FURP.ORG / PUBLIC DATA EXPLORER

FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS (EIN 26-3160079)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-11-15
IRS object ID
201813199349314156
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-11-15T15:25:16-06:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN453950334PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1HEGRE MCMAHON & SCHIMMEL LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1600 ENTERPRISE DRIVE STE 109AddressLine1Txt
CityOAK BROOKCityNm
State AbbreviationILStateAbbreviationCd
ZIP60523ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN263160079EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FOUNDATION FOR ANGELMAN SYNDROMEBusinessNameLine1Txt
Business Name Line2THERAPEUTICSBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlFOUNBusinessNameControlTxt
Phone8667830078PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 608AddressLine1Txt
CityDOWNERS GROVECityNm
State AbbreviationILStateAbbreviationCd
ZIP60515ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonPAULA EVANSPersonNm
Person TitleCHAIRPERSONPersonTitleTxt
Phone8667830078PhoneNum
Signature2018-11-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonSEAN MCMAHONPreparerPersonNm
PTINP00350296PTIN
Phone3123456200PhoneNum
Preparation2018-11-15PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address173.165.116.149IPv4AddressTxt
FieldValueIRS element (for citing)
IP2018-11-15IPDt
IP Tm15:09:14IPTm
IP TimezoneCSIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdFB1BEE36FFA8700082452907943930F5C90D0054AtSubmissionCreationDeviceId
At Submission Filing Device IdFB1BEE36FFA8700082452907943930F5C90D0054AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerPAULA EVANSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 608AddressLine1Txt
CityDOWNERS GROVECityNm
State AbbreviationILStateAbbreviationCd
ZIP60515ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$9,589,963GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CUREANGELMAN.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2008FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionTHE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS (FAST) IS DEDICATED TO FINDING A CURE FOR ANGELMAN SYNDROME (AS) AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, AWARENESS, AND ADVOCACY.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Volunteers260TotalVolunteersCnt
Total Gross UBI$2TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$4,404,670PYContributionsGrantsAmt
CY Contributions Grants$8,790,002CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income-$56PYInvestmentIncomeAmt
CY Investment Income-$18,970CYInvestmentIncomeAmt
PY Other Revenue-$7,294PYOtherRevenueAmt
CY Other Revenue-$21,333CYOtherRevenueAmt
PY Total Revenue$4,397,320PYTotalRevenueAmt
CY Total Revenue$8,749,699CYTotalRevenueAmt
PY Grants And Similar Paid$3,039,187PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$5,218,272CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$46,130PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$57,754CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$94,966CYTotalFundraisingExpenseAmt
PY Other Expenses$365,423PYOtherExpensesAmt
CY Other Expenses$367,804CYOtherExpensesAmt
PY Total Expenses$3,450,740PYTotalExpensesAmt
CY Total Expenses$5,643,830CYTotalExpensesAmt
PY Revenues Less Expenses$946,580PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$3,105,869CYRevenuesLessExpensesAmt
Total Assets BOY$2,221,539TotalAssetsBOYAmt
Total Assets EOY$7,713,003TotalAssetsEOYAmt
Total Liabilities BOY$80,000TotalLiabilitiesBOYAmt
Total Liabilities EOY$2,465,595TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,141,539NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$5,247,408NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$5,218,272ExpenseAmt
Grant$5,218,272GrantAmt
DescFAST'S PRIMARY GOAL IS TO ADVANCE RESEARCH LEADING TO A CURE FOR AS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$232,586ExpenseAmt
DescAS IS A RARE DISORDER, THE COMMUNITY OF PARENTS AND CAREGIVERS OF INDIVIDUALS WITH AS RELY HEAVILY ON SOCIAL NETWORKING TO BECOME INFORMED AND SEEK ADVICE AND GUIDANCE ON THE CHALLENGES WHICH THE DISORDER PRESENTS. IT IS ONE OF FAST'S OBJECTIVES TO EDUCATE, SUPPORT, AND STRENGTHEN THIS COMMUNITY. IN DECEMBER 2017, FAST BROUGHT TOGETHER 1,138 PARENTS/CAREGIVERS TO HEAR ABOUT THE LATEST RESEARCH ON AS, THE GOALS AND OBJECTIVES OF FAST, ITS PROGRESS TOWARDS MEETING THOSE GOALS AND PLANS FOR THE FUTURE. SPEAKERS INCLUDED THE HEAD OF FAST'S SCIENTIFIC ADVISORY BOARD AND FIRE TEAM, DR. EDWIN WEEBER, AND THE OTHER FIRE TEAM MEMBERS DR. SCOTT DINDOT, DR. DAVID SEGAL AND DR. ANNE ANDERSON, AS WELL AS DR. ALLYSON BERENT, FAST'S CHIEF SCIENCE OFFICER. NON-SCIENTIFIC GUEST SPEAKERS INCLUDED COLIN FARRELL, JAI COURTNEY, RETTA SIRLEAF, TAYLOR LAUTNER, AND PAULA EVANS. IN ADDITION, AN EDUCATIONAL SUMMIT WAS HELD WITH GUEST EDUCATIONAL EXPERTS, KATE AHERN. NETWORKING/MENTORING OPPORTUNITIES WERE ALSO FACILITATED SO THAT PEOPLE CARING FOR INDIVIDUALS OF THE SAME AGE OR WITH SIMILAR CIRCUMSTANCES COULD EXCHANGE EXPERIENCES, INFORMATION AND GUIDANCE AND SOLIDIFY RELATIONSHIPS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$5,450,858TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl EntYes (1)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (1)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document9IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee1EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of Committees0MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention Policy0DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonPAULA EVANSPersonNm
Phone8667830078PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11512 ROYAL OAK ROADAddressLine1Txt
CityDARIENCityNm
State AbbreviationILStateAbbreviationCd
ZIP60561ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
PAULA EVANS
CHAIPERSON40.00Yes (X)Yes (X)$0$0$0
MAIDDY DUNIGAN
VICE CHAIRPERSON30.00Yes (X)Yes (X)$0$0$0
SHARON CLARIDGE
SECRETARY5.00Yes (X)Yes (X)$0$0$0
KENA RICHERT
TREASURER10.00Yes (X)Yes (X)$0$0$0
KRISTY DIXON
DIRECTOR5.00Yes (X)$0$0$0
MEAGAN CROSS
CHIEF INFORMATION OFFICER15.00Yes (X)$0$0$0
TERENCE SULLIVAN
FINANCIAL OFFICER3.00Yes (X)Yes (X)$0$0$0
SHARON WEIL-CHALKER
SCIENCE OFFICER5.00Yes (X)$0$0$0
BRYAN THOMPSON
DIRECTOR5.00Yes (X)$0$0$0
DANIELLE PINDERS
DIRECTOR20.00Yes (X)$0$0$0
SAM MAYDEW
DIRECTOR5.00Yes (X)$0$0$0
ALLYSON BERENT
CHIEF SCIENCE OFFICER30.00Yes (X)$0$0$0
JOHN SCHUELLTER
DIRECTOR10.00Yes (X)$0$0$0
ROY AZOUT
DIRECTOR5.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$3,433,755FundraisingAmt
All Other Contributions$5,356,247AllOtherContributionsAmt
Total Contributions$8,790,002TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,632TotalRevenueColumnAmt
Unrelated Business Revenue$2UnrelatedBusinessRevenueAmt
Exclusion$11,630ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$713,579SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$744,181SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$30,602SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$30,602TotalRevenueColumnAmt
Exclusion-$30,602ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$74,750FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$3,433,755ContriRptFundraisingEventAmt
Fundraising Direct Expenses$96,083FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$21,333TotalRevenueColumnAmt
Exclusion-$21,333ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,749,699TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$2UnrelatedBusinessRevenueAmt
Exclusion-$40,305ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$5,218,272TotalAmt
Program Services$5,218,272ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$53,738TotalAmt
Management And General$26,869ManagementAndGeneralAmt
Fundraising$26,869FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$4,016TotalAmt
Management And General$2,008ManagementAndGeneralAmt
Fundraising$2,008FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$35,403TotalAmt
Management And General$35,403ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$8,000TotalAmt
Management And General$8,000ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$46,843TotalAmt
Fundraising$46,843FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$1,534TotalAmt
Management And General$1,534ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$10,007TotalAmt
Management And General$2,454ManagementAndGeneralAmt
Fundraising$7,553FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$221,416TotalAmt
Program Services$221,416ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$3,030TotalAmt
Program Services$1,515ProgramServicesAmt
Fundraising$1,515FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
COMPUTER AND SOFTWARE E$17,130$8,565$8,565
BANK AND MERCHANT ACCOU$13,606$13,606
TELEPHONE AND TELECOMMU$5,305$5,305
PAYROLL SERVICE FEES$3,226$1,613$1,613

