreparationDt
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Schedule B Not RequiredYes (X)ScheduleBNotRequiredInd
Website AddressWWW.FORGOTTENDISEASES.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$92,887GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$92,005ContributionsGiftsGrantsEtcAmt
Investment Income$129InvestmentIncomeAmt
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Other Revenue Total$753OtherRevenueTotalAmt
Total Revenue$92,887TotalRevenueAmt
Fees And Other Pymt To Ind Cntrct$250FeesAndOtherPymtToIndCntrctAmt
Other Expenses Total$75,366OtherExpensesTotalAmt
Total Expenses$75,616TotalExpensesAmt
Excess Or Deficit For Year$17,271ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$111,371NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$128,642NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$111,894BOYAmt
EOY$129,165EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$111,894BOYAmt
EOY$129,165EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$523BOYAmt
EOY$523EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$111,371BOYAmt
EOY$128,642EOYAmt
FieldValueIRS element (for citing)
Primary Exempt PurposeTHE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp

FieldValueIRS element (for citing)
Description Program Srvc AccomCREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES.DescriptionProgramSrvcAccomTxt
Program Service Expenses$2,680ProgramServiceExpensesAmt
FieldValueIRS element (for citing)
Total Program Service Expenses$2,680TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (4 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmt
MARTIN OCONNOR
PRESIDENT4.00$40,000
NATALIA LUKOMSKI QUIROZ
SECRETARY0.50$0
HEATHER KERR
BOARD MEMBER0.50$0
VALERIE NATALE
TREASURER40.00$23,063
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonVALERIE NATALEPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySanta ClaraCityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd
FieldValueIRS element (for citing)
Phone4085295755PhoneNum
FieldValueIRS element (for citing)
Foreign Financial AccountfalseForeignFinancialAccountInd
Foreign OfficefalseForeignOfficeInd
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$30,108CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$42,919CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$45,228CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$21,901CurrentTaxYearMinus1YearAmt
Current Tax Year$92,005CurrentTaxYearAmt
Total$232,161TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$30,108CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$42,919CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$45,228CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$21,901CurrentTaxYearMinus1YearAmt
Current Tax Year$92,005CurrentTaxYearAmt
Total$232,161TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$232,161PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$537CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$265CurrentTaxYearMinus1YearAmt
Current Tax Year$129CurrentTaxYearAmt
Total$931TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year$753CurrentTaxYearAmt
Total$753TotalAmt
FieldValueIRS element (for citing)
Total Support$233,845TotalSupportAmt
Public Support CY1700.99280PublicSupportCY170Pct
Public Support PY1700.99520PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind
Facts And Circumstances TestREPAYMENT FROM VALERIEFactsAndCircumstancesTestTxt

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A PART II LINE 10 OTHER INCOMEFormAndLineReferenceDesc
ExplanationREPAYMENT FROM VALERIEExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (11 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990-EZ PART I LINE 8 OTHER REVENUEREPAYMENT FROM VALERIE $753
FORM 990-EZ PART I LINE 16 OTHER EXPENSES-
OFFICE EXPENSES$444
TRAVEL$1,018
MEALS$55
PAYROLL$70,867
INTERNET$242
BANK FEE$60
PUBLICATION FEE$2,680
TOTAL OTHER EXPENSES$75,366
FORM 990-EZ PART II BALANCE SHEET LINE 26 TOTAL LIABILITIESEXPENSES REPAID FROM CREDIT CARD $523

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