AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2012-02-01 to 2013-01-31
Filed: 2013-08-06
IRS object ID: 201332189349300958
Schema version: 2012v2.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-08-06T11:05:09-05:00	Timestamp
Tax Period End Date	2013-01-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Field	Value	IRS element (for citing)
EIN	953001179	EIN

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	WINDES & MCCLAUGHRY ACCT CORP	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	PO BOX 87	AddressLine1
City	LONG BEACH	City
State	CA	State
ZIP Code	908010087	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-02-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	AMYO	NameControl
Phone	2024078580	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW NO 250	AddressLine1
City	WASHINGTON	City
State	DC	State
ZIP Code	20005	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	DANIEL M REZNIKOV	Name
Title	CFO	Title
Phone	2024078580	Phone
Date Signed	2013-08-05	DateSigned
Authorize Third Party	1	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	DONITA M JOSEPH	Name
PTIN	P00286656	PTIN
Phone	5624351191	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Address Change	X	AddressChange

Doing Business As DoingBusinessAs

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	JANE H GILBERT	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW NO 250	AddressLine1
City	WASHINGTON	City
State	DC	State
ZIP Code	20005	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	21211696	GrossReceipts
Group Return For Affiliates	0	GroupReturnForAffiliates
Group Exemption Number	4119	GroupExemptionNumber
Organization501c3	X	Organization501c3
Web Site	WWW.ALSA.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1985	YearFormation
State Legal Domicile	DE	StateLegalDomicile
Activity Or Mission Description	TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	19	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	19	NbrIndependentVotingMembers
Total Nbr Employees	71	TotalNbrEmployees
Total Nbr Volunteers	31	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Net Unrelated Business Txbl Income	0	NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year	19126742	ContributionsGrantsPriorYear
Contributions Grants Current Year	19357009	ContributionsGrantsCurrentYear
Program Service Revenue Prior Year	39475	ProgramServiceRevenuePriorYear
Program Service Revenue CY	46000	ProgramServiceRevenueCY
Investment Income Prior Year	283223	InvestmentIncomePriorYear
Investment Income Current Year	208866	InvestmentIncomeCurrentYear
Other Revenue Prior Year	309386	OtherRevenuePriorYear
Other Revenue Current Year	78377	OtherRevenueCurrentYear
Total Revenue Prior Year	19758826	TotalRevenuePriorYear
Total Revenue Current Year	19690252	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	4394391	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	6843097	GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year	0	BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	4865099	SalariesEtcPriorYear
Salaries Etc Current Year	5138716	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	298692	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	709621	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	3030168	TotalFundrsngExpCurrentYear
Other Expense Prior Year	6266025	OtherExpensePriorYear
Other Expenses Current Year	7105147	OtherExpensesCurrentYear
Total Expenses Prior Year	15824207	TotalExpensesPriorYear
Total Expenses Current Year	19796581	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	3934619	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-106329	RevenuesLessExpensesCY
Total Assets BOY	20256339	TotalAssetsBOY
Total Assets EOY	20059969	TotalAssetsEOY
Total Liabilities BOY	2760956	TotalLiabilitiesBOY
Total Liabilities EOY	2557775	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	17495383	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	17502194	NetAssetsOrFundBalancesEOY
Mission Description	LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDescription
Significant New Program Services	0	SignificantNewProgramServices
Significant Change	0	SignificantChange
Expense	6636606	Expense
Grants	6014185	Grants
Description	RESEARCH PROGRAMS - FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE. (91 RESEARCH GRANTS)	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	5086234	Expense
Grants	808912	Grants
Description	PATIENT & COMMUNITY SERVICES - THE ASSOCIATION PROVIDES OVERSIGHT AND SUPPORT SERVICES TO ITS CHAPTERS. THROUGH THESE CHAPTERS THE ASSOCIATION SERVES AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, AND HEALTH CARE PROFESSIONALS. WE NOT ONLY PROVIDE OVERSIGHT AND ORGANIZATIONAL DEVELOPMENT SUPPORT TO THE ASSOCIATION'S CHAPTERS IN SUPPORT OF THOSE SERVICES, BUT ALSO PROVIDE GRANTS TO THE ASSOCIATION'S CERTIFIED CENTERS.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	2848548	Expense
Grants	20000	Grants
Revenue	46000	Revenue
Description	PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES.	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	14571388	TotalProgramServiceExpense
Described In501 C3	1	DescribedIn501C3
Schedule B Required	1	ScheduleBRequired
Political Activities	0	PoliticalActivities
Lobbying Activities	1	LobbyingActivities
Subject To Proxy Tax	0	SubjectToProxyTax
Donor Advised Funds	0	DonorAdvisedFunds
Conservation Easements	0	ConservationEasements
Collections Of Art	0	CollectionsOfArt
Credit Counseling	0	CreditCounseling
Term Or Permanent Endowments	1	TermOrPermanentEndowments
Report Land Bldg Equip	1	ReportLandBldgEquip
Report Invest Oth Securities	0	ReportInvestOthSecurities
Report Prog Rel Invest	0	ReportProgRelInvest
Report Other Assets	1	ReportOtherAssets
Report Other Liabilities	0	ReportOtherLiabilities
Report Fin48 Footnote	1	ReportFin48Footnote
Independent Audit Financial Stmt	1	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	0	ConsolidatedAuditFinancialStmt
School	0	School
Foreign Office	0	ForeignOffice
Foreign Activities	1	ForeignActivities
More Than5000 K To Organizations	1	MoreThan5000KToOrganizations
More Than5000 K To Individuals	0	MoreThan5000KToIndividuals
Professional Fundraising	1	ProfessionalFundraising
Fundraising Activities	1	FundraisingActivities
Gaming	0	Gaming
Hospital	0	Hospital
Grants To Organizations	1	GrantsToOrganizations
Grants To Individuals	1	GrantsToIndividuals
Schedule J Required	1	ScheduleJRequired
Tax Exempt Bonds	0	TaxExemptBonds
Excess Benefit Transaction	0	ExcessBenefitTransaction
Prior Excess Benefit Transaction	0	PriorExcessBenefitTransaction
Loan To Officer Or DQP	0	LoanToOfficerOrDQP
Grant To Related Person	0	GrantToRelatedPerson
Bsnss Rltnshp With Organization	0	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	0	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	0	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	1	DeductibleNonCashContributions
Deductible Contributions Of Art	0	DeductibleContributionsOfArt
Terminated	0	Terminated
Partial Liquidation	0	PartialLiquidation
Disregarded Entity	0	DisregardedEntity
Related Entity	0	RelatedEntity
Related Org Controlled Entity	0	RelatedOrgControlledEntity
Transfers To Exempt Non Chrtbl Org	0	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	0	ActivitiesConductedPartnership
Schedule O Required	1	ScheduleORequired
Number Forms Transmitted With1096	54	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	1	ComplianceWithBackupWitholding
Number Of Employees	71	NumberOfEmployees
Employment Tax Returns Filed	1	EmploymentTaxReturnsFiled
Unrelated Business Income	0	UnrelatedBusinessIncome
Foreign Financial Account	0	ForeignFinancialAccount
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTrans
Taxable Party Notification	0	TaxablePartyNotification
Non Deductible Contributions	0	NonDeductibleContributions
Quid Pro Quo Contributions	1	QuidProQuoContributions
Quid Pro Quo Disclosure	1	QuidProQuoDisclosure
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOf
Funds To Pay Premiums	0	FundsToPayPremiums
Premiums Paid	0	PremiumsPaid
Form1098 C Filed	1	Form1098CFiled
Indoor Tanning Services	0	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	19	NbrVotingGoverningBodyMembers
Number Independent Voting Members	19	NumberIndependentVotingMembers
Family Or Business Relationship	0	FamilyOrBusinessRelationship
Delegation Of Management Duties	0	DelegationOfManagementDuties
Changes To Organizing Docs	1	ChangesToOrganizingDocs
Material Diversion Or Misuse	0	MaterialDiversionOrMisuse
Members Or Stockholders	0	MembersOrStockholders
Election Of Board Members	0	ElectionOfBoardMembers
Decisions Subject To Approval	0	DecisionsSubjectToApproval
Minutes Of Governing Body	1	MinutesOfGoverningBody
Minutes Of Committees	1	MinutesOfCommittees
Officer Mailing Address	0	OfficerMailingAddress
Local Chapters	1	LocalChapters
Policies Reference Chapters	1	PoliciesReferenceChapters
Form990 Provided To Governing Body	1	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	1	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	1	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	1	RegularMonitoringEnforcement
Whistleblower Policy	1	WhistleblowerPolicy
Document Retention Policy	1	DocumentRetentionPolicy
Compensation Process CEO	1	CompensationProcessCEO
Compensation Process Other	1	CompensationProcessOther
Investment In Joint Venture	0	InvestmentInJointVenture
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ID	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	LA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ME	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ND	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Other Website	X	OtherWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	JOHN W APPLEGATE	BusinessNameLine1

