THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION: Form 990, tax year 2011
View the entire original 990 at ProPublica ↗
- Organization
- THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION (EIN 41-2073220)
- Tax period
- 2011-01-01 to 2011-12-31
- Filed
- 2012-05-09
- IRS object ID
- 201211309349300611
- Schema version
- 2011v1.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2012-05-09T07:50:30-05:00 | Timestamp |
| Tax Period End Date | 2011-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 231518888 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MAILLIE FALCONIERO & COMPANY LLP | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 3068 | AddressLine1 |
| City | WEST CHESTER | City |
| State | PA | State |
| ZIP Code | 193813068 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2011-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 412073220 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | ASSO | NameControl |
| Phone | 2675147221 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 290 KING OF PRUSSIA RD BLDG 2 NO | AddressLine1 |
| Address Line2 | 320 | AddressLine2 |
| City | RADNOR | City |
| State | PA | State |
| ZIP Code | 19087 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | BRYAN DALESANDRO | Name |
| Title | TREASURER | Title |
| Phone | 2675147221 | Phone |
| Date Signed | 2012-05-03 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | EDWARD FRONCZKOWSKI CPA | Name |
| PTIN | P01259092 | PTIN |
| Phone | 6106964353 | Phone |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2011 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | BRYAN DALESANDRO | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 290 KING OF PRUSSIA RD BLDG 2 NO | AddressLine1 |
| Address Line2 | 320 | AddressLine2 |
| City | RADNOR | City |
| State | PA | State |
| ZIP Code | 19087 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 1331313 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.THEAFTD.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 2002 | YearFormation |
| State Legal Domicile | PA | StateLegalDomicile |
| Activity Or Mission Description | PROMOTE AND FUND RESEARCH INTO FINDING THE CAUSE, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD);PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS;EDUCATE PHYSICIANS AND ALLIED HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE;BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 15 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 15 | NbrIndependentVotingMembers |
| Total Nbr Employees | 7 | TotalNbrEmployees |
| Total Nbr Volunteers | 50 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 1153120 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 1019341 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 0 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 0 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 8516 | InvestmentIncomePriorYear |
| Investment Income Current Year | 5225 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 1312 | OtherRevenuePriorYear |
| Other Revenue Current Year | 10464 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 1162948 | TotalRevenuePriorYear |
| Total Revenue Current Year | 1035030 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 311083 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 331856 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 257514 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 367388 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 113513 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 274826 | OtherExpensePriorYear |
| Other Expenses Current Year | 260638 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 843423 | TotalExpensesPriorYear |
| Total Expenses Current Year | 959882 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | 319525 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 75148 | RevenuesLessExpensesCY |
| Total Assets BOY | 1106884 | TotalAssetsBOY |
| Total Assets EOY | 1232413 | TotalAssetsEOY |
| Total Liabilities BOY | 54878 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 105259 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 1052006 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 1127154 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part III | X | InfoInScheduleOPartIII |
| Mission Description | PROMOTE AND FUND RESEARCH INTO FINDING THE CAUSE, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD);PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS;EDUCATE PHYSICIANS AND ALLIED HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE;BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 402264 | Expense |