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$2,304TotalAmt
Program Services$1,090ProgramServicesAmt
Management And General$1,214ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$5,643,830TotalAmt
Program Services$5,450,858ProgramServicesAmt
Management And General$98,006ManagementAndGeneralAmt
Fundraising$94,966FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$165,829BOYAmt
EOY$156,250EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,127,994BOYAmt
EOY$5,889,057EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$927,716BOYAmt
EOY$1,199,340EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$468,356EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,221,539BOYAmt
EOY$7,713,003EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
EOY$2,700EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$80,000BOYAmt
EOY$2,462,895EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$80,000BOYAmt
EOY$2,465,595EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,125,949BOYAmt
EOY$5,231,818EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$15,590BOYAmt
EOY$15,590EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,141,539BOYAmt
EOY$5,247,408EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,221,539BOYAmt
EOY$7,713,003EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$3,105,869ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$913,798CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,573,348CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,121,969CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,475,795CurrentTaxYearMinus1YearAmt
Current Tax Year$8,864,752CurrentTaxYearAmt
Total$16,949,662TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$913,798CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,573,348CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,121,969CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,475,795CurrentTaxYearMinus1YearAmt
Current Tax Year$8,864,752CurrentTaxYearAmt
Total$16,949,662TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$7,595,205SubstantialContributorsTotAmt
Public Support Total170$9,354,457PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$3,478CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years-$740CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year-$56CurrentTaxYearMinus1YearAmt
Current Tax Year-$18,970CurrentTaxYearAmt
Total-$16,288TotalAmt
FieldValueIRS element (for citing)
Total Support$16,933,374TotalSupportAmt
Public Support CY1700.55240PublicSupportCY170Pct
Public Support PY1700.67440PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
INVESTMENT IN GENETX BIOTHERAPEUTICS LLC$465,356
LOAN RECEIVABLE GENETX BIOTHERAPEUTICS LLC$3,000
FieldValueIRS element (for citing)
Total Book Value Other Assets$468,356TotalBookValueOtherAssetsAmt
Total Rev Etc Audited Fincl Stmt$8,845,782TotalRevEtcAuditedFinclStmtAmt
Other Revenue$96,083OtherRevenueAmt
Revenue Not Reported$96,083RevenueNotReportedAmt
Revenue Subtotal$8,749,699RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,749,699TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$5,739,913TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$96,083OtherExpensesIncludedAmt
Expenses Not Reported$96,083ExpensesNotReportedAmt
Expenses Subtotal$5,643,830ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$5,643,830TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART XI, LINE 2D - OTHER ADJUSTMENTS:DIRECT EXPENSES FROM FUNDRAISING EVENTS (PAGE 9, PART VIII, LINE 8B)
PART XII, LINE 2D - OTHER ADJUSTMENTS:DIRECT EXPENSES FROM FUNDRAISING EVENTS (PAGE 9, PART VIII, LINE 8B)
FORM 990, SCHEDULE D, PART XI, LINE 2D AND PART XII, LINE 2DPART XI, LINE 2D - DIRECT EXPENSES FROM FUNDRAISING EVENTS INCLUDED ON PAGE 9, PART VIII, LINE 8B. PART XII, LINE 2D - DIRECT EXPENSES FROM FUNDRAISING EVENTS INCLUDED ON PAGE 9, PART VIII, LINE 8B.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1ANNUAL GALAEvent1Nm
Gross Receipts Event1$3,508,505GrossReceiptsEvent1Amt
Charitable Contri Event1$3,433,755CharitableContriEvent1Amt
Gross Revenue Event1$74,750GrossRevenueEvent1Amt
Food And Beverage Event1$74,303FoodAndBeverageEvent1Amt
Entertainment Event1$2,240EntertainmentEvent1Amt
Other Direct Expenses Event1$19,540OtherDirectExpensesEvent1Amt
Gross Receipts Total$3,508,505GrossReceiptsTotalAmt
Charitable Contributions Tot$3,433,755CharitableContributionsTotAmt
Gross Revenue Total Events$74,750GrossRevenueTotalEventsAmt
Food And Beverage Total Events$74,303FoodAndBeverageTotalEventsAmt
Entertainment Total Events$2,240EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$19,540OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$96,083DirectExpenseSummaryEventsAmt
Net Income Summary-$21,333NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Address Line1USAddress/AddressLine1TxtAddress Line2USAddress/AddressLine2TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
UNIVERSITY OF SOUTH FLORIDA
SPONSORED RESEARCH 3650 SPECTRUMBLVD SUITE 160TAMPAFL33612593102112115(1)$2,041,953IDENTIFICATION AND CHARACTERIZATION OF NOVEL THERAPEUTICS FOR ANGELMAN SYNDROME
TEXAS AGRILIFE RESEARCH
600 JOHN KIMBROUGH BLVD STE 512TAMU COLLEGE STATIONTX77843746000541115(1)$1,261,240PRODUCTION OF A PIG MODEL
UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUEDAVISCA95616946036494115(1)$297,390IMAGING EQUIPMENT UPGRADE FOR THE ANALYSIS OF THERAPEUTIC PROTEINS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZAHOUSTONTX77030741613878115(1)$10,000HUMANIZED MOUSE MODEL
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET SUITE 305PHILADELPHIAPA19104231352685115(1)$1,492,200GENE THERAPY
NEW YORK UNIVERSITY
70 WASHINGTON SQUARE SNEW YORKNY10012135562308115(1)$94,600IDENTIFY MECHANISMS TO RESCUE LEARNING AND MEMORY
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVEBOSTONMA02115042774441501(C)(3)$20,889CONDUCT PILOT FOR MODIFIED BAYLEY'S TEST

