AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2015-02-01 to 2016-01-31
Filed: 2016-06-15
IRS object ID: 201621679349300322
Schema version: 2015v2.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2016-06-15T10:24:14-05:00	ReturnTs
Tax Period End	2016-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410746749	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	CLIFTONLARSONALLEN LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	400 PROFESSIONAL DRIVE SUITE 310	AddressLine1Txt
City	GAITHERSBURG	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20879	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2015-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	GREGORY MITCHELL	PersonNm
Person Title	CFO	PersonTitleTxt
Phone	2024078580	PhoneNum
Signature	2016-06-14	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	DAVID TRIMNER	PreparerPersonNm
PTIN	P00444822	PTIN
Phone	2408640431	PhoneNum

Field	Value	IRS element (for citing)
Tax	2015	TaxYr
Build TS	2016-09-27 15:27:22Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	BARBARA J NEWHOUSE	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$77,080,893	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1985	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.	ActivityOrMissionDesc
Voting Members Governing Body	27	VotingMembersGoverningBodyCnt
Voting Members Independent	27	VotingMembersIndependentCnt
Total Employee	79	TotalEmployeeCnt
Total Volunteers	41	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$137,917,563	PYContributionsGrantsAmt
CY Contributions Grants	$23,487,328	CYContributionsGrantsAmt
PY Program Service Revenue	$162,174	PYProgramServiceRevenueAmt
CY Program Service Revenue	$115,362	CYProgramServiceRevenueAmt
PY Investment Income	$269,009	PYInvestmentIncomeAmt
CY Investment Income	$2,060,242	CYInvestmentIncomeAmt
PY Other Revenue	-$8,187	PYOtherRevenueAmt
CY Other Revenue	-$17,782	CYOtherRevenueAmt
PY Total Revenue	$138,340,559	PYTotalRevenueAmt
CY Total Revenue	$25,645,150	CYTotalRevenueAmt
PY Grants And Similar Paid	$22,560,285	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$18,279,400	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$6,041,807	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$7,018,063	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$398,696	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$330,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$4,611,138	CYTotalFundraisingExpenseAmt
PY Other Expenses	$10,121,584	PYOtherExpensesAmt
CY Other Expenses	$9,834,399	CYOtherExpensesAmt
PY Total Expenses	$39,122,372	PYTotalExpensesAmt
CY Total Expenses	$35,461,862	CYTotalExpensesAmt
PY Revenues Less Expenses	$99,218,187	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$9,816,712	CYRevenuesLessExpensesAmt
Total Assets BOY	$130,622,675	TotalAssetsBOYAmt
Total Assets EOY	$113,419,744	TotalAssetsEOYAmt
Total Liabilities BOY	$10,862,559	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$7,378,564	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$119,760,116	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$106,041,180	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$17,271,304	ExpenseAmt
Grant	$16,608,607	GrantAmt
Desc	RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TODOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERALSCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2016, RESEARCHGRANTS WERE $16,608,607. THIS LEVEL OF FUNDING WAS MADE POSSIBLE BY THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. BECAUSE OF THE SUCCESS OF THE IBC, THE ASSOCIATION PLANS ON FURTHER INCREASING RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$6,804,773	ExpenseAmt
Grant	$1,666,609	GrantAmt
Revenue	$10,000	RevenueAmt
Desc	PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARESERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OFCHAPTERS (WHO ARE SEPARATELY INCORPORATED AND FILE THEIR OWN FORM 990), IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED ANDEVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES,CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMSINCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLELIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BESTPRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIESADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING AFOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ONSPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE (1) DEVELOPING AND IMPLEMENTING CLINICALAND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTSAND BEST PRACTICE; (2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATIONAND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDSOF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; (3)DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH'OTHER THAN' CERTIFIED CENTERS; (4) PROVIDING CURRENT INFORMATION,RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND (5) DEVELOPINGAND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THATADDRESS INDIVIDUAL, FAMILY AND CAREGIVER NEEDS BASED ON 'BEST PRACTICEAND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$4,416,494	ExpenseAmt
Grant	$4,184	GrantAmt
Revenue	$55,696	RevenueAmt
Desc	PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31,2016, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED TO DRAFT AN FDA GUIDANCE DOCUMENT FOR ALS DRUG DEVELOPMENT.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$28,492,571	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	Yes (1)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	70	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	79	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	27	GoverningBodyVotingMembersCnt
Independent Voting Member	27	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	GREGORY MITCHELL	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW SUITE 250	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (41 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
