EPILEPSY FOUNDATION OF AMERICA: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- EPILEPSY FOUNDATION OF AMERICA (EIN 52-0856660)
- Tax period
- 2018-07-01 to 2019-06-30
- Filed
- 2019-11-14
- IRS object ID
- 201903189349304550
- Schema version
- 2018v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2019-11-14T10:46:19-06:00 | ReturnTs |
| Tax Period End | 2019-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521446779 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHNSON LAMBERT LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4242 SIX FORKS ROAD SUITE 1500 | AddressLine1Txt |
| City | RALEIGH | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27609 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 520856660 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY FOUNDATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | EPIL | BusinessNameControlTxt |
| Phone | 8003321000 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8301 PROFESSIONAL PLACE NO 200 | AddressLine1Txt |
| City | LANDOVER | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20785 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | PHILIP M GATTONE | PersonNm |
| Person Title | PRESIDENT AND CEO | PersonTitleTxt |
| Phone | 8003321000 | PhoneNum |
| Signature | 2019-11-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | J CALVIN MARKS | PreparerPersonNm |
| PTIN | P01226973 | PTIN |
| Phone | 9197196400 | PhoneNum |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 34.206.232.202 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2019-11-14 | IPDt |
| IP Tm | 10:46:14 | IPTm |
| IP Timezone | ES | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 9C238F1B6484ABD2E08FB3ED1A4A2692AD2A909B | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2020-04-17 16:48:07Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | PHILIP M GATTONE | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8301 PROFESSIONAL PLACE NO 200 | AddressLine1Txt |
| City | LANDOVER | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20785 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $23,601,579 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.EPILEPSY.COM | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1967 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | WE IMPROVE AND SAVE LIVES THROUGH COMMUNITY SERVICES, EDUCATION, ACCESS TO CARE, AND RESEARCH. | ActivityOrMissionDesc |
| Voting Members Governing Body | 22 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 21 | VotingMembersIndependentCnt |
| Total Employee | 125 | TotalEmployeeCnt |
| Total Volunteers | 100 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $10,988 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $22,945,371 | PYContributionsGrantsAmt |
| CY Contributions Grants | $19,683,958 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $935,979 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $1,655,104 | CYProgramServiceRevenueAmt |
| PY Investment Income | $293,310 | PYInvestmentIncomeAmt |
| CY Investment Income | $430,724 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$578,320 | PYOtherRevenueAmt |
| CY Other Revenue | -$1,259,700 | CYOtherRevenueAmt |
| PY Total Revenue | $23,596,340 | PYTotalRevenueAmt |
| CY Total Revenue | $20,510,086 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $912,179 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $3,006,866 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $7,360,734 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $10,223,690 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $205,895 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $255,300 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $2,404,418 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $8,832,070 | PYOtherExpensesAmt |
| CY Other Expenses | $9,983,281 | CYOtherExpensesAmt |
| PY Total Expenses | $17,310,878 | PYTotalExpensesAmt |
| CY Total Expenses | $23,469,137 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $6,285,462 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$2,959,051 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $21,501,992 | TotalAssetsBOYAmt |
| Total Assets EOY | $20,192,871 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,918,701 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $3,108,552 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $19,583,291 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $17,084,319 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $11,694,490 | ExpenseAmt |
| Grant | $1,196,459 | GrantAmt |
| Revenue | $461,030 | RevenueAmt |
