DYSAUTONOMIA FOUNDATION INC: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization: DYSAUTONOMIA FOUNDATION INC (EIN 13-6145280)
Tax period: 2020-01-01 to 2020-12-31
Filed: 2021-11-15
IRS object ID: 202143199349321944
Schema version: 2020v4.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2021-11-15T13:52:37-08:00	ReturnTs
Tax Period End	2020-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	464749070	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	EFFY STEIGMAN & CO CPAS PC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	505 CROWN ST	AddressLine1Txt
City	BROOKLYN	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	112135126	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2020-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	136145280	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DYSAUTONOMIA FOUNDATION INC	BusinessNameLine1Txt
Business Name Line2	DBA FAMILIAL DYSAUTONOMIA FOUNDATION	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	DYSA	BusinessNameControlTxt
Phone	2122791066	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET 701	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ALLAN COHEN	PersonNm
Person Title	Treasurer	PersonTitleTxt
Signature	2021-11-15	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	ALLAN	PersonFirstNm
Person Last	COHEN	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	Effy Steigman	PreparerPersonNm
PTIN	P00705400	PTIN
Phone	3475337210	PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd
Federated Assurance Level	FAL1	FederatedAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2020	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ALLAN COHEN	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET 701	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$1,821,293	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	http://www.familialdysautonomia.org/	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1954	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	ActivityOrMissionDesc
Voting Members Governing Body	13	VotingMembersGoverningBodyCnt
Voting Members Independent	14	VotingMembersIndependentCnt
Total Employee	3	TotalEmployeeCnt
Total Gross UBI	$0	TotalGrossUBIAmt
PY Contributions Grants	$564,308	PYContributionsGrantsAmt
CY Contributions Grants	$1,042,273	CYContributionsGrantsAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$39,825	PYInvestmentIncomeAmt
CY Investment Income	$6,514	CYInvestmentIncomeAmt
PY Other Revenue	$820,246	PYOtherRevenueAmt
CY Other Revenue	$764,645	CYOtherRevenueAmt
PY Total Revenue	$1,424,379	PYTotalRevenueAmt
CY Total Revenue	$1,813,432	CYTotalRevenueAmt
PY Grants And Similar Paid	$1,162,772	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$1,194,451	CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$354,974	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$365,248	CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$55,755	CYTotalFundraisingExpenseAmt
PY Other Expenses	$360,947	PYOtherExpensesAmt
CY Other Expenses	$266,777	CYOtherExpensesAmt
PY Total Expenses	$1,878,693	PYTotalExpensesAmt
CY Total Expenses	$1,826,476	CYTotalExpensesAmt
PY Revenues Less Expenses	-$454,314	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$13,044	CYRevenuesLessExpensesAmt
Total Assets BOY	$1,860,719	TotalAssetsBOYAmt
Total Assets EOY	$1,809,411	TotalAssetsEOYAmt
Total Liabilities EOY	$55,785	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$1,860,719	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$1,753,626	NetAssetsOrFundBalancesEOYAmt
Mission	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$1,587,731	ExpenseAmt
Grant	$976,102	GrantAmt
Revenue	$1,595,083	RevenueAmt
Desc	THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.	Desc
Total Program Service Expenses	$1,587,731	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	false	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Donor Rstr Or Quasi Endowments	false	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	false	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	Yes (true)	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	false	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	false	ForeignActivitiesInd
More Than5000 K To Org	false	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	false	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	false	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	false	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	false	RelatedEntityInd
Related Organization Ctrl Ent	false	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	23	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	3	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Form8282 Filed	0	Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Form8899 Filedind	false	Form8899Filedind
Form1098 C Filed	false	Form1098CFiledInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	false	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	false	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	13	GoverningBodyVotingMembersCnt
Independent Voting Member	14	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	false	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	false	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	LANIE ETKIND	PersonNm
Phone	2122791066	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	315 W 39TH STREET	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10018	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LANIE ETKIND
