2016-06-15T10:24:14-05:00 2016-01-31 410746749 CLIFTONLARSONALLEN LLP 400 PROFESSIONAL DRIVE SUITE 310 GAITHERSBURG MD 20879 990 2015-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW WASHINGTON DC 20005 GREGORY MITCHELL CFO 2024078580 2016-06-14 1 DAVID TRIMNER P00444822 2408640431 2015 2016-09-27 15:27:22Z THE ALS ASSOCIATION BARBARA J NEWHOUSE 1275 K STREET NW WASHINGTON DC 20005 77080893 0 4119 X WWW.ALSA.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 27 27 79 41 0 0 137917563 23487328 162174 115362 269009 2060242 -8187 -17782 138340559 25645150 22560285 18279400 0 0 6041807 7018063 398696 330000 4611138 10121584 9834399 39122372 35461862 99218187 -9816712 130622675 113419744 10862559 7378564 119760116 106041180 X THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 17271304 16608607 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TODOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERALSCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2016, RESEARCHGRANTS WERE $16,608,607. THIS LEVEL OF FUNDING WAS MADE POSSIBLE BY THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. BECAUSE OF THE SUCCESS OF THE IBC, THE ASSOCIATION PLANS ON FURTHER INCREASING RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH. 6804773 1666609 10000 PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARESERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OFCHAPTERS (WHO ARE SEPARATELY INCORPORATED AND FILE THEIR OWN FORM 990), IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED ANDEVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES,CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMSINCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLELIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BESTPRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIESADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING AFOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ONSPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE (1) DEVELOPING AND IMPLEMENTING CLINICALAND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTSAND BEST PRACTICE; (2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATIONAND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDSOF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; (3)DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH'OTHER THAN' CERTIFIED CENTERS; (4) PROVIDING CURRENT INFORMATION,RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND (5) DEVELOPINGAND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THATADDRESS INDIVIDUAL, FAMILY AND CAREGIVER NEEDS BASED ON 'BEST PRACTICEAND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE. 4416494 4184 55696 PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31,2016, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED TO DRAFT AN FDA GUIDANCE DOCUMENT FOR ALS DRUG DEVELOPMENT. 28492571 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 70 0 79 1 0 0 0 0 0 1 1 0 0 0 1 0 X 27 27 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT WA WV WI NM X GREGORY MITCHELL 2024078580 1275 K STREET NW SUITE 250 WASHINGTON DC 20005 WILLIAM THOET CHAIRMAN 5.00 X X 0 0 0 WILLIAM SOFFEL TRUSTEE 3.00 X 0 0 0 WARREN NELSON TREASURER 4.00 X X 0 0 0 THOMAS KETTLER TRUSTEE 2.00 X 0 0 0 TED HARADA TRUSTEE 2.00 X 0 0 0 SUE GORMAN TRUSTEE 2.00 X 0 0 0 STUART OBERMANN TRUSTEE 3.00 X 0 0 0 STEPHEN WINTHROP TRUSTEE 2.00 X 0 0 0 PHYLLIS BROURMAN TRUSTEE 2.00 X 0 0 0 NANCY FRATES TRUSTEE 2.