2013-08-06T11:05:09-05:00 2013-01-31 953001179 WINDES & MCCLAUGHRY ACCT CORP PO BOX 87 LONG BEACH CA 908010087 990 2012-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW NO 250 WASHINGTON DC 20005 DANIEL M REZNIKOV 2024078580 2013-08-05 1 DONITA M JOSEPH P00286656 5624351191 2012 2015-11-30 17:44:51Z X THE ALS ASSOCIATION JANE H GILBERT 1275 K STREET NW NO 250 WASHINGTON DC 20005 21211696 0 4119 X WWW.ALSA.ORG X 1985 DE TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. 19 19 71 31 0 0 19126742 19357009 39475 46000 283223 208866 309386 78377 19758826 19690252 4394391 6843097 0 0 4865099 5138716 298692 709621 3030168 6266025 7105147 15824207 19796581 3934619 -106329 20256339 20059969 2760956 2557775 17495383 17502194 LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 6636606 6014185 RESEARCH PROGRAMS - FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE. (91 RESEARCH GRANTS) 5086234 808912 PATIENT & COMMUNITY SERVICES - THE ASSOCIATION PROVIDES OVERSIGHT AND SUPPORT SERVICES TO ITS CHAPTERS. THROUGH THESE CHAPTERS THE ASSOCIATION SERVES AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, AND HEALTH CARE PROFESSIONALS. WE NOT ONLY PROVIDE OVERSIGHT AND ORGANIZATIONAL DEVELOPMENT SUPPORT TO THE ASSOCIATION'S CHAPTERS IN SUPPORT OF THOSE SERVICES, BUT ALSO PROVIDE GRANTS TO THE ASSOCIATION'S CERTIFIED CENTERS. 2848548 20000 46000 PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES. 14571388 1 1 0 1 0 0 0 0 0 1 1 0 0 1 0 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 54 0 1 71 1 0 0 0 0 0 1 1 0 0 0 1 0 X 19 19 0 0 1 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AZ AK AR CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI X X X JOHN W APPLEGATE 8188809007 27001 AGOURA ROAD SUITE 250 CALABASAS HILLS CA 91301 JAY DAUGHERTY 2.00 X X 0 0 0 WILLIAM THOET 2.00 X X 0 0 0 LUIS E LEON 2.00 X X 0 0 0 DOUGLAS BUTCHER 2.00 X X 0 0 0 LAWRENCE R BARNETT ESQ 2.00 X 0 0 0 PHYLLIS R BROURMAN ESQ 2.00 X 0 0 0 CHRIS BRUSSALIS 2.00 X 0 0 0 DANIEL DEGRANDPRE 2.00 X 0 0 0 CYNTHIA DOUTHAT 2.00 X 0 0 0 ROBIN GANZERT 2.00 X 0 0 0 WILSON KRAHNKE 2.00 X 0 0 0 EDMUND G MCCURTAIN II 2.00 X 0 0 0 KIM ANN MINK PHD 2.00 X 0 0 0 TIMOTHY O'TOOLE 2.00 X 0 0 0 ELLYN G PHILLIPS 2.00 X 0 0 0 JONATHAN ROBERTS 2.00 X 0 0 0 ELIZABETH ROSENBERG 2.00 X 0 0 0 WILLIAM D SOFFEL 2.00 X 0 0 0 CHRIS STEVENS 2.00 X 0 0 0 JANE H GILBERT 37.50 X 297288 0 22667 DANIEL M REZNIKOV 37.50 X 195190 0 10772 KENNETH NICHOLLS 37.50 X 177374 0 19396 STEVE GIBSON 37.50 X 176430 0 17802 KIMBERLY HARDING-MAGINNIS 37.50 X 152264 0 4924 JOHN W APPLEGATE 37.50 X 115652 0 14475 DAVID MOSES 37.50 X 108813 0 14223 LANCE SLAUGHTER 37.50 X 106058 0 13310 KAREN STARLEAF 37.50 X 105979 0 20234 LEIGH ANN CARDENAS 37.50 X 104657 0 13475 1539705 0 151278 11 0 1 0 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 MARKETING 320850 LOST HILLS OFFICE PARTNERS LLC 26901 AGOURA RD STE 180-B CALABASAS HILLS CA 91301 LANDLORD 297046 MICHAEL COSCIA 304 TWELFTH STREET SE PO BOX 15084 WASHINGTON DC 20003 MARKETING 233253 LUCIE BRUIJN PHD FLAT 5 15 ST GERMANS PLACE LONDON UK SE3 ONN RESEARCH CONSULTANT 226667 METRO K LLC CO COLLIERS INTERNATIONAL PO BOX 4857 PORTLAND OR 972084857 LANDLORD 219487 5 327865 342976 909874 17776294 4740 19357009 CONFERENCE FEES 900099 46000 46000 46000 162972 162972 11250 11250 1534182 1488288 45894 45894 45894 7400 342976 33156 -25756 -25756 UNUSED/REIMB GRANTS 900099 62722 62722 MISCELLANEOUS INCOME 900099 30161 30161 92883 19690252 46000 0 287243 6104600 6104600 1863 1863 736634 736634 1068398 638143 209723 220532 3260161 1947260 639960 672941 145627 86982 28586 30059 313366 187170 61513 64683 351164 209746 68933 72485 1691174 1388753 260397 42024 11399 1900 9499 44725 44725 36717 36717 709621 709621 449292 341266 3683 104343 343579 173482 63370 106727 485933 237171 