FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS
Cite this
Plain text FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS. furp.org, nonprofit organization profile, tax years 2013–2024. https://furp.org/org/263160079. Retrieved 2026-10-21.
APA furp.org. (n.d.). FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS [Nonprofit organization profile; tax years 2013–2024]. Retrieved October 21, 2026, from https://furp.org/org/263160079
MLA “FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS.” furp.org, tax years 2013–2024, https://furp.org/org/263160079. Accessed 21 Oct. 2026.
Retrieved 2026-10-21; covers tax years 2013–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $5.4M · expenses $10.4M · assets $44.9M
- Also known as
- THERAPEUTICS
- EIN
- 26-3160079
- Address
- 5900 BALCONES DRIVE 8754, AUSTIN, TX 78731-4257
- Website
- WWW.CUREANGELMAN.ORG
- NTEE code
- H12
- Subsection
- 501(c)(3)
- Ruling year
- 2008
- Cross-check
- ProPublica Nonprofit Explorer
Mission
ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
10 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Allyson Berent | CHIEF SCIENCE OFFICER | 2015-2024 | $509,945 | $1,851,215 | 1 |
| Ryan K Fischer | CHIEF OPERATING OFICER | 2023-2024 | $286,130 | $484,181 | 1 |
| Alana Newhouse | PRESIDENT/CEO | 2022-2024 | $245,000 | $472,800 | 1 |
| Kena Pearson | CHIEF FINANCIAL OFFICER | 2024 | $232,568 | $232,568 | 1 |
| Michele Golombuski | CHIEF DEVELOPMENT OFFICER | 2024 | $210,068 | $210,068 | 1 |
| Paula Evans (former) | FORMER OFFICER AND DIRECTO | 2013-2022 | $176,687 | $1,341,270 | 2 |
| Kena Richert (former) | CHIEF FINANCIAL OFFICER | 2013-2023 | $191,948 | $636,198 | 1 |
| Debbie Guagliardo (former) | FORMER OFFICER AND DIRECTO | 2013-2020 | $251,250 | $576,410 | 1 |
| Maiddy Dunigan (former) | FORMER OFFICER AND COO | 2013-2023 | $36,755 | $293,005 | 1 |
| Deborah Guagliardo (former) | FORMER OFFICER AND DIRECTOR | 2018 | $142,300 | $142,300 | 1 |
Officers and directors, no compensation reported
29 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Ryan Jacob | CHAIRPERSON | 2022-2024 | 18 | $0 reported | 1 |
| Michael Hanrahan | VICE CHAIRPERSON AND TR | 2023-2024 | 10 | $0 reported | 1 |
| Guy Shapiral | TRESURER | 2024 | 15 | $0 reported | 1 |
| Amelia Beatty | SECRETARY | 2020-2024 | 15 | $0 reported | 1 |
| Karly Warner | DIRECTOR | 2024 | 5 | $0 reported | 1 |
| John Schlueter | DIRECTOR | 2023-2024 | 15 | $0 reported | 1 |
| Kelly David | DIRECTOR | 2018-2024 | 10 | $0 reported | 1 |
| Ben O'Connor | DIRECTOR | 2018-2024 | 5 | $0 reported | 1 |
| Roy Azout | DIRECTOR | 2016-2024 | 5 | $0 reported | 1 |
| Lauren Hoffer | DIRECTOR | 2020-2024 | 5 | $0 reported | 1 |
| Nora Xu | DIRECTOR | 2021-2024 | 5 | $0 reported | 1 |
| Kristy Dixon (former) | TRESURER | 2014-2023 | 15 | $0 reported | 1 |
| Megan Cross (former) | CHIEF INFORMATION OFFICER | 2021-2023 | 5 | $0 reported | 1 |
| John Schuellter (former) | CHAIRPERSON | 2016-2022 | 30 | $0 reported | 1 |
| Sam Maydew (former) | DIRECTOR | 2014-2021 | 5 | $0 reported | 2 |
| Ryan Jacobs (former) | DIRECTOR | 2021 | 15 | $0 reported | 1 |
| Bryan Thompson (former) | DIRECTOR | 2013-2020 | 5 | $0 reported | 2 |
| Chloe Knouff (former) | DIRECTOR | 2019-2020 | 10 | $0 reported | 1 |
| David Gurzick (former) | DIRECTOR | 2019-2020 | 5 | $0 reported | 1 |
| Sharon Claridge (former) | FORMER SECRETARY | 2013-2019 | 5 | $0 reported | 1 |
| Sharon Weil-Chalker (former) | SCIENCE OFFICER | 2013-2019 | 5 | $0 reported | 1 |
| Meagan Cross (former) | INTERNATIONAL LIAISON | 2013-2018 | 15 | $0 reported | 1 |
| Terence Sullivan (former) | FINANCIAL OFFICER | 2013-2018 | 3 | $0 reported | 1 |
| Danielle Pinders (former) | DIRECTOR | 2013-2018 | 10 | $0 reported | 1 |
| Rebecca Burdine (former) | CHIEF SCIENCE OFFICER | 2013-2015 | 3 | $0 reported | 1 |
| Scott Backer (former) | DIRECTOR | 2013-2014 | 3 | $0 reported | 1 |
| Melissa Elkins (former) | COMMUNICATIONS OFFICER | 2013 | 3 | $0 reported | 1 |
| Jamie Katzman (former) | DIRECTOR | 2013 | 3 | $0 reported | 1 |
| Sam Mayder (former) | DIRECTOR | 2013 | 10 | $0 reported | 1 |
People by year
2024 · 16 people listed · 5 paid, $1.5M · 11 employees · 291 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 2 | $0 | $509,945 | $0 | $509,945 | 1 |
| RYAN K FISCHER | CHIEF OPERATING OFICER | 40 | $286,130 | $0 | $0 | $286,130 | 1 |
| ALANA NEWHOUSE | PRESIDENT/CEO | 40 | $245,000 | $0 | $0 | $245,000 | 1 |
| KENA PEARSON | CHIEF FINANCIAL OFFICER | 40 | $232,568 | $0 | $0 | $232,568 | 1 |
| MICHELE GOLOMBUSKI | CHIEF DEVELOPMENT OFFICER | 40 | $210,068 | $0 | $0 | $210,068 | 1 |
| RYAN JACOB | CHAIRPERSON | 18 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL HANRAHAN | VICE CHAIRPERSON AND TR | 10 | $0 | $0 | $0 | $0 | 1 |
| GUY SHAPIRAL | TRESURER | 15 | $0 | $0 | $0 | $0 | 1 |
| AMELIA BEATTY | SECRETARY | 15 | $0 | $0 | $0 | $0 | 1 |