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 MARTY HERBERT TRUSTEE 3.00 X 0 0 0 MARK CALMES TRUSTEE 2.00 X 0 0 0 LOUIS LIBBY TRUSTEE 3.00 X 0 0 0 LAWRENCE BARNETT TRUSTEE 2.00 X 0 0 0 KIM ANN MINK SECRETARY 4.00 X X 0 0 0 KATHY HOLT TRUSTEE 2.00 X 0 0 0 JUDY PRATT TRUSTEE 2.00 X 0 0 0 JOHN KRAVE TRUSTEE 2.00 X 0 0 0 ELLYN PHILLIPS TRUSTEE 3.00 X 0 0 0 DOUGLAS BUTCHER VICE CHAIRMAN 4.00 X X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 DENISE CARMIE-STRADER TRUSTEE 2.00 X 0 0 0 CHRISTI KOLARCIK TRUSTEE 2.00 X 0 0 0 CHRIS BRUSSALIS TRUSTEE 3.00 X 0 0 0 CAMERON WARD TRUSTEE 2.00 X 0 0 0 ANDREW BROPHY TRUSTEE 3.00 X 0 0 0 ANDREA PAULS BACKMAN TRUSTEE 2.00 X 0 0 0 ALLAN J TOBIN TRUSTEE 2.00 X 0 0 0 GREGORY MITCHELL CFO 37.50 X 210380 0 7312 BARBARA NEWHOUSE PRESIDENT & CEO 37.50 X 303429 0 19276 STEVAN GIBSON CHEIF PUBLIC POLICY & ADVOCACY OFFICER 37.50 X 214561 0 18718 LANCE SLAUGHTER CHIEF DEVELOPMENT & CHAPTER RELATIONS OFFICER 37.50 X 196749 0 16475 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICER 37.50 X 169144 0 17177 CARRIE MUNK CHIEF COMMUNICATIONS & MARKETING OFFICER 37.50 X 178744 0 6228 BRIAN FREDERICK CHIEF OF STAFF 37.50 X 150952 0 5027 TERESSA HARRIS VP-FINANCE 37.50 X 121548 0 18868 ROSETTE ABAD DIRECTOR PAYROLL 37.50 X 133548 0 21722 MONICA SANTA CRUZ VP-HR & TALENT MANAGEMENT 37.50 X 130886 0 4470 MARY BRUNEY VP-CHAPTER RELATIONS 37.50 X 139288 0 16149 DAVID JOHN HAMPTON II VP-DEVELOPMENT 37.50 X 149387 0 5138 2098616 0 156560 21 0 1 0 NNE MARKETING 105 PAUL REVERE ROAD CONCORD MA 01742 DIRECT MARKETING SERVICES 330000 LUCIE BRUIJN PO BOX 670236 CHUGIAK AK 99567 SCIENTIFIC OFFICER RESEARCH OVERSIGHT 287708 FAEGRE BAKER DANIELS LLP 1050 K STREET NW SUITE 400 WASHINGTON DC 20001 CONSULTANT CDC GRANT & PUBLIC POLICY SER 251515 BEACONFIRE CONSULTING 2300 CLARENDON BLVD SUITE 925 ARLINGTON VA 22201 WEBSITE DESIGN SERVICES 120991 MICHAEL COSCIA 304 TWELFTH ST SE WASHINGTON DC 20003 PRINTING & PROMOTIONAL ITEMS, PUBLIC POL 105245 5 239873 359289 319397 22568769 209203 23487328 CONFERENCE FEES 900099 65696 65696 CHAPTER SUBLEASE 900099 49666 49666 115362 1450241 1450241 15907 15907 52010013 51400012 610001 610001 610001 0 359289 35731 -35731 -35731 MISCELANEOUS INCOME 900099 2042 2042 2042 25645150 65696 0 2092126 X 16787904 16787904 16950 16950 1474546 1474546 1514171 988820 351723 173628 4489241 2865773 456073 1167395 67685 43778 24142 -235 499669 278761 119673 101235 447297 289430 57075 100792 249238 45149 202861 1228 39794 39794 330000 330000 273317 273317 4462602 2391658 126855 1944089 329350 281084 1102 47164 506677 155419 102515 248743 104908 104908 771476 467237 99487 204752 1744856 1431162 214388 99306 164003 100259 31662 32082 64377 64377 CHAPTER SUPPORT 723562 716467 2320 4775 TELECOMMUNICATIONS 171680 122547 18107 31026 BAD DEBT EXPENSE 115833 83202 32631 CREDIT CARD & DATA FEES 112726 35627 -15428 92527 35461862 28492571 2358153 4611138 X 1442000 242000 0 1200000 7497387 -883859 109295145 3452236 1949216 3662396 229635 126878 438608 389773 1826760 1494070 199742 332690 8108414 102785856 2904528 3553774 130622675 113419744 2366783 1665531 7269898 4739872 155895 10000 1069983 963161 10862559 7378564 X 81245556 78060212 37551888 27044659 962672 936309 119760116 106041180 130622675 113419744 X -9816712 -3725844 -176380 X 0 1 X 1 0 X 19126742 19357009 23550946 137917563 23487328 223439588 19126742 19357009 23550946 137917563 23487328 223439588 1236137 222203451 119967 174222 179732 221293 1466148 2161362 14736 30161 15926 29343 2042 92208 225693158 1139528 0.98450 0.98970 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 48109 497940 546049 34915813 35461862 1000000 250000 0 0 879798 932385 1000000 1000000 3812183 5718275 285767 440857 422780 546049 1695453 219950 233096 250000 250000 953046 1429569 26625 43750 53629 48109 172113 6516315 0 -182653 6333662 5990000 526315 313081 313081 6516315 240000 5750000 21965 21965 5990000 240000 13666 13666 240000 240000 8091 8091 240000 0.03790 0.96210 0 0 249794 211548 38246 1138073 850754 287319 438893 431768 7125 332690 ANNUITY PAYMENT LIABILITY 888455 DEFERRED RENT 74706 963161 X 21742926 -3725844 -176380 -3902224 25645150 0 25645150 35461862 0 35461862 0 35461862 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION QUALIFIES AS A TAX-EXEMPT ORGANIZATION UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ASSOCIATION HAD NO UNRELATED TAXABLE INCOME FOR THE YEAR ENDED JANUARY 31, 2016. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. PART XI, LINE 2D - OTHER ADJUSTMENTS: LOSS ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -26,363. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -150,017. 1 EUROPE 0 0 GRANTS RESEARCH 647955 NORTH AMERICA 0 0 GRANTS RESEARCH 593686 MIDDLE EAST & NORTH AFRICA 0 0 GRANTS RESEARCH 90000 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 120000 SOUTH AMERICA 0 0 GRANTS RESEARCH 30000 0 0 0 0 0 0 1481641 0 1481641 EUROPE TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 378016 CHECK & WIRE TRANSFER EUROPE LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 169939 CHECK & WIRE TRANSFER EUROPE POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 100000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 512984 CHECK & WIRE TRANSFER NORTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 80702 CHECK & WIRE TRANSFER MIDDLE EAST & NORTH AFRICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 90000 CHECK & WIRE TRANSFER EAST ASIA & THE PACIFIC TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 120000 CHECK & WIRE TRANSFER SOUTH AMERICA TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 30000 CHECK & WIRE TRANSFER 20 0 0 0 0 0 0 PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. X X X X X X X 0 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 FUNDRAISING COUNSEL 0 3664076 330000 3334076 AUTOMOTIVE RECOVERY SERVICES INC PO BOX 2365 FAIR OAKS CA 95628 VEHICLE DONATION PROGRAM 1 146195 69938 76257 3810271 399938 3410333 MD CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NM NV NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI WALK NNE PORTLAND, ME 100952 100952 1484 2468 1391 1647 WALK TULSA, OK 85621 85621 1196 702 3216 6 172716 172716 910 824 2706 19187 359289 359289 3590 3994 4097 24050 35731 -35731 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 575 LEXINGTON AVENUE NY NY 10022 133376695 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT WASHINGTON UNIVERSITY 700 ROSEDALE AVE BOX 1034 ST LOUIS MO 63112 430653611 501(C)3 163331 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VOYAGER THERAPEUTICS INC 75 SIDNEY STREET CAMBRIDGE MA 02139 463003182 501(C)3 305764 CLINICAL MANAGEMENT VERMONT ALS CENTER 149 BEAUMONT AVE BURLINGTON VT 05405 030179440 501(C)3 37500 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UTHSCSA CERTIFIED TREATMENT CENTER OF EXCELLENCE 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSTITY OF NEW MEXICO 2211 LOMAS NE ALBUQUERQUE NM 87131 856000642 501(C)3 -11800 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF WISCONSIN-MILWAUKEE PO BOX 340 MILWAUKEE WI 53201 391805963 501(C)3 50000 CLINICAL MANAGEMENT UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DR CHICAGO IL 606930001 916001537 250000 TREAT ALS CLINICAL SCIENTIST UNIVERSITY OF VERMONT 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)3 -25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF SOUTH FL FOUNDATION INC 4202 E FOWLER AVE ALC 100 TAMPA FL 33620 590879015 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF MN FOUNDATION PO BOX 860266 MINNEAPOLIS MN 554860266 416042488 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MICHIGAN ALS CLINIC 1500 E MEDICAL CENTER DRIVE ANN ARBOR MI 48109 386006309 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MIAMI P O BOX 405803 ATLANTA GA 30384 590624458 501(C)3 100000 TREAT ALS UNIVERSITY OF MIAMI 1120 NW 14TH ST SUITE 1311 MIAMI FL 33136 592579826 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MD BALTIMORE 110 SOUTH PACA ST 3RD FLOOR BALTIMORE MD 21202 526002033 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MA MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 016550002 043167352 501(C)3 295790 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF MA MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 016550002 043167352 501(C)3 541271 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT UNIVERSITY OF MA MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 016550002 043167352 501(C)3 75000 POST DOCTORAL FELLOWSHIP RESEACH GRANT UNIVERSITY OF MA MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 016550002 043167352 501(C)3 