Field	Value	IRS element (for citing)
Telephone Number	8188809007	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	27001 AGOURA ROAD SUITE 250	AddressLine1
City	CALABASAS HILLS	City
State	CA	State
ZIP Code	91301	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (29 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	Key EmployeeKeyEmployee	Highest Compensated EmployeeHighestCompensatedEmployee
JAY DAUGHERTY
CHAIRMAN	2.00	X	X	0	0	0
WILLIAM THOET
VICE CHAIRMAN	2.00	X	X	0	0	0
LUIS E LEON
TREASURER	2.00	X	X	0	0	0
DOUGLAS BUTCHER
SECRETARY	2.00	X	X	0	0	0
LAWRENCE R BARNETT ESQ
TRUSTEE	2.00	X		0	0	0
PHYLLIS R BROURMAN ESQ
TRUSTEE	2.00	X		0	0	0
CHRIS BRUSSALIS
TRUSTEE	2.00	X		0	0	0
DANIEL DEGRANDPRE
TRUSTEE	2.00	X		0	0	0
CYNTHIA DOUTHAT
TRUSTEE	2.00	X		0	0	0
ROBIN GANZERT
TRUSTEE	2.00	X		0	0	0
WILSON KRAHNKE
TRUSTEE	2.00	X		0	0	0
EDMUND G MCCURTAIN II
TRUSTEE	2.00	X		0	0	0
KIM ANN MINK PHD
TRUSTEE	2.00	X		0	0	0
TIMOTHY O'TOOLE
TRUSTEE	2.00	X		0	0	0
ELLYN G PHILLIPS
TRUSTEE	2.00	X		0	0	0
JONATHAN ROBERTS
TRUSTEE	2.00	X		0	0	0
ELIZABETH ROSENBERG
TRUSTEE	2.00	X		0	0	0
WILLIAM D SOFFEL
TRUSTEE	2.00	X		0	0	0
CHRIS STEVENS
TRUSTEE	2.00	X		0	0	0
JANE H GILBERT
PRESIDENT AND CEO	37.50		X	297288	0	22667
DANIEL M REZNIKOV
CHIEF FINANCIAL OFFICER	37.50		X	195190	0	10772
KENNETH NICHOLLS
CHIEF CHAPTER RELATIONS OFFICER	37.50			177374	0	19396	X
STEVE GIBSON
CHIEF PUBLIC POLICY OFFICER	37.50			176430	0	17802	X
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICER	37.50			152264	0	4924	X
JOHN W APPLEGATE
ASSOCIATION FINANCE OFFICER	37.50			115652	0	14475		X
DAVID MOSES
DIRECTOR, PLANNED GIVING	37.50			108813	0	14223		X
LANCE SLAUGHTER
CHIEF CHAPTER RELATIONS OFFICER	37.50			106058	0	13310		X
KAREN STARLEAF
DIRECTOR, DONOR DEVELOPMENT	37.50			105979	0	20234		X
LEIGH ANN CARDENAS
DIRECTOR, DEVELOPMENT OPERATIONS	37.50			104657	0	13475		X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	1539705	TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs	0	TotalReportableCompFrmRltdOrgs
Total Other Compensation	151278	TotalOtherCompensation
Number Individuals GT100 K	11	NumberIndividualsGT100K
Formers Listed	0	FormersListed
Total Comp GT150 K	1	TotalCompGT150K
Compensation From Other Sources	0	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation	Address Line1AddressOfContractor/AddressForeign/AddressLine1	CityAddressOfContractor/AddressForeign/City	CountryAddressOfContractor/AddressForeign/Country	Postal CodeAddressOfContractor/AddressForeign/PostalCode
NNE MARKETING
105 PAUL REVERE RD	CONCORD	MA	01742	MARKETING	320850
LOST HILLS OFFICE PARTNERS LLC
26901 AGOURA RD STE 180-B	CALABASAS HILLS	CA	91301	LANDLORD	297046
MICHAEL COSCIA
304 TWELFTH STREET SE PO BOX 15084	WASHINGTON	DC	20003	MARKETING	233253
LUCIE BRUIJN PHD
				RESEARCH CONSULTANT	226667	FLAT 5 15 ST GERMANS PLACE	LONDON	UK	SE3 ONN
METRO K LLC CO COLLIERS INTERNATIONAL
PO BOX 4857	PORTLAND	OR	972084857	LANDLORD	219487

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	5	NumberOfContractorsGT100K
Federated Campaigns	327865	FederatedCampaigns
Fundraising Events	342976	FundraisingEvents
Government Grants	909874	GovernmentGrants
All Other Contributions	17776294	AllOtherContributions
Noncash Contributions	4740	NoncashContributions
Total Contributions	19357009	TotalContributions

Program Service Revenue ProgramServiceRevenue

Field	Value	IRS element (for citing)
Description	CONFERENCE FEES	Description
Business Code	900099	BusinessCode
Total Revenue Column	46000	TotalRevenueColumn
Related Or Exempt Function Income	46000	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Program Service Revenue	46000	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	162972	TotalRevenueColumn
Exclusion	$162,972	ExclusionAmount

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	11250	TotalRevenueColumn
Exclusion	$11,250	ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	1534182	Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	1488288	Securities

