EPILEPSY STUDY CONSORTIUM INC

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Cite this

Plain text EPILEPSY STUDY CONSORTIUM INC. furp.org, nonprofit organization profile, tax years 2014–2024. https://furp.org/org/epilepsy-study-consortium-inc-204950952. Retrieved 2026-11-06.

APA furp.org. (n.d.). EPILEPSY STUDY CONSORTIUM INC [Nonprofit organization profile; tax years 2014–2024]. Retrieved November 6, 2026, from https://furp.org/org/epilepsy-study-consortium-inc-204950952

MLA “EPILEPSY STUDY CONSORTIUM INC.” furp.org, tax years 2014–2024, https://furp.org/org/epilepsy-study-consortium-inc-204950952. Accessed 6 Nov. 2026.

Retrieved 2026-11-06; covers tax years 2014–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $2.5M · expenses $2.2M · assets $3.7M

Also known as
C/O STERLING FOUNDATION MANAGEMENT LLC
EIN
20-4950952
Address
12030 SUNRISE VALLEY DR STE 450, RESTON, VA 20191-3400
Website
WWW.EPILEPSYCONSORTIUM.ORG
NTEE code
G54 Epilepsy (Voluntary Health Associations and Medical Disciplines) published (IRS Business Master File)
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
May 2007 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

8 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Bree Diventura CO-EXECUTIVE DIRECTOR2014-2024 $240,536$1,750,865 1
Tracy L De Vito EMPLOYEE2017-2024 $110,004$753,028 1
Meryl J Lozano CO-EXECUTIVE DIRECTOR2022-2024 $150,417$417,127 1
Michael Gelfand Md DIRECTOR2023-2024 $22,152$49,565 1
Michael Sperling Md DIRECTOR2014-2024 $4,228$38,042 1
Gregory Krauss Md DIRECTOR2020-2024 $4,875$4,875 1
Maryann Brodie (former) EXECUTIVE DIRECTOR2014-2021 $118,854$1,230,547 1
Hina Dave Md (former) DIRECTOR2020-2023 $1,725$1,725 1

Officers and directors, no compensation reported

12 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
James Lintott Esq TREASURER2014-2024 1 $0 reported 1
Jacqueline French Md PRESIDENT2014-2024 5 $0 reported 1
Dennis Dlugos Md VICE PRESIDENT2014-2024 1 $0 reported 1
Daniel Friedman Md VICE PRESIDENT2020-2024 1 $0 reported 1
Dawn Eliashiv Md DIRECTOR2024 1 $0 reported 1
Pavel Klein Md DIRECTOR2020-2024 1 $0 reported 1
Sudha Kessler Md DIRECTOR2020-2024 1 $0 reported 1
Robert Wechsler Md Phd DIRECTOR2024 1 $0 reported 1
Claude Steriade Md DIRECTOR2023-2024 1 $0 reported 1
Jennie Minnick EXECUTIVE COMMITTEE MEMBER2024 1 $0 reported 1
John Pollard Md (former) DIRECTOR2020-2023 1 $0 reported 1
Marc Dichter Md Phd (former) DIRECTOR2020-2023 1 $0 reported 1

