ALS THERAPY ALLIANCE INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: ALS THERAPY ALLIANCE INC (EIN 01-0621493)
Tax period: 2012-01-01 to 2012-12-31
Filed: 2013-09-22
IRS object ID: 201302659349300050
Schema version: 2012v2.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule D
Schedule F
Schedule G
Schedule I
Schedule L
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-09-22T06:12:58-07:00	Timestamp
Tax Period End Date	2012-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	Martin J Scafidi PC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	7 Essex Green Drive 66	AddressLine1
City	Peabody	City
State	MA	State
ZIP Code	01960	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	010621493	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	ALS THERAPY ALLIANCE INC	BusinessNameLine1
Business Name Line2	CO ROBERT BROWN JR MD D PHIL	BusinessNameLine2

Field	Value	IRS element (for citing)
Name Control	ALST	NameControl
Phone	5088563664	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	16 OAKLAND AVE	AddressLine1
City	NEEDHAM	City
State	MA	State
ZIP Code	02492	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	ROBERT H BROWN JR MD	Name
Title	President	Title
Date Signed	2013-09-22	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	MARTIN SCAFIDI CPA	Name
PTIN	P00015207	PTIN
Phone	9785381919	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Gross Receipts	2605868	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	WWW.ALSTHERAPYALLIANCE.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	2002	YearFormation
State Legal Domicile	MA	StateLegalDomicile
Activity Or Mission Description	TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	9	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	9	NbrIndependentVotingMembers
Total Nbr Employees	0	TotalNbrEmployees
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	127009	ContributionsGrantsPriorYear
Contributions Grants Current Year	29172	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	2248	InvestmentIncomePriorYear
Investment Income Current Year	17479	InvestmentIncomeCurrentYear
Other Revenue Prior Year	4362147	OtherRevenuePriorYear
Other Revenue Current Year	2559217	OtherRevenueCurrentYear
Total Revenue Prior Year	4491404	TotalRevenuePriorYear
Total Revenue Current Year	2605868	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	1620557	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	4688077	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Current Year	0	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	50250	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	147405	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	396278	TotalFundrsngExpCurrentYear
Other Expense Prior Year	408148	OtherExpensePriorYear
Other Expenses Current Year	316387	OtherExpensesCurrentYear
Total Expenses Prior Year	2078955	TotalExpensesPriorYear
Total Expenses Current Year	5151869	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	2412449	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-2546001	RevenuesLessExpensesCY
Total Assets BOY	9613171	TotalAssetsBOY
Total Assets EOY	7526243	TotalAssetsEOY
Total Liabilities BOY	1930976	TotalLiabilitiesBOY
Total Liabilities EOY	2402250	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	7682195	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	5123993	NetAssetsOrFundBalancesEOY
Mission Description	TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	4719014	Expense
Grants	4688077	Grants
Description	PROVIDED COORDINATION AND NEW FUNDING FOR 17 DIFFERENT ALS RESEARCH PROJECTS CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. ALSO MONITORED PREVIOUSLY APPROVED FUNDING FOR 14 OTHER ALS CONTINUING RESEARCH PROJECTS.	Description
Total Program Service Expense	4719014	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	false	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	false	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	true	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	true	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	3	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	false	ComplianceWithBackupWitholding
Number Of Employees	0	NumberOfEmployees
Employment Tax Returns Filed	false	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	9	NbrVotingGoverningBodyMembers
Number Independent Voting Members	9	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	true	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	false	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	false	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	false	RegularMonitoringEnforcement
Whistleblower Policy	false	WhistleblowerPolicy
Document Retention Policy	false	DocumentRetentionPolicy
Compensation Process CEO	false	CompensationProcessCEO
Compensation Process Other	false	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Other Website	X	OtherWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	DR BROWN	NamePerson
Telephone Number	6177265750	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	16 OAKLAND AVE	AddressLine1
City	NEEDHAM	City
State	MA	State
ZIP Code	02426	ZIPCode

Field	Value	IRS element (for citing)
No Listed Persons Compensated	X	NoListedPersonsCompensated

Form990 Part VII Section A Form990PartVIISectionA (9 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Average Hours Per Week RelatedAverageHoursPerWeekRelated	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation
GREGORY A PETSKO
Treasurer	0.50	0.00	X	X	0	0	0
CRAIG MELLO
Director	0.50	0.00	X		0	0	0
JON ROBERTS
Director	0.50	0.00	X		0	0	0
TOM MANIATIS MD
Director	0.50	0.00	X		0	0	0
MERIT E CUDKOWICZ MD
Director	0.50	0.00	X		0	0	0
ROBERT HORVITZ PHD
Director	0.50	0.00	X		0	0	0
LAWRENCE HAYWARD MD
Director	0.50	0.00	X		0	0	0
DAVID SCHWARTZ
Director	0.50	0.00	X		0	0	0
ROBERT H BROWN JR MD
President	0.50	0.00	X	X	0	0	0