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationTHE FOUNDATION REQUIRES SEMI-ANNUAL REPORTS FROM THE RECIPIENT OF THE FUNDS WHICH MUST INCLUDE A PROGRESS STATUS AND AN ACCOUNTING OF THE FUNDS. IN ADDITION, THE FOUNDATION RESERVES THE RIGHT TO MAKE PERIODIC SIGHT VISITS AS DEEEMED NECESSARY. THE FOUNDATION MAY ALSO OBTAIN MORE INFREQUENT INFORMAL UPDATES VIA TELEPHONE OR E-MAIL.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 8BTHE FOUNDATION DOES NOT CURRENTLY HAVE ANY COMMITTEES WITH THE AUTHORITY TO ACT ON BEHALF OF THE GOVERNING BODY.
FORM 990, PART VI, SECTION B, LINE 11BTHE BOOKS AND RECORDS ARE MAINTAINED BY FAST'S TREASURER AND REVIEWED BY THE CFO AND THE VICE CHAIRPERSON. FAST'S TREASURER GIVES FAST'S BOOKS AND RECORDS TO AN OUTSIDE CPA FIRM TO PREPARE FAST'S FORM 990. ONCE COMPLETED THE FORM 990 IS PROVIDED TO THE TREASURER, CFO AND VICE CHAIRPERSON FOR REVIEW. THE TREASURER, CFO AND VICE CHAIRPERSON REVIEW THE RETURN IN GREAT DETAIL, ASKING CLARIFYING QUESTIONS AND SUGGESTING CHANGES. ONCE THE RECOMMENDED CHANGES HAVE BEEN INCORPORATED INTO THE RETURN, THE FORM 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR QUESTIONS, COMMENTS, AND RECOMMENDED CHANGES. ONCE THE BOARD MEMBERS QUESTIONS HAVE BEEN ANSWERED AND ANY CHANGES INCORPORATED INTO THE RETURN, THE FORM 990 IS FILED.
FORM 990, PART VI, SECTION B, LINE 12CBOARD MEMBERS ARE REQUIRED TO CERTIFY ON AN ANNUAL BASIS ANY INTEREST THAT COULD GIVE RISE TO A CONFLICT. IF A CONFLICT APPEARS TO HAVE ARISEN, FAST BOARD OF DIRECTORS MEET TO DISCUSS THE POTENTIAL CONFLICT OF INTEREST AND CONSULT LEGAL COUNSEL AND OTHER APPLICABLE THIRD-PARTY EXPERTS AS DEEMED NECESSARY.
FORM 990, PART VI, SECTION B, LINE 15ALL BOARD OF DIRECTORS, OFFICERS, AND SCIENTIFIC ADVISORY BOARD MEMBERS ARE NON-COMPENSATED VOLUNTEERS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS, THE CONFLICT OF INTEREST POLICY, AND THE FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.

