THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION
Cite this
Plain text THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION. furp.org, nonprofit organization profile, tax years 2011–2024. https://furp.org/org/the-association-for-frontotemporal-degeneration-412073220. Retrieved 2026-11-01.
APA furp.org. (n.d.). THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION [Nonprofit organization profile; tax years 2011–2024]. Retrieved November 1, 2026, from https://furp.org/org/the-association-for-frontotemporal-degeneration-412073220
MLA “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION.” furp.org, tax years 2011–2024, https://furp.org/org/the-association-for-frontotemporal-degeneration-412073220. Accessed 1 Nov. 2026.
Retrieved 2026-11-01; covers tax years 2011–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $14.4M · expenses $11.6M · assets $60.1M
- Also known as
- DEGENERATION
- EIN
- 41-2073220
- Address
- 2700 HORIZON DR STE 120, KNG OF PRUSSA, PA 19406-2726
- Website
- WWW.THEAFTD.ORG
- NTEE code
- H124
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- January 2004 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
13 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Susan L-J Dickinson | CHIEF EXECUTIVE OFFICER | 2011-2024 | $350,014 | $2,699,920 | 2 |
| Sharon Denny | SR DIRECTOR OF PROGRAMS | 2018-2024 | $200,290 | $1,096,289 | 1 |
| Penny Dacks | SR DIRECTOR OF SCIENTIFIC INITIATIVES | 2021-2024 | $244,063 | $910,926 | 2 |
| Mitch Appleson | CHIEF OPERATING OFFICER | 2021-2024 | $283,585 | $734,742 | 2 |
| Peter Witzleb | DIRECTOR OF IT | 2023-2024 | $174,899 | $342,421 | 1 |
| Shana Dodge | DIRECTOR OF RESEARCH ENGAGEMENT | 2022-2024 | $167,945 | $327,481 | 1 |
| Phillip John Weichel | SR DIRECTOR OF ADVANCEMENT | 2024 | $200,203 | $200,203 | 1 |
| Christine Rogers Stevens (former) | DIRECTOR OF FINANCE (THRU 9/24) | 2017-2023 | $208,376 | $1,151,812 | 1 |
| Benjamin Freeman (former) | DIR OF DEV & COMM (THRU 1/24) | 2016-2023 | $165,214 | $1,129,054 | 1 |
| Nadine Tatton (former) | SCIENTIFIC DIRECTOR | 2016-2019 | $175,419 | $660,621 | 1 |
| Debra Niehoff (former) | DIRECTOR OF RESEARCH AND GRANTS | 2021 | $127,997 | $127,997 | 1 |
| Esther Kane (former) | DIRECTOR OF SUPPORT AND EDUCATION | 2021 | $123,239 | $123,239 | 1 |
| Dianna Hughbanks-Wheaton (former) | REGISTRY DIRECTOR | 2017 | $108,244 | $108,244 | 1 |
Officers and directors, no compensation reported
60 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Rita Choula | CHAIR | 2020-2024 | 4 | $0 reported | 1 |
| Gail Anderson | VICE CHAIR | 2021-2024 | 4 | $0 reported | 2 |
| Valerie Snow | SECRETARY | 2023-2024 | 4 | $0 reported | 1 |
| Julie Kelly | TREASURER | 2022-2024 | 4 | $0 reported | 1 |
| Halima Amjad | DIRECTOR | 2021-2024 | 3 | $0 reported | 1 |
| Kyle Birmingham | DIRECTOR | 2024 | 3 | $0 reported | 1 |
| Helen-Ann Comstock | DIRECTOR | 2011-2024 | 3 | $0 reported | 1 |
| Joe Esposito | DIRECTOR (EFF 5/3/25) | 2024 | 2 | $0 reported | 1 |
| Jill Goldman | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Kristin Holloway | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Shoshana Krilow | DIRECTOR | 2022-2024 | 3 | $0 reported | 1 |
| Joseph Marquez | DIRECTOR | 2020-2024 | 2 | $0 reported | 1 |
| Lenn Marquez | DIRECTOR (EFF 5/3/25) | 2024 | 3 | $0 reported | 1 |
| Kathy Mele | DIRECTOR | 2013-2024 | 3 | $0 reported | 1 |
| Don Newhouse | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Girish Patangay | DIRECTOR (EFF 5/3/25) | 2024 | 3 | $0 reported | 1 |
| David Pfeifer | DIRECTOR (EFF 5/3/25) | 2017-2024 | 3 | $0 reported | 1 |
| Kristin Schneeman | DIRECTOR | 2020-2024 | 3 | $0 reported | 1 |
| Marg Sutherland | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Abrar Tanveer | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Kim Torres | DIRECTOR | 2021-2024 | 2 | $0 reported | 1 |
| Jary Larsen | DIRECTOR (THRU 5/4/25) | 2011-2024 | 4 | $0 reported | 2 |
| Sandra Grow (former) | DIRECTOR (THRU 5/4/24) | 2018-2023 | 3 | $0 reported | 1 |
| Kyle Brimingham (former) | DIRECTOR (EFF 5/4/24) | 2023 | 2 | $0 reported | 1 |
| Christian Barrow (former) | TREASURER (THRU AUGUST 2023) | 2020-2022 | 3 | $0 reported | 1 |
| Danny Hedaya (former) | DIRECTOR (THRU MAY 2023) | 2022 | 2 | $0 reported | 1 |
| Kacy Kunesh (former) | DIRECTOR (THRU MAY 2023) | 2016-2022 | 2 | $0 reported | 1 |
| Brian Rose (former) | DIRECTOR (THRU MAY 2023) | 2016-2022 | 2 | $0 reported | 1 |
| Michael Stowell (former) | DIRECTOR (THRU MAY 2023) | 2016-2022 | 2 | $0 reported | 1 |
| Daniel Hedaya (former) | DIRECTOR | 2016-2021 | 2 | $0 reported | 1 |
| Donald E Newhouse (former) | DIRECTOR | 2020-2021 | 2 | $0 reported | 1 |
| Kimberly Pang Torres (former) | VICE CHAIR | 2018-2020 | 4 | $0 reported | 1 |
| Rick Childs (former) | DIRECTOR | 2015-2020 | 3 | $0 reported | 1 |
| Matthew Hatfield (former) | DIRECTOR | 2018-2020 | 2 | $0 reported | 1 |
| Beth Walter (former) | DIRECTOR | 2011-2020 | 3 | $0 reported | 1 |
| Stephen Fenoglio (former) | VICE CHAIR (EFF 4/20) | 2019 | 3 | $0 reported | 1 |
| Gail Andersen (former) | DIRECTOR | 2013-2019 | 10 | $0 reported | 1 |
| Steve Bellwoar (former) | DIRECTOR (THRU 4/20) | 2013-2019 | 2 | $0 reported | 1 |
| Paul Lester Thru 420 (former) | DIRECTOR | 2019 | 2 | $0 reported | 1 |
| Steve Fenoglio (former) | SECRETARY | 2014-2018 | 4 | $0 reported | 1 |
| Paul Lester (former) | DIRECTOR | 2013-2018 | 4 | $0 reported | 1 |
| Bonnie Shepherd (former) | SECRETARY/VICE CHAIR (THRU 4/18) | 2012-2017 | 6 | $0 reported | 1 |
| Sandi Grow (former) | DIRECTOR (EFF 4/18) | 2017 | 2 | $0 reported | 1 |
| John Whitmarsh Phd (former) | DIRECTOR (THRU 4/18) | 2012-2017 | 4 | $0 reported | 1 |
| Matt Hatfield (former) | DIRECTOR | 2015-2017 | 2 | $0 reported | 1 |
| Deanna Angelo (former) | DIRECTOR (THRU 4/18) | 2012-2017 | 2 | $0 reported | 1 |
| Deanna Angello Mba (former) | DIRECTOR | 2013-2016 | 2 | $0 reported | 1 |
| Emily Levy (former) | DIRECTOR | 2011-2015 | 4 | $0 reported | 2 |
| Bryan Dalesandro (former) | DIRECTOR | 2011-2015 | 4 | $0 reported | 1 |
| Debbie Fenoglio (former) | VICE-CHAIR | 2011-2015 | 4 | $0 reported | 1 |
| Earl Comstock Esq (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Lisa Radin (former) | DIRECTOR | 2011-2015 | 2 | $0 reported | 1 |
| Pop Shenian (former) | DIRECTOR | 2011-2015 | 4 | $0 reported | 1 |
| Susan Laden (former) | DIRECTOR | 2014-2015 | 2 | $0 reported | 1 |
| Francine Laden Scd (former) | DIRECTOR | 2011-2014 | 2 | $0 reported | 1 |
| Linda Nee (former) | DIRECTOR | 2011-2014 | 2 | $0 reported | 1 |
| Susan Eissler Mba (former) | SECRETARY | 2011-2012 | 1 | $0 reported | 1 |
| Amy Kamin (former) | DIRECTOR | 2011-2012 | 1 | $0 reported | 1 |
| Sylvia Mackey (former) | DIRECTOR | 2011-2012 | 1 | $0 reported | 1 |
| Colleen Quinn (former) | DIRECTOR | 2011 | 1 | $0 reported | 1 |
People by year
2024 · 29 people listed · 7 paid, $1.6M · 64 employees · 605 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 36 | $320,026 | $0 | $29,988 | $350,014 | 2 |
| MITCH APPLESON | CHIEF OPERATING OFFICER | 38 | $255,015 | $0 | $28,570 | $283,585 | 2 |
| PENNY DACKS | SR DIRECTOR OF SCIENTIFIC INITIATIVES | 30 | $226,491 | $0 | $17,572 | $244,063 | 2 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $174,174 | $0 | $26,116 | $200,290 | 1 |
| PHILLIP JOHN WEICHEL | SR DIRECTOR OF ADVANCEMENT | 40 | $157,933 | $0 | $42,270 | $200,203 | 1 |
| PETER WITZLEB | DIRECTOR OF IT | 40 | $168,866 | $0 | $6,033 | $174,899 | 1 |
| SHANA DODGE | DIRECTOR OF RESEARCH ENGAGEMENT | 40 | $152,910 | $0 | $15,035 | $167,945 | 1 |
| RITA CHOULA | CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSON | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 2 |
| VALERIE SNOW | SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| JULIE KELLY | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| HALIMA AMJAD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| KYLE BIRMINGHAM | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JOE ESPOSITO | DIRECTOR (EFF 5/3/25) | 2 | $0 | $0 | $0 | $0 | 1 |
| JILL GOLDMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHOSHANA KRILOW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JOSEPH MARQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LENN MARQUEZ | DIRECTOR (EFF 5/3/25) | 3 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| DON NEWHOUSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GIRISH PATANGAY | DIRECTOR (EFF 5/3/25) | 3 | $0 | $0 | $0 | $0 | 1 |