People by year

2024 · 16 people listed · 6 paid, $532K · 7 employees · 11 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $233,530$0$7,006 $240,5361
MERYL J LOZANO CO-EXECUTIVE DIRECTOR40 $150,417$0$0 $150,4171
TRACY L DE VITO EMPLOYEE40 $110,004$0$0 $110,0041
MICHAEL GELFAND MD DIRECTOR1 $22,152$0$0 $22,1521
GREGORY KRAUSS MD DIRECTOR1 $4,875$0$0 $4,8751
MICHAEL SPERLING MD DIRECTOR1 $4,228$0$0 $4,2281
JAMES LINTOTT ESQ TREASURER1 $0$0$0 $01
JACQUELINE FRENCH MD PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS MD VICE PRESIDENT1 $0$0$0 $01
DANIEL FRIEDMAN MD VICE PRESIDENT1 $0$0$0 $01
DAWN ELIASHIV MD DIRECTOR1 $0$0$0 $01
PAVEL KLEIN MD DIRECTOR1 $0$0$0 $01
SUDHA KESSLER MD DIRECTOR1 $0$0$0 $01
ROBERT WECHSLER MD PHD DIRECTOR1 $0$0$0 $01
CLAUDE STERIADE MD DIRECTOR1 $0$0$0 $01
JENNIE MINNICK EXECUTIVE COMMITTEE MEMBER1 $0$0$0 $01
2023 · 16 people listed · 5 paid, $475K · 7 employees · 12 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $194,484$0$5,835 $200,3191
MERYL LOZANO CO-EXECUTIVE DIRECTOR40 $141,167$0$0 $141,1671
TRACY L DE VITO EMPLOYEE40 $104,612$0$0 $104,6121
MICHAEL GELFAND MD DIRECTOR1 $27,413$0$0 $27,4131
HINA DAVE MD DIRECTOR1 $1,725$0$0 $1,7251
MICHAEL SPERLING MD DIRECTOR1 $0$0$0 $01
GREGORY KRAUSS MD DIRECTOR1 $0$0$0 $01
JOHN POLLARD MD DIRECTOR1 $0$0$0 $01
PAVEL KLEIN MD DIRECTOR1 $0$0$0 $01
SUDHA KESSLER MD DIRECTOR1 $0$0$0 $01
MARC DICHTER MD PHD DIRECTOR1 $0$0$0 $01
CLAUDE STERIADE MD DIRECTOR1 $0$0$0 $01
JAMES LINTOTT ESQ TREASURER1 $0$0$0 $01
JACQUELINE FRENCH MD PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS MD VICE PRESIDENT1 $0$0$0 $01
DANIEL FRIEDMAN MD VICE PRESIDENT1 $0$0$0 $01
2022 · 13 people listed · 3 paid, $320K · 6 employees · 11 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $182,925$0$5,488 $188,4131
MERYL LOZANO CO-EXECUTIVE DIRECTOR40 $125,543$0$0 $125,5431
MICHAEL SPERLING MD VICE PRESIDENT1 $6,026$0$0 $6,0261
JAMES LINTOTT ESQ TREASURER1 $0$0$0 $01
JACQUELINE FRENCH MD PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS MD VICE PRESIDENT1 $0$0$0 $01
DANIEL FRIEDMAN MD DIRECTOR1 $0$0$0 $01
GREGORY KRAUSS MD DIRECTOR1 $0$0$0 $01
JOHN POLLARD MD DIRECTOR1 $0$0$0 $01
PAVEL KLEIN MD DIRECTOR1 $0$0$0 $01
SUDHA KESSLER MD DIRECTOR1 $0$0$0 $01
MARC DICHTER MD PHD DIRECTOR1 $0$0$0 $01
HINA DAVE MD DIRECTOR1 $0$0$0 $01
2021 · 14 people listed · 4 paid, $391K · 7 employees · 1 volunteer
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $162,986$0$4,889 $167,8751
MARYANN BRODIE EXECUTIVE DIRECTOR40 $115,392$0$3,462 $118,8541
TRACY L DE VITO ADMINISTRATIVE-STAFF40 $101,052$0$0 $101,0521
MICHAEL SPERLING MD VICE PRESIDENT1 $3,666$0$0 $3,6661
JAMES LINTOTT ESQ TREASURER1 $0$0$0 $01
JACQUELINE FRENCH MD PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS MD VICE PRESIDENT1 $0$0$0 $01
DANIEL FRIEDMAN MD DIRECTOR1 $0$0$0 $01
GREGORY KRAUSS MD DIRECTOR1 $0$0$0 $01
JOHN POLLARD MD DIRECTOR1 $0$0$0 $01
PAVEL KLEIN MD DIRECTOR1 $0$0$0 $01
SUDHA KESSLER MD DIRECTOR1 $0$0$0 $01
MARC DICHTER MD PHD DIRECTOR1 $0$0$0 $01
HINA DAVE MD DIRECTOR1 $0$0$0 $01
2020 · 14 people listed · 4 paid, $444K · 6 employees · 3 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $171,856$0$5,156 $177,0121
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $154,336$0$4,630 $158,9661
TRACY L DE VITO ADMINISTRATIVE-STAFF40 $100,562$0$0 $100,5621
MICHAEL SPERLING MD VICE PRESIDENT1 $7,958$0$0 $7,9581
JAMES LINTOTT ESQ TREASURER1 $0$0$0 $01
JACQUELINE FRENCH MD PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS MD VICE PRESIDENT1 $0$0$0 $01
DANIEL FRIEDMAN MD DIRECTOR1 $0$0$0 $01
GREGORY KRAUSS MD DIRECTOR1 $0$0$0 $01
JOHN POLLARD MD DIRECTOR1 $0$0$0 $01
PAVEL KLEIN MD DIRECTOR1 $0$0$0 $01
SUDHA KESSLER MD DIRECTOR1 $0$0$0 $01
MARC DICHTER MD PHD DIRECTOR1 $0$0$0 $01
HINA DAVE MD DIRECTOR1 $0$0$0 $01
2019 · 7 people listed · 4 paid, $456K · 6 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $171,363$0$5,141 $176,5041
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $149,890$0$4,497 $154,3871
TRACY L DE VITO ADMINISTRATIVE-STAFF40 $121,249$0$0 $121,2491
MICHAEL SPERLING VICE PRESIDENT1 $3,666$0$0 $3,6661
JAMES LINTOTT TREASURER1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01
2018 · 7 people listed · 4 paid, $429K · 4 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $162,464$0$4,874 $167,3381
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $144,625$0$4,339 $148,9641
TRACY L DE VITO ADMINISTRATIVE-STAFF40 $108,859$0$0 $108,8591
MICHAEL SPERLING VICE PRESIDENT1 $3,666$0$0 $3,6661
JAMES LINTOTT TREASURER1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01
2017 · 7 people listed · 4 paid, $411K · 4 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $157,249$0$1,572 $158,8211
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $139,969$0$1,400 $141,3691
TRACY L DE VITO ADMINISTRATIVE-STAFF40 $106,690$0$0 $106,6901
MICHAEL SPERLING VICE PRESIDENT1 $3,666$0$0 $3,6661
JAMES LINTOTT TREASURER1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01
2016 · 6 people listed · 3 paid, $277K · 5 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $147,668$0$1,462 $149,1301
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $121,312$0$1,201 $122,5131
MICHAEL SPERLING VICE PRESIDENT1 $5,166$0$0 $5,1661
JAMES LINTOTT TREASURER1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01
2015 · 6 people listed · 2 paid, $256K · 5 employees · 30 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EXECUTIVE DIRECTOR40 $130,321$0$13,469 $143,7901
BREE DIVENTURA CO-EXECUTIVE DIRECTOR40 $105,040$0$7,265 $112,3051
JAMES LINTOTT TREASURER1 $0$0$0 $01
MICHAEL SPERLING VICE PRESIDENT1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01
2014 · 6 people listed · 2 paid, $254K · 4 employees · 30 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MARYANN BRODIE EMPLOYEE40 $126,938$0$12,160 $139,0981
BREE DIVENTURA EMPLOYEE40 $102,271$0$12,947 $115,2181
JAMES LINTOTT TREASURER1 $0$0$0 $01
MICHAEL SPERLING VICE PRESIDENT1 $0$0$0 $01
JACQUELINE FRENCH PRESIDENT5 $0$0$0 $01
DENNIS DLUGOS VICE PRESIDENT1 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Other organizations that listed this one among their highest-paid independent contractors. Contractor lists give no EIN, so these are matched on name and address; check the filing.