| KARLY WARNER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| JOHN SCHLUETER | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LAUREN HOFFER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| NORA XU | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2023 · 16 people listed · 4 paid, $605K · 9 employees · 291 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| RYAN K FISCHER | CHIEF OPERATING OFICER | 40 | $198,051 | $0 | $0 | $198,051 | 1 |
| KENA RICHERT | CHIEF FINANCIAL OFFICER | 40 | $191,948 | $0 | $0 | $191,948 | 1 |
| ALANA NEWHOUSE | PRESIDENT/CEO | 40 | $177,800 | $0 | $0 | $177,800 | 1 |
| MAIDDY DUNIGAN | FORMER OFFICER AND COO | 0 | $36,755 | $0 | $0 | $36,755 | 1 |
| RYAN JACOB | CHAIRPERSON | 18 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | CO-VICE CHAIRPERSON | 20 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL HANRAHAN | CO-VICE CHAIRPERSON AND TR | 10 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | TRESURER | 15 | $0 | $0 | $0 | $0 | 1 |
| AMELIA BEATTY | SECRETARY | 15 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| JOHN SCHLUETER | DIRECTOR | 30 | $0 | $0 | $0 | $0 | 1 |
| NORA XU | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 40 | $0 | $0 | $0 | $0 | 1 |
| LAUREN HOFFER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEGAN CROSS | CHIEF INFORMATION OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2022 · 14 people listed · 4 paid, $591K · 8 employees · 350 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KENA RICHERT | CFO | 40 | $188,000 | $0 | $0 | $188,000 | 1 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 40 | $0 | $176,687 | $0 | $176,687 | 1 |
| PAULA EVANS | FORMER OFFICER AND DIRECTO | 0 | $0 | $176,687 | $0 | $176,687 | 2 |
| ALANA NEWHOUSE | PRESIDENT/CEO | 40 | $50,000 | $0 | $0 | $50,000 | 1 |
| JOHN SCHUELLTER | CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | CO-VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | CO-VICE CHAIRPERSON AND TREASURER | 25 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| RYAN JACOB | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| NORA XU | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| AMELIA BEATTY | SECRETARY | 30 | $0 | $0 | $0 | $0 | 1 |
| LAUREN HOFFER | DIRECTOR | 18 | $0 | $0 | $0 | $0 | 1 |
| MEGAN CROSS | CHIEF INFORMATION OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
2021 · 15 people listed · 4 paid, $954K · 6 employees · 85 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 40 | $0 | $325,000 | $0 | $325,000 | 1 |
| PAULA EVANS | FORMER OFFICER AND DIRECTO | 0 | $0 | $325,000 | $0 | $325,000 | 2 |
| KENA RICHERT | CFO | 40 | $152,083 | $0 | $0 | $152,083 | 1 |
| MAIDDY DUNIGAN | FORMER OFFICER AND COO | 40 | $152,083 | $0 | $0 | $152,083 | 1 |
| JOHN SCHUELLTER | CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | CO-VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | SECRETARY | 25 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| RYAN JACOBS | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| NORA XU | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| AMELIA BEATTY | DIRECTOR | 30 | $0 | $0 | $0 | $0 | 1 |
| LAUREN HOFFER | DIRECTOR | 18 | $0 | $0 | $0 | $0 | 1 |
| MEGAN CROSS | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2020 · 16 people listed · 5 paid, $1.1M · 3 employees · 125 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIRPERSON | 20 | $0 | $325,000 | $0 | $325,000 | 2 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 20 | $0 | $325,000 | $0 | $325,000 | 1 |
| DEBBIE GUAGLIARDO | FORMER OFFICER AND DIRECTO | 0 | $0 | $251,250 | $0 | $251,250 | 1 |
| MAIDDY DUNIGAN | VICE CHAIRPERSON/CEO | 40 | $104,167 | $0 | $0 | $104,167 | 1 |
| KENA RICHERT | CHIEF FINANCIAL OFFICER/TR | 40 | $104,167 | $0 | $0 | $104,167 | 1 |
| KRISTY DIXON | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| SAM MAYDEW | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| JOHN SCHUELLTER | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| CHLOE KNOUFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| DAVID GURZICK | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| AMELIA BEATTY | DIRECTOR | 15 | $0 | $0 | $0 | $0 | 1 |
| LAUREN HOFFER | DIRECTOR | 18 | $0 | $0 | $0 | $0 | 1 |
2019 · 16 people listed · 3 paid, $1.1M · 1 employee · 285 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIRPERSON | 20 | $0 | $368,750 | $0 | $368,750 | 2 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 20 | $0 | $368,750 | $0 | $368,750 | 1 |
| DEBBIE GUAGLIARDO | FORMER OFFICER AND DIRECTOR | 0 | $0 | $325,160 | $0 | $325,160 | 1 |
| MAIDDY DUNIGAN | VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | FORMER SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | CHIEF FINANCIAL OFFICER/TREASURER | 30 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| SAM MAYDEW | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| JOHN SCHUELLTER | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | DIRECTOR | 20 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| CHLOE KNOUFF | DIRECTOR | 22 | $0 | $0 | $0 | $0 | 1 |
| DAVID GURZICK | DIRECTOR | 7 | $0 | $0 | $0 | $0 | 1 |
