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LI FRAUMENI SYNDROME ASSOCIATION: Form 990EZ, tax year 2015

View the entire original 990 at ProPublica ↗

Organization
LI FRAUMENI SYNDROME ASSOCIATION (EIN 45-2284811)
Tax period
2015-01-01 to 2015-12-31
Filed
2016-05-16
IRS object ID
201601379349201080
Schema version
2015v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2016-05-16T08:43:29-05:00ReturnTs
Tax Period End2015-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN042523269PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1DeJordy Dugre Croteau & Co PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1727 Grattan StreetAddressLine1Txt
CityChicopeeCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01020ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2015-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN452284811EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Li-Fraumeni Syndrome Association IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlLI-FBusinessNameControlTxt
Phone7742660503PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 6458AddressLine1Txt
CityHollistonCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01746ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJennifer PerryPersonNm
Person TitlePresidentPersonTitleTxt
Phone7742660503PhoneNum
Signature2016-05-13SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJoseph Croteau Jr CPAPreparerPersonNm
PTINP00001558PTIN
Phone4135360666PhoneNum
Preparation2016-05-13PreparationDt
FieldValueIRS element (for citing)
Tax2015TaxYr
Build TS2016-09-27 15:27:22ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Website Addresshttp://www.lfsassociation.orgWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$114,829GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$54,857ContributionsGiftsGrantsEtcAmt
Fundraising Gross Income$59,972FundraisingGrossIncomeAmt
Special Events Direct Expenses$47,515SpecialEventsDirectExpensesAmt
Special Events Net Income Loss$12,457SpecialEventsNetIncomeLossAmt
Total Revenue$67,314TotalRevenueAmt
Grants And Similar Amounts Paid$36,450GrantsAndSimilarAmountsPaidAmt
Fees And Other Pymt To Ind Cntrct$2,191FeesAndOtherPymtToIndCntrctAmt
Occupancy Rent Utlts And Maint$123OccupancyRentUtltsAndMaintAmt
Printing Publications Postage$248PrintingPublicationsPostageAmt
Other Expenses Total$25,076OtherExpensesTotalAmt
Total Expenses$64,088TotalExpensesAmt
Excess Or Deficit For Year$3,226ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$70,081NetAssetsOrFundBalancesBOYAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Net Assets Or Fund Balances EOY$73,307NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$69,240BOYAmt
EOY$72,589EOYAmt

Other Assets Total Detail OtherAssetsTotalDetail

FieldValueIRS element (for citing)
BOY$841BOYAmt
EOY$718EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$70,081BOYAmt
EOY$73,307EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$70,081BOYAmt
EOY$73,307EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
Primary Exempt PurposeLi-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (2 entries)