158134 90628 1171175 1069243 50591 51341 85124 46994 24570 13560 APPEAL EXPENSES 1005480 238468 767012 CHAPTER SUPPORT 1005327 1005327 MISCELLANEOUS 341156 18858 275326 46972 BAD DEBT RECOVERY 268146 268146 165920 100811 37368 27741 19796581 14571388 2195025 3030168 X 1005480 238468 0 767012 5017270 5525946 1817700 1776766 5068863 3933182 305027 230418 1370420 1148278 165883 222142 6724420 7314287 1157176 1057228 20256339 20059969 2307400 2377441 453556 180334 2760956 2557775 X 8106576 8317870 8492325 8260444 896482 923880 17495383 17502194 20256339 20059969 X -106329 163682 -50542 X 0 1 X 1 0 X 15917492 14583917 17744381 19126742 19357009 86729541 15917492 14583917 17744381 19126742 19357009 86729541 1036939 85692602 186824 77526 55620 283223 220116 823309 49499 47654 31744 14736 30161 173794 87726644 154377 0.97680 0.97710 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 26625 259142 285767 14310191 14595958 879798 219950 0 0 661049 757265 869634 879798 3167746 4751619 380508 370155 374683 285767 1411113 165262 189316 217409 219950 791937 1187906 48887 34220 32593 26625 142325 PART IV, SUPPLEMENTAL INFORMATION: THE PURPOSE OF OUR ADVOCACY PROGRAM IS TO SENSITIZE LEGISLATORS TO, AND OBTAIN THEIR SYMPATHY FOR, THE PLIGHT OF ALS VICTIMS, PATIENTS AND THEIR FAMILIES, AND TO INFLUENCE LEGISLATION REGARDING THE APPROPRIATION OF FEDERAL FUNDS FOR ALS RESEARCH AND THE USE AND COST TO PATIENTS OF "ORPHAN" DRUGS. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX-EXEMPT PURPOSE. 240000 13666 13666 240000 240000 8091 8091 240000 240000 26305 26305 240000 240000 12739 12739 240000 240000 18675 18675 240000 1.00000 0 0 185327 114507 70820 1084231 1033771 50460 100862 100862 222142 OFFICE LEASE DEPOSITS 47447 VENDOR DEPOSITS 1401 OTHER RECEIVABLES 38105 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 970275 1057228 X 25744512 163682 6030011 -50542 6143151 19601361 88891 88891 19690252 25737701 6030011 6030011 19707690 88891 88891 19796581 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 27,398. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -77,940. PART XI, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 62,722. CAR DONATION PROGRAM COST 26,169. PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 62,722. CAR DONATION PROGRAM COST 26,169. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 GRANT MAKING RESEARCH 507683 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANT MAKING RESEARCH 128951 MIDDLE EAST AND NORTH AFRICA 0 0 GRANT MAKING RESEARCH 100000 0 0 0 0 0 0 736634 0 736634 EUROPE (INCLUDING ICELAND & GREENLAND) - LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 178768 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 37500 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 79422 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 51993 CHECK & WIRE TRANSFER MIDDLE EAST AND NORTH AFRICA TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 100000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 80000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 35997 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 32954 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER 14 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. METHOD USED TO ACCCOUNT FOR EXPENDITURES: SCHEDULE F, PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO US INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. X X X X X X X 1 NNE MARKETING LLC 105 PAUL REVERE ROAD CONCORD MA 01742 FUNDRAISING COUNSEL 0 2758960 348850 2410110 AMERICA'S CAR DONATION CENTER 3755 OMEC CR 4 RANCHO CORDOVA CA 95742 CAR DONATIONS 1 70788 44619 26169 STRATEGIC FUNDRAISING INC 7591 9TH STREET NORTH ST PAUL MN 55128 MANAGES TELEMARKETING SOLICITATIONS 0 31046 32533 -1490 2860794 426002 2434789 AL AK AZ AK CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI ALSA WALK - PORTLAND 115578 115578 1739 7429 ALSA WALK - BURLINGTON 77724 77724 1143 118 25 4296 12 157074 149674 7400 2998 15408 350376 342976 7400 5880 118 25 27133 33156 -25756 FUNDRAISING EVENTS SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. 