2018 · 17 people listed · 3 paid, $434K · 1 employee · 275 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $145,833 | $0 | $145,833 | 2 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 20 | $0 | $145,833 | $0 | $145,833 | 1 |
| DEBORAH GUAGLIARDO | FORMER OFFICER AND DIRECTOR | 0 | $0 | $142,300 | $0 | $142,300 | 1 |
| MAIDDY DUNIGAN | VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER/CHEIF FINANCIAL OFFICER | 30 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | INTERNATIONAL LIAISON | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| JOHN SCHUELLTER | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| KELLY DAVID | DIRETOR | 10 | $0 | $0 | $0 | $0 | 1 |
| BEN O'CONNOR | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2017 · 14 people listed · none paid · 1 employee · 260 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $0 | $0 | $0 | 2 |
| MAIDDY DUNIGAN | VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | CHIEF INFORMATION OFFICER | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | DIRECTOR | 20 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 30 | $0 | $0 | $0 | $0 | 1 |
| JOHN SCHUELLTER | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2016 · 14 people listed · none paid · 1 employee · 190 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $0 | $0 | $0 | 2 |
| MAIDDY DUNIGAN | CO VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | COMMUNICATIONS OFFICER | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | EVENTS COORDINATOR | 20 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 2 |
| ALLYSON BERENT | SCIENCE OFFICER | 10 | $0 | $0 | $0 | $0 | 1 |
| JOHN SCHUELLTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ROY AZOUT | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2015 · 13 people listed · none paid · 0 employees · 190 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $0 | $0 | $0 | 2 |
| MAIDDY DUNIGAN | CO VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| REBECCA BURDINE | CHIEF SCIENCE OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | COMMUNICATIONS OFFICER | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | EVENTS COORDINATOR | 20 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 2 |
| ALLYSON BERENT | SCIENCE OFFICER | 10 | $0 | $0 | $0 | $0 | 1 |
2014 · 14 people listed · none paid · 0 employees · 165 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $0 | $0 | $0 | 2 |
| MAIDDY DUNIGAN | CO VICE CHAIRPERSON | 30 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE GUAGLIARDO | CO VICE CHAIRPERSON | 10 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| REBECCA BURDINE | CHIEF SCIENCE OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| KRISTY DIXON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | COMMUNICATIONS OFFICER | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SCOTT BACKER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | EVENTS COORDINATOR | 20 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDEW | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 2 |
2013 · 15 people listed · none paid · 0 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PAULA EVANS | CHAIPERSON | 40 | $0 | $0 | $0 | $0 | 2 |
| MAIDDY DUNIGAN | CO VICE CHAIRPERSON | 20 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE GUAGLIARDO | CO VICE CHAIRPERSON & CFO | 10 | $0 | $0 | $0 | $0 | 1 |
| SHARON CLARIDGE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| KENA RICHERT | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| REBECCA BURDINE | CHIEF SCIENCE OFFICER | 10 | $0 | $0 | $0 | $0 | 1 |
| MELISSA ELKINS | COMMUNICATIONS OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| MEAGAN CROSS | COMMUNICATIONS OFFICER | 15 | $0 | $0 | $0 | $0 | 1 |
| TERENCE SULLIVAN | FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| SCOTT BACKER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JAMIE KATZMAN | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SHARON WEIL-CHALKER | SCIENCE OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| BRYAN THOMPSON | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 2 |
| DANIELLE PINDERS | EVENTS COORDINATOR | 20 | $0 | $0 | $0 | $0 | 1 |
| SAM MAYDER | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2024 · 5 contractors · $1.1M
| Name | Location | Service | Paid |
|---|---|---|---|
| FAEGRE DRINKER BIDDLE & REATH LLP | WASHINGTON, DC | ADVOCACY FIRM | $324,783 |
| VAN NESS CREATIVE STRATEGIES LLC | MELVILLE, NY | MARKETING | $297,590 |
| CHOATE HALL & STEWART LLP | BOSTON, MA | LEGAL SERVICES | $204,561 |
| MAIDDY DUNIGAN | OVIEDO, FL | CONULTING | $183,985 |
| JESSICA DOBSON WEAVER | AUSTIN, TX | BOARD CONSULTANT | $131,250 |
2023 · 4 contractors · $1.1M
| Name | Location | Service | Paid |
|---|---|---|---|
| CHOATE HALL & STEWART LLP | BOSTON, MA | LEGAL SERVICES | $429,484 |
| VAN NESS CREATIVE STRATEGIES LLC | MELVILLE, NY | MARKETING | $423,918 |
| DOWNFIELD | NEW YORK, NY | STRATEGIC COMMUNICATIONS CONSULTING | $120,000 |
| CM GROUP LLC | HINGHAM, MA | GALA SPECIAL EVENT PLANNER/STAFFING | $117,331 |
2022 · 2 contractors · $421K
| Name | Location | Service | Paid |
|---|---|---|---|