YearPaid byServicePaidFiling
2020EPILEPSY FOUNDATION OF AMERICARESEARCH SERVICES$426,506view vendor page
2018EPILEPSY FOUNDATION OF AMERICASUBCONTRACTOR$503,255view vendor page

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 2 grants to organizations · $119K
2023 · 1 grant to organizations · $66K
2021 · 1 grant to organizations · $15K
2020 · 1 grant to organizations · $15K
2019 · 1 grant to organizations · $30K
2017 · 3 grants to organizations · $401K
2016 · 2 grants to organizations · $237K

Listed grants add up to $236,711; the return's “grants paid” expense line says $246,812. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2015 · 2 grants to organizations · $174K
2014 · 1 grant to organizations · $83K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$2,492,541$2,221,138 $3,725,581$3,725,581 $512,456$1,919,904 $422,558711
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$3,371,798$1,701,465 $3,454,178$3,454,178 $855,830$2,473,596 $364,789712
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$2,128,414$1,917,817 $1,783,845$1,783,845 $621,730$1,506,651 $314,494611
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$1,805,835$1,314,277 $1,573,248$1,573,248 $1,074,345$731,488 $383,09671
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$1,622,918$2,177,935 $1,081,690$1,081,690 $721,506$901,409 $184,97063
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$1,989,035$2,878,662 $1,636,707$1,636,707 $357,500$1,631,503 $180,17060
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$2,414,102$3,238,445 $2,526,334$2,526,334 $1,385,351$1,028,716 $171,00440
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$2,366,288$1,812,742 $3,350,677$3,350,677 $1,047,050$1,319,229 $407,57440
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$3,119,860$2,551,828 $2,797,131$2,797,131 $1,922,580$1,197,278 $274,14650
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$1,612,503$2,191,378 $2,229,099$2,229,099 $608,500$1,004,001 $235,360530
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$1,332,328$1,000,150 $2,807,974$2,807,974 $609,300$723,026 $229,209430