Field	Value	IRS element (for citing)
Number Individuals GT100 K	0	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (3 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
STRINE ADVANCED GRAPHIC PRODUCTION
30 GRUMBACHER ROAD	YORK	PA	17406	GRAPHIC DESIGNS	115569
CONE COMMUNICATIONS
855 BOYLSTON STREET	BOSTON	MA	02116	FUND RAISING CONSULT	180334
BISSON BARCELONA LLC
PO BOX 458	BARRINGTON	NH	03825	MANAGEMENT SERVICES	103153

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	3	NumberOfContractorsGT100K
All Other Contributions	29172	AllOtherContributions
Total Contributions	29172	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	17479	TotalRevenueColumn
Related Or Exempt Function Income	17479	RelatedOrExemptFunctionIncome

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	2559217	GrossIncomeFundraisingEvents

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	2559217	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Total Other Revenue	0	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	2605868	TotalRevenueColumn
Related Or Exempt Function Income	17479	RelatedOrExemptFunctionIncome

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	3939682	Total
Program Services	3939682	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	748395	Total
Program Services	748395	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	0	Total

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	0	Total

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	0	Total

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	0	Total

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	103153	Total
Program Services	20634	ProgramServices
Management And General	10312	ManagementAndGeneral
Fundraising	72207	Fundraising

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	15571	Total
Management And General	15571	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	147405	Total
Fundraising	147405	Fundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	0	Total

Advertising Advertising

Field	Value	IRS element (for citing)
Total	94638	Total
Fundraising	94638	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	3618	Total
Management And General	3618	ManagementAndGeneral

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	0	Total

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	0	Total

Travel Travel

Field	Value	IRS element (for citing)
Total	7262	Total
Program Services	7262	ProgramServices

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	3041	Total
Program Services	3041	ProgramServices

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	0	Total

Insurance Insurance

Field	Value	IRS element (for citing)
Total	2970	Total
Management And General	2970	ManagementAndGeneral

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Management And GeneralManagementAndGeneral	FundraisingFundraising
TELEPHONE	859	859
Printing and Publications	2651	2651
Postage and Shipping	15160		15160
CAMPAIGN REWARDS	66868		66868

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	596	Total
Management And General	596	ManagementAndGeneral

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	5151869	Total
Program Services	4719014	ProgramServices
Management And General	36577	ManagementAndGeneral
Fundraising	396278	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	3980143	BOY
EOY	1888055	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	5631934	BOY
EOY	2126005	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	1094	BOY
EOY	8517	EOY

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
EOY	3503666	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
EOY	0	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	9613171	BOY
EOY	7526243	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	8583	BOY
EOY	121	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	1922393	BOY
EOY	2402129	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	1930976	BOY
EOY	2402250	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	7682195	BOY
EOY	5109487	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
EOY	14506	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	7682195	BOY
EOY	5123993	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	9613171	BOY
EOY	7526243	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	-2546001	ReconcilationRevenueExpenses
Reconciliation Unrealized Invest	-12351	ReconciliationUnrealizedInvest
Reconcilation Donated Services	150	ReconcilationDonatedServices
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	false	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org509a2	X	PubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5190064	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	4698048	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	4298813	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	4524156	CurrentTaxYearMinus1Year
Current Tax Year	2588389	CurrentTaxYear
Total	21299470	Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

Field	Value	IRS element (for citing)
Total	0	Total

Gross Receipts From Non UBI GrossReceiptsFromNonUBI

Field	Value	IRS element (for citing)
Total	0	Total

Tax Rev Levied For Org Benefit509 TaxRevLeviedForOrgBenefit509

Field	Value	IRS element (for citing)
Total	0	Total

Value Of Svcs Fclts Furnishd By Govt ValueOfSvcsFcltsFurnishdByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total509 Total509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5190064	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	4698048	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	4298813	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	4524156	CurrentTaxYearMinus1Year
Current Tax Year	2588389	CurrentTaxYear
Total	21299470	Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Amts From Subst Contributors AmtsFromSubstContributors

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Public Support Total509	21299470	PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	54585	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	190964	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	11659	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2248	CurrentTaxYearMinus1Year
Current Tax Year	17479	CurrentTaxYear
Total	276935	Total

Post1975 UBTI Post1975UBTI

Field	Value	IRS element (for citing)
Total	0	Total

Investment Income And UBTI InvestmentIncomeAndUBTI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	54585	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	190964	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	11659	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2248	CurrentTaxYearMinus1Year
Current Tax Year	17479	CurrentTaxYear
Total	276935	Total

Net Income From Other UBI NetIncomeFromOtherUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income509 OtherIncome509