| Desc | ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES AND COMMUNITIES - THE EPILEPSY FOUNDATION IS ON THE FRONT LINES HELPING ENSURE ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURES - AND THEIR FAMILIES AND COMMUNITIES - RECEIVE THE BEST POSSIBLE SERVICES AND CARE. WE DEVELOP NATIONWIDE PROGRAMS AVAILABLE THROUGH OUR NETWORK OF OVER 50 LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND INDEPENDENT ADULTS ON IMPROVING THEIR QUALITY OF LIFE. WE ALSO HAVE PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. OUR PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS, IMPROVE ACCESS TO HEALTH CARE, FOSTER BIOMEDICAL INNOVATION AND SAFEGUARD DISABILITY RIGHTS. THE FOUNDATION ALSO SUPPORTS PEOPLE WITH EPILEPSY THROUGH OUR INFORMATION AND REFERRAL LINE, AVAILABLE THROUGH AN 800 SERVICE AND ONLINE. THIS SERVICE PROVIDES RESOURCES AND INFORMATION 24/7/365. THE FOUNDATION'S GOAL IS TO ENSURE THAT ALL PEOPLE AFFECTED BY EPILEPSY AND SEIZURES HAVE IMMEDIATE ACCESS TO APPROPRIATE SERVICES AND CARE. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $4,285,620 | ExpenseAmt |
| Revenue | $311,735 | RevenueAmt |
| Desc | EDUCATION AND AWARENESS -THE EPILEPSY FOUNDATION LEADS THE FIGHT TO END EPILEPSY BY CREATING AWARENESS THROUGH NATIONAL MEDIA OUTREACH WITH TRADITIONAL & DIGITAL CHANNELS, INCLUDING EPILEPSY.COM AND ENDEPILEPSY.ORG. WE RAISE AWARENESS OF SEIZURE RECOGNITION AND FIRST AID, EMPHASIZING THE IMPORTANCE OF EARLY AND PROPER DIAGNOSIS, WHEN TO SEEK SPECIALTY CARE, AND PURSUIT OF WELLNESS AND BEST QUALITY OF LIFE. WE EDUCATE THROUGH ENGAGEMENT WITH MEDIA SOURCES, PARTNERSHIPS WITH PROFESSIONAL AND GOVERNMENT ORGANIZATIONS, AND THROUGH OUR DIRECT MAIL PROGRAM WHICH SERVES THE DUAL PURPOSE OF RAISING FUNDS FOR THE ORGANIZATION AND INCREASING AWARENESS OF OUR CAUSE. AS A RESULT, IN ACCORDANCE WITH THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) GUIDELINES, WE ALLOCATE A PORTION OF OUR DIRECT MAIL COSTS TO PROGRAM SERVICES. PUBLIC EDUCATIONAL PROGRAMS ARE ALSO DISSEMINATED THROUGH OUR LOCAL EPILEPSY FOUNDATIONS AROUND THE NATION, INCLUDING OUTREACH PROGRAMS TO SCHOOLS, EMPLOYERS, FIRST RESPONDERS AND OTHER FRONT-LINE COMMUNITY GROUPS WHO ENGAGE WITH PEOPLE LIVING WITH EPILEPSY. SPECIAL EDUCATIONAL PROGRAMS FOCUS ON PROFESSIONAL EDUCATION, ESPECIALLY AROUND IMPROVING DOCTOR/PATIENT COMMUNICATION ON THE CHALLENGES OF LIVING WITH EPILEPSY, INCLUDING AWARENESS, SAFETY, AND PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP). | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,475,029 | ExpenseAmt |
| Grant | $1,810,407 | GrantAmt |
| Revenue | $882,339 | RevenueAmt |
| Desc | RESEARCH, INNOVATION, AND NEW THERAPIES - BRINGING INNOVATIVE NEW THERAPIES IN A TIMEFRAME THAT MATTERS IS A DRIVING FORCE AND KEY STRATEGIC PRIORITY FOR THE FOUNDATION. THROUGH THE EPILEPSY THERAPY PROJECT, WE ACCELERATE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSY, AND ADDRESS GAPS IN THE RESEARCH, AND COMMERCIALIZATION CONTINUUM. THE FOUNDATION'S EPILEPSY LEARNING HEALTHCARE SYSTEM PILOT NETWORK DRIVES QUALITY IMPROVEMENT AND HEALTH SERVICES RESEARCH TO IMPROVE OUTCOMES FOR PEOPLE WITH EPILEPSY. OTHER KEY INITIATIVES INCLUDE RESEARCH TO ERADICATE SUDEP, EXPANDED PATIENT REGISTRIES FOR COMMON AND RARE FORMS OF EPILEPSY IN THE HUMAN EPILEPSY PROJECT AND THE RARE EPILEPSY NETWORK, SUPPORT FOR PROMISING AND MERITORIOUS RESEARCH GRANT AND FELLOWSHIP APPLICATIONS TO NEW INVESTIGATORS TO ATTRACT THE BEST AND THE BRIGHTEST TO EPILEPSY RESEARCH AND CLINICAL SERVICE, AND A CAMPAIGN TO SUPPORT THE EPILEPSY INNOVATION INSTITUTE (EI2), AN INNOVATION INCUBATOR SUPPORTING EARLY DEVELOPMENT PROJECTS TO FUNNEL NEW IDEAS INTO THE PIPELINE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $19,455,139 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | Yes (1) | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 71 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 125 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 22 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 21 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DIANE RUBINSTEIN | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3019183702 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8301 PROFESSIONAL PLACE NO 200 | AddressLine1Txt |
| City | LANDOVER | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20785 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (33 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|---|
| ROBERT W SMITH | |||||||||
| CHAIR | 1.00 | 0.10 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| BROOKE GORDON | |||||||||
| VICE CHAIR | 1.00 | 0.10 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| WARREN LAMMERT | |||||||||
| IMMEDIATE PAST CHAIR | 1.00 | 0.10 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| BRADLEY BOYER | |||||||||
| SECRETARY | 1.00 | 0.10 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| ROGER HELDMAN | |||||||||
| TREASURER | 1.00 | 0.10 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| STEVEN BAUM | |||||||||
| DIRECTOR (FROM SEP '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| MARK BORMAN | |||||||||
| DIRECTOR (FROM SEP '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| ALY CLIFT | |||||||||
| DIRECTOR (FROM DEC '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| TONY COELHO | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| STEPHANIE FOKAS | |||||||||