Executive Dir.	40.00	0.00	Yes (X)	$207,538	$0	$45,890
FAYE GINSBURG
President	5.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
ALLAN COHEN
Treasurer	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
EDWARD BARANOFF
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
LAURENT LANDAU
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JEFFREY GOLDBERGER
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
STEVEN KIETZ
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
LISA NEWMAN
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
PAUL B WEXLER
Vice President	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
STEVEN S FASS
Secretary	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JENNIFER SONENSHEIN
Director	1.00	0.00		$0	$0	$0	Yes (X)
HOWARD WEISER
Director	1.00	0.00		$0	$0	$0	Yes (X)
GERALD ADLER
Director	1.00	0.00		$0	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$207,538	TotalReportableCompFromOrgAmt
Total Other Compensation	$45,890	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	1	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
All Other Contributions	$1,042,273	AllOtherContributionsAmt
Total Contributions	$1,042,273	TotalContributionsAmt
Total Program Service Revenue	$0	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$6,514	TotalRevenueColumnAmt
Related Or Exempt Func Income	$6,514	RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$94,880	TotalRevenueColumnAmt
Related Or Exempt Func Income	$94,880	RelatedOrExemptFuncIncomeAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$677,626	FundraisingGrossIncomeAmt
Fundraising Direct Expenses	$7,861	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$669,765	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$0	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,813,432	TotalRevenueColumnAmt
Related Or Exempt Func Income	$101,394	RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$1,194,451	TotalAmt
Program Services	$1,194,451	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$230,201	TotalAmt
Program Services	$147,329	ProgramServicesAmt
Management And General	$59,852	ManagementAndGeneralAmt
Fundraising	$23,020	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$89,830	TotalAmt
Program Services	$57,490	ProgramServicesAmt
Management And General	$23,357	ManagementAndGeneralAmt
Fundraising	$8,983	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$1,945	TotalAmt
Program Services	$1,245	ProgramServicesAmt
Management And General	$506	ManagementAndGeneralAmt
Fundraising	$194	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$22,843	TotalAmt
Program Services	$14,619	ProgramServicesAmt
Management And General	$5,939	ManagementAndGeneralAmt
Fundraising	$2,285	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$20,429	TotalAmt
Program Services	$13,074	ProgramServicesAmt
Management And General	$5,312	ManagementAndGeneralAmt
Fundraising	$2,043	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$32,783	TotalAmt
Program Services	$32,783	ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$31,667	TotalAmt
Management And General	$31,667	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$44,412	TotalAmt
Program Services	$35,097	ProgramServicesAmt
Management And General	$7,815	ManagementAndGeneralAmt
Fundraising	$1,500	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$496	TotalAmt
Program Services	$348	ProgramServicesAmt
Management And General	$123	ManagementAndGeneralAmt
Fundraising	$25	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$25,780	TotalAmt
Program Services	$10,312	ProgramServicesAmt
Management And General	$12,890	ManagementAndGeneralAmt
Fundraising	$2,578	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$37,842	TotalAmt
Program Services	$17,502	ProgramServicesAmt
Management And General	$16,950	ManagementAndGeneralAmt
Fundraising	$3,390	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$2,456	TotalAmt
Program Services	$517	ProgramServicesAmt
Management And General	$1,884	ManagementAndGeneralAmt
Fundraising	$55	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$18,405	TotalAmt
Program Services	$16,872	ProgramServicesAmt
Management And General	$97	ManagementAndGeneralAmt
Fundraising	$1,436	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$14,310	TotalAmt
Program Services	$2,768	ProgramServicesAmt
Management And General	$3,460	ManagementAndGeneralAmt
Fundraising	$8,082	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$6,518	TotalAmt
Program Services	$1,236	ProgramServicesAmt
Management And General	$4,973	ManagementAndGeneralAmt
Fundraising	$309	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
Public Education	$31,739	$31,739
Processing Fees	$11,522	$4,598	$5,775	$1,149
Phone Expense	$2,960	$1,184	$1,480	$296
Printing and Publications	$2,842	$2,332	$225	$285

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,045	TotalAmt
Program Services	$2,235	ProgramServicesAmt
Management And General	$685	ManagementAndGeneralAmt
Fundraising	$125	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,826,476	TotalAmt
Program Services	$1,587,731	ProgramServicesAmt
Management And General	$182,990	ManagementAndGeneralAmt
Fundraising	$55,755	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$419,350	BOYAmt
EOY	$499,243	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
EOY	$13,278	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$71,550	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$43,255	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$42,605	BOYAmt
