DYSAUTONOMIA FOUNDATION INC: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
DYSAUTONOMIA FOUNDATION INC (EIN 13-6145280)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-10-22
IRS object ID
201812959349301006
Schema version
2017v2.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-10-22T11:59:12-07:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN464749070PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Effy Steigman CPA LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1505 Crown StAddressLine1Txt
CityBROOKLYNCityNm
State AbbreviationNYStateAbbreviationCd
ZIP112135126ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN136145280EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DYSAUTONOMIA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlDYSABusinessNameControlTxt
Phone2122791066PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1315 W 39TH STREETAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10018ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonALLAN COHENPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2018-10-22SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonEffy SteigmanPreparerPersonNm
PTINP00705400PTIN
Phone3475337210PhoneNum
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2018-06-14 16:35:46ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Gross Receipts$2,203,119GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
All Affiliates IncludedfalseAllAffiliatesIncludedInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttp://www.familialdysautonomia.org/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1954FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent0VotingMembersIndependentCnt
Total Employee4TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,603,684PYContributionsGrantsAmt
CY Contributions Grants$401,813CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$44,055PYInvestmentIncomeAmt
CY Investment Income$136,184CYInvestmentIncomeAmt
PY Other Revenue$72,183PYOtherRevenueAmt
CY Other Revenue$1,175,287CYOtherRevenueAmt
PY Total Revenue$1,719,922PYTotalRevenueAmt
CY Total Revenue$1,713,284CYTotalRevenueAmt
PY Grants And Similar Paid$1,043,955PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,801,929CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$378,933PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$341,644CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$45,573CYTotalFundraisingExpenseAmt
PY Other Expenses$203,789PYOtherExpensesAmt
CY Other Expenses$283,813CYOtherExpensesAmt
PY Total Expenses$1,626,677PYTotalExpensesAmt
CY Total Expenses$2,427,386CYTotalExpensesAmt
PY Revenues Less Expenses$93,245PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$714,102CYRevenuesLessExpensesAmt
Total Assets BOY$2,791,154TotalAssetsBOYAmt
Total Assets EOY$2,077,052TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,791,154NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,077,052NetAssetsOrFundBalancesEOYAmt
MissionTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$2,173,254ExpenseAmt
Grant$1,801,929GrantAmt
Revenue$1,713,284RevenueAmt
DescTHE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).Desc
Total Program Service Expenses$2,173,254TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Escrow AccountfalseEscrowAccountInd
On Behalf Of IssuerfalseOnBehalfOfIssuerInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document27IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee4EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member0IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLANIE ETKINDPersonNm
Phone2122791066PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1315 W 39TH STREETAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10018ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
FAYE GINSBURG
President5.000.00Yes (X)Yes (X)$0$0$0
ALLAN COHEN
Treasurer1.000.00Yes (X)Yes (X)$0$0$0
EDWARD BARANOFF
Vice President1.000.00Yes (X)Yes (X)$0$0$0
LAURENT LANDAU
Vice President1.000.00Yes (X)Yes (X)$0$0$0
JEFFREY GOLDBERGER
Vice President1.000.00Yes (X)Yes (X)$0$0$0
STEVEN KIETZ
Vice President1.000.00Yes (X)Yes (X)$0$0$0
LISA NEWMAN
Vice President1.000.00Yes (X)Yes (X)$0$0$0
PAUL B WEXLER
Vice President1.000.00Yes (X)Yes (X)$0$0$0
STEVEN S FASS
Secretary1.000.00Yes (X)Yes (X)$0$0$0
JENNIFER SONENSHEIN
Director1.000.00Yes (X)$0$0$0
HOWARD WEISER
Director1.000.00Yes (X)$0$0$0
DAVID STEINER
Director1.000.00Yes (X)$0$0$0
GERALD ADLER
Director1.000.00Yes (X)$0$0$0
BARBARA WALDFOGEL
Director1.000.00Yes (X)$0$0$0
LANIE ETKIND
Executive Dir.40.000.00Yes (X)$32,614$0$7,466
PAUL SCHACK
EXECUTIVE DIRECTOR40.000.00$170,831$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$203,445TotalReportableCompFromOrgAmt
Total Other Compensation$7,466TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedYes (true)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$401,813AllOtherContributionsAmt
Noncash Contributions$69,229NoncashContributionsAmt
Total Contributions$401,813TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$136,184TotalRevenueColumnAmt
