2022-10-25T13:11:31-07:00 2021-12-31 464749070 EFFY STEIGMAN & CO CPAS PC 505 CROWN ST BROOKLYN NY 112135126 990 2021-01-01 136145280 DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION DYSA 2122791066 315 W 39TH STREET 701 NEW YORK NY 10018 ALLAN COHEN Treasurer 2022-10-25 true ALLAN COHEN 999009999 Effy Steigman P00705400 3475337210 2 AAL1 IAL1 FAL1 2021 2022-09-23 18:48:47Z ALLAN COHEN 315 W 39TH STREET 701 NEW YORK NY 10018 2497364 false X http://www.familialdysautonomia.org/ X 1954 NY THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD. 16 15 5 0 1042273 1519164 0 6514 8963 764645 859466 1813432 2387593 1194451 1234390 0 365248 412576 0 62895 266777 203830 1826476 1850796 -13044 536797 1809411 2301553 55785 8595 1753626 2292958 THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD. false false 1596459 1234390 1813432 THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD. 1596459 true true false false false false false false false false true false false true true true true false false false false false false false true false false true false true false false false false false false false false false false false false false false false false false true 11 0 true 5 true false false false false false false false 0 false false false false false false false X 16 15 false false false false false false false true true false false true true true true true true true false false X X LANIE ETKIND 2122791066 315 W 39TH STREET NEW YORK NY 10018 LANIE ETKIND Executive Dir. 40.00 0.00 X 218077 0 44578 FAYE GINSBURG President 5.00 0.00 X X 0 0 0 ALLAN COHEN Treasurer 1.00 0.00 X X 0 0 0 EDWARD BARANOFF Vice President 1.00 0.00 X X 0 0 0 LAURENT LANDAU Vice President 1.00 0.00 X X 0 0 0 JEFFREY GOLDBERGER Vice President 1.00 0.00 X X 0 0 0 STEVEN KIETZ Vice President 1.00 0.00 X X 0 0 0 LISA NEWMAN Vice President 1.00 0.00 X X 0 0 0 PAUL B WEXLER Vice President 1.00 0.00 X X 0 0 0 STEVEN S FASS Secretary 1.00 0.00 X X 0 0 0 JENNIFER SONENSHEIN Director 1.00 0.00 X 0 0 0 HOWARD WEISER Director 1.00 0.00 X 0 0 0 GERALD ADLER Director 1.00 0.00 X 0 0 0 GREGG MEYERS Director 0.00 0.00 X 0 0 0 DANIEL LANDAU Director 0.00 0.00 X 0 0 0 BRIAN STILLMAN Director 0.00 0.00 X 0 0 0 218077 44578 1 false true false 0 108490 1410674 1519164 0 8963 8963 0 3468 3468 0 0 965769 109771 855998 0 0 0 2387593 12431 1234390 1234390 0 0 0 262655 168099 68290 26266 0 123906 79300 32216 12390 4250 2720 1105 425 15069 9644 3918 1507 6696 4285 1741 670 0 6379 6379 20121 20121 0 0 0 23572 14694 7397 1481 1065 426 533 106 17929 7089 8862 1978 8724 3490 4362 872 0 34283 16317 14972 2994 4387 967 1208 2212 0 0 0 0 14237 2739 3424 8074 7040 1340 5365 335 Public Education 21874 21874 Processing Fees 17072 6829 8536 1707 Printing and Publications 16050 6420 8025 1605 Website 5235 5235 5862 4222 1367 273 1850796 1596459 191442 62895 499243 659928 0 0 0 0 0 0 0 13278 0 73836 57492 28295 16344 0 0 0 0 1268595 1625281 1809411 2301553 55785 8595 55785 8595 X 1753626 2292958 1753626 2292958 1809411 2301553 536797 2535 X false true X true false X 1446523 1822921 1325488 1493689 1410674 7499295 0 0 1446523 1822921 1325488 1493689 1410674 7499295 0 7499295 136184 -36733 125225 -87537 3468 140607 0 0 7639902 0.98160 0.96850 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4300 2938 1362 69536 54554 14982 16344 1625281 CREDIT CARD 8595 8595 X 2270140 2270140 117453 117453 2387593 1850796 1850796 1850796 Part X : FIN48 Footnote Tax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2021, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses. Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/S PPP Foregiveness $108490 Investment Income $8963 false GOLDBERGER EVENT 327534 327534 414 NEW YORK GOLF 300883 300883 98869 5 337352 337352 10488 965769 965769 109771 109771 855998 false AUTONOMIC RESEARCH LLC 1 WEST 64 STREET 2B NEW YORK NY 10029 273204023 66079 0 RESEARCH & TREATMENT NYU SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 135562308 1168311 0 RESEARCH & TREATMENT 1 1 false false false false false false false false false LANIE ETKIND Executive Dir. 218077 44578 262655 Form 990, Part VI, Line 11b: Form 990 Review Process THE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts ALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management COMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available GOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.