2022-05-16T21:29:27Z 2021-12-31 431871840 Block Advisors 19638 STEVENS CREEK BLVD 220 CUPERTINO CA 95014 990EZ 2021-01-01 454470463 FORGOTTEN DISEASES RESEARCH FOUNDATION FORG 4085295755 604 MALARIN AVE SANTA CLARA CA 95050 MARTIN O CONNOR PRESIDENT 4085295755 2022-05-16 false MARTIN CONNOR Luz Chow P00004338 4082538871 2022-05-16 2021 2022-09-23 18:48:47Z X X WWW.FORGOTTENDISEASES.ORG X X 92887 X 92005 129 0 753 92887 250 75366 75616 17271 111371 128642 X 111894 129165 111894 129165 523 523 111371 128642 THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES. CREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES. 2680 2680 MARTIN OCONNOR PRESIDENT 4.00 40000 NATALIA LUKOMSKI QUIROZ SECRETARY 0.50 0 HEATHER KERR BOARD MEMBER 0.50 0 VALERIE NATALE TREASURER 40.00 23063 false false false false false false false false CA VALERIE NATALE 604 MALARIN AVE Santa Clara CA 95050 4085295755 false false false false false false false false false false false NONE NONE true X 30108 42919 45228 21901 92005 232161 30108 42919 45228 21901 92005 232161 232161 537 265 129 931 753 753 233845 0.99280 0.99520 X REPAYMENT FROM VALERIE SCHEDULE A PART II LINE 10 OTHER INCOME REPAYMENT FROM VALERIE FORM 990-EZ PART I LINE 8 OTHER REVENUE REPAYMENT FROM VALERIE $753 FORM 990-EZ PART I LINE 16 OTHER EXPENSES - OFFICE EXPENSES $444 TRAVEL $1,018 MEALS $55 PAYROLL $70,867 INTERNET $242 BANK FEE $60 PUBLICATION FEE $2,680 TOTAL OTHER EXPENSES $75,366 FORM 990-EZ PART II BALANCE SHEET LINE 26 TOTAL LIABILITIES EXPENSES REPAID FROM CREDIT CARD $523