2014-06-16T17:58:33-05:00 2014-01-31 953001179 WINDES INC PO BOX 87 LONG BEACH CA 908010087 990 2013-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW NO 250 WASHINGTON DC 20005 WARREN R NELSON TREASURER 2024078580 2014-06-16 1 DONITA M JOSEPH P00286656 5624351191 2013 2015-11-30 17:44:51Z THE ALS ASSOCIATION JANE H GILBERT 1275 K STREET NW NO 250 WASHINGTON DC 20005 25671171 0 4119 X WWW.ALSA.ORG X 1985 DE TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. 18 18 73 18 0 0 19357009 23517487 46000 56675 208866 440600 78377 15925 19690252 24030687 6843097 7086727 0 0 5138716 5843475 709621 467822 3600970 7105147 7766341 19796581 21164365 -106329 2866322 20059969 24512086 2557775 4111696 17502194 20400390 LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 7170481 6652904 RESEARCH PROGRAMS - FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE. (113 RESEARCH GRANTS) 5089534 433824 PATIENT & COMMUNITY SERVICES - THE ASSOCIATION PROVIDES OVERSIGHT AND SUPPORT SERVICES TO ITS CHAPTERS. THROUGH THESE CHAPTERS THE ASSOCIATION SERVES AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, AND HEALTH CARE PROFESSIONALS. WE NOT ONLY PROVIDE OVERSIGHT AND ORGANIZATIONAL DEVELOPMENT SUPPORT TO THE ASSOCIATION'S CHAPTERS IN SUPPORT OF THOSE SERVICES, BUT ALSO PROVIDE GRANTS TO THE ASSOCIATION'S CERTIFIED CENTERS. 3387682 56675 PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES. 15647697 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 69 0 1 73 1 0 0 0 0 0 1 1 0 0 0 1 0 X 18 18 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL IN KS KY LA ME MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI NV X X JOHN W APPLEGATE 8188809007 27001 AGOURA ROAD SUITE 250 CALABASAS HILLS CA 91301 WILLIAM THOET CHAIRMAN 2.00 X X 0 0 0 LUIS E LEON TREASURER 2.00 X X 0 0 0 DOUGLAS BUTCHER SECRETARY 2.00 X X 0 0 0 LAWRENCE R BARNETT ESQ TRUSTEE 2.00 X 0 0 0 PHYLLIS R BROURMAN ESQ TRUSTEE 2.00 X 0 0 0 CHRIS W BRUSSALIS TRUSTEE 2.00 X 0 0 0 DANIEL DEGRANDPRE TRUSTEE 2.00 X 0 0 0 CYNTHIA DOUTHAT TRUSTEE 2.00 X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 KIM ANN MINK PHD TRUSTEE 2.00 X 0 0 0 ELLYN G PHILLIPS TRUSTEE 2.00 X 0 0 0 JONATHAN ROBERTS TRUSTEE 2.00 X 0 0 0 ALLAN J TOBIN TRUSTEE 2.00 X 0 0 0 WILLIAM D SOFFEL TRUSTEE 2.00 X 0 0 0 EDMUND G MCCURTAIN II TRUSTEE 2.00 X 0 0 0 ANDREA PAULS BACKMEN TRUSTEE 2.00 X 0 0 0 STUART OBERMANN TRUSTEE 2.00 X 0 0 0 MARTY HERBERT TRUSTEE 2.00 X 0 0 0 JANE H GILBERT PRESIDENT AND CEO 40.00 X 339475 0 22983 DANIEL M REZNIKOV CHIEF FINANCIAL OFFICER 40.00 X 201260 0 11264 STEVE GIBSON CHIEF PUBLIC POLICY OFFICER 40.00 X 182862 0 19343 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICE 40.00 X 160646 0 8778 LANCE SLAUGHTER CHIEF CHAPTER RELATIONS OF 40.00 X 152692 0 16686 MICHELLE KEEGAN CHIEF DEVELOPMENT OFFICER 40.00 X 178744 0 17136 JOHN W APPLEGATE ASSOCIATION FINANCE OFFICER 40.00 X 118726 0 15743 DAVID MOSES DIRECTOR, PLANNED GIVING 40.00 X 112509 0 15508 CARRIE MUNK CHIEF COMMUNICATIONS & MARKETING OFFICER 40.00 X 142875 0 8023 PATRICK WILDMAN DIRECTOR, COMMUNCATIONS & PUBLIC POLICY 40.00 X 112358 0 15970 KATHI KROMER DIRECTOR, STATE ADVOCACY OUTREACH 40.00 X 110661 0 15532 1812808 0 166966 14 0 1 0 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 MARKETING 352554 LUCIE BRUIJN PHD FLAT 5 15 ST GERMANS PLACE LONDON UK SE3 ONN RESEARCH CONSULTANT 250000 2RIVER CONSULTING LLC 315 C STREET SE WASHINGTON DC 20003 CONSULTANT 140000 MICHAEL COSCIA 304 TWELFTH STREET SE PO BOX 15084 WASHINGTON DC 20003 MARKETING 117312 BLACKSTONE MEDIA GROUP 304 TWELFTH STREET SE PO BOX 15084 WASHINGTON DC 20003 