Funders of this organization

2 grantors reported grants to this organization, $138,000 in all, tax years 2016 to 2021. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTotal givenGrantsLatest year's amountLatest yearYears givenTypeMatchGrants
FRIENDS OF FACES $128,0002 $84,0002017 2016-2017 Public charity Exact
show
MILLENNIUM EVERGREEN CHARITABLE FUND $10,0001 $10,0002021 2021 Public charity Exact
show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
EPILEPSY FOUNDATION OF MINNESOTA INCMNG54 $2,144,507$2,030,789 EXECUTIVE DIRECTOR$180,462 Same NTEE code G54, revenue within 2x, similar mission
KCNT1 SLACK EPILEPSY FOUNDATION INCAZG54 $1,525,375$485,949 Executive Director$28,125 Same NTEE code G54, revenue within 2x
EPILEPSY FOUNDATION OF TEXASTXG54 $3,440,068$2,311,089 CEO$160,080 Same NTEE code G54, revenue within 2x, similar mission
EPILEPSY FOUNDATION CENTRAL AND SOUTH TEXASTXG54 $1,255,099$1,345,026 CEO (THRU 1/2025)$147,872 Same NTEE code G54, revenue within 2x, similar mission
EPILEPSY FOUNDATION OF MICHIGANMIG54 $3,040,333$1,276,900 PRESIDENT$133,123 Same NTEE code G54, revenue within 2x
EPILEPSY FOUNDATION OF GREATER SOUTHERN ILLINOISILG54 $2,471,318$2,371,301 EXECUTIVE DI$116,742 Same NTEE code G54, revenue within 2x
EPILEPSY ASSOCIATION OF WESTERN AND CENTRAL PAPAG54 $1,530,721$1,481,036 PRESIDENT & CEO$135,374 Same NTEE code G54, revenue within 2x
R O W FOUNDATIONILG54 $3,891,089$3,920,078 PRESIDENT$0 Same NTEE code G54, revenue within 2x
EPILEPSY FOUNDATION OF CONNECTICUT INCCTG54 $699,473$716,921 EXECUTIVE DI$101,443 Same NTEE code G54, revenue within 5x
AMERICAN EPILEPSY SOCIETYILG54 $11,878,127$11,608,562 CEO UNTIL DEC 2024$501,808 Same NTEE code G54, revenue within 5x
EPILEPSY ALLIANCE NORTH CAROLINANCG54 $530,700$247,167 MEMBER$0 Same NTEE code G54, revenue within 5x
INTERNATIONAL BUREAU FOR EPILEPSYG54 $935,491$944,470 CEO$125,017 Same NTEE code G54, revenue within 5x
EPILEPSY ASSOCIATION OF CENTRAL FLORIDA INCFLG54 $904,636$900,035 EXECUTIVE DIRECTOR$95,653 Same NTEE code G54, revenue within 5x
EPILEPSY SOCIETY OF SAN DIEGO COUNTYCAG54 $1,057,513$794,089 PRESIDENT & CEO (SINCE MAY 2025)$114,606 Same NTEE code G54, revenue within 5x
EPILEPSY ASSOCIATIONOHG54 $641,757$690,816 EXECUTIVE DIRECTOR$93,396 Same NTEE code G54, revenue within 5x
EPILEPSY FOUNDATION OF GREATER LOS ANGELESCAG54 $1,133,404$2,664,483 EXECUTIVE DIRECTOR$126,921 Same NTEE code G54, revenue within 5x
EPILEPSY SERVICES OF WEST CENTRAL FLORIDA INCFLG54 $579,758$1,214,203 CHIEF EXECUTIVE OFFICER$481,358 Same NTEE code G54, revenue within 5x
WISHES FOR ELLIOTTDCG54 $902,175$496,581 Executive Dir.$100,000 Same NTEE code G54, revenue within 5x
ABILITIES NETWORK INCMDG54 $10,130,381$10,496,268 CEO$211,514 Same NTEE code G54, revenue within 5x
UNITED NEEDS AND ABILITIES INCMDG54 $8,034,741$6,914,643 CHIEF EXECUTIVE OFFICER$104,607 Same NTEE code G54, revenue within 5x
CROSSPOINT HUMAN SERVICESILG54 $10,047,933$9,387,126 APRN$265,005 Same NTEE code G54, revenue within 5x
EPILEPSY FOUNDATION OF VIRGINIAVAG54 $300,896$284,375 EXECUTIVE DIRECTOR$82,000 Same NTEE code G54, revenue within 10x, same state
EPILEPSY FOUNDATION OF WISCONSIN INCWIG54 $268,572$244,104 Executive Director$39,680 Same NTEE code G54, revenue within 10x, similar mission
EPILEPSY FOUNDATION OF AMERICAMDG54 $16,178,770$18,974,202 CHIEF EXECUTIVE OFFICER$481,358 Same NTEE code G54, revenue within 10x, similar mission
KCNA2 EPILEPSY INCOHG54 $255,354$93,121 BOARD MEMBER$0 Same NTEE code G54, revenue within 10x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTotal givenGrantsOrganizations fundedTypeYearsWhich ones