| AS2 BIOTHERAPEUTICS LLC | MIDDLETON, MA | CONSULTING SERVICES | $246,108 |
| MEDICUS ECONOMICS LLC | MILTON, MA | DEVELOP A PAYER AND REIMBURSEMENT STRATE | $174,740 |
2021 · 2 contractors · $525K
| Name | Location | Service | Paid |
|---|---|---|---|
| AKIRA PRODUCTION | LOMBARD, IL | RELATED TO ANNUAL GALA PLANNING AND PROD | $414,685 |
| SAUL EWING ARSTEIN & LEHR LLP | PHILADELPHIA, PA | LEGAL FEES FOR 2021 | $110,177 |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2026 | $30,000 | 1 |
Issues: Health Issues
Firms hired: FAEGRE DRINKER BIDDLE & REATH LLP
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 10 grants to organizations · $7.9M
Listed grants add up to $7,921,275; the return's “grants paid” expense line says $3,698,573. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 17 grants to organizations · $5.6M
Listed grants add up to $5,572,273; the return's “grants paid” expense line says $18,691,164. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 4 grants to organizations · $800K
Listed grants add up to $800,071; the return's “grants paid” expense line says $6,744,524. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 7 grants to organizations · $2.9M
Listed grants add up to $2,916,405; the return's “grants paid” expense line says $3,910,364. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 5 grants to organizations · $2.4M
Listed grants add up to $2,368,927; the return's “grants paid” expense line says $2,401,977. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 7 grants to organizations · $4.0M
Listed grants add up to $4,028,080; the return's “grants paid” expense line says $4,080,080. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 6 grants to organizations · $2.3M
2017 · 7 grants to organizations · $5.2M
2016 · 4 grants to organizations · $3.0M
2015 · 2 grants to organizations · $1.1M
Listed grants add up to $1,128,771; the return's “grants paid” expense line says $1,116,067. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 4 grants to organizations · $1.1M
Listed grants add up to $1,059,468; the return's “grants paid” expense line says $1,042,667. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 6 grants to organizations · $808K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $5,388,260 | $10,391,969 | $44,915,881 | $40,208,064 | $3,723,744 | $0 | $763,697 | 11 | 291 |
| 2023 · Form 990 | ||||||||
| $6,525,815 | $23,229,158 | $58,430,242 | $39,820,858 | $3,866,276 | $0 | $592,813 | 9 | 291 |
| 2022 · Form 990 | ||||||||
| $52,477,819 | $8,933,021 | $63,075,354 | $55,815,641 | $4,948,249 | $355,507 | $485,109 | 8 | 350 |
| 2021 · Form 990 | ||||||||
| $3,977,487 | $5,835,365 | $17,749,994 | $14,395,102 | $5,782,149 | $4,011 | $304,166 | 6 | 85 |
| 2020 · Form 990 | ||||||||
| $9,357,654 | $3,052,395 | $18,338,531 | $15,918,608 | $3,391,715 | $8,096 | $208,334 | 3 | 125 |
| 2019 · Form 990 | ||||||||
| $5,739,183 | $4,561,879 | $12,005,469 | $8,751,037 | $3,815,019 | $0 | $0 | 1 | 285 |
| 2018 · Form 990 | ||||||||
| $5,274,393 | $2,948,068 | $8,901,866 | $7,573,733 | $5,243,464 | $0 | $0 | 1 | 275 |
| 2017 · Form 990 | ||||||||
| $8,749,699 | $5,643,830 | $7,713,003 | $5,247,408 | $8,790,002 | $0 | $0 | 1 | 260 |
| 2016 · Form 990 | ||||||||
| $4,397,320 | $3,450,740 | $2,221,539 | $2,141,539 | $4,404,670 | $0 | $0 | 1 | 190 |
| 2015 · Form 990 | ||||||||
| $1,078,473 | $1,305,387 | $1,194,959 | $1,194,959 | $1,103,236 | $0 | $0 | 0 | 190 |
| 2014 · Form 990 | ||||||||
| $1,528,780 | $1,208,340 | $1,571,929 | $1,421,929 | $1,558,523 | $0 | $0 | 0 | 165 |
| 2013 · Form 990 | ||||||||
| $881,702 | $947,452 | $1,108,989 | $1,101,489 | $899,898 | $0 | $0 | 0 | 150 |
Funders of this organization
44 grantors reported grants to this organization, $2,982,723 in all, tax years 2011 to 2025; the 25 largest shown (all 44). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $580,607 | 2024 | $98,585 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2017, 2019-2023 | 6 | $358,050 | 2023 | $10,000 | show |
| GREATER HORIZONS | DAF sponsor | Exact | 2024 | 1 | $250,000 | 2024 | $250,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2024 | 6 | $235,898 | 2024 | $47,940 | show |
| MARIN COMMUNITY FOUNDATION | DAF sponsor | Exact | 2023-2024 | 2 | $150,000 | 2024 | $100,000 | show |
| UNITED WAY WORLDWIDE | DAF sponsor | Exact | 2018-2020 | 3 | $140,802 | 2020 | $38,723 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2022-2024 | 3 | $125,500 | 2024 | $41,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2018-2024 | 7 | $120,050 | 2024 | $11,600 | show |
| FORGOOD INC | DAF sponsor | Exact | 2013, 2017-2018 | 4 | $107,102 | 2018 | $75,885 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2021-2024 | 5 | $106,250 | 2024 | $35,000 | show |
| KAREN AND GARY SCHWARTZ FOUNDATION | Private foundation | Fuzzy filed as “FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS” | 2025 | 1 | $100,000 | 2025 | $100,000 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2021, 2023-2024 | 4 | $88,000 | 2024 | $10,500 | show |