| DAVID PFEIFER | DIRECTOR (EFF 5/3/25) | 3 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN SCHNEEMAN | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MARG SUTHERLAND | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ABRAR TANVEER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KIM TORRES | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN | DIRECTOR (THRU 5/4/25) | 4 | $0 | $0 | $0 | $0 | 2 |
2023 · 27 people listed · 7 paid, $1.6M · 55 employees · 398 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 36 | $299,604 | $0 | $27,277 | $326,881 | 2 |
| MITCH APPLESON | CHIEF OPERATING OFFICER | 38 | $239,433 | $0 | $30,583 | $270,016 | 2 |
| PENNY DACKS | SR. DIRECTOR OF SCIENTIFIC INITIATIVES | 30 | $215,668 | $0 | $15,410 | $231,078 | 2 |
| CHRISTINE ROGERS STEVENS | DIRECTOR OF FINANCE (THRU 9/24) | 36 | $182,806 | $0 | $25,570 | $208,376 | 1 |
| SHARON DENNY | SR. DIRECTOR OF PROGRAMS | 40 | $163,623 | $0 | $23,818 | $187,441 | 1 |
| PETER WITZLEB | DIRECTOR OF IT | 40 | $162,345 | $0 | $5,177 | $167,522 | 1 |
| BENJAMIN FREEMAN | DIR OF DEV & COMM (THRU 1/24) | 40 | $160,117 | $0 | $5,097 | $165,214 | 1 |
| KIM TORRES | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| RITA CHOULA | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| JULIE KELLY | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSON | SECRETARY | 4 | $0 | $0 | $0 | $0 | 2 |
| JILL GOLDMAN | DIRECTOR (EFF 5/4/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| HALIMA AMJAD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SANDRA GROW | DIRECTOR (THRU 5/4/24) | 3 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KYLE BRIMINGHAM | DIRECTOR (EFF 5/4/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| SHOSHANA KRILOW | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 2 |
| JOSEPH MARQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DON NEWHOUSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN SCHNEEMAN | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MARG SUTHERLAND | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| ABRAR TANVEER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| VALERIE SNOW | DIRECTOR (EFF 5/4/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID PFEIFER | DIRECTOR (THRU 5/4/24) | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 29 people listed · 7 paid, $1.4M · 47 employees · 362 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 36 | $302,707 | $0 | $27,628 | $330,335 | 2 |
| PENNY DACKS | SR. DIRECTOR OF SCIENTIFIC INITIATIVES | 30 | $207,678 | $0 | $15,798 | $223,476 | 2 |
| CHRISTINE ROGERS STEVENS | DIRECTOR OF FINANCE | 36 | $180,146 | $0 | $26,752 | $206,898 | 1 |
| MITCH APPLESON | CHIEF OPERATING OFFICER | 38 | $169,049 | $0 | $12,092 | $181,141 | 2 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $167,819 | $0 | $6,136 | $173,955 | 1 |
| SHARON DENNY | SR. DIRECTOR OF PROGRAMS | 40 | $153,941 | $0 | $10,386 | $164,327 | 1 |
| SHANA DODGE | DIRECTOR OF RESEARCH ENGAGEMENT | 40 | $145,524 | $0 | $14,012 | $159,536 | 1 |
| KIM TORRES | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| RITA CHOULA | VICE CHAIR | 3 | $0 | $0 | $0 | $0 | 1 |
| DAVID PFEIFER | DIRECTOR (TREASURER EFF AUGUST 2023) | 3 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSON | SECRETARY | 4 | $0 | $0 | $0 | $0 | 2 |
| CHRISTIAN BARROW | TREASURER (THRU AUGUST 2023) | 3 | $0 | $0 | $0 | $0 | 1 |
| HALIMA AMJAD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SANDRA GROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE KELLY | DIRECTOR (EFFECTIVE MAY 2023) | 3 | $0 | $0 | $0 | $0 | 1 |
| SHOSHANA KRILOW | DIRECTOR (EFFECTIVE MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 2 |
| JOSEPH MARQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| DON NEWHOUSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN SCHNEEMAN | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MARG SUTHERLAND | DIRECTOR (EFFECTIVE MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| ABRAR TANVEER | DIRECTOR (EFFECTIVE MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| DANNY HEDAYA | DIRECTOR (THRU MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | DIRECTOR (THRU MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | DIRECTOR (THRU MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL | DIRECTOR (THRU MAY 2023) | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 26 people listed · 7 paid, $1.2M · 35 employees · 348 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 36 | $226,222 | $0 | $24,592 | $250,814 | 2 |
| PENNY DACKS | SR DIRECTOR OF SCIENTIFIC INITIATIVES | 30 | $197,475 | $0 | $14,834 | $212,309 | 2 |
| CHRISTINE ROGERS STEVENS | CHIEF FINANCIAL OFFICER | 36 | $184,890 | $0 | $25,615 | $210,505 | 1 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $154,091 | $0 | $5,753 | $159,844 | 1 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $144,277 | $0 | $5,454 | $149,731 | 1 |
| DEBRA NIEHOFF | DIRECTOR OF RESEARCH AND GRANTS | 40 | $104,868 | $0 | $23,129 | $127,997 | 1 |
| ESTHER KANE | DIRECTOR OF SUPPORT AND EDUCATION | 40 | $110,445 | $0 | $12,794 | $123,239 | 1 |
| MITCH APPLESON | CHIEF OPERATING OFFICER | 38 | $0 | $0 | $0 | $0 | 2 |
| DAVID PFEIFER | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| KIM TORRES | VICE CHAIR | 3 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| HALIMA AMJAD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSON | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 2 |
| CHRISTIAN BARROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| RITA CHOULA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SANDRA GROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 2 |
| JOSEPH MARQUEZ MD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DONALD E NEWHOUSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN SCHNEEMAN | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 22 people listed · 4 paid, $663K · 31 employees · 364 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 40 | $210,961 | $0 | $14,364 | $225,325 | 2 |
| CHRISTINE ROGERS STEVENS | CHIEF FINANCIAL OFFICER | 40 | $141,535 | $0 | $21,849 | $163,384 | 1 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $135,054 | $0 | $4,211 | $139,265 | 1 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $130,677 | $0 | $4,098 | $134,775 | 1 |
| DAVID PFEIFER | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| KIMBERLY PANG TORRES | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTIAN BARROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| RITA CHOULA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SANDRA GROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 2 |
| JOSEPH MARQUEZ MD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DONALD E NEWHOUSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN SCHNEEMAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
2019 · 23 people listed · 5 paid, $809K · 26 employees · 335 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 40 | $196,500 | $0 | $13,161 | $209,661 | 2 |
| NADINE TATTON | SCIENTIFIC DIRECTOR | 40 | $156,000 | $0 | $19,419 | $175,419 | 1 |
| CHRISTINE ROGERS STEVENS | CHIEF FINANCIAL OFFICER | 40 | $136,875 | $0 | $21,068 | $157,943 | 1 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $130,000 | $0 | $4,077 | $134,077 | 1 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $127,562 | $0 | $4,012 | $131,574 | 1 |
| DAVID PFEIFER | CHAIR (EFF 4/20) | 10 | $0 | $0 | $0 | $0 | 1 |
| STEPHEN FENOGLIO | VICE CHAIR (EFF 4/20) | 3 | $0 | $0 | $0 | $0 | 1 |
| KIMBERLY PANG TORRES | SECRETARY (EFF 4/20) | 4 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| SANDRA GROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTIN HOLLOWAY | DIRECTOR (EFF 4/20) | 2 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 2 |
| KATHY MELE | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR (THRU 4/20) | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER THRU 420 | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2018 · 22 people listed · 5 paid, $750K · 24 employees · 346 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 40 | $182,250 | $0 | $8,008 | $190,258 | 2 |
| NADINE TATTON | SCIENTIFIC DIRECTOR | 40 | $149,670 | $0 | $19,341 | $169,011 | 1 |
| CHRISTINE ROGERS STEVENS | CHIEF FINANCIAL OFFICER | 40 | $122,737 | $0 | $20,584 | $143,321 | 1 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $122,258 | $0 | $3,849 | $126,107 | 1 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $117,477 | $0 | $3,681 | $121,158 | 1 |
