2013-09-22T06:12:58-07:00 2012-12-31 Martin J Scafidi PC 7 Essex Green Drive 66 Peabody MA 01960 990 2012-01-01 010621493 ALS THERAPY ALLIANCE INC CO ROBERT BROWN JR MD D PHIL ALST 5088563664 16 OAKLAND AVE NEEDHAM MA 02492 ROBERT H BROWN JR MD 2013-09-22 true MARTIN SCAFIDI CPA P00015207 9785381919 2012 2016-02-24 21:20:13Z 2605868 false false X WWW.ALSTHERAPYALLIANCE.ORG X 2002 MA TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. 9 9 0 0 127009 29172 0 2248 17479 4362147 2559217 4491404 2605868 1620557 4688077 0 0 50250 147405 396278 408148 316387 2078955 5151869 2412449 -2546001 9613171 7526243 1930976 2402250 7682195 5123993 TO RAISE FUNDS, PRIMARILY FROM INDIVIDUAL DONORS, AND TO COORDINATE AND FUND ALS REASEARCH CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. false false 4719014 4688077 PROVIDED COORDINATION AND NEW FUNDING FOR 17 DIFFERENT ALS RESEARCH PROJECTS CONDUCTED PRIMARILY AT RESEARCH HOSPITALS AND UNIVERSITIES. ALSO MONITORED PREVIOUSLY APPROVED FUNDING FOR 14 OTHER ALS CONTINUING RESEARCH PROJECTS. 4719014 true false false false false false false false false false false false false false false false true false false false false true false true true false false true false false false false false false false false false true false false false false false false false false false false false false false true 3 0 false 0 false false false false false false false false false 0 false false false false false false false false false false X 9 9 false true false false false false false true true false false true false false false false false false false false MA X X X DR BROWN 6177265750 16 OAKLAND AVE NEEDHAM MA 02426 X GREGORY A PETSKO 0.50 0.00 X X 0 0 0 CRAIG MELLO 0.50 0.00 X 0 0 0 JON ROBERTS 0.50 0.00 X 0 0 0 TOM MANIATIS MD 0.50 0.00 X 0 0 0 MERIT E CUDKOWICZ MD 0.50 0.00 X 0 0 0 ROBERT HORVITZ PHD 0.50 0.00 X 0 0 0 LAWRENCE HAYWARD MD 0.50 0.00 X 0 0 0 DAVID SCHWARTZ 0.50 0.00 X 0 0 0 ROBERT H BROWN JR MD 0.50 0.00 X X 0 0 0 0 false false false STRINE ADVANCED GRAPHIC PRODUCTION 30 GRUMBACHER ROAD YORK PA 17406 GRAPHIC DESIGNS 115569 CONE COMMUNICATIONS 855 BOYLSTON STREET BOSTON MA 02116 FUND RAISING CONSULT 180334 BISSON BARCELONA LLC PO BOX 458 BARRINGTON NH 03825 MANAGEMENT SERVICES 103153 3 29172 29172 0 17479 17479 0 0 0 0 2559217 2559217 0 0 0 2605868 17479 3939682 3939682 0 748395 748395 0 0 0 0 0 0 0 103153 20634 10312 72207 0 15571 15571 0 147405 147405 0 0 94638 94638 3618 3618 0 0 0 7262 7262 0 3041 3041 0 0 0 2970 2970 TELEPHONE 859 859 Printing and Publications 2651 2651 Postage and Shipping 15160 15160 CAMPAIGN REWARDS 66868 66868 596 596 5151869 4719014 36577 396278 3980143 1888055 5631934 2126005 0 0 0 0 0 0 1094 8517 0 3503666 0 0 0 0 9613171 7526243 8583 121 1922393 2402129 1930976 2402250 X 7682195 5109487 14506 7682195 5123993 9613171 7526243 -2546001 -12351 150 X false true X false false X 5190064 4698048 4298813 4524156 2588389 21299470 0 0 0 0 5190064 4698048 4298813 4524156 2588389 21299470 0 0 21299470 54585 190964 11659 2248 17479 276935 0 54585 190964 11659 2248 17479 276935 0 0 5244649 4889012 4310472 4526404 2605868 21576405 0.98720 0.98610 0.01280 0.01390 X 2628667 -12351 35150 22799 2605868 2605868 5186869 35000 35000 5151869 5151869 true SOUTH ASIA ALS RESEARCH 38075 CHECK MIDDLE EAST ALS RESEARCH 319980 CHECK EUROPE ALS RESEARCH 252340 CHECK EUROPE ALS RESEARCH 138000 CHECK 3 1 false false false false false false Grantmaker's Description of How Grants are Used in Foreign Country ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED. X true MN MI MA MD HI DC NM WI WV VA TN SC RI PA OK ND NC NY NJ NH MS ME KS IL GA FL CT CA AZ AL IN-STORE FUNDRAISING CAMPAIGN 