ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION

Cite this

Plain text ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION. furp.org, nonprofit organization profile, tax years 2012–2025. https://furp.org/org/adenoid-cystic-carcinoma-researchfoundation-206745475. Retrieved 2026-10-26.

APA furp.org. (n.d.). ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION [Nonprofit organization profile; tax years 2012–2025]. Retrieved October 26, 2026, from https://furp.org/org/adenoid-cystic-carcinoma-researchfoundation-206745475

MLA “ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION.” furp.org, tax years 2012–2025, https://furp.org/org/adenoid-cystic-carcinoma-researchfoundation-206745475. Accessed 26 Oct. 2026.

Retrieved 2026-10-26; covers tax years 2012–2025. Data: furp.org, CC BY 4.0.

2025 · Form 990 · revenue $1.2M · expenses $1.2M · assets $2.3M

Also known as
FOUNDATION
EIN
20-6745475
Address
PO BOX 442, NEEDHAM, MA 02494-0010
Website
WWW.ACCRF.ORG
NTEE code
H12
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
March 2006 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

THE ADENOID CYCTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Jeffrey Kaufman Executive Dir.2012-2025 $150,000$1,780,000 1
Nicole Spardy Burr DIRECTOR OF RESEAR2018-2025 $148,750$882,791 1

Officers and directors, no compensation reported

13 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Thomas Dilenge BOARD VICE CHAI2012-2025 5 $0 reported 1
Ralph Mollis Treasurer2012-2025 5 $0 reported 1
Marnie Kaufman Director2012-2025 35 $0 reported 1
Elizabeth Wehlage Director2022-2025 5 $0 reported 1
David Morse Director2022-2025 5 $0 reported 1
Bozho Todorich Director2021-2025 5 $0 reported 1
Emma Kinloch Director2022-2025 5 $0 reported 1
Shalil Giannone Director2025 5 $0 reported 1
Lisa Bhakri (former) DIRECTOR2023 5 $0 reported 1
Lisa Bakri (former) DIRECTOR2018-2022 5 $0 reported 1
Douglas Meyer (former) DIRECTOR2012-2021 5 $0 reported 1
Kara Gelb (former) DIRECTOR (UP TO 7/18)2012-2018 5 $0 reported 1
Elisabeth Bakri (former) DIRECTOR (AS OF 6/17)2017 5 $0 reported 1

