THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization
THE FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION (EIN 45-4597425)
Tax period
2012-01-01 to 2012-12-31
Filed
2013-06-05
IRS object ID
201331819349300103
Schema version
2012v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2013-06-05T16:08:03-05:00Timestamp
Tax Period End Date2012-12-31TaxPeriodEndDate

Preparer Firm PreparerFirm

FieldValueIRS element (for citing)
EIN870794732EIN

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1Bonifield Accounting ServicesBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line112717 E 64th CtAddressLine1
CityKansas CityCity
StateMOState
ZIP Code64133ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2012-01-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN454597425EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1The Familial Hypercholesterolemia FoundationBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlFAMINameControl

US Address USAddress

FieldValueIRS element (for citing)
Address Line11515 Hope StreetAddressLine1
CitySouth PasadenaCity
StateCAState
ZIP Code91030ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameDavid PickhardtName
TitleTreasurerTitle
Phone9134998657Phone
Date Signed2013-05-15DateSigned
Authorize Third PartytrueAuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameRobert BonifieldName
PTINP00832071PTIN
Phone8168530257Phone
Date Prepared2013-06-05DatePrepared
FieldValueIRS element (for citing)
Tax Year2012TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Initial ReturnXInitialReturn

Doing Business As DoingBusinessAs

FieldValueIRS element (for citing)
Business Name Line1The FH FoundationBusinessNameLine1
FieldValueIRS element (for citing)
Name Of Principal Officer PersonJosh KnowlesNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line11007 Clark WayAddressLine1
CityPalo AltoCity
StateCAState
ZIP Code94304ZIPCode
FieldValueIRS element (for citing)
Gross Receipts582841GrossReceipts
Group Return For AffiliatesfalseGroupReturnForAffiliates
Organization501c3XOrganization501c3
Web Sitewww.thefhfoundation.orgWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation2012YearFormation
State Legal DomicileCAStateLegalDomicile
Activity Or Mission DescriptionTo raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and researchActivityOrMissionDescription
Nbr Voting Members Governing Body6NbrVotingMembersGoverningBody
Nbr Independent Voting Members6NbrIndependentVotingMembers
Total Nbr Employees0TotalNbrEmployees
Total Gross UBI0TotalGrossUBI
Net Unrelated Business Txbl Income0NetUnrelatedBusinessTxblIncome
Contributions Grants Current Year581875ContributionsGrantsCurrentYear
Program Service Revenue CY0ProgramServiceRevenueCY
Investment Income Current Year0InvestmentIncomeCurrentYear
Other Revenue Current Year966OtherRevenueCurrentYear
Total Revenue Current Year582841TotalRevenueCurrentYear
Grants And Similar Amnts CY0GrantsAndSimilarAmntsCY
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Current Year0SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year21274TotalFundrsngExpCurrentYear
Other Expenses Current Year138338OtherExpensesCurrentYear
Total Expenses Current Year138338TotalExpensesCurrentYear
Revenues Less Expenses CY444503RevenuesLessExpensesCY
Total Assets EOY444503TotalAssetsEOY
Total Liabilities EOY0TotalLiabilitiesEOY
Net Assets Or Fund Balances EOY444503NetAssetsOrFundBalancesEOY
Mission DescriptionTo raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and researchMissionDescription
Significant New Program ServicesfalseSignificantNewProgramServices
Significant ChangefalseSignificantChange
Expense78333Expense
DescriptionEstablishment of the FH Foundation as a formal corporate entity with Articles of Incorporation, tax exemption, governance, mission, and strategic plan Recruitment of board members - all of whom have FH or are clinicians who treat FH Establishment of our Scientific Advisory Board and recruitment of members from among the most respected lipidologists in the US Numerous outreach initieatives to support funding of the Foundation - through initial donations from board members and continuing from industry and individuals Establishment of our administrative offices in California Creation and execution of an outsourcing plan for all administrative and support activities Creation and launch of our web site, which is our primary face to all patients, caregivers and clinicians, which supports all elements of our FH Foundation Mission Creation and production of educational materials for patients, caregivers, and clinicians that support awareness and appropriate diagnosis of FH Establishment of a National FH Awareness Day, accompanied by a media tour that included our president and a nationally known research lipidologist and expert on the disease Establishment of our plan for a national disease registry for the advancement of resarch around FH - began the evaluation process to choose a scientific and technology firm as vendor Held our first Scientific Advisory Board meeting for the purpose of designing the clinical profile requirements of the national disease registry Completion of regular board meetings to support governance of the foundationDescription
