DYSAUTONOMIA FOUNDATION INC: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
DYSAUTONOMIA FOUNDATION INC (EIN 13-6145280)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-10-31
IRS object ID
202303049349301625
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-10-31T09:08:02-07:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN464749070PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1EFFY STEIGMAN & CO CPAS PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1505 CROWN STAddressLine1Txt
CityBROOKLYNCityNm
State AbbreviationNYStateAbbreviationCd
ZIP112135126ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN136145280EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DYSAUTONOMIA FOUNDATION INCBusinessNameLine1Txt
Business Name Line2DBA FAMILIAL DYSAUTONOMIA FOUNDATIONBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlDYSABusinessNameControlTxt
Phone2122791066PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1315 W 39TH STREET 701AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10018ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonALLAN COHENPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2023-10-31SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstALLANPersonFirstNm
Person LastCOHENPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonEffy SteigmanPreparerPersonNm
PTINP00705400PTIN
Phone3475337210PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerALLAN COHENPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1315 W 39TH STREET 701AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10018ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,705,537GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttp://www.familialdysautonomia.org/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1954FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.ActivityOrMissionDesc
Voting Members Governing Body16VotingMembersGoverningBodyCnt
Voting Members Independent15VotingMembersIndependentCnt
Total Employee5TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,519,164PYContributionsGrantsAmt
CY Contributions Grants$638,170CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$8,963PYInvestmentIncomeAmt
CY Investment Income$20,987CYInvestmentIncomeAmt
PY Other Revenue$859,466PYOtherRevenueAmt
CY Other Revenue$918,360CYOtherRevenueAmt
PY Total Revenue$2,387,593PYTotalRevenueAmt
CY Total Revenue$1,577,517CYTotalRevenueAmt
PY Grants And Similar Paid$1,234,390PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,153,181CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$412,576PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$381,822CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$65,843CYTotalFundraisingExpenseAmt
PY Other Expenses$203,830PYOtherExpensesAmt
CY Other Expenses$295,053CYOtherExpensesAmt
PY Total Expenses$1,850,796PYTotalExpensesAmt
CY Total Expenses$1,830,056CYTotalExpensesAmt
PY Revenues Less Expenses$536,797PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$252,539CYRevenuesLessExpensesAmt
Total Assets BOY$2,301,553TotalAssetsBOYAmt
Total Assets EOY$2,168,499TotalAssetsEOYAmt
Total Liabilities BOY$8,595TotalLiabilitiesBOYAmt
Total Liabilities EOY$139,650TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,292,958NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,028,849NetAssetsOrFundBalancesEOYAmt
MissionTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,525,407ExpenseAmt
Revenue$1,577,517RevenueAmt
DescTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.Desc
Total Program Service Expenses$1,525,407TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document11IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee5EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members16GoverningBodyVotingMembersCnt
Independent Voting Member15IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLANIE ETKINDPersonNm
Phone2122791066PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1315 W 39TH STREETAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10018ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LANIE ETKIND
Executive Dir.40.000.00Yes (X)$235,000$0$46,357
FAYE GINSBURG
President5.000.00Yes (X)$0$0$0Yes (X)
ALLAN COHEN
Treasurer1.000.00Yes (X)$0$0$0Yes (X)
EDWARD BARANOFF
Vice President1.000.00Yes (X)$0$0$0Yes (X)
LAURENT LANDAU
Vice President1.000.00Yes (X)$0$0$0Yes (X)
JEFFREY GOLDBERGER
Vice President1.000.00Yes (X)$0$0$0Yes (X)
STEVEN KIETZ
Vice President1.000.00Yes (X)$0$0$0Yes (X)
LISA NEWMAN
Vice President1.000.00Yes (X)$0$0$0Yes (X)
PAUL B WEXLER
Vice President1.000.00Yes (X)$0$0$0Yes (X)
STEVEN S FASS
Secretary1.000.00Yes (X)$0$0$0Yes (X)
JENNIFER SONENSHEIN
Director1.000.00$0$0$0Yes (X)
HOWARD WEISER
Director1.000.00$0$0$0Yes (X)
GERALD ADLER
Director1.000.00$0$0$0Yes (X)
GREGG MEYERS
Director0.000.00$0$0$0Yes (X)
DANIEL LANDAU
Director0.000.00$0$0$0Yes (X)
BRIAN STILLMAN
Director0.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$235,000TotalReportableCompFromOrgAmt
Total Other Compensation$46,357TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$638,170AllOtherContributionsAmt