1 AMERICAN ACADEMY OF NEUROLOGY 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)(3) 25000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF WASHINGTON 3903 BROOKLYN AVENUE NE SEATTLE WA 98105 916001537 501(C)(3) 13301 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 046091500 010211513 501(C)(3) 44671 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS BRANDEIS UNIVERSITY 415 SOUTH STREET MS 144 WALTHAM MA 02454 041103552 501(C)(3) 80000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)(3) 80000 TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS BETH ISRAEL MEDICAL CENTER 10 UNION SQUARE EAST NEW YORK NY 10003 135564934 501(C)(3) 53300 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS AMERICAN ACADEMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)(3) 52500 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS(NINDSNIHDHHS) 9000 ROCKVILLE PIKE BETHESDA MD 20892 520858115 501(C)(3) 250000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DR MC-0660 CMM-EAST RM 3041 LA JOLLA CA 92093 237121131 501(C)(3) 65500 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY C/O BANK OF AMERICA 12529 COLLECTIO CENTER DR CHICAGO IL 60693 520595110 501(C)(3) 80000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS THE LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DR MC-0660 CMM - EAST ROOM 3041 LA JOLLA CA 92093 237121131 501(C)(3) 64255 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS 55 LAKE AVE NORTH WORCESTER MA 01655 043167352 501(C)(3) 120000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 30322 580566256 501(C)(3) 151480 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE 1400 NW 10TH AVE MIAMI FL 33136 590624458 501(C)(3) 125630 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY PO BOX 29789 GENERAL POST OFFICE NEW YORK NY 100879789 135598093 501(C)(3) 126923 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS HUDSON ALPHA INSTITUTE FOR BIOTECHNOLOGY 601 GENOME WAY HUNTSVILLE AL 35806 432059317 501(C)(3) 125000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY 630 WEST 168TH ST BOX 49 NEW YORK NY 100323702 135598093 501(C)(3) 120000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS CENTER FOR NEUROLOGIC STUDY 7825 FAY AVENUE SUITE 200 LA JOLLA CA 92037 953374771 501(C)(3) 14758 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE BOSTON MA 02199 042697983 501(C)(3) 138106 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) RESEARCH FOUNDATION OF SUNY PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 30163 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS PLACE COLUMBUS OH 43205 316056230 501(C)(3) 45000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS WASHINGTON UNIVERSITY 660 SOUTH EUCLID AVENUE ST LOUIS MO 63110 430653611 501(C)(3) 80000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY AT EASTERN 1101 EAST 33RD STREET SUITE B-219 BALTIMORE MD 21218 520595110 501(C)(3) 74240 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) MASSACHUSETTS GENERAL HOSPITAL - RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 02241 042697983 501(C)(3) 274411 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE RESEARCH FOUNDATION OF SUNY 750 EAST ADAMS STREET WEISKOTTEN HALL ROOM 1111D SYRACUSE NY 13210 141368361 501(C)(3) 130163 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) JOHNS HOPKINS UNIVERSITY 1830 E MONUMENT STREET SUITE 9030 BALTIMORE MD 21205 520595110 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST RANGOS 242 BALTIMORE MD 21205 520595110 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 