AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2013-02-01 to 2014-01-31
Filed: 2014-06-16
IRS object ID: 201421679349301572
Schema version: 2013v3.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2014-06-16T17:58:33-05:00	ReturnTs
Tax Period End	2014-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	953001179	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	WINDES INC	BusinessNameLine1

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	PO BOX 87	AddressLine1
City	LONG BEACH	City
State	CA	State
ZIP Code	908010087	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2013-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW NO 250	AddressLine1
City	WASHINGTON	City
State	DC	State
ZIP Code	20005	ZIPCode

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	WARREN R NELSON	PersonNm
Person Title	TREASURER	PersonTitleTxt
Phone	2024078580	PhoneNum
Signature	2014-06-16	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	DONITA M JOSEPH	PreparerPersonNm
PTIN	P00286656	PTIN
Phone	5624351191	PhoneNum

Field	Value	IRS element (for citing)
Tax	2013	TaxYr
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1

Field	Value	IRS element (for citing)
Principal Officer	JANE H GILBERT	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW NO 250	AddressLine1
City	WASHINGTON	City
State	DC	State
ZIP Code	20005	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	$25,671,171	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1985	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH.	ActivityOrMissionDesc
Voting Members Governing Body	18	VotingMembersGoverningBodyCnt
Voting Members Independent	18	VotingMembersIndependentCnt
Total Employee	73	TotalEmployeeCnt
Total Volunteers	18	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$19,357,009	PYContributionsGrantsAmt
CY Contributions Grants	$23,517,487	CYContributionsGrantsAmt
PY Program Service Revenue	$46,000	PYProgramServiceRevenueAmt
CY Program Service Revenue	$56,675	CYProgramServiceRevenueAmt
PY Investment Income	$208,866	PYInvestmentIncomeAmt
CY Investment Income	$440,600	CYInvestmentIncomeAmt
PY Other Revenue	$78,377	PYOtherRevenueAmt
CY Other Revenue	$15,925	CYOtherRevenueAmt
PY Total Revenue	$19,690,252	PYTotalRevenueAmt
CY Total Revenue	$24,030,687	CYTotalRevenueAmt
PY Grants And Similar Paid	$6,843,097	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$7,086,727	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$5,138,716	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$5,843,475	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$709,621	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$467,822	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$3,600,970	CYTotalFundraisingExpenseAmt
PY Other Expenses	$7,105,147	PYOtherExpensesAmt
CY Other Expenses	$7,766,341	CYOtherExpensesAmt
PY Total Expenses	$19,796,581	PYTotalExpensesAmt
CY Total Expenses	$21,164,365	CYTotalExpensesAmt
PY Revenues Less Expenses	-$106,329	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$2,866,322	CYRevenuesLessExpensesAmt
Total Assets BOY	$20,059,969	TotalAssetsBOYAmt
Total Assets EOY	$24,512,086	TotalAssetsEOYAmt
Total Liabilities BOY	$2,557,775	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$4,111,696	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$17,502,194	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$20,400,390	NetAssetsOrFundBalancesEOYAmt
Mission	LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$7,170,481	ExpenseAmt
Grant	$6,652,904	GrantAmt
Desc	RESEARCH PROGRAMS - FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE. (113 RESEARCH GRANTS)	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$5,089,534	ExpenseAmt
Grant	$433,824	GrantAmt
Desc	PATIENT & COMMUNITY SERVICES - THE ASSOCIATION PROVIDES OVERSIGHT AND SUPPORT SERVICES TO ITS CHAPTERS. THROUGH THESE CHAPTERS THE ASSOCIATION SERVES AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, AND HEALTH CARE PROFESSIONALS. WE NOT ONLY PROVIDE OVERSIGHT AND ORGANIZATIONAL DEVELOPMENT SUPPORT TO THE ASSOCIATION'S CHAPTERS IN SUPPORT OF THOSE SERVICES, BUT ALSO PROVIDE GRANTS TO THE ASSOCIATION'S CERTIFIED CENTERS.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$3,387,682	ExpenseAmt
Revenue	$56,675	RevenueAmt
Desc	PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$15,647,697	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	Yes (1)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	Yes (1)	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	Yes (1)	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	69	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	73	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	18	GoverningBodyVotingMembersCnt
Independent Voting Member	18	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JOHN W APPLEGATE	BusinessNameLine1