People by year

2025 · 10 people listed · 2 paid, $299K · 3 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY KAUFMAN Executive Dir.50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR DIRECTOR OF RESEAR0 $148,750$0$0 $148,7501
THOMAS DILENGE BOARD VICE CHAI5 $0$0$0 $01
MARNIE KAUFMAN Director35 $0$0$0 $01
RALPH MOLLIS Treasurer5 $0$0$0 $01
EMMA KINLOCH Director5 $0$0$0 $01
ELIZABETH WEHLAGE Director5 $0$0$0 $01
DAVID MORSE Director5 $0$0$0 $01
BOZHO TODORICH Director5 $0$0$0 $01
SHALIL GIANNONE Director5 $0$0$0 $01
2024 · 9 people listed · 2 paid, $292K · 3 employees · 7 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD C50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR DIRECTOR OF RESEARCH40 $142,500$0$0 $142,5001
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR & CFO35 $0$0$0 $01
ELIZABETH WEHLAGE DIRECTOR5 $0$0$0 $01
DAVID MORSE DIRECTOR5 $0$0$0 $01
BOZHO TODORICH DIRECTOR5 $0$0$0 $01
EMMA KINLOCH DIRECTOR5 $0$0$0 $01
2023 · 10 people listed · 2 paid, $285K · 3 employees · 1 volunteer
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD C50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR DIRECTOR OF RESEARCH40 $135,000$0$0 $135,0001
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR & CFO35 $0$0$0 $01
ELIZABETH WEHLAGE DIRECTOR5 $0$0$0 $01
LISA BHAKRI DIRECTOR5 $0$0$0 $01
DAVID MORSE DIRECTOR5 $0$0$0 $01
BOZHO TODORICH DIRECTOR5 $0$0$0 $01
EMMA KINLOCH DIRECTOR5 $0$0$0 $01
2022 · 10 people listed · 2 paid, $274K · 2 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD CHAIR50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR DIRECTOR OF RESEARCH50 $124,166$0$0 $124,1661
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR & CFO25 $0$0$0 $01
ELIZABETH WEHLAGE DIRECTOR5 $0$0$0 $01
LISA BAKRI DIRECTOR5 $0$0$0 $01
DAVID MORSE DIRECTOR5 $0$0$0 $01
BOZHO TODORICH DIRECTOR5 $0$0$0 $01
EMMA KINLOCH DIRECTOR5 $0$0$0 $01
2021 · 8 people listed · 2 paid, $264K · 2 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD CHAIR50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR DIRECTOR OF RESEARCH40 $113,500$0$0 $113,5001
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
LISA BAKRI DIRECTOR5 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
BOZHO TODORICH DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN CFO25 $0$0$0 $01
2020 · 6 people listed · 1 paid, $150K · 2 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD CHAIR50 $150,000$0$0 $150,0001
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
LISA BAKRI DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN CFO25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2019 · 7 people listed · 2 paid, $261K · 2 employees · 1 volunteer
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD CHAIR50 $150,000$0$0 $150,0001
NICOLE SPARDY BURR SCIENTIFIC PROGRAM OFFICER40 $111,375$0$0 $111,3751
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
LISA BAKRI DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2018 · 8 people listed · 1 paid, $108K · 1 employee · 2 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
NICOLE SPARDY BURR SCIENTIFIC PROGRAM OFFICER40 $107,500$0$0 $107,5001
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR/BOARD CHAIR50 $0$0$0 $01