NATIONAL PHILANTHROPIC TR $9,500,36544 13DAF sponsor2014–2024 INVESTIGATIVE RESEARCH CENTER INC; EPILEPSY FOUNDATION OF AMERICA; EPILEPSY FOUNDATION OF TEXAS; SPECIAL LOVE INC and 9 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND $8,761,591151 35DAF sponsor2016–2024 EPILEPSY FOUNDATION OF TEXAS; ROC SOLID FOUNDATION INC; INVESTIGATIVE RESEARCH CENTER INC; EPILEPSY FOUNDATION OF AMERICA and 31 more
DONOR ADVISED CHARITABLE GIVING $4,673,831105 27DAF sponsor2014–2024 EPILEPSY FOUNDATION OF AMERICA; INVESTIGATIVE RESEARCH CENTER INC; EPIC LONG ISLAND INC; PARKINSON RESEARCH FOUNDATION INC and 23 more
AMERICAN ONLINE GIVING FOUNDATION INC $3,335,437137 33DAF sponsor2019–2025 EPILEPSY FOUNDATION OF AMERICA; CURE JM FOUNDATION; ADULT CONGENITAL HEART ASSOCIATION INC; EPILEPSY FOUNDATION OF MINNESOTA INC and 29 more
FORGOOD INC $3,114,47295 23DAF sponsor2010–2024 UNITED CEREBRAL PALSY INC; PARKINSON RESEARCH FOUNDATION INC; CURE JM FOUNDATION; SPINA BIFIDA ASSOCIATION OF AMERICA and 19 more
SILICON VALLEY COMMUNITY FOUNDATION $2,880,2598 6DAF sponsor2015–2024 WISHES FOR ELLIOTT; KCNT1 SLACK EPILEPSY FOUNDATION INC; KCNA2 EPILEPSY INC; CURE JM FOUNDATION and 2 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM $2,319,48733 15DAF sponsor2020–2024 INVESTIGATIVE RESEARCH CENTER INC; SPECIAL LOVE INC; EPILEPSY FOUNDATION OF AMERICA; AMERICAN TINNITUS ASSOCIATION and 11 more
ROCKEFELLER PHILANTHROPY ADVISORS INC $1,629,0003 2DAF sponsor2018–2024 THOMAS G LABRECQUE FOUNDATION; CURE JM FOUNDATION
PAYPAL CHARITABLE GIVING FUND $1,127,89740 20DAF sponsor2017–2024 EPILEPSY FOUNDATION OF AMERICA; ADULT CONGENITAL HEART ASSOCIATION INC; SPINA BIFIDA ASSOCIATION OF AMERICA; CHARLIE FOUNDATION FOR KETOGENIC THERAPIES and 16 more
AMERICAN ENDOWMENT FOUNDATION $972,96130 11DAF sponsor2016–2024 EPILEPSY FOUNDATION OF AMERICA; CURE JM FOUNDATION; EPILEPSY FOUNDATION OF GREATER LOS ANGELES; SPINA BIFIDA ASSOCIATION OF AMERICA and 7 more
POTOMAC HEALTH FOUNDATION $930,24015 1Private foundation2011–2019 BRAIN INJURY SERVICES INC
CHARITIES AID FOUNDATION AMERICA $760,14523 11DAF sponsor2019–2024 EPILEPSY FOUNDATION OF AMERICA; ROC SOLID FOUNDATION INC; FAMILIES OF AUTISTIC CHILDREN OF TIDEWATER INC; ABILITIES NETWORK INC and 7 more
OSCAR MILLER FAMILY PRIVATE FOUNDATION $652,0508 1Private foundation2016–2023 ACCELERATED CURE PROJECT INC
THE HARRY & JEANETTE WEINBERG FOUNDATION INC $640,0006 1Private foundation2011–2020 ABILITIES NETWORK INC
GREATER CINCINNATI FOUNDATION $605,94513 2DAF sponsor2011–2024 EPILEPSY FOUNDATION OF AMERICA; ACCELERATED CURE PROJECT INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $2,221,138 spent · pay $882,849 · grants $119,000 · events $20,416
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)PROGRAM EXPENSE $683,763$683,763-- 30.8%
Pay: officers, directors, trustees, key employees $422,558$422,558-- 19.0%
Other salaries and wages $385,442$385,442-- 17.4%
Other (as described)MEDICAL STUDY AND RESEA $188,703$188,703-- 8.5%
Fees: other services $142,568$141,174$1,394- 6.4%
Grants to US organizations and governments $119,000$119,000-- 5.4%
Insurance $62,399$62,399-- 2.8%
Payroll taxes $56,225$56,225-- 2.5%
Travel $49,704$49,704-- 2.2%
Fees: accounting $35,000-$35,000- 1.6%
Information technology $20,659$20,659-- 0.9%
Conferences, conventions and meetings $20,416$20,416-- 0.9%
Pension plan contributions $16,000$16,000-- 0.7%
Office expenses $8,424$8,389$35- 0.4%
Other (as described)MEMBERSHIP DUES AND SUB $4,239$4,239-- 0.2%
Occupancy $3,414$3,414-- 0.2%
Other employee benefits $2,624$2,624-- 0.1%
Total$2,221,138100%