| DIRECTOR (FROM DEC '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| FRANK FISCHER | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| RICK HARRISON | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| CYNTHIA HUDSON | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| MAY J LIANG | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| DANIEL MOORE | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| JEFFREY PARENT | |||||||||
| DIRECTOR (FROM DEC '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| GEOFFREY POPE | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| STEVEN SCHACHTER | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| HOWARD R SOULE | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| ROBERT WECHSLER | |||||||||
| DIRECTOR (FROM DEC '18) | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| STEVE WULCHIN | |||||||||
| DIRECTOR | 1.00 | 0.10 | Yes (X) | $0 | $0 | $0 | |||
| PHILIP GATTONE | |||||||||
| PRESIDENT/CEO | 35.00 | 0.10 | Yes (X) | Yes (X) | $279,811 | $0 | $46,214 | ||
| ELLEN K HOBBY | |||||||||
| CHIEF OPERATING OFFICER/VP | 35.00 | 0.10 | Yes (X) | $196,434 | $0 | $23,281 | |||
| DIANE E RUBINSTEIN | |||||||||
| CHIEF FINANCIAL OFFICER | 35.00 | 0.10 | Yes (X) | $144,138 | $0 | $37,500 | |||
| BRANDY E FUREMAN | |||||||||
| VP RESEARCH | 35.00 | 0.10 | $192,060 | $0 | $42,592 | Yes (X) | |||
| STEVEN OWENS | |||||||||
| VP PROGRAMS | 35.00 | 0.10 | $158,959 | $0 | $20,765 | Yes (X) | |||
| SUSAN PIETSCH-ESCHUTA | |||||||||
| VP MARKETING (FROM JAN '18) | 35.00 | 0.10 | $156,465 | $0 | $11,667 | Yes (X) | |||
| KENNETH A LOWENBERG | |||||||||
| VP COMMUNICATIONS | 35.00 | 0.10 | $154,155 | $0 | $19,894 | Yes (X) | |||
| JONATHAN E SCHEINMAN | |||||||||
| SR DIRECTOR OF COMMUNITY D | 35.00 | 0.10 | $136,139 | $0 | $36,767 | Yes (X) | |||
| VICKI KOPPLIN | |||||||||
| CHAPTERS | 35.00 | 0.10 | $131,558 | $0 | $10,158 | Yes (X) | |||
| GAIL PUNDSACK | |||||||||
| VP FIELD OPERATIONS | 35.00 | 0.10 | $128,332 | $0 | $13,464 | Yes (X) | |||
| ALEXANDRA K FINUCANE | |||||||||
| SENIOR ADVISOR | 35.00 | 0.10 | $126,727 | $0 | $8,945 | Yes (X) | |||
| GEOFFREY HOYT | |||||||||
| DEVELOPMENT | 35.00 | 0.10 | $123,551 | $0 | $35,936 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,928,329 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $307,183 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 17 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| EPILEPSY STUDY CONSORTIUM | |||||
| 12030 SUNRISE VALLEY DR STE 450 | RESTON | VA | 20191 | SUBCONTRACTOR | $503,255 |
| MINDSHIFT | |||||
| 309 WAVERLEY OAKS RD | WALTHAM | MA | 02452 | IT SUPPORT | $286,483 |
| RESEARCH TRIANGLE INSTITUTE | |||||
| 3040 CORNWALLIS RD | RESEARCH TRIANGLE PARK | NC | 27709 | SUBCONTRACTOR | $285,799 |
| LITTLE GIDDING INC | |||||
| 4601 W SAHARA STE L | LAS VEGAS | NV | 89102 | FUNDRAISER AND AWARENESS SPOKESPERSON | $250,000 |
| LEADDOG MARKETING GROUP | |||||
| 440 9TH AVENUE 17TH FL | NEW YORK | NY | 10001 | MARKETING | $235,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 11 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $4,594,566 | FundraisingAmt |
| Government Grants | $3,837,368 | GovernmentGrantsAmt |
| All Other Contributions | $11,252,024 | AllOtherContributionsAmt |
| Noncash Contributions | $913,489 | NoncashContributionsAmt |
| Total Contributions | $19,683,958 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| PCORI CONTRACTS | 900099 | $882,339 | $882,339 |
| AFFILIATE FEES | 900099 | $461,030 | $461,030 |
Total Oth Program Service Rev TotalOthProgramServiceRevGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $311,735 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $311,735 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $1,655,104 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $262,896 | TotalRevenueColumnAmt |
| Exclusion | $262,896 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,411 | TotalRevenueColumnAmt |
| Exclusion | $8,411 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $997,086 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $829,258 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $167,828 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $167,828 | TotalRevenueColumnAmt |
| Exclusion | $167,828 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $282,498 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $4,594,566 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $1,647,759 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,365,261 | TotalRevenueColumnAmt |
| Exclusion | -$1,365,261 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $628,776 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $614,476 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $14,300 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $14,300 | RelatedOrExemptFuncIncomeAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $82,850 | TotalRevenueColumnAmt |
| Exclusion | $82,850 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $82,850 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $20,510,086 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,669,404 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$843,276 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,991,564 | TotalAmt |