| ANGELMAN SYNDROME FOUNDATION INC | Public charity | Fuzzy filed as “FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS” | 2023 | 1 | $78,493 | 2023 | $78,493 | show |
| TEXAS CHILDRENS HOSPITAL | Public charity | Exact | 2020, 2022-2023 | 3 | $60,075 | 2023 | $25,000 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2019, 2021-2022, 2024 | 4 | $58,187 | 2024 | $29,594 | show |
| RJS FAMILY FOUNDATION | Private foundation | Fuzzy filed as “FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS” | 2024 | 1 | $50,000 | 2024 | $50,000 | show |
| WILLS GOOD WORKS FOUNDATION INC | Public charity | Exact | 2013-2014, 2016 | 3 | $47,500 | 2016 | $7,500 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2017-2018, 2021-2022, 2024 | 5 | $46,300 | 2024 | $18,796 | show |
| COMMUNITY FOUNDATION OF GREATER MEMPHIS INC | DAF sponsor | Exact | 2019, 2021 | 2 | $45,000 | 2021 | $25,000 | show |
| T ROWE PRICE PROGRAM FOR CHARITABLE GIVING INC | DAF sponsor | Exact | 2022-2023, 2025 | 3 | $32,000 | 2025 | $12,000 | show |
| BOSTON FOUNDATION INC | DAF sponsor | Exact | 2019 | 1 | $31,000 | 2019 | $31,000 | show |
| DENVER FOUNDATION | DAF sponsor | Exact | 2016, 2018-2020 | 4 | $25,000 | 2020 | $5,000 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS” | 2021-2023 | 3 | $23,565 | 2023 | $5,619 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022 | 1 | $19,380 | 2022 | $19,380 | show |
| THE CHICAGO COMMUNITY TRUST | DAF sponsor | Exact | 2023 | 1 | $17,500 | 2023 | $17,500 | show |
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Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| RARE VILLAGE FOUNDATION | TX | H12 | $3,660,787 | $2,368,236 | VICE PRESIDENT SECRETARY DIRECTOR | $0 | Same NTEE code H12, revenue within 2x, same state |
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| FOUNDATION FOR RESEARCH | NV | H12 | $6,556,157 | $7,047,376 | Trustee, President | $785,428 | Same NTEE code H12, revenue within 2x |
| THE CURETIVITY FOUNDATION | CT | H12 | $4,396,120 | $4,393,089 | EXECUTIVE DIR. & SECRETARY | $164,583 | Same NTEE code H12, revenue within 2x |
| T J MARTELL FOUNDATION | NY | H12 | $3,536,897 | $2,038,418 | CHIEF EXECUTIVE OFFICER | $162,500 | Same NTEE code H12, revenue within 2x |
| JETT FOUNDATION INC | MA | H12 | $7,446,726 | $3,650,266 | PRESIDENT AND CEO | $261,462 | Same NTEE code H12, revenue within 2x |
| HOPE FOR DEPRESSION RESEARCH FOUNDATION | NY | H12 | $3,352,342 | $7,276,738 | EXECUTIVE DIRECTOR | $301,810 | Same NTEE code H12, revenue within 2x |
| UROLOGY CARE FOUNDATION INC | MD | H12 | $9,577,107 | $3,639,613 | EXECUTIVE DIRECTOR | $963,431 | Same NTEE code H12, revenue within 2x |
| FRATERNAL ORDER OF EAGLES FOUNDATION | OH | H12 | $5,161,252 | $3,406,319 | CFO | $288,489 | Same NTEE code H12, revenue within 2x |
| THE PROGERIA RESEARCH FOUNDATION INC | MA | H12 | $3,650,308 | $5,902,368 | CHIEF BUSINESS OFFICER | $308,444 | Same NTEE code H12, revenue within 2x |
| HITCHCOCK FOUNDATION | NH | H12 | $3,331,627 | $2,660,602 | Trustee / Physician | $698,004 | Same NTEE code H12, revenue within 2x |
| OPEN MEDICINE FOUNDATION INC | CA | H12 | $5,487,605 | $4,573,645 | CEO/PRESIDENT | $308,699 | Same NTEE code H12, revenue within 2x |
| FLORIDA BREAST CANCER COALITION RESEARCH FOUNDATION | FL | H12 | $3,857,492 | $2,422,769 | PRESIDENT | $133,677 | Same NTEE code H12, revenue within 2x |
| MORGAN ADAMS FOUNDATION | CO | H12 | $3,011,334 | $2,641,332 | EXEC DIR AND CO-FOUNDER | $130,000 | Same NTEE code H12, revenue within 2x |
| CHILDRENS ONCOLOGY GROUP FOUNDATION | PA | H12 | $10,371,058 | $9,393,958 | ASST. SECRETARY | $119,097 | Same NTEE code H12, revenue within 2x |
| LEUKEMIA RESEARCH FOUNDATION INC | IL | H12 | $6,035,635 | $3,212,486 | EXECUTIVE DIRECTOR | $176,513 | Same NTEE code H12, revenue within 2x |
| MACULAR DEGENERATION ASSOCIATION | FL | H12 | $4,633,596 | $2,816,514 | Chairman of the Board | $397,516 | Same NTEE code H12, revenue within 2x |
| PARTNERSHIP FOR CURES | IL | H12 | $3,881,316 | $1,310,247 | President and CEO | $213,533 | Same NTEE code H12, revenue within 2x |
| HAYMAKERS FOR HOPE INC | MA | H12 | $4,610,827 | $4,924,496 | EXECUTIVE DIRECTOR | $293,500 | Same NTEE code H12, revenue within 2x |
| COMING TOGETHER FOR A CURE INC | KS | H12 | $4,005,322 | $4,037,324 | DIRECTOR OF STRATEGIC INITIATIVES | $78,500 | Same NTEE code H12, revenue within 2x |
| WINGS FOR LIFE USA - SPINAL CORD RESEARCH FOUNDATION INC | CA | H12 | $6,562,287 | $3,089,695 | Chair/President | $0 | Same NTEE code H12, revenue within 2x |
| REGENMED DEVELOPMENT ORGANIZATION | NC | H12 | $4,133,217 | $1,423,539 | CHAIR | $1,738,115 | Same NTEE code H12, revenue within 2x |
| ZOLL FOUNDATION INC | MA | H12 | $3,826,946 | $1,442,882 | CLERK/DIRECTOR | $0 | Same NTEE code H12, revenue within 2x |
| LESLIE AND SHEILA KLEIN FOUNDATION INC | CT | H12 | $4,071,225 | $259,488 | CHAIRPERSON | $0 | Same NTEE code H12, revenue within 2x |
| USAGAINSTALZHEIMERS | DC | H12 | $10,470,173 | $9,389,463 | CHIEF OPERATING OFFICER (SEE SCH. O) | $381,131 | Same NTEE code H12, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $10,391,969 spent · pay $2,926,752 · grants $3,698,573 · events $1,865,852