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2023 · Form 990 · $1,701,465 spent · pay $783,326 · grants $66,000 · events $210,849
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $364,789$364,789-- 21.4%
Other salaries and wages $347,581$347,581-- 20.4%
Other (as described)MEDICAL STUDY AND RESEA $262,137$262,137-- 15.4%
Conferences, conventions and meetings $210,849$210,849-- 12.4%
Fees: other services $134,563$134,563-- 7.9%
Other (as described)PROGRAM EXPENSE $128,910$128,910-- 7.6%
Grants to US organizations and governments $66,000$66,000-- 3.9%
Payroll taxes $51,184$51,184-- 3.0%
Insurance $34,437$34,437-- 2.0%
Office expenses $24,567$24,567-- 1.4%
Travel $21,867$21,867-- 1.3%
Pension plan contributions $17,464$17,464-- 1.0%
Information technology $16,368$16,368-- 1.0%
Fees: accounting $10,033-$10,033- 0.6%
Other (as described)MEMBERSHIP DUES AND SUB $4,575$4,575-- 0.3%
Occupancy $3,344$3,344-- 0.2%
Other employee benefits $2,308$2,308-- 0.1%
Other (as described)TELEPHONE $489$489-- 0.0%
Total$1,701,465100%

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2022 · Form 990 · $1,917,817 spent · pay $646,131 · grants $0 · events $67,916
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)PROGRAM EXPENSE $687,754$687,754-- 35.9%
Pay: officers, directors, trustees, key employees $314,494$314,494-- 16.4%
Other (as described)MEDICAL STUDY AND RESEA $312,237$312,237-- 16.3%
Other salaries and wages $279,634$279,634-- 14.6%
Fees: other services $102,343$102,271$72- 5.3%
Conferences, conventions and meetings $67,916$67,916-- 3.5%
Fees: accounting $45,000-$45,000- 2.3%
Payroll taxes $30,272$30,272-- 1.6%
Travel $25,097$25,097-- 1.3%
Pension plan contributions $19,488$19,488-- 1.0%
Insurance $12,947$12,947-- 0.7%
Other (as described)MEMBERSHIP DUES AND SUB $5,095$5,095-- 0.3%
Office expenses $4,739$4,739-- 0.2%
Information technology $4,105$4,105-- 0.2%
Occupancy $3,872$3,872-- 0.2%
Other employee benefits $2,243$2,243-- 0.1%
Other (as described)TELEPHONE $566$566-- 0.0%
All other expenses $15-$15- 0.0%
Total$1,917,817100%

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2021 · Form 990 · $1,314,277 spent · pay $681,565 · grants $15,000 · events $67,718
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $383,096$383,096-- 29.1%
Other salaries and wages $239,794$239,794-- 18.2%
Other (as described)MEDICAL STUDY AND RESEA $189,587$189,587-- 14.4%
Other (as described)PROGRAM EXPENSE $159,665$159,665-- 12.1%
Fees: other services $118,802$118,802-- 9.0%
Conferences, conventions and meetings $67,718$67,718-- 5.2%
Payroll taxes $48,124$48,124-- 3.7%
Fees: management $30,003-$30,003- 2.3%
Information technology $15,293$15,293-- 1.2%
Grants to US organizations and governments $15,000$15,000-- 1.1%
Insurance $12,494$12,178$316- 1.0%
Other (as described)MEMBERSHIP DUES AND SUB $9,266$9,266-- 0.7%
Pension plan contributions $8,351$8,351-- 0.6%
Office expenses $7,928$6,745$1,183- 0.6%
Other employee benefits $2,200$2,200-- 0.2%
Occupancy $1,933$1,933-- 0.1%
Travel $1,781$1,781-- 0.1%
Other (as described)TRANSPORTATION EXPENSES $1,727$1,727-- 0.1%
All other expenses $1,515$1,515-- 0.1%
Total$1,314,277100%

