ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
ADENOID CYSTIC CARCINOMA RESEARCHFOUNDATION (EIN 20-6745475)
Tax period
2016-01-01 to 2016-12-31
Filed
2017-05-04
IRS object ID
201721249349300012
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2017-05-04T07:32:43-05:00ReturnTs
Tax Period End2016-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN050409384PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1KAHN LITWIN RENZA & CO LTDBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1800 SOUTH STREET SUITE 300AddressLine1Txt
CityWALTHAMCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02453ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN206745475EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ADENOID CYSTIC CARCINOMA RESEARCHBusinessNameLine1Txt
Business Name Line2FOUNDATIONBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlADENBusinessNameControlTxt
Phone7812489699PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 442AddressLine1Txt
CityNEEDHAMCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02494ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJEFFREY A KAUFMANPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone7812489699PhoneNum
Signature2017-05-03SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonDEBORAH A HOPKINSPreparerPersonNm
PTINP00167843PTIN
Phone7815478800PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address71.117.160.66IPv4AddressTxt
FieldValueIRS element (for citing)
IP2017-05-03IPDt
IP Tm10:08:18IPTm
IP TimezoneEDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id6C9B1A35775087DBDB8A6D25ECA509C7F6C27838AtSubmissionCreationDeviceId
At Submission Filing Device Id4C98F26F1338B2D60799B9865EB75359F57DA093AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJEFFREY A KAUFMANPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 442AddressLine1Txt
CityNEEDHAMCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02494ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,119,881GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ACCRF.ORGWebsiteAddressTxt
Type Of Organization TrustYes (X)TypeOfOrganizationTrustInd
Formation2005FormationYr
Legal Domicile StateMALegalDomicileStateCd
Activity Or MissionSUPPORTING RESEARCH INTO THE TREATMENT AND CURE OF ADENOID CYSTIC CARCINOMA.ActivityOrMissionDesc
Voting Members Governing Body6VotingMembersGoverningBodyCnt
Voting Members Independent5VotingMembersIndependentCnt
Total Employee2TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,667,904PYContributionsGrantsAmt
CY Contributions Grants$1,087,972CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$3,424PYInvestmentIncomeAmt
CY Investment Income$10,503CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$1,398CYOtherRevenueAmt
PY Total Revenue$1,671,328PYTotalRevenueAmt
CY Total Revenue$1,099,873CYTotalRevenueAmt
PY Grants And Similar Paid$1,194,702PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,569,525CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$159,522PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$231,289CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$5,990CYTotalFundraisingExpenseAmt
PY Other Expenses$445,094PYOtherExpensesAmt
CY Other Expenses$301,170CYOtherExpensesAmt
PY Total Expenses$1,799,318PYTotalExpensesAmt
CY Total Expenses$2,101,984CYTotalExpensesAmt
PY Revenues Less Expenses-$127,990PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,002,111CYRevenuesLessExpensesAmt
Total Assets BOY$2,146,242TotalAssetsBOYAmt
Total Assets EOY$1,563,125TotalAssetsEOYAmt
Total Liabilities BOY$826,387TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,245,381TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,319,855NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$317,744NetAssetsOrFundBalancesEOYAmt
MissionTHE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$281,688ExpenseAmt
Grant$248,200GrantAmt
DescSPECIMENS AND MODELS: ACCRF SUPPORTS AND COORDINATES THE DEVELOPMENT AND DISTRIBUTION OF BIOBANKING, CELL LINE AND ANIMAL MODEL RESOURCES FOR RESEARCHERS. THESE RESOURCES ARE THE BUILDING BLOCKS UPON WHICH ALL BASIC, TRANSLATIONAL AND CLINICAL RESEARCH ARE CONSTRUCTED.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$608,850ExpenseAmt