MEDIA PRODUCTION 101156 5 280720 335522 363067 22538178 259375 23517487 CONFERENCE FEES 900099 56675 56675 56675 179732 179732 1867893 1607025 260868 260868 260868 33459 335522 33459 0 MISCELLANEOUS INCOME 900099 15925 15925 15925 24030687 56675 0 456525 X 6231235 6231235 6974 6974 848518 848518 1313769 760222 284623 268924 3610724 2187073 583840 839811 171082 103704 27615 39763 356385 210821 66645 78919 391515 234237 69135 88143 14233 5810 8423 55730 55730 106721 106721 467822 467822 3420747 1795057 377349 1248341 456306 347120 3851 105335 297451 119964 63468 114019 14336 5773 8563 512312 249597 157519 105196 1348628 1156778 86069 105781 103087 54243 29130 19714 CHAPTER SUPPORT 1110321 1110321 TELECOMMUNICATIONS 179204 108027 41900 29277 MISCELLANEOUS 120137 11312 54451 54374 CAR DONATION PROGRAM 27128 27128 21164365 15647697 1915698 3600970 X 1056192 176732 0 879460 5525946 8998024 1776766 1427846 3933182 1541569 230418 262525 1487063 1251449 222142 235614 7314287 7778069 1057228 4268439 20059969 24512086 2377441 2242302 180334 1002005 0 867389 2557775 4111696 X 8317870 8312123 8260444 11169117 923880 919150 17502194 20400390 20059969 24512086 X 2866322 -21681 53555 X 0 1 X 1 0 X 14583917 17744381 19126742 19357009 23550946 94362995 14583917 17744381 19126742 19357009 23550946 94362995 4089387 90273608 77526 55620 119967 174222 179732 607067 47654 31744 14736 30161 15926 140221 95110283 211052 0.94910 0.97680 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 43750 397107 440857 15206840 15647697 932385 233096 0 0 757265 869634 879798 932385 3439082 5158623 370155 374683 285767 440857 1471462 189316 217409 219950 233096 859771 1289657 34220 32593 26625 43750 137188 FORM 990, SCHEDULE C, PART II-B THE PURPOSE OF OUR ADVOCACY PROGRAM IS TO SENSITIZE LEGISLATORS TO, AND OBTAIN THEIR SYMPATHY FOR, THE PLIGHT OF ALS VICTIMS, PATIENTS AND THEIR FAMILIES, AND TO INFLUENCE LEGISLATION REGARDING THE APPROPRIATION OF FEDERAL FUNDS FOR ALS RESEARCH AND THE USE AND COST TO PATIENTS OF "ORPHAN" DRUGS. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX-EXEMPT PURPOSE. 5990000 21965 21965 5990000 240000 13666 13666 240000 240000 8091 8091 240000 240000 26305 26305 240000 240000 12739 12739 240000 0.04000 0.96000 0 0 216335 149682 66653 1270728 1101767 168961 235614 OFFICE LEASE DEPOSITS 51262 VENDOR DEPOSITS 1401 OTHER RECEIVABLES 152669 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 997093 REVENUES AND LOANS RECEIVABLE FROM CHAPTERS 3066014 4268439 ANNUITY PAYMENT LIABILITY 867389 867389 X 29102318 -21681 5066885 53555 5098759 24003559 27128 27128 24030687 26204122 5066885 5066885 21137237 27128 27128 21164365 PART V, LINE 4: IN DECEMBER 2013, THE ASSOCIATION RECEIVED A BEQUEST TOTALING $5,750,000, ESTABLISHING A TERM ENDOWMENT ACCORDING TO DESIGNATIONS MADE BY THE DONOR. THE PROCEEDS OF THIS BEQUEST ARE TO BE MAINTAINED BY THE ASSOCIATION IN AN ENDOWMENT FUND FOR A PERIOD OF TEN YEARS. EARNINGS FROM THE FUND ARE RESTRICTED TO SUPPORT RESEARCH AND MAY BE SPENT ON A CURRENT BASIS. UPON EXPIRATION OF THE ENDOWMENT TERM, THE CORPUS OF THE FUND MUST ALSO BE USED TO SUPPORT RESEARCH. THE ASSOCIATION ANTICIPATES THAT IT WILL RECEIVE ADDITIONAL CONTRIBUTIONS FROM THE DONOR'S ESTATE WHICH ARE NOT CURRENTLY ABLE TO BE ESTIMATED. THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES. PART X, LINE 2: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -4,730. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 58,285. PART XI, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM COST 27,128. PART XII, LINE 4B - OTHER ADJUSTMENTS: CAR DONATION PROGRAM COST 27,128. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 GRANT MAKING RESEARCH 532045 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANT MAKING RESEARCH 276473 MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, 0 0 GRANT MAKING RESEARCH 40000 0 0 0 0 0 0 848518 0 848518 EUROPE (INCLUDING ICELAND & GREENLAND) - LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 85000 CHECK & WIRE TRANSFER SOUTH AMERICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 79545 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 50000 CHECK & WIRE TRANSFER MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT, TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 80000 CHECK & WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 152819 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 63655 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 100000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 70000 CHECK & WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS 27500 CHECK & WIRE TRANSFER 13 0 0 0 0 0 0 PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO U.S. INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO U.S. INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. X X X X X X X 1 NNE MARKETING LLC 105 PAUL REVERE ROAD CONCORD MA 01742 FUNDRAISING COUNSEL 0 3051581 305554 2746027 STRATEGIC FUNDRAISING INC 7591 9TH STREET NORTH ST PAUL MN 55128 MANAGES TELEMARKETING SOLICITATIONS 0 132667 110910 5893 AMERICA'S CAR DONATION CENTER 3755 OMEC CR 4 RANCHO CORDOVA CA 95742 CAR DONATIONS 1 78487 51358 22011 3262735 467822 2773931 AL AK AR CA CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NM NY ND OH OK OR PA RI SC TN UT VA WA WV WI NV ALSA WALK - BANGOR 48472 45652 2820 2820 ALSA WALK - BURLINGTON 47234 43353 3881 1418 90 2373 6 273275 246517 26758 5938 2008 200 18612 368981 335522 33459 7356 2098 200 23805 33459 0 SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. 1 THE ALS ASSOCIATION-GEORGIA CHAPTER 1955 CLIFF VALLEY WAY ATLANTA GA 30329 581943490 501(C)(3) 25000 CHAPTER DEVELOPMENT GRANT BAYLOR COLLEGE OF MEDICINE - ALS CLINIC DEPT OF NEUROLOGY 6550 FANNIN SUITE 1801 SMITH TOWER HOUSTON TX 77030 741613878 501(C)(3) 11800 ALSA CENTER CURT AND SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 237121131 501(C)(3) 11800 ALSA CENTER THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 11800 ALSA CENTER GEROGE WASHINGTON UNIVERSITY DEPT OF NEUROLOGY - ALS CENTER 2150 PENNSYLVANIA AVE NW 7-401 WASHINGTON DC 20037 542126575 501(C)(3) 11800 ALSA CENTER MAYO CLINIC - ALS CLINIC 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 593337028 501(C)(3) 11800 ALSA CENTER UNIVERSITY OF NEW MEXICO - SCHOOL OF MEDICINE 2211 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87131 856000642 501(C)(3) 11800 ALSA CENTER UNIVERSITY OF VERMONT ALS CLINICAL DEPARTMENT OF NEUROLOGY 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)(3) 11800 ALSA CENTER DARTMOTH HITCHCOCK MEDICAL CENTER ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 11800 ALSA CENTER-NNE BANNER GOOD SAMARITAN MEDICAL CENTER 1012 E WILLETTA STREET PHOENIX AZ 85006 410726167 501(C)(3) 12500 ALSA CENTER HENNEPIN COUNTY MEDICAL CENTER 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MD 55404 381357020 501(C)(3) 12500 ALSA CENTER MAYO FOUNDATION-DEPT OF NEUROLOGY 200 FIRST STREET SW ROCHESTER MD 55905 416011702 501(C)(3) 12500 ALSA CENTER NEUROLOGY ASSOCIATES OF STONY BROOK 179 BELLE MEADE ROAD SUITE 3 EAST SETAUKET NY 11733 113243405 501(C)(3) 12500 ALSA CENTER ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & UMDNJ MEDICAL