Total Program Service Expense78333TotalProgramServiceExpense
Described In501 C3trueDescribedIn501C3
Schedule B RequiredtrueScheduleBRequired
Political ActivitiesfalsePoliticalActivities
Lobbying ActivitiesfalseLobbyingActivities
Donor Advised FundsfalseDonorAdvisedFunds
Conservation EasementsfalseConservationEasements
Collections Of ArtfalseCollectionsOfArt
Credit CounselingfalseCreditCounseling
Term Or Permanent EndowmentsfalseTermOrPermanentEndowments
Report Land Bldg EquiptrueReportLandBldgEquip
Report Invest Oth SecuritiesfalseReportInvestOthSecurities
Report Prog Rel InvestfalseReportProgRelInvest
Report Other AssetsfalseReportOtherAssets
Report Other LiabilitiesfalseReportOtherLiabilities
Report Fin48 FootnotefalseReportFin48Footnote
Independent Audit Financial StmtfalseIndependentAuditFinancialStmt
Consolidated Audit Financial StmtfalseConsolidatedAuditFinancialStmt
SchoolfalseSchool
Foreign OfficefalseForeignOffice
Foreign ActivitiesfalseForeignActivities
More Than5000 K To OrganizationsfalseMoreThan5000KToOrganizations
More Than5000 K To IndividualsfalseMoreThan5000KToIndividuals
Professional FundraisingfalseProfessionalFundraising
Fundraising ActivitiesfalseFundraisingActivities
GamingfalseGaming
HospitalfalseHospital
Grants To OrganizationsfalseGrantsToOrganizations
Grants To IndividualsfalseGrantsToIndividuals
Schedule J RequiredfalseScheduleJRequired
Tax Exempt BondsfalseTaxExemptBonds
Excess Benefit TransactionfalseExcessBenefitTransaction
Prior Excess Benefit TransactionfalsePriorExcessBenefitTransaction
Loan To Officer Or DQPfalseLoanToOfficerOrDQP
Grant To Related PersonfalseGrantToRelatedPerson
Bsnss Rltnshp With OrganizationfalseBsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family MemberfalseBsnssRltnshpThruFamilyMember
Officer Entity With Bsnss RltnshpfalseOfficerEntityWithBsnssRltnshp
Deductible Non Cash ContributionsfalseDeductibleNonCashContributions
Deductible Contributions Of ArtfalseDeductibleContributionsOfArt
TerminatedfalseTerminated
Partial LiquidationfalsePartialLiquidation
Disregarded EntityfalseDisregardedEntity
Related EntityfalseRelatedEntity
Related Org Controlled EntityfalseRelatedOrgControlledEntity
Transaction Related EntityfalseTransactionRelatedEntity
Transfers To Exempt Non Chrtbl OrgfalseTransfersToExemptNonChrtblOrg
Activities Conducted PartnershipfalseActivitiesConductedPartnership
Schedule O RequiredtrueScheduleORequired
Number Forms Transmitted With10965NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup WitholdingtrueComplianceWithBackupWitholding
Number Of Employees0NumberOfEmployees
Employment Tax Returns FiledtrueEmploymentTaxReturnsFiled
Unrelated Business IncomefalseUnrelatedBusinessIncome
Foreign Financial AccountfalseForeignFinancialAccount
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTrans
Taxable Party NotificationfalseTaxablePartyNotification
Non Deductible ContributionsfalseNonDeductibleContributions
Quid Pro Quo ContributionsfalseQuidProQuoContributions
Form8282 Property Disposed OffalseForm8282PropertyDisposedOf
Funds To Pay PremiumsfalseFundsToPayPremiums
Premiums PaidfalsePremiumsPaid
Excess Business HoldingsfalseExcessBusinessHoldings
Indoor Tanning ServicesfalseIndoorTanningServices
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members6NbrVotingGoverningBodyMembers
Number Independent Voting Members6NumberIndependentVotingMembers
Family Or Business RelationshipfalseFamilyOrBusinessRelationship
Delegation Of Management DutiesfalseDelegationOfManagementDuties
Changes To Organizing DocsfalseChangesToOrganizingDocs
Material Diversion Or MisusefalseMaterialDiversionOrMisuse
Members Or StockholdersfalseMembersOrStockholders
Election Of Board MembersfalseElectionOfBoardMembers
Decisions Subject To ApprovalfalseDecisionsSubjectToApproval
Minutes Of Governing BodytrueMinutesOfGoverningBody
Minutes Of CommitteestrueMinutesOfCommittees
Officer Mailing AddressfalseOfficerMailingAddress
Local ChaptersfalseLocalChapters
Form990 Provided To Governing BodytrueForm990ProvidedToGoverningBody
Conflict Of Interest PolicytrueConflictOfInterestPolicy
Annual Disclosure Covered PersonstrueAnnualDisclosureCoveredPersons
Regular Monitoring EnforcementtrueRegularMonitoringEnforcement
Whistleblower PolicyfalseWhistleblowerPolicy
Document Retention PolicyfalseDocumentRetentionPolicy
Compensation Process CEOtrueCompensationProcessCEO
Compensation Process OthertrueCompensationProcessOther
Investment In Joint VenturefalseInvestmentInJointVenture
States Where Copy Of Return Is FiledCAStatesWhereCopyOfReturnIsFiled
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