THOMAS DILENGE BOARD VICE CHAIR5 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
LISA BAKRI DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR (UP TO 7/18)5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2017 · 7 people listed · none paid · 1 employee · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $0$0$0 $01
RALPH MOLLIS TREASURER5 $0$0$0 $01
ELISABETH BAKRI DIRECTOR (AS OF 6/17)5 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2016 · 6 people listed · 1 paid, $150K · 2 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $150,000$0$0 $150,0001
RALPH MOLLIS TREASURER5 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2015 · 6 people listed · 1 paid, $150K · 1 employee · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $150,000$0$0 $150,0001
RALPH MOLLIS TREASURER5 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2014 · 6 people listed · 1 paid, $150K · 1 employee · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $150,000$0$0 $150,0001
RALPH MOLLIS TREASURER5 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2013 · 6 people listed · 1 paid, $150K · 1 employee · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $150,000$0$0 $150,0001
RALPH MOLLIS TREASURER5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01
2012 · 6 people listed · 1 paid, $130K · 1 employee · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JEFFREY A KAUFMAN EXECUTIVE DIRECTOR50 $130,000$0$0 $130,0001
RALPH MOLLIS TREASURER5 $0$0$0 $01
MARNIE A KAUFMAN DIRECTOR25 $0$0$0 $01
THOMAS DILENGE DIRECTOR5 $0$0$0 $01
KARA GELB DIRECTOR5 $0$0$0 $01
DOUGLAS MEYER DIRECTOR5 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2025 · 5 grants to organizations · $260K

Listed grants add up to $259,920; the return's “grants paid” expense line says $401,246. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2024 · 8 grants to organizations · $417K

Listed grants add up to $417,325; the return's “grants paid” expense line says $464,311. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2023 · 4 grants to organizations · $176K

Listed grants add up to $175,883; the return's “grants paid” expense line says $225,883. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 7 grants to organizations · $468K

Listed grants add up to $467,712; the return's “grants paid” expense line says $529,854. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 5 grants to organizations · $440K

Listed grants add up to $439,967; the return's “grants paid” expense line says $696,641. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2020 · 10 grants to organizations · $620K

Listed grants add up to $619,981; the return's “grants paid” expense line says $644,981. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2019 · 10 grants to organizations · $637K

Listed grants add up to $636,654; the return's “grants paid” expense line says $661,654. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2018 · 6 grants to organizations · $617K

Listed grants add up to $617,115; the return's “grants paid” expense line says $744,865. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2017 · 7 grants to organizations · $510K

