2018-10-22T11:59:12-07:00 2017-12-31 464749070 Effy Steigman CPA LLC 505 Crown St BROOKLYN NY 112135126 990 2017-01-01 136145280 DYSAUTONOMIA FOUNDATION DYSA 2122791066 315 W 39TH STREET NEW YORK NY 10018 ALLAN COHEN Treasurer 2018-10-22 true Effy Steigman P00705400 3475337210 2017 2018-06-14 16:35:46Z 2203119 false false X http://www.familialdysautonomia.org/ X 1954 NY THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD). 15 0 4 0 1603684 401813 0 44055 136184 72183 1175287 1719922 1713284 1043955 1801929 0 378933 341644 0 45573 203789 283813 1626677 2427386 93245 -714102 2791154 2077052 0 2791154 2077052 THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD). false false 2173254 1801929 1713284 THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD). 2173254 true true false false false false false false false false true false false true false true true false false false true true false false true false false true false true false false false false false false false false false false false true false false false false false false false false true 27 0 true 4 true false false false false false false false false 0 false false false false false false false false false false X 15 0 false false false false false false false true true false true true true true true true true true true false false X X LANIE ETKIND 2122791066 315 W 39TH STREET NEW YORK NY 10018 FAYE GINSBURG President 5.00 0.00 X X 0 0 0 ALLAN COHEN Treasurer 1.00 0.00 X X 0 0 0 EDWARD BARANOFF Vice President 1.00 0.00 X X 0 0 0 LAURENT LANDAU Vice President 1.00 0.00 X X 0 0 0 JEFFREY GOLDBERGER Vice President 1.00 0.00 X X 0 0 0 STEVEN KIETZ Vice President 1.00 0.00 X X 0 0 0 LISA NEWMAN Vice President 1.00 0.00 X X 0 0 0 PAUL B WEXLER Vice President 1.00 0.00 X X 0 0 0 STEVEN S FASS Secretary 1.00 0.00 X X 0 0 0 JENNIFER SONENSHEIN Director 1.00 0.00 X 0 0 0 HOWARD WEISER Director 1.00 0.00 X 0 0 0 DAVID STEINER Director 1.00 0.00 X 0 0 0 GERALD ADLER Director 1.00 0.00 X 0 0 0 BARBARA WALDFOGEL Director 1.00 0.00 X 0 0 0 LANIE ETKIND Executive Dir. 40.00 0.00 X 32614 0 7466 PAUL SCHACK EXECUTIVE DIRECTOR 40.00 0.00 X 170831 0 0 203445 7466 1 true true false 0 401813 69229 401813 0 136184 136184 0 130797 130797 0 0 1534325 489835 1044490 0 0 0 1713284 266981 1701929 1701929 0 100000 100000 0 210911 134983 54837 21091 0 104022 66574 27046 10402 0 7062 4520 1836 706 19649 12576 5108 1965 0 0 0 0 0 0 93337 28240 64801 296 1609 1030 418 161 38756 13978 21284 3494 0 0 31269 21276 7217 2776 3239 493 2746 0 3000 3000 0 0 2432 973 1216 243 8680 3472 4340 868 Public Education 49303 49303 Bank Charges 33330 13333 16664 3333 Social Services 16486 16486 Postage and Shipping 1787 714 894 179 585 374 152 59 2427386 2173254 208559 45573 851789 1130013 0 0 0 0 0 0 0 0 57269 2432 54837 0 0 0 0 1939365 892202 2791154 2077052 0 0 X 2791154 2077052 2791154 2077052 2791154 2077052 -714102 X false true X true false X 1417112 1915663 1345947 1603684 1446523 7728929 140074 392261 145693 125160 130577 933765 0 0 0 1557186 2307924 1491640 1728844 1577100 8662694 0 0 8662694 71421 113165 70152 113404 136184 504326 0 71421 113165 70152 113404 136184 504326 0 0 1628607 2421089 1561792 1842248 1713284 9167020 0.94500 0.05500 X 57269 2432 54837 54837 Rounding 1 892202 X 1713284 1713284 1713284 2427386 2427386 2427386 Part X : FIN48 Footnote Tax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2017, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses. true ISRAEL 0 0 GRANTS RESEARCH & TREATMENT 100000 100000 100000 ISRAEL RESEARCH & TREATMEN 100000 CHECK 1 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US The board receives reports from the grantee how the funds are spent false GOLDBERG CONCERT 972360 972360 342371 NEW YORK GOLF 282765 282765 88509 2 279200 279200 58955 1534325 1534325 489835 489835 1044490 false EMORY UNIVERSITY 3585 ATLANTA AVENUE HAPEVILLE GA 30354 580566256 10430 0 RESEARCH & TREATMENT MASSACHUSETT GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 042697983 51440 0 RESEARCH & TREATMENT MONTANA STATE UNIVERSITY 211 Montana Hall BOZEMAN MT 59717 816010045 20076 0 RESEARCH & TREATMENT NYU SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 135562308 1539470 0 RESEARCH & TREATMENT UNIVERSITY OF TENESSEE 594 UNION AVE ROOM 502 MEMPHIS TN 38153 626001636 37500 0 RESEARCH & TREATMENT VISIO-D CONSULTANTS LLC 9446 SW 123 CT MIAMI FL 33186 464839663 43013 0 RESEARCH & TREATMENT 5 1 false false false false false false false false false false PAUL SCHACK EXECUTIVE DIRECTOR 100000 70831 170831 X 1 69229 FMV false false false Form 990, Part VI, Line 11b: Form 990 Review Process THE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts ALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management COMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available GOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.