460000 TREAT ALS UNIVERSITY OF KENTUCKY ALBERT CHANDLER MEDICAL CTR LEXINGTON KY 40536 616001218 501(C)3 -25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF IL AT CHICAGO ALS CLINIC 1801 W TAYLOR ST SUITE 4E CHICAGO IL 60612 376000511 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF FL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 79966 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF CHICAGO 6030 ELLIS AVENUE CHICAGO IL 60637 362177139 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF CA CASHIERS OFFICE 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT UNIVERSITY OF AZ 1303 E UNIVERSITY BLVD BOX 3 TUSCON AZ 85719 742652689 501(C)3 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TRUSTEES OF THE UNIVERSITY OF PA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)3 157906 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT TRANSLATIONAL GENOMICS RESEARCH INSTITUTE 445 N FIFTH STREET PHOENIX AZ 85004 753065445 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE UNIVERSITY OF SOUTH FL BOARD OF TRUSTEES PO BOX 864568 ORLANDO FL 32886 593102112 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE CHICAGO IL 606375418 362177139 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY PO BOX 29789 NY NY 100879789 135598093 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NY PO BOX 29789 NY NY 100879789 135598093 501(C)3 924795 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR MI 48109 946036493 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF MICHIGAN BOX 223131 PITTSBURGH PA 152512131 386006309 50000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF CA UCSF CONTROLLERS OFFICE 1855 FOLSOM STREET SAN FRANCISCO CA 94143 946036493 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF CA 9500 GILMAN DRIVE LA JOLLA CA 920935004 956006144 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE REGENTS OF THE UNIVERSITY OF CA UCSF CONTROLLERS OFFICE 1855 FOLSOM STREET MCB 425 BOX 0897 SAN FRANCISCO CA 94143 946036493 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE PRESIDENT AND FELLOWS OF HARVARD COLLEGE P O BOX 415649 BOSTON MA 022415649 042103580 501(C)3 117109 CLINICAL MANAGEMENT THE PA STATE UNIV COLLEGE OF MEDICINE CONTROLLERS OFFICE G230 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE NEBRASKA MEDICAL CENTER 988440 NEBRASKA MEDICINE OMAHA NE 681988440 911858433 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE METHODIST HOSPITAL MASTER CLEARING ACCOUNT PO BOX 2558 HOUSTON TX 77252 870721923 501(C)3 154453 TREAT ALS THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE J DAVID GLADSTONE INSTITUTE 1650 OWENS STREET SAN FRANCISCO CA 94158 237203666 501(C)3 1066000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT THE HOUSTON HOSPITAL RESEARCH INSTITUTE 6670 BERTNER AVENUE HOUSTON TX 77030 760152699 501(C)3 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)3 37500 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE GENERAL HOSPITAL CORP DBA MA GENERAL HOSPITAL 101 HUNGTINGTON AVENUE BOSTON MA 02199 042697983 501(C)3 278100 TREAT ALS THE GENERAL HOSPITAL CORP DBA MA GENERAL HOSPITAL 101 HUNGTINGTON AVENUE BOSTON MA 02199 042697983 501(C)3 376136 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT THE ALS ASSOCIATION - TX CHAPTER 2251 CHENAULT CARROLLTON TX 75006 742678974 501(C)3 28383 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - SOUTH CAROLINA CHAPTER 7499 PARK LANE RD STE 144 COLUMBIA SC 29223 203780277 501(C)3 48584 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - ROCKY MOUNTAIN CHAPTER 10855 DOVER ST STE 500 WESTMINSTER CO 80021 841337868 501(C)3 45000 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - ORANGE COUNTY CHAPTER 3002 DOW AVE UNIT 204 TUSTIN CA 92780 330282720 501(C)3 15034 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - NEVADA CHAPTER 4220 MD PKWY B-404 LAS VEGAS NV 89119 201531344 501(C)3 39088 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - MID AMERICA CHAPTER 6950 SQUIBB RD STE210 MISSION KS 66202 481021611 501(C)3 17250 