Listed grants add up to $509,951; the return's “grants paid” expense line says $559,951. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2016 · 12 grants to organizations · $1.5M

Listed grants add up to $1,464,234; the return's “grants paid” expense line says $1,569,525. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2015 · 9 grants to organizations · $905K

Listed grants add up to $904,702; the return's “grants paid” expense line says $1,194,702. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2014 · 11 grants to organizations · $743K

Listed grants add up to $743,128; the return's “grants paid” expense line says $1,045,628. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2013 · 12 grants to organizations · $1.3M

Listed grants add up to $1,269,592; the return's “grants paid” expense line says $1,414,954. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2012 · 9 grants to organizations · $638K

Listed grants add up to $638,357; the return's “grants paid” expense line says $864,887. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2025 · Form 990 period ending 2025-12-31 · view filing · original 990 ↗
$1,159,582$1,221,810 $2,250,095$2,169,413 $887,749$191,061 $150,0003-
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$1,146,195$1,458,198 $2,251,893$2,231,641 $654,137$395,168 $150,00037
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$1,893,545$1,872,720 $2,690,770$2,543,644 $748,287$1,054,422 $150,00131
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$1,386,655$1,618,196 $2,659,707$2,522,819 $807,996$551,076 $150,00020
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$2,427,133$2,071,023 $3,133,519$2,525,760 $1,588,834$837,896 $150,00020
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$1,208,448$1,420,993 $2,608,038$2,169,650 $787,706$410,671 $150,00020
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$2,103,655$1,225,852 $2,646,923$2,382,195 $1,833,516$134,840 $150,00021
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$2,043,147$1,294,454 $1,935,482$1,504,392 $1,809,421$147,986 $107,50012
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$1,602,683$1,164,728 $1,623,360$755,699 $1,329,755$107,991 $010
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$1,099,873$2,101,984 $1,563,125$317,744 $1,087,972$0 $150,00020
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$1,671,328$1,799,318 $2,146,242$1,319,855 $1,667,904$0 $150,00010
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$1,376,304$1,525,037 $2,054,654$1,447,845 $1,363,695$0 $150,00010
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$765,063$1,895,429 $2,149,665$1,596,578 $531,408$0 $150,00010
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$1,692,225$1,377,751 $2,848,746$2,726,944 $1,677,911$0 $130,86710

Funders of this organization

41 grantors reported grants to this organization, $8,954,600 in all, tax years 2009 to 2025; the 25 largest shown (all 41). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
JEWISH COMMUNITY FOUNDATION OF SAN DIEGO DAF sponsor Exact 2010-2012, 2014-2018, 2022-2024 11$6,550,000 2024$50,000
show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2017-2024 8$689,740 2024$27,250
show
BRAVE LIKE GABE FOUNDATION Public charity Exact 2018-2024 7$465,399 2024$53,909
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2014-2023 10$237,788 2023$19,188
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2019-2025 7$184,154 2025$52,961
show
CHARITY BRIDGE FUND DAF sponsor Exact 2014-2017 4$157,207 2017$33,138
show
FORGOOD INC DAF sponsor Exact 2018-2021 4$153,229 2021$32,583
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2017-2019, 2021, 2023-2024 6$85,353 2024$8,415
show
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor Exact 2020, 2022-2024 4$72,500 2024$31,000
show
ANGLO-AMERICAN CHARITABLE FOUNDATION LTD Public charity Exact 2020 1$68,205 2020$68,205
show
3 BS FOUNDATION INC Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION” 2021-2022 2$58,872 2022$32,390
show
GLOBAL IMPACT DAF sponsor Exact 2018-2020 3$57,035 2020$8,284
show
RAYMOND JAMES CHARITABLE ENDOWMENT FUND DAF sponsor Exact 2020, 2024 2$32,000 2024$21,000
show
THE UNITED WAY OF CENTRAL MARYLAND INC Public charity Exact 2016-2017 2$22,619 2017$13,119
show
JEMP-D FOUNDATION Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION”, “ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION” 2015, 2017-2020, 2022, 2024-2025 8$22,000 2025$2,000
show
PFIZER FOUNDATION INC Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION” 2021-2024 5$11,650 2024$150
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CHARLES R & WINIFRED R WEBER FOUNDATION Private foundation Fuzzy filed as “Adenoid Cystic Carcinoma Research Foundation” 2019-2020 2$10,000 2020$5,000
show
THE CHICAGO COMMUNITY TRUST DAF sponsor Exact 2019 1$10,000 2019$10,000
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION” 2020-2023 4$9,266 2023$2,084
show
AKRON COMMUNITY FOUNDATION DAF sponsor Exact 2010-2011, 2013 3$7,500 2013$2,500
show
CHARITIES AID FOUNDATION AMERICA DAF sponsor Exact 2024 1$7,081 2024$7,081
show
JEWISH COMMUNAL FUND DAF sponsor Exact 2020 1$6,000 2020$6,000
show
BRIGHT FUNDS FOUNDATION Public charity Exact 2017 1$5,900 2017$5,900
show
THE DUKE ENERGY FOUNDATION Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION”, “ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION” 2020-2022 4$5,300 2022$300
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DIES FAMILY FOUNDATION INC Private foundation Fuzzy filed as “ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION” 2012, 2014 2$5,000 2014$2,500
show