WILLIAM THOET
CHAIRMAN	5.00	Yes (X)	Yes (X)	$0	$0	$0
WILLIAM SOFFEL
TRUSTEE	3.00	Yes (X)		$0	$0	$0
WARREN NELSON
TREASURER	4.00	Yes (X)	Yes (X)	$0	$0	$0
THOMAS KETTLER
TRUSTEE	2.00	Yes (X)		$0	$0	$0
TED HARADA
TRUSTEE	2.00	Yes (X)		$0	$0	$0
SUE GORMAN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
STUART OBERMANN
TRUSTEE	3.00	Yes (X)		$0	$0	$0
STEPHEN WINTHROP
TRUSTEE	2.00	Yes (X)		$0	$0	$0
PHYLLIS BROURMAN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
NANCY FRATES
TRUSTEE	2.00	Yes (X)		$0	$0	$0
MILLIE ARNOLD
TRUSTEE	2.00	Yes (X)		$0	$0	$0
MARTY HERBERT
TRUSTEE	3.00	Yes (X)		$0	$0	$0
MARK CALMES
TRUSTEE	2.00	Yes (X)		$0	$0	$0
LOUIS LIBBY
TRUSTEE	3.00	Yes (X)		$0	$0	$0
LAWRENCE BARNETT
TRUSTEE	2.00	Yes (X)		$0	$0	$0
KIM ANN MINK
SECRETARY	4.00	Yes (X)	Yes (X)	$0	$0	$0
KATHY HOLT
TRUSTEE	2.00	Yes (X)		$0	$0	$0
JUDY PRATT
TRUSTEE	2.00	Yes (X)		$0	$0	$0
JOHN KRAVE
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ELLYN PHILLIPS
TRUSTEE	3.00	Yes (X)		$0	$0	$0
DOUGLAS BUTCHER
VICE CHAIRMAN	4.00	Yes (X)	Yes (X)	$0	$0	$0
DON CASEY
TRUSTEE	2.00	Yes (X)		$0	$0	$0
DENISE CARMIE-STRADER
TRUSTEE	2.00	Yes (X)		$0	$0	$0
CHRISTI KOLARCIK
TRUSTEE	2.00	Yes (X)		$0	$0	$0
CHRIS BRUSSALIS
TRUSTEE	3.00	Yes (X)		$0	$0	$0
CAMERON WARD
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ANDREW BROPHY
TRUSTEE	3.00	Yes (X)		$0	$0	$0
ANDREA PAULS BACKMAN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
ALLAN J TOBIN
TRUSTEE	2.00	Yes (X)		$0	$0	$0
GREGORY MITCHELL
CFO	37.50		Yes (X)	$210,380	$0	$7,312
BARBARA NEWHOUSE
PRESIDENT & CEO	37.50		Yes (X)	$303,429	$0	$19,276
STEVAN GIBSON
CHEIF PUBLIC POLICY & ADVOCACY OFFICER	37.50			$214,561	$0	$18,718	Yes (X)
LANCE SLAUGHTER
CHIEF DEVELOPMENT & CHAPTER RELATIONS OFFICER	37.50			$196,749	$0	$16,475	Yes (X)
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICER	37.50			$169,144	$0	$17,177	Yes (X)
CARRIE MUNK
CHIEF COMMUNICATIONS & MARKETING OFFICER	37.50			$178,744	$0	$6,228	Yes (X)
BRIAN FREDERICK
CHIEF OF STAFF	37.50			$150,952	$0	$5,027	Yes (X)
TERESSA HARRIS
VP-FINANCE	37.50			$121,548	$0	$18,868		Yes (X)
ROSETTE ABAD
DIRECTOR PAYROLL	37.50			$133,548	$0	$21,722		Yes (X)
MONICA SANTA CRUZ
VP-HR & TALENT MANAGEMENT	37.50			$130,886	$0	$4,470		Yes (X)
MARY BRUNEY
VP-CHAPTER RELATIONS	37.50			$139,288	$0	$16,149		Yes (X)
DAVID JOHN HAMPTON II
VP-DEVELOPMENT	37.50			$149,387	$0	$5,138		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,098,616	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$156,560	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	21	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
NNE MARKETING
105 PAUL REVERE ROAD	CONCORD	MA	01742	DIRECT MARKETING SERVICES	$330,000
LUCIE BRUIJN
PO BOX 670236	CHUGIAK	AK	99567	SCIENTIFIC OFFICER RESEARCH OVERSIGHT	$287,708
FAEGRE BAKER DANIELS LLP
1050 K STREET NW SUITE 400	WASHINGTON	DC	20001	CONSULTANT CDC GRANT & PUBLIC POLICY SER	$251,515
BEACONFIRE CONSULTING
2300 CLARENDON BLVD SUITE 925	ARLINGTON	VA	22201	WEBSITE DESIGN SERVICES	$120,991
MICHAEL COSCIA
304 TWELFTH ST SE	WASHINGTON	DC	20003	PRINTING & PROMOTIONAL ITEMS, PUBLIC POL	$105,245

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	5	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$239,873	FederatedCampaignsAmt
Fundraising	$359,289	FundraisingAmt
Government Grants	$319,397	GovernmentGrantsAmt
All Other Contributions	$22,568,769	AllOtherContributionsAmt
Noncash Contributions	$209,203	NoncashContributionsAmt
Total Contributions	$23,487,328	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt	ExclusionExclusionAmt
CONFERENCE FEES	900099	$65,696	$65,696
CHAPTER SUBLEASE	900099	$49,666		$49,666

Field	Value	IRS element (for citing)
Total Program Service Revenue	$115,362	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,450,241	TotalRevenueColumnAmt
Exclusion	$1,450,241	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$15,907	TotalRevenueColumnAmt
Exclusion	$15,907	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$52,010,013	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$51,400,012	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$610,001	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$610,001	TotalRevenueColumnAmt
Exclusion	$610,001	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$0	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$359,289	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$35,731	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$35,731	TotalRevenueColumnAmt
Exclusion	-$35,731	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	MISCELANEOUS INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$2,042	TotalRevenueColumnAmt
Exclusion	$2,042	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$2,042	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$25,645,150	TotalRevenueColumnAmt
Related Or Exempt Func Income	$65,696	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$2,092,126	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$16,787,904	TotalAmt
Program Services	$16,787,904	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$16,950	TotalAmt
Program Services	$16,950	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,474,546	TotalAmt
Program Services	$1,474,546	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,514,171	TotalAmt
Program Services	$988,820	ProgramServicesAmt
Management And General	$351,723	ManagementAndGeneralAmt
Fundraising	$173,628	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$4,489,241	TotalAmt
Program Services	$2,865,773	ProgramServicesAmt
Management And General	$456,073	ManagementAndGeneralAmt
Fundraising	$1,167,395	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$67,685	TotalAmt
Program Services	$43,778	ProgramServicesAmt