SCHOOL 97 PATERSON ST NEW BRUNSWICK NJ 08903 201285267 501(C)(3) 12500 ALSA CENTER WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD 3RD FLOOR MEADS MEADS WINSTONSALEM NC 271571078 223849199 501(C)(3) 12500 ALSA CENTER ALS CENTERALS CENTERALS CENTER HERSHEY MEDICAL CENTER H037 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 13100 ALSA CENTER BETH ISRAEL MEDICAL CENTER ALS CLINICKEN DEPARTMENT OF NEUROLOGY 10 UNION SQUARE EAST NEW YORK NY 10003 042103881 501(C)(3) 13100 ALSA CENTER CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 13100 ALSA CENTER DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)(3) 13100 ALSA CENTER FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 262047755 501(C)(3) 13100 ALSA CENTER GEORGIA HEALTH SCIENCES FOUNDATION INC 1120 15TH STREET BP 4390 AUGUSTA GA 309120004 352310573 501(C)(3) 13100 ALSA CENTER HARRY J HOENSLAAR ALS CLINIC 2799 WEST GRAND AVE K-11 NEUROLOGY DETROIT MI 48202 381357020 501(C)(3) 13100 ALSA CENTER INDIANA UNIVERSITY ALS CENTER 1050 WISHARD BLVD REGENSTRIEF 6TH FLOOR INDIANAPOLIS IN 46202 520595110 501(C)(3) 13100 ALSA CENTER MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S CANNADAY 2E JACKSONVILLE FL 322241865 593337028 501(C)(3) 13100 ALSA CENTER MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)(3) 13100 ALSA CENTER PENN STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 13100 ALSA CENTER PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND OR 97213 931176109 501(C)(3) 13100 ALSA CENTER SOUTH TEXAS ALS CLINIC 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)(3) 13100 ALSA CENTER ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS MO 63104 430654872 501(C)(3) 13100 ALSA CENTER SUNY RESEARCH FOUNDATION 750 E ADAMS ST SYRACUSE NY 13210 141368361 501(C)(3) 13100 ALSA CENTER THE NEUROMUSCULAR ALS CLINIC 2150 CORBIN AVE NEW BRITAIN CT 06053 060546766 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 350 PARNASSUS AVENUE SUITE 500 SAN FRANCISCO CA 94117 946036493 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF KANSAS MEDICAL CENTER 3599 RAINBOW BLVD MAIL STOP 2012 KANSAS CITY KS 66160 480647721 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR ALBERT CHANDLER MED CTR LEXINGTON KY 40536 616001218 501(C)(3) 13100 ALSA CENTER UNIVERSITY OF MICHIGAN HEALTH SYSTEM 1500 E MEDICAL CENTER DR ANN ARBOR MI 481090316 386006309 501(C)(3) 13100 ALSA CENTER VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)(3) 13100 ALSA CENTER SRI INTERNATIONAL 333 RAVENSWOOD AVENUE MENLO PARK CA 94025 941160950 501(C)(3) 13678 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS CENTER FOR NEUROLOGIC STUDY 7825 FAY AVENUE SUITE 200 LA JOLLA CA 92037 953374771 501(C)(3) 14760 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) JOHNS HOPKINS UNIVERSITY 725 N WOLFE ST WBSB 1003 BALTIMORE MD 21205 520595110 501(C)(3) 15000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS TRUSTEES OF DARTMOUTH COLLEGE 11 ROPE FERRY ROAD 6210 HANOVER NH 03755 020222111 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CINCINNATI CHILDREN'S HOSPITAL 3333 BURNET AVENUE ML 4900 CINCINNATI OH 452293039 310833936 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK RD MILWAUKEE WI 53226 390806261 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE J DAVID GLADSTONE INSTITUTES 1650 OWENS ST SAN FRANCISCO CA 94158 237203666 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVENUE S AB 990 BIRMINGHAM AL 35294 636005396 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CHILDREN'S HOSPITAL BOSTON PO BOX 414413 BOSTON MA 02241 042774441 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CLEVELAND