Grant$530,082GrantAmt
DescBASIC RESEARCH: ACCRF SUPPORTS AND COORDINATES THE DESCRIPTIVE AND FUNCTIONAL STUDIES THAT IDENTIFY THE MOLECULAR TARGETS AND PATHWAYS THAT PERMIT ADENOID CYSTIC CARCINOMA TO PROGRESS. BY FOCUSING ON THE MECHANISMS OF ACTION, RESEARCHERS MAY DISCOVER MORE QUICKLY THE ACHILLES' HEELS OF THE DISEASE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,137,457ExpenseAmt
Grant$791,243GrantAmt
DescTRANSLATION TO THE CLINIC: ACCRF SUPPORTS AND COORDINATES RESEARCH INTO TREATMENTS MOST LIKELY TO LEAD TO CLINICAL BENEFIT FOR ADENOID CYSTIC CARCINOMA PATIENTS. DRUG DISCOVERY, DRUG DEVELOPMENT, PRECLINICAL DRUG SCREENING AND CORRELATIVE STUDIES ARE CRUCIAL TO THE INITIATION AND OPTIMAL CONDUCT OF CLINICAL TRIALS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$2,027,995TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document1IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee2EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members6GoverningBodyVotingMembersCnt
Independent Voting Member5IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MARNIE A KAUFMANBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone7814491757PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line160 SAVOY ROADAddressLine1Txt
CityNEEDHAMCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02492ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (6 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
JEFFREY A KAUFMAN
EXECUTIVE DIRECTOR50.00Yes (X)Yes (X)$150,000$0$0
RALPH MOLLIS
TREASURER5.00Yes (X)Yes (X)$0$0$0
THOMAS DILENGE
DIRECTOR5.00Yes (X)$0$0$0
KARA GELB
DIRECTOR5.00Yes (X)$0$0$0
MARNIE A KAUFMAN
DIRECTOR25.00Yes (X)$0$0$0
DOUGLAS MEYER
DIRECTOR5.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$150,000TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$49,742FundraisingAmt
All Other Contributions$1,038,230AllOtherContributionsAmt
Noncash Contributions$12,846NoncashContributionsAmt
Total Contributions$1,087,972TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$10,503TotalRevenueColumnAmt
Exclusion$10,503ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$21,406FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$49,742ContriRptFundraisingEventAmt
Fundraising Direct Expenses$20,008FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,398TotalRevenueColumnAmt
Exclusion$1,398ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,099,873TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$11,901ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,464,234TotalAmt
Program Services$1,464,234ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$105,291TotalAmt
Program Services$105,291ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$150,000TotalAmt
Program Services$120,000ProgramServicesAmt
Management And General$25,500ManagementAndGeneralAmt
Fundraising$4,500FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$66,667TotalAmt
Program Services$60,000ProgramServicesAmt
Management And General$5,555ManagementAndGeneralAmt
Fundraising$1,112FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$14,622TotalAmt
Program Services$12,148ProgramServicesAmt
Management And General$2,096ManagementAndGeneralAmt
Fundraising$378FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$17,000TotalAmt
Management And General$17,000ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$18,997TotalAmt
Program Services$14,082ProgramServicesAmt
Management And General$4,915ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$26,514TotalAmt
Program Services$19,640ProgramServicesAmt
Management And General$6,874ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$602TotalAmt
Management And General$602ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$4,337TotalAmt
Program Services$4,337ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,999TotalAmt
Management And General$1,999ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
RESEARCH STUDIES EXPENS$228,263$228,263
WEBSITE DESIGN AND MAIN$1,781$1,781
LICENSES AND FEES$1,677$1,677

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,101,984TotalAmt
Program Services$2,027,995ProgramServicesAmt