Total Contributions$638,170TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$20,987TotalRevenueColumnAmt
Related Or Exempt Func Income$20,987RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,073TotalRevenueColumnAmt
Related Or Exempt Func Income$5,073RelatedOrExemptFuncIncomeAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$1,041,307FundraisingGrossIncomeAmt
Fundraising Direct Expenses$128,020FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$913,287TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,577,517TotalRevenueColumnAmt
Related Or Exempt Func Income$26,060RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,153,181TotalAmt
Program Services$1,153,181ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$281,357TotalAmt
Program Services$180,068ProgramServicesAmt
Management And General$73,153ManagementAndGeneralAmt
Fundraising$28,136FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$94,919TotalAmt
Program Services$60,748ProgramServicesAmt
Management And General$24,679ManagementAndGeneralAmt
Fundraising$9,492FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$723TotalAmt
Program Services$463ProgramServicesAmt
Management And General$188ManagementAndGeneralAmt
Fundraising$72FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$606TotalAmt
Program Services$388ProgramServicesAmt
Management And General$158ManagementAndGeneralAmt
Fundraising$60FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$4,217TotalAmt
Program Services$2,699ProgramServicesAmt
Management And General$1,096ManagementAndGeneralAmt
Fundraising$422FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$718TotalAmt
Program Services$718ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$48,000TotalAmt
Management And General$48,000ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$36,308TotalAmt
Program Services$20,490ProgramServicesAmt
Management And General$13,308ManagementAndGeneralAmt
Fundraising$2,510FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$3,985TotalAmt
Program Services$381ProgramServicesAmt
Management And General$774ManagementAndGeneralAmt
Fundraising$2,830FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$23,093TotalAmt
Program Services$9,237ProgramServicesAmt
Management And General$11,547ManagementAndGeneralAmt
Fundraising$2,309FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$8,800TotalAmt
Program Services$3,520ProgramServicesAmt
Management And General$4,400ManagementAndGeneralAmt
Fundraising$880FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$37,923TotalAmt
Program Services$15,169ProgramServicesAmt
Management And General$18,962ManagementAndGeneralAmt
Fundraising$3,792FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,109TotalAmt
Program Services$833ProgramServicesAmt
Management And General$276ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$12,334TotalAmt
Program Services$1,978ProgramServicesAmt
Management And General$2,472ManagementAndGeneralAmt
Fundraising$7,884FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$7,972TotalAmt
Program Services$1,803ProgramServicesAmt
Management And General$5,718ManagementAndGeneralAmt
Fundraising$451FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Public Education$48,767$47,313$1,054$400
Printing and Publications$34,197$13,679$17,098$3,420
Processing Fees$27,035$10,813$13,518$2,704
Phone Expense$2,499$1,000$1,249$250

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$2,313TotalAmt
Program Services$926ProgramServicesAmt
Management And General$1,156ManagementAndGeneralAmt
Fundraising$231FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,830,056TotalAmt
Program Services$1,525,407ProgramServicesAmt
Management And General$238,806ManagementAndGeneralAmt
Fundraising$65,843FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$659,928BOYAmt
EOY$421,213EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$87,334EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$203,778LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$99,431LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$16,344BOYAmt
EOY$104,347EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,625,281BOYAmt
EOY$1,555,605EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,301,553BOYAmt
EOY$2,168,499EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
EOY$25,514EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$8,595BOYAmt
EOY$114,136EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$8,595BOYAmt
EOY$139,650EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,292,958BOYAmt
EOY$2,028,849EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,292,958BOYAmt
EOY$2,028,849EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,301,553BOYAmt
EOY$2,168,499EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$252,539ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$1,066NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments-$10,504PriorPeriodAdjustmentsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,822,921CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,325,488CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,493,689CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,410,674CurrentTaxYearMinus1YearAmt
