DYSAUTONOMIA FOUNDATION INC: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization: DYSAUTONOMIA FOUNDATION INC (EIN 13-6145280)
Tax period: 2021-01-01 to 2021-12-31
Filed: 2022-10-25
IRS object ID: 202212989349301766
Schema version: 2021v4.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2022-10-25T13:11:31-07:00	ReturnTs
Tax Period End	2021-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	464749070	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	EFFY STEIGMAN & CO CPAS PC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	505 CROWN ST	AddressLine1Txt
City	BROOKLYN	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	112135126	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2021-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	136145280	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DYSAUTONOMIA FOUNDATION INC	BusinessNameLine1Txt
Business Name Line2	DBA FAMILIAL DYSAUTONOMIA FOUNDATION	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	DYSA	BusinessNameControlTxt
Phone	2122791066	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET 701	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ALLAN COHEN	PersonNm
Person Title	Treasurer	PersonTitleTxt
Signature	2022-10-25	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	ALLAN	PersonFirstNm
Person Last	COHEN	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	Effy Steigman	PreparerPersonNm
PTIN	P00705400	PTIN
Phone	3475337210	PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd
Federated Assurance Level	FAL1	FederatedAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2021	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ALLAN COHEN	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET 701	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$2,497,364	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	http://www.familialdysautonomia.org/	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1954	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	ActivityOrMissionDesc
Voting Members Governing Body	16	VotingMembersGoverningBodyCnt
Voting Members Independent	15	VotingMembersIndependentCnt
Total Employee	5	TotalEmployeeCnt
Total Gross UBI	$0	TotalGrossUBIAmt
PY Contributions Grants	$1,042,273	PYContributionsGrantsAmt
CY Contributions Grants	$1,519,164	CYContributionsGrantsAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$6,514	PYInvestmentIncomeAmt
CY Investment Income	$8,963	CYInvestmentIncomeAmt
PY Other Revenue	$764,645	PYOtherRevenueAmt
CY Other Revenue	$859,466	CYOtherRevenueAmt
PY Total Revenue	$1,813,432	PYTotalRevenueAmt
CY Total Revenue	$2,387,593	CYTotalRevenueAmt
PY Grants And Similar Paid	$1,194,451	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$1,234,390	CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$365,248	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$412,576	CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$62,895	CYTotalFundraisingExpenseAmt
PY Other Expenses	$266,777	PYOtherExpensesAmt
CY Other Expenses	$203,830	CYOtherExpensesAmt
PY Total Expenses	$1,826,476	PYTotalExpensesAmt
CY Total Expenses	$1,850,796	CYTotalExpensesAmt
PY Revenues Less Expenses	-$13,044	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$536,797	CYRevenuesLessExpensesAmt
Total Assets BOY	$1,809,411	TotalAssetsBOYAmt
Total Assets EOY	$2,301,553	TotalAssetsEOYAmt
Total Liabilities BOY	$55,785	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$8,595	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$1,753,626	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$2,292,958	NetAssetsOrFundBalancesEOYAmt
Mission	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$1,596,459	ExpenseAmt
Grant	$1,234,390	GrantAmt
Revenue	$1,813,432	RevenueAmt
Desc	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	Desc
Total Program Service Expenses	$1,596,459	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	false	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Donor Rstr Or Quasi Endowments	false	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	false	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	Yes (true)	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (true)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	false	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	false	ForeignActivitiesInd
More Than5000 K To Org	false	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	false	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	false	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	false	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	false	RelatedEntityInd
Related Organization Ctrl Ent	false	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	11	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	5	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Form8282 Filed	0	Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Form8899 Filedind	false	Form8899Filedind
Form1098 C Filed	false	Form1098CFiledInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	false	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	false	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	16	GoverningBodyVotingMembersCnt
Independent Voting Member	15	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	false	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	false	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	LANIE ETKIND	PersonNm
Phone	2122791066	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LANIE ETKIND
Executive Dir.	40.00	0.00	Yes (X)	$218,077	$0	$44,578
FAYE GINSBURG
President	5.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
ALLAN COHEN
Treasurer	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
EDWARD BARANOFF
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
LAURENT LANDAU
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JEFFREY GOLDBERGER
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
STEVEN KIETZ
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
LISA NEWMAN
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
PAUL B WEXLER
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
STEVEN S FASS
Secretary	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JENNIFER SONENSHEIN
Director	1.00	0.00		$0	$0	$0	Yes (X)
HOWARD WEISER
Director	1.00	0.00		$0	$0	$0	Yes (X)
GERALD ADLER
Director	1.00	0.00		$0	$0	$0	Yes (X)
GREGG MEYERS
Director	0.00	0.00		$0	$0	$0	Yes (X)
DANIEL LANDAU
Director	0.00	0.00		$0	$0	$0	Yes (X)
BRIAN STILLMAN
Director	0.00	0.00		$0	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$218,077	TotalReportableCompFromOrgAmt
Total Other Compensation	$44,578	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	1	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
Government Grants	$108,490	GovernmentGrantsAmt
All Other Contributions	$1,410,674	AllOtherContributionsAmt
Total Contributions	$1,519,164	TotalContributionsAmt
Total Program Service Revenue	$0	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$8,963	TotalRevenueColumnAmt
Related Or Exempt Func Income	$8,963	RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,468	TotalRevenueColumnAmt
Related Or Exempt Func Income	$3,468	RelatedOrExemptFuncIncomeAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$965,769	FundraisingGrossIncomeAmt
Fundraising Direct Expenses	$109,771	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$855,998	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$0	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,387,593	TotalRevenueColumnAmt
Related Or Exempt Func Income	$12,431	RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$1,234,390	TotalAmt
Program Services	$1,234,390	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$262,655	TotalAmt
Program Services	$168,099	ProgramServicesAmt
Management And General	$68,290	ManagementAndGeneralAmt
Fundraising	$26,266	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$123,906	TotalAmt
Program Services	$79,300	ProgramServicesAmt
Management And General	$32,216	ManagementAndGeneralAmt
Fundraising	$12,390	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$4,250	TotalAmt
Program Services	$2,720	ProgramServicesAmt
Management And General	$1,105	ManagementAndGeneralAmt
Fundraising	$425	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$15,069	TotalAmt
Program Services	$9,644	ProgramServicesAmt
Management And General	$3,918	ManagementAndGeneralAmt
Fundraising	$1,507	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$6,696	TotalAmt
Program Services	$4,285	ProgramServicesAmt
Management And General	$1,741	ManagementAndGeneralAmt
Fundraising	$670	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$6,379	TotalAmt
Program Services	$6,379	ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$20,121	TotalAmt
Management And General	$20,121	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$23,572	TotalAmt
Program Services	$14,694	ProgramServicesAmt
Management And General	$7,397	ManagementAndGeneralAmt
Fundraising	$1,481	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$1,065	TotalAmt
Program Services	$426	ProgramServicesAmt
Management And General	$533	ManagementAndGeneralAmt
Fundraising	$106	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$17,929	TotalAmt
Program Services	$7,089	ProgramServicesAmt
Management And General	$8,862	ManagementAndGeneralAmt
Fundraising	$1,978	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$8,724	TotalAmt
Program Services	$3,490	ProgramServicesAmt
Management And General	$4,362	ManagementAndGeneralAmt
Fundraising	$872	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$34,283	TotalAmt
Program Services	$16,317	ProgramServicesAmt
Management And General	$14,972	ManagementAndGeneralAmt
Fundraising	$2,994	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$4,387	TotalAmt
Program Services	$967	ProgramServicesAmt
Management And General	$1,208	ManagementAndGeneralAmt
Fundraising	$2,212	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$14,237	TotalAmt
Program Services	$2,739	ProgramServicesAmt
Management And General	$3,424	ManagementAndGeneralAmt
Fundraising	$8,074	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$7,040	TotalAmt
Program Services	$1,340	ProgramServicesAmt
Management And General	$5,365	ManagementAndGeneralAmt
Fundraising	$335	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
Public Education	$21,874	$21,874
Processing Fees	$17,072	$6,829	$8,536	$1,707
Printing and Publications	$16,050	$6,420	$8,025	$1,605
Website	$5,235	$5,235