Related Or Exempt Func Income$136,184RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$130,797TotalRevenueColumnAmt
Related Or Exempt Func Income$130,797RelatedOrExemptFuncIncomeAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$1,534,325FundraisingGrossIncomeAmt
Fundraising Direct Expenses$489,835FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,044,490TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,713,284TotalRevenueColumnAmt
Related Or Exempt Func Income$266,981RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,701,929TotalAmt
Program Services$1,701,929ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$100,000TotalAmt
Program Services$100,000ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$210,911TotalAmt
Program Services$134,983ProgramServicesAmt
Management And General$54,837ManagementAndGeneralAmt
Fundraising$21,091FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$104,022TotalAmt
Program Services$66,574ProgramServicesAmt
Management And General$27,046ManagementAndGeneralAmt
Fundraising$10,402FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$7,062TotalAmt
Program Services$4,520ProgramServicesAmt
Management And General$1,836ManagementAndGeneralAmt
Fundraising$706FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$19,649TotalAmt
Program Services$12,576ProgramServicesAmt
Management And General$5,108ManagementAndGeneralAmt
Fundraising$1,965FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$93,337TotalAmt
Program Services$28,240ProgramServicesAmt
Management And General$64,801ManagementAndGeneralAmt
Fundraising$296FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$1,609TotalAmt
Program Services$1,030ProgramServicesAmt
Management And General$418ManagementAndGeneralAmt
Fundraising$161FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$38,756TotalAmt
Program Services$13,978ProgramServicesAmt
Management And General$21,284ManagementAndGeneralAmt
Fundraising$3,494FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$31,269TotalAmt
Program Services$21,276ProgramServicesAmt
Management And General$7,217ManagementAndGeneralAmt
Fundraising$2,776FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$3,239TotalAmt
Program Services$493ProgramServicesAmt
Management And General$2,746ManagementAndGeneralAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$3,000TotalAmt
Program Services$3,000ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$2,432TotalAmt
Program Services$973ProgramServicesAmt
Management And General$1,216ManagementAndGeneralAmt
Fundraising$243FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$8,680TotalAmt
Program Services$3,472ProgramServicesAmt
Management And General$4,340ManagementAndGeneralAmt
Fundraising$868FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Public Education$49,303$49,303
Bank Charges$33,330$13,333$16,664$3,333
Social Services$16,486$16,486
Postage and Shipping$1,787$714$894$179

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$585TotalAmt
Program Services$374ProgramServicesAmt
Management And General$152ManagementAndGeneralAmt
Fundraising$59FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,427,386TotalAmt
Program Services$2,173,254ProgramServicesAmt
Management And General$208,559ManagementAndGeneralAmt
Fundraising$45,573FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$851,789BOYAmt
EOY$1,130,013EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$57,269LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$2,432LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$54,837EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,939,365BOYAmt
EOY$892,202EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,791,154BOYAmt
EOY$2,077,052EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,791,154BOYAmt
EOY$2,077,052EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,791,154BOYAmt
EOY$2,077,052EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,791,154BOYAmt
EOY$2,077,052EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$714,102ReconcilationRevenueExpnssAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,417,112CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,915,663CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,345,947CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,603,684CurrentTaxYearMinus1YearAmt
Current Tax Year$1,446,523CurrentTaxYearAmt
Total$7,728,929TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$140,074CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$392,261CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$145,693CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$125,160CurrentTaxYearMinus1YearAmt
Current Tax Year$130,577CurrentTaxYearAmt
Total$933,765TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,557,186CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,307,924CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,491,640CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,728,844CurrentTaxYearMinus1YearAmt
Current Tax Year$1,577,100CurrentTaxYearAmt