Schedule R IRS990ScheduleR

Id Related Org Txbl Partnership IdRelatedOrgTxblPartnershipGrp

Related Organization Name RelatedOrganizationName

FieldValueIRS element (for citing)
Business Name Line1GENETX BIOTHERAPEUTICS LLCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line11512 ROYAL OAK ROADAddressLine1Txt
CityDARIENCityNm
State AbbreviationILStateAbbreviationCd
ZIP60561ZIPCd
FieldValueIRS element (for citing)
EIN823674904EIN
Primary ActivitiesMEDICAL RESEARCHPrimaryActivitiesTxt
Legal Domicile StateDELegalDomicileStateCd
Predominant Income TypeUNRELATEDPredominantIncomeTypeTxt
Share Of Total Income-$34,644ShareOfTotalIncomeAmt
Share Of EOY Assets$468,356ShareOfEOYAssetsAmt
Disproportionate Allocations0DisproportionateAllocationsInd
General Or Managing PartnerYes (1)GeneralOrManagingPartnerInd
Ownership0.90000OwnershipPct
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsYes (1)ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgYes (1)GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgYes (1)LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmtMethod Of Amount DeterminationMethodOfAmountDeterminationTxt
GENETX BIOTHERAPEUTICS LLC
A$22.31% AFR
GENETX BIOTHERAPEUTICS LLC
B$500,000CASH
GENETX BIOTHERAPEUTICS LLC
D$3,000CASH