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CELLMATES ON THE RUN FOUNDATIONILH12 $588,193$829,554 Director$0 Same NTEE code H12, revenue within 2x
HOPE FUNDS FOR CANCER RESEARCHRIH12 $995,442$816,482 Trustee$0 Same NTEE code H12, revenue within 2x
RECEPTIONS FOR RESEARCH - THE GREG OLSEN FOUNDATION INCFLH12 $1,345,731$2,180,403 EXECUTIVE DIRECTOR$97,728 Same NTEE code H12, revenue within 2x
THE NASPGHAN FOUNDATIONPAH12 $2,269,887$1,855,146 EXECUTIVE DIRECTOR$371,166 Same NTEE code H12, revenue within 2x
BELLA BOWMAN FOUNDATION INCLAH12 $696,959$461,161 President$0 Same NTEE code H12, revenue within 2x
THE LILABEAN FOUNDATION INCMDH12 $1,807,658$2,274,720 EXECUTIVE DIRECTOR$97,917 Same NTEE code H12, revenue within 2x
GRAEME MCDANIEL FOUNDATIONTXH12 $893,013$973,978 PRESIDENT & CEO$0 Same NTEE code H12, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
GREATER KANSAS CITY COMMUNITY FOUNDATION DAF sponsor$32,715,5504 32010–2024 HOPE FOR DEPRESSION RESEARCH FOUNDATION; FORE THE KIDS FOUNDATION; HAROLD PUMP FOUNDATION
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$29,546,936193 472014–2024 HOPE FOR DEPRESSION RESEARCH FOUNDATION; LIFESPAN EXTENSION ADVOCACY FOUNDATION INC; INTERNATIONAL RETT SYNDROME FOUNDATION; BEE FOUNDATION and 43 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$12,222,960282 632016–2024 CELLMATES ON THE RUN FOUNDATION; DETECTOGETHER INC; THE PROGERIA RESEARCH FOUNDATION INC; CASTLEMAN DISEASE COLLABORATIVE NETWORK and 59 more
NATIONAL PHILANTHROPIC TR DAF sponsor$8,294,27292 342014–2024 RUNX1 FOUNDATION; TANGO2 RESEARCH FOUNDATION INCORPORATED; HOPE FOR DEPRESSION RESEARCH FOUNDATION; PAULA TAKACS FOUNDATION FOR SARCOMA RESEARCH and 30 more
NATIONAL CHRISTIAN CHARITABLE FOUNDATION funds this one DAF sponsor$5,983,68784 282012–2024 SOUTH ASIA ADVOCATES; LARRY BURKETT CANCER RESEARCH FOUNDATION INC; DETECTOGETHER INC; MICROBIOME RESEARCH INC and 24 more
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$4,926,725186 542019–2025 RARE VILLAGE FOUNDATION; HAYMAKERS FOR HOPE INC; INTERNATIONAL RETT SYNDROME FOUNDATION; THE LILABEAN FOUNDATION INC and 50 more
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$4,314,98736 102010–2024 A FOUNDATION BUILDING STRENGTH INC; CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND; CASTLEMAN DISEASE COLLABORATIVE NETWORK; TANGO2 RESEARCH FOUNDATION INCORPORATED and 6 more
FORGOOD INC funds this one DAF sponsor$3,113,905113 372010–2024 A FOUNDATION BUILDING STRENGTH INC; HOPE FUNDS FOR CANCER RESEARCH; THE DONNA FOUNDATION INC; HAYMAKERS FOR HOPE INC and 33 more
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$2,962,00060 252014–2024 HOPE FUNDS FOR CANCER RESEARCH; INTERNATIONAL RETT SYNDROME FOUNDATION; CANCER AWARENESS THROUGH RESEARCH AND EDUCATION ASSOCIATION; RUNWAY TO HOPE INC and 21 more
BABICH FAMILY FOUNDATION Private foundation$2,590,0002 12019–2020 RUNX1 FOUNDATION
POLSKY FOUNDATION Private foundation$2,293,6981 12024–2024 BRCA RESEARCH & CURE ALLIANCE
TRUSTEES OF COLUMBIA UNIVERSITY DAF sponsor$2,089,68013 12011–2024 FOX CHASE CANCER CENTER FOUNDATION
YALE UNIVERSITY DAF sponsor$2,079,6409 12016–2024 FOX CHASE CANCER CENTER FOUNDATION
VANGUARD CHARITABLE ENDOWMENT PROGRAM funds this one DAF sponsor$1,897,73843 222020–2024 RARE VILLAGE FOUNDATION; FORE THE KIDS FOUNDATION; CANCER AWARENESS THROUGH RESEARCH AND EDUCATION ASSOCIATION; RUNX1 FOUNDATION and 18 more
CONRAD N HILTON FOUNDATION Private foundation$1,672,00017 12018–2024 ASXL RARE RESEARCH ENDOWMENT FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990 · $1,221,810 spent · pay $430,751 · grants $401,246 · events $41,065
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $301,246$301,246-- 24.7%
Other (as described)CONTRACT STUDIES EXPENSE $260,844$260,844-- 21.3%
Other salaries and wages $247,883$153,687$59,492$34,704 20.3%
Pay: officers, directors, trustees, key employees $150,000$93,011$35,993$20,996 12.3%
Grants outside the US $100,000$100,000-- 8.2%
Office expenses $50,164$40,632$5,519$4,013 4.1%
Conferences, conventions and meetings $41,065$41,065-- 3.4%
Payroll taxes $32,868$20,368$7,895$4,605 2.7%
Fees: accounting $28,703-$26,567$2,136 2.3%
Other (as described)OTHER CONTRACT SERVICES $9,037$9,037-- 0.7%
Total$1,221,810100%