Field	Value	IRS element (for citing)
Phone	8188809007	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	27001 AGOURA ROAD SUITE 250	AddressLine1
City	CALABASAS HILLS	City
State	CA	State
ZIP Code	91301	ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
WILLIAM THOET
CHAIRMAN	2.00	Yes (X)	Yes (X)	$0	$0	$0
LUIS E LEON
TREASURER	2.00	Yes (X)	Yes (X)	$0	$0	$0
DOUGLAS BUTCHER
SECRETARY	2.00	Yes (X)	Yes (X)	$0	$0	$0
LAWRENCE R BARNETT ESQ
TRUSTEE	2.00	Yes (X)		$0	$0	$0
PHYLLIS R BROURMAN ESQ
TRUSTEE	2.00	Yes (X)		$0	$0	$0
CHRIS W BRUSSALIS
TRUSTEE	2.00	Yes (X)		$0	$0	$0
DANIEL DEGRANDPRE
TRUSTEE	2.00	Yes (X)		$0	$0	$0
CYNTHIA DOUTHAT
TRUSTEE	2.00	Yes (X)		$0	$0	$0
DON CASEY
TRUSTEE	2.00	Yes (X)		$0	$0	$0
KIM ANN MINK PHD
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ELLYN G PHILLIPS
TRUSTEE	2.00	Yes (X)		$0	$0	$0
JONATHAN ROBERTS
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ALLAN J TOBIN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
WILLIAM D SOFFEL
TRUSTEE	2.00	Yes (X)		$0	$0	$0
EDMUND G MCCURTAIN II
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ANDREA PAULS BACKMEN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
STUART OBERMANN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
MARTY HERBERT
TRUSTEE	2.00	Yes (X)		$0	$0	$0
JANE H GILBERT
PRESIDENT AND CEO	40.00		Yes (X)	$339,475	$0	$22,983
DANIEL M REZNIKOV
CHIEF FINANCIAL OFFICER	40.00		Yes (X)	$201,260	$0	$11,264
STEVE GIBSON
CHIEF PUBLIC POLICY OFFICER	40.00			$182,862	$0	$19,343	Yes (X)
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICE	40.00			$160,646	$0	$8,778	Yes (X)
LANCE SLAUGHTER
CHIEF CHAPTER RELATIONS OF	40.00			$152,692	$0	$16,686	Yes (X)
MICHELLE KEEGAN
CHIEF DEVELOPMENT OFFICER	40.00			$178,744	$0	$17,136	Yes (X)
JOHN W APPLEGATE
ASSOCIATION FINANCE OFFICER	40.00			$118,726	$0	$15,743		Yes (X)
DAVID MOSES
DIRECTOR, PLANNED GIVING	40.00			$112,509	$0	$15,508		Yes (X)
CARRIE MUNK
CHIEF COMMUNICATIONS & MARKETING OFFICER	40.00			$142,875	$0	$8,023		Yes (X)
PATRICK WILDMAN
DIRECTOR, COMMUNCATIONS & PUBLIC POLICY	40.00			$112,358	$0	$15,970		Yes (X)
KATHI KROMER
DIRECTOR, STATE ADVOCACY OUTREACH	40.00			$110,661	$0	$15,532		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$1,812,808	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$166,966	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	14	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1	CityContractorAddress/USAddress/City	StateContractorAddress/USAddress/State	ZIP CodeContractorAddress/USAddress/ZIPCode	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1	CityContractorAddress/ForeignAddress/City	CountryContractorAddress/ForeignAddress/Country	Postal CodeContractorAddress/ForeignAddress/PostalCode
NNE MARKETING
105 PAUL REVERE RD	CONCORD	MA	01742	MARKETING	$352,554
LUCIE BRUIJN PHD
				RESEARCH CONSULTANT	$250,000	FLAT 5 15 ST GERMANS PLACE	LONDON	UK	SE3 ONN
2RIVER CONSULTING LLC
315 C STREET SE	WASHINGTON	DC	20003	CONSULTANT	$140,000
MICHAEL COSCIA
304 TWELFTH STREET SE PO BOX 15084	WASHINGTON	DC	20003	MARKETING	$117,312
BLACKSTONE MEDIA GROUP
304 TWELFTH STREET SE PO BOX 15084	WASHINGTON	DC	20003	MEDIA PRODUCTION	$101,156

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	5	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$280,720	FederatedCampaignsAmt
Fundraising	$335,522	FundraisingAmt
Government Grants	$363,067	GovernmentGrantsAmt
All Other Contributions	$22,538,178	AllOtherContributionsAmt
Noncash Contributions	$259,375	NoncashContributionsAmt
Total Contributions	$23,517,487	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	CONFERENCE FEES	Desc
Business	900099	BusinessCd
Total Revenue Column	$56,675	TotalRevenueColumnAmt
Related Or Exempt Func Income	$56,675	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$56,675	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$179,732	TotalRevenueColumnAmt
Exclusion	$179,732	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$1,867,893	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$1,607,025	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$260,868	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$260,868	TotalRevenueColumnAmt
Exclusion	$260,868	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$33,459	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$335,522	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$33,459	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	MISCELLANEOUS INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$15,925	TotalRevenueColumnAmt
Exclusion	$15,925	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$15,925	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$24,030,687	TotalRevenueColumnAmt
Related Or Exempt Func Income	$56,675	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$456,525	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$6,231,235	TotalAmt
Program Services	$6,231,235	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$6,974	TotalAmt
Program Services	$6,974	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$848,518	TotalAmt
Program Services	$848,518	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,313,769	TotalAmt
Program Services	$760,222	ProgramServicesAmt
Management And General	$284,623	ManagementAndGeneralAmt
Fundraising	$268,924	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$3,610,724	TotalAmt
Program Services	$2,187,073	ProgramServicesAmt
Management And General	$583,840	ManagementAndGeneralAmt
Fundraising	$839,811	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$171,082	TotalAmt
Program Services	$103,704	ProgramServicesAmt
Management And General	$27,615	ManagementAndGeneralAmt
Fundraising	$39,763	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$356,385	TotalAmt
Program Services	$210,821	ProgramServicesAmt
Management And General	$66,645	ManagementAndGeneralAmt
Fundraising	$78,919	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$391,515	TotalAmt
Program Services	$234,237	ProgramServicesAmt
Management And General	$69,135	ManagementAndGeneralAmt
Fundraising	$88,143	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$14,233	TotalAmt
Management And General	$5,810	ManagementAndGeneralAmt
Fundraising	$8,423	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$55,730	TotalAmt
Management And General	$55,730	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$106,721	TotalAmt
Program Services	$106,721	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$467,822	TotalAmt
Fundraising	$467,822	FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$3,420,747	TotalAmt
Program Services	$1,795,057	ProgramServicesAmt
Management And General	$377,349	ManagementAndGeneralAmt
Fundraising	$1,248,341	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$456,306	TotalAmt
Program Services	$347,120	ProgramServicesAmt
Management And General	$3,851	ManagementAndGeneralAmt
Fundraising	$105,335	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$297,451	TotalAmt
Program Services	$119,964	ProgramServicesAmt
Management And General	$63,468	ManagementAndGeneralAmt
Fundraising	$114,019	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$14,336	TotalAmt
Program Services	$5,773	ProgramServicesAmt
Management And General	$8,563	ManagementAndGeneralAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$512,312	TotalAmt
Program Services	$249,597	ProgramServicesAmt
Management And General	$157,519	ManagementAndGeneralAmt
Fundraising	$105,196	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,348,628	TotalAmt
Program Services	$1,156,778	ProgramServicesAmt
Management And General	$86,069	ManagementAndGeneralAmt
Fundraising	$105,781	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$103,087	TotalAmt
Program Services	$54,243	ProgramServicesAmt
Management And General	$29,130	ManagementAndGeneralAmt
Fundraising	$19,714	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CHAPTER SUPPORT	$1,110,321	$1,110,321
TELECOMMUNICATIONS	$179,204	$108,027	$41,900	$29,277
MISCELLANEOUS	$120,137	$11,312	$54,451	$54,374
CAR DONATION PROGRAM	$27,128			$27,128