LA JOLLA CA 920930660 237121131 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD COLLEGE 13500 MASSACHUSETTS AVENUE CAMBRIDGE MA 02138 042103580 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF FLORIDA PO BOX 115500 219 GRINTER HALL GAINESVILLE FL 32611 596002052 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS HARVARD UNIVERSITY HOLYOKE CENTER 600 1350 MASSACHUSET S AVE CAMBRIDGE MA 02138 042103580 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MS 509 MEMPHIS TN 38105 620646012 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE NORTH WORCESTER MA 01655 043167352 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS TRUSTEES OF COLUMBIA IN THE CITY OF NEW YORK 630 WEST 168TH ST BOX 49 NEW YORK NY 10032 135598093 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF MICHIGAN 3003 S STATE STREET ROOM 1054 ANN ARBOR MI 48109 386006309 501(C)(3) 150000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) OREGON HEALTH AND SCIENCE UNIVERSITY 0690 SW BANCROFT L106SPA PORTLAND OR 97239 931176109 501(C)(3) 80000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS LSU HEALTH SCIENCES CENTER 433 BOLIVAR STREET ORLEANS LA 70112 726087770 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 303224250 580566256 501(C)(3) 69318 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST SUITE 6401 MADISON WI 537151218 396006492 501(C)(3) 79972 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH P O BOX 3887 BOSTON MA 022413887 042312909 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UCSD-OPAFS 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 920930009 956006144 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 337 FRANK D PETERSON SERVICE BLDG LEXINGTON KY 405060005 616033693 501(C)(3) 78342 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)(3) 20000 ALAN PHILLIPS ROCKEFELLER UNIVERSITY 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)(3) 20000 ALAN PHILLIPS OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)(3) 32500 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER NH 03755 020222111 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE ML 4900 CINCINNATI OH 452293039 310833936 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK RD MILWAUKEE WI 53226 390806261 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF FLORIDA 219 GRINTER HALL PO BOX 115500 GAINESVILLE FL 32611 596002052 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL BANK OF AMERICA NA PO BOX 3887 BOSTON MA 02241 042312909 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE J DAVID GLADSTONE INSTITUTES 1650 OWENS ST SAN FRANCISCO CA 94158 237203666 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD UNIVERSITY HOLYOKE CENTER SUITE 600 1350 MASSACHUSETTS AVE CAMBRIDGE MA 02138 042103580 501(C)(3) 39863 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS TRUSTEES OF COLUMBIA UNIVERSITY PO BOX 29789 GENERAL POST OFFICE NEW YORK NY 100879789 135598093 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVENUE S AB 990 BIRMINGHAM AL 35294 636005396 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 92093 946036493 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD 6500 WIL SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST SUITE 6401 MADISON WI 53715 396006492 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CHILDREN'S HOSPITAL BOSTON PO BOX 414413 BOSTON MA 02241 042774441 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY C/O BANK OF AMERICA 12529 COLLECTIO S CENTER DR CHICAGO IL 60693 520595110 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 920930934 946036493 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL 149 13TH STREET STE 2264 CHARLESTOWN MA 02129 042697983 501(C)(3) 150000 TREAT ALS GRANTS (CLINICAL SCIENTIST) THE RESEARCH FOUNDATION OF SUNY 750 E ADAMS STREET RESEARCH