CLINIC FOUNDATION PO BOX 931531 CLEVELAND OH 44193 340714585 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MICHIGAN 3003 SOUTH STATE ST ANN ARBOR MI 48109 386006309 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF FLORIDA 1233 GRINTER HALL GAINESVILLE FL 32611 596002052 501(C)(3) 20000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS THE ROBERT PACKARD CENTER FOR ALS RESEARCH 5801 SMITH AVE MCAULEY SUITE 110 BALTIMORE MD 21209 520595110 501(C)(3) 23537 PACKARD PAYMENT FOR ALS WINOKUR RESEARCH FUND AMERICAN ACADEMY OF NEUROLOGY 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)(3) 25000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS RESEARCH FOUNDATION OF SUNY PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 29837 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE ALS ASSOCIATION-TEXAS CHAPTER 1231 GREENWAY DRIVE SUITE 295 IRVING TX 75038 742678974 501(C)(3) 37500 CHAPTER DEVELOPMENT GRANT UNIVERSITY OF FLORIDA 219 GRINTER HALL PO BOX 115500 GAINESVILLE FL 32611 596002052 501(C)(3) 39825 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST SUITE 6401 MADISON WI 537151218 396006492 501(C)(3) 39982 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRANDEIS UNIVERSITY 415 SOUTH STREET MS 144 WALTHAM MA 02454 041103552 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)(3) 40000 TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS WASHINGTON UNIVERSITY 660 SOUTH EUCLID AVENUE ST LOUIS MO 63110 430653611 501(C)(3) 40000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS UCSD-OPAFS 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 920930009 956006144 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY C/O BANK OF AMERICA 12529 COLLECTIO S CENTER DR CHICAGO IL 60693 520595110 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE NORTH WORCESTER MA 01655 043167352 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 750 NORTH LAKE SHORE DR 7TH FLOOR CHICAGO IL 60611 362167817 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA PO BOX 951406 11000 KINROSS BLDG 211 LOS ANGELES CA 90095 946036493 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE NORTH WORCESTER MA 01655 043167352 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UT SOUTHWESTERN MEDICAL CENTER PO BOX 841753 DALLAS TX 75284 756002868 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BROWN UNIVERSITY PO BOX 1929 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630 WEST 168TH ST BOX 49 NEW YORK NY 10032 135598093 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS NORTHWESTERN UNIVERSITY 1801 MAPLE AVE 2ND FL 2410 EVANSTON IL 60201 362167817 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)(3) 50000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ FILE 57431 LOS ANGELES CA 90074 860096787 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS THE SCRIPPS RESEARCH INSTITUTE - FLORIDA 10550 N TORREY PINES RD TPC-7 LA JOLLA CA 92037 330435954 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH PO BOX 12385 LA JOLLA CA 92093 237121131 501(C)(3) 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS THE RESEARCH FOUNDATION OF SUNY 750 E ADAMS STREET RESEARCH ADMIN WH 1111D SYRACUSE NY 13210 141368361 501(C)(3) 50675 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) BETH ISRAEL MEDICAL CENTER 10 UNION SQUARE EAST NEW YORK NY 10003 135564934 501(C)(3) 53300 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS THE CURATORS OF THE UNIVERSITY OF MISSOURI P O BOX 80712 KANSAS CITY MO 64180 436003859 501(C)(3) 60021 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)(3) 