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$21,164,365	TotalAmt
Program Services	$15,647,697	ProgramServicesAmt
Management And General	$1,915,698	ManagementAndGeneralAmt
Fundraising	$3,600,970	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,056,192	TotalAmt
Program Services	$176,732	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$879,460	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$5,525,946	BOYAmt
EOY	$8,998,024	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,776,766	BOYAmt
EOY	$1,427,846	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$3,933,182	BOYAmt
EOY	$1,541,569	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$230,418	BOYAmt
EOY	$262,525	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,487,063	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,251,449	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$222,142	BOYAmt
EOY	$235,614	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$7,314,287	BOYAmt
EOY	$7,778,069	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,057,228	BOYAmt
EOY	$4,268,439	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$20,059,969	BOYAmt
EOY	$24,512,086	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,377,441	BOYAmt
EOY	$2,242,302	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$180,334	BOYAmt
EOY	$1,002,005	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$867,389	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$2,557,775	BOYAmt
EOY	$4,111,696	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$8,317,870	BOYAmt
EOY	$8,312,123	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$8,260,444	BOYAmt
EOY	$11,169,117	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$923,880	BOYAmt
EOY	$919,150	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$17,502,194	BOYAmt
EOY	$20,400,390	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$20,059,969	BOYAmt
EOY	$24,512,086	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$2,866,322	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$21,681	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$53,555	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,583,917	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$17,744,381	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$19,126,742	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$19,357,009	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,550,946	CurrentTaxYearAmt
Total	$94,362,995	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,583,917	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$17,744,381	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$19,126,742	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$19,357,009	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,550,946	CurrentTaxYearAmt
Total	$94,362,995	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$4,089,387	SubstantialContributorsTotAmt
Public Support Total170	$90,273,608	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$77,526	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$55,620	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$119,967	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$174,222	CurrentTaxYearMinus1YearAmt
Current Tax Year	$179,732	CurrentTaxYearAmt
Total	$607,067	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$47,654	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$31,744	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$14,736	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$30,161	CurrentTaxYearMinus1YearAmt
Current Tax Year	$15,926	CurrentTaxYearAmt
Total	$140,221	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$95,110,283	TotalSupportAmt
Gross Receipts Rltd Activities	$211,052	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.94910	PublicSupportCY170Pct
Public Support PY170	0.97680	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$43,750	FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$397,107	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$440,857	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$15,206,840	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$15,647,697	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$932,385	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$233,096	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$757,265	CurrentYearMinus3Amt
Current Year Minus2	$869,634	CurrentYearMinus2Amt
Current Year Minus1	$879,798	CurrentYearMinus1Amt
Current Year	$932,385	CurrentYearAmt
Total	$3,439,082	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$5,158,623	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$370,155	CurrentYearMinus3Amt
Current Year Minus2	$374,683	CurrentYearMinus2Amt
Current Year Minus1	$285,767	CurrentYearMinus1Amt
Current Year	$440,857	CurrentYearAmt
Total	$1,471,462	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$189,316	CurrentYearMinus3Amt
Current Year Minus2	$217,409	CurrentYearMinus2Amt
Current Year Minus1	$219,950	CurrentYearMinus1Amt
Current Year	$233,096	CurrentYearAmt
Total	$859,771	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,289,657	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$34,220	CurrentYearMinus3Amt
Current Year Minus2	$32,593	CurrentYearMinus2Amt
Current Year Minus1	$26,625	CurrentYearMinus1Amt
Current Year	$43,750	CurrentYearAmt
Total	$137,188	TotalAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	FORM 990, SCHEDULE C, PART II-B	FormAndLineReferenceDesc
Explanation	THE PURPOSE OF OUR ADVOCACY PROGRAM IS TO SENSITIZE LEGISLATORS TO, AND OBTAIN THEIR SYMPATHY FOR, THE PLIGHT OF ALS VICTIMS, PATIENTS AND THEIR FAMILIES, AND TO INFLUENCE LEGISLATION REGARDING THE APPROPRIATION OF FEDERAL FUNDS FOR ALS RESEARCH AND THE USE AND COST TO PATIENTS OF "ORPHAN" DRUGS. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX-EXEMPT PURPOSE.	ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$5,990,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$21,965	InvestmentEarningsOrLossesAmt
Other Expenditures	$21,965	OtherExpendituresAmt
End Year Balance	$5,990,000	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$13,666	InvestmentEarningsOrLossesAmt
Other Expenditures	$13,666	OtherExpendituresAmt
End Year Balance	$240,000	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,091	InvestmentEarningsOrLossesAmt
Other Expenditures	$8,091	OtherExpendituresAmt
End Year Balance	$240,000	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$26,305	InvestmentEarningsOrLossesAmt
Other Expenditures	$26,305	OtherExpendituresAmt
End Year Balance	$240,000	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$12,739	InvestmentEarningsOrLossesAmt
Grants Or Scholarships	$12,739	GrantsOrScholarshipsAmt
End Year Balance	$240,000	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	0.04000	PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY	0.96000	TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$216,335	OtherCostOrOtherBasisAmt
Depreciation	$149,682	DepreciationAmt
Book Value	$66,653	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,270,728	OtherCostOrOtherBasisAmt
Depreciation	$1,101,767	DepreciationAmt
Book Value	$168,961	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$235,614	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (5 entries)