Current Tax Year$638,170CurrentTaxYearAmt
Total$6,690,942TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,822,921CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,325,488CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,493,689CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,410,674CurrentTaxYearMinus1YearAmt
Current Tax Year$638,170CurrentTaxYearAmt
Total$6,690,942TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$6,690,942PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years-$36,733CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$125,225CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years-$87,537CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,468CurrentTaxYearMinus1YearAmt
Current Tax Year$5,073CurrentTaxYearAmt
Total$9,496TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$6,700,438TotalSupportAmt
Public Support CY1700.99860PublicSupportCY170Pct
Public Support PY1700.98160PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$4,300OtherCostOrOtherBasisAmt
Depreciation$3,798DepreciationAmt
Book Value$502BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$69,536OtherCostOrOtherBasisAmt
Depreciation$66,028DepreciationAmt
Book Value$3,508BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$129,942InvestmentCostOrOtherBasisAmt
Depreciation$29,605DepreciationAmt
Book Value$100,337BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$104,347TotalBookValueLandBuildingsAmt
Total Book Value Other Assets$1,555,605TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CREDIT CARD$13,133
OPERATING LEASE LIABILITY$101,003
FieldValueIRS element (for citing)
Total Liability$114,136TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,579,421TotalRevEtcAuditedFinclStmtAmt
Other Revenue$22,891OtherRevenueAmt
Revenue Not Reported$22,891RevenueNotReportedAmt
Revenue Subtotal$1,556,530RevenueSubtotalAmt
Other Revenues Not Included$20,987OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$20,987RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,577,517TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,852,947TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$22,891OtherExpensesIncludedAmt
Expenses Not Reported$22,891ExpensesNotReportedAmt
Expenses Subtotal$1,830,056ExpensesSubtotalAmt
Total Expenses Per Form990$1,830,056TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part X : FIN48 FootnoteTax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2021, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses.
Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990RETENTION CREDIT $22891
Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/SInvestment Income $20987
Part XII, Line 2d: Other expenses and losses per audited F/SPAYROLL RETENTION CREDIT $22891

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GOLDBERGER EVENTEvent1Nm
Gross Receipts Event1$426,757GrossReceiptsEvent1Amt
Gross Revenue Event1$426,757GrossRevenueEvent1Amt
Other Direct Expenses Event1$13,358OtherDirectExpensesEvent1Amt
Event2NEW YORK GOLFEvent2Nm
Gross Receipts Event2$282,472GrossReceiptsEvent2Amt
Gross Revenue Event2$282,472GrossRevenueEvent2Amt
Other Direct Expenses Event2$106,441OtherDirectExpensesEvent2Amt
Other Events Total5OtherEventsTotalCnt
Gross Receipts Other Events$332,078GrossReceiptsOtherEventsAmt
Gross Revenue Other Events$332,078GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$8,221OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,041,307GrossReceiptsTotalAmt
Gross Revenue Total Events$1,041,307GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$128,020OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$128,020DirectExpenseSummaryEventsAmt
Net Income Summary$913,287NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
AUTONOMIC RESEARCH LLC
1 WEST 64 STREET 2BNEW YORKNY10029273204023$90,748$0RESEARCH & TREATMENT
Montana State University
100 Culbertson HallBozemanMT59717816010045$57,863$0RESEARCH & TREATMENT
NYU SCHOOL OF MEDICINE
550 FIRST AVENUENEW YORKNY10016135562308$998,570$0RESEARCH & TREATMENT
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org2TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonLANIE ETKINDPersonNm
TitleExecutive Dir.TitleTxt
Base Compensation Filing Org$235,000BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org$46,357NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org$281,357TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bTHE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS.
Form 990, Part VI, Section B, Line 12cALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT.
Form 990, Part VI, Section B, Line 15aCOMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS.
Form 990, Part VI, Section C, Line 19GOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.
FORM 990, PART XII, LINE 1 - CHANGE IN ACCOUNTING METHODCHANGED TO ACCRUAL BASIS AS PER NYS REPORTING REQUIREMENTS ON FINANCIAL STATEMENTS.

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