| SANDRA GROW | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| KIMBERLY PANG TORRES | DIRECTOR (EFF 5/19) | 2 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| STEVE FENOGLIO | SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DAVID PFEIFER | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | DIRECTOR (EFF 5/19) | 4 | $0 | $0 | $0 | $0 | 2 |
2017 · 23 people listed · 5 paid, $595K · 21 employees · 346 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| NADINE TATTON | SCIENTIFIC DIRECTOR | 40 | $144,450 | $0 | $17,670 | $162,120 | 1 |
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 40 | $142,000 | $0 | $4,725 | $146,725 | 2 |
| BENJAMIN FREEMAN | DIR OF DEVELOPMENT & COMMUNICATIONS | 40 | $113,261 | $0 | $3,503 | $116,764 | 1 |
| DIANNA HUGHBANKS-WHEATON | REGISTRY DIRECTOR | 40 | $103,300 | $0 | $4,944 | $108,244 | 1 |
| CHRISTINE ROGERS STEVENS | CHIEF FINANCIAL OFFICER | 40 | $53,615 | $0 | $7,770 | $61,385 | 1 |
| BONNIE SHEPHERD | SECRETARY/VICE CHAIR (THRU 4/18) | 6 | $0 | $0 | $0 | $0 | 1 |
| SANDI GROW | DIRECTOR (EFF 4/18) | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID PFEIFER | DIRECTOR (EFF 4/18) | 2 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR (THRU 4/18) | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| STEVE FENOGLIO | SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| MATT HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | VICE CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELO | DIRECTOR (THRU 4/18) | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 19 people listed · 3 paid, $431K · 16 employees · 228 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | CHIEF EXECUTIVE OFFICER | 40 | $142,500 | $0 | $13,250 | $155,750 | 2 |
| NADINE TATTON | SCIENTIFIC DIRECTOR | 40 | $138,500 | $0 | $15,571 | $154,071 | 1 |
| BENJAMIN FREEMAN | DEVELOPMENT & COMMUNICATIONS DIRECTOR | 40 | $116,304 | $0 | $4,517 | $120,821 | 1 |
| BONNIE SHEPHERD | SECRETARY/VICE CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELLO MBA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | CHAIR | 10 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| STEVE FENOGLIO | DIRECTOR/SECRETARY | 4 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DANIEL HEDAYA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KACY KUNESH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN ROSE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL STOWELL PHD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 21 people listed · 1 paid, $124K · 15 employees · 369 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | EXECUTIVE DIRECTOR | 40 | $120,000 | $0 | $3,600 | $123,600 | 2 |
| BONNIE SHEPHERD | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | IMMEDIATE PAST CHAIR | 10 | $0 | $0 | $0 | $0 | 2 |
| BRYAN DALESANDRO | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE FENOGLIO | VICE-CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELLO MBA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EARL COMSTOCK ESQ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EMILY LEVY | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 2 |
| LISA RADIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| POP SHENIAN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE FENOGLIO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUSAN LADEN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICK CHILDS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT HATFIELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 20 people listed · 1 paid, $112K · 11 employees · 203 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | EXECUTIVE DIRECTOR | 40 | $108,333 | $0 | $3,250 | $111,583 | 2 |
| BONNIE SHEPHERD | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | CHAIR | 10 | $0 | $0 | $0 | $0 | 2 |
| BRYAN DALESANDRO | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE FENOGLIO | VICE-CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELLO MBA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EARL COMSTOCK ESQ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANCINE LADEN SCD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EMILY LEVY | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 2 |
| LINDA NEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA RADIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| POP SHENIAN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVE FENOGLIO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUSAN LADEN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 18 people listed · 1 paid, $100K · 9 employees · 185 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | EXECUTIVE DIRECTOR | 40 | $97,084 | $0 | $2,913 | $99,997 | 2 |
| BONNIE SHEPHERD | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | CHAIR | 10 | $0 | $0 | $0 | $0 | 2 |
| BRYAN DALESANDRO | TREASURER | 4 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE FENOGLIO | VICE-CHAIR | 4 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELLO MBA | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| EARL COMSTOCK ESQ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANCINE LADEN SCD | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| EMILY LEVY | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 2 |
| LINDA NEE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA RADIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| POP SHENIAN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GAIL ANDERSEN | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| STEVE BELLWOAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL LESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MELE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2012 · 18 people listed · 1 paid, $95K · 8 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | EXECUTIVE DIRECTOR | 40 | $92,291 | $0 | $2,769 | $95,060 | 2 |
| SUSAN EISSLER MBA | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | CHAIR | 1 | $0 | $0 | $0 | $0 | 2 |
| BRYAN DALESANDRO | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE FENOGLIO | VICE-CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DEANNA ANGELO MBA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EARL COMSTOCK ESQ | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMY KAMIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EMILY LEVY MBA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| SYLVIA MACKEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LINDA NEE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA RADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| POP SHENIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BONNIE SHEPHERD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN WHITMARSH PHD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| FRANCINE LADEN SCD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2011 · 16 people listed · 1 paid, $84K · 7 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| SUSAN DICKINSON | EXECUTIVE DIRECTOR | 40 | $83,917 | $0 | $0 | $83,917 | 2 |
| SUSAN EISSLER MBA | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| BETH WALTER | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| HELEN-ANN COMSTOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| COLLEEN QUINN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE FENOGLIO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AMY KAMIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LINDA NEE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| FRANCINE LADEN SCD | VICE-CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| SYLVIA MACKEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA RADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EARL COMSTOCK ESQ | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRYAN DALESANDRO | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| JARY LARSEN PHD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| EMILY LEVY MBA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| POP SHENIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2024 · 3 contractors · $425K
| Name | Location | Service | Paid |
|---|---|---|---|
| PRECON | ROCKVILLE, MD | AV FOR ANNUAL EDUCATION CONFERENCE | $211,632 |
| MERIPLEX SOLUTIONS LLC | PHILADELPHIA, PA | IT CONSULTANT | $111,685 |
| COREZ | NEW YORK, NY | VENUE | $101,376 |
2023 · 2 contractors · $324K
2022 · 2 contractors · $293K
Paid as a vendor by
Other organizations that listed this one among their highest-paid independent contractors. Contractor lists give no EIN, so these are matched on name and address; check the filing.