EOY	$28,295	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,398,764	BOYAmt
EOY	$1,268,595	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,860,719	BOYAmt
EOY	$1,809,411	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
EOY	$55,785	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$55,785	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$1,860,719	BOYAmt
EOY	$1,753,626	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$1,860,719	BOYAmt
EOY	$1,753,626	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$1,860,719	BOYAmt
EOY	$1,809,411	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$13,044	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$94,049	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Cash	Yes (X)	MethodOfAccountingCashInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,603,684	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,446,523	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,822,921	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,325,488	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,493,689	CurrentTaxYearAmt
Total	$7,692,305	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,603,684	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,446,523	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,822,921	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,325,488	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,493,689	CurrentTaxYearAmt
Total	$7,692,305	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$7,692,305	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$113,404	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$136,184	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	-$36,733	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$125,225	CurrentTaxYearMinus1YearAmt
Current Tax Year	-$87,537	CurrentTaxYearAmt
Total	$250,543	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$7,942,848	TotalSupportAmt
Public Support CY170	0.96850	PublicSupportCY170Pct
Public Support PY170	0.94870	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$4,300	OtherCostOrOtherBasisAmt
Depreciation	$2,150	DepreciationAmt
Book Value	$2,150	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$67,250	OtherCostOrOtherBasisAmt
Depreciation	$41,105	DepreciationAmt
Book Value	$26,145	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$28,295	TotalBookValueLandBuildingsAmt
Total Book Value Other Assets	$1,268,595	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDesc	AmtAmt
CREDIT ACRD	$142
PAYROLL LIABILITIES	$1,152
SBA PPP LOAN	$54,491

Field	Value	IRS element (for citing)
Total Liability	$55,785	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	Part X : FIN48 Footnote	FormAndLineReferenceDesc
Explanation	Tax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2020, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Agrmt Prof Fundraising Acty	false	AgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	CROWDFUNDING	Event1Nm
Gross Receipts Event1	$235,867	GrossReceiptsEvent1Amt
Gross Revenue Event1	$235,867	GrossRevenueEvent1Amt
Event2	TILSIT FUND	Event2Nm
Gross Receipts Event2	$142,116	GrossReceiptsEvent2Amt
Gross Revenue Event2	$142,116	GrossRevenueEvent2Amt
Other Events Total	4	OtherEventsTotalCnt
Gross Receipts Other Events	$299,643	GrossReceiptsOtherEventsAmt
Gross Revenue Other Events	$299,643	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$7,861	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$677,626	GrossReceiptsTotalAmt
Gross Revenue Total Events	$677,626	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$7,861	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$7,861	DirectExpenseSummaryEventsAmt
Net Income Summary	$669,765	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	false	GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt
AUTONOMIC RESEARCH LLC
1 WEST 64 STREET 2B	NEW YORK	NY	10029	273204023	$85,539	$0	RESEARCH & TREATMENT
NYU SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	$1,108,912	$0	RESEARCH & TREATMENT

Field	Value	IRS element (for citing)
Total501c3 Org	1	Total501c3OrgCnt
Total Other Org	1	TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	false	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	false	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

Field	Value	IRS element (for citing)
Person	LANIE ETKIND	PersonNm
Title	Executive Dir.	TitleTxt
Base Compensation Filing Org	$207,538	BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org	$45,890	NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org	$253,428	TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
Form 990, Part VI, Line 11b: Form 990 Review Process	THE ORGANIZATION'S FORM 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR, THE TREASURER, THE PRESIDENT AND AN INDEPENDENT ACCOUNTANT PRIOR TO FILING. THE FORM 990 IS MADE AVAILABLE TO ALL DIRECTORS.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	ALL DIRECTORS ARE REQUIRED TO SIGN AN ANNUAL COMPLIANCE AGREEMENT.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management	COMPENSATION PROCESS FOR TOP OFFICIAL COMPENSATION IS DETERMINED INITIALLY BY A COMMITTEE THAT ESTABLISHES AN EMPLOYMENT CONTRACT. IT IS SUBSEQUENTLY ADJUSTED BY THE COMMITTEE ACCORDING TO COST OF LIVING, PERFPORMANCE INCREASES AND COMPARISON TO COMPARABLE INDUSTRY LEVELS.
Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	GOVERNING DOCUMENTS DISCLOSURE EXPLANATION DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.