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$5,862	TotalAmt
Program Services	$4,222	ProgramServicesAmt
Management And General	$1,367	ManagementAndGeneralAmt
Fundraising	$273	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,850,796	TotalAmt
Program Services	$1,596,459	ProgramServicesAmt
Management And General	$191,442	ManagementAndGeneralAmt
Fundraising	$62,895	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$499,243	BOYAmt
EOY	$659,928	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$13,278	BOYAmt
EOY	$0	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$73,836	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$57,492	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$28,295	BOYAmt
EOY	$16,344	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,268,595	BOYAmt
EOY	$1,625,281	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,809,411	BOYAmt
EOY	$2,301,553	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$55,785	BOYAmt
EOY	$8,595	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$55,785	BOYAmt
EOY	$8,595	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,753,626	BOYAmt
EOY	$2,292,958	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$1,753,626	BOYAmt
EOY	$2,292,958	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$1,809,411	BOYAmt
EOY	$2,301,553	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$536,797	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$2,535	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Cash	Yes (X)	MethodOfAccountingCashInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,446,523	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,822,921	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,325,488	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,493,689	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,410,674	CurrentTaxYearAmt
Total	$7,499,295	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,446,523	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,822,921	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,325,488	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,493,689	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,410,674	CurrentTaxYearAmt
Total	$7,499,295	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$7,499,295	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$136,184	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	-$36,733	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$125,225	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	-$87,537	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,468	CurrentTaxYearAmt
Total	$140,607	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$7,639,902	TotalSupportAmt
Public Support CY170	0.98160	PublicSupportCY170Pct
Public Support PY170	0.96850	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$4,300	OtherCostOrOtherBasisAmt
Depreciation	$2,938	DepreciationAmt
Book Value	$1,362	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$69,536	OtherCostOrOtherBasisAmt
Depreciation	$54,554	DepreciationAmt
Book Value	$14,982	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$16,344	TotalBookValueLandBuildingsAmt
Total Book Value Other Assets	$1,625,281	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	CREDIT CARD	Desc
Amt	$8,595	Amt