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	45894	Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	45894	TotalRevenueColumn
Exclusion	$45,894	ExclusionAmount

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	7400	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	342976	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	33156	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	-25756	TotalRevenueColumn
Exclusion	-$25,756	ExclusionAmount

Other Revenue Misc OtherRevenueMisc (2 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	ExclusionExclusionAmount
UNUSED/REIMB GRANTS	900099	62722	$62,722
MISCELLANEOUS INCOME	900099	30161	$30,161

Field	Value	IRS element (for citing)
Total Other Revenue	92883	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	19690252	TotalRevenueColumn
Related Or Exempt Function Income	46000	RelatedOrExemptFunctionIncome
Unrelated Business Revenue	0	UnrelatedBusinessRevenue
Exclusion	$287,243	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	6104600	Total
Program Services	6104600	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	1863	Total
Program Services	1863	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	736634	Total
Program Services	736634	ProgramServices

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	1068398	Total
Program Services	638143	ProgramServices
Management And General	209723	ManagementAndGeneral
Fundraising	220532	Fundraising

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	3260161	Total
Program Services	1947260	ProgramServices
Management And General	639960	ManagementAndGeneral
Fundraising	672941	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	145627	Total
Program Services	86982	ProgramServices
Management And General	28586	ManagementAndGeneral
Fundraising	30059	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	313366	Total
Program Services	187170	ProgramServices
Management And General	61513	ManagementAndGeneral
Fundraising	64683	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	351164	Total
Program Services	209746	ProgramServices
Management And General	68933	ManagementAndGeneral
Fundraising	72485	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	1691174	Total
Program Services	1388753	ProgramServices
Management And General	260397	ManagementAndGeneral
Fundraising	42024	Fundraising

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	11399	Total
Program Services	1900	ProgramServices
Fundraising	9499	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	44725	Total
Management And General	44725	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	36717	Total
Program Services	36717	ProgramServices

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	709621	Total
Fundraising	709621	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	449292	Total
Program Services	341266	ProgramServices
Management And General	3683	ManagementAndGeneral
Fundraising	104343	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	343579	Total
Program Services	173482	ProgramServices
Management And General	63370	ManagementAndGeneral
Fundraising	106727	Fundraising

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	485933	Total
Program Services	237171	ProgramServices
Management And General	158134	ManagementAndGeneral
Fundraising	90628	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	1171175	Total
Program Services	1069243	ProgramServices
Management And General	50591	ManagementAndGeneral
Fundraising	51341	Fundraising

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	85124	Total
Program Services	46994	ProgramServices
Management And General	24570	ManagementAndGeneral
Fundraising	13560	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	FundraisingFundraising	Management And GeneralManagementAndGeneral
APPEAL EXPENSES	1005480	238468	767012
CHAPTER SUPPORT	1005327	1005327
MISCELLANEOUS	341156	18858	46972	275326
BAD DEBT RECOVERY	268146			268146

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	165920	Total
Program Services	100811	ProgramServices
Management And General	37368	ManagementAndGeneral
Fundraising	27741	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	19796581	Total
Program Services	14571388	ProgramServices
Management And General	2195025	ManagementAndGeneral
Fundraising	3030168	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Total Joint Costs TotalJointCosts

Field	Value	IRS element (for citing)
Total	1005480	Total
Program Services	238468	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	767012	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	5017270	BOY
EOY	5525946	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	1817700	BOY
EOY	1776766	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	5068863	BOY
EOY	3933182	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	305027	BOY
EOY	230418	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	1370420	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	1148278	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	165883	BOY
EOY	222142	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	6724420	BOY
EOY	7314287	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	1157176	BOY
EOY	1057228	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	20256339	BOY
EOY	20059969	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	2307400	BOY
EOY	2377441	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	453556	BOY
EOY	180334	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	2760956	BOY
EOY	2557775	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	8106576	BOY
EOY	8317870	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	8492325	BOY
EOY	8260444	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	896482	BOY
EOY	923880	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	17495383	BOY
EOY	17502194	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	20256339	BOY
EOY	20059969	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	-106329	ReconcilationRevenueExpenses
Reconciliation Unrealized Invest	163682	ReconciliationUnrealizedInvest
Reconcilation Other Changes	-50542	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	0	AccountantCompileOrReview
FS Audited	1	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	1	AuditCommittee
Federal Grant Audit Required	0	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	15917492	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	14583917	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	17744381	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	19126742	CurrentTaxYearMinus1Year
Current Tax Year	19357009	CurrentTaxYear
Total	86729541	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	15917492	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	14583917	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	17744381	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	19126742	CurrentTaxYearMinus1Year
Current Tax Year	19357009	CurrentTaxYear
Total	86729541	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	1036939	AmountsSubstContributorsTotal
Public Support Total170	85692602	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	186824	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	77526	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	55620	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	283223	CurrentTaxYearMinus1Year
Current Tax Year	220116	CurrentTaxYear
Total	823309	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	49499	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	47654	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	31744	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	14736	CurrentTaxYearMinus1Year
Current Tax Year	30161	CurrentTaxYear
Total	173794	Total

Field	Value	IRS element (for citing)
Total Support	87726644	TotalSupport
Gross Receipts From Admissions Etc	154377	GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage170	0.97680	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.97710	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	26625	FilingOrganizationsTotals

Total Direct Lobbying TotalDirectLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	259142	FilingOrganizationsTotals

Total Lobbying Expenditures TotalLobbyingExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	285767	FilingOrganizationsTotals

Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	14310191	FilingOrganizationsTotals

Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	14595958	FilingOrganizationsTotals

Lobbying Nontaxable LobbyingNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	879798	FilingOrganizationsTotals

Grassroots Nontaxable GrassrootsNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	219950	FilingOrganizationsTotals

Tot Lobbying Grassroot Minus Non Tx TotLobbyingGrassrootMinusNonTx

Field	Value	IRS element (for citing)
Filing Organizations Totals	0	FilingOrganizationsTotals

Tot Lobby Expend Mns Lobbying Nontx TotLobbyExpendMnsLobbyingNontx

Field	Value	IRS element (for citing)
Filing Organizations Totals	0	FilingOrganizationsTotals

Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	661049	CurrentYearMinus3
Current Year Minus2	757265	CurrentYearMinus2
Current Year Minus1	869634	CurrentYearMinus1
Current Year	879798	CurrentYear
Total	3167746	Total

Field	Value	IRS element (for citing)
Lobbying Ceiling	$4,751,619	LobbyingCeilingAmount

Total Lobbying Expenditures2 TotalLobbyingExpenditures2

Field	Value	IRS element (for citing)
Current Year Minus3	380508	CurrentYearMinus3
Current Year Minus2	370155	CurrentYearMinus2
Current Year Minus1	374683	CurrentYearMinus1
Current Year	285767	CurrentYear
Total	1411113	Total

Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	165262	CurrentYearMinus3
Current Year Minus2	189316	CurrentYearMinus2
Current Year Minus1	217409	CurrentYearMinus1
Current Year	219950	CurrentYear
Total	791937	Total

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,187,906	GrassrootsCeilingAmount

Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures

Field	Value	IRS element (for citing)
Current Year Minus3	48887	CurrentYearMinus3
Current Year Minus2	34220	CurrentYearMinus2
Current Year Minus1	32593	CurrentYearMinus1
Current Year	26625	CurrentYear
Total	142325	Total

Form990 Schedule C Part IV Form990ScheduleCPartIV

Field	Value	IRS element (for citing)
Identifier	PART IV, SUPPLEMENTAL INFORMATION:	Identifier
Explanation	THE PURPOSE OF OUR ADVOCACY PROGRAM IS TO SENSITIZE LEGISLATORS TO, AND OBTAIN THEIR SYMPATHY FOR, THE PLIGHT OF ALS VICTIMS, PATIENTS AND THEIR FAMILIES, AND TO INFLUENCE LEGISLATION REGARDING THE APPROPRIATION OF FEDERAL FUNDS FOR ALS RESEARCH AND THE USE AND COST TO PATIENTS OF "ORPHAN" DRUGS. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX-EXEMPT PURPOSE.	Explanation

Schedule D IRS990ScheduleD

Current Year CurrentYear

Field	Value	IRS element (for citing)
Beginning Of Year Balance	240000	BeginningOfYearBalance
Investment Earnings Or Losses	13666	InvestmentEarningsOrLosses
Other Expenditures	13666	OtherExpenditures
End Of Year Balance	240000	EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

Field	Value	IRS element (for citing)
Beginning Of Year Balance	240000	BeginningOfYearBalance
Investment Earnings Or Losses	8091	InvestmentEarningsOrLosses
Other Expenditures	8091	OtherExpenditures
End Of Year Balance	240000	EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	240000	BeginningOfYearBalance
Investment Earnings Or Losses	26305	InvestmentEarningsOrLosses
Other Expenditures	26305	OtherExpenditures
End Of Year Balance	240000	EndOfYearBalance

Current Year Minus3 Years CurrentYearMinus3Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	240000	BeginningOfYearBalance
Investment Earnings Or Losses	12739	InvestmentEarningsOrLosses
Grants Or Scholarships	12739	GrantsOrScholarships
End Of Year Balance	240000	EndOfYearBalance

Current Year Minus4 Years CurrentYearMinus4Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	240000	BeginningOfYearBalance
Investment Earnings Or Losses	18675	InvestmentEarningsOrLosses
Grants Or Scholarships	18675	GrantsOrScholarships
End Of Year Balance	240000	EndOfYearBalance

Field	Value	IRS element (for citing)
Permanent Endowment EOY Balance	1.00000	PermanentEndowmentEOYBalance
Endowments Held By Unrelated Orgs	0	EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs	0	EndowmentsHeldByRelatedOrgs

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	185327	OtherCostOrOtherBasis
Depreciation	114507	Depreciation
Book Value	70820	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	1084231	OtherCostOrOtherBasis
Depreciation	1033771	Depreciation
Book Value	50460	BookValue

Other Land Buildings OtherLandBuildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	100862	OtherCostOrOtherBasis
Book Value	100862	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	222142	TotalOfBookValueLandBuildings

Other Assets OtherAssets (4 entries)

DescriptionDescription	Book ValueBookValue
OFFICE LEASE DEPOSITS	47447
VENDOR DEPOSITS	1401
OTHER RECEIVABLES	38105
BENEFICIAL INTEREST IN PERPETUAL TRUSTS	970275

Field	Value	IRS element (for citing)
Total Book Value Other Assets	1057228	TotalBookValueOtherAssets
Footnote In Part XIII	X	FootnoteInPartXIII
Tot Revenue Etc Audited Fincl Stmt	25744512	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	163682	NetUnrealizedGainsInvestments
Donated Srvc And Use Of Facilities	6030011	DonatedSrvcAndUseOfFacilities
Other Revenues	-50542	OtherRevenues
Revenue Not Rptd F990	6143151	RevenueNotRptdF990
Revenue Subtotal	19601361	RevenueSubtotal
Other Revenues Not Included	88891	OtherRevenuesNotIncluded
Revenue Not Rptd On Fin Stmt	88891	RevenueNotRptdOnFinStmt
Total Revenue Per Form990	19690252	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	25737701	TotExpensesEtcAuditedFinclStmt
Donated Services Use Of Facilities	6030011	DonatedServicesUseOfFacilities
Expenses Not Rptd F990	6030011	ExpensesNotRptdF990
Expenses Subtotal	19707690	ExpensesSubtotal
Other Expenses Not Included	88891	OtherExpensesNotIncluded
Expenses Not Rptd On Fin Stmt	88891	ExpensesNotRptdOnFinStmt
Total Expenses Per Form990	19796581	TotalExpensesPerForm990

Form990 Schedule D Part XIII Form990ScheduleDPartXIII (5 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS:	PART V, LINE 4:	THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES.
DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48:	PART X, LINE 2:	THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:		GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 27,398. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -77,940.
PART XI, LINE 4B - OTHER ADJUSTMENTS:		RETURNED PORTIONS OF UNUSED GRANTS 62,722. CAR DONATION PROGRAM COST 26,169.
PART XII, LINE 4B - OTHER ADJUSTMENTS:		RETURNED PORTIONS OF UNUSED GRANTS 62,722. CAR DONATION PROGRAM COST 26,169.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	1	GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (3 entries)

RegionRegion	Type Of Activities ConductedTypeOfActivitiesConducted	Specific Services ProvidedSpecificServicesProvided	Total ExpendituresTotalExpenditures
EUROPE (INCLUDING ICELAND & GREENLAND) -	GRANT MAKING	RESEARCH	507683
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANT MAKING	RESEARCH	128951
MIDDLE EAST AND NORTH AFRICA	GRANT MAKING	RESEARCH	100000

Field	Value	IRS element (for citing)
Subtotal Number Of Offices	0	SubtotalNumberOfOffices
Subtotal Number Of Employees	0	SubtotalNumberOfEmployees
Cont Number Of Offices	0	ContNumberOfOffices
Cont Number Of Employees	0	ContNumberOfEmployees
Total Number Of Offices	0	TotalNumberOfOffices
Total Number Of Employees	0	TotalNumberOfEmployees
Subtotal Amount Spent	736634	SubtotalAmountSpent
Cont Amount Spent	0	ContAmountSpent
Total Amount Spent	736634	TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (13 entries)

RegionRegion	Purpose Of GrantPurposeOfGrant	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement
EUROPE (INCLUDING ICELAND & GREENLAND) -	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	178768	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	37500	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	79422	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	51993	CHECK & WIRE TRANSFER
MIDDLE EAST AND NORTH AFRICA	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	100000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	80000	CHECK & WIRE TRANSFER
NORTH AMERICA	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	20000	CHECK & WIRE TRANSFER
NORTH AMERICA	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	35997	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	20000	CHECK & WIRE TRANSFER
NORTH AMERICA	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	32954	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	40000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND)	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	20000	CHECK & WIRE TRANSFER
NORTH AMERICA	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	40000	CHECK & WIRE TRANSFER