Management And General	$24,142	ManagementAndGeneralAmt
Fundraising	-$235	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$499,669	TotalAmt
Program Services	$278,761	ProgramServicesAmt
Management And General	$119,673	ManagementAndGeneralAmt
Fundraising	$101,235	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$447,297	TotalAmt
Program Services	$289,430	ProgramServicesAmt
Management And General	$57,075	ManagementAndGeneralAmt
Fundraising	$100,792	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$249,238	TotalAmt
Program Services	$45,149	ProgramServicesAmt
Management And General	$202,861	ManagementAndGeneralAmt
Fundraising	$1,228	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$39,794	TotalAmt
Management And General	$39,794	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$330,000	TotalAmt
Fundraising	$330,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$273,317	TotalAmt
Management And General	$273,317	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$4,462,602	TotalAmt
Program Services	$2,391,658	ProgramServicesAmt
Management And General	$126,855	ManagementAndGeneralAmt
Fundraising	$1,944,089	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$329,350	TotalAmt
Program Services	$281,084	ProgramServicesAmt
Management And General	$1,102	ManagementAndGeneralAmt
Fundraising	$47,164	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$506,677	TotalAmt
Program Services	$155,419	ProgramServicesAmt
Management And General	$102,515	ManagementAndGeneralAmt
Fundraising	$248,743	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$104,908	TotalAmt
Management And General	$104,908	ManagementAndGeneralAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$771,476	TotalAmt
Program Services	$467,237	ProgramServicesAmt
Management And General	$99,487	ManagementAndGeneralAmt
Fundraising	$204,752	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,744,856	TotalAmt
Program Services	$1,431,162	ProgramServicesAmt
Management And General	$214,388	ManagementAndGeneralAmt
Fundraising	$99,306	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$164,003	TotalAmt
Program Services	$100,259	ProgramServicesAmt
Management And General	$31,662	ManagementAndGeneralAmt
Fundraising	$32,082	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$64,377	TotalAmt
Management And General	$64,377	ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CHAPTER SUPPORT	$723,562	$716,467	$2,320	$4,775
TELECOMMUNICATIONS	$171,680	$122,547	$18,107	$31,026
BAD DEBT EXPENSE	$115,833		$83,202	$32,631
CREDIT CARD & DATA FEES	$112,726	$35,627	-$15,428	$92,527

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$35,461,862	TotalAmt
Program Services	$28,492,571	ProgramServicesAmt
Management And General	$2,358,153	ManagementAndGeneralAmt
Fundraising	$4,611,138	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,442,000	TotalAmt
Program Services	$242,000	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$1,200,000	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$7,497,387	BOYAmt
EOY	-$883,859	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$109,295,145	BOYAmt
EOY	$3,452,236	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$1,949,216	BOYAmt
EOY	$3,662,396	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$229,635	BOYAmt
EOY	$126,878	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$438,608	BOYAmt
EOY	$389,773	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,826,760	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,494,070	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$199,742	BOYAmt
EOY	$332,690	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$8,108,414	BOYAmt
EOY	$102,785,856	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$2,904,528	BOYAmt
EOY	$3,553,774	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$130,622,675	BOYAmt
EOY	$113,419,744	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,366,783	BOYAmt
EOY	$1,665,531	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$7,269,898	BOYAmt
EOY	$4,739,872	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$155,895	BOYAmt
EOY	$10,000	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$1,069,983	BOYAmt
EOY	$963,161	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$10,862,559	BOYAmt
EOY	$7,378,564	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$81,245,556	BOYAmt
EOY	$78,060,212	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$37,551,888	BOYAmt
EOY	$27,044,659	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$962,672	BOYAmt
EOY	$936,309	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$119,760,116	BOYAmt
EOY	$106,041,180	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$130,622,675	BOYAmt
EOY	$113,419,744	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$9,816,712	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$3,725,844	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	-$176,380	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$19,126,742	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$19,357,009	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,550,946	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$137,917,563	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,487,328	CurrentTaxYearAmt
Total	$223,439,588	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$19,126,742	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$19,357,009	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,550,946	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$137,917,563	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,487,328	CurrentTaxYearAmt
Total	$223,439,588	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$1,236,137	SubstantialContributorsTotAmt