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2024 · Form 990 · $1,458,198 spent · pay $421,071 · grants $464,311 · events $12,193
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $367,325$367,325-- 25.2%
Other (as described)RESEARCH STUDIES EXPENS $283,148$283,148-- 19.4%
Other salaries and wages $241,554$148,764$58,568$34,222 16.6%
Other (as described)DRUG SCREENING EXPENSE $204,639$204,639-- 14.0%
Pay: officers, directors, trustees, key employees $150,000$92,379$36,369$21,252 10.3%
Grants outside the US $96,986$96,986-- 6.7%
Office expenses $45,123$36,620$5,154$3,349 3.1%
Payroll taxes $29,517$18,178$7,157$4,182 2.0%
Fees: accounting $19,204-$19,204- 1.3%
Conferences, conventions and meetings $12,193$12,193-- 0.8%
Fees: other services $4,324-$2,566$1,758 0.3%
Other (as described)STATE REGISTRATION AND $2,165$2,165-- 0.1%
Other (as described)OTHER FEES $1,499$1,499-- 0.1%
Insurance $521$521-- 0.0%
Total$1,458,198100%

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2023 · Form 990 · $1,872,720 spent · pay $391,271 · grants $225,883 · events $38,581
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH STUDIES EXPENS $824,638$824,638-- 44.0%
Other (as described)DRUG SCREENING EXPENSE $305,705$305,705-- 16.3%
Other salaries and wages $213,730$155,578$44,973$13,179 11.4%
Grants to US organizations and governments $175,883$175,883-- 9.4%
Pay: officers, directors, trustees, key employees $150,001$109,188$31,563$9,250 8.0%
Grants outside the US $50,000$50,000-- 2.7%
Office expenses $49,052$39,663$5,691$3,698 2.6%
Conferences, conventions and meetings $38,581$38,581-- 2.1%
Payroll taxes $27,540$20,047$5,795$1,698 1.5%
Fees: accounting $26,198-$26,198- 1.4%
Fees: other services $5,697-$3,314$2,383 0.3%
Insurance $2,452$2,452-- 0.1%
Other (as described)STATE REGISTRATION AND $2,235$2,235-- 0.1%
Travel $774$774-- 0.0%
Other (as described)OTHER FEES $234$234-- 0.0%
Total$1,872,720100%

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2022 · Form 990 · $1,618,196 spent · pay $296,319 · grants $529,854 · events $2,872
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $467,712$467,712-- 28.9%
Other (as described)RESEARCH STUDIES EXPENS $431,586$431,586-- 26.7%
Other (as described)DRUG SCREENING EXPENSE $290,642$290,642-- 18.0%
Pay: officers, directors, trustees, key employees $150,000$109,506$34,944$5,550 9.3%
Other salaries and wages $125,531$91,642$29,244$4,645 7.8%
Grants outside the US $62,142$62,142-- 3.8%
Office expenses $37,805$30,681$4,318$2,806 2.3%
Payroll taxes $20,788$15,176$4,843$769 1.3%
Fees: accounting $20,750-$20,750- 1.3%
Insurance $3,137$3,137-- 0.2%
Conferences, conventions and meetings $2,872$2,872-- 0.2%
Fees: other services $2,576-$833$1,743 0.2%
Other (as described)STATE REGISTRATION AND $2,354$2,354-- 0.1%
Other (as described)OTHER FEES $301$301-- 0.0%
Total$1,618,196100%

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2021 · Form 990 · $2,071,023 spent · pay $284,579 · grants $696,641 · events $1,000
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)RESEARCH STUDIES $702,268$702,268-- 33.9%
Grants to US organizations and governments $439,967$439,967-- 21.2%
Other (as described)DRUG SCREENING $327,805$327,805-- 15.8%
Grants outside the US $256,674$256,674-- 12.4%
Pay: officers, directors, trustees, key employees $150,000$90,000$52,500$7,500 7.2%
Other salaries and wages $114,868$103,909$8,805$2,154 5.5%
Office expenses $30,574$24,813$3,492$2,269 1.5%
Fees: accounting $20,175-$20,175- 1.0%
Payroll taxes $19,711$13,863$4,975$873 1.0%
Fees: other services $4,439$4,439-- 0.2%
Information technology $3,542-$1,770$1,772 0.2%
Conferences, conventions and meetings $1,000$1,000-- 0.0%
Total$2,071,023100%

View the filing

2020 · Form 990 · $1,420,993 spent · pay $244,792 · grants $644,981 · events $4,198
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $619,981$619,981-- 43.6%
Other (as described)RESEARCH STUDIES EXPENS $322,377$322,377-- 22.7%
Pay: officers, directors, trustees, key employees $150,000$90,000$52,500$7,500 10.6%
Other (as described)DRUG SCREENING EXPENSE $146,429$146,429-- 10.3%
Other salaries and wages $78,023$78,023-- 5.5%
Office expenses $29,732$23,076$2,781$3,875 2.1%
Grants outside the US $25,000$25,000-- 1.8%
Fees: accounting $19,425-$19,425- 1.4%
Payroll taxes $16,769$12,356$3,861$552 1.2%
Fees: other services $9,059$3,378$2,840$2,841 0.6%
Conferences, conventions and meetings $4,198$4,198-- 0.3%
Total$1,420,993100%