65000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DR MC-0660 CMM-EAST RM 3041 LA JOLLA CA 92093 237121131 501(C)(3) 65500 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS AMERICAN ACADEMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)(3) 66445 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) TACONIC FARMS INC 273 HOVER AVE GERMANTOWN NY 12526 141381104 501(C)(3) 67894 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS MO 63112 430653611 501(C)(3) 69426 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS SUNY UPSTATE MEDICAL UNIVERSITY 750 E ADAMS STREET SYRACUSE NY 13210 141368361 501(C)(3) 70765 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 303224250 580566256 501(C)(3) 71338 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 337 FRANK D PETERSON SERVICE BLDG LEXINGTON KY 405060005 616033693 501(C)(3) 79482 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD UNIVERSITY HOLYOKE CENTER SUITE 600 1350 MASSACHUSETTS AVE CAMBRIDGE MA 02138 042103580 501(C)(3) 79823 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS OREGON HEALTH AND SCIENCE UNIVERSITY 0690 SW BANCROFT L106SPA PORTLAND OR 97239 931176109 501(C)(3) 80000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS LSU HEALTH SCIENCES CENTER 433 BOLIVAR STREET ORLEANS LA 70112 726087770 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH P O BOX 3887 BOSTON MA 022413887 042312909 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL BANK OF AMERICA NA PO BOX 3887 BOSTON MA 02241 042312909 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS TRUSTEES OF COLUMBIA UNIVERSITY PO BOX 29789 GENERAL POST OFFICE NEW YORK NY 100879789 135598093 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 92093 946036493 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CEDARS SINAI MEDICAL CENTER 8700 BEVERLY BLVD 6500 WIL SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST SUITE 6401 MADISON WI 53715 396006492 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 920930934 946036493 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY C/O BANK OF AMERICA 12529 COLLECTIO S CENTER DR CHICAGO IL 60693 520595110 501(C)(3) 80000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS UNIVERSITY OF MARYLAND BALTIMORE PO BOX 41428 BALTIMORE MD 21203 526002033 501(C)(3) 83137 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE 300 BOSTON MA 02199 042697983 501(C)(3) 100000 CLINICAL MANAGEMENT AWARD UNIVERSITY OF KENTUCKY C/O PNC BANK PO BOX 931113 CLEVELAND OH 44193 616033693 501(C)(3) 100000 CLINICAL MANAGEMENT AWARD EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 30322 580566256 501(C)(3) 107649 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS NYU SCHOOL OF MEDICINE ONE PARK AVENUE 6TH FLOOR NEW YORK NY 10016 135562308 501(C)(3) 113808 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) UNIVERSITY OF KANSAS MEDICAL CENTER 3901 RAINBOW BLVD MSN 1039 KANSAS CITY KS 66160 480647721 501(C)(3) 116882 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVE NORTH WORCESTER MA 01655 043167352 501(C)(3) 120000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE BOSTON MA 02199 042697983 501(C)(3) 131875 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) JOHNS HOPKINS UNIVERSITY C/O BANK OF AMERICA 12529 COLLECTIO S CENTER DR CHICAGO IL 60693 520595110 501(C)(3) 144116 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 1830 E MONUMENT STREET SUITE 9030 BALTIMORE MD 21205 520595110 501(C)(3) 148424 CLINICAL PILOT AWARD STUDY EMORY UNIVERSITY 101 WOODRUFF CIR ATLANTA GA 30322 580566256 501(C)(3) 149486 CLINICAL PILOT AWARD STUDY UNIVERSITY OF