Management And General$67,999ManagementAndGeneralAmt
Fundraising$5,990FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$70,078BOYAmt
EOY$293,711EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$2,073,164BOYAmt
EOY$1,267,104EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$3,000BOYAmt
EOY$2,310EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,146,242BOYAmt
EOY$1,563,125EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$24,478BOYAmt
EOY$23,478EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$801,909BOYAmt
EOY$1,221,903EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$826,387BOYAmt
EOY$1,245,381EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,319,855BOYAmt
EOY$317,744EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,319,855BOYAmt
EOY$317,744EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,146,242BOYAmt
EOY$1,563,125EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$1,002,111ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,677,911CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$531,408CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$483,168CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,667,904CurrentTaxYearMinus1YearAmt
Current Tax Year$1,087,972CurrentTaxYearAmt
Total$5,448,363TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,677,911CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$531,408CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$483,168CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,667,904CurrentTaxYearMinus1YearAmt
Current Tax Year$1,087,972CurrentTaxYearAmt
Total$5,448,363TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$396,340SubstantialContributorsTotAmt
Public Support Total170$5,052,023PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,122CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,333CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,303CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,424CurrentTaxYearMinus1YearAmt
Current Tax Year$10,503CurrentTaxYearAmt
Total$34,685TotalAmt
FieldValueIRS element (for citing)
Total Support$5,483,048TotalSupportAmt
Gross Receipts Rltd Activities$100,295GrossReceiptsRltdActivitiesAmt
Public Support CY1700.92140PublicSupportCY170Pct
Public Support PY1700.98520PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,114,873TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$15,000DonatedServicesAndUseFcltsAmt
Revenue Not Reported$15,000RevenueNotReportedAmt
Revenue Subtotal$1,099,873RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,099,873TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,116,984TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$15,000DonatedServicesUseFcltsAmt
Expenses Not Reported$15,000ExpensesNotReportedAmt
Expenses Subtotal$2,101,984ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,101,984TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationTHE FOUNDATION IS EXEMPT FROM INCOME TAXES AS A PUBLIC CHARITY UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. MANAGEMENT BELIEVES THAT THE FOUNDATION OPERATES IN A MANNER CONSISTENT WITH THEIR TAX-EXEMPT STATUS AT BOTH THE STATE AND FEDERAL LEVEL. THE FOUNDATION ANNUALLY FILES IRS FORM 990 - RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, REPORTING VARIOUS INFORMATION THAT THE IRS USES TO MONITOR THE ACTIVITIES OF TAX-EXEMPT ENTITIES. THESE TAX RETURNS ARE SUBJECT TO REVIEW BY THE TAXING AUTHORITIES GENERALLY FOR A PERIOD OF THREE YEARS AFTER THEY WERE FILED. THE FOUNDATION CURRENTLY HAS NO TAX EXAMINATIONS IN PROGRESS.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM00GRANTS TO RECIPIENTS LOCATED IN REGIONSUPPORT FOR RESEARCH RELATING TO ADENOID CYSTIC CARCINOMA$45,291
EAST ASIA AND THE PACIFIC00GRANTS TO RECIPIENTS LOCATED IN REGIONSUPPORT FOR RESEARCH RELATING TO ADENOID CYSTIC CARCINOMA$60,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$105,291SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$105,291TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EAST ASIA AND THE PACIFICSUPPORT FOR KOREAN AXITINIB CLINICAL TRIAL$25,000CHECK OR FUND TRANSFER
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,SUPPORT FOR ACC DIAGNOSIS$5,000CHECK OR FUND TRANSFER