| Grants | 306000 | Grants |
| Description | RESEARCH:CREATED A SCIENTIFIC DIRECTOR POSITION. AWARDED $290,000 IN RESEARCH GRANTS: $110,000 FOR A TWO-YEAR POSTDOCTORAL FELLOWSHIP, $100,000 FOR BIOMARKERS RESEARCH, $60,000 FOR A PILOT GRANT; $25,000 FOR MOUSE MODEL VALIDATION. JOINED THE NIH IPSC CONSORTIUM. PARTICIPATED IN THE TRAINING SESSION FOR CLINICIANS TO ENTER PATIENT DATA IN TO THE NEW NATIONAL FTD DATABASE SPONSORED BY NIH; BROUGHT THE FTD TREATMENT STUDY GROUP, A COLLABORATIVE EFFORT BETWEEN CLINICIANS, PHARMA AND NONPROFIT ORGANIZATIONS, UNDER THE AUSPICES OF THE AFTD. THROUGH THE FTSG, CO-HOSTED TWO MEETINGS FOCUSED ON PRECINICAL AND CLINICAL CHALLENGES IN THE DEVELOPMENT OF THE FIRST THERAPIES FOR FTD. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 137191 | Expense |
| Grants | 20856 | Grants |
| Description | SUPPORT:IN 2011, AFTD RESPONDED TO MORE THAN 1200 CALLS ON THE TOLL-FREE HELPLINE; AN ADDITIONAL 15 CAREGIVER SUPPORT GROUPS JOINED OUR NETWORK, TO BRING THE TOTAL TO 64; OVER 60 CAREGIVERS WERE MATCHED WITH INDIVIDUALS FOR INFORMAL SUPPORT. 60 RESPITE GRANTS AND 12 TRAVEL GRANTS TOTALLING MORE THAN $33,500 WERE AWARDED TO CAREGIVERS; AFTD'S TASK FORCE ON FAMILIES COMPLETED ITS REPORT ON THE UNIQUE NEEDS OF FTD FAMILIES WITH CHILDREN AND SUBMITTED AN ARTICLE FOR PUBLICATION IN A PEER-REVIEW JOURNAL. A BOOKLET FOR PARENTS WILL BE AVAILABLE IN EARLY 2012. EFFORTS HAVE BEEN STARTED TO UNDERSTAND AND ADDRESS THE SUPPORT NEEDS OF PEOPLE DIAGNOSED WITH FTD. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 246913 | Expense |
| Grants | 5000 | Grants |
| Description | EDUCATION AND INFORMATION:MAINTAINED AND EXPANDED A WEBSITE PROVIDING INFORMATION FOR PATIENTS, FAMILIES AND CAREGIVERS; PUBLISHED THREE NEWSLETTERS AND INTRODUCED A BI-MONTHLY E-NEWSLETTER FOR CAREGIVERS. AFTD HOSTED ITS FIRST EDUCATION CONFERENCE FOR CAREGIVERS AND PROFESSIONALS IN JUNE 2011 AND SPONSORED TWO ADDITIONAL REGIONAL FTD CONFERENCES. SPONSORED TWO CME ACCREDITED PROGRAMS FOR PHYSICIAN EDUCATION: A GRAND ROUNDS TRAINING (LIVE AND ON-LINE) AND A FULL DAY WORKSHOP ON DIAGNOSIS. PUBLISHED THE RESULTS OF ORIGINAL NIH-FUNDED RESEARCH INTO OBSTACLES TO BRAIN DONATION. FORMED COMMITTEE ON LONG-TERM CARE PROFESSIONAL EDUCATION AND PRODUCED INITIAL PARTNERS IN FTD CARE TRAINING MATERIALS. PRESENTED TRAINING TO STATE ASSOCIATION OF ADULT DAY HEALTH PROVIDERS AND SEVERAL LONG-TERM CARE FACILITIES. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 786368 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 0 | LobbyingActivities |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 0 | ReportOtherLiabilities |
| Report Fin48 Footnote | 0 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 0 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 0 | ForeignActivities |
| More Than5000 K To Organizations | 0 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 0 | FundraisingActivities |
| Gaming | 0 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 1 | GrantsToOrganizations |
| Grants To Individuals | 1 | GrantsToIndividuals |
| Schedule J Required | 0 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 0 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 1 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transaction Related Entity | 0 | TransactionRelatedEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 7 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Compliance With Backup Witholding | 1 | ComplianceWithBackupWitholding |
| Number Of Employees | 7 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributions |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 15 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 15 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 1 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 0 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 1 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 0 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | KS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | ME | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MD | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NJ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NM | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | PA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | RI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | SC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | UT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | VA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WV | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AZ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | DC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | FL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | GA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | HI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| Other Website | X | OtherWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ORGANIZATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 2675147221 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 290 KING OF PRUSSIA RD BLDG 2 SITE | AddressLine1 |