MICHIGAN 3003 S STATE STREET ROOM 1054 ANN ARBOR MI 48109 386006309 501(C)(3) 150000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE RESEARCH FOUNDATION OF SUNY 750 E ADAMS STREET RESEARCH ADMIN WH 1111D SYRACUSE NY 13210 141368361 501(C)(3) 150000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) UNIVERSITY OF MIAMI 1400 NW 10 AVE MIAMI FL 33136 590624458 501(C)(3) 150000 CLINICAL PILOT AWARD STUDY MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE 300 BOSTON MA 02199 042697983 501(C)(3) 150000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVE BOSTON MA 02199 042697983 501(C)(3) 179085 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) BRIGHAM AND WOMEN'S HOSPITAL 75 FRANCIS STREET BOSTON MA 02115 042312909 501(C)(3) 243504 TREAT ALS GRANTS NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS(NINDSNIHDHHS) 9000 ROCKVILLE PIKE BETHESDA MD 20892 520858115 501(C)(3) 250000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 104 GRANTS FOR CHAPTER DEVELOPMENT 1 1474 CASH CARE SERVICES 1 5000 CASH CERTIFIED CENTER COST STUDY IRS UNDERWRITTEN TOTAL 1 500 CASH PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X 0 0 0 0 0 0 0 0 0 JANE H GILBERT PRESIDENT AND CEO 323850 0 15625 0 0 0 12500 0 10483 0 362458 0 0 0 DANIEL M REZNIKOV CHIEF FINANCIAL OFFICER 201260 0 0 0 0 0 10079 0 1185 0 212524 0 0 0 STEVE GIBSON CHIEF PUBLIC POLICY OFFICER 182862 0 0 0 0 0 9270 0 10073 0 202205 0 0 0 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICE 160646 0 0 0 0 0 7983 0 795 0 169424 0 0 0 LANCE SLAUGHTER CHIEF CHAPTER RELATIONS OF 152692 0 0 0 0 0 7750 0 8936 0 169378 0 0 0 MICHELLE KEEGAN CHIEF DEVELOPMENT OFFICER 178744 0 0 0 0 0 9000 0 8136 0 195880 0 0 0 CARRIE MUNK CHIEF COMMUNICATIONS & MARKETING OFF 142875 0 0 0 0 0 7152 0 871 0 150898 0 0 0 PART I, LINE 3 THE EXECUTIVE COMPENSATION & EVALUATION COMMITTEE OF THE BOARD OF DIRECTORS DETERMINES THE COMPENSATION OF THE PRESIDENT AND CEO AND MUST BE APPROVED BY THE EXECUTIVE COMMITTEE. THE PRESIDENT AND CEO DETERMINES THE COMPENSATION OF THE THE TOP FINANCIAL EMPLOYEE AND ANY KEY EMPLOYEES. X 2000 FMV X 149 78487 FMV X ELEVATOR SEAT 80 200000 FMV X SEAT LIFTS 25 57375 FMV 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS. PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION B, LINE 11 THE TREASURER OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS ANNUALLY WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 1,615,986. MANAGEMENT AND GENERAL EXPENSES 376,606. FUNDRAISING EXPENSES 77,193. TOTAL EXPENSES 2,069,785. APPEAL EXPENSES: PROGRAM SERVICE EXPENSES 179,071. MANAGEMENT AND GENERAL EXPENSES 743. FUNDRAISING EXPENSES 1,171,148. TOTAL EXPENSES 1,350,962. FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST -4,730. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 58,285. FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. FORM 990, SCHEDULE D, PART XII, LINE 2B AND PART XIII, LINE 2A THE ASSOCIATION PRODUCES AND DISTRIBUTES PUBLIC SERVICE TELEVISION ANNOUNCEMENTS THAT FOCUS ATTENTION ON EDUCATION AND AWARENESS. THESE PUBLIC SERVICE ANNOUNCEMENTS ARE DISTRIBUTED TO MEDIA STATIONS NATIONWIDE AND RUN FREE OF CHARGE. THE ASSOCIATION HAS CONTRACTED WITH AN INDEPENDENT OUTSIDE AGENCY TO TRACK THE DATE AND TIME THAT EACH PUBLIC SERVICE ANNOUNCEMENT RUNS, AND THE VALUE OF THE ANNOUNCEMENTS IS BASED ON THE DATE, TIME, AND MARKET. FOR THE YEAR ENDED JANUARY 31, 2014, THE ASSOCIATION RECORDED $5,066,885 OF CONTRIBUTED PUBLIC SERVICE ANNOUNCEMENTS. CHARITABLE REMAINDER TRUST (1) CA T 0 LIVING TRUST (1) CA T 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0