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,698,573 | $3,698,573 | - | - | 35.6% | |
| Other salaries and wages | $2,030,293 | $1,675,728 | $196,539 | $158,026 | 19.5% | |
| Other (as described) Event | COMMUNITY OUTREACH GALA | $1,124,103 | $1,124,103 | $0 | $0 | 10.8% |
| Fees: legal | $798,599 | $752,775 | $45,824 | - | 7.7% | |
| Pay: officers, directors, trustees, key employees | $763,697 | $421,902 | $276,555 | $65,240 | 7.3% | |
| Fees: other services | $429,106 | $391,161 | $25,779 | $12,166 | 4.1% | |
| Conferences, conventions and meetings | $367,048 | $367,048 | - | - | 3.5% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $257,297 | $207,764 | $33,652 | $15,881 | 2.5% |
| Other (as described) | EDUCATION AND AWARENESS | $187,558 | $187,558 | $0 | $0 | 1.8% |
| All other expenses | $176,315 | $102,682 | $53,706 | $19,927 | 1.7% | |
| Other (as described) | CAN EXPENSES | $168,154 | $84,077 | - | $84,077 | 1.6% |
| Other employee benefits | $132,762 | $99,673 | $22,480 | $10,609 | 1.3% | |
| Travel | $126,080 | $92,380 | $16,850 | $16,850 | 1.2% | |
| Fees: investment management | $71,481 | - | $71,481 | - | 0.7% | |
| Office expenses | $34,809 | $26,133 | $5,894 | $2,782 | 0.3% | |
| Insurance | $26,094 | - | $13,047 | $13,047 | 0.3% | |
| Fundraising events Event | direct expenses; gross income $322,583 | $374,701 | reported apart | |||
| Total | $10,391,969 | 100% |
2023 · Form 990 · $23,229,158 spent · pay $1,374,639 · grants $18,691,164 · events $929,033
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $18,691,164 | $18,691,164 | - | - | 80.5% | |
| Fees: legal | $1,270,168 | $932,312 | $337,856 | - | 5.5% | |
| Other salaries and wages | $781,826 | $572,378 | $111,755 | $97,693 | 3.4% | |
| Other (as described) Event | COMMUNITY OUTREACH GALA | $619,355 | $619,355 | - | - | 2.7% |
| Pay: officers, directors, trustees, key employees | $592,813 | $327,498 | $214,673 | $50,642 | 2.6% | |
| Other (as described) | EDUCATION AND AWARENESS | $428,418 | $428,418 | - | - | 1.8% |
| Other (as described) | EDUCATION AND AWARENESS | $309,678 | $309,678 | - | - | 1.3% |
| All other expenses | $215,798 | $103,088 | $56,045 | $56,665 | 0.9% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $140,829 | - | $140,829 | - | 0.6% |
| Travel | $52,027 | $19,739 | $32,288 | - | 0.2% | |
| Fees: investment management | $37,037 | - | $37,037 | - | 0.2% | |
| Office expenses | $21,620 | - | $21,620 | - | 0.1% | |
| Advertising and promotion | $19,730 | $19,730 | - | - | 0.1% | |
| Insurance | $17,312 | - | $17,312 | - | 0.1% | |
| Fees: other services | $16,799 | $10,920 | $4,100 | $1,779 | 0.1% | |
| Depreciation and depletion | $14,584 | $14,584 | - | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $218,275 | $309,678 | reported apart | |||
| Total | $23,229,158 | 100% |
2022 · Form 990 · $8,933,021 spent · pay $929,640 · grants $6,744,524 · events $967,870
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $6,744,524 | $6,744,524 | - | - | 75.5% | |
| Pay: officers, directors, trustees, key employees | $485,109 | $291,906 | $193,203 | - | 5.4% | |
| Other salaries and wages | $408,158 | $188,130 | $105,429 | $114,599 | 4.6% | |
| Advertising and promotion | $328,839 | $290,455 | - | $38,384 | 3.7% | |
| Fees: legal | $258,494 | $218,635 | $39,859 | - | 2.9% | |
| Other (as described) | EDUCATION AND AWARENESS | $131,520 | $131,520 | - | - | 1.5% |
| Travel | $119,811 | - | $71,954 | $47,857 | 1.3% | |
| Other (as described) | VIDEO AND PRODUCTION | $97,988 | $53,700 | $0 | $44,288 | 1.1% |
| All other expenses | $82,805 | $37,960 | $21,886 | $22,959 | 0.9% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $75,598 | - | $65,523 | $10,075 | 0.8% |
| Other (as described) | OTHER FUNDRAISING EXPEN | $71,339 | - | - | $71,339 | 0.8% |
| Fees: investment management | $38,460 | - | $38,460 | - | 0.4% | |
| Payroll taxes | $36,373 | $17,886 | $11,990 | $6,497 | 0.4% | |
| Fees: accounting | $24,665 | - | $24,665 | - | 0.3% | |
| Depreciation and depletion | $14,584 | $14,584 | - | - | 0.2% | |
| Office expenses | $11,879 | $7,930 | $3,949 | - | 0.1% | |
| Insurance | $2,844 | - | $2,844 | - | 0.0% | |
| Fees: other services | $31 | - | $31 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $361,783 | $967,870 | reported apart | |||
| Total | $8,933,021 | 100% |
2021 · Form 990 · $5,835,365 spent · pay $641,663 · grants $3,910,364 · events $115,095
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,910,364 | $3,910,364 | - | - | 67.0% | |
| Other (as described) | EDUCATION AND AWARENESS | $460,055 | $460,055 | - | - | 7.9% |
| Pay: officers, directors, trustees, key employees | $304,166 | $190,104 | $114,062 | - | 5.2% | |
| Other salaries and wages | $300,539 | $83,084 | $155,917 | $61,538 | 5.2% | |
| Other (as described) | COMMUNITY OUTREACH | $230,190 | $230,190 | - | - | 3.9% |
| Fees: legal | $169,858 | $99,239 | $70,619 | - | 2.9% | |
| Advertising and promotion | $143,829 | $119,829 | - | $24,000 | 2.5% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $75,478 | - | $19,307 | $56,171 | 1.3% |