| Year | Paid by | Service | Paid | Filing |
|---|---|---|---|---|
| 2019 | FTD DISORDERS REGISTRY LLC | Consulting Services | $151,673 | view vendor page |
| 2018 | FTD DISORDERS REGISTRY LLC | Consulting Services | $153,143 | view vendor page |
| 2017 | FTD DISORDERS REGISTRY LLC | Consulting/HR Staff | $154,419 | view vendor page |
| 2016 | FTD DISORDERS REGISTRY LLC | Consulting | $139,844 | view vendor page |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 6 grants to organizations · $1.5M
Listed grants add up to $1,547,368; the return's “grants paid” expense line says $1,942,719. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 10 grants to organizations · $2.5M
Listed grants add up to $2,524,999; the return's “grants paid” expense line says $2,986,505. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 7 grants to organizations · $1.5M
Listed grants add up to $1,514,807; the return's “grants paid” expense line says $2,475,799. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 10 grants to organizations · $2.1M
Listed grants add up to $2,069,388; the return's “grants paid” expense line says $2,449,896. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 10 grants to organizations · $3.4M
Listed grants add up to $3,393,022; the return's “grants paid” expense line says $3,495,976. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 6 grants to organizations · $2.4M
Listed grants add up to $2,353,333; the return's “grants paid” expense line says $3,586,237. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 8 grants to organizations · $2.6M
Listed grants add up to $2,588,581; the return's “grants paid” expense line says $3,603,039. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 6 grants to organizations · $1.2M
Listed grants add up to $1,202,965; the return's “grants paid” expense line says $1,359,510. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 7 grants to organizations · $2.2M
Listed grants add up to $2,230,453; the return's “grants paid” expense line says $3,126,788. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 3 grants to organizations · $820K
Listed grants add up to $820,000; the return's “grants paid” expense line says $897,107. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 6 grants to organizations · $520K
Listed grants add up to $520,000; the return's “grants paid” expense line says $695,261. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 2 grants to organizations · $160K
Listed grants add up to $160,000; the return's “grants paid” expense line says $218,348. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 2 grants to organizations · $210K
Listed grants add up to $210,000; the return's “grants paid” expense line says $264,281. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 5 grants to organizations · $311K
Listed grants add up to $311,000; the return's “grants paid” expense line says $331,856. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $14,420,554 | $11,559,795 | $60,143,025 | $56,899,979 | $12,345,385 | $302,568 | $651,499 | 64 | 605 |
| 2023 · Form 990 | ||||||||
| $13,139,120 | $11,526,939 | $53,971,673 | $50,581,143 | $12,361,972 | $2,204 | $672,161 | 55 | 398 |
| 2022 · Form 990 | ||||||||
| $8,537,416 | $9,663,807 | $47,470,345 | $45,054,964 | $8,797,440 | $2,051 | $586,637 | 47 | 362 |
| 2021 · Form 990 | ||||||||
| $12,057,958 | $8,575,867 | $44,796,969 | $42,569,575 | $12,078,806 | $1,145 | $566,563 | 35 | 348 |
| 2020 · Form 990 | ||||||||
| $28,527,291 | $7,615,096 | $44,786,288 | $42,885,442 | $28,142,577 | $13,363 | $380,753 | 31 | 364 |
| 2019 · Form 990 | ||||||||
| $9,455,114 | $7,723,528 | $23,888,583 | $20,926,847 | $9,299,005 | $99,956 | $322,606 | 26 | 335 |
| 2018 · Form 990 | ||||||||
| $9,141,943 | $6,981,834 | $21,156,373 | $19,122,906 | $8,919,063 | $150,345 | $353,794 | 24 | 346 |
| 2017 · Form 990 | ||||||||
| $14,801,999 | $4,610,207 | $17,543,745 | $16,798,950 | $14,621,068 | $186,178 | $310,028 | 21 | 346 |
| 2016 · Form 990 | ||||||||
| $4,332,980 | $5,665,227 | $8,259,790 | $6,956,715 | $4,190,242 | $0 | $170,720 | 16 | 228 |
| 2015 · Form 990 | ||||||||
| $8,183,534 | $2,671,249 | $8,752,417 | $8,317,949 | $8,057,371 | $0 | $123,600 | 15 | 369 |
| 2014 · Form 990 | ||||||||
| $2,187,801 | $1,960,231 | $3,039,423 | $2,721,498 | $2,162,391 | $0 | $111,583 | 11 | 203 |
| 2013 · Form 990 | ||||||||
| $2,676,635 | $1,355,744 | $2,513,073 | $2,498,516 | $2,678,682 | $0 | $99,997 | 9 | 185 |
| 2012 · Form 990 | ||||||||
| $1,231,210 | $1,161,957 | $1,238,370 | $1,177,625 | $1,230,706 | $0 | $95,060 | 8 | 150 |
| 2011 · Form 990 | ||||||||
| $1,035,030 | $959,882 | $1,232,413 | $1,127,154 | $1,019,341 | $0 | $83,917 | 7 | 50 |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- FTD DISORDERS REGISTRY LLC Kng Of Prussa, PA · 5 people in common (Gail Anderson, Jary Larsen, Mitch Appleson) · related organization (Schedule R)
Funders of this organization
157 grantors reported grants to this organization, $23,484,709 in all, tax years 2011 to 2025; the 25 largest shown (all 157). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| THE DAVID GEFFEN FOUNDATION | Private foundation | Fuzzy filed as “ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2018-2024 | 7 | $7,000,000 | 2024 | $1,000,000 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2014-2015, 2017-2024 | 10 | $4,273,350 | 2024 | $1,042,800 | show |
| ARIZONA COMMUNITY FOUNDATION | DAF sponsor | Exact | 2014, 2021-2022, 2024 | 4 | $2,274,684 | 2024 | $1,200,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $1,989,932 | 2024 | $384,155 | show |
| GEORGE L OHRSTOM JR FOUNDATION INC | Private foundation | Fuzzy filed as “ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION”, “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2019-2024 | 9 | $906,000 | 2024 | $200,000 | show |
| FIDELITY NON-PROFIT MANAGEMENT FOUNDATION | Public charity | Exact | 2024 | 1 | $800,000 | 2024 | $800,000 | show |
| JEWISH COMMUNAL FUND | DAF sponsor | Exact | 2011-2019, 2021-2024 | 13 | $538,957 | 2024 | $30,475 | show |
| AMYOTROPHIC LATERAL SCLEROSIS ASSN | Public charity | Exact | 2022 | 2 | $530,000 | 2022 | $530,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $500,008 | 2025 | $77,486 | show |
| SG SCHIMENTI FOUNDATION INC | Private foundation | Fuzzy filed as “ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2025 | 1 | $500,000 | 2025 | $500,000 | show |
| ROCKLER JACKSON FAMILY FOUNATION | Private foundation | Fuzzy filed as “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2024 | 1 | $500,000 | 2024 | $500,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2017, 2019-2024 | 7 | $382,215 | 2024 | $139,022 | show |
| THE BESSEMER GIVING FUND | DAF sponsor | Exact | 2012, 2014-2017, 2019, 2021-2022, 2024 | 9 | $269,829 | 2024 | $25,000 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $225,410 | 2024 | $43,500 | show |
| WILLIAM RANDOLPH HEARST FOUNDATION | Private foundation | Fuzzy filed as “The Association for Frontotemporal Degeneration” | 2023 | 1 | $225,000 | 2023 | $225,000 | show |
| DAYTON FOUNDATION | DAF sponsor | Exact | 2013-2024 | 12 | $210,970 | 2024 | $20,810 | show |
| GANZI FAMILY FOUNDATION | Private foundation | Fuzzy filed as “ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION”, “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2016-2017, 2019 | 3 | $200,000 | 2019 | $50,000 | show |
| EDWARD JOHN AND PATRICIA ROSENWALD FOUNDATION | Private foundation | Fuzzy filed as “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2020-2021, 2023-2025 | 5 | $150,000 | 2025 | $25,000 | show |
| ROCHESTER AREA COMMUNITY FOUNDATION | DAF sponsor | Exact | 2018-2019, 2021 | 3 | $150,000 | 2021 | $50,000 | show |
| THE UNITED WAY OF CENTRAL MARYLAND INC | Public charity | Exact | 2012-2013, 2015-2018, 2020, 2022-2023 | 9 | $118,315 | 2023 | $20,486 | show |