| City | RADNOR | City |
| State | PA | State |
| ZIP Code | 19087 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (16 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| SUSAN EISSLER MBA | ||||||
| SECRETARY | 1.00 | X | X | 0 | 0 | 0 |
| BETH WALTER | ||||||
| CHAIR | 1.00 | X | X | 0 | 0 | 0 |
| HELEN-ANN COMSTOCK | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| COLLEEN QUINN | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| DEBBIE FENOGLIO | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| AMY KAMIN | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| LINDA NEE | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| FRANCINE LADEN SCD | ||||||
| VICE-CHAIR | 1.00 | X | X | 0 | 0 | 0 |
| SYLVIA MACKEY | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| LISA RADIN | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| EARL COMSTOCK ESQ | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| BRYAN DALESANDRO | ||||||
| TREASURER | 1.00 | X | X | 0 | 0 | 0 |
| JARY LARSEN PHD | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| EMILY LEVY MBA | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| POP SHENIAN | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| SUSAN DICKINSON | ||||||
| EXECUTIVE DIRECTOR | 40.00 | X | 83917 | 0 | 0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 83917 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 0 | TotalOtherCompensation |
| Number Individuals GT100 K | 0 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 0 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
| Number Of Contractors GT100 K | 0 | NumberOfContractorsGT100K |
| All Other Contributions | 1019341 | AllOtherContributions |
| Noncash Contributions | 296283 | NoncashContributions |
| Total Contributions | 1019341 | TotalContributions |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 4566 | TotalRevenueColumn |
| Exclusion | $4,566 | ExclusionAmount |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 296942 | Securities |
Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 296283 | Securities |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 659 | Securities |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 659 | TotalRevenueColumn |
| Exclusion | $659 | ExclusionAmount |
Other Revenue Misc OtherRevenueMisc
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | BOOK & DVD SALES | Description |
| Business Code | 451211 | BusinessCode |
| Total Revenue Column | 10464 | TotalRevenueColumn |
| Related Or Exempt Function Income | 10464 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | 10464 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 1035030 | TotalRevenueColumn |
| Related Or Exempt Function Income | 10464 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | $5,225 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 311000 | Total |
| Program Services | 311000 | ProgramServices |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 20856 | Total |
| Program Services | 20856 | ProgramServices |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 83917 | Total |
| Program Services | 56942 | ProgramServices |
| Management And General | 16783 | ManagementAndGeneral |
| Fundraising | 10192 | Fundraising |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 255455 | Total |
| Program Services | 193866 | ProgramServices |
| Management And General | 5026 | ManagementAndGeneral |
| Fundraising | 56563 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 28016 | Total |
| Program Services | 20926 | ProgramServices |
| Management And General | 1904 | ManagementAndGeneral |
| Fundraising | 5186 | Fundraising |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 13818 | Total |
| Management And General | 13818 | ManagementAndGeneral |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 30739 | Total |
| Program Services | 14299 | ProgramServices |
| Management And General | 2120 | ManagementAndGeneral |