Public Support Total170	$222,203,451	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$119,967	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$174,222	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$179,732	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$221,293	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,466,148	CurrentTaxYearAmt
Total	$2,161,362	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,736	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$30,161	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,926	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$29,343	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,042	CurrentTaxYearAmt
Total	$92,208	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$225,693,158	TotalSupportAmt
Gross Receipts Rltd Activities	$1,139,528	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.98450	PublicSupportCY170Pct
Public Support PY170	0.98970	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$48,109	FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$497,940	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$546,049	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$34,915,813	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$35,461,862	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$879,798	CurrentYearMinus3Amt
Current Year Minus2	$932,385	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$3,812,183	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$5,718,275	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$285,767	CurrentYearMinus3Amt
Current Year Minus2	$440,857	CurrentYearMinus2Amt
Current Year Minus1	$422,780	CurrentYearMinus1Amt
Current Year	$546,049	CurrentYearAmt
Total	$1,695,453	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$219,950	CurrentYearMinus3Amt
Current Year Minus2	$233,096	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$953,046	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,429,569	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$26,625	CurrentYearMinus3Amt
Current Year Minus2	$43,750	CurrentYearMinus2Amt
Current Year Minus1	$53,629	CurrentYearMinus1Amt
Current Year	$48,109	CurrentYearAmt
Total	$172,113	TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Contributions	$0	ContributionsAmt
Investment Earnings Or Losses	-$182,653	InvestmentEarningsOrLossesAmt
End Year Balance	$6,333,662	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$5,990,000	BeginningYearBalanceAmt
Contributions	$526,315	ContributionsAmt
Investment Earnings Or Losses	$313,081	InvestmentEarningsOrLossesAmt
Other Expenditures	$313,081	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Contributions	$5,750,000	ContributionsAmt
Investment Earnings Or Losses	$21,965	InvestmentEarningsOrLossesAmt
Other Expenditures	$21,965	OtherExpendituresAmt
End Year Balance	$5,990,000	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$13,666	InvestmentEarningsOrLossesAmt
Other Expenditures	$13,666	OtherExpendituresAmt
End Year Balance	$240,000	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,091	InvestmentEarningsOrLossesAmt
Other Expenditures	$8,091	OtherExpendituresAmt
End Year Balance	$240,000	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	0.03790	PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY	0.96210	TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$249,794	OtherCostOrOtherBasisAmt
Depreciation	$211,548	DepreciationAmt
Book Value	$38,246	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,138,073	OtherCostOrOtherBasisAmt
Depreciation	$850,754	DepreciationAmt
Book Value	$287,319	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$438,893	OtherCostOrOtherBasisAmt
Depreciation	$431,768	DepreciationAmt
Book Value	$7,125	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$332,690	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ANNUITY PAYMENT LIABILITY	$888,455
DEFERRED RENT	$74,706

Field	Value	IRS element (for citing)
Total Liability	$963,161	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$21,742,926	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$3,725,844	NetUnrealizedGainsInvstAmt
Other Revenue	-$176,380	OtherRevenueAmt
Revenue Not Reported	-$3,902,224	RevenueNotReportedAmt
Revenue Subtotal	$25,645,150	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$25,645,150	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$35,461,862	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$35,461,862	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$35,461,862	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES.
PART X, LINE 2:	THE ASSOCIATION QUALIFIES AS A TAX-EXEMPT ORGANIZATION UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ASSOCIATION HAD NO UNRELATED TAXABLE INCOME FOR THE YEAR ENDED JANUARY 31, 2016. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	LOSS ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -26,363. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -150,017.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE	GRANTS	RESEARCH	$647,955
NORTH AMERICA	GRANTS	RESEARCH	$593,686
MIDDLE EAST & NORTH AFRICA	GRANTS	RESEARCH	$90,000
EAST ASIA & THE PACIFIC	GRANTS	RESEARCH	$120,000
SOUTH AMERICA	GRANTS	RESEARCH	$30,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continutation Total Office	0	ContinutationTotalOfficeCnt
Continutation Total Employee	0	ContinutationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,481,641	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,481,641	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (8 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$378,016	CHECK & WIRE TRANSFER
EUROPE	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS	$169,939	CHECK & WIRE TRANSFER
EUROPE	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	$100,000	CHECK & WIRE TRANSFER
NORTH AMERICA	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$512,984	CHECK & WIRE TRANSFER
NORTH AMERICA	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	$80,702	CHECK & WIRE TRANSFER