View the filing

2019 · Form 990 · $1,225,852 spent · pay $280,512 · grants $661,654 · events $8,255
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $636,654$636,654-- 51.9%
Pay: officers, directors, trustees, key employees $150,000$150,000-- 12.2%
Other (as described)DRUG SCREENING EXPENSE $115,142$115,142-- 9.4%
Other salaries and wages $111,577$68,504$11,958$31,115 9.1%
Other (as described)RESEARCH STUDIES EXPENS $105,953$105,953-- 8.6%
Office expenses $29,114$20,131$7,433$1,550 2.4%
Grants outside the US $25,000$25,000-- 2.0%
Payroll taxes $18,935$15,811$871$2,253 1.5%
Fees: accounting $18,500-$18,500- 1.5%
Conferences, conventions and meetings $8,255$8,255-- 0.7%
Fees: other services $6,722$2,888$704$3,130 0.5%
Total$1,225,852100%

View the filing

2018 · Form 990 · $1,294,454 spent · pay $122,586 · grants $744,865 · events $9,571
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $617,115$617,115-- 47.7%
Other (as described)RESEARCH STUDIES EXPENS $193,098$193,098-- 14.9%
Other (as described)DRUG SCREENING EXPENSE $146,763$146,763-- 11.3%
Grants outside the US $127,750$127,750-- 9.9%
Other salaries and wages $114,362$108,644$4,574$1,144 8.8%
Office expenses $33,018$19,258$13,760- 2.6%
Fees: other services $23,134-$23,134- 1.8%
Fees: accounting $19,521-$19,521- 1.5%
Conferences, conventions and meetings $9,571$9,571-- 0.7%
Payroll taxes $8,224$7,813$329$82 0.6%
Insurance $1,898-$1,898- 0.1%
Total$1,294,454100%

View the filing

2017 · Form 990 · $1,164,728 spent · pay $81,208 · grants $559,951 · events $3,915
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $509,951$509,951-- 43.8%
Other (as described)RESEARCH STUDIES EXPENS $410,212$410,212-- 35.2%
Other salaries and wages $77,312$73,351$3,169$792 6.6%
Other (as described)DRUG SCREENING EXPENSE $51,525$51,525-- 4.4%
Grants outside the US $50,000$50,000-- 4.3%
Office expenses $29,467$17,815$11,652- 2.5%
Fees: accounting $18,175-$18,175- 1.6%
Fees: other services $4,096-$4,096- 0.4%
Conferences, conventions and meetings $3,915$3,915-- 0.3%
Payroll taxes $3,896$3,696$160$40 0.3%
Insurance $3,384-$3,384- 0.3%
Other (as described)LICENSES AND FEES $1,752-$1,752- 0.2%
Other (as described)STAFF DEVELOPMENT $1,000-$1,000- 0.1%
Travel $43-$43- 0.0%
Total$1,164,728100%

View the filing

2016 · Form 990 · $2,101,984 spent · pay $231,289 · grants $1,569,525 · events $24,345
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $1,464,234$1,464,234-- 69.7%
Other (as described)RESEARCH STUDIES EXPENS $228,263$228,263-- 10.9%
Pay: officers, directors, trustees, key employees $150,000$120,000$25,500$4,500 7.1%
Grants outside the US $105,291$105,291-- 5.0%
Other salaries and wages $66,667$60,000$5,555$1,112 3.2%
Office expenses $26,514$19,640$6,874- 1.3%
Fees: other services $18,997$14,082$4,915- 0.9%
Fees: accounting $17,000-$17,000- 0.8%
Payroll taxes $14,622$12,148$2,096$378 0.7%
Conferences, conventions and meetings $4,337$4,337-- 0.2%
Insurance $1,999-$1,999- 0.1%
Other (as described)WEBSITE DESIGN AND MAIN $1,781-$1,781- 0.1%
Other (as described)LICENSES AND FEES $1,677-$1,677- 0.1%
Travel $602-$602- 0.0%
Fundraising events Eventdirect expenses; gross income $21,406$20,008reported apart
Total$2,101,984100%