Field	Value	IRS element (for citing)
Total Number Of Other Orgs	14	TotalNumberOfOtherOrgs
Transfer To Foreign Corp	0	TransferToForeignCorp
Interest In Foreign Trust	0	InterestInForeignTrust
Own Foreign Corp	0	OwnForeignCorp
Passive Foreign Invest Co	0	PassiveForeignInvestCo
Foreign Partnership	0	ForeignPartnership
Boycott Countries	0	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV (2 entries)

IdentifierIdentifier	ExplanationExplanation
PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.:	SCHEDULE F, PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT.
METHOD USED TO ACCCOUNT FOR EXPENDITURES:	SCHEDULE F, PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO US INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	X	MailSolicitations
Email Solicitations	X	EmailSolicitations
Phone Solicitations	X	PhoneSolicitations
In Person Solicitations	X	InPersonSolicitations
Solicitation Of Non Govt Grants	X	SolicitationOfNonGovtGrants
Solicitation Of Govt Grants	X	SolicitationOfGovtGrants
Special Fundraising Events	X	SpecialFundraisingEvents
Agreement Ref Fundraising	1	AgreementRefFundraising

Fundraiser Activity Information FundraiserActivityInformation (3 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	ActivityActivity	Fundraiser Control Of FundsFundraiserControlOfFunds	Gross ReceiptsGrossReceipts	Amount Retained By ContractorAmountRetainedByContractor	Net To OrganizationNetToOrganization
NNE MARKETING LLC
105 PAUL REVERE ROAD	CONCORD	MA	01742	FUNDRAISING COUNSEL	0	2758960	348850	2410110
AMERICA'S CAR DONATION CENTER
3755 OMEC CR 4	RANCHO CORDOVA	CA	95742	CAR DONATIONS	1	70788	44619	26169
STRATEGIC FUNDRAISING INC
7591 9TH STREET NORTH	ST PAUL	MN	55128	MANAGES TELEMARKETING SOLICITATIONS	0	31046	32533	-1490

Field	Value	IRS element (for citing)
Total Gross Receipts	2860794	TotalGrossReceipts
Total Retained By Contractors	426002	TotalRetainedByContractors
Total Net To Organization	2434789	TotalNetToOrganization
Licensed States	AL	LicensedStates
Licensed States	AK	LicensedStates
Licensed States	AZ	LicensedStates
Licensed States	AK	LicensedStates
Licensed States	CA	LicensedStates
Licensed States	CO	LicensedStates
Licensed States	CT	LicensedStates
Licensed States	DE	LicensedStates
Licensed States	DC	LicensedStates
Licensed States	FL	LicensedStates
Licensed States	GA	LicensedStates
Licensed States	HI	LicensedStates
Licensed States	ID	LicensedStates
Licensed States	IL	LicensedStates
Licensed States	IN	LicensedStates
Licensed States	IA	LicensedStates
Licensed States	KS	LicensedStates
Licensed States	KY	LicensedStates
Licensed States	LA	LicensedStates
Licensed States	ME	LicensedStates
Licensed States	MD	LicensedStates
Licensed States	MA	LicensedStates
Licensed States	MI	LicensedStates
Licensed States	MN	LicensedStates
Licensed States	MS	LicensedStates
Licensed States	MO	LicensedStates
Licensed States	NE	LicensedStates
Licensed States	NH	LicensedStates
Licensed States	NJ	LicensedStates
Licensed States	NM	LicensedStates
Licensed States	NY	LicensedStates
Licensed States	NC	LicensedStates
Licensed States	ND	LicensedStates
Licensed States	OH	LicensedStates
Licensed States	OK	LicensedStates
Licensed States	OR	LicensedStates
Licensed States	PA	LicensedStates
Licensed States	RI	LicensedStates
Licensed States	SC	LicensedStates
Licensed States	SD	LicensedStates
Licensed States	TN	LicensedStates
Licensed States	UT	LicensedStates
Licensed States	VA	LicensedStates
Licensed States	WA	LicensedStates
Licensed States	WV	LicensedStates
Licensed States	WI	LicensedStates

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	ALSA WALK - PORTLAND	NameOfEvent1
Gross Receipts Event1	115578	GrossReceiptsEvent1
Charitable Contributions Event1	115578	CharitableContributionsEvent1
Rent Facility Costs Event1	1739	RentFacilityCostsEvent1
Other Direct Expenses Event1	7429	OtherDirectExpensesEvent1
Name Of Event2	ALSA WALK - BURLINGTON	NameOfEvent2
Gross Receipts Event2	77724	GrossReceiptsEvent2
Charitable Contributions Event2	77724	CharitableContributionsEvent2
Rent Facility Costs Event2	1143	RentFacilityCostsEvent2
Food And Beverage Event2	118	FoodAndBeverageEvent2
Entertainment Event2	25	EntertainmentEvent2
Other Direct Expenses Event2	4296	OtherDirectExpensesEvent2
Total Number Of Other Events	12	TotalNumberOfOtherEvents
Gross Receipts Other Events	157074	GrossReceiptsOtherEvents
Charitable Contrib Other Events	149674	CharitableContribOtherEvents
Gross Revenue Other Events	7400	GrossRevenueOtherEvents
Rent Facility Costs Other Events	2998	RentFacilityCostsOtherEvents
Other Direct Expenses Other Events	15408	OtherDirectExpensesOtherEvents
Gross Receipts Total	350376	GrossReceiptsTotal
Charitable Contributions Total	342976	CharitableContributionsTotal
Gross Revenue Total Events	7400	GrossRevenueTotalEvents
Rent Facility Costs Total Events	5880	RentFacilityCostsTotalEvents
Food And Beverage Total Events	118	FoodAndBeverageTotalEvents
Entertainment Total Events	25	EntertainmentTotalEvents
Other Direct Expenses Total Events	27133	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	33156	DirectExpenseSummaryEvents
Net Income Summary	-25756	NetIncomeSummary

Form990 Schedule G Part IV Form990ScheduleGPartIV

Field	Value	IRS element (for citing)
Identifier	FUNDRAISING EVENTS	Identifier
Return Reference	SCHEDULE G, PART II, LINE 11	ReturnReference
Explanation	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.	Explanation