MIDDLE EAST & NORTH AFRICA	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$90,000	CHECK & WIRE TRANSFER
EAST ASIA & THE PACIFIC	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$120,000	CHECK & WIRE TRANSFER
SOUTH AMERICA	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$30,000	CHECK & WIRE TRANSFER

Field	Value	IRS element (for citing)
Total501c3 Org	20	Total501c3OrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
NNE MARKETING
105 PAUL REVERE RD	CONCORD	MA	01742	FUNDRAISING COUNSEL	0	$3,664,076	$330,000	$3,334,076
AUTOMOTIVE RECOVERY SERVICES INC
PO BOX 2365	FAIR OAKS	CA	95628	VEHICLE DONATION PROGRAM	Yes (1)	$146,195	$69,938	$76,257

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,810,271	TotalGrossReceiptsAmt
Total Retained By Contractors	$399,938	TotalRetainedByContractorsAmt
Total Net To Organization	$3,410,333	TotalNetToOrganizationAmt
Licensed States	MD	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	DC	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	WALK NNE PORTLAND, ME	Event1Nm
Gross Receipts Event1	$100,952	GrossReceiptsEvent1Amt
Charitable Contri Event1	$100,952	CharitableContriEvent1Amt
Non Cash Prizes Event1	$1,484	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$2,468	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$1,391	FoodAndBeverageEvent1Amt
Other Direct Expenses Event1	$1,647	OtherDirectExpensesEvent1Amt
Event2	WALK TULSA, OK	Event2Nm
Gross Receipts Event2	$85,621	GrossReceiptsEvent2Amt
Charitable Contri Event2	$85,621	CharitableContriEvent2Amt
Non Cash Prizes Event2	$1,196	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$702	RentFacilityCostsEvent2Amt
Other Direct Expenses Event2	$3,216	OtherDirectExpensesEvent2Amt
Other Events Total	6	OtherEventsTotalCnt
Gross Receipts Other Events	$172,716	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$172,716	CharitableContriOtherEventsAmt
Non Cash Prizes Other Events	$910	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$824	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$2,706	FoodAndBeverageOtherEventsAmt
Oth Direct Expnss Other Events	$19,187	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$359,289	GrossReceiptsTotalAmt
Charitable Contributions Tot	$359,289	CharitableContributionsTotAmt
Non Cash Prizes Total Events	$3,590	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$3,994	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$4,097	FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events	$24,050	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$35,731	DirectExpenseSummaryEventsAmt
Net Income Summary	-$35,731	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (140 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
575 LEXINGTON AVENUE	NY	NY	10022	133376695	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
WASHINGTON UNIVERSITY
700 ROSEDALE AVE BOX 1034	ST LOUIS	MO	63112	430653611	501(C)3	$163,331	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
WAKE FOREST BAPTIST MEDICAL CENTER
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
VOYAGER THERAPEUTICS INC
75 SIDNEY STREET	CAMBRIDGE	MA	02139	463003182	501(C)3	$305,764	CLINICAL MANAGEMENT
VERMONT ALS CENTER
149 BEAUMONT AVE	BURLINGTON	VT	05405	030179440	501(C)3	$37,500	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
VA MASON MEDICAL CENTER ALS CLINIC
PO BOX 900 M/S X7 NEU	SEATTLE	WA	98111	910565539	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UTHSCSA CERTIFIED TREATMENT CENTER OF EXCELLENCE
8300 FLOYD CURL DRIVE MSC 7883	SAN ANTONIO	TX	782293900	741586031	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSTITY OF NEW MEXICO
2211 LOMAS NE	ALBUQUERQUE	NM	87131	856000642	501(C)3	-$11,800	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF WISCONSIN-MILWAUKEE
PO BOX 340	MILWAUKEE	WI	53201	391805963	501(C)3	$50,000	CLINICAL MANAGEMENT
UNIVERSITY OF WASHINGTON
12455 COLLECTIONS DR	CHICAGO	IL	606930001	916001537		$250,000	TREAT ALS CLINICAL SCIENTIST
UNIVERSITY OF VERMONT
89 BEAUMONT AVENUE	BURLINGTON	VT	05405	030179440	501(C)3	-$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF SOUTH FL FOUNDATION INC
4202 E FOWLER AVE ALC 100	TAMPA	FL	33620	590879015	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF ROCHESTER
518 HYLAND BUILDING	ROCHESTER	NY	14627	160743209	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
UNIVERSITY OF MN FOUNDATION
PO BOX 860266	MINNEAPOLIS	MN	554860266	416042488	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MICHIGAN ALS CLINIC
1500 E MEDICAL CENTER DRIVE	ANN ARBOR	MI	48109	386006309	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MIAMI
P O BOX 405803	ATLANTA	GA	30384	590624458	501(C)3	$100,000	TREAT ALS
UNIVERSITY OF MIAMI
1120 NW 14TH ST SUITE 1311	MIAMI	FL	33136	592579826	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MD BALTIMORE
110 SOUTH PACA ST 3RD FLOOR	BALTIMORE	MD	21202	526002033	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MA MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	016550002	043167352	501(C)3	$295,790	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
UNIVERSITY OF MA MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	016550002	043167352	501(C)3	$541,271	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
UNIVERSITY OF MA MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	016550002	043167352	501(C)3	$75,000	POST DOCTORAL FELLOWSHIP RESEACH GRANT
UNIVERSITY OF MA MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	016550002	043167352	501(C)3	$460,000	TREAT ALS
UNIVERSITY OF KENTUCKY
ALBERT CHANDLER MEDICAL CTR	LEXINGTON	KY	40536	616001218	501(C)3	-$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF IL AT CHICAGO ALS CLINIC
1801 W TAYLOR ST SUITE 4E	CHICAGO	IL	60612	376000511	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF FL
PO BOX 113001	GAINESVILLE	FL	32611	596002052	501(C)3	$79,966	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