| All other expenses | $63,713 | $22,830 | $6,336 | $34,547 | 1.1% | |
| Fees: investment management | $53,211 | - | $53,211 | - | 0.9% | |
| Other (as described) | OTHER FUNDRAISING EXPEN | $38,352 | - | - | $38,352 | 0.7% |
| Payroll taxes | $36,958 | $19,965 | $12,280 | $4,713 | 0.6% | |
| Fees: accounting | $16,952 | - | $16,952 | - | 0.3% | |
| Depreciation and depletion | $14,584 | $14,584 | - | - | 0.2% | |
| Office expenses | $5,557 | - | $5,557 | - | 0.1% | |
| Fees: other services | $5,438 | $5,438 | - | - | 0.1% | |
| Insurance | $4,351 | - | $4,351 | - | 0.1% | |
| Travel | $1,770 | - | $262 | $1,508 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $441,249 | $115,095 | reported apart | |||
| Total | $5,835,365 | 100% |
2020 · Form 990 · $3,052,395 spent · pay $296,128 · grants $2,401,977 · events $157,828
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,368,927 | $2,368,927 | - | - | 77.6% | |
| Pay: officers, directors, trustees, key employees | $208,334 | $130,209 | $78,125 | - | 6.8% | |
| Advertising and promotion | $190,858 | $63,845 | - | $127,013 | 6.3% | |
| Other salaries and wages | $66,750 | $33,375 | $33,375 | - | 2.2% | |
| Fees: legal | $43,885 | $21,520 | $22,365 | - | 1.4% | |
| Other (as described) | BANK AND MERCHANT ACCOU | $41,214 | - | $470 | $40,744 | 1.4% |
| Grants outside the US | $33,050 | $33,050 | - | - | 1.1% | |
| Payroll taxes | $21,044 | $12,514 | $8,530 | - | 0.7% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $20,321 | - | $20,321 | - | 0.7% |
| Fees: investment management | $14,307 | - | $14,307 | - | 0.5% | |
| Fees: accounting | $13,500 | - | $13,500 | - | 0.4% | |
| All other expenses | $10,998 | $2,327 | $8,671 | - | 0.4% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $8,419 | - | $8,419 | - | 0.3% |
| Other (as described) | OTHER FUNDRAISING EXPEN | $7,401 | - | - | $7,401 | 0.2% |
| Insurance | $2,371 | - | $2,371 | - | 0.1% | |
| Office expenses | $926 | - | $926 | - | 0.0% | |
| Travel | $90 | - | - | $90 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $355,990 | $157,828 | reported apart | |||
| Total | $3,052,395 | 100% |
2019 · Form 990 · $4,561,879 spent · pay $69,434 · grants $4,080,080 · events $566,253
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $4,028,080 | $4,028,080 | - | - | 88.3% | |
| Advertising and promotion | $145,241 | $46,328 | - | $98,913 | 3.2% | |
| Other salaries and wages | $64,500 | $32,250 | $32,250 | - | 1.4% | |
| Other (as described) | BANK AND MERCHANT ACCOU | $64,006 | - | $350 | $63,656 | 1.4% |
| Grants outside the US | $52,000 | $52,000 | - | - | 1.1% | |
| Other (as described) | EQUIPMENT RENTAL | $46,179 | $46,179 | - | - | 1.0% |
| Other (as described) | SCHOLARSHIPS FOR TRAVEL | $29,490 | $29,490 | - | - | 0.6% |
| Fees: management | $27,047 | $27,047 | - | - | 0.6% | |
| Travel | $26,710 | - | $8,715 | $17,995 | 0.6% | |
| All other expenses | $24,638 | - | $22,144 | $2,494 | 0.5% | |
| Other (as described) | EDUCATION AND AWARENESS | $20,743 | $20,743 | - | - | 0.5% |
| Fees: legal | $15,351 | $10,299 | $5,052 | - | 0.3% | |
| Fees: accounting | $10,000 | - | $10,000 | - | 0.2% | |
| Payroll taxes | $4,934 | $2,467 | $2,467 | - | 0.1% | |
| Office expenses | $2,131 | - | $2,131 | - | 0.0% | |
| Insurance | $829 | - | $829 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $385,874 | $566,253 | reported apart | |||
| Total | $4,561,879 | 100% |
2018 · Form 990 · $2,948,068 spent · pay $62,046 · grants $2,260,991 · events $511,974
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,260,991 | $2,260,991 | - | - | 76.7% | |
| Conferences, conventions and meetings | $390,142 | $390,142 | - | - | 13.2% | |
| Fees: legal | $106,553 | - | $106,553 | - | 3.6% | |
| Other salaries and wages | $61,250 | - | $30,625 | $30,625 | 2.1% | |
| Advertising and promotion | $51,634 | - | - | $51,634 | 1.8% | |
| Travel | $23,080 | $16,879 | $3,905 | $2,296 | 0.8% | |
| Fees: accounting | $17,500 | - | $17,500 | - | 0.6% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $11,657 | - | $11,657 | - | 0.4% |
| Other (as described) | FILING FEES AND REGISTR | $8,400 | - | $8,400 | - | 0.3% |
| Other (as described) | TELEPHONE AND TELECOMMU | $5,583 | - | $5,583 | - | 0.2% |
| Insurance | $5,229 | - | $5,229 | - | 0.2% | |
| Office expenses | $2,030 | - | $2,030 | - | 0.1% | |
| All other expenses | $1,853 | - | $1,255 | $598 | 0.1% | |
| Other (as described) | POSTAGE AND DELIVERY | $1,370 | - | $1,370 | - | 0.0% |
| Payroll taxes | $796 | - | $398 | $398 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $78,750 | $121,832 | reported apart | |||
| Total | $2,948,068 | 100% |
2017 · Form 990 · $5,643,830 spent · pay $57,754 · grants $5,218,272 · events $317,499
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $5,218,272 | $5,218,272 | - | - | 92.5% | |
| Conferences, conventions and meetings | $221,416 | $221,416 | - | - | 3.9% | |
| Other salaries and wages | $53,738 | - | $26,869 | $26,869 | 1.0% | |