Field	Value	IRS element (for citing)
Total	0	Total

Total Support Total TotalSupportTotal

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5244649	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	4889012	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	4310472	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	4526404	CurrentTaxYearMinus1Year
Current Tax Year	2605868	CurrentTaxYear
Total	21576405	Total

Field	Value	IRS element (for citing)
Public Support Percentage509	0.98720	PublicSupportPercentage509
Prior Year Support Percentage	0.98610	PriorYearSupportPercentage
Investment Income Percentage	0.01280	InvestmentIncomePercentage
Prior Yr Invest Income Percentage	0.01390	PriorYrInvestIncomePercentage
Thirty Three Percnt Tests CY509	X	ThirtyThreePercntTestsCY509

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Tot Revenue Etc Audited Fincl Stmt	2628667	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	-12351	NetUnrealizedGainsInvestments
Donated Srvc And Use Of Facilities	35150	DonatedSrvcAndUseOfFacilities
Revenue Not Rptd F990	22799	RevenueNotRptdF990
Revenue Subtotal	2605868	RevenueSubtotal
Total Revenue Per Form990	2605868	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	5186869	TotExpensesEtcAuditedFinclStmt
Donated Services Use Of Facilities	35000	DonatedServicesUseOfFacilities
Expenses Not Rptd F990	35000	ExpensesNotRptdF990
Expenses Subtotal	5151869	ExpensesSubtotal
Total Expenses Per Form990	5151869	TotalExpensesPerForm990

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Grants To Orgs Outside US GrantsToOrgsOutsideUS (4 entries)

RegionRegion	Purpose Of GrantPurposeOfGrant	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement
SOUTH ASIA	ALS RESEARCH	38075	CHECK
MIDDLE EAST	ALS RESEARCH	319980	CHECK
EUROPE	ALS RESEARCH	252340	CHECK
EUROPE	ALS RESEARCH	138000	CHECK

Field	Value	IRS element (for citing)
Total Number Of501c3 Orgs	3	TotalNumberOf501c3Orgs
Total Number Of Other Orgs	1	TotalNumberOfOtherOrgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used in Foreign Country	Identifier
Explanation	ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED.	Explanation

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Special Fundraising Events	X	SpecialFundraisingEvents
Agreement Ref Fundraising	true	AgreementRefFundraising
Licensed States	MN	LicensedStates
Licensed States	MI	LicensedStates
Licensed States	MA	LicensedStates
Licensed States	MD	LicensedStates
Licensed States	HI	LicensedStates
Licensed States	DC	LicensedStates
Licensed States	NM	LicensedStates
Licensed States	WI	LicensedStates
Licensed States	WV	LicensedStates
Licensed States	VA	LicensedStates
Licensed States	TN	LicensedStates
Licensed States	SC	LicensedStates
Licensed States	RI	LicensedStates
Licensed States	PA	LicensedStates
Licensed States	OK	LicensedStates
Licensed States	ND	LicensedStates
Licensed States	NC	LicensedStates
Licensed States	NY	LicensedStates
Licensed States	NJ	LicensedStates
Licensed States	NH	LicensedStates
Licensed States	MS	LicensedStates
Licensed States	ME	LicensedStates
Licensed States	KS	LicensedStates
Licensed States	IL	LicensedStates
Licensed States	GA	LicensedStates
Licensed States	FL	LicensedStates
Licensed States	CT	LicensedStates
Licensed States	CA	LicensedStates
Licensed States	AZ	LicensedStates
Licensed States	AL	LicensedStates