| Program Services | $2,991,564 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,302 | TotalAmt |
| Program Services | $15,302 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,521,915 | TotalAmt |
| Program Services | $1,222,555 | ProgramServicesAmt |
| Management And General | $120,676 | ManagementAndGeneralAmt |
| Fundraising | $178,684 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,032,730 | TotalAmt |
| Program Services | $5,639,037 | ProgramServicesAmt |
| Management And General | $561,155 | ManagementAndGeneralAmt |
| Fundraising | $832,538 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $324,259 | TotalAmt |
| Program Services | $263,921 | ProgramServicesAmt |
| Management And General | $24,543 | ManagementAndGeneralAmt |
| Fundraising | $35,795 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $748,272 | TotalAmt |
| Program Services | $609,033 | ProgramServicesAmt |
| Management And General | $56,638 | ManagementAndGeneralAmt |
| Fundraising | $82,601 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $596,514 | TotalAmt |
| Program Services | $485,515 | ProgramServicesAmt |
| Management And General | $45,150 | ManagementAndGeneralAmt |
| Fundraising | $65,849 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $193,019 | TotalAmt |
| Program Services | $163,335 | ProgramServicesAmt |
| Management And General | $17,769 | ManagementAndGeneralAmt |
| Fundraising | $11,915 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $84,781 | TotalAmt |
| Management And General | $84,781 | ManagementAndGeneralAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $255,300 | TotalAmt |
| Fundraising | $255,300 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,813,149 | TotalAmt |
| Program Services | $3,514,509 | ProgramServicesAmt |
| Management And General | $297,551 | ManagementAndGeneralAmt |
| Fundraising | $1,089 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,601,183 | TotalAmt |
| Program Services | $1,116,326 | ProgramServicesAmt |
| Management And General | $57,608 | ManagementAndGeneralAmt |
| Fundraising | $427,249 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $653,503 | TotalAmt |
| Program Services | $455,614 | ProgramServicesAmt |
| Management And General | $23,512 | ManagementAndGeneralAmt |
| Fundraising | $174,377 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $790,947 | TotalAmt |
| Program Services | $646,841 | ProgramServicesAmt |
| Management And General | $47,024 | ManagementAndGeneralAmt |
| Fundraising | $97,082 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,708,408 | TotalAmt |
| Program Services | $1,502,700 | ProgramServicesAmt |
| Management And General | $42,617 | ManagementAndGeneralAmt |
| Fundraising | $163,091 | FundraisingAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $402,874 | TotalAmt |
| Program Services | $402,874 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $333,691 | TotalAmt |
| Program Services | $270,554 | ProgramServicesAmt |
| Management And General | $25,701 | ManagementAndGeneralAmt |
| Fundraising | $37,436 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $133,953 | TotalAmt |
| Program Services | $113,353 | ProgramServicesAmt |
| Management And General | $12,331 | ManagementAndGeneralAmt |
| Fundraising | $8,269 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DUES & SUBSCRIPTIONS | Desc |
| Total | $34,161 | TotalAmt |
| Program Services | $29,277 | ProgramServicesAmt |
| Management And General | $1,850 | ManagementAndGeneralAmt |
| Fundraising | $3,034 | FundraisingAmt |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $233,612 | TotalAmt |
| Program Services | $12,829 | ProgramServicesAmt |
| Management And General | $190,674 | ManagementAndGeneralAmt |
| Fundraising | $30,109 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,469,137 | TotalAmt |
| Program Services | $19,455,139 | ProgramServicesAmt |
| Management And General | $1,609,580 | ManagementAndGeneralAmt |
| Fundraising | $2,404,418 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,284,698 | TotalAmt |
| Program Services | $912,135 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $372,563 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,894,167 | BOYAmt |
| EOY | $2,640,200 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,209,876 | BOYAmt |
| EOY | $249,539 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,022,836 | BOYAmt |
| EOY | $2,434,908 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,182 | BOYAmt |
| EOY | $28,159 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $312,110 | BOYAmt |
| EOY | $228,709 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $5,910,176 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $5,114,555 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $682,545 | BOYAmt |
| EOY | $795,621 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,563,808 | BOYAmt |
| EOY | $7,607,661 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $253,155 | BOYAmt |