Total$8,662,694TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$8,662,694PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$71,421CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$113,165CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$70,152CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$113,404CurrentTaxYearMinus1YearAmt
Current Tax Year$136,184CurrentTaxYearAmt
Total$504,326TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$71,421CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$113,165CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$70,152CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$113,404CurrentTaxYearMinus1YearAmt
Current Tax Year$136,184CurrentTaxYearAmt
Total$504,326TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,628,607CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,421,089CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,561,792CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,842,248CurrentTaxYearMinus1YearAmt
Current Tax Year$1,713,284CurrentTaxYearAmt
Total$9,167,020TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.94500PublicSupportCY509Pct
Investment Income CY0.05500InvestmentIncomeCYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$57,269OtherCostOrOtherBasisAmt
Depreciation$2,432DepreciationAmt
Book Value$54,837BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$54,837TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescRoundingDesc
Book Value$1BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$892,202TotalBookValueOtherAssetsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,713,284TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$1,713,284RevenueSubtotalAmt
Total Revenue Per Form990$1,713,284TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,427,386TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,427,386ExpensesSubtotalAmt
Total Expenses Per Form990$2,427,386TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationTax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2017, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionISRAELRegionTxt
Offices0OfficesCnt
Employee0EmployeeCnt
Type Of Activities ConductedGRANTSTypeOfActivitiesConductedTxt
Specific Services ProvidedRESEARCH & TREATMENTSpecificServicesProvidedTxt
Region Total Expenditures$100,000RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Spent$100,000SubtotalSpentAmt
Total Spent$100,000TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionISRAELRegionTxt
Purpose Of GrantRESEARCH & TREATMENPurposeOfGrantTxt
Cash Grant$100,000CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside USFormAndLineReferenceDesc
ExplanationThe board receives reports from the grantee how the funds are spentExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GOLDBERG CONCERTEvent1Nm
Gross Receipts Event1$972,360GrossReceiptsEvent1Amt
Gross Revenue Event1$972,360GrossRevenueEvent1Amt
Other Direct Expenses Event1$342,371OtherDirectExpensesEvent1Amt
Event2NEW YORK GOLFEvent2Nm
Gross Receipts Event2$282,765GrossReceiptsEvent2Amt
Gross Revenue Event2$282,765GrossRevenueEvent2Amt
Other Direct Expenses Event2$88,509OtherDirectExpensesEvent2Amt
Other Events Total2OtherEventsTotalCnt
Gross Receipts Other Events$279,200GrossReceiptsOtherEventsAmt
Gross Revenue Other Events$279,200GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$58,955OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,534,325GrossReceiptsTotalAmt
Gross Revenue Total Events$1,534,325GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$489,835OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$489,835DirectExpenseSummaryEventsAmt
Net Income Summary$1,044,490NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
EMORY UNIVERSITY
3585 ATLANTA AVENUEHAPEVILLEGA30354580566256$10,430$0RESEARCH & TREATMENT
MASSACHUSETT GENERAL HOSPITAL
55 FRUIT STREETBOSTONMA02114042697983$51,440$0RESEARCH & TREATMENT
MONTANA STATE UNIVERSITY
211 Montana HallBOZEMANMT59717816010045$20,076$0RESEARCH & TREATMENT
NYU SCHOOL OF MEDICINE
550 FIRST AVENUENEW YORKNY10016135562308$1,539,470$0RESEARCH & TREATMENT
UNIVERSITY OF TENESSEE
594 UNION AVE ROOM 502MEMPHISTN38153626001636$37,500$0RESEARCH & TREATMENT
VISIO-D CONSULTANTS LLC
9446 SW 123 CTMIAMIFL33186464839663$43,013$0RESEARCH & TREATMENT
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd
Rebuttable Presumption ProcfalseRebuttablePresumptionProcInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonPAUL SCHACKPersonNm
TitleEXECUTIVE DIRECTORTitleTxt
Base Compensation Filing Org$100,000BaseCompensationFilingOrgAmt
Other Compensation Filing Org$70,831OtherCompensationFilingOrgAmt
Total Compensation Filing Org$170,831TotalCompensationFilingOrgAmt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$69,229NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Line 11b: Form 990 Review ProcessTHE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementCOMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableGOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.

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