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2020 · Form 990 · $2,177,935 spent · pay $674,832 · grants $15,000 · events $12,228
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $929,341$929,341-- 42.7%
Other salaries and wages $441,212$441,212-- 20.3%
Other (as described)PROGRAM EXPENSE $347,033$347,033-- 15.9%
Pay: officers, directors, trustees, key employees $184,970$184,970-- 8.5%
Fees: other services $115,714$115,714-- 5.3%
Payroll taxes $42,925$42,925-- 2.0%
Fees: management $25,000-$25,000- 1.1%
Insurance $21,861$21,861-- 1.0%
Grants to US organizations and governments $15,000$15,000-- 0.7%
Travel $14,112$14,112-- 0.6%
Conferences, conventions and meetings $12,228$12,228-- 0.6%
Office expenses $10,625$10,349$276- 0.5%
Information technology $8,015$8,015-- 0.4%
Pension plan contributions $4,630$4,630-- 0.2%
Other (as described)MEMBERSHIP DUES AND SUB $2,095$2,095-- 0.1%
Occupancy $1,790$895$895- 0.1%
Other employee benefits $1,095$1,095-- 0.1%
Other (as described)MISCELLANEOUS $283$142$141- 0.0%
Fees: accounting $6-$6- 0.0%
Total$2,177,935100%

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2019 · Form 990 · $2,878,662 spent · pay $612,108 · grants $30,000 · events $237,959
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $1,406,815$1,406,815-- 48.9%
Other salaries and wages $383,818$383,818-- 13.3%
Conferences, conventions and meetings $237,959$237,959-- 8.3%
Other (as described)PROGRAM EXPENSE $226,856$226,856-- 7.9%
Pay: officers, directors, trustees, key employees $180,170$180,170-- 6.3%
Fees: other services $147,172$147,172-- 5.1%
Travel $106,865$106,865-- 3.7%
Payroll taxes $40,997$40,997-- 1.4%
Insurance $33,189$33,189-- 1.2%
Grants to US organizations and governments $30,000$30,000-- 1.0%
Fees: investment management $25,000-$25,000- 0.9%
Other (as described)FACILITIES AND EQUIPMEN $19,178$9,589$9,589- 0.7%
All other expenses $17,795$17,775$20- 0.6%
Other (as described)POSTAGE AND PRINTING AN $12,484$12,064$420- 0.4%
Pension plan contributions $4,497$4,497-- 0.2%
Fees: accounting $3,241-$3,241- 0.1%
Other employee benefits $2,626$2,626-- 0.1%
Total$2,878,662100%

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2018 · Form 990 · $3,238,445 spent · pay $505,745 · grants $0 · events $5,415
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $2,046,847$2,046,847-- 63.2%
Other salaries and wages $295,366$295,366-- 9.1%
Other (as described)INDEPENDENT CONTRACTORS $290,807$290,807-- 9.0%
Other (as described)PROGRAM EXPENSE $276,267$276,267-- 8.5%
Pay: officers, directors, trustees, key employees $171,004$171,004-- 5.3%
Travel $39,034$39,034-- 1.2%
Payroll taxes $33,240$33,240-- 1.0%
All other expenses $22,125$19,421$2,704- 0.7%
Insurance $21,313$21,313-- 0.7%
Other (as described)WEB EXPENSES $14,397$14,397-- 0.4%
Fees: management $13,000-$13,000- 0.4%
Conferences, conventions and meetings $5,415$5,415-- 0.2%
Pension plan contributions $4,339$4,339-- 0.1%
Fees: other services $2,075$2,075-- 0.1%
Other employee benefits $1,796$1,796-- 0.1%
Fees: legal $1,400-$1,400- 0.0%
Fees: accounting $20-$20- 0.0%
Total$3,238,445100%