ADMIN WH 1111D SYRACUSE NY 13210 141368361 501(C)(3) 75000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE 300 BOSTON MA 02199 042697983 501(C)(3) 100000 CLINICAL MANAGEMENT AWARD UNIVERSITY OF MIAMI 1400 NW 10 AVE MIAMI FL 33136 590624458 501(C)(3) 150000 CLINICAL PILOT AWARD STUDY EMORY UNIVERSITY 101 WOODRUFF CIR ATLANTA GA 30322 580566256 501(C)(3) 149486 CLINICAL PILOT AWARD STUDY UNIVERSITY OF KENTUCKY C/O PNC BANK PO BOX 931113 CLEVELAND OH 44193 616033693 501(C)(3) 100000 CLINICAL MANAGEMENT AWARD JOHNS HOPKINS UNIVERSITY 1830 E MONUMENT STREET SUITE 9030 BALTIMORE MD 21205 520595110 501(C)(3) 148034 CLINICAL PILOT AWARD STUDY RESEARCH FOUNDATION OF SUNY PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 150000 CLINICAL PILOT AWARD STUDY BRIGHAM AND WOMEN'S HOSPITAL RESEARCH P O BOX 3887 BOSTON MA 022413887 042312909 501(C)(3) 121752 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE ALS ASSOCIATION-GOLDEN WEST CHAPTER P O BOX 565 AGOURA HILLS CA 913760565 954163338 501(C)(3) 20000 IN SUPPORT OF THE CA STATE ADVOCACY 414 CAMPAIGN THE ALS ASSOCIATION-UPSTATE NEW YORK CHAPTER 890 SEVENTH NORTH STREET LIVERPOOL NY 13088 371667986 501(C)(3) 195308 GRANTS FOR CHAPTER DEVELOPMENT THE ALS ASSOCIATION-TEXAS CHAPTER 1231 GREENWAY DRIVE SUITE 295 IRVING TX 75038 742678974 501(C)(3) 66099 GRANTS FOR CHAPTER DEVELOPMENT ALS CENTER 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 13100 ALSA CENTER ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & MEDICAL 97 PATERSON ST NEW BRUNSWICK NJ 08903 201285267 501(C)(3) 25600 ALSA CENTER BANNER GOOD SAMARITAN MEDICAL CENTER 1012 E WILLETTA STREET PHOENIX AZ 85006 410726167 501(C)(3) 12500 ALSA CENTER BAYLOR COLLEGE OF MEDICINE 6550 FANNIN SUITE 1801 SMITH TOWER HOUSTON TX 77030 741613878 501(C)(3) 11800 ALSA CENTER BETH ISRAEL MEDICAL CENTER ALS CLINIC 10 UNION SQUARE EAST NEW YORK NY 10003 042103881 501(C)(3) 13100 ALSA CENTER CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 12500 ALSA CENTER CURT AND SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 237121131 501(C)(3) 11800 ALSA CENTER DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)(3) 13100 ALSA CENTER FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 262047755 501(C)(3) 13100 ALSA CENTER GEORGE WASHINGTON UNIVERSITY 2150 PENNSYLVANIA AVE NW 7-401 WASHINGTON DC 20037 542126575 501(C)(3) 11800 ALSA CENTER GEORGIA HEALTH SCIENCES FOUNDATION INC 1120 15TH STREET BP 4390 AUGUSTA GA 309120004 352310573 501(C)(3) 13100 ALSA CENTER HARRY J HOENSLAAR ALS CLINIC 2799 WEST GRAND AVE K-11 NEUROLOGY DETROIT MI MI 48202 381357020 501(C)(3) 13100 ALSA CENTER HENNEPIN COUNTY MEDICAL CENTER (HCMC) 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MD 55404 381357020 501(C)(3) 12500 ALSA CENTER INDIANA UNIVERSITY ALS CENTER 1050 WISHARD BLVD REGENSTRIEF 6TH FLOOR INDIANAPOLIS IN 46202 520595110 501(C)(3) 13100 ALSA CENTER MAYO CLINIC - ALS CLINIC 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 593337028 501(C)(3) 11800 ALSA CENTER MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S CANNADAY 2E JACKSONVILLE FL 322241865 593337028 501(C)(3) 13100 ALSA CENTER MAYO MEDICAL CLINIC 200 FIRST STREET SW ROCHESTER MD 55905 416011702 501(C)(3) 12500 ALSA CENTER MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)(3) 13100 ALSA CENTER NEUROLOGY ASSOCIATES OF STONY BROOK 179 BELLE MEADE ROAD SUITE 3 EAST SETAUKET NY 11733 113243405 501(C)(3) 12500 ALSA CENTER PENN STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 13100 ALSA CENTER PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND OR 97213 931176109 501(C)(3) 13100 ALSA CENTER SOUTH TEXAS ALS CLINIC 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)(3) 13100 ALSA CENTER ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS MO 63104 430654872 501(C)(3) 13100 ALSA