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	1	RecordsMaintained

Recipient Table RecipientTable (111 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant	Address Line2AddressUS/AddressLine2
AMERICAN ACADEMY OF NEUROLOGY
1080 MONTREAL AVENUE	ST PAUL	MN	55116	410726167	501(C)(3)	25000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF WASHINGTON
3903 BROOKLYN AVENUE NE	SEATTLE	WA	98105	916001537	501(C)(3)	13301	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	046091500	010211513	501(C)(3)	44671	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
BRANDEIS UNIVERSITY
415 SOUTH STREET MS 144	WALTHAM	MA	02454	041103552	501(C)(3)	80000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF ROCHESTER
518 HYLAND BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	80000	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS
BETH ISRAEL MEDICAL CENTER
10 UNION SQUARE EAST	NEW YORK	NY	10003	135564934	501(C)(3)	53300	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
AMERICAN ACADEMY OF NEUROLOGY FOUNDATION
1080 MONTREAL AVENUE	ST PAUL	MN	55116	410726167	501(C)(3)	52500	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS(NINDSNIHDHHS)
9000 ROCKVILLE PIKE	BETHESDA	MD	20892	520858115	501(C)(3)	250000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DR MC-0660 CMM-EAST RM	LA JOLLA	CA	92093	237121131	501(C)(3)	65500	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	3041
JOHNS HOPKINS UNIVERSITY
C/O BANK OF AMERICA 12529 COLLECTIO	CHICAGO	IL	60693	520595110	501(C)(3)	80000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	CENTER DR
THE LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DR MC-0660 CMM - EAST	LA JOLLA	CA	92093	237121131	501(C)(3)	64255	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	ROOM 3041
UNIVERSITY OF MASSACHUSETTS
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	120000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
EMORY UNIVERSITY
1599 CLIFTON RD 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	151480	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE
1400 NW 10TH AVE	MIAMI	FL	33136	590624458	501(C)(3)	125630	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	126923	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
HUDSON ALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY	HUNTSVILLE	AL	35806	432059317	501(C)(3)	125000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY
630 WEST 168TH ST BOX 49	NEW YORK	NY	100323702	135598093	501(C)(3)	120000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
CENTER FOR NEUROLOGIC STUDY
7825 FAY AVENUE SUITE 200	LA JOLLA	CA	92037	953374771	501(C)(3)	14758	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE	BOSTON	MA	02199	042697983	501(C)(3)	138106	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
RESEARCH FOUNDATION OF SUNY
PO BOX 9	ALBANY	NY	12201	141368361	501(C)(3)	30163	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS PLACE	COLUMBUS	OH	43205	316056230	501(C)(3)	45000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
WASHINGTON UNIVERSITY
660 SOUTH EUCLID AVENUE	ST LOUIS	MO	63110	430653611	501(C)(3)	80000	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
JOHNS HOPKINS UNIVERSITY AT EASTERN
1101 EAST 33RD STREET SUITE B-219	BALTIMORE	MD	21218	520595110	501(C)(3)	74240	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	02241	042697983	501(C)(3)	274411	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
THE RESEARCH FOUNDATION OF SUNY
750 EAST ADAMS STREET WEISKOTTEN	SYRACUSE	NY	13210	141368361	501(C)(3)	130163	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)	HALL ROOM 1111D
JOHNS HOPKINS UNIVERSITY
1830 E MONUMENT STREET SUITE 9030	BALTIMORE	MD	21205	520595110	501(C)(3)	40000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
JOHNS HOPKINS UNIVERSITY
855 N WOLFE ST RANGOS 242	BALTIMORE	MD	21205	520595110	501(C)(3)	40000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
MAYO CLINIC JACKSONVILLE FLORIDA
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	40000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660	LA JOLLA	CA	920930660	237121131	501(C)(3)	40000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
13500 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	02138	042103580	501(C)(3)	40000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF FLORIDA
PO BOX 115500 219 GRINTER HALL	GAINESVILLE	FL	32611	596002052	501(C)(3)	50000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
HARVARD UNIVERSITY
HOLYOKE CENTER 600 1350 MASSACHUSET	CAMBRIDGE	MA	02138	042103580	501(C)(3)	50000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	S AVE
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MS 509	MEMPHIS	TN	38105	620646012	501(C)(3)	50000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	50000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
TRUSTEES OF COLUMBIA IN THE CITY OF NEW YORK
630 WEST 168TH ST BOX 49	NEW YORK	NY	10032	135598093	501(C)(3)	50000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF MICHIGAN
3003 S STATE STREET ROOM 1054	ANN ARBOR	MI	48109	386006309	501(C)(3)	150000	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
OREGON HEALTH AND SCIENCE UNIVERSITY
0690 SW BANCROFT L106SPA	PORTLAND	OR	97239	931176109	501(C)(3)	80000	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
LSU HEALTH SCIENCES CENTER
433 BOLIVAR STREET	ORLEANS	LA	70112	726087770	501(C)(3)	80000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
EMORY UNIVERSITY
1599 CLIFTON RD 4TH FLOOR	ATLANTA	GA	303224250	580566256	501(C)(3)	69318	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST SUITE 6401	MADISON	WI	537151218	396006492	501(C)(3)	79972	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
P O BOX 3887	BOSTON	MA	022413887	042312909	501(C)(3)	80000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UCSD-OPAFS
9500 GILMAN DRIVE MC 0009	LA JOLLA	CA	920930009	956006144	501(C)(3)	80000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
337 FRANK D PETERSON SERVICE BLDG	LEXINGTON	KY	405060005	616033693	501(C)(3)	78342	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF MASSACHUSETTTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	20000	ALAN PHILLIPS
ROCKEFELLER UNIVERSITY
1230 YORK AVENUE BOX 259A	NEW YORK	NY	10065	131624158	501(C)(3)	20000	ALAN PHILLIPS
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316401599	501(C)(3)	32500	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	03755	020222111	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CINCINNATI CHILDREN'S HOSPITAL
3333 BURNET AVENUE ML 4900	CINCINNATI	OH	452293039	310833936	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316401599	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF FLORIDA
219 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	32611	596002052	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BRIGHAM AND WOMEN'S HOSPITAL
BANK OF AMERICA NA PO BOX 3887	BOSTON	MA	02241	042312909	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE J DAVID GLADSTONE INSTITUTES
1650 OWENS ST	SAN FRANCISCO	CA	94158	237203666	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