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2017 · Form 990 · $1,812,742 spent · pay $480,623 · grants $400,576 · events $190,325
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $443,811$443,811-- 24.5%
Grants to US organizations and governments $400,576$400,576-- 22.1%
Other (as described)MEDICAL STUDY AND RESEA $351,585$351,585-- 19.4%
Other (as described) EventAED CONVENTION $190,325$190,325-- 10.5%
Other (as described)INDEPENDENT CONTRACTORS $143,087$143,087-- 7.9%
Other (as described)CONTRACT SERVICES $109,285$109,285-- 6.0%
Travel $48,329$48,329-- 2.7%
All other expenses $37,333$33,288$4,045- 2.1%
Payroll taxes $33,840$33,840-- 1.9%
Insurance $26,890$26,890-- 1.5%
Fees: accounting $10,002-$10,002- 0.6%
Office expenses $6,071$6,071-- 0.3%
Fees: legal $5,304-$5,304- 0.3%
Other employee benefits $2,972$2,972-- 0.2%
Fees: other services $2,520$2,520-- 0.1%
Advertising and promotion $812$812-- 0.0%
Total$1,812,742100%

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2016 · Form 990 · $2,551,828 spent · pay $457,418 · grants $246,812 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $1,613,240$1,613,240-- 63.2%
Other salaries and wages $424,815$424,815-- 16.6%
Grants to US organizations and governments $236,712$236,712-- 9.3%
Other (as described)INDEPENDENT CONTRACTORS $97,238$97,238-- 3.8%
Other (as described)TRAVEL AND MEETINGS $50,647$50,647-- 2.0%
Insurance $30,363$30,363-- 1.2%
Payroll taxes $29,781$29,781-- 1.2%
All other expenses $22,973$22,052$921- 0.9%
Fees: accounting $12,778-$12,778- 0.5%
Grants to US individuals $10,100$10,100-- 0.4%
Other (as described)CONTRACT SERVICES $10,000$10,000-- 0.4%
Office expenses $3,863$1,932$1,931- 0.2%
Fees: other services $3,493$3,493-- 0.1%
Fees: legal $3,003-$3,003- 0.1%
Other employee benefits $2,822$2,822-- 0.1%
Total$2,551,828100%

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2015 · Form 990 · $2,191,378 spent · pay $486,693 · grants $173,633 · events $149,227
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $1,186,477$1,186,477-- 54.1%
Pay: officers, directors, trustees, key employees $235,360$235,360-- 10.7%
Other salaries and wages $195,667$195,667-- 8.9%
Grants to US organizations and governments $173,633$173,633-- 7.9%
Other (as described) EventAED CONVENTION $149,227$149,227-- 6.8%
Other (as described)INDEPENDENT CONTRACTORS $65,884$65,884-- 3.0%
All other expenses $56,857$37,535$19,322- 2.6%
Other (as described)TRAVEL AND MEETINGS $37,120$37,120-- 1.7%
Payroll taxes $34,932$34,932-- 1.6%
Insurance $28,563-$28,563- 1.3%
Other employee benefits $20,734$20,734-- 0.9%
Fees: other services $3,420$3,420-- 0.2%
Fees: accounting $2,104-$2,104- 0.1%
Fees: legal $1,400-$1,400- 0.1%
Total$2,191,378100%

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2014 · Form 990 · $1,000,150 spent · pay $375,529 · grants $83,198 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)MEDICAL STUDY AND RESEA $362,490$362,490-- 36.2%
Other salaries and wages $322,377$322,377-- 32.2%
Grants to US organizations and governments $83,198$83,198-- 8.3%
Other (as described)OUTSIDE CONTRACT SERVIC $58,850$58,850-- 5.9%
Other (as described)POSTAGE, PRINTING AND S $44,190$44,190-- 4.4%
Payroll taxes $28,045$28,045-- 2.8%
Other employee benefits $25,107$25,107-- 2.5%
All other expenses $23,595$23,536$59- 2.4%
Fees: management $20,000-$20,000- 2.0%
Insurance $16,067$3,670$12,397- 1.6%
Other (as described)CONFERENCE REIMBURSEMEN $7,106$7,106-- 0.7%
Fees: legal $5,258-$5,258- 0.5%
Fees: accounting $2,632-$2,632- 0.3%
Fees: other services $1,235$1,235-- 0.1%
Total$1,000,150100%

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State business registration

The same business name in the same state, from the state’s official registry data.

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RecordName as filedWhereDatasetMatched by
Payment recipientEpilepsy Study ConsortiumVAOpen Payments (drug and device company payments)name and state
Payment recipientTHE EPILEPSY STUDY CONSORTIUMVAOpen Payments (drug and device company payments)name and state
Payment recipientTHE EPILEPSY STUDY CONSORTIUM INCVAOpen Payments (drug and device company payments)name and state

Matched by name (and state) or EIN only; a shared name is not proof of the same person or organization.

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