CENTER SUNY RESEARCH FOUNDATION 750 E ADAMS ST SYRACUSE NY 13210 141368361 501(C)(3) 13100 ALSA CENTER THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 11800 ALSA CENTER THE NEUROMUSCULAR ALS CLINIC 2150 CORBIN AVE NEW BRITAIN CT 06053 060546766 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 350 PARNASSUS AVENUE SUITE 500 SAN FRANCISCO CA 94117 946036493 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF KANSAS MEDICAL CENTER 3599 RAINBOW BLVD MAIL STOP 2012 KANSAS CITY KS 66160 480647721 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR ALBERT CHANDLER MED CTR LEXINGTON KY 405360084 616001218 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF MICHIGAN HEALTH SYSTEM 1500 E MEDICAL CENTER DR ANN ARBOR MI 481090316 386006309 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE 2211 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87131 856000642 501(C)(3) 25400 ALSA CENTER UNIVERSITY OF VERMONT COLLEGE OF MEDICINE 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)(3) 12500 ALSA CENTER VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)(3) 13100 ALSA CENTER WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD 3RD FLOOR MEADS MEADS WINSTONSALEM NC 271571078 223849199 501(C)(3) 12500 ALSA CENTER DARTMOUTH HITCHCOCK MEDICAL CENTER ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 11800 ALSA CENTER-NNE UNIV OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DR MSC 6248 SAN ANTONIO TX 782293900 741586031 501(C)(3) 25000 CLINICAL GRANT 117 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X 0 0 0 0 0 0 0 0 0 JAY DAUGHERTY 0 0 0 0 0 0 0 0 0 0 0 0 JANE H GILBERT 297288 0 0 0 0 0 13188 0 9479 0 319955 0 0 0 DANIEL M REZNIKOV 195190 0 0 0 0 0 9445 0 1327 0 205962 0 0 0 KENNETH NICHOLLS 177374 0 0 0 0 0 8503 0 10893 0 196770 0 0 0 STEVE GIBSON 176430 0 0 0 0 0 8663 0 9139 0 194232 0 0 0 KIMBERLY HARDING-MAGINNIS 152264 0 0 0 0 0 4263 0 661 0 157188 0 0 0 PART I, LINE 3 THE EXECUTIVE COMPENSATION & EVALUATION COMMITTEE OF THE BOARD OF DIRECTORS DETERMINES THE COMPENSATION OF THE PRESIDENT AND CEO AND MUST BE APPROVED BY THE EXECUTIVE COMMITTEE. THE PRESIDENT AND CEO DETERMINES THE COMPENSATION OF THE THE TOP FINANCIAL EMPLOYEE AND ANY KEY EMPLOYEES. X 116 70788 FMV X MICROSOFT OFFICE PROFESSIONAL PLUS 2010 SOFTWARE 1 4590 FMV X THE CONTAINER STORE GIFT CARDS 3 150 FMV 0 1 1 THIRD PARTY USE: PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 4 ALSA MADE THE FOLLOWING CHANGES TO SECTION 8.8.1 OF IT'S BYLAWS FOR FYE 01/31/13: - APPOINTMENTS TO THE CARE SERVICES COMMITTEE ARE NO LONGER LIMITED TO "STAFF OF" THE CARE SERVICES DEPARTMENT. THEY NOW INCLUDE "THOSE PEOPLE AFFILIATED WITH" THE CARE SERVICES DEPARMENT. - VACANCIES FILLED WITHIN THE CARE SERVICES COMITTEE ARE NO LONGER LIMITED TO "STAFF MEMBERS OF" THE CARE SERVICES DEPARTMENT. THEY NOW INCLUDE THOSE "AFFILIATED WITH" THE CARE SERVICES DEPARMENT. FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED BY THE COMPENSATION COMMITTEE. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 27,398. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -77,940. FUNDRAISING EVENTS FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. DONATED SERVICES FORM 990, SCHEDULE D, PART XII, LINE 2B AND PART XIII, LINE 2A THE ASSOCIATION PRODUCES AND DISTRIBUTES PUBLIC SERVICE TELEVISION ANNOUNCEMENTS THAT FOCUS ATTENTION ON EDUCATION AND AWARENESS. THESE PUBLIC SERVICE ANNOUNCEMENTS ARE DISTRIBUTED TO MEDIA STATIONS NATIONWIDE AND RUN FREE OF CHARGE. THE ASSOCIATION HAS CONTRACTED WITH AN INDEPENDENT OUTSIDE AGENCY TO TRACK THE DATE AND TIME THAT EACH PUBLIC SERVICE ANNOUNCEMENT RUNS, AND THE VALUE OF THE ANNOUNCEMENTS IS BASED ON THE DATE, TIME, AND MARKET. FOR THE YEAR ENDED JANUARY 31, 2013, THE ASSOCIATION RECORDED $6,030,011 OF CONTRIBUTED PUBLIC SERVICE ANNOUNCEMENTS.