PRESIDENT AND FELLOWS OF HARVARD UNIVERSITY
HOLYOKE CENTER SUITE 600 1350	CAMBRIDGE	MA	02138	042103580	501(C)(3)	39863	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	MASSACHUSETTS AVE
TRUSTEES OF COLUMBIA UNIVERSITY
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVENUE S AB 990	BIRMINGHAM	AL	35294	636005396	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DRIVE MC 0934	LA JOLLA	CA	92093	946036493	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD 6500 WIL SUITE	LOS ANGELES	CA	90048	951644600	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	1150
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST SUITE 6401	MADISON	WI	53715	396006492	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CHILDREN'S HOSPITAL BOSTON
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	20000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
JOHNS HOPKINS UNIVERSITY
C/O BANK OF AMERICA 12529 COLLECTIO	CHICAGO	IL	60693	520595110	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	S CENTER DR
REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DRIVE MC 0934	LA JOLLA	CA	920930934	946036493	501(C)(3)	40000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
MASSACHUSETTS GENERAL HOSPITAL
149 13TH STREET STE 2264	CHARLESTOWN	MA	02129	042697983	501(C)(3)	150000	TREAT ALS GRANTS (CLINICAL SCIENTIST)
THE RESEARCH FOUNDATION OF SUNY
750 E ADAMS STREET RESEARCH ADMIN	SYRACUSE	NY	13210	141368361	501(C)(3)	75000	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)	WH 1111D
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE 300	BOSTON	MA	02199	042697983	501(C)(3)	100000	CLINICAL MANAGEMENT AWARD
UNIVERSITY OF MIAMI
1400 NW 10 AVE	MIAMI	FL	33136	590624458	501(C)(3)	150000	CLINICAL PILOT AWARD STUDY
EMORY UNIVERSITY
101 WOODRUFF CIR	ATLANTA	GA	30322	580566256	501(C)(3)	149486	CLINICAL PILOT AWARD STUDY
UNIVERSITY OF KENTUCKY
C/O PNC BANK PO BOX 931113	CLEVELAND	OH	44193	616033693	501(C)(3)	100000	CLINICAL MANAGEMENT AWARD
JOHNS HOPKINS UNIVERSITY
1830 E MONUMENT STREET SUITE 9030	BALTIMORE	MD	21205	520595110	501(C)(3)	148034	CLINICAL PILOT AWARD STUDY
RESEARCH FOUNDATION OF SUNY
PO BOX 9	ALBANY	NY	12201	141368361	501(C)(3)	150000	CLINICAL PILOT AWARD STUDY
BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
P O BOX 3887	BOSTON	MA	022413887	042312909	501(C)(3)	121752	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
THE ALS ASSOCIATION-GOLDEN WEST CHAPTER
P O BOX 565	AGOURA HILLS	CA	913760565	954163338	501(C)(3)	20000	IN SUPPORT OF THE CA STATE ADVOCACY 414 CAMPAIGN
THE ALS ASSOCIATION-UPSTATE NEW YORK CHAPTER
890 SEVENTH NORTH STREET	LIVERPOOL	NY	13088	371667986	501(C)(3)	195308	GRANTS FOR CHAPTER DEVELOPMENT
THE ALS ASSOCIATION-TEXAS CHAPTER
1231 GREENWAY DRIVE SUITE 295	IRVING	TX	75038	742678974	501(C)(3)	66099	GRANTS FOR CHAPTER DEVELOPMENT
ALS CENTER
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	501(C)(3)	13100	ALSA CENTER
ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & MEDICAL
97 PATERSON ST	NEW BRUNSWICK	NJ	08903	201285267	501(C)(3)	25600	ALSA CENTER
BANNER GOOD SAMARITAN MEDICAL CENTER
1012 E WILLETTA STREET	PHOENIX	AZ	85006	410726167	501(C)(3)	12500	ALSA CENTER
BAYLOR COLLEGE OF MEDICINE
6550 FANNIN SUITE 1801 SMITH TOWER	HOUSTON	TX	77030	741613878	501(C)(3)	11800	ALSA CENTER
BETH ISRAEL MEDICAL CENTER ALS CLINIC
10 UNION SQUARE EAST	NEW YORK	NY	10003	042103881	501(C)(3)	13100	ALSA CENTER
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44195	340714585	501(C)(3)	12500	ALSA CENTER
CURT AND SHONDA SCHILLING ALS CLINIC
41 MALL ROAD	BURLINGTON	MA	01805	237121131	501(C)(3)	11800	ALSA CENTER
DUKE UNIVERSITY MEDICAL CENTER
DUMC BOX 3333 932 MORREENE ROAD	DURHAM	NC	27705	560532129	501(C)(3)	13100	ALSA CENTER
FORBES NORRIS ALS RESEARCH CENTER
2324 SACRAMENTO ST	SAN FRANCISCO	CA	94115	262047755	501(C)(3)	13100	ALSA CENTER
GEORGE WASHINGTON UNIVERSITY
2150 PENNSYLVANIA AVE NW 7-401	WASHINGTON	DC	20037	542126575	501(C)(3)	11800	ALSA CENTER
GEORGIA HEALTH SCIENCES FOUNDATION INC
1120 15TH STREET BP 4390	AUGUSTA	GA	309120004	352310573	501(C)(3)	13100	ALSA CENTER
HARRY J HOENSLAAR ALS CLINIC
2799 WEST GRAND AVE K-11 NEUROLOGY	DETROIT MI	MI	48202	381357020	501(C)(3)	13100	ALSA CENTER
HENNEPIN COUNTY MEDICAL CENTER (HCMC)
825 SOUTH EIGHTH STREET SUITE 250	MINNEAPOLIS	MD	55404	381357020	501(C)(3)	12500	ALSA CENTER
INDIANA UNIVERSITY ALS CENTER
1050 WISHARD BLVD REGENSTRIEF 6TH	INDIANAPOLIS	IN	46202	520595110	501(C)(3)	13100	ALSA CENTER	FLOOR
MAYO CLINIC - ALS CLINIC
13400 EAST SHEA BLVD	SCOTTSDALE	AZ	852595404	593337028	501(C)(3)	11800	ALSA CENTER
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD S CANNADAY 2E	JACKSONVILLE	FL	322241865	593337028	501(C)(3)	13100	ALSA CENTER
MAYO MEDICAL CLINIC
200 FIRST STREET SW	ROCHESTER	MD	55905	416011702	501(C)(3)	12500	ALSA CENTER
MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL
9200 W WISCONSIN AVE	MILWAUKEE	WI	53226	390806261	501(C)(3)	13100	ALSA CENTER
NEUROLOGY ASSOCIATES OF STONY BROOK
179 BELLE MEADE ROAD SUITE 3	EAST SETAUKET	NY	11733	113243405	501(C)(3)	12500	ALSA CENTER
PENN STATE UNIVERSITY
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	501(C)(3)	13100	ALSA CENTER
PROVIDENCE ALS CENTER
5050 NE HOYT STE 315	PORTLAND	OR	97213	931176109	501(C)(3)	13100	ALSA CENTER
SOUTH TEXAS ALS CLINIC
8300 FLOYD CURL DRIVE MSC 7883	SAN ANTONIO	TX	782293900	741586031	501(C)(3)	13100	ALSA CENTER
ST LOUIS UNIVERSITY HOSPITAL
1438 SOUTH GRAND BLVD MONTELEONE	ST LOUIS	MO	63104	430654872	501(C)(3)	13100	ALSA CENTER	HALL
SUNY RESEARCH FOUNDATION
750 E ADAMS ST	SYRACUSE	NY	13210	141368361	501(C)(3)	13100	ALSA CENTER
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)(3)	11800	ALSA CENTER
THE NEUROMUSCULAR ALS CLINIC
2150 CORBIN AVE	NEW BRITAIN	CT	06053	060546766	501(C)(3)	13100	ALSA CENTER
UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
350 PARNASSUS AVENUE SUITE 500	SAN FRANCISCO	CA	94117	946036493	501(C)(3)	13100	ALSA CENTER
UNIVERSITY OF KANSAS MEDICAL CENTER
3599 RAINBOW BLVD MAIL STOP 2012	KANSAS CITY	KS	66160	480647721	501(C)(3)	13100	ALSA CENTER
UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR
ALBERT CHANDLER MED CTR	LEXINGTON	KY	405360084	616001218	501(C)(3)	13100	ALSA CENTER
UNIVERSITY OF MICHIGAN HEALTH SYSTEM
1500 E MEDICAL CENTER DR	ANN ARBOR	MI	481090316	386006309	501(C)(3)	13100	ALSA CENTER
UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE
2211 LOMAS NE - MSC 10 5620	ALBUQUERQUE	NM	87131	856000642	501(C)(3)	25400	ALSA CENTER
UNIVERSITY OF VERMONT COLLEGE OF MEDICINE
89 BEAUMONT AVENUE	BURLINGTON	VT	05405	030179440	501(C)(3)	12500	ALSA CENTER
VIRGINIA MASON MEDICAL CENTER ALS CLINIC
PO BOX 900 M/S X7 NEU	SEATTLE	WA	98111	910565539	501(C)(3)	13100	ALSA CENTER
WAKE FOREST BAPTIST MEDICAL CENTER
MEDICAL CENTER BLVD 3RD FLOOR MEADS	WINSTONSALEM	NC	271571078	223849199	501(C)(3)	12500	ALSA CENTER	MEADS
DARTMOUTH HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)(3)	11800	ALSA CENTER-NNE
UNIV OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DR MSC 6248	SAN ANTONIO	TX	782293900	741586031	501(C)(3)	25000	CLINICAL GRANT