Field	Value	IRS element (for citing)
Total Liability	$8,595	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$2,270,140	TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal	$2,270,140	RevenueSubtotalAmt
Other Revenues Not Included	$117,453	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$117,453	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$2,387,593	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$1,850,796	TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal	$1,850,796	ExpensesSubtotalAmt
Total Expenses Per Form990	$1,850,796	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

Part X : FIN48 Footnote

Tax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2021, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses.

Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/S

PPP Foregiveness $108490 Investment Income $8963

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Agrmt Prof Fundraising Acty	false	AgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GOLDBERGER EVENT	Event1Nm
Gross Receipts Event1	$327,534	GrossReceiptsEvent1Amt
Gross Revenue Event1	$327,534	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$414	OtherDirectExpensesEvent1Amt
Event2	NEW YORK GOLF	Event2Nm
Gross Receipts Event2	$300,883	GrossReceiptsEvent2Amt
Gross Revenue Event2	$300,883	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$98,869	OtherDirectExpensesEvent2Amt
Other Events Total	5	OtherEventsTotalCnt
Gross Receipts Other Events	$337,352	GrossReceiptsOtherEventsAmt
Gross Revenue Other Events	$337,352	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$10,488	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$965,769	GrossReceiptsTotalAmt
Gross Revenue Total Events	$965,769	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$109,771	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$109,771	DirectExpenseSummaryEventsAmt
Net Income Summary	$855,998	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	false	GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt
AUTONOMIC RESEARCH LLC
1 WEST 64 STREET 2B	NEW YORK	NY	10029	273204023	$66,079	$0	RESEARCH & TREATMENT
NYU SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	$1,168,311	$0	RESEARCH & TREATMENT

Field	Value	IRS element (for citing)
Total501c3 Org	1	Total501c3OrgCnt
Total Other Org	1	TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	false	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	false	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

Field	Value	IRS element (for citing)
Person	LANIE ETKIND	PersonNm
Title	Executive Dir.	TitleTxt
Base Compensation Filing Org	$218,077	BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org	$44,578	NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org	$262,655	TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
Form 990, Part VI, Line 11b: Form 990 Review Process	THE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	ALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management	COMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS.
Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	GOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.