UNIVERSITY OF CHICAGO
6030 ELLIS AVENUE	CHICAGO	IL	60637	362177139		$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
UNIVERSITY OF CA
CASHIERS OFFICE 9500 GILMAN DRIVE	LA JOLLA	CA	92093	956006144	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	MC 0009
UNIVERSITY OF AZ
1303 E UNIVERSITY BLVD BOX 3	TUSCON	AZ	85719	742652689	501(C)3	$20,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
TRUSTEES OF THE UNIVERSITY OF PA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)3	$157,906	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
TRANSLATIONAL GENOMICS RESEARCH INSTITUTE
445 N FIFTH STREET	PHOENIX	AZ	85004	753065445	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE UNIVERSITY OF SOUTH FL BOARD OF TRUSTEES
PO BOX 864568	ORLANDO	FL	32886	593102112		$20,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE	CHICAGO	IL	606375418	362177139	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY
PO BOX 29789	NY	NY	100879789	135598093	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY
PO BOX 29789	NY	NY	100879789	135598093	501(C)3	$924,795	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	48109	946036493		$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
BOX 223131	PITTSBURGH	PA	152512131	386006309		$50,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
THE REGENTS OF THE UNIVERSITY OF CA
UCSF CONTROLLERS OFFICE 1855 FOLSOM	SAN FRANCISCO	CA	94143	946036493	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	STREET
THE REGENTS OF THE UNIVERSITY OF CA
9500 GILMAN DRIVE	LA JOLLA	CA	920935004	956006144	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE REGENTS OF THE UNIVERSITY OF CA
UCSF CONTROLLERS OFFICE 1855 FOLSOM	SAN FRANCISCO	CA	94143	946036493	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	STREET MCB 425 BOX 0897
THE PRESIDENT AND FELLOWS OF HARVARD COLLEGE
P O BOX 415649	BOSTON	MA	022415649	042103580	501(C)3	$117,109	CLINICAL MANAGEMENT
THE PA STATE UNIV
COLLEGE OF MEDICINE CONTROLLERS	HERSHEY	PA	17033	246000376	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	OFFICE G230 500 UNIVERSITY DRIVE
THE NEBRASKA MEDICAL CENTER
988440 NEBRASKA MEDICINE	OMAHA	NE	681988440	911858433	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE METHODIST HOSPITAL MASTER CLEARING ACCOUNT
PO BOX 2558	HOUSTON	TX	77252	870721923	501(C)3	$154,453	TREAT ALS
THE JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE J DAVID GLADSTONE INSTITUTE
1650 OWENS STREET	SAN FRANCISCO	CA	94158	237203666	501(C)3	$1,066,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
THE HOUSTON HOSPITAL RESEARCH INSTITUTE
6670 BERTNER AVENUE	HOUSTON	TX	77030	760152699	501(C)3	$20,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)3	$37,500	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE GENERAL HOSPITAL CORP DBA MA GENERAL HOSPITAL
101 HUNGTINGTON AVENUE	BOSTON	MA	02199	042697983	501(C)3	$278,100	TREAT ALS
THE GENERAL HOSPITAL CORP DBA MA GENERAL HOSPITAL
101 HUNGTINGTON AVENUE	BOSTON	MA	02199	042697983	501(C)3	$376,136	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
THE ALS ASSOCIATION - TX CHAPTER
2251 CHENAULT	CARROLLTON	TX	75006	742678974	501(C)3	$28,383	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - SOUTH CAROLINA CHAPTER
7499 PARK LANE RD STE 144	COLUMBIA	SC	29223	203780277	501(C)3	$48,584	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - ROCKY MOUNTAIN CHAPTER
10855 DOVER ST STE 500	WESTMINSTER	CO	80021	841337868	501(C)3	$45,000	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - ORANGE COUNTY CHAPTER
3002 DOW AVE UNIT 204	TUSTIN	CA	92780	330282720	501(C)3	$15,034	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - NEVADA CHAPTER
4220 MD PKWY B-404	LAS VEGAS	NV	89119	201531344	501(C)3	$39,088	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - MID AMERICA CHAPTER
6950 SQUIBB RD STE210	MISSION	KS	66202	481021611	501(C)3	$17,250	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION - MICHIGAN CHAPTER
675 E BIG BEAVER STE 307	TROY	MI	48083	382190726	501(C)3	$100,000	TELEHEALTH GRANT
THE ALS ASSOCIATION - MA CHAPTER
315 NORWOOD PARK SOUTH 1ST FLOOR	NORWOOD	MA	02062	043085718	501(C)3	$100,000	ASSISTIVE TECHNOLOGY GRANT
THE ALS ASSOCIATION - AZ CHAPTER
360 E CORONADO STE 140	PHOENIX	AZ	85004	860727136	501(C)3	$2,500	CHAPTER SUPPORT GRANT
TACONIC BIOSCIENCES INC
273 HANOVER AVENUE	GERMANTOWN	NY	12526	141301101	501(C)3	$87,927	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
SUNY RESEARCH FOUNDATION
750 E ADAMS ST	SYRACUSE	NY	13210	141368361	501(C)3	-$13,100	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
STANFORD UNIVERSITY
P O BOX 44253	SAN FRANCISCO	CA	94144	941156365		$50,000	POST DOCTORAL FELLOWSHIP RESEACH GRANT
ST LOUIS UNIVERSITY HOSPITAL
1438 SOUTH GRAND BLVD MONTELEONE	ST LOUIS	MO	63104	430654872	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	HALL
ST JUDE CHILDREN'S RESEARCH HOSPITAL
FINANCIAL SERVICES MS 509 K1213 262	MEMPHIS	TN	38105	620646012	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	DANNY THOMAS PLACE
SRI INTERNATIONAL
333 RAVENSWOOD AVENUE	MENLO PARK	CA	94025	941160950	501(C)3	$43,500	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
SFIDA BIOLOGIC INC
615 ARAPEEN DRIVE SUITE 310	LAKE CITY	UT	84108	900513929	501(C)3	$30,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
DIGNITY HEALTH-ST JOSEPHS HOSPITAL	LOS ANGELES	CA	90074	860096787	501(C)3	$48,495	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT	AZ
RWJ UNIVERSITY HOSPITAL FOUNDATION
10 PLUM STREET SUITE 910	NEW BRUNSWICK	NJ	08901	222378007	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
RICHARD BEDLACK
9 LOGGING TRAIL	DURHAM	NC	27707	049543372	501(C)3	$60,000	CLINICAL MANAGEMENT
REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	48109	386006309	501(C)3	$10,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
REGENTS OF THE UNIVERSITY OF CA DAVIS