| EOY | $530,811 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,538,313 | BOYAmt |
| EOY | $5,677,263 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,501,992 | BOYAmt |
| EOY | $20,192,871 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,227,971 | BOYAmt |
| EOY | $1,936,125 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $590,318 | BOYAmt |
| EOY | $1,092,944 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,412 | BOYAmt |
| EOY | $79,483 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,918,701 | BOYAmt |
| EOY | $3,108,552 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,369,868 | BOYAmt |
| EOY | $6,064,300 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,213,423 | BOYAmt |
| EOY | $11,020,019 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,583,291 | BOYAmt |
| EOY | $17,084,319 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,501,992 | BOYAmt |
| EOY | $20,192,871 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$2,959,051 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $460,079 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $12,995,210 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $14,630,365 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $14,248,744 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $22,945,371 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $19,683,958 | CurrentTaxYearAmt |
| Total | $84,503,648 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $12,995,210 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $14,630,365 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $14,248,744 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $22,945,371 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $19,683,958 | CurrentTaxYearAmt |
| Total | $84,503,648 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $1,494,912 | SubstantialContributorsTotAmt |
| Public Support Total170 | $83,008,736 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $141,400 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $145,730 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $172,031 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $228,500 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $271,307 | CurrentTaxYearAmt |
| Total | $958,968 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $79,370 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $46,728 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $17,296 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $69,178 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $82,850 | CurrentTaxYearAmt |
| Total | $295,422 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $85,758,038 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $8,949,713 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.96790 | PublicSupportCY170Pct |
| Public Support PY170 | 0.95810 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $16,932 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $302,090 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $319,022 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $23,150,124 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $23,469,146 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $854,308 | CurrentYearMinus3Amt |
| Current Year Minus2 | $910,560 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $3,764,868 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $5,647,302 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $261,333 | CurrentYearMinus3Amt |
| Current Year Minus2 | $308,149 | CurrentYearMinus2Amt |
| Current Year Minus1 | $222,752 | CurrentYearMinus1Amt |
| Current Year | $319,022 | CurrentYearAmt |
| Total | $1,111,256 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $213,577 | CurrentYearMinus3Amt |
| Current Year Minus2 | $227,640 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $941,217 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,411,826 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $27,942 | CurrentYearMinus3Amt |
| Current Year Minus2 | $34,346 | CurrentYearMinus2Amt |
| Current Year Minus1 | $24,768 | CurrentYearMinus1Amt |
| Current Year | $16,932 | CurrentYearAmt |
| Total | $103,988 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,349,545 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $327,672 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $88,315 | OtherExpendituresAmt |
| End Year Balance | $6,588,902 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,472,825 | BeginningYearBalanceAmt |
| Contributions | $1,840,433 | ContributionsAmt |
| Investment Earnings Or Losses | $51,025 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $14,738 | OtherExpendituresAmt |
| End Year Balance | $6,349,545 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,290,756 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $280,461 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $98,392 | OtherExpendituresAmt |
| End Year Balance | $4,472,825 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,473,090 | BeginningYearBalanceAmt |