DescDesc	Book ValueBookValueAmt
OFFICE LEASE DEPOSITS	$51,262
VENDOR DEPOSITS	$1,401
OTHER RECEIVABLES	$152,669
BENEFICIAL INTEREST IN PERPETUAL TRUSTS	$997,093
REVENUES AND LOANS RECEIVABLE FROM CHAPTERS	$3,066,014

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$4,268,439	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	ANNUITY PAYMENT LIABILITY	Desc
Amt	$867,389	Amt

Field	Value	IRS element (for citing)
Total Liability	$867,389	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$29,102,318	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$21,681	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$5,066,885	DonatedServicesAndUseFcltsAmt
Other Revenue	$53,555	OtherRevenueAmt
Revenue Not Reported	$5,098,759	RevenueNotReportedAmt
Revenue Subtotal	$24,003,559	RevenueSubtotalAmt
Other Revenues Not Included	$27,128	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$27,128	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$24,030,687	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$26,204,122	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$5,066,885	DonatedServicesUseFcltsAmt
Expenses Not Reported	$5,066,885	ExpensesNotReportedAmt
Expenses Subtotal	$21,137,237	ExpensesSubtotalAmt
Other Expenses Not Included	$27,128	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$27,128	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$21,164,365	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	IN DECEMBER 2013, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $5,750,000, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. THE ASSOCIATION ANTICIPATES THAT IT WILL RECEIVE ADDITIONAL CONTRIBUTIONS FROM THE DONOR'S ESTATE WHICH ARE NOT CURRENTLY ABLE TO BE ESTIMATED. THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES.
PART X, LINE 2:	THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -4,730. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 58,285.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	CAR DONATION PROGRAM COST 27,128.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	CAR DONATION PROGRAM COST 27,128.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE (INCLUDING ICELAND & GREENLAND) -	GRANT MAKING	RESEARCH	$532,045
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANT MAKING	RESEARCH	$276,473
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,	GRANT MAKING	RESEARCH	$40,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continutation Total Office	0	ContinutationTotalOfficeCnt
Continutation Total Employee	0	ContinutationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$848,518	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$848,518	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (14 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE (INCLUDING ICELAND & GREENLAND) -	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	$85,000	CHECK & WIRE TRANSFER
SOUTH AMERICA	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	$20,000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	$79,545	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	$50,000	CHECK & WIRE TRANSFER
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$40,000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$80,000	CHECK & WIRE TRANSFER
NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$20,000	CHECK & WIRE TRANSFER
NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$152,819	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$20,000	CHECK & WIRE TRANSFER
NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$63,655	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$100,000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$70,000	CHECK & WIRE TRANSFER
NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$40,000	CHECK & WIRE TRANSFER
EUROPE (INCLUDING ICELAND & GREENLAND) -	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS	$27,500	CHECK & WIRE TRANSFER

Field	Value	IRS element (for citing)
Total501c3 Org	13	Total501c3OrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 2:	FOREIGN INVESTIGATORS, SIMILAR TO U.S. INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT.
PART I, LINE 3:	ALL FOREIGN APPLICANTS, SIMILAR TO U.S. INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)

Address Line1USAddress/AddressLine1	CityUSAddress/City	StateUSAddress/State	ZIP CodeUSAddress/ZIPCode	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
NNE MARKETING LLC
105 PAUL REVERE ROAD	CONCORD	MA	01742	FUNDRAISING COUNSEL	0	$3,051,581	$305,554	$2,746,027
STRATEGIC FUNDRAISING INC
7591 9TH STREET NORTH	ST PAUL	MN	55128	MANAGES TELEMARKETING SOLICITATIONS	0	$132,667	$110,910	$5,893
AMERICA'S CAR DONATION CENTER
3755 OMEC CR 4	RANCHO CORDOVA	CA	95742	CAR DONATIONS	Yes (1)	$78,487	$51,358	$22,011

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,262,735	TotalGrossReceiptsAmt
Total Retained By Contractors	$467,822	TotalRetainedByContractorsAmt
Total Net To Organization	$2,773,931	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	DC	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	NV	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Name Of Event1	ALSA WALK - BANGOR	NameOfEvent1Amt
Gross Receipts Event1	$48,472	GrossReceiptsEvent1Amt
Charitable Contri Event1	$45,652	CharitableContriEvent1Amt
Gross Revenue Event1	$2,820	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$2,820	OtherDirectExpensesEvent1Amt
Name Of Event2	ALSA WALK - BURLINGTON	NameOfEvent2Amt
Gross Receipts Event2	$47,234	GrossReceiptsEvent2Amt
Charitable Contri Event2	$43,353	CharitableContriEvent2Amt
Gross Revenue Event2	$3,881	GrossRevenueEvent2Amt
Rent Facility Costs Event2	$1,418	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$90	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$2,373	OtherDirectExpensesEvent2Amt
Other Events Total	6	OtherEventsTotalCnt
Gross Receipts Other Events	$273,275	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$246,517	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$26,758	GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events	$5,938	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$2,008	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$200	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$18,612	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$368,981	GrossReceiptsTotalAmt
Charitable Contributions Tot	$335,522	CharitableContributionsTotAmt
Gross Revenue Total Events	$33,459	GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events	$7,356	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$2,098	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$200	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$23,805	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$33,459	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART II, LINE 11	FormAndLineReferenceDesc
Explanation	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (127 entries)

