FORGOTTEN DISEASES RESEARCH FOUNDATION: Form 990EZ, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
FORGOTTEN DISEASES RESEARCH FOUNDATION (EIN 45-4470463)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-06-26
IRS object ID
202401929349200520
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-06-26T19:12:47ZReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN431871840PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Block AdvisorsBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line119638 STEVENS CREEK BLVD 220AddressLine1Txt
CityCUPERTINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP95014ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN454470463EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FORGOTTEN DISEASES RESEARCH FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFORGBusinessNameControlTxt
Phone4085295755PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySANTA CLARACityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARTIN O CONNORPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone4085295755PhoneNum
Signature2024-06-24SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstMARTINPersonFirstNm
Person LastCONNORPersonLastNm
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLuz ChowPreparerPersonNm
PTINP00004338PTIN
Phone4082538871PhoneNum
Preparation2024-06-26PreparationDt
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Schedule B Not RequiredYes (X)ScheduleBNotRequiredInd
Website AddressWWW.FORGOTTENDISEASES.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$72,404GrossReceiptsAmt
Contributions Gifts Grants Etc$72,079ContributionsGiftsGrantsEtcAmt
Investment Income$325InvestmentIncomeAmt
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Total Revenue$72,404TotalRevenueAmt
Fees And Other Pymt To Ind Cntrct$300FeesAndOtherPymtToIndCntrctAmt
Other Expenses Total$78,317OtherExpensesTotalAmt
Total Expenses$78,617TotalExpensesAmt
Excess Or Deficit For Year-$6,213ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$122,968NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$116,755NetAssetsOrFundBalancesEOYAmt

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$122,968BOYAmt
EOY$116,755EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$122,968BOYAmt
EOY$116,755EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$122,968BOYAmt
EOY$116,755EOYAmt
FieldValueIRS element (for citing)
Primary Exempt PurposeTHE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp

FieldValueIRS element (for citing)
Description Program Srvc AccomCREATED WEBSITE WHICH IS LARGE REPOSITORY OF GROWTH INFORMATION FOR CHILDREN AROUND THE WORLD INCLUDING 35 COUNTRIES. SUBMITTED LARGE STUDY FOR PUBLICATION. THE STUDY COMPARES GROWTH IN CHILDREN AROUND THE WORLD WITH THE WORLD HEALTH ORGANIZATION'S INTERNATIONAL GROWTH CURVES.DescriptionProgramSrvcAccomTxt
Program Service Expenses$78,095ProgramServiceExpensesAmt
FieldValueIRS element (for citing)
Total Program Service Expenses$78,095TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (4 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmt
MARTIN OCONNOR
PRESIDENT4.00$8,080
NATALIA LUKOMSKI QUIROZ
SECRETARY0.50$0
HEATHER KERR
BOARD MEMBER0.50$0
VALERIE NATALE
TREASURER40.00$51,150
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonVALERIE NATALEPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1604 MALARIN AVEAddressLine1Txt
CitySanta ClaraCityNm
State AbbreviationCAStateAbbreviationCd
ZIP95050ZIPCd
FieldValueIRS element (for citing)
Phone4085295755PhoneNum
FieldValueIRS element (for citing)
Foreign Financial AccountfalseForeignFinancialAccountInd
Foreign OfficefalseForeignOfficeInd
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$45,228CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$21,901CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$92,005CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$20,445CurrentTaxYearMinus1YearAmt
Current Tax Year$72,079CurrentTaxYearAmt
Total$251,658TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$45,228CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$21,901CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$92,005CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$20,445CurrentTaxYearMinus1YearAmt
Current Tax Year$72,079CurrentTaxYearAmt
Total$251,658TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$251,658PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$537CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$265CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$129CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,306CurrentTaxYearMinus1YearAmt
Current Tax Year$325CurrentTaxYearAmt
Total$2,562TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$753CurrentTaxYearMinus2YearsAmt
Total$753TotalAmt
FieldValueIRS element (for citing)
Total Support$254,973TotalSupportAmt
Public Support CY1700.98700PublicSupportCY170Pct
Public Support PY1700.98670PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (11 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
990-EZ PART I LINE 16 OTHER EXPENSES:
OFFICE EXPENSES$36
TRAVEL$2,448
MEALS$157
PAYROLL$75,262
INTERNET$252
BANK CHARGES$10
TAXES$55
POSTAGE$76
BOOKS$21
TOTAL OTHER EXPENSES$78,317

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