FieldValueIRS element (for citing)
Name PersonDave PickhardtNamePerson
Telephone Number9134998657TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line114016 Nicklaus DriveAddressLine1
CityOverland ParkCity
StateKSState
ZIP Code66223ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (5 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekOfficerOfficerReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationHighest Compensated EmployeeHighestCompensatedEmployee
Dave Pickhardt
Vice President and CFO25.00X000
Josh Knowles
Chief Medical Officer15.00X000
Joyce Ross
Board Secretary1.00X000
Katherine Wilemon
President and CEO50.00X000
Kathryn Langeder
Office Manager45.005000000X
FieldValueIRS element (for citing)
Total Reportable Comp From Org50000TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs0TotalReportableCompFrmRltdOrgs
Total Other Compensation0TotalOtherCompensation
Number Individuals GT100 K0NumberIndividualsGT100K
Formers ListedfalseFormersListed
Total Comp GT150 KfalseTotalCompGT150K
Compensation From Other SourcesfalseCompensationFromOtherSources
All Other Contributions581875AllOtherContributions
Total Contributions581875TotalContributions

Other Revenue Misc OtherRevenueMisc

FieldValueIRS element (for citing)
DescriptionFH Product SalesDescription
Business Code453220BusinessCode
Total Revenue Column966TotalRevenueColumn
Related Or Exempt Function Income966RelatedOrExemptFunctionIncome
FieldValueIRS element (for citing)
Total Other Revenue966TotalOtherRevenue

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column582841TotalRevenueColumn
Related Or Exempt Function Income966RelatedOrExemptFunctionIncome
Unrelated Business Revenue0UnrelatedBusinessRevenue
Exclusion$0ExclusionAmount
FieldValueIRS element (for citing)
Info In Schedule O Part IXXInfoInScheduleOPartIX

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total6113Total
Management And General6113ManagementAndGeneral

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total20965Total
Program Services2960ProgramServices
Management And General18005ManagementAndGeneral