ONE SHIELDS AVE	DAVIS	CA	95616	946036494	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
REGENTS OF THE UNIVERSITY OF CA
11000 KINROSS AVE STE 211	LOS ANGELES	CA	90095	956006143	501(C)3	$100,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
REGENTS OF THE UNIVERSITY OF CA
9500 GILMAN DRIVE MC 0934	LA JOLLA	CA	92093	956006144	501(C)3	$60,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
PROVIDENCE ALS CENTER
5050 NE HOYT STE 315	PORTLAND	OR	97213	930386929	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
PRIZE4LIFE INC
PO BOX 5755 BERKELEY	BERKELEY	CA	94705	205055664	501(C)3	$54,250	TREAT ALS
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
PO BOX 415649	CAMBRIDGE	MA	02138	042103580	501(C)3	$29,960	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
PHOENIX NEUROLOGICAL ASSOCIATES
5090 40TH STREET SUITE 250	PHOENIX	AZ	85018	860217237	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
PENN STATE UNIVERSITY
30 HOPE DRIVE EC037	HERSHEY	PA	17033	246000376	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ORIGENT DATA SCIENCES INC
8245 BOONE BLVD	VIENNA	VA	22182	383916182	501(C)3	$45,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
OREGON STATE UNIVERSITY
B308 KERR ADMINISTRATION BUILDING	CORVALLIS	OR	97331	481278540		$75,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
NY UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NY	NY	10016	135562308	501(C)3	$266,612	TREAT ALS
NORTHWESTERN UNIVERSITY
633 CLARK ROOM G-547	EVANSTON	IL	60208	362167817	501(C)3	$140,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
NORTHEAST ALS CONSORTIUM (NEALS)
165 CAMBRIDGE STREET	BOSTON	MA	02114	562547779	501(C)3	$50,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
NEUROLOGY ASSOCIATES OF STONY BROOK
HSC LEVEL 12 ROOM 020	STONY BROOK	NY	117948121	112587430	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MEDICAL FACULTY ASSOCIATES- NEUROLOGY DEPARTMENT
2150 PA AVE NW	WASHINGTON	DC	20037	522220700	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL
9200 W WISCONSIN AVE	MILWAUKEE	WI	53226	390806261	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO MEDICAL CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$80,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$62,500	POST DOCTORAL FELLOWSHIP RESEACH GRANT
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$305,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD S	JACKSONVILLE	FL	322241865	593337028	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MARY HITCHCOCK MEMORIAL HOSPITAL
ONE MEDIVAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
MA GENERAL HOSPITAL - RESEARCH ATTN NCRI NEALS
P O BOX 414876	BOSTON	MA	02241	042697983	501(C)3	$981,480	TREAT ALS
MA GENERAL HOSPITAL
P O BOX 414876	BOSTON	MA	02241	042697983	501(C)3	$563,280	TREAT ALS
LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660	LA JOLLA	CA	92093	237121131	501(C)3	$12,500	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
LUDWIG INSTITUTE FOR CANCER RESEARCH
9500 GILMAN DRIVE MC-0660	LA JOLLA	CA	92093	237121131	501(C)3	$583,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
LANKENAU INSTITUTE FOR MEDICAL RESEARCH
100 LANCASTER AVENUE	WYNNEWOOD	PA	19096	232175659	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC
41 MALL ROAD	BURLINGTON	MA	01805	042704683	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
LA STATE UNIVERSITY HEALTH SCIENCE CENTER
PO BOX 33932 1501 KINGS HIGHWAY	SHREVEPORT	LA	71130	720702002	501(C)3	$50,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
KU ENDOWMENT ASSOCIATION
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	480547734	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
KANSAS CITY UNIVERSITY OF MEDICINE AND BIOSCIENCES
1750 INDEPENDENCE AVENUE KANSAS	KANSAS CITY	MO	64106	440545280	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	CITY MO 64106
JOHNS HOPKINS UNIVERSITY
12529 COLLECTION CENTER DRIVE	CHICAGO	IL	606930001	520595110	501(C)3	$871,060	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
JOHNS HOPKINS UNIVERSITY
12529 COLLECTION CENTER DRIVE	CHICAGO	IL	606930001	520595110	501(C)3	$70,000	POST DOCTORAL FELLOWSHIP RESEACH GRANT
IRON HORSE DIAGNOSTICS INC
21053 N 75TH STREET	SCOTTSDALE	AZ	85255	454537278	501(C)3	$200,000	TREAT ALS
INDIANA UNIVERSITY ALS CENTER
355 WEST 16TH STREET ROOM 3222	INDIANAPOLIS	IN	46202	356001673	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOUSTON METHODIST RESEARCH INSTITUTE
6565 FANNIN MGJ 4-024	HOUSTON	TX	77030	870721923	501(C)3	$693,333	TREAT ALS
HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH ST	NY	NY	10021	131624135	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVE	NEW BRITAIN	CT	06053	060646766	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HENRY FORD HEALTH SYSTEM
2799 WEST GRAND BOULEVARD	DETROIT	MI	482022689	381357020	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HENNEPIN COUNTY MEDICAL CENTER (HCMC)
825 SOUTH EIGHTH STREET SUITE 250	MINNEAPOLIS	MN	55404	381357020	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
GEORGIA HEALTH SCIENCES FOUNDATION
1120 15TH STREET BP 4390	AUGUSTA	GA	30912	352310573	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
FORBES NORRIS ALS RESEARCH CENTER
2324 SACRAMENTO ST	SAN FRANCISCO	CA	94115	942728423	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
DUKE UNIVERSITY MEDICAL CENTER
932 MORREENE ROAD	DURHAM	NC	27705	560532129	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
DREXEL UNIVERSITY TD BANK
P O BOX 95000-1090	PHILADELPHIA	PA	19195	231352630	501(C)3	$320,000	CLINICAL MANAGEMENT
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	860096787	501(C)3	$15,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
DALLAS FORSHEW
31 REED BLVD 13C	MILL VALLEY	CA	94941	363501359	501(C)3	$5,000	RAND PRIZE GRANT
CYTOKINETICS INC
280 E GRAND AVE STE 1	SOUTH SAN FRANCISCO	CA	940804808	943291317	501(C)3	$700,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