| Fundraising | 14320 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 45111 | Total |
| Program Services | 34778 | ProgramServices |
| Management And General | 3760 | ManagementAndGeneral |
| Fundraising | 6573 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25121 | Total |
| Program Services | 17585 | ProgramServices |
| Management And General | 3768 | ManagementAndGeneral |
| Fundraising | 3768 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4456 | Total |
| Program Services | 4399 | ProgramServices |
| Management And General | 57 | ManagementAndGeneral |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 68412 | Total |
| Program Services | 68323 | ProgramServices |
| Fundraising | 89 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 1487 | Total |
| Management And General | 1487 | ManagementAndGeneral |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4336 | Total |
| Program Services | 2314 | ProgramServices |
| Management And General | 1526 | ManagementAndGeneral |
| Fundraising | 496 | Fundraising |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| WEBSITE | 28702 | 19681 | 4608 | 4413 |
| POSTAGE | 12843 | 7694 | 1259 | 3890 |
| TELEPHONE | 10045 | 7210 | 1643 | 1192 |
| SUPPLIES | 5828 | 4132 | 861 | 835 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 9740 | Total |
| Program Services | 2363 | ProgramServices |
| Management And General | 1381 | ManagementAndGeneral |
| Fundraising | 5996 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 959882 | Total |
| Program Services | 786368 | ProgramServices |
| Management And General | 60001 | ManagementAndGeneral |
| Fundraising | 113513 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 72686 | BOY |
| EOY | 110873 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1027799 | BOY |
| EOY | 1107631 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1288 | BOY |
| EOY | 4963 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 8855 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 1981 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3039 | BOY |
| EOY | 6874 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2072 | BOY |
| EOY | 2072 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1106884 | BOY |
| EOY | 1232413 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3523 | BOY |
| EOY | 7168 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 51355 | BOY |
| EOY | 98091 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 54878 | BOY |
| EOY | 105259 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Do Not Follow SFAS117 | X | DoNotFollowSFAS117 |
Cap Stck Trst Prin Current Funds CapStckTrstPrinCurrentFunds
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 889122 | BOY |
| EOY | 1034438 | EOY |
Paid In Cap Srpls Land Bldg Eqp Fund PaidInCapSrplsLandBldgEqpFund
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 0 | BOY |
| EOY | 0 | EOY |
Retained Earnings Endowment Etc RetainedEarningsEndowmentEtc
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 162884 | BOY |
| EOY | 92716 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1052006 | BOY |
| EOY | 1127154 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1106884 | BOY |
| EOY | 1232413 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 75148 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 0 | FSAudited |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 641241 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 810148 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 715649 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 1153120 | CurrentTaxYearMinus1Year |
| Current Tax Year | 1019341 | CurrentTaxYear |
| Total | 4339499 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 641241 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 810148 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 715649 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 1153120 | CurrentTaxYearMinus1Year |
| Current Tax Year | 1019341 | CurrentTaxYear |
| Total | 4339499 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 1270580 | AmountsSubstContributorsTotal |
| Public Support Total170 | 3068919 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 4580 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 10398 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 11473 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 5709 | CurrentTaxYearMinus1Year |
| Current Tax Year | 4566 | CurrentTaxYear |
| Total | 36726 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 4376225 | TotalSupport |