| Contributions | $67,914 | ContributionsAmt |
| Investment Earnings Or Losses | -$231,086 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $19,162 | OtherExpendituresAmt |
| End Year Balance | $4,290,756 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,584,406 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $38,059 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $149,375 | OtherExpendituresAmt |
| End Year Balance | $4,473,090 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $174,726 | OtherCostOrOtherBasisAmt |
| Depreciation | $170,233 | DepreciationAmt |
| Book Value | $4,493 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $5,735,450 | OtherCostOrOtherBasisAmt |
| Depreciation | $4,944,322 | DepreciationAmt |
| Book Value | $791,128 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $795,621 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (5 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| BENEFICIAL INTEREST IN PERPETUAL TRUSTS | $5,421,297 |
| DUE FROM AFFILIATES | $85,746 |
| BENEFICIAL INTEREST IN ASSETS HELD BY A COMMUNITY FOUNDATION | $33,114 |
| DEFERRED RENT | $136,106 |
| DEPOSITS | $1,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $5,677,263 | TotalBookValueOtherAssetsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $21,023,271 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $460,079 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $53,106 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $513,185 | RevenueNotReportedAmt |
| Revenue Subtotal | $20,510,086 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $20,510,086 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $23,522,243 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $53,106 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $53,106 | ExpensesNotReportedAmt |
| Expenses Subtotal | $23,469,137 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $23,469,137 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE ENDOWMENT FUNDS INCLUDE BOTH ENDOWMENT FUNDS AND PERPETUAL FUNDS HELD BY OUTSIDE INVESTMENT COMPANIES INCOME IS EITHER FOR THE UNRESTRICTED USE OF THE FOUNDATION OR RESEARCH. |
| PART X, LINE 2: | FOR THE YEARS ENDED JUNE 30, 2018 AND 2017, THE EPILEPSY FOUNDATION AND THE EPILEPSY RESEARCH FOUNDATION HAVE DOCUMENTED THEIR CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| RESOURCE ONE | ||||||||
| 2900 E APACHE STREET | TULSA | OK | 74110 | FUNDRAISING CONSULTANT | 0 | $1,224,629 | $121,500 | $1,103,129 |
| CREATIVE DIRECT RESPONSE INC | ||||||||
| 16900 SCIENCE DR | BOWIE | MD | 20715 | FUNDRAISING CONSULTANT | 0 | $652,834 | $133,800 | $519,034 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $1,877,463 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $255,300 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $1,622,163 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | WALK | Event1Nm |
| Gross Receipts Event1 | $2,018,810 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $2,018,810 | CharitableContriEvent1Amt |
| Food And Beverage Event1 | $13,755 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $797,197 | OtherDirectExpensesEvent1Amt |
| Event2 | CARE & CURE GALAS | Event2Nm |
| Gross Receipts Event2 | $1,261,006 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $1,123,906 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $137,100 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $50,456 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $222,618 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $173,232 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 7 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,597,248 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,451,850 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $145,398 | GrossRevenueOtherEventsAmt |
| Cash Prizes Other Events | $3,000 | CashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $13,677 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $125,457 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $2,638 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $245,729 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $4,877,064 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $4,594,566 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $282,498 | GrossRevenueTotalEventsAmt |
| Cash Prizes Total Events | $3,000 | CashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $64,133 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $361,830 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $2,638 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $1,216,158 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $1,647,759 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$1,365,261 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (13 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| MAYO CLINIC | |||||||
| 200 FIRST STREET SW | ROCHESTER | NY | 55905 | 416011702 | 501(C)(3) | $1,306,463 | SEIZURE GUAGE, NEW THERAPY GRANT |
| UCLA FOUNDATION | |||||||