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,SUPPORT FOR PETER MACCALLUM MYB DNA VACCINE$30,000CHECK OR FUND TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMSUPPORT FOR MANCHESTER CTC IN LIQUID BIOPSY$20,291CHECK OR FUND TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMDR. KARL-HEINZ KLEMPNAUER AWARD$25,000CHECK OR FUND TRANSFER
FieldValueIRS element (for citing)
Total Other Org5TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationALL FOREIGN GRANTS ARE MADE TO MAJOR RESEARCH INSTITUTIONS OR HOSPITALS WITH INTERNATIONAL REPUTATIONS. IN ADDITION TO INTERIM WRITTEN REPORTS ON RESEARCH PROJECTS AND A FINAL REPORT FOLLOWING PROJECT COMPLETION, ACCRF ANNUALLY MEETS WITH EACH OF THE FOREIGN GRANTEES TO RECEIVE AN ORAL REPORT ON THE RESEARCH PROJECTS.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event12016 AUCTIONEvent1Nm
Gross Receipts Event1$71,148GrossReceiptsEvent1Amt
Charitable Contri Event1$49,742CharitableContriEvent1Amt
Gross Revenue Event1$21,406GrossRevenueEvent1Amt
Food And Beverage Event1$4,918FoodAndBeverageEvent1Amt
Entertainment Event1$250EntertainmentEvent1Amt
Other Direct Expenses Event1$14,840OtherDirectExpensesEvent1Amt
Gross Receipts Total$71,148GrossReceiptsTotalAmt
Charitable Contributions Tot$49,742CharitableContributionsTotAmt
Gross Revenue Total Events$21,406GrossRevenueTotalEventsAmt
Food And Beverage Total Events$4,918FoodAndBeverageTotalEventsAmt
Entertainment Total Events$250EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$14,840OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$20,008DirectExpenseSummaryEventsAmt
Net Income Summary$1,398NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (12 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
COLUMBIA UNIVERSITY
116TH STREET BROADWAYNEW YORKNY10027135598093501(C)(3)$200,000SUPPORT OF STUDY OF USING "SINGLE-CELL GENOMICS" TO DE-CONVOLUTE THE CELL COMPOSITION OF ADENOID CYSTIC CARCINOMA
CONQUER CANCER FOUNDATION
2318 MILL ROAD 800ALEXANDRIAVA22314311667995501(C)(3)$25,000SUPPORT OF CAREER DEVELOPMENT AWARD
DANA-FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02215042263040501(C)(3)$25,000SUPPORT FOR ESTABLISHING PROOF-OF-CONCEPT FOR DETECTING ACC-DERIVED CFDNA AND CTCS
HARVARD MEDICAL SCHOOL
25 SHATTUCK STREETBOSTONMA02115042103580501(C)(3)$25,000SUPPORT FOR STUDY OF RETINOIC ACID SUPPRESSION OF MYB IN ACC
JOHNS HOPKINS UNIVERSITY
3400 N CHARLES STREETBALTIMOREMD21218520591656501(C)(3)$248,015SUPPORT FOR DEVELOPMENT OF METHOD FOR DETECTION OF MYB REARRANGEMENT TRANSCRIPTS IN HEAD AND NECK ACC, TARGETED RADIOPHARMACEUTICAL THERAPY FOR ACC
M D ANDERSON CANCER CENTER
P O BOX 4486HOUSTONTX772104486746001118501(C)(3)$140,000SUPPORT FOR TRANSGENIC MOUSE MODEL FOR SALIVARY ACC
MASSACHUSETTS GENERAL HOSPITAL
P O BOX 414876BOSTONMA022414876041564655501(C)(3)$108,200SUPPORT FOR ACC TUMOR BIOREPOSITORY AND REGISTRY
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUECAMBRIDGEMA02139042103594501(C)(3)$144,745SUPPORT FOR STUDY OF TARGETING TRANSCRIPTION FACTORS IN ACC
MEMORIAL SLOAN-KETTERING CANCER CENTER
633 THIRD AVENUE 28TH FLOORNEW YORKNY10017131924236501(C)(3)$25,000SUPPORT FOR THE STUDY OF C-BIOPORTAL FOR ACC
UNIVERSITY OF CHICAGO
5801 S ELLIS AVENUECHICAGOIL60637362177139501(C)(3)$25,000SUPPORT FOR STUDY OF THE SYNERGY OF PEMBROLIZUMAB ANTI-PD-I IMMUNOTHERAPY WITH CHEMOTHERAPY FOR POORLY CHEMO-RESPONSIVE SALIVARY GLAND TUMORS
UNIVERSITY OF NEW MEXICO
1155 UNIVERSITY BLVD SEALBUQUERQUENM871064320856000642501(C)(3)$193,192SUPPORT FOR DEVELOPMENT OF SCREENING ASSAYS FOR ACC
UNIVERSITY OF VIRGINIA - UVA HEALTH SYSTEM
OFFICE OF SPONSORED PROGRAMS PO BOXCHARLOTTESVILLEVA22904546001796501(C)(3)$305,082SUPPORT FOR THE STUDY OF DISRUPTING THE MYB-DRIVEN PHENOTYPE IN ACC400195
FieldValueIRS element (for citing)
Total501c3 Org12Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationACCRF TYPICALLY REQUIRES INTERIM REPORTING ON RESEARCH PROJECTS EVERY SIX MONTHS AS WELL AS A FINAL REPORT FOLLOWING PROJECT COMPLETION.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2THE EXECUTIVE DIRECTOR, JEFFREY A. KAUFMAN, IS MARRIED TO A DIRECTOR ON THE BOARD, MARNIE A. KAUFMAN.