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION - MICHIGAN CHAPTER 675 E BIG BEAVER STE 307 TROY MI 48083 382190726 501(C)3 100000 TELEHEALTH GRANT THE ALS ASSOCIATION - MA CHAPTER 315 NORWOOD PARK SOUTH 1ST FLOOR NORWOOD MA 02062 043085718 501(C)3 100000 ASSISTIVE TECHNOLOGY GRANT THE ALS ASSOCIATION - AZ CHAPTER 360 E CORONADO STE 140 PHOENIX AZ 85004 860727136 501(C)3 2500 CHAPTER SUPPORT GRANT TACONIC BIOSCIENCES INC 273 HANOVER AVENUE GERMANTOWN NY 12526 141301101 501(C)3 87927 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT SUNY RESEARCH FOUNDATION 750 E ADAMS ST SYRACUSE NY 13210 141368361 501(C)3 -13100 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT STANFORD UNIVERSITY P O BOX 44253 SAN FRANCISCO CA 94144 941156365 50000 POST DOCTORAL FELLOWSHIP RESEACH GRANT ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS MO 63104 430654872 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ST JUDE CHILDREN'S RESEARCH HOSPITAL FINANCIAL SERVICES MS 509 K1213 262 DANNY THOMAS PLACE MEMPHIS TN 38105 620646012 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT SRI INTERNATIONAL 333 RAVENSWOOD AVENUE MENLO PARK CA 94025 941160950 501(C)3 43500 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT SFIDA BIOLOGIC INC 615 ARAPEEN DRIVE SUITE 310 LAKE CITY UT 84108 900513929 501(C)3 30000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER DIGNITY HEALTH-ST JOSEPHS HOSPITAL AZ LOS ANGELES CA 90074 860096787 501(C)3 48495 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT RWJ UNIVERSITY HOSPITAL FOUNDATION 10 PLUM STREET SUITE 910 NEW BRUNSWICK NJ 08901 222378007 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT RICHARD BEDLACK 9 LOGGING TRAIL DURHAM NC 27707 049543372 501(C)3 60000 CLINICAL MANAGEMENT REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 501(C)3 10000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT REGENTS OF THE UNIVERSITY OF CA DAVIS ONE SHIELDS AVE DAVIS CA 95616 946036494 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT REGENTS OF THE UNIVERSITY OF CA 11000 KINROSS AVE STE 211 LOS ANGELES CA 90095 956006143 501(C)3 100000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT REGENTS OF THE UNIVERSITY OF CA 9500 GILMAN DRIVE MC 0934 LA JOLLA CA 92093 956006144 501(C)3 60000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND OR 97213 930386929 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PRIZE4LIFE INC PO BOX 5755 BERKELEY BERKELEY CA 94705 205055664 501(C)3 54250 TREAT ALS PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 CAMBRIDGE MA 02138 042103580 501(C)3 29960 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT PHOENIX NEUROLOGICAL ASSOCIATES 5090 40TH STREET SUITE 250 PHOENIX AZ 85018 860217237 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PENN STATE UNIVERSITY 30 HOPE DRIVE EC037 HERSHEY PA 17033 246000376 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ORIGENT DATA SCIENCES INC 8245 BOONE BLVD VIENNA VA 22182 383916182 501(C)3 45000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT OREGON STATE UNIVERSITY B308 KERR ADMINISTRATION BUILDING CORVALLIS OR 97331 481278540 75000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT NY UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NY NY 10016 135562308 501(C)3 266612 TREAT ALS NORTHWESTERN UNIVERSITY 633 CLARK ROOM G-547 EVANSTON IL 60208 362167817 501(C)3 140000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT NORTHEAST ALS CONSORTIUM (NEALS) 165 CAMBRIDGE STREET BOSTON MA 02114 562547779 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT NEUROLOGY ASSOCIATES OF STONY BROOK HSC LEVEL 12 ROOM 020 STONY BROOK NY 117948121 112587430 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MEDICAL FACULTY ASSOCIATES- NEUROLOGY DEPARTMENT 2150 PA AVE NW WASHINGTON DC 20037 522220700 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO MEDICAL CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 80000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 62500 POST DOCTORAL FELLOWSHIP