| 10920 WILSHIRE BLVD | LOS ANGELES | CA | 90024 | 952250801 | 501(C)(3) | $800,000 | PEDIATRIC EPILEPSY FELLOWSHIP |
| CHILDREN'S HOSPITAL LOS ANGELES | |||||||
| 4650 SUNSET BLVD | LOS ANGELES | CA | 90027 | 951690977 | 501(C)(3) | $266,000 | PEDIATRIC FELLOW ENDOWMENT |
| THE CHILDREN'S HOSPITAL OF ORANGE COUNTY | |||||||
| 1201 W LA VETA AVE | ORANGE | CA | 92868 | 952321786 | 501(C)(3) | $87,500 | PEDIATRIC EPILEPSY FELLOWSHIP |
| UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION | |||||||
| PO BOX 931113 | CLEVELAND | OH | 44193 | 616033693 | 501(C)(3) | $150,000 | NEW THERAPY GRANT |
| EYSZ INC | |||||||
| 107 SANDRINGHAM RD | PIEDMONT | CA | 94611 | 830750947 | $150,000 | SHARK TANK AWARD | |
| CURADITE | |||||||
| 12725 SW MILLIKAN STE 200 | BEAVERTON | OR | 97005 | 814769273 | $50,000 | SHARK TANK AWARD | |
| AMERICAN EPILEPSY SOCIETY | |||||||
| 135 S LASALLE ST STE 2850 | CHICAGO | IL | 60603 | 046112600 | 501(C)(3) | $100,000 | RESEARCH GRANTS |
| AMERICAN BRAIN FOUNDATION | |||||||
| 1906 S SHERBOURNE DR | LOS ANGELES | CA | 90034 | 411717098 | 501(C)(3) | $24,908 | CLINICAL RESEARCH TRAINING FELLOWSHIP |
| CENTER FOR COURAGEOUS KIDS | |||||||
| 1501 BURNLEY RD | SCOTTSVILLE | KY | 42164 | 201789905 | 501(C)(3) | $10,000 | CAMP SCHOLARSHIP |
| BAYLOR COLLEGE OF MEDICINE | |||||||
| 1 BAYLOR PLZ | HOUSTON | TX | 77030 | 741613878 | 501(C)(3) | $10,000 | WORKSHOP SPONSORSHIP |
| CHILD NEUROLOGY FOUNDATION | |||||||
| 201 CHICAGO AVE STE 200 | MINNEAPOLIS | MN | 55415 | 411984675 | 501(C)(3) | $5,000 | CONFERENCE SPONSORSHIP |
| FAMILIESSCN2A FOUNDATION | |||||||
| PO BOX 82 | EAST LONGMEADOW | MA | 01028 | 473169795 | 501(C)(3) | $5,000 | CONFERENCE SPONSORSHIP |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 11 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (4 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| CONFERENCE GRANT STIPENDS | 8 | $1,316 |
| PENRY ASSISTANCE FUND | 18 | $3,678 |
| POND ASSISTANCE FUND | 53 | $10,059 |
| PATIENT ASSISTANCE FUND | 1 | $249 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PHILIP GATTONE | ||||||||||||||
| PRESIDENT/CEO | $269,811 | $0 | $10,000 | $0 | $0 | $0 | $19,593 | $0 | $26,621 | $0 | $326,025 | $0 | $0 | $0 |
| ELLEN K HOBBY | ||||||||||||||
| CHIEF OPERATING OFFICER/VP | $196,434 | $0 | $0 | $0 | $0 | $0 | $14,082 | $0 | $9,199 | $0 | $219,715 | $0 | $0 | $0 |
| DIANE E RUBINSTEIN | ||||||||||||||
| CHIEF FINANCIAL OFFICER | $144,138 | $0 | $0 | $0 | $0 | $0 | $10,605 | $0 | $26,895 | $0 | $181,638 | $0 | $0 | $0 |
| BRANDY E FUREMAN | ||||||||||||||
| VP RESEARCH | $192,060 | $0 | $0 | $0 | $0 | $0 | $14,139 | $0 | $28,453 | $0 | $234,652 | $0 | $0 | $0 |
| STEVEN OWENS | ||||||||||||||
| VP PROGRAMS | $158,959 | $0 | $0 | $0 | $0 | $0 | $11,312 | $0 | $9,453 | $0 | $179,724 | $0 | $0 | $0 |
| SUSAN PIETSCH-ESCHUTA | ||||||||||||||
| VP MARKETING (FROM JAN '18) | $156,465 | $0 | $0 | $0 | $0 | $0 | $10,656 | $0 | $1,011 | $0 | $168,132 | $0 | $0 | $0 |
| KENNETH A LOWENBERG | ||||||||||||||
| VP COMMUNICATIONS | $154,155 | $0 | $0 | $0 | $0 | $0 | $10,958 | $0 | $8,936 | $0 | $174,049 | $0 | $0 | $0 |
| JONATHAN E SCHEINMAN | ||||||||||||||
| SR DIRECTOR OF COMMUNITY D | $136,139 | $0 | $0 | $0 | $0 | $0 | $10,146 | $0 | $26,621 | $0 | $172,906 | $0 | $0 | $0 |
| GEOFFREY HOYT | ||||||||||||||
| DEVELOPMENT | $123,551 | $0 | $0 | $0 | $0 | $0 | $9,086 | $0 | $26,850 | $0 | $159,487 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Clothing And Household Goods ClothingAndHouseholdGoodsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Noncash Contributions Rpt F990 | $610,565 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 75 | ContributionCnt |
| Noncash Contributions Rpt F990 | $34,102 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 10 | ContributionCnt |
| Noncash Contributions Rpt F990 | $40,942 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Securities Miscellaneous SecuritiesMiscellaneousGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 2 | ContributionCnt |
| Noncash Contributions Rpt F990 | $227,880 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, COLUMN (B): | THE AMOUNTS IN COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS THE ORGANIZATION RECEIVED DURING THE YEAR. |
| PART I, LINE 32B: | A SEPARATE COMPANY COLLECTS AND SELLS CARS THAT ARE DONATED TO THE ORGANIZATION THIS ORGANIZATION THEN REMITS THE FUNDS RECEIVED FROM THE SALE OF THESE VEHICLES TO EFA. DONATED CLOTHING AND HOUSEHOLD ITEMS ARE PROCESSED THROUGH A THIRD PARTY WHICH REMITS THE FUNDS TO THE ORGANIZATION. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND AN ELECTRONIC COPY OF THE DRAFT FORM 990 WAS SENT TO ALL BOARD MEMBERS BEFORE FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE EPILEPSY FOUNDATION HAS A CONFLICT OF INTEREST POLICY AS PART OF ITS CODE OF ETHICS THAT IS SHARED WITH ALL VOLUNTEERS, BOARD, EMPLOYEES AND AFFILIATES. BOARD MEMBERS AND STAFF ANNUALLY COMPLETE A WRITIEN CONFLICT OF INTEREST DISCLOSURE STATEMENT, WHICH IS KEPT ON FILE AT FOUNDATION HEADQUARTERS. FOUNDATION POLICY REQUIRES ANYONE WITH A CONFLICT OF INTEREST TO REVEAL THE CONFLICT DURING ANY DISCUSSIONS, DECISIONS, OR ACTIONS THAT TAKE PLACE IN WHICH A CONFLICT MAY ARISE, AND TO RECUSE HIM OR HERSELF FROM THE DECISION MAKING OR ACTION TAKEN. THE EXECUTIVE COMMITIEE MAINTAINS AND REVIEWS THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS FROM BOARD MEMBERS. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE EPILEPSY FOUNDATION'S EXECUTIVE COMMITIEE SETS COMPENSATION FOR THE PRESIDENT & CEO OF THE FOUNDATION AND REVIEWS AND APPROVES ALL COMPENSATION FOR VICE PRESIDENTS (KEY EMPLOYEES). THE CEO IS HIRED AND COMPENSATION TERMS ARE SET BY CONTRACT WHICH HAS BEEN DEVELOPED BY THE EXECUTIVE COMMITTEE OF THE BOARD. THE EXECUTIVE COMMITIEE IS MADE UP OF EPILEPSY FOUNDATION OFFICERS AND BOARD MEMBERS, ALL WHO ARE VOLUNTEERS, AND INCLUDES THE CEO AS A NONVOTING MEMBER ONLY DURING THE PROCESS FOR CONTRACT DETERMINATION, THE CEO IS RECUSED FROM ALL MEETLNGS OF THE EXECUTIVE COMMITIEE THAT CONCERN HIS CONTRACT TERMS. THE CHAIR OF THE FOUNDATION NEGOTIATES THE TERMS OF THE CONTRACT WITH THE CEO UNDER THE DIRECTION AND WITH APPROVAL OF TERMS ESTABLISHED BY THE EXECUTIVE COMMITIEE OF THE BOARD. IN ORDER TO DETERMINE AN APPROPRIATE SALARY AND COMPENSATION, THE EXECUTIVE COMMITIEE REVIEWS COMPARABLE DATA FROM THE WASHINGTON, DC METRO AREA FOR THE CEO POSITION, AS WELL AS DATA FROM THE NATIONAL HEALTH COUNCIL ON COMPENSATION OF CEOS FOR COMPARABLY SIZED AND SIMILARLY SITUATED NONPROFIT ENTITIES. SOURCES REVIEWED AT LAST CONTRACT NEGOTIATION FOR THE CEO INCLUDED THE NATIONAL HEALTH COUNCIL SURVEY DATA, THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES SURVEY FOR THE WASHINGTON, DC METRO AREA, DATA FROM THE AMERICAN RESEARCH COMPANY'S GENERAL SURVEY, AND HEALTH AND DISEASE SEGMENT FOR ALL GEOGRAPHY, FOR THE DC METRO AREA. BASED UPON THIS DATA, A SALARY RANGE IS DERERMINED FOR THE CEO POSITION. MINUTES OF THE EXECUTIVE COMMITIEE DELIBERATIONS AND ACTION CONCERNING COMPENSATION ARE KEPT AT THE FOUNDATION'S HEADQUARTERS OFFICE. IN ADDITION, THE SIGNED CONTRACT SETIING SALARY AND COMPENSATION AND ALL TERMS OF EMPLOYMENT FOR CEO ARE MAINTAINED IN THE FOUNDATION'S HEADQUARTERS. RECORDS DOCUMENTATION OF THE DATA SOURCES, THE COMPARATIVE EVALUATIONS MADE, AND THE RESULTS OF THE EXECUTIVE COMMITIEE DELIBERATIONS, AND MINUTES OF MEETLNGS DURING EXECUTIVE SESSION ARE ALSO INCLUDED IN THESE FILES. ANNUAL REVIEW OF CEO PERFORMANCE IS DONE BY THE EXECUTIVE COMMITIEE IN EXECUTIVE SESSION (WITHOUT THE CEO BEING PRESENT), WITH A FORMAL WRITIEN REVIEW REQUIRED. THIS PERFORMANCE REVIEW SERVES AS THE BASIS FOR AN ANNUAL BONUS FOR THE CEO, IF ANY, WITHIN THE TERMS OF THE CEO CONTRACT. THE LAST COMPENSATION REVIEW TOOK PLACE IN DECEMBER 2016. THE CEO IS RESPONSIBLE FOR HIRING AND COMPENSATION OF ALL EMPLOYEES OF THE FOUNDATION, INCLUDING KEY EMPLOYEES (VICE PRESIDENTS). NO KEY EMPLOYEE OTHER THAN THE CEO PARTICIPATES IN THE EXECUTIVE COMMITIEES COMPENSATION REVIEW OF THE VICE PRESIDENTS (KEY EMPLOYEES) OF THE FOUNDATION, AND THE CEO IS ASKED TO RECUSE HIMSELF DURING THE EXECUTIVE SESSION MEETLNG. DOCUMENTATION OF THE MATERIALS REVIEWED AND DISCUSSION IS MAINTAINED BY CHAIR OF EXECUTIVE COMMITTEE. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE EPILEPSY FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FORM 990, PART IX, LINE 11G | CONSULTANTS: PROGRAM SERVICE EXPENSES 1,633,842. MANAGEMENT AND GENERAL EXPENSES 138,327. FUNDRAISING EXPENSES 506. TOTAL EXPENSES 1,772,675. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 1,880,667. MANAGEMENT AND GENERAL EXPENSES 159,224. FUNDRAISING EXPENSES 583. TOTAL EXPENSES 2,040,474. |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt |
|---|---|---|---|---|---|---|
| EPILEPSY FOUNDATION OF AMERICA (UTAH) LLC | ||||||
| 8301 PROFESSIONAL PLACE | LANDOVER | MD | 20785 | OVERCOME CHALLENGES CREATED BY EPIEPSY | DE | EPILEPSY FOUNDATION OF AMERICA |
| EPILEPSY FOUNDATION OF AMERICA (OKLAHOMA) LLC | ||||||
| 8301 PROFESSIONAL PLACE | LANDOVER | MD | 20785 | OVERCOME CHALLENGES CREATED BY EPIEPSY | DE | EPILEPSY FOUNDATION OF AMERICA |
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY RESEARCH FOUNDATION | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8301 PROFESSIONAL PLACE | AddressLine1Txt |
| City | LANDOVER | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20785 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 562369930 | EIN |
| Primary Activities | RESEARCH | PrimaryActivitiesTxt |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Exempt Code Section | 501(C)(3) | ExemptCodeSectionTxt |
| Public Charity Status | LINE 11, TYPE I | PublicCharityStatusTxt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY FOUNDATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Controlled Organization | 0 | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | 0 | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | 0 | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | 0 | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (1) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Comments