2559217 2559217 2559217 2559217 2559217 true XALUD THERAPEUTICS INC 30 HILL STREET SAN FRANCISCO CA 94110 270422708 188593 0 USE OF INTERLUKIN THERAPY UNIVERSITY OF WASHINGTON 1959 NE PACIFIC AVE SEATTLE WA 98195 916001537 STATE OF WASHINGTON 107330 0 ALS CLINICAL TRIAL MEXILITINE UNIV MASS MEDICAL SCHOOL 55 LAKE AVE NORTH LRB919 WORCESTER MA 01655 043167352 COMM MASSACHUSETTS 226882 0 MOLECULAR DISSECTION OF TDP-43 UNIV MASS MEDICAL SCHOOL 364 PLANTATION STREET 604 LR WORCESTER MA 01605 043167352 COMM MASSACHUSETTS 296681 0 ALS RESEARCH - MITROCHONDIAL TARGET UNIV MASS MEDICAL SCHOOL 364 PLANTATION ST 604 LRB WORCESTER MA 01605 043167352 COMM MASSACHUSETTS 149320 0 CONSTRUCT TRANSGENIC MOUSE MODEL UNIV MASS MEDICAL SCHOOL 364 PLANTATION DRIVE LRB 603 WORCESTER MA 01655 043167352 COMM MASSACHUSETTS 200000 0 LINKAGE BETWEEN DNA DAMAGE MASS GENERAL HOSPITAL BUILDING 114 16TH ST RM 3125 CHARLESTOWN MA 02129 042697983 501(C)(3) 200000 0 MODULATING DISEASE PROGRESSION MASS GENERAL HOSPITAL BUILDING 114 16TH ST RM 3125 CHARLESTOWN MA 01212 042697983 501(C)(3) 633300 0 ALS CLINICAL TRIAL MEXILITINE MASS GENERAL HOSPITAL 149 13TH STREETM SYTUE 2-2274 CHARLESTOWN MA 02129 042697983 501(C)(3) 103427 0 MULTICENTER STUDY ALS BIOMARKERS HARVARD SCHOOL PUBLIC HEALTH 665 HUNTINGTON AVE 2 RM 310 BOSTON MA 02115 042103580 501(C)(3) 186647 0 PROSPECTIVE STUDY OF STATINS HARVARD SCHOOL OF PUBLIC HEAL 651 HUNTINGTON AVE BOSTON MA 02115 042103580 501(C)(3) 207000 0 CONTRIBUTION OR ER STRESS HARVARD MEDICAL SCHOOL 220 LONGWOOD AVE BOSTON MA 02115 042103580 501(C)(3) 700000 0 MODULATING COLLABORATIVE DRUG DANA FARBER INSTITUTE 450 BROOKLINE AVE SM870 BOSTON MA 02215 042263040 501(C)(3) 300000 0 EXCESSIVE R LOOP-DRIVEN DNA COLUMBIA UNIV MEDICAL CENTER 701 W 168 ST ROOM 616 NEW YORK NY 10032 135598093 501(C)(3) 435928 0 RESEARCH GENE EXPRESSION 13 1 Grantmaker's Description of How Grants are Used ORGANIZATION REQUIRES GRANTEES TO SUBMIT PROGRESS REPORTS EVERY SIX MONTHS DEMONSTRATING PROGRESS TOWARD THE PROPOSED RESEARCH INVESTIGATION INITIALLY PROPOSED BY THE GRANTEE AND APPROVED BY THE ORGANIZATION. ORGANIZATION ALSO REQUIRES FINAL REPORT OF RESULTS AT THE CONCLUSION OF RESEARCH INVESTIGATION. ORGANIZATION ALSO REQUIRES FINANCIAL STATEMENT OF ALL GRANT EXPENDITURES FILED WITHIN 60 DAYS OF EXPIRATION OF GRANT PERIOD. ORGANIZATION MAY WITHHOLD FUTURE FUNDS FROM GRANTEE IF REPORTS ARE NOT FILED. TOM MANIATIS MD DIRECTOR 140683 PD TO EMPLYR CY GRANT PD MERIT CUDKOWICZ MD DIRECTOR 104010 PD TO EMPLYR PY GRANT PD LAWRENCE HAYWARD MD DIRECTOR 137314 PD TO EMPLYR PY GRANT PD TOM MANIATIS MD DIRECTOR 150000 PD TO EMPLYR PY GRANT PD LAWRENCE HAYWARD MD DIRECTOR 11628 PD TO EMPLYR PY GRANT PD THE ORGANIZATION'S BOARD OF DIRECTORS INCLUDES SEVERAL HIGHLY TRAINED RESEARCH SCIENTISTS WITH EXPERTISE IN ALS RESEARCH. THESE DIRECTOR/SCIENTISTS CAN APPLY FOR RESEARCH GRANTS ON BEHALF OF THE RESEARCH FACILITIES WHERE THEY ARE EMPLOYED. WHEN GRANT PROPOSALS FROM BOARD OF DIRECTOR MEMBERS ARE CONSIDERED BY THE BOARD OF DIRECTORS, THE BOARD MEMBER APPLYING MUST RECUSE THEMSELVES FROM ALL DISCUSSION AND VOTING ON THE GRANTS. Form 990, Part VI, Line 19 Form 990, Part VI, Line 19: Other Organization Documents Publicly Available FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE AND ON THE MASSACHUSETTS ATTORNEY GENERAL'S WEBSITE. Form 990, Part VI, Line 11b Form 990, Part VI, Line 11b: Form 990 Review Process COPY OF THE FORM 990 WILL BE PROVIDED TO AND REVIEWED BY BOARD MEMBERS. Form 990, Part VI, Line 3 Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company DAY-TO-DAY MANAGAEMENT DUTIES ARE PERFORMED BY BISSON BARCELONA LLC UNDER A MANAGEMENT AGREEMENT.