RESEACH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 305000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S JACKSONVILLE FL 322241865 593337028 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MARY HITCHCOCK MEMORIAL HOSPITAL ONE MEDIVAL CENTER DRIVE LEBANON NH 03756 020222140 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT MA GENERAL HOSPITAL - RESEARCH ATTN NCRI NEALS P O BOX 414876 BOSTON MA 02241 042697983 501(C)3 981480 TREAT ALS MA GENERAL HOSPITAL P O BOX 414876 BOSTON MA 02241 042697983 501(C)3 563280 TREAT ALS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 LA JOLLA CA 92093 237121131 501(C)3 12500 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 LA JOLLA CA 92093 237121131 501(C)3 583000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT LANKENAU INSTITUTE FOR MEDICAL RESEARCH 100 LANCASTER AVENUE WYNNEWOOD PA 19096 232175659 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 042704683 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LA STATE UNIVERSITY HEALTH SCIENCE CENTER PO BOX 33932 1501 KINGS HIGHWAY SHREVEPORT LA 71130 720702002 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT KU ENDOWMENT ASSOCIATION 3901 RAINBOW BLVD KANSAS CITY KS 66160 480547734 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT KANSAS CITY UNIVERSITY OF MEDICINE AND BIOSCIENCES 1750 INDEPENDENCE AVENUE KANSAS CITY MO 64106 KANSAS CITY MO 64106 440545280 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE CHICAGO IL 606930001 520595110 501(C)3 871060 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT JOHNS HOPKINS UNIVERSITY 12529 COLLECTION CENTER DRIVE CHICAGO IL 606930001 520595110 501(C)3 70000 POST DOCTORAL FELLOWSHIP RESEACH GRANT IRON HORSE DIAGNOSTICS INC 21053 N 75TH STREET SCOTTSDALE AZ 85255 454537278 501(C)3 200000 TREAT ALS INDIANA UNIVERSITY ALS CENTER 355 WEST 16TH STREET ROOM 3222 INDIANAPOLIS IN 46202 356001673 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOUSTON METHODIST RESEARCH INSTITUTE 6565 FANNIN MGJ 4-024 HOUSTON TX 77030 870721923 501(C)3 693333 TREAT ALS HOSPITAL FOR SPECIAL SURGERY 535 EAST 70TH ST NY NY 10021 131624135 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOSPITAL FOR SPECIAL CARE 2150 CORBIN AVE NEW BRITAIN CT 06053 060646766 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENRY FORD HEALTH SYSTEM 2799 WEST GRAND BOULEVARD DETROIT MI 482022689 381357020 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENNEPIN COUNTY MEDICAL CENTER (HCMC) 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MN 55404 381357020 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GEORGIA HEALTH SCIENCES FOUNDATION 1120 15TH STREET BP 4390 AUGUSTA GA 30912 352310573 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 942728423 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DUKE UNIVERSITY MEDICAL CENTER 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DREXEL UNIVERSITY TD BANK P O BOX 95000-1090 PHILADELPHIA PA 19195 231352630 501(C)3 320000 CLINICAL MANAGEMENT DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 WEST THOMAS ROAD PHOENIX AZ 85013 860096787 501(C)3 15000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT DALLAS FORSHEW 31 REED BLVD 13C MILL VALLEY CA 94941 363501359 501(C)3 5000 RAND PRIZE GRANT CYTOKINETICS INC 280 E GRAND AVE STE 1 SOUTH SAN FRANCISCO CA 940804808 943291317 501(C)3 700000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT COMMUNITY HEALTH FOUNDATION OF HUNTSVILLEMADISON COUNTY PO BOX 322 HUNTSVILLE AL 35804 263750673 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CLEVELAND VA RESEARCH FOUNDATION 10701 EAST BLVD CLEVELAND OH 44106 341710663 50120 CLINICAL MANAGEMENT CLEVELAND CLINIC FOUNDATION EUCLID AVENUE CLEVELAND OH 44195 340714585 39769 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02215 042774441 501(C)3 150000 PRESERVE A VOICE GRANT CEDARS-SINAI MEDICAL CENTER 6500 WILSHIRE BLVD SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)3 689784 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT CEDARS-SINAI MEDICAL CENTER 