Address Line1USAddress/AddressLine1	CityUSAddress/City	StateUSAddress/State	ZIP CodeUSAddress/ZIPCode	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2
THE ALS ASSOCIATION-GEORGIA CHAPTER
1955 CLIFF VALLEY WAY	ATLANTA	GA	30329	581943490	501(C)(3)	$25,000	CHAPTER DEVELOPMENT GRANT
BAYLOR COLLEGE OF MEDICINE - ALS CLINIC DEPT OF NEUROLOGY
6550 FANNIN SUITE 1801 SMITH TOWER	HOUSTON	TX	77030	741613878	501(C)(3)	$11,800	ALSA CENTER
CURT AND SHONDA SCHILLING ALS CLINIC
41 MALL ROAD	BURLINGTON	MA	01805	237121131	501(C)(3)	$11,800	ALSA CENTER
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)(3)	$11,800	ALSA CENTER
GEROGE WASHINGTON UNIVERSITY DEPT OF NEUROLOGY - ALS CENTER
2150 PENNSYLVANIA AVE NW 7-401	WASHINGTON	DC	20037	542126575	501(C)(3)	$11,800	ALSA CENTER
MAYO CLINIC - ALS CLINIC
13400 EAST SHEA BLVD	SCOTTSDALE	AZ	852595404	593337028	501(C)(3)	$11,800	ALSA CENTER
UNIVERSITY OF NEW MEXICO - SCHOOL OF MEDICINE
2211 LOMAS NE - MSC 10 5620	ALBUQUERQUE	NM	87131	856000642	501(C)(3)	$11,800	ALSA CENTER
UNIVERSITY OF VERMONT ALS CLINICAL DEPARTMENT OF NEUROLOGY
89 BEAUMONT AVENUE	BURLINGTON	VT	05405	030179440	501(C)(3)	$11,800	ALSA CENTER
DARTMOTH HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)(3)	$11,800	ALSA CENTER-NNE
BANNER GOOD SAMARITAN MEDICAL CENTER
1012 E WILLETTA STREET	PHOENIX	AZ	85006	410726167	501(C)(3)	$12,500	ALSA CENTER
HENNEPIN COUNTY MEDICAL CENTER
825 SOUTH EIGHTH STREET SUITE 250	MINNEAPOLIS	MD	55404	381357020	501(C)(3)	$12,500	ALSA CENTER
MAYO FOUNDATION-DEPT OF NEUROLOGY
200 FIRST STREET SW	ROCHESTER	MD	55905	416011702	501(C)(3)	$12,500	ALSA CENTER
NEUROLOGY ASSOCIATES OF STONY BROOK
179 BELLE MEADE ROAD SUITE 3	EAST SETAUKET	NY	11733	113243405	501(C)(3)	$12,500	ALSA CENTER
ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & UMDNJ MEDICAL SCHOOL
97 PATERSON ST	NEW BRUNSWICK	NJ	08903	201285267	501(C)(3)	$12,500	ALSA CENTER
WAKE FOREST BAPTIST MEDICAL CENTER
MEDICAL CENTER BLVD 3RD FLOOR MEADS	WINSTONSALEM	NC	271571078	223849199	501(C)(3)	$12,500	ALSA CENTER	MEADS
ALS CENTERALS CENTERALS CENTER HERSHEY MEDICAL CENTER H037
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	501(C)(3)	$13,100	ALSA CENTER
BETH ISRAEL MEDICAL CENTER ALS CLINICKEN DEPARTMENT OF NEUROLOGY
10 UNION SQUARE EAST	NEW YORK	NY	10003	042103881	501(C)(3)	$13,100	ALSA CENTER
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44195	340714585	501(C)(3)	$13,100	ALSA CENTER
DUKE UNIVERSITY MEDICAL CENTER
DUMC BOX 3333 932 MORREENE ROAD	DURHAM	NC	27705	560532129	501(C)(3)	$13,100	ALSA CENTER
FORBES NORRIS ALS RESEARCH CENTER
2324 SACRAMENTO ST	SAN FRANCISCO	CA	94115	262047755	501(C)(3)	$13,100	ALSA CENTER
GEORGIA HEALTH SCIENCES FOUNDATION INC
1120 15TH STREET BP 4390	AUGUSTA	GA	309120004	352310573	501(C)(3)	$13,100	ALSA CENTER
HARRY J HOENSLAAR ALS CLINIC
2799 WEST GRAND AVE K-11 NEUROLOGY	DETROIT	MI	48202	381357020	501(C)(3)	$13,100	ALSA CENTER
INDIANA UNIVERSITY ALS CENTER
1050 WISHARD BLVD REGENSTRIEF 6TH	INDIANAPOLIS	IN	46202	520595110	501(C)(3)	$13,100	ALSA CENTER	FLOOR
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD S CANNADAY 2E	JACKSONVILLE	FL	322241865	593337028	501(C)(3)	$13,100	ALSA CENTER
MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL
9200 W WISCONSIN AVE	MILWAUKEE	WI	53226	390806261	501(C)(3)	$13,100	ALSA CENTER
PENN STATE UNIVERSITY
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	501(C)(3)	$13,100	ALSA CENTER
PROVIDENCE ALS CENTER
5050 NE HOYT STE 315	PORTLAND	OR	97213	931176109	501(C)(3)	$13,100	ALSA CENTER
SOUTH TEXAS ALS CLINIC
8300 FLOYD CURL DRIVE MSC 7883	SAN ANTONIO	TX	782293900	741586031	501(C)(3)	$13,100	ALSA CENTER
ST LOUIS UNIVERSITY HOSPITAL
1438 SOUTH GRAND BLVD MONTELEONE	ST LOUIS	MO	63104	430654872	501(C)(3)	$13,100	ALSA CENTER	HALL
SUNY RESEARCH FOUNDATION
750 E ADAMS ST	SYRACUSE	NY	13210	141368361	501(C)(3)	$13,100	ALSA CENTER
THE NEUROMUSCULAR ALS CLINIC
2150 CORBIN AVE	NEW BRITAIN	CT	06053	060546766	501(C)(3)	$13,100	ALSA CENTER
UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
350 PARNASSUS AVENUE SUITE 500	SAN FRANCISCO	CA	94117	946036493	501(C)(3)	$13,100	ALSA CENTER
UNIVERSITY OF KANSAS MEDICAL CENTER
3599 RAINBOW BLVD MAIL STOP 2012	KANSAS CITY	KS	66160	480647721	501(C)(3)	$13,100	ALSA CENTER
UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR
ALBERT CHANDLER MED CTR	LEXINGTON	KY	40536	616001218	501(C)(3)	$13,100	ALSA CENTER
UNIVERSITY OF MICHIGAN HEALTH SYSTEM
1500 E MEDICAL CENTER DR	ANN ARBOR	MI	481090316	386006309	501(C)(3)	$13,100	ALSA CENTER
VIRGINIA MASON MEDICAL CENTER ALS CLINIC
PO BOX 900 M/S X7 NEU	SEATTLE	WA	98111	910565539	501(C)(3)	$13,100	ALSA CENTER
SRI INTERNATIONAL
333 RAVENSWOOD AVENUE	MENLO PARK	CA	94025	941160950	501(C)(3)	$13,678	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
CENTER FOR NEUROLOGIC STUDY
7825 FAY AVENUE SUITE 200	LA JOLLA	CA	92037	953374771	501(C)(3)	$14,760	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
JOHNS HOPKINS UNIVERSITY
725 N WOLFE ST WBSB 1003	BALTIMORE	MD	21205	520595110	501(C)(3)	$15,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	03755	020222111	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CINCINNATI CHILDREN'S HOSPITAL
3333 BURNET AVENUE ML 4900	CINCINNATI	OH	452293039	310833936	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316401599	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE J DAVID GLADSTONE INSTITUTES
1650 OWENS ST	SAN FRANCISCO	CA	94158	237203666	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVENUE S AB 990	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CHILDREN'S HOSPITAL BOSTON
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CLEVELAND CLINIC FOUNDATION
PO BOX 931531	CLEVELAND	OH	44193	340714585	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ST	ANN ARBOR	MI	48109	386006309	501(C)(3)	$20,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF FLORIDA
1233 GRINTER HALL	GAINESVILLE	FL	32611	596002052	501(C)(3)	$20,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
THE ROBERT PACKARD CENTER FOR ALS RESEARCH
5801 SMITH AVE MCAULEY SUITE 110	BALTIMORE	MD	21209	520595110	501(C)(3)	$23,537	PACKARD PAYMENT FOR ALS WINOKUR RESEARCH FUND
AMERICAN ACADEMY OF NEUROLOGY
1080 MONTREAL AVENUE	ST PAUL	MN	55116	410726167	501(C)(3)	$25,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
RESEARCH FOUNDATION OF SUNY
PO BOX 9	ALBANY	NY	12201	141368361	501(C)(3)	$29,837	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
THE ALS ASSOCIATION-TEXAS CHAPTER
1231 GREENWAY DRIVE SUITE 295	IRVING	TX	75038	742678974	501(C)(3)	$37,500	CHAPTER DEVELOPMENT GRANT
UNIVERSITY OF FLORIDA
219 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	32611	596002052	501(C)(3)	$39,825	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST SUITE 6401	MADISON	WI	537151218	396006492	501(C)(3)	$39,982	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BRANDEIS UNIVERSITY
415 SOUTH STREET MS 144	WALTHAM	MA	02454	041103552	501(C)(3)	$40,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF ROCHESTER
518 HYLAND BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$40,000	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS
WASHINGTON UNIVERSITY
660 SOUTH EUCLID AVENUE	ST LOUIS	MO	63110	430653611	501(C)(3)	$40,000	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
UCSD-OPAFS
9500 GILMAN DRIVE MC 0009	LA JOLLA	CA	920930009	956006144	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
JOHNS HOPKINS UNIVERSITY
C/O BANK OF AMERICA 12529 COLLECTIO	CHICAGO	IL	60693	520595110	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	S CENTER DR
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
NORTHWESTERN UNIVERSITY
750 NORTH LAKE SHORE DR 7TH FLOOR	CHICAGO	IL	60611	362167817	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
REGENTS OF THE UNIVERSITY OF CALIFORNIA