Description Program Srvc AccomDescriptionProgramSrvcAccomTxtGrants And AllocationsGrantsAndAllocationsAmtProgram Service ExpensesProgramServiceExpensesAmt
In 2015 LFSA has made continued progress in advancing the science and understanding of LFS by supporting the coordinated research efforts of the LiFE research consortium. The Li-Fraumeni Research Award, granted recently to support the LFS/LiFE Consortium Database Project, will continue this progress. Our mission is to provide ongoing opportunities for unprecedented scientific advancement and collaboration in the years to come. In 2015, the organization gave three grants to Special Love's Camp Fantastic, Paul Newman's The Hole in the Wall Gang Camp, and City of Hope National Medical Center. LFSA sponsored 3 children at Special Love's Camp Fantastic, a week-long summer camp for young cancer patients supported by the National Cancer Institute. LFSA sponsored a camper and 2 family weekend oncology sessions at Paul Newman's The Hole in the Wall Gang Camp, a summer camp for kids with serious diseases.$36,450$0
In 2015, Li-Fraumeni Syndrome Association, Inc. (LFSA) provided four patient education webinars and launched Global LFS Education and Awareness Campaign. Families and medical providers now have a comprehensive go to brochure that communicates information regarding LFS. The LFSA website & its presence serves as the hub connecting the global Li-Fraumeni Syndrome (LFS) community offering education resources, clinical trial information, patient support and a community forum, and in 2015 it touched 120 languages in 142 countries & territories, had 100,189 web-site page views and 50,194 unique web-site visitors.$0$21,490
FieldValueIRS element (for citing)
Total Program Service Expenses$21,490TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (9 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmtEmployee Benefit ProgramEmployeeBenefitProgramAmtExpense Account Other AllwncExpenseAccountOtherAllwncAmt
Jennifer Perry
President/Co-Founder15.00$0$0$0
Susan Faulkner
Vice President25.00$0$0$0
John Berkeley
Treasurer/Co-Founder2.00$0$0$0
Robert Lufkin
Medical Advisor/Co-Founder1.00$0$0$0
Debra Soprano
Marketing Chair/Co-Founder25.00$0$0$0
Dunyelle Rosen
Legal Advisor1.00$0$0$0
Holly Fraumeni
Chief Executive Assistant10.00$0$0$0
Charlie Newcomb
Board of Director1.00$0$0$0
Patrick Kelleher
Secretary2.00$0$0$0
FieldValueIRS element (for citing)
Info In Schedule O Part VYes (X)InfoInScheduleOPartVInd
Activities Not Previously Rpt0ActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not Rpt0ChgMadeToOrgnzngDocNotRptInd
Organization Had UBI0OrganizationHadUBIInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Organization Dissolved Etc0OrganizationDissolvedEtcInd
Direct Indirect Pltcl Expend$0DirectIndirectPltclExpendAmt
Made Loans To From Officers0MadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJohn BerkeleyPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line150 South Main StreetAddressLine1Txt
CityBellinghamCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02019ZIPCd
FieldValueIRS element (for citing)
Phone7742660503PhoneNum
FieldValueIRS element (for citing)
Foreign Financial Account0ForeignFinancialAccountInd
Foreign Office0ForeignOfficeInd
Donor Advised Fnds0DonorAdvisedFndsInd
Operate Hospital0OperateHospitalInd
Tanning Services Provided0TanningServicesProvidedInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
School Operating0SchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (1)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$1,026CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$40,663CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$156,553CurrentTaxYearMinus1YearAmt
Current Tax Year$54,857CurrentTaxYearAmt
Total$253,099TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$1,026CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$40,663CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$156,553CurrentTaxYearMinus1YearAmt
Current Tax Year$54,857CurrentTaxYearAmt
Total$253,099TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$253,099PublicSupportTotal170Amt
Total Support$253,099TotalSupportAmt
Gross Receipts Rltd Activities$59,972GrossReceiptsRltdActivitiesAmt
First5 Years170Yes (X)First5Years170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Salute! 2015Event1Nm
Gross Receipts Event1$52,150GrossReceiptsEvent1Amt
Gross Revenue Event1$52,150GrossRevenueEvent1Amt
Other Direct Expenses Event1$45,506OtherDirectExpensesEvent1Amt
Event2Miscellaneous EventsEvent2Nm
Gross Receipts Event2$7,822GrossReceiptsEvent2Amt
Gross Revenue Event2$7,822GrossRevenueEvent2Amt
Other Direct Expenses Event2$2,009OtherDirectExpensesEvent2Amt
Gross Receipts Total$59,972GrossReceiptsTotalAmt
Gross Revenue Total Events$59,972GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$47,515OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$47,515DirectExpenseSummaryEventsAmt
Net Income Summary$12,457NetIncomeSummaryAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts PaidActivity Classification: Sponsored three young cancer patients for a week-long summer camp. Grantee Name: Special Love's Camp Fantastic. Grantee Address: 117 Youth Development Court Winchester, VA 22602. Date of Gift: 05/12/15. Amount Given: 1,950.
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts PaidActivity Classification: Sponsored a camper and two family weekend oncology sessions. Grantee Name: Paul Newman's The Hole in the Wall Gang Camp. Grantee Address: 555 Long Wharf Drive New Haven , CT 06511. Date of Gift: 05/19/15. Amount Given: 4,500.
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts PaidActivity Classification: LiFE Consortium/LFS Family Databank. Grantee Name: City of Hope National Medical Center. Grantee Address: 1500 E. Duarte Road Duarte, CA 91010. Date of Gift: 12/28/15. Amount Given: 30,000. Total included on Form 990-EZ, line 10: 36,450.
Form 990-EZ, Part I, Line 14Description: Depreciation. Amount: 123.
Form 990-EZ, Part I, Line 16 - Other ExpensesDescription: Program Service Expenses. Amount: 21,490. Description: Office Expense. Amount: 1,402. Description: MA State Filings. Amount: 85. Description: Dues & Subscriptions. Amount: 121. Description: Advertising. Amount: 911. Description: Credit Card Proceessing Fees/Bank Charges. Amount: 1,067. Total to Form 990-EZ, line 16: 25,076.
Form 990-EZ, Part II, Line 24 - Other AssetsDescription: Other Depreciable Assets. Beg. of Year Amount: 841. End of Year Amount: 718.

Transfer Prsnl Bnft Contracts Decl TransferPrsnlBnftContractsDecl

FieldValueIRS element (for citing)
DeclarationThe organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.DeclarationDesc

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