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	117	TotalNbrOf501C3AndGovtGrants

Form990 Schedule I Part IV Form990ScheduleIPartIV (2 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
PROCEDURE FOR MONITORING GRANTS IN THE U.S.:	PART I, LINE 2:	SCHEDULE I, PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.
		SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Substantiation Required	1	SubstantiationRequired
Compensation Committee	X	CompensationCommittee
Written Employment Contract	X	WrittenEmploymentContract
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	0	SeverancePayment
Supplemental Nonqual Retire Plan	0	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	0	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	0	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	0	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	0	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	0	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	0	AnyNonFixedPayments
Initial Contract Exception	0	InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (6 entries)

TitleTitle	Base Compensation Filing OrgBaseCompensationFilingOrg	Comp Based On Related OrgsCompBasedOnRelatedOrgs	Bonus Filing OrgBonusFilingOrg	Bonus Related OrgsBonusRelatedOrgs	Other Compensation Filing OrgOtherCompensationFilingOrg	Other Compensation Related OrgsOtherCompensationRelatedOrgs	Deferred Comp Filing OrgDeferredCompFilingOrg	Deferred Comp Related OrgsDeferredCompRelatedOrgs	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg	Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg	Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs	Total Compensation Filing OrgTotalCompensationFilingOrg	Total Compensation Related OrgsTotalCompensationRelatedOrgs
JAY DAUGHERTY
CHAIRMAN	0	0	0	0	0	0	0	0	0	0	0	0
JANE H GILBERT
PRESIDENT AND CEO	297288	0	0	0	0	0	13188	0	9479	0	0	0	319955	0
DANIEL M REZNIKOV
CHIEF FINANCIAL OFFICER	195190	0	0	0	0	0	9445	0	1327	0	0	0	205962	0
KENNETH NICHOLLS
CHIEF CHAPTER RELATIONS OFFICER	177374	0	0	0	0	0	8503	0	10893	0	0	0	196770	0
STEVE GIBSON
CHIEF PUBLIC POLICY OFFICER	176430	0	0	0	0	0	8663	0	9139	0	0	0	194232	0
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICER	152264	0	0	0	0	0	4263	0	661	0	0	0	157188	0

Form990 Schedule J Part III Form990ScheduleJPartIII

Field	Value	IRS element (for citing)
Return Reference	PART I, LINE 3	ReturnReference
Explanation	THE EXECUTIVE COMPENSATION & EVALUATION COMMITTEE OF THE BOARD OF DIRECTORS DETERMINES THE COMPENSATION OF THE PRESIDENT AND CEO AND MUST BE APPROVED BY THE EXECUTIVE COMMITTEE. THE PRESIDENT AND CEO DETERMINES THE COMPENSATION OF THE THE TOP FINANCIAL EMPLOYEE AND ANY KEY EMPLOYEES.	Explanation

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehicles

Field	Value	IRS element (for citing)
Non Cash Checkbox	X	NonCashCheckbox
Number Of Contributions	116	NumberOfContributions
Noncash Contribs Rptd F990	70788	NoncashContribsRptdF990
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenues

Other Non Cash Contributions Table OtherNonCashContributionsTable (2 entries)

Non Cash CheckboxNonCashCheckbox	DescriptionDescription	Number Of ContributionsNumberOfContributions	Noncash Contribs Rptd F990NoncashContribsRptdF990	Method Of Determining RevenuesMethodOfDeterminingRevenues
X	MICROSOFT OFFICE PROFESSIONAL PLUS 2010 SOFTWARE	1	4590	FMV
X	THE CONTAINER STORE GIFT CARDS	3	150	FMV

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts	1	ReviewProcessUnusualNCGifts
Third Parties Used	1	ThirdPartiesUsed

Form990 Schedule M Part II Form990ScheduleMPartII

Field	Value	IRS element (for citing)
Identifier	THIRD PARTY USE:	Identifier
Return Reference	PART I, LINE 32B:	ReturnReference
Explanation	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.	Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (8 entries)

Return ReferenceReturnReference	ExplanationExplanation	IdentifierIdentifier
FORM 990, PART VI, SECTION A, LINE 4	ALSA MADE THE FOLLOWING CHANGES TO SECTION 8.8.1 OF IT'S BYLAWS FOR FYE 01/31/13: - APPOINTMENTS TO THE CARE SERVICES COMMITTEE ARE NO LONGER LIMITED TO "STAFF OF" THE CARE SERVICES DEPARTMENT. THEY NOW INCLUDE "THOSE PEOPLE AFFILIATED WITH" THE CARE SERVICES DEPARMENT. - VACANCIES FILLED WITHIN THE CARE SERVICES COMITTEE ARE NO LONGER LIMITED TO "STAFF MEMBERS OF" THE CARE SERVICES DEPARTMENT. THEY NOW INCLUDE THOSE "AFFILIATED WITH" THE CARE SERVICES DEPARMENT.
FORM 990, PART VI, SECTION B, LINE 11	THE CFO OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED BY THE COMPENSATION COMMITTEE. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST.
FORM 990, PART XI, LINE 9:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 27,398. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -77,940.	CHANGES IN NET ASSETS OR FUND BALANCES:
FORM 990, PART VIII, LINE 8C	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.	FUNDRAISING EVENTS
FORM 990, SCHEDULE D, PART XII, LINE 2B AND PART XIII, LINE 2A	THE ASSOCIATION PRODUCES AND DISTRIBUTES PUBLIC SERVICE TELEVISION ANNOUNCEMENTS THAT FOCUS ATTENTION ON EDUCATION AND AWARENESS. THESE PUBLIC SERVICE ANNOUNCEMENTS ARE DISTRIBUTED TO MEDIA STATIONS NATIONWIDE AND RUN FREE OF CHARGE. THE ASSOCIATION HAS CONTRACTED WITH AN INDEPENDENT OUTSIDE AGENCY TO TRACK THE DATE AND TIME THAT EACH PUBLIC SERVICE ANNOUNCEMENT RUNS, AND THE VALUE OF THE ANNOUNCEMENTS IS BASED ON THE DATE, TIME, AND MARKET. FOR THE YEAR ENDED JANUARY 31, 2013, THE ASSOCIATION RECORDED $6,030,011 OF CONTRIBUTED PUBLIC SERVICE ANNOUNCEMENTS.	DONATED SERVICES