View the filing

2015 · Form 990 · $1,799,318 spent · pay $159,522 · grants $1,194,702 · events $2,788
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $904,702$904,702-- 50.3%
Other (as described)RESEARCH STUDIES EXPENS $376,510$376,510-- 20.9%
Grants outside the US $290,000$290,000-- 16.1%
Pay: officers, directors, trustees, key employees $150,000$120,000$25,500$4,500 8.3%
Fees: other services $22,313$18,000$4,313- 1.2%
Fees: accounting $18,700-$18,700- 1.0%
Office expenses $18,524$9,764$8,760- 1.0%
Payroll taxes $9,522$7,617$1,619$286 0.5%
Conferences, conventions and meetings $2,788$2,788-- 0.2%
Other (as described)LICENSES AND FEES $2,250-$2,250- 0.1%
Insurance $1,934-$1,934- 0.1%
Travel $1,075-$1,075- 0.1%
Other (as described)STAFF DEVELOPMENT $1,000-$1,000- 0.1%
Total$1,799,318100%

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2014 · Form 990 · $1,525,037 spent · pay $159,429 · grants $1,045,628 · events $46,661
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $743,128$743,128-- 48.7%
Grants outside the US $302,500$302,500-- 19.8%
Other (as described)RESEARCH STUDIES EXPENS $263,967$263,967-- 17.3%
Pay: officers, directors, trustees, key employees $150,000$120,000$25,500$4,500 9.8%
Conferences, conventions and meetings $22,347$22,347-- 1.5%
Fees: accounting $16,750-$16,750- 1.1%
Payroll taxes $9,429$7,543$1,603$283 0.6%
Office expenses $5,179-$5,179- 0.3%
Fees: other services $4,212-$4,212- 0.3%
Other (as described)STAFF DEVELOPMENT $2,995-$2,995- 0.2%
Other (as described)LICENSES AND FEES $2,475-$2,475- 0.2%
Information technology $1,370-$1,370- 0.1%
Insurance $685-$685- 0.0%
Fundraising events Eventdirect expenses; gross income $30,620$24,314reported apart
Total$1,525,037100%

View the filing

2013 · Form 990 · $1,895,429 spent · pay $159,224 · grants $1,414,954 · events $24,293
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $1,269,592$1,269,592-- 67.0%
Other (as described)RESEARCH STUDIES EXPENS $281,443$281,443-- 14.8%
Pay: officers, directors, trustees, key employees $150,000$120,000$25,500$4,500 7.9%
Grants outside the US $145,362$145,362-- 7.7%
Fees: accounting $16,265-$16,265- 0.9%
Payroll taxes $9,224$7,379$1,568$277 0.5%
Conferences, conventions and meetings $7,288$7,288-- 0.4%
Office expenses $5,444-$5,444- 0.3%
Fees: other services $4,458-$4,458- 0.2%
Insurance $3,259-$3,259- 0.2%
Other (as described)WEBSITE DESIGN AND MAIN $1,802-$1,802- 0.1%
Other (as described)LICENSES AND FEES $1,127-$1,122$5 0.1%
Other (as described) EventEVENT EXPENSES $165--$165 0.0%
Fundraising events Eventdirect expenses; gross income $21,539$16,840reported apart
Total$1,895,429100%

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2012 · Form 990 · $1,377,751 spent · pay $140,056 · grants $864,887 · events $28,836
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $638,357$638,357-- 46.3%
Other (as described)RESEARCH STUDIES EXPENS $319,629$319,629-- 23.2%
Grants outside the US $226,530$226,530-- 16.4%
Pay: officers, directors, trustees, key employees $130,867$104,694$22,247$3,926 9.5%
Fees: accounting $15,857-$15,857- 1.2%
Other (as described)WEBSITE DESIGN AND MAIN $11,202-$11,202- 0.8%
Payroll taxes $9,189$7,350$1,563$276 0.7%
Office expenses $8,638-$8,638- 0.6%
Conferences, conventions and meetings $6,368$6,368-- 0.5%
Fees: other services $5,108-$5,108- 0.4%
Other (as described)LICENSES AND FEES $2,825-$2,825- 0.2%
Other (as described) EventEVENT EXPENSES $2,260--$2,260 0.2%
Insurance $1,669-$1,669- 0.1%
All other expenses -$748-$748-- -0.1%
Fundraising events Eventdirect expenses; gross income -$20,208reported apart
Total$1,377,751100%

View the filing

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