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	IN-STORE FUNDRAISING CAMPAIGN	NameOfEvent1
Gross Receipts Event1	2559217	GrossReceiptsEvent1
Gross Revenue Event1	2559217	GrossRevenueEvent1
Gross Receipts Total	2559217	GrossReceiptsTotal
Gross Revenue Total Events	2559217	GrossRevenueTotalEvents
Net Income Summary	2559217	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (14 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant	IRC SectionIRCSection
XALUD THERAPEUTICS INC
30 HILL STREET	SAN FRANCISCO	CA	94110	270422708	188593	0	USE OF INTERLUKIN THERAPY
UNIVERSITY OF WASHINGTON
1959 NE PACIFIC AVE	SEATTLE	WA	98195	916001537	107330	0	ALS CLINICAL TRIAL MEXILITINE	STATE OF WASHINGTON
UNIV MASS MEDICAL SCHOOL
55 LAKE AVE NORTH LRB919	WORCESTER	MA	01655	043167352	226882	0	MOLECULAR DISSECTION OF TDP-43	COMM MASSACHUSETTS
UNIV MASS MEDICAL SCHOOL
364 PLANTATION STREET 604 LR	WORCESTER	MA	01605	043167352	296681	0	ALS RESEARCH - MITROCHONDIAL TARGET	COMM MASSACHUSETTS
UNIV MASS MEDICAL SCHOOL
364 PLANTATION ST 604 LRB	WORCESTER	MA	01605	043167352	149320	0	CONSTRUCT TRANSGENIC MOUSE MODEL	COMM MASSACHUSETTS
UNIV MASS MEDICAL SCHOOL
364 PLANTATION DRIVE LRB 603	WORCESTER	MA	01655	043167352	200000	0	LINKAGE BETWEEN DNA DAMAGE	COMM MASSACHUSETTS
MASS GENERAL HOSPITAL
BUILDING 114 16TH ST RM 3125	CHARLESTOWN	MA	02129	042697983	200000	0	MODULATING DISEASE PROGRESSION	501(C)(3)
MASS GENERAL HOSPITAL
BUILDING 114 16TH ST RM 3125	CHARLESTOWN	MA	01212	042697983	633300	0	ALS CLINICAL TRIAL MEXILITINE	501(C)(3)
MASS GENERAL HOSPITAL
149 13TH STREETM SYTUE 2-2274	CHARLESTOWN	MA	02129	042697983	103427	0	MULTICENTER STUDY ALS BIOMARKERS	501(C)(3)
HARVARD SCHOOL PUBLIC HEALTH
665 HUNTINGTON AVE 2 RM 310	BOSTON	MA	02115	042103580	186647	0	PROSPECTIVE STUDY OF STATINS	501(C)(3)
HARVARD SCHOOL OF PUBLIC HEAL
651 HUNTINGTON AVE	BOSTON	MA	02115	042103580	207000	0	CONTRIBUTION OR ER STRESS	501(C)(3)
HARVARD MEDICAL SCHOOL
220 LONGWOOD AVE	BOSTON	MA	02115	042103580	700000	0	MODULATING COLLABORATIVE DRUG	501(C)(3)
DANA FARBER INSTITUTE
450 BROOKLINE AVE SM870	BOSTON	MA	02215	042263040	300000	0	EXCESSIVE R LOOP-DRIVEN DNA	501(C)(3)
COLUMBIA UNIV MEDICAL CENTER
701 W 168 ST ROOM 616	NEW YORK	NY	10032	135598093	435928	0	RESEARCH GENE EXPRESSION	501(C)(3)

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	13	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	1	TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used	Identifier
Explanation	ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED.	Explanation

Schedule L IRS990ScheduleL

Form990 Schedule L Part III Form990ScheduleLPartIII (5 entries)

Name Of Interested PersonNameOfInterestedPerson	Relationship With OrganizationRelationshipWithOrganization	Amount Of GrantAmountOfGrant	Type Of AssistanceTypeOfAssistance	Purpose Of AssistancePurposeOfAssistance
TOM MANIATIS MD	DIRECTOR	140683	PD TO EMPLYR	CY GRANT PD
MERIT CUDKOWICZ MD	DIRECTOR	104010	PD TO EMPLYR	PY GRANT PD
LAWRENCE HAYWARD MD	DIRECTOR	137314	PD TO EMPLYR	PY GRANT PD
TOM MANIATIS MD	DIRECTOR	150000	PD TO EMPLYR	PY GRANT PD
LAWRENCE HAYWARD MD	DIRECTOR	11628	PD TO EMPLYR	PY GRANT PD

Form990 Schedule L Part V Form990ScheduleLPartV

Field	Value	IRS element (for citing)
Explanation	THE ORGANIZATION'S BOARD OF DIRECTORS INCLUDES SEVERAL HIGHLY TRAINED RESEARCH SCIENTISTS WITH EXPERTISE IN ALS RESEARCH. THESE DIRECTOR/SCIENTISTS CAN APPLY FOR RESEARCH GRANTS ON BEHALF OF THE RESEARCH FACILITIES WHERE THEY ARE EMPLOYED. WHEN GRANT PROPOSALS FROM BOARD OF DIRECTOR MEMBERS ARE CONSIDERED BY THE BOARD OF DIRECTORS, THE BOARD MEMBER APPLYING MUST RECUSE THEMSELVES FROM ALL DISCUSSION AND VOTING ON THE GRANTS.	Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (3 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE AND ON THE MASSACHUSETTS ATTORNEY GENERAL'S WEBSITE.
Form 990, Part VI, Line 11b	Form 990, Part VI, Line 11b: Form 990 Review Process	COPY OF THE FORM 990 WILL BE PROVIDED TO AND REVIEWED BY BOARD MEMBERS.
Form 990, Part VI, Line 3	Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company	DAY-TO-DAY MANAGAEMENT DUTIES ARE PERFORMED BY BISSON BARCELONA LLC UNDER A MANAGEMENT AGREEMENT.