| FLORENCE V BURDEN FOUNDATION | Private foundation | Fuzzy filed as “Association for Frontotemporal Degeneration”, “ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION”, “The Association for Frontotemporal Degeneration” | 2013, 2015-2020, 2024 | 8 | $108,000 | 2024 | $15,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2019, 2022-2024 | 4 | $93,407 | 2024 | $54,768 | show |
| ONEOC | DAF sponsor | Exact | 2022 | 1 | $92,761 | 2022 | $92,761 | show |
| THE SPEYER FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION” | 2020, 2022-2024 | 4 | $80,000 | 2024 | $10,000 | show |
| FORGOOD INC | DAF sponsor | Exact | 2014, 2016-2017 | 3 | $71,855 | 2017 | $44,690 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| CHILDRENS ONCOLOGY GROUP FOUNDATION | PA | H12 | $10,371,058 | $9,393,958 | ASST. SECRETARY | $119,097 | Same NTEE code H12, revenue within 2x, same state |
| LUNGEVITY FOUNDATION | IL | H12 | $14,237,969 | $14,555,858 | EXECUTIVE DIRECTOR OF RESEARCH | $235,408 | Same NTEE code H12, revenue within 2x |
| JETT FOUNDATION INC | MA | H12 | $7,446,726 | $3,650,266 | PRESIDENT AND CEO | $261,462 | Same NTEE code H12, revenue within 2x |
| UROLOGY CARE FOUNDATION INC | MD | H12 | $9,577,107 | $3,639,613 | EXECUTIVE DIRECTOR | $963,431 | Same NTEE code H12, revenue within 2x |
| HEALTH EFFECTS INSTITUTE | MA | H12 | $13,252,068 | $15,743,082 | FORMER VICE PRESIDENT | $411,466 | Same NTEE code H12, revenue within 2x |
| DOLPHINS CYCLING CHALLENGE INC | FL | H12 | $14,629,930 | $13,611,846 | EXECUTIVE DIRECTOR | $304,254 | Same NTEE code H12, revenue within 2x |
| USAGAINSTALZHEIMERS | DC | H12 | $19,588,127 | $16,282,885 | CHIEF OPERATING OFFICER | $378,516 | Same NTEE code H12, revenue within 2x |
| COMMONWEALTH FOUNDATION FOR CANCER RESEARCH FOUNDATION | VA | H12 | $25,046,690 | $55,998,011 | DIRECTOR, SECRETARY | $15,000 | Same NTEE code H12, revenue within 2x |
| LIFE SCIENCE CARES INC | MA | H12 | $12,525,481 | $11,120,153 | CLERK & CEO, LSC NATIONAL | $302,322 | Same NTEE code H12, revenue within 2x |
| MACULAR DEGENERATION ASSOCIATION | FL | H12 | $4,633,596 | $2,816,514 | Chairman of the Board | $397,516 | Same NTEE code H12, revenue within 5x, similar name |
| HOPE FOR DEPRESSION RESEARCH FOUNDATION | NY | H12 | $3,352,342 | $7,276,738 | EXECUTIVE DIRECTOR | $301,810 | Same NTEE code H12, revenue within 5x |
| FOUNDATION FOR RESEARCH | NV | H12 | $6,556,157 | $7,047,376 | Trustee, President | $785,428 | Same NTEE code H12, revenue within 5x |
| FRATERNAL ORDER OF EAGLES FOUNDATION | OH | H12 | $5,161,252 | $3,406,319 | CFO | $288,489 | Same NTEE code H12, revenue within 5x |
| REGENMED DEVELOPMENT ORGANIZATION | NC | H12 | $4,133,217 | $1,423,539 | CHAIR | $1,738,115 | Same NTEE code H12, revenue within 5x |
| THE CURETIVITY FOUNDATION | CT | H12 | $4,396,120 | $4,393,089 | EXECUTIVE DIR. & SECRETARY | $164,583 | Same NTEE code H12, revenue within 5x |
| FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS | TX | H12 | $5,388,260 | $10,391,969 | CHIEF SCIENCE OFFICER | $509,945 | Same NTEE code H12, revenue within 5x |
| THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC | NJ | H12 | $3,995,717 | $2,971,092 | EXECUTIVE DIRECTOR | $187,200 | Same NTEE code H12, revenue within 5x |
| DELTA HEALTH ALLIANCE INC | MS | H12 | $41,800,985 | $43,817,866 | CEO and President | $577,003 | Same NTEE code H12, revenue within 5x |
| COMING TOGETHER FOR A CURE INC | KS | H12 | $4,005,322 | $4,037,324 | DIRECTOR OF STRATEGIC INITIATIVES | $78,500 | Same NTEE code H12, revenue within 5x |
| THE V FOUNDATION | NC | H12 | $61,639,637 | $70,594,561 | CHIEF EXECUTIVE OFFICER THR: 8/25 | $632,277 | Same NTEE code H12, revenue within 5x |
| PARTNERSHIP FOR CURES | IL | H12 | $3,881,316 | $1,310,247 | President and CEO | $213,533 | Same NTEE code H12, revenue within 5x |
| RARE VILLAGE FOUNDATION | TX | H12 | $3,660,787 | $2,368,236 | VICE PRESIDENT SECRETARY DIRECTOR | $0 | Same NTEE code H12, revenue within 5x |
| FLORIDA BREAST CANCER COALITION RESEARCH FOUNDATION | FL | H12 | $3,857,492 | $2,422,769 | PRESIDENT | $133,677 | Same NTEE code H12, revenue within 5x |
| T J MARTELL FOUNDATION | NY | H12 | $3,536,897 | $2,038,418 | CHIEF EXECUTIVE OFFICER | $162,500 | Same NTEE code H12, revenue within 5x |
| INTERNATIONAL RETT SYNDROME FOUNDATION | OH | H12 | $4,265,935 | $5,190,108 | CHIEF EXECUTIVE OFFICER - START 4/25 | $178,813 | Same NTEE code H12, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $11,559,795 spent · pay $6,363,009 · grants $1,942,719 · events $1,274,210
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $4,615,773 | $3,691,272 | $47,733 | $876,768 | 39.9% | |
| Grants to US organizations and governments | $1,547,368 | $1,547,368 | - | - | 13.4% | |
| Conferences, conventions and meetings | $813,492 | $787,996 | $24,650 | $846 | 7.0% | |
| Pay: officers, directors, trustees, key employees | $651,499 | $332,922 | $162,874 | $155,703 | 5.6% | |
| Fees: other services | $627,302 | $480,935 | $91,821 | $54,546 | 5.4% | |
| Information technology | $619,374 | $497,453 | $16,494 | $105,427 | 5.4% | |
| Other employee benefits | $556,770 | $423,609 | $26,266 | $106,895 | 4.8% | |
| Payroll taxes | $401,296 | $305,318 | $18,932 | $77,046 | 3.5% | |
| Travel | $320,576 | $255,468 | $7,171 | $57,937 | 2.8% | |
| Grants to US individuals | $285,426 | $285,426 | - | - | 2.5% | |
| Occupancy | $252,906 | $191,163 | $15,514 | $46,229 | 2.2% | |
| Other (as described) | MISC ADVOCACY AND AWARE | $178,678 | $4,207 | $2,911 | $171,560 | 1.5% |
| Other (as described) | PRINTING AND COPYING | $138,212 | $92,877 | $0 | $45,335 | 1.2% |
| Pension plan contributions | $137,671 | $104,744 | $6,495 | $26,432 | 1.2% | |
| Grants outside the US | $109,925 | $109,925 | - | - | 1.0% | |
| Advertising and promotion | $91,986 | $91,511 | - | $475 | 0.8% | |
| Fees: lobbying | $90,000 | $90,000 | - | - | 0.8% | |
| Fees: professional fundraisers | $75,000 | - | - | $75,000 | 0.6% | |
| Other (as described) | BANK & CREDIT CARD FEES | $60,666 | $2,925 | $394 | $57,347 | 0.5% |
| Office expenses | $43,815 | $25,426 | $12,756 | $5,633 | 0.4% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $42,130 | $34,708 | $1,579 | $5,843 | 0.4% |
| Insurance | $30,790 | $23,555 | $1,539 | $5,696 | 0.3% | |
| Fees: accounting | $23,878 | - | $23,878 | - | 0.2% | |
| Depreciation and depletion | $9,107 | $6,929 | $482 | $1,696 | 0.1% | |
| All other expenses | -$163,845 | $75,536 | $3,478 | -$242,859 | -1.4% | |
| Fundraising events Event | direct expenses; gross income $159,707 | $460,718 | reported apart | |||
| Total | $11,559,795 | 100% |
2023 · Form 990 · $11,526,939 spent · pay $5,424,380 · grants $2,986,505 · events $1,182,830
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,909,426 | $3,163,277 | $156,762 | $589,387 | 33.9% | |
| Grants to US organizations and governments | $2,524,999 | $2,524,999 | - | - | 21.9% | |
| Conferences, conventions and meetings | $746,822 | $734,897 | $11,255 | $670 | 6.5% | |
| Pay: officers, directors, trustees, key employees | $672,161 | $405,074 | $152,817 | $114,270 | 5.8% | |
| Information technology | $492,241 | $395,050 | $24,008 | $73,183 | 4.3% | |
| Fees: other services | $487,251 | $395,201 | $15,141 | $76,909 | 4.2% | |
| Other employee benefits | $401,820 | $316,675 | $21,694 | $63,451 | 3.5% | |
| Payroll taxes | $338,096 | $264,359 | $21,856 | $51,881 | 2.9% | |
| Travel | $313,908 | $244,691 | $6,907 | $62,310 | 2.7% | |
| Grants to US individuals | $241,506 | $241,506 | - | - | 2.1% | |
| Occupancy | $241,433 | $177,908 | $18,620 | $44,905 | 2.1% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $225,673 | $217,376 | $4,792 | $3,505 | 2.0% |
| Grants outside the US | $220,000 | $220,000 | - | - | 1.9% | |
| Other (as described) | MISC ADVOCACY AND AWARE | $167,037 | $134,572 | - | $32,465 | 1.4% |