6500 WILSHIRE BLVD SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)3 290000 TREAT ALS CEDARS-SINAI MEDICAL CENTER 6500 WILSHIRE BLVD SUITE 1150 LOS ANGELES CA 90048 951644600 501(C)3 254922 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BROWN UNIVERSITY BOX 1911 PROVIDENCE RI 02912 050258809 501(C)3 160000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BRIGHAM AND WOMEN'S HOSPITAL RESEARCH P O BOX 3887 BOSTON MA 022413887 042312909 501(C)3 39990 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BOSTON CHILDRENS HOSPITAL ATTN RESEARCH FINANCE PO BOX 414413 414413 BOSTON MA 02241 042774441 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BOARD OF TRUSTEES OF SOUTHERN IL UNIVERSITY 900 S NORMAL AVE CARBONDALE IL 62901 376005961 20000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 NORTH PARK STREET STE 6401 MADISON WI 53715 396006492 501(C)3 200000 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT BETH ISRAEL MEDICAL CENTER ALS CLINIC ONE GUSTAVE L LEVY PL BOX NY NY 10029 042103881 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BAYLOR COLLEGE OF MEDICINE 7200 CAMBRIDGE ST SUITE 9A HOUSTON TX 770304202 741613878 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BARROWS NEUROLOGICAL INSTITUTE 350 WEST THOMAS ROAD PHOENIX AZ 85013 721561134 501(C)3 110880 TREAT ALS AQUINNAH PHARMACEUTICALS INC LABCENTRAL 700 MAIN ST CAMBRIDGE MA 02139 465070024 501(C)3 210680 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT AQUINNAH PHARMACEUTICALS INC LABCENTRAL 700 MAIN ST CAMBRIDGE MA 02139 465070024 501(C)3 88135 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANT AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55401 411717098 501(C)3 52500 TREAT ALS CLINICAL SCIENTIST AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55401 411717098 501(C)3 86667 TRADITIONAL INVESTIGATOR INITIATED RESEARCH GRANT ALS CENTER AT MAYO CLINIC AZ 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 860800150 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALS CENTER 330 S NINTH ST PHILADELPHIA PA 19107 232743545 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHENY SINGER RESEARCH INSTITUTE 320 EAST NORTH AVENUE PITTSBURGH PA 15212 251320493 501(C)3 25000 ALS ASSOCIATION CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT 124 DURABLE MEDICAL EQUIPMENT 8 16950 FMV WHEELCHAIR POWER LIFT SEATS PART I, LINE 2: ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X X X 0 0 0 0 0 0 0 0 0 GREGORY MITCHELL CFO 210380 0 0 0 0 0 6300 0 1012 0 217692 0 0 0 BARBARA NEWHOUSE PRESIDENT & CEO 290929 0 12500 0 0 0 7950 0 11326 0 322705 0 0 0 STEVAN GIBSON CHEIF PUBLIC POLICY & ADVOCACY OFFIC 214561 0 0 0 0 0 6510 0 12208 0 233279 0 0 0 LANCE SLAUGHTER CHIEF DEVELOPMENT & CHAPTER RELATION 196749 0 0 0 0 0 5961 0 10514 0 213224 0 0 0 KIMBERLY HARDING-MAGINNIS CHIEF CARE SERVICES OFFICER 169144 0 0 0 0 0 5114 0 12063 0 186321 0 0 0 CARRIE MUNK CHIEF COMMUNICATIONS & MARKETING OFF 178744 0 0 0 0 0 5382 0 846 0 184972 0 0 0 BRIAN FREDERICK CHIEF OF STAFF 150952 0 0 0 0 0 4522 0 505 0 155979 0 0 0 ROSETTE ABAD DIRECTOR PAYROLL 72275 0 0 0 61273 0 4328 0 17394 0 155270 0 0 0 MARY BRUNEY VP-CHAPTER RELATIONS 139288 0 0 0 0 0 4180 0 11969 0 155437 0 0 0 DAVID JOHN HAMPTON II VP-DEVELOPMENT 149387 0 0 0 0 0 4492 0 646 0 154525 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. X 75 76257 FMV X 31 132946 AVG HIGH/LOW AT DATE 0 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTORS FOR STOCK AND NUMBER OF ITEMS FOR THE CAR PROGRAM. PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 1 THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART IX, LINE 11G APPEALS EXPENSE: PROGRAM SERVICE EXPENSES 242,114. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,256,952. TOTAL EXPENSES 1,499,066. OTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 2,149,544. MANAGEMENT AND GENERAL EXPENSES 126,855. FUNDRAISING EXPENSES 687,137. TOTAL EXPENSES 2,963,536. FORM 990, PART XI, LINE 9: CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS -176,380.