COMMUNITY HEALTH FOUNDATION OF HUNTSVILLEMADISON COUNTY
PO BOX 322	HUNTSVILLE	AL	35804	263750673	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
CLEVELAND VA RESEARCH FOUNDATION
10701 EAST BLVD	CLEVELAND	OH	44106	341710663		$50,120	CLINICAL MANAGEMENT
CLEVELAND CLINIC FOUNDATION
EUCLID AVENUE	CLEVELAND	OH	44195	340714585		$39,769	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44195	340714585	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
CHILDREN'S HOSPITAL CORPORATION
300 LONGWOOD AVE	BOSTON	MA	02215	042774441	501(C)3	$150,000	PRESERVE A VOICE GRANT
CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD SUITE 1150	LOS ANGELES	CA	90048	951644600	501(C)3	$689,784	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD SUITE 1150	LOS ANGELES	CA	90048	951644600	501(C)3	$290,000	TREAT ALS
CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD SUITE 1150	LOS ANGELES	CA	90048	951644600	501(C)3	$254,922	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
BROWN UNIVERSITY
BOX 1911	PROVIDENCE	RI	02912	050258809	501(C)3	$160,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
P O BOX 3887	BOSTON	MA	022413887	042312909	501(C)3	$39,990	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
BOSTON CHILDRENS HOSPITAL
ATTN RESEARCH FINANCE PO BOX 414413	BOSTON	MA	02241	042774441	501(C)3	$50,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT	414413
BOARD OF TRUSTEES OF SOUTHERN IL UNIVERSITY
900 S NORMAL AVE	CARBONDALE	IL	62901	376005961		$20,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 NORTH PARK STREET STE 6401	MADISON	WI	53715	396006492	501(C)3	$200,000	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
BETH ISRAEL MEDICAL CENTER ALS CLINIC
ONE GUSTAVE L LEVY PL BOX	NY	NY	10029	042103881	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
BAYLOR COLLEGE OF MEDICINE
7200 CAMBRIDGE ST SUITE 9A	HOUSTON	TX	770304202	741613878	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
BARROWS NEUROLOGICAL INSTITUTE
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	721561134	501(C)3	$110,880	TREAT ALS
AQUINNAH PHARMACEUTICALS INC
LABCENTRAL 700 MAIN ST	CAMBRIDGE	MA	02139	465070024	501(C)3	$210,680	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
AQUINNAH PHARMACEUTICALS INC
LABCENTRAL 700 MAIN ST	CAMBRIDGE	MA	02139	465070024	501(C)3	$88,135	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	55401	411717098	501(C)3	$52,500	TREAT ALS CLINICAL SCIENTIST
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	55401	411717098	501(C)3	$86,667	TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT
ALS CENTER AT MAYO CLINIC AZ
13400 EAST SHEA BLVD	SCOTTSDALE	AZ	852595404	860800150	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALS CENTER
330 S NINTH ST	PHILADELPHIA	PA	19107	232743545	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALLEGHENY SINGER RESEARCH INSTITUTE
320 EAST NORTH AVENUE	PITTSBURGH	PA	15212	251320493	501(C)3	$25,000	ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT

Field	Value	IRS element (for citing)
Total501c3 Org	124	Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	DURABLE MEDICAL EQUIPMENT	GrantTypeTxt
Recipient	8	RecipientCnt
Non Cash Assistance	$16,950	NonCashAssistanceAmt
Valuation Method Used	FMV	ValuationMethodUsedDesc
Non Cash Assistance	WHEELCHAIR POWER LIFT SEATS	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Substantiation Required	Yes (1)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
GREGORY MITCHELL
CFO	$210,380	$0	$0	$0	$0	$0	$6,300	$0	$1,012	$0	$217,692	$0	$0	$0
BARBARA NEWHOUSE
PRESIDENT & CEO	$290,929	$0	$12,500	$0	$0	$0	$7,950	$0	$11,326	$0	$322,705	$0	$0	$0
STEVAN GIBSON
CHEIF PUBLIC POLICY & ADVOCACY OFFIC	$214,561	$0	$0	$0	$0	$0	$6,510	$0	$12,208	$0	$233,279	$0	$0	$0
LANCE SLAUGHTER
CHIEF DEVELOPMENT & CHAPTER RELATION	$196,749	$0	$0	$0	$0	$0	$5,961	$0	$10,514	$0	$213,224	$0	$0	$0
KIMBERLY HARDING-MAGINNIS
CHIEF CARE SERVICES OFFICER	$169,144	$0	$0	$0	$0	$0	$5,114	$0	$12,063	$0	$186,321	$0	$0	$0
CARRIE MUNK
CHIEF COMMUNICATIONS & MARKETING OFF	$178,744	$0	$0	$0	$0	$0	$5,382	$0	$846	$0	$184,972	$0	$0	$0
BRIAN FREDERICK
CHIEF OF STAFF	$150,952	$0	$0	$0	$0	$0	$4,522	$0	$505	$0	$155,979	$0	$0	$0
ROSETTE ABAD
DIRECTOR PAYROLL	$72,275	$0	$0	$0	$61,273	$0	$4,328	$0	$17,394	$0	$155,270	$0	$0	$0
MARY BRUNEY
VP-CHAPTER RELATIONS	$139,288	$0	$0	$0	$0	$0	$4,180	$0	$11,969	$0	$155,437	$0	$0	$0
DAVID JOHN HAMPTON II
VP-DEVELOPMENT	$149,387	$0	$0	$0	$0	$0	$4,492	$0	$646	$0	$154,525	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 3	FormAndLineReferenceDesc
Explanation	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT.	ExplanationTxt

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	75	ContributionCnt
Noncash Contributions Rpt F990	$76,257	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	31	ContributionCnt
Noncash Contributions Rpt F990	$132,946	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG HIGH/LOW AT DATE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	0	Form8283ReceivedCnt
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, COLUMN (B):	THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTORS FOR STOCK AND NUMBER OF ITEMS FOR THE CAR PROGRAM.
PART I, LINE 32B:	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1	THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING.
FORM 990, PART VI, SECTION B, LINE 11	THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.
FORM 990, PART IX, LINE 11G	APPEALS EXPENSE: PROGRAM SERVICE EXPENSES 242,114. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,256,952. TOTAL EXPENSES 1,499,066. OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 2,149,544. MANAGEMENT AND GENERAL EXPENSES 126,855. FUNDRAISING EXPENSES 687,137. TOTAL EXPENSES 2,963,536.
FORM 990, PART XI, LINE 9:	CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS -176,380.