| Advertising and promotion | $162,297 | $162,297 | - | - | 1.4% | |
| Other (as described) | PRINTING AND COPYING | $132,282 | $95,923 | $616 | $35,743 | 1.1% |
| Pension plan contributions | $102,877 | $83,323 | $3,595 | $15,959 | 0.9% | |
| Fees: accounting | $79,464 | - | $79,464 | - | 0.7% | |
| Fees: professional fundraisers | $70,000 | - | - | $70,000 | 0.6% | |
| Other (as described) | BANK & CREDIT CARD FEES | $59,158 | $661 | $1,056 | $57,441 | 0.5% |
| Office expenses | $40,459 | $21,998 | $11,041 | $7,420 | 0.4% | |
| Insurance | $31,466 | $23,516 | $1,872 | $6,078 | 0.3% | |
| Depreciation and depletion | $9,106 | $6,511 | $774 | $1,821 | 0.1% | |
| All other expenses | -$142,543 | $92,380 | $5,533 | -$240,456 | -1.2% | |
| Fundraising events Event | direct expenses; gross income $144,667 | $436,008 | reported apart | |||
| Total | $11,526,939 | 100% |
2022 · Form 990 · $9,663,807 spent · pay $4,778,288 · grants $2,475,799 · events $991,425
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,448,722 | $2,666,162 | $143,369 | $639,191 | 35.7% | |
| Grants to US organizations and governments | $1,821,218 | $1,821,218 | - | - | 18.8% | |
| Information technology | $652,708 | $464,239 | $90,059 | $98,410 | 6.8% | |
| Pay: officers, directors, trustees, key employees | $586,637 | $319,623 | $133,507 | $133,507 | 6.1% | |
| Conferences, conventions and meetings | $572,758 | $526,796 | $45,962 | - | 5.9% | |
| Grants to US individuals | $417,054 | $417,054 | - | - | 4.3% | |
| Other employee benefits | $350,492 | $276,302 | $5,791 | $68,399 | 3.6% | |
| Payroll taxes | $302,324 | $224,123 | $20,268 | $57,933 | 3.1% | |
| Grants outside the US | $237,527 | $237,527 | - | - | 2.5% | |
| Fees: other services | $234,706 | $109,286 | $90,850 | $34,570 | 2.4% | |
| Occupancy | $228,014 | $158,434 | $35,630 | $33,950 | 2.4% | |
| Other (as described) | MISC ADVOCACY AND AWARE | $222,925 | $124,356 | $4,501 | $94,068 | 2.3% |
| Advertising and promotion | $177,819 | $177,819 | - | - | 1.8% | |
| Pension plan contributions | $90,113 | $70,063 | $3,439 | $16,611 | 0.9% | |
| Other (as described) | PRINTING AND COPYING | $90,055 | $62,768 | $912 | $26,375 | 0.9% |
| Travel | $86,721 | $77,875 | $1,772 | $7,074 | 0.9% | |
| Fees: professional fundraisers | $70,000 | - | - | $70,000 | 0.7% | |
| Other (as described) | BANK & CREDIT CARD FEES | $52,167 | $248 | $1,658 | $50,261 | 0.5% |
| Fees: accounting | $47,648 | - | $47,648 | - | 0.5% | |
| Other (as described) | TELEPHONE | $46,695 | $37,132 | $5,868 | $3,695 | 0.5% |
| Office expenses | $31,966 | $8,418 | $22,500 | $1,048 | 0.3% | |
| Insurance | $30,178 | $20,194 | $5,657 | $4,327 | 0.3% | |
| Depreciation and depletion | $12,769 | $7,661 | $2,554 | $2,554 | 0.1% | |
| All other expenses | -$147,409 | $27,101 | $44,188 | -$218,698 | -1.5% | |
| Fundraising events Event | direct expenses; gross income $153,797 | $418,667 | reported apart | |||
| Total | $9,663,807 | 100% |
2021 · Form 990 · $8,575,867 spent · pay $3,481,118 · grants $2,449,896 · events $1,091,991
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,384,791 | $1,917,994 | $68,242 | $398,555 | 27.8% | |
| Grants to US organizations and governments | $2,069,388 | $2,069,388 | - | - | 24.1% | |
| Conferences, conventions and meetings | $734,773 | $695,134 | $39,636 | $3 | 8.6% | |
| Information technology | $611,880 | $437,758 | $63,967 | $110,155 | 7.1% | |
| Pay: officers, directors, trustees, key employees | $566,563 | $310,373 | $128,095 | $128,095 | 6.6% | |
| Fees: other services | $264,804 | $195,114 | $42,030 | $27,660 | 3.1% | |
| Other employee benefits | $251,997 | $204,859 | $5,089 | $42,049 | 2.9% | |
| Occupancy | $230,687 | $159,740 | $36,717 | $34,230 | 2.7% | |
| Payroll taxes | $216,227 | $163,984 | $13,521 | $38,722 | 2.5% | |
| Grants to US individuals | $201,892 | $201,892 | - | - | 2.4% | |
| Grants outside the US | $178,616 | $178,616 | - | - | 2.1% | |
| Fees: management | $166,757 | $77,378 | $61,255 | $28,124 | 1.9% | |
| Advertising and promotion | $127,360 | $127,360 | - | - | 1.5% | |
| Fees: professional fundraisers | $95,000 | - | - | $95,000 | 1.1% | |
| Office expenses | $82,543 | $16,842 | $63,985 | $1,716 | 1.0% | |
| Other (as described) | PRINTING AND COPYING | $77,362 | $66,839 | $401 | $10,122 | 0.9% |
| Pension plan contributions | $61,540 | $49,780 | $1,468 | $10,292 | 0.7% | |
| All other expenses | $49,214 | $44,554 | $2,836 | $1,824 | 0.6% | |
| Fees: accounting | $42,850 | - | $42,850 | - | 0.5% | |
| Other (as described) | BANK & CREDIT CARD FEES | $41,665 | $585 | $811 | $40,269 | 0.5% |
| Other (as described) | TELEPHONE | $39,321 | $30,985 | $5,699 | $2,637 | 0.5% |
| Other (as described) | POSTAGE | $33,153 | $23,092 | $2,411 | $7,650 | 0.4% |
| Insurance | $21,968 | $15,606 | $3,018 | $3,344 | 0.3% | |
| Travel | $13,372 | $10,799 | $607 | $1,966 | 0.2% | |
| Depreciation and depletion | $12,144 | $7,287 | $2,428 | $2,429 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $129,889 | $357,218 | reported apart | |||
| Total | $8,575,867 | 100% |
2020 · Form 990 · $7,615,096 spent · pay $2,583,721 · grants $3,495,976 · events $216,949
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,393,022 | $3,393,022 | - | - | 44.6% | |
| Other salaries and wages | $1,813,051 | $1,377,046 | $60,595 | $375,410 | 23.8% | |
| Pay: officers, directors, trustees, key employees | $380,753 | $206,895 | $86,929 | $86,929 | 5.0% | |
| Information technology | $340,183 | $250,937 | $38,907 | $50,339 | 4.5% | |
| Occupancy | $222,403 | $140,611 | $51,661 | $30,131 | 2.9% | |
| Other employee benefits | $188,364 | $141,161 | $7,523 | $39,680 | 2.5% | |
| Conferences, conventions and meetings | $179,276 | $179,077 | $199 | - | 2.4% | |
| Fees: other services | $158,137 | $138,780 | $13,680 | $5,677 | 2.1% | |
| Payroll taxes | $157,805 | $114,596 | $10,081 | $33,128 | 2.1% | |
| Fees: management | $148,101 | $82,730 | $33,523 | $31,848 | 1.9% | |
| Advertising and promotion | $112,860 | $112,860 | - | - | 1.5% | |
| Grants to US individuals | $102,954 | $102,954 | - | - | 1.4% | |
| Office expenses | $66,642 | $32,003 | $30,001 | $4,638 | 0.9% | |
| Other (as described) | PRINTING AND COPYING | $54,803 | $27,098 | $1,387 | $26,318 | 0.7% |
| Fees: accounting | $46,888 | $600 | $46,288 | - | 0.6% | |
| Pension plan contributions | $43,748 | $33,691 | $1,057 | $9,000 | 0.6% | |
| All other expenses | $38,270 | $25,133 | $2,871 | $10,266 | 0.5% | |
| Other (as described) Event | INDIRECT EVENT EXPENSES | $37,673 | $894 | - | $36,779 | 0.5% |
| Fees: professional fundraisers | $35,000 | - | - | $35,000 | 0.5% | |
| Other (as described) | BANK & CREDIT CARD FEES | $30,920 | $409 | $906 | $29,605 | 0.4% |
| Other (as described) | POSTAGE | $30,241 | $16,089 | $1,429 | $12,723 | 0.4% |
| Insurance | $20,037 | $12,925 | $4,342 | $2,770 | 0.3% | |
| Depreciation and depletion | $12,145 | $7,287 | $2,429 | $2,429 | 0.2% | |
| Travel | $1,820 | $1,620 | $200 | - | 0.0% | |
| Total | $7,615,096 | 100% |
2019 · Form 990 · $7,723,528 spent · pay $2,345,570 · grants $3,586,237 · events $522,867
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,353,333 | $2,353,333 | - | - | 30.5% | |
| Other salaries and wages | $1,679,802 | $1,251,425 | $158,135 | $270,242 | 21.7% | |
| Grants outside the US | $1,102,133 | $1,102,133 | - | - | 14.3% | |
| Pay: officers, directors, trustees, key employees | $322,606 | $115,737 | $157,575 | $49,294 | 4.2% | |
| Information technology | $262,452 | $173,491 | $30,061 | $58,900 | 3.4% | |
| Other (as described) Event | INDIRECT EVENT EXPENSES | $215,317 | $79,504 | - | $135,813 | 2.8% |
| Fees: other services | $196,939 | $163,423 | $12,569 | $20,947 | 2.5% | |
| Occupancy | $195,500 | $136,476 | $29,779 | $29,245 | 2.5% | |
| Other (as described) | OFFICE & PROG SUPPLIES | $190,802 | $70,011 | $101,835 | $18,956 | 2.5% |