Advertising Advertising

FieldValueIRS element (for citing)
Total17981Total
Program Services17981ProgramServices

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total2463Total
Management And General2463ManagementAndGeneral

Information Technology InformationTechnology

FieldValueIRS element (for citing)
Total43385Total
Program Services41009ProgramServices
Management And General2376ManagementAndGeneral

Travel Travel

FieldValueIRS element (for citing)
Total24474Total
Management And General3200ManagementAndGeneral
Fundraising21274Fundraising

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total17085Total
Program Services12425ProgramServices
Management And General4660ManagementAndGeneral

Other Expenses OtherExpenses (4 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneral
Postage and Printing37973797
Small Furniture and Equip549549
Telecommunications161161
Business Registration Fees875875

All Other Expenses AllOtherExpenses

FieldValueIRS element (for citing)
Total490Total
Management And General490ManagementAndGeneral

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total138338Total
Program Services78333ProgramServices
Management And General38731ManagementAndGeneral
Fundraising21274Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
EOY341720EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
EOY100000EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis2783LandBuildingsEquipmentBasis

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
EOY2783EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY0BOY
EOY444503EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY
FieldValueIRS element (for citing)
Do Not Follow SFAS117XDoNotFollowSFAS117

Retained Earnings Endowment Etc RetainedEarningsEndowmentEtc

FieldValueIRS element (for citing)
EOY444503EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY0BOY
EOY444503EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY0BOY
EOY444503EOY
FieldValueIRS element (for citing)
Reconcilation Revenue Expenses444503ReconcilationRevenueExpenses
Reconcilation Other Changes0ReconcilationOtherChanges
Method Of Accounting CashXMethodOfAccountingCash
Accountant Compile Or ReviewtrueAccountantCompileOrReview

Accountant Compile Or Review Basis AccountantCompileOrReviewBasis

FieldValueIRS element (for citing)
Financial Statement SeparateXFinancialStatementSeparate
FieldValueIRS element (for citing)
FS AuditedtrueFSAudited

FS Audited Basis FSAuditedBasis

FieldValueIRS element (for citing)
Financial Statement SeparateXFinancialStatementSeparate
FieldValueIRS element (for citing)
Audit CommitteetrueAuditCommittee
Federal Grant Audit RequiredfalseFederalGrantAuditRequired

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2XPubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

FieldValueIRS element (for citing)
Current Tax Year581875CurrentTaxYear
Total581875Total

Total509 Total509

FieldValueIRS element (for citing)
Current Tax Year581875CurrentTaxYear
Total581875Total
FieldValueIRS element (for citing)
Public Support Total509581875PublicSupportTotal509

Other Income509 OtherIncome509

FieldValueIRS element (for citing)
Current Tax Year966CurrentTaxYear
Total966Total

Total Support Total TotalSupportTotal

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years0CurrentTaxYearMinus4Years
Current Tax Year Minus2 Years0CurrentTaxYearMinus2Years
Current Tax Year582841CurrentTaxYear
Total582841Total
FieldValueIRS element (for citing)
First5 Years509XFirst5Years509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildings

FieldValueIRS element (for citing)
Investment Cost Or Other Basis2783InvestmentCostOrOtherBasis
Book Value2783BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings2783TotalOfBookValueLandBuildings

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (6 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
O01Form 990 governing body review Part VI line 11990 Document emailed to each member and reviewed via electronic media
O02Conflict of interest policy compliance Part VI line 12cAll expenses and contracts are reviewed and approved by the board. Any conflicts are discussed prior to approval.
O03CEO executive director top management comp Part VI line 15aAll top management is on a volunteer basis at this time.
O04Other officer or key employee compensation Part VI line 15bAll officers and key employees are voluntary positions at this time.
O05Governing documents etc available to public Part VI line 19All documents are made available to the public on request.
O06List of other fees for services expenses Part IX line 11gInitial Advertising and Promotion efforts with Promotional materials.

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