DYSAUTONOMIA FOUNDATION INC

2024 · Form 990 · revenue $1.6M · expenses $2.0M · assets $1.1M

Also known as

DBA FAMILIAL DYSAUTONOMIA FOUNDATION

EIN

13-6145280

Address

719 2ND AVE 505, NEW YORK, NY 10016-2707

Website

http://www.familialdysautonomia.org

NTEE code

G50Z

Exempt type

501(c)(3): charitable, religious, educational, scientific or literary (corporation)

Ruling date

October 1976 (when the IRS recognized its exemption)

IRS status

Exempt (unconditional) (IRS Business Master File) IRS data ↗

Tax-deductible donations

Yes: listed in IRS Publication 78 (covered by a group exemption) Pub 78 ↗

Foundation status

Public charity, 509(a)(2)

Cross-check

ProPublica Nonprofit Explorer

Mission

THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Officers and directors, no compensation reported

18 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

People by year

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

• DYSAUTONOMIA FOUNDATION GROUP RETURN New York, NY · 11 people in common (Allan Cohen, Edward Baranoff, Faye Ginsburg)

Funders of this organization

52 grantors reported grants to this organization, $2,154,154 in all, tax years 2009 to 2025; the 25 largest shown (all 52). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

Trademarks

1 US trademark, 0 live.

• Dysautonomia Foundation, Inc. 1 marks, NY EXACT high confidence: identical full name and state

The newest marks of the trademark owners above, matched to this record by name (and state).