| Other employee benefits | $160,561 | $116,448 | $4,965 | $39,148 | 2.1% | |
| Payroll taxes | $145,455 | $96,040 | $16,630 | $32,785 | 1.9% | |
| Conferences, conventions and meetings | $143,563 | $118,604 | $24,959 | - | 1.9% | |
| Fees: management | $138,783 | $16,565 | $105,912 | $16,306 | 1.8% | |
| Grants to US individuals | $130,771 | $130,771 | - | - | 1.7% | |
| Advertising and promotion | $106,796 | $106,746 | - | $50 | 1.4% | |
| Other (as described) | PRINTING AND COPYING | $86,197 | $66,990 | $2,898 | $16,309 | 1.1% |
| All other expenses | $67,187 | $34,294 | $3,607 | $29,286 | 0.9% | |
| Fees: professional fundraisers | $65,000 | - | - | $65,000 | 0.8% | |
| Other (as described) | POSTAGE | $41,435 | $17,319 | $1,956 | $22,160 | 0.5% |
| Pension plan contributions | $37,146 | $27,676 | $981 | $8,489 | 0.5% | |
| Fees: accounting | $31,728 | - | $31,728 | - | 0.4% | |
| Travel | $25,261 | $22,209 | $2,667 | $385 | 0.3% | |
| Insurance | $16,864 | $12,071 | $2,333 | $2,460 | 0.2% | |
| Depreciation and depletion | $7,897 | $5,528 | $1,185 | $1,184 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $129,250 | $163,987 | reported apart | |||
| Total | $7,723,528 | 100% |
2018 · Form 990 · $6,981,834 spent · pay $1,974,884 · grants $3,603,039 · events $687,199
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,588,581 | $2,588,581 | - | - | 37.1% | |
| Other salaries and wages | $1,315,099 | $982,312 | $134,864 | $197,923 | 18.8% | |
| Grants outside the US | $889,394 | $889,394 | - | - | 12.7% | |
| Conferences, conventions and meetings | $362,266 | $336,494 | $25,772 | - | 5.2% | |
| Pay: officers, directors, trustees, key employees | $353,794 | $144,199 | $161,529 | $48,066 | 5.1% | |
| Information technology | $171,784 | $115,006 | $14,582 | $42,196 | 2.5% | |
| Other employee benefits | $151,135 | $111,977 | $4,062 | $35,096 | 2.2% | |
| Fees: other services | $143,185 | $116,356 | $12,052 | $14,777 | 2.1% | |
| Grants to US individuals | $125,064 | $125,064 | - | - | 1.8% | |
| Other (as described) Event | INDIRECT EVENT EXPENSES | $123,382 | $64,750 | - | $58,632 | 1.8% |
| Payroll taxes | $123,302 | $81,898 | $14,294 | $27,110 | 1.8% | |
| Occupancy | $120,320 | $84,224 | $18,048 | $18,048 | 1.7% | |
| Other (as described) | PRINTING AND COPYING | $76,820 | $47,986 | $5,189 | $23,645 | 1.1% |
| Fees: management | $65,503 | $18,975 | $36,106 | $10,422 | 0.9% | |
| Other (as described) | OFFICE & PROG SUPPLIES | $65,439 | $28,861 | $24,605 | $11,973 | 0.9% |
| Fees: professional fundraisers | $65,000 | - | - | $65,000 | 0.9% | |
| Advertising and promotion | $56,400 | $56,400 | - | - | 0.8% | |
| All other expenses | $53,294 | $24,566 | $4,136 | $24,592 | 0.8% | |
| Pension plan contributions | $31,554 | $23,787 | $326 | $7,441 | 0.5% | |
| Other (as described) | POSTAGE | $29,327 | $17,056 | $1,760 | $10,511 | 0.4% |
| Travel | $26,566 | $23,971 | $1,198 | $1,397 | 0.4% | |
| Fees: accounting | $19,954 | - | $19,954 | - | 0.3% | |
| Insurance | $14,726 | $10,308 | $2,209 | $2,209 | 0.2% | |
| Depreciation and depletion | $9,945 | $3,292 | $5,948 | $705 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $120,000 | $201,551 | reported apart | |||
| Total | $6,981,834 | 100% |
2017 · Form 990 · $4,610,207 spent · pay $1,813,252 · grants $1,359,510 · events $657,593
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,241,387 | $962,749 | $87,941 | $190,697 | 26.9% | |
| Grants to US organizations and governments | $1,202,965 | $1,202,965 | - | - | 26.1% | |
| Conferences, conventions and meetings | $389,685 | $371,693 | $17,992 | - | 8.5% | |
| Fees: other services | $314,169 | $264,845 | $36,951 | $12,373 | 6.8% | |
| Pay: officers, directors, trustees, key employees | $310,028 | $126,458 | $141,417 | $42,153 | 6.7% | |
| Payroll taxes | $120,719 | $90,403 | $12,149 | $18,167 | 2.6% | |
| Other employee benefits | $109,225 | $90,322 | $791 | $18,112 | 2.4% | |
| Occupancy | $104,780 | $73,346 | $15,717 | $15,717 | 2.3% | |
| Other (as described) Event | INDIRECT EVENT EXPENSES | $104,729 | $52,364 | - | $52,365 | 2.3% |
| Grants to US individuals | $96,545 | $96,545 | - | - | 2.1% | |
| Information technology | $94,746 | $52,015 | $15,575 | $27,156 | 2.1% | |
| Other (as described) | PRINTING AND COPYING | $82,690 | $59,189 | $713 | $22,788 | 1.8% |
| Travel | $68,198 | $49,565 | $9,526 | $9,107 | 1.5% | |
| Fees: professional fundraisers | $65,000 | - | - | $65,000 | 1.4% | |
| All other expenses | $64,534 | $19,369 | $12,914 | $32,251 | 1.4% | |
| Grants outside the US | $60,000 | $60,000 | - | - | 1.3% | |
| Other (as described) | OFFICE & PROG SUPPLIES | $59,213 | $28,773 | $20,513 | $9,927 | 1.3% |
| Fees: accounting | $41,288 | - | $41,288 | - | 0.9% | |
| Pension plan contributions | $31,893 | $26,395 | $570 | $4,928 | 0.7% | |
| Other (as described) | POSTAGE | $28,690 | $20,643 | $1,871 | $6,176 | 0.6% |
| Insurance | $11,967 | $7,284 | $3,122 | $1,561 | 0.3% | |
| Depreciation and depletion | $7,756 | $5,430 | $1,163 | $1,163 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $94,500 | $163,179 | reported apart | |||
| Total | $4,610,207 | 100% |
2016 · Form 990 · $5,665,227 spent · pay $1,435,683 · grants $3,126,788 · events $462,512
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,230,453 | $2,230,453 | - | - | 39.4% | |
| Other salaries and wages | $1,070,078 | $833,591 | $61,968 | $174,519 | 18.9% | |
| Grants outside the US | $808,686 | $808,686 | - | - | 14.3% | |
| Fees: other services | $270,318 | $211,105 | $48,914 | $10,299 | 4.8% | |
| Conferences, conventions and meetings | $221,153 | $194,099 | $26,921 | $133 | 3.9% | |
| Pay: officers, directors, trustees, key employees | $170,720 | $102,432 | $34,144 | $34,144 | 3.0% | |
| Other (as described) Event | INDIRECT EVENT EXPENSES | $146,423 | - | - | $146,423 | 2.6% |
| Payroll taxes | $102,545 | $80,738 | $5,745 | $16,062 | 1.8% | |
| Office expenses | $97,240 | $58,082 | $9,499 | $29,659 | 1.7% | |
| Other employee benefits | $92,340 | $74,048 | $3,611 | $14,681 | 1.6% | |
| Occupancy | $89,399 | $62,579 | $13,410 | $13,410 | 1.6% | |
| Grants to US individuals | $87,649 | $87,649 | - | - | 1.5% | |
| Other (as described) | WEBSITE | $55,081 | $38,557 | $8,262 | $8,262 | 1.0% |
| All other expenses | $54,918 | $30,011 | $12,351 | $12,556 | 1.0% | |
| Fees: professional fundraisers | $51,576 | - | - | $51,576 | 0.9% | |
| Travel | $50,426 | $43,948 | $710 | $5,768 | 0.9% | |
| Other (as described) | POSTAGE | $28,992 | $20,044 | $1,467 | $7,481 | 0.5% |
| Other (as described) | BANK & CREDIT CARD FEES | $20,140 | $1 | $87 | $20,052 | 0.4% |
| Insurance | $9,953 | $6,967 | $1,493 | $1,493 | 0.2% | |
| Depreciation and depletion | $7,137 | - | $7,137 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $80,600 | $94,936 | reported apart | |||
| Total | $5,665,227 | 100% |
2015 · Form 990 · $2,671,249 spent · pay $1,155,342 · grants $897,107 · events $168,411
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $869,420 | $676,908 | $49,766 | $142,746 | 32.5% | |
| Grants to US organizations and governments | $820,000 | $820,000 | - | - | 30.7% | |
| Conferences, conventions and meetings | $168,411 | $157,845 | $6,870 | $3,696 | 6.3% | |
| Pay: officers, directors, trustees, key employees | $123,600 | $80,340 | $24,720 | $18,540 | 4.6% | |
| Fees: other services | $103,589 | $39,085 | $45,126 | $19,378 | 3.9% | |
| Office expenses | $97,431 | $64,018 | $8,550 | $24,863 | 3.6% | |
| Payroll taxes | $89,294 | $69,652 | $5,435 | $14,207 | 3.3% | |
| Occupancy | $77,484 | $54,239 | $11,623 | $11,622 | 2.9% | |
| Grants to US individuals | $77,107 | $77,107 | - | - | 2.9% | |
| Other employee benefits | $73,028 | $56,758 | $4,143 | $12,127 | 2.7% | |
| Travel | $34,151 | $32,097 | $239 | $1,815 | 1.3% | |