| Gross Receipts From Admissions Etc | 14807 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.70130 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.68780 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule D IRS990ScheduleD
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 8855 | OtherCostOrOtherBasis |
| Depreciation | 1981 | Depreciation |
| Book Value | 6874 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 6874 | TotalOfBookValueLandBuildings |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | 1 | RecordsMaintained |
Recipient Table RecipientTable (5 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Purpose Of GrantPurposeOfGrant |
|---|---|---|---|---|---|---|---|
| ALZHEIMER DRUG DISCOVERY | |||||||
| 1414 AVENUE OF THE AMERICAS | NEW YORK | NY | 10019 | 201082179 | 501(C)(3) | 126000 | DRUG DISCOVERY |
| TAUB INSTITUTE COLUMBIA UNIVERSITY | |||||||
| 630 W 168TH ST PO BOX 16 | NEW YORK | NY | 10032 | 135598093 | 501(C)(3) | 5000 | RESEARCH |
| MAYO CLINIC JACKSONVILLE | |||||||
| 4500 SAN PABLO RD | JACKSONVILLE | FL | 32224 | 416011702 | 501(C)(3) | 110000 | RESEARCH |
| FOUNDATION FOR NATIONAL INSTITUTES OF HEALTH | |||||||
| 9650 ROCKVILLE PIKE | BETHESDA | MD | 20814 | 521986675 | 501(C)(3) | 10000 | RESEARCH |
| CORNELL UNIVIERSITY | |||||||
| PO BOX 22 | ITHACA | NY | 148510022 | 150532082 | 501(C)(3) | 60000 | RESEARCH |
Form990 Schedule I Part III Form990ScheduleIPartIII (2 entries)
| Type Of GrantTypeOfGrant | Number Of RecipientsNumberOfRecipients | Amount Of Cash GrantAmountOfCashGrant |
|---|---|---|
| RESPITE CARE | 60 | 19956 |
| TRAVEL GRANTS | 12 | 900 |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS IN THE U.S.: | Identifier |
| Return Reference | PART I, LINE 2: | ReturnReference |
| Explanation | SCHEDULE I, PART I, LINE 2: GRANTEES SUBMIT INTERIM (SIX MONTH) AND FINAL (TWELVE MONTH) REPORTS WITH PROGRAM AND FINANCIAL INFORMATION. | Explanation |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTraded
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Number Of Contributions | 6 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 296283 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | DAILY AVG. MARKET VALUE | MethodOfDeterminingRevenues |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeld |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGifts |
| Third Parties Used | 1 | ThirdPartiesUsed |
Form990 Schedule M Part II Form990ScheduleMPartII
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | THIRD PARTY USE: | Identifier |
| Return Reference | PART I, LINE 32B: | ReturnReference |
| Explanation | AFTD RETAINS THE SERVICES OF PRIME VEST FINANCIAL SERVICES TO SELL SHARES OF SECURITIES RECEIVED AS CONTRIBUTIONS. | Explanation |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (7 entries)
| ExplanationExplanation | Return ReferenceReturnReference |
|---|---|
| FORM 990, PART IV, LINE 12A: AFTD IS CURRENTLY IN THE PROCESS OF SHIFTING ITS FISCAL YEAR FROM DECEMBER 31 TO JUNE 30. THEREFORE, THE FINANCIAL INFORMATION INCLUDED IN THIS TAX RETURN WILL BE AUDITED DURING THE SUMMER OF 2012 AS PART OF AN 18-MONTH AUDIT COVERING THE PERIOD OF JANUARY 1, 2011 - JUNE 30, 2012. | |
| EARL COMSTOCK AND HELEN ANN COMSTOCK HAVE A FAMILY RELATIONSHIP - SON AND MOTHER. | FORM 990, PART VI, SECTION A, LINE 2 |
| THE ORGANIATION EXECUTED A SIGNIFICANT REVISION OF ITS BYLAWS WHICH INCLUDED MODIFICATION OF DIRECTOR TERMS. | FORM 990, PART VI, SECTION A, LINE 4 |
| THE COMPLETE 990 WAS FORWARDED TO THE BOARD OF DIRECTORS IN ADVANCE OF THE ANNUAL BOARD MEETING AND DIRECTORS WERE ADVISED THAT THEY WOULD NEED TO READ IT IN FULL. THE TREASURER AND EXECUTIVE DIRECTOR WERE AVAILABLE TO CLARIFY ANY ISSUES. DURING THE ANNUAL IN-PERSON BOARD MEETING IN APRIL 2012 TIME WAS RESERVED FOR REVIEW AND DISCUSSION OF THE 990. THE 990 WAS APPROVED BY THE BOARD BEFORE FILING. | FORM 990, PART VI, SECTION B, LINE 11 |
| ALL BOARD MEMBERS AND EXECUTIVE DIRECTOR SIGN THE CONFLICT OF INTEREST FORM EVERY YEAR. IF AN ISSUE WERE TO ARISE IT WOULD BE ADDRESSED BY THE EXECUTIVE COMMITTEE AND THE BOARD MEMBER/EXECUTIVE DIRECTOR IN QUESTION. | FORM 990, PART VI, SECTION B, LINE 12C |
| THE BOARD CHAIR SOLICITED INPUT FROM AFTD OFFICERS AND COMMITTEE CHAIRS. THIS INPUT, ALONG WITH SALARY COMPARABILITY DATA, WAS REVIEWED BY THE EXECUTIVE COMMITTEE, WHO APPROVED THE EXECUTIVE DIRECTOR'S REVIEW AND COMPENSATION ADJUSTMENT. | FORM 990, PART VI, SECTION B, LINE 15A |
| ALL GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST FROM THE OFFICE. | FORM 990, PART VI, SECTION C, LINE 19 |
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