| Advertising and promotion | $46,843 | - | - | $46,843 | 0.8% | |
| Fees: legal | $35,403 | - | $35,403 | - | 0.6% | |
| Other (as described) | COMPUTER AND SOFTWARE E | $17,130 | $8,565 | - | $8,565 | 0.3% |
| Other (as described) | BANK AND MERCHANT ACCOU | $13,606 | - | $13,606 | - | 0.2% |
| Travel | $10,007 | - | $2,454 | $7,553 | 0.2% | |
| Fees: accounting | $8,000 | - | $8,000 | - | 0.1% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $5,305 | - | $5,305 | - | 0.1% |
| Payroll taxes | $4,016 | - | $2,008 | $2,008 | 0.1% | |
| Other (as described) | PAYROLL SERVICE FEES | $3,226 | - | $1,613 | $1,613 | 0.1% |
| Insurance | $3,030 | $1,515 | - | $1,515 | 0.1% | |
| All other expenses | $2,304 | $1,090 | $1,214 | - | 0.0% | |
| Office expenses | $1,534 | - | $1,534 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $74,750 | $96,083 | reported apart | |||
| Total | $5,643,830 | 100% |
2016 · Form 990 · $3,450,740 spent · pay $46,130 · grants $3,039,187 · events $128,535
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,009,187 | $3,009,187 | - | - | 87.2% | |
| Advertising and promotion | $235,262 | - | $7,938 | $227,324 | 6.8% | |
| Conferences, conventions and meetings | $50,116 | $50,116 | - | - | 1.5% | |
| Other salaries and wages | $46,130 | - | $46,130 | - | 1.3% | |
| Other (as described) | BANK AND MERCHANT ACCOU | $32,100 | - | $32,100 | - | 0.9% |
| Grants to US individuals | $30,000 | $30,000 | - | - | 0.9% | |
| Fees: legal | $13,382 | $13,265 | $117 | - | 0.4% | |
| Travel | $10,194 | - | $2,451 | $7,743 | 0.3% | |
| Fees: accounting | $8,000 | - | $8,000 | - | 0.2% | |
| Office expenses | $6,746 | - | $6,746 | - | 0.2% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $4,328 | - | $4,328 | - | 0.1% |
| Insurance | $3,086 | - | $3,086 | - | 0.1% | |
| Other (as described) | FILING FEES AND REGISTR | $1,284 | - | $1,284 | - | 0.0% |
| Other (as described) | POSTAGE AND DELIVERY | $925 | - | $925 | - | 0.0% |
| Fundraising events Event | direct expenses; gross income $71,125 | $78,419 | reported apart | |||
| Total | $3,450,740 | 100% |
2015 · Form 990 · $1,305,387 spent · pay $0 · grants $1,116,067 · events $168,666
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,114,668 | $1,114,668 | - | - | 85.4% | |
| Conferences, conventions and meetings | $125,910 | $125,910 | - | - | 9.6% | |
| Advertising and promotion | $38,512 | - | $2,552 | $35,960 | 3.0% | |
| Travel | $8,847 | - | $5,014 | $3,833 | 0.7% | |
| Fees: legal | $8,000 | - | $8,000 | - | 0.6% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $3,437 | - | $3,437 | - | 0.3% |
| Office expenses | $2,953 | - | $2,953 | - | 0.2% | |
| Grants outside the US | $1,399 | $1,399 | - | - | 0.1% | |
| Other (as described) | FILING FEES AND REGISTR | $885 | - | $885 | - | 0.1% |
| Other (as described) | POSTAGE AND DELIVERY | $702 | - | $702 | - | 0.1% |
| Other (as described) | BANK AND MERCHANT ACCOU | $74 | - | $74 | - | 0.0% |
| Fundraising events Event | direct expenses; gross income $18,733 | $42,756 | reported apart | |||
| Total | $1,305,387 | 100% |
2014 · Form 990 · $1,208,340 spent · pay $0 · grants $1,042,667 · events $160,339
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,022,667 | $1,022,667 | - | - | 84.6% | |
| Conferences, conventions and meetings | $112,293 | $112,293 | - | - | 9.3% | |
| Advertising and promotion | $28,247 | - | - | $28,247 | 2.3% | |
| Grants outside the US | $20,000 | $20,000 | - | - | 1.7% | |
| Travel | $8,313 | - | $6,485 | $1,828 | 0.7% | |
| Fees: accounting | $8,000 | - | $8,000 | - | 0.7% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $3,297 | - | $3,297 | - | 0.3% |
| Office expenses | $2,173 | - | $2,173 | - | 0.2% | |
| Other (as described) | WEBSITE | $1,203 | - | $1,203 | - | 0.1% |
| Other (as described) | POSTAGE AND DELIVERY | $1,146 | - | $1,146 | - | 0.1% |
| Other (as described) | FILING FEES AND REGISTR | $960 | - | $960 | - | 0.1% |
| All other expenses | $41 | - | $41 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $14,830 | $48,046 | reported apart | |||
| Total | $1,208,340 | 100% |
2013 · Form 990 · $947,452 spent · pay $0 · grants $808,469 · events $94,244
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $808,469 | $808,469 | - | - | 85.3% | |
| Conferences, conventions and meetings | $62,148 | $62,148 | - | - | 6.6% | |
| Travel | $31,856 | - | $4,284 | $27,572 | 3.4% | |
| Advertising and promotion | $20,076 | - | - | $20,076 | 2.1% | |
| Fees: accounting | $8,000 | - | $8,000 | - | 0.8% | |
| Other (as described) | WEBSITE | $5,345 | - | $5,345 | - | 0.6% |
| Office expenses | $3,007 | - | $3,007 | - | 0.3% | |
| Insurance | $2,793 | $1,396 | - | $1,397 | 0.3% | |
| Other (as described) | TELEPHONE AND TELECOMMU | $2,407 | - | $2,407 | - | 0.3% |
| Other (as described) | FEES | $2,011 | - | $126 | $1,885 | 0.2% |
| Other (as described) | POSTAGE AND DELIVERY | $755 | - | $755 | - | 0.1% |
| All other expenses | $585 | - | $585 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $13,900 | $32,096 | reported apart | |||
| Total | $947,452 | 100% |