2013-06-05T16:08:03-05:00 2012-12-31 870794732 Bonifield Accounting Services 12717 E 64th Ct Kansas City MO 64133 990 2012-01-01 454597425 The Familial Hypercholesterolemia Foundation FAMI 1515 Hope Street South Pasadena CA 91030 David Pickhardt 9134998657 2013-05-15 true Robert Bonifield P00832071 8168530257 2013-06-05 2012 2016-02-24 21:20:13Z X The FH Foundation Josh Knowles 1007 Clark Way Palo Alto CA 94304 582841 false X www.thefhfoundation.org X 2012 CA To raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and research 6 6 0 0 0 581875 0 0 966 582841 0 0 0 0 21274 138338 138338 444503 444503 0 444503 To raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and research false false 78333 Establishment of the FH Foundation as a formal corporate entity with Articles of Incorporation, tax exemption, governance, mission, and strategic plan Recruitment of board members - all of whom have FH or are clinicians who treat FH Establishment of our Scientific Advisory Board and recruitment of members from among the most respected lipidologists in the US Numerous outreach initieatives to support funding of the Foundation - through initial donations from board members and continuing from industry and individuals Establishment of our administrative offices in California Creation and execution of an outsourcing plan for all administrative and support activities Creation and launch of our web site, which is our primary face to all patients, caregivers and clinicians, which supports all elements of our FH Foundation Mission Creation and production of educational materials for patients, caregivers, and clinicians that support awareness and appropriate diagnosis of FH Establishment of a National FH Awareness Day, accompanied by a media tour that included our president and a nationally known research lipidologist and expert on the disease Establishment of our plan for a national disease registry for the advancement of resarch around FH - began the evaluation process to choose a scientific and technology firm as vendor Held our first Scientific Advisory Board meeting for the purpose of designing the clinical profile requirements of the national disease registry Completion of regular board meetings to support governance of the foundation 78333 true true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 5 0 true 0 true false false false false false false false false false false false X 6 6 false false false false false false false true true false false true true true true false false true true false CA X Dave Pickhardt 9134998657 14016 Nicklaus Drive Overland Park KS 66223 Dave Pickhardt 25.00 X 0 0 0 Josh Knowles 15.00 X 0 0 0 Joyce Ross 1.00 X 0 0 0 Katherine Wilemon 50.00 X 0 0 0 Kathryn Langeder 45.00 X 50000 0 0 50000 0 0 0 false false false 581875 581875 FH Product Sales 453220 966 966 966 582841 966 0 0 X 6113 6113 20965 2960 18005 17981 17981 2463 2463 43385 41009 2376 24474 3200 21274 17085 12425 4660 Postage and Printing 3797 3797 Small Furniture and Equip 549 549 Telecommunications 161 161 Business Registration Fees 875 875 490 490 138338 78333 38731 21274 341720 100000 2783 2783 0 444503 0 0 X 444503 0 444503 0 444503 444503 0 X true X true X true false X 581875 581875 581875 581875 581875 966 966 0 0 582841 582841 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2783 2783 2783 O01 Form 990 governing body review Part VI line 11 990 Document emailed to each member and reviewed via electronic media O02 Conflict of interest policy compliance Part VI line 12c All expenses and contracts are reviewed and approved by the board. Any conflicts are discussed prior to approval. O03 CEO executive director top management comp Part VI line 15a All top management is on a volunteer basis at this time. O04 Other officer or key employee compensation Part VI line 15b All officers and key employees are voluntary positions at this time. O05 Governing documents etc available to public Part VI line 19 All documents are made available to the public on request. O06 List of other fees for services expenses Part IX line 11g Initial Advertising and Promotion efforts with Promotional materials.