FORM 990, PART VI, SECTION B, LINE 11BTHE FORM 990 IS PREPARED BY THE EXTERNAL AUDITORS AND REVIEWED BY MANAGEMENT. ONCE ALL ARE SATISFIED WITH THE FORM, IT IS FINALIZED AND A COPY IS SENT TO ALL DIRECTORS. THE DIRECTORS ARE ASKED IF THEY HAVE ANY QUESTIONS OR COMMENTS AND A GENERAL REVIEW OF THE FORM IS CONDUCTED BY MANAGEMENT. REVISIONS AND CORRECTIONS ARE MADE AS NECESSARY. SUBSEQUENTLY, THE FORM IS SUBMITTED TO THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CA FORMAL PROCESS IS UNDERTAKEN EACH YEAR TO MONITOR AND ENFORCE THE CONFLICT OF INTEREST POLICY CONTAINED WITHIN THE BYLAWS. EACH JANUARY, AN ANNUAL SURVEY ON CONFLICTS OF INTEREST IS COMPLETED BY EVERY DIRECTOR AND OFFICER COVERING THE PRIOR CALENDAR YEAR. ALL BUSINESS RELATIONSHIPS, IF ANY, ARE REPORTED TO THE BOARD OF DIRECTORS. EXCLUDING ANY INTERESTED PARTIES, A MAJORITY OF REMAINING DIRECTORS DETERMINES WHETHER A CONFLICT OF INTEREST HAS OCCURRED AND WHETHER A MORE ADVANTAGEOUS TRANSACTION IS AVAILABLE TO THE FOUNDATION THAT WOULD NOT LEAD TO A CONFLICT OF INTEREST. THE BOARD IS CHARGED WITH TAKING APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION IN THE CASE OF A VIOLATION OF THE CONFLICT OF INTEREST POLICY.
FORM 990, PART VI, SECTION B, LINE 15AA FORMAL STRATEGIC REVIEW, OBJECTIVE SETTING AND PERFORMANCE REVIEW PROCESS IS UNDERTAKEN EACH YEAR. THE BOARD OF DIRECTORS REVIEWS THE PERFORMANCE OF THE ORGANIZATION AND EXECUTIVE DIRECTOR, BASED ON GOALS AND OBJECTIVES PREVIOUSLY AGREED UPON DURING THE PRIOR CALENDAR YEAR AND ON A PERFORMANCE REPORT SUBMITTED BY THE EXECUTIVE DIRECTOR IN ADVANCE. THE INDEPENDENT DIRECTORS OF THE BOARD MEET SEPARATELY TO ASSESS THE EXECUTIVE DIRECTOR'S PERFORMANCE, AGREE ON A PROCESS TO INFORM THE EXECUTIVE DIRECTOR OF ANY AREAS OF NEEDED IMPROVEMENT, AND AGREE UPON A MERIT AND/OR COST OF LIVING SALARY INCREASE FOR THE DIRECTOR, SUBJECT TO AVAILABILITY OF FUNDS AND MAINTENANCE OF AN APPROPRIATE RATIO BETWEEN SUCH SALARY AND ACCRF FUNDRAISING/REVENUE TOTALS IN ANY GIVEN YEAR. THE BOARD OF DIRECTORS SETS PERFORMANCE OBJECTIVES AND METRICS FOR THE ORGANIZATION AND THE EXECUTIVE DIRECTOR FOR THE CURRENT CALENDAR YEAR.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS (ARTICLES OF INCORPORATION AND BY-LAWS), ITS CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. THE ORGANIZATION WILL MAIL COPIES UPON REQUEST OR PROVIDE COPIES TO THOSE WHO COME TO THE ADMINISTRATIVE OFFICES DURING NORMAL BUSINESS HOURS.

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