| Other (as described) | WEBSITE | $34,030 | $34,030 | - | - | 1.3% |
| All other expenses | $26,278 | $10,646 | $1,691 | $13,941 | 1.0% | |
| Other (as described) | POSTAGE | $23,313 | $14,389 | $1,457 | $7,467 | 0.9% |
| Other (as described) | MISCELLANEOUS | $19,015 | $6,133 | $653 | $12,229 | 0.7% |
| Other (as described) | TELEPHONE | $17,418 | $12,193 | $2,612 | $2,613 | 0.7% |
| Depreciation and depletion | $6,561 | - | $6,561 | - | 0.2% | |
| Insurance | $6,319 | $4,423 | $948 | $948 | 0.2% | |
| Advertising and promotion | $4,800 | $4,800 | - | - | 0.2% | |
| Total | $2,671,249 | 100% |
2014 · Form 990 · $1,960,231 spent · pay $790,683 · grants $695,261 · events $104,774
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $572,412 | $438,368 | $25,038 | $109,006 | 29.2% | |
| Grants to US organizations and governments | $520,000 | $520,000 | - | - | 26.5% | |
| Pay: officers, directors, trustees, key employees | $111,583 | $73,667 | $21,666 | $16,250 | 5.7% | |
| Grants outside the US | $110,000 | $110,000 | - | - | 5.6% | |
| Conferences, conventions and meetings | $104,774 | $99,133 | $4,240 | $1,401 | 5.3% | |
| Fees: other services | $96,160 | $52,001 | $19,670 | $24,489 | 4.9% | |
| Occupancy | $68,893 | $48,225 | $10,334 | $10,334 | 3.5% | |
| Grants to US individuals | $65,261 | $65,261 | - | - | 3.3% | |
| Payroll taxes | $61,915 | $45,817 | $3,715 | $12,383 | 3.2% | |
| Office expenses | $58,588 | $36,830 | $4,451 | $17,307 | 3.0% | |
| Other employee benefits | $44,773 | $33,132 | $2,686 | $8,955 | 2.3% | |
| Other (as described) | WEBSITE | $30,515 | $21,361 | $4,577 | $4,577 | 1.6% |
| All other expenses | $29,246 | $9,871 | $2,094 | $17,281 | 1.5% | |
| Travel | $19,696 | $17,404 | $1,025 | $1,267 | 1.0% | |
| Other (as described) | POSTAGE | $19,666 | $12,562 | $1,329 | $5,775 | 1.0% |
| Other (as described) | TELEPHONE | $19,198 | $13,438 | $2,880 | $2,880 | 1.0% |
| Other (as described) | MISCELLANEOUS | $15,866 | $7,637 | $1,627 | $6,602 | 0.8% |
| Insurance | $6,757 | $4,730 | $1,014 | $1,013 | 0.3% | |
| Depreciation and depletion | $4,928 | - | $4,928 | - | 0.3% | |
| Total | $1,960,231 | 100% |
2013 · Form 990 · $1,355,744 spent · pay $691,606 · grants $218,348 · events $149,382
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $505,050 | $405,831 | $18,163 | $81,056 | 37.3% | |
| Grants to US organizations and governments | $160,000 | $160,000 | - | - | 11.8% | |
| Conferences, conventions and meetings | $132,113 | $125,106 | $4,787 | $2,220 | 9.7% | |
| Pay: officers, directors, trustees, key employees | $99,997 | $66,017 | $19,417 | $14,563 | 7.4% | |
| Fees: other services | $94,872 | $55,898 | $20,359 | $18,615 | 7.0% | |
| Office expenses | $67,754 | $56,406 | $2,640 | $8,708 | 5.0% | |
| Grants to US individuals | $58,348 | $58,348 | - | - | 4.3% | |
| Payroll taxes | $54,025 | $40,904 | $2,946 | $10,175 | 4.0% | |
| Occupancy | $51,876 | $36,314 | $7,781 | $7,781 | 3.8% | |
| Other employee benefits | $24,850 | $16,297 | $2,074 | $6,479 | 1.8% | |
| Other (as described) | WEBSITE | $21,054 | $20,414 | $640 | - | 1.6% |
| Travel | $16,777 | $16,281 | $153 | $343 | 1.2% | |
| Other (as described) | POSTAGE | $15,339 | $10,030 | $1,021 | $4,288 | 1.1% |
| Other (as described) | TELEPHONE | $14,084 | $9,864 | $2,110 | $2,110 | 1.0% |
| All other expenses | $12,870 | $10,688 | $1,932 | $250 | 0.9% | |
| Other (as described) | BANK CHARGES | $9,663 | $0 | $175 | $9,488 | 0.7% |
| Pension plan contributions | $7,684 | $7,684 | - | - | 0.6% | |
| Insurance | $5,533 | $3,873 | $830 | $830 | 0.4% | |
| Depreciation and depletion | $3,855 | - | $3,855 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $11,795 | $17,269 | reported apart | |||
| Total | $1,355,744 | 100% |
2012 · Form 990 · $1,161,957 spent · pay $552,412 · grants $264,281 · events $104,129
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $394,344 | $305,468 | $10,087 | $78,789 | 33.9% | |
| Grants to US organizations and governments | $210,000 | $210,000 | - | - | 18.1% | |
| Pay: officers, directors, trustees, key employees | $95,060 | $67,373 | $18,458 | $9,229 | 8.2% | |
| Conferences, conventions and meetings | $88,109 | $85,687 | - | $2,422 | 7.6% | |
| Grants to US individuals | $54,281 | $54,281 | - | - | 4.7% | |
| Fees: other services | $48,872 | $36,359 | $7,218 | $5,295 | 4.2% | |
| Occupancy | $47,868 | $33,508 | $7,180 | $7,180 | 4.1% | |
| Payroll taxes | $45,683 | $34,930 | $2,541 | $8,212 | 3.9% | |
| Office expenses | $43,287 | $31,054 | $3,545 | $8,688 | 3.7% | |
| Other (as described) | WEBSITE | $26,353 | $26,353 | - | - | 2.3% |
| Other (as described) | POSTAGE | $14,813 | $10,696 | $1,201 | $2,916 | 1.3% |
| All other expenses | $14,470 | $5,202 | $1,755 | $7,513 | 1.2% | |
| Fees: accounting | $14,065 | - | $14,065 | - | 1.2% | |
| Other (as described) | TELEPHONE | $13,166 | $9,216 | $1,975 | $1,975 | 1.1% |
| Other employee benefits | $12,701 | $7,918 | $1,130 | $3,653 | 1.1% | |
| Other (as described) | SUPPLIES | $10,848 | $8,511 | $1,203 | $1,134 | 0.9% |
| Travel | $8,690 | $6,868 | $1,796 | $26 | 0.7% | |
| Advertising and promotion | $6,000 | $6,000 | - | - | 0.5% | |
| Insurance | $5,387 | $3,771 | $808 | $808 | 0.5% | |
| Pension plan contributions | $4,624 | $4,624 | - | - | 0.4% | |
| Depreciation and depletion | $3,336 | - | $3,336 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income - | $16,020 | reported apart | |||
| Total | $1,161,957 | 100% |
2011 · Form 990 · $959,882 spent · pay $367,388 · grants $331,856 · events $68,412
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $311,000 | $311,000 | - | - | 32.4% | |
| Other salaries and wages | $255,455 | $193,866 | $5,026 | $56,563 | 26.6% | |
| Pay: officers, directors, trustees, key employees | $83,917 | $56,942 | $16,783 | $10,192 | 8.7% | |
| Conferences, conventions and meetings | $68,412 | $68,323 | - | $89 | 7.1% | |
| Office expenses | $45,111 | $34,778 | $3,760 | $6,573 | 4.7% | |
| Fees: other services | $30,739 | $14,299 | $2,120 | $14,320 | 3.2% | |
| Other (as described) | WEBSITE | $28,702 | $19,681 | $4,608 | $4,413 | 3.0% |
| Payroll taxes | $28,016 | $20,926 | $1,904 | $5,186 | 2.9% | |
| Occupancy | $25,121 | $17,585 | $3,768 | $3,768 | 2.6% | |
| Grants to US individuals | $20,856 | $20,856 | - | - | 2.2% | |
| Fees: accounting | $13,818 | - | $13,818 | - | 1.4% | |
| Other (as described) | POSTAGE | $12,843 | $7,694 | $1,259 | $3,890 | 1.3% |
| Other (as described) | TELEPHONE | $10,045 | $7,210 | $1,643 | $1,192 | 1.0% |
| All other expenses | $9,740 | $2,363 | $1,381 | $5,996 | 1.0% | |
| Other (as described) | SUPPLIES | $5,828 | $4,132 | $861 | $835 | 0.6% |
| Travel | $4,456 | $4,399 | $57 | - | 0.5% | |
| Insurance | $4,336 | $2,314 | $1,526 | $496 | 0.5% | |
| Depreciation and depletion | $1,487 | - | $1,487 | - | 0.2% | |
| Total | $959,882 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2026 | $285,903 | 6 | |
| 2025 | $365,835 | 10 | |
| 2024 | 5 |
Issues: Health Issues, Budget/Appropriations, Medical/Disease Research/Clinical Labs, Medicare/Medicaid, Taxation/Internal Revenue Code
Firms hired: ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION, IPOLICY SOLUTIONS
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
Trademarks
3 US trademarks, 3 live.
- The Association for Frontotemporal Degeneration 3 marks, PA EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| AFTD THE ASSOCIATION FOR FRONTOTEMPORALDEGENERATION FIND HELP·SHARE HOPE | 88128943 | 2018-09-24 | Registered | TRTYRAP, file of 2026-04-03 |
| FIND HELP SHARE HOPE | 88125459 | 2018-09-20 | Registered | TRTYRAP, file of 2026-04-03 |
| AFTD'S FOOD FOR THOUGHT | 86267612 | 2014-04-30 | Registered and renewed | TRTYRAP, file of 2026-04-03 |
The newest marks of the trademark owners above, matched to this record by name (and state).
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