PO BOX 951406 11000 KINROSS BLDG	LOS ANGELES	CA	90095	946036493	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	211
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753	DALLAS	TX	75284	756002868	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BROWN UNIVERSITY
PO BOX 1929	PROVIDENCE	RI	02912	050258809	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
STANFORD UNIVERSITY SCHOOL OF MEDICINE
PO BOX 44253	SAN FRANCISCO	CA	94144	941156365	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
HARVARD UNIVERSITY
PO BOX 415649	BOSTON	MA	02241	042103580	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
HOSPITAL OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST	PHILADELPHIA	PA	19104	311538725	501(C)(3)	$40,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$40,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	$40,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS PLACE	COLUMBUS	OH	43205	316056230	501(C)(3)	$45,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
TACONIC FARMS INC
273 HOVER AVE	GERMANTOWN	NY	12526	141381104	501(C)(3)	$45,852	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
UNIVERSITY OF FLORIDA
PO BOX 115500 219 GRINTER HALL	GAINESVILLE	FL	32611	596002052	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
HARVARD UNIVERSITY
HOLYOKE CENTER 600 1350 MASSACHUSET	CAMBRIDGE	MA	02138	042103580	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	S AVE
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MS 509	MEMPHIS	TN	38105	620646012	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
TRUSTEES OF COLUMBIA IN THE CITY OF NEW YORK
630 WEST 168TH ST BOX 49	NEW YORK	NY	10032	135598093	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
NORTHWESTERN UNIVERSITY
1801 MAPLE AVE 2ND FL 2410	EVANSTON	IL	60201	362167817	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$50,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
DIGNITY HEALTH
ST JOSEPHS HOSPITAL AZ FILE 57431	LOS ANGELES	CA	90074	860096787	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
THE SCRIPPS RESEARCH INSTITUTE - FLORIDA
10550 N TORREY PINES RD TPC-7	LA JOLLA	CA	92037	330435954	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
LUDWIG INSTITUTE FOR CANCER RESEARCH
PO BOX 12385	LA JOLLA	CA	92093	237121131	501(C)(3)	$50,000	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS
THE RESEARCH FOUNDATION OF SUNY
750 E ADAMS STREET RESEARCH ADMIN	SYRACUSE	NY	13210	141368361	501(C)(3)	$50,675	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)	WH 1111D
BETH ISRAEL MEDICAL CENTER
10 UNION SQUARE EAST	NEW YORK	NY	10003	135564934	501(C)(3)	$53,300	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
THE CURATORS OF THE UNIVERSITY OF MISSOURI
P O BOX 80712	KANSAS CITY	MO	64180	436003859	501(C)(3)	$60,021	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316401599	501(C)(3)	$65,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DR MC-0660 CMM-EAST RM	LA JOLLA	CA	92093	237121131	501(C)(3)	$65,500	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	3041
AMERICAN ACADEMY OF NEUROLOGY FOUNDATION
1080 MONTREAL AVENUE	ST PAUL	MN	55116	410726167	501(C)(3)	$66,445	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
TACONIC FARMS INC
273 HOVER AVE	GERMANTOWN	NY	12526	141381104	501(C)(3)	$67,894	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
WASHINGTON UNIVERSITY
700 ROSEDALE AVE	ST LOUIS	MO	63112	430653611	501(C)(3)	$69,426	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
SUNY UPSTATE MEDICAL UNIVERSITY
750 E ADAMS STREET	SYRACUSE	NY	13210	141368361	501(C)(3)	$70,765	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
EMORY UNIVERSITY
1599 CLIFTON RD 4TH FLOOR	ATLANTA	GA	303224250	580566256	501(C)(3)	$71,338	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
337 FRANK D PETERSON SERVICE BLDG	LEXINGTON	KY	405060005	616033693	501(C)(3)	$79,482	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
PRESIDENT AND FELLOWS OF HARVARD UNIVERSITY
HOLYOKE CENTER SUITE 600 1350	CAMBRIDGE	MA	02138	042103580	501(C)(3)	$79,823	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	MASSACHUSETTS AVE
OREGON HEALTH AND SCIENCE UNIVERSITY
0690 SW BANCROFT L106SPA	PORTLAND	OR	97239	931176109	501(C)(3)	$80,000	TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS
LSU HEALTH SCIENCES CENTER
433 BOLIVAR STREET	ORLEANS	LA	70112	726087770	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
P O BOX 3887	BOSTON	MA	022413887	042312909	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
BRIGHAM AND WOMEN'S HOSPITAL
BANK OF AMERICA NA PO BOX 3887	BOSTON	MA	02241	042312909	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
TRUSTEES OF COLUMBIA UNIVERSITY
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DRIVE MC 0934	LA JOLLA	CA	92093	946036493	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVD 6500 WIL SUITE	LOS ANGELES	CA	90048	951644600	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS	1150
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST SUITE 6401	MADISON	WI	53715	396006492	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DRIVE MC 0934	LA JOLLA	CA	920930934	946036493	501(C)(3)	$80,000	TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS
JOHNS HOPKINS UNIVERSITY
C/O BANK OF AMERICA 12529 COLLECTIO	CHICAGO	IL	60693	520595110	501(C)(3)	$80,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	S CENTER DR
UNIVERSITY OF MARYLAND BALTIMORE
PO BOX 41428	BALTIMORE	MD	21203	526002033	501(C)(3)	$83,137	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE 300	BOSTON	MA	02199	042697983	501(C)(3)	$100,000	CLINICAL MANAGEMENT AWARD
UNIVERSITY OF KENTUCKY
C/O PNC BANK PO BOX 931113	CLEVELAND	OH	44193	616033693	501(C)(3)	$100,000	CLINICAL MANAGEMENT AWARD
EMORY UNIVERSITY
1599 CLIFTON RD 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$107,649	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
NYU SCHOOL OF MEDICINE
ONE PARK AVENUE 6TH FLOOR	NEW YORK	NY	10016	135562308	501(C)(3)	$113,808	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
UNIVERSITY OF KANSAS MEDICAL CENTER
3901 RAINBOW BLVD MSN 1039	KANSAS CITY	KS	66160	480647721	501(C)(3)	$116,882	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE NORTH	WORCESTER	MA	01655	043167352	501(C)(3)	$120,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE	BOSTON	MA	02199	042697983	501(C)(3)	$131,875	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
JOHNS HOPKINS UNIVERSITY
C/O BANK OF AMERICA 12529 COLLECTIO	CHICAGO	IL	60693	520595110	501(C)(3)	$144,116	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS	S CENTER DR
JOHNS HOPKINS UNIVERSITY
1830 E MONUMENT STREET SUITE 9030	BALTIMORE	MD	21205	520595110	501(C)(3)	$148,424	CLINICAL PILOT AWARD STUDY
EMORY UNIVERSITY
101 WOODRUFF CIR	ATLANTA	GA	30322	580566256	501(C)(3)	$149,486	CLINICAL PILOT AWARD STUDY
UNIVERSITY OF MICHIGAN
3003 S STATE STREET ROOM 1054	ANN ARBOR	MI	48109	386006309	501(C)(3)	$150,000	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
THE RESEARCH FOUNDATION OF SUNY
750 E ADAMS STREET RESEARCH ADMIN	SYRACUSE	NY	13210	141368361	501(C)(3)	$150,000	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)	WH 1111D
UNIVERSITY OF MIAMI
1400 NW 10 AVE	MIAMI	FL	33136	590624458	501(C)(3)	$150,000	CLINICAL PILOT AWARD STUDY
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE 300	BOSTON	MA	02199	042697983	501(C)(3)	$150,000	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE	BOSTON	MA	02199	042697983	501(C)(3)	$179,085	TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS)
BRIGHAM AND WOMEN'S HOSPITAL
75 FRANCIS STREET	BOSTON	MA	02115	042312909	501(C)(3)	$243,504	TREAT ALS GRANTS
NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS(NINDSNIHDHHS)
9000 ROCKVILLE PIKE	BETHESDA	MD	20892	520858115	501(C)(3)	$250,000	LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS

Field	Value	IRS element (for citing)
Total501c3 Org	104	Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (3 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt	Valuation Method UsedValuationMethodUsedDesc
GRANTS FOR CHAPTER DEVELOPMENT	1	$1,474	CASH
CARE SERVICES	1	$5,000	CASH
CERTIFIED CENTER COST STUDY IRS UNDERWRITTEN TOTAL	1	$500	CASH

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 2:	ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED.
SCHEDULE I, PART III	ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Substantiation Required	Yes (1)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (7 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
JANE H GILBERT
PRESIDENT AND CEO	$323,850	$0	$15,625	$0	$0	$0	$12,500	$0	$10,483	$0	$362,458	$0	$0	$0
DANIEL M REZNIKOV
CHIEF FINANCIAL OFFICER	$201,260	$0	$0	$0	$0	$0	$10,079	$0	$1,185	$0	$212,524	$0	$0	$0
STEVE GIBSON
CHIEF PUBLIC POLICY OFFICER	$182,862	$0	$0	$0	$0	$0	$9,270	$0	$10,073	$0	$202,205	$0	$0	$0
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICE	$160,646	$0	$0	$0	$0	$0	$7,983	$0	$795	$0	$169,424	$0	$0	$0
LANCE SLAUGHTER
CHIEF CHAPTER RELATIONS OF	$152,692	$0	$0	$0	$0	$0	$7,750	$0	$8,936	$0	$169,378	$0	$0	$0
MICHELLE KEEGAN
CHIEF DEVELOPMENT OFFICER	$178,744	$0	$0	$0	$0	$0	$9,000	$0	$8,136	$0	$195,880	$0	$0	$0
CARRIE MUNK
CHIEF COMMUNICATIONS & MARKETING OFF	$142,875	$0	$0	$0	$0	$0	$7,152	$0	$871	$0	$150,898	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 3	FormAndLineReferenceDesc
Explanation	THE EXECUTIVE COMPENSATION & EVALUATION COMMITTEE OF THE BOARD OF DIRECTORS DETERMINES THE COMPENSATION OF THE PRESIDENT AND CEO AND MUST BE APPROVED BY THE EXECUTIVE COMMITTEE. THE PRESIDENT AND CEO DETERMINES THE COMPENSATION OF THE THE TOP FINANCIAL EMPLOYEE AND ANY KEY EMPLOYEES.	ExplanationTxt

Schedule M IRS990ScheduleM

Books And Publications BooksAndPublicationsGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Noncash Contributions Rpt F990	$2,000	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	149	ContributionCnt
Noncash Contributions Rpt F990	$78,487	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxInd	DescDesc	ContributionContributionCnt	Noncash Contributions Rpt F990NoncashContributionsRptF990Amt	Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)	ELEVATOR SEAT	80	$200,000	FMV
Yes (X)	SEAT LIFTS	25	$57,375	FMV

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, COLUMN (B):	THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS.
PART I, LINE 32B:	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11	THE TREASURER OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS ANNUALLY WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST.
FORM 990, PART IX, LINE 11G	OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 1,615,986. MANAGEMENT AND GENERAL EXPENSES 376,606. FUNDRAISING EXPENSES 77,193. TOTAL EXPENSES 2,069,785. APPEAL EXPENSES: PROGRAM SERVICE EXPENSES 179,071. MANAGEMENT AND GENERAL EXPENSES 743. FUNDRAISING EXPENSES 1,171,148. TOTAL EXPENSES 1,350,962.
FORM 990, PART XI, LINE 9:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST -4,730. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 58,285.
FORM 990, PART VIII, LINE 8C	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.
FORM 990, SCHEDULE D, PART XII, LINE 2B AND PART XIII, LINE 2A	THE ASSOCIATION PRODUCES AND DISTRIBUTES PUBLIC SERVICE TELEVISION ANNOUNCEMENTS THAT FOCUS ATTENTION ON EDUCATION AND AWARENESS. THESE PUBLIC SERVICE ANNOUNCEMENTS ARE DISTRIBUTED TO MEDIA STATIONS NATIONWIDE AND RUN FREE OF CHARGE. THE ASSOCIATION HAS CONTRACTED WITH AN INDEPENDENT OUTSIDE AGENCY TO TRACK THE DATE AND TIME THAT EACH PUBLIC SERVICE ANNOUNCEMENT RUNS, AND THE VALUE OF THE ANNOUNCEMENTS IS BASED ON THE DATE, TIME, AND MARKET. FOR THE YEAR ENDED JANUARY 31, 2014, THE ASSOCIATION RECORDED $5,066,885 OF CONTRIBUTED PUBLIC SERVICE ANNOUNCEMENTS.

Schedule R IRS990ScheduleR

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp (2 entries)

Legal Domicile StateLegalDomicileStateCd	Entity TypeEntityTypeTxt	Controlled OrganizationControlledOrganizationInd
CHARITABLE REMAINDER TRUST (1)
CA	T	0
LIVING TRUST (1)
CA	T	0

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	0	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	0	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	0	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	0	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	0	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	0	DivRelatedOrganizationInd
Asset Sale To Other Org	0	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	0	AssetPurchaseFromOtherOrgInd
Asset Exchange	0	AssetExchangeInd
Rental Of Facilities To Oth Org	0	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	0	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	0	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	0	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	0	SharingOfFacilitiesInd
Paid Employees Sharing	0	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	0	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	0	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	0	TransferToOtherOrgInd
Transfer From Other Org	0	TransferFromOtherOrgInd