2016-05-16T08:43:29-05:00 2015-12-31 042523269 DeJordy Dugre Croteau & Co PC 727 Grattan Street Chicopee MA 01020 990EZ 2015-01-01 452284811 Li-Fraumeni Syndrome Association Inc LI-F 7742660503 PO Box 6458 Holliston MA 01746 Jennifer Perry President 7742660503 2016-05-13 1 Joseph Croteau Jr CPA P00001558 4135360666 2016-05-13 2015 2016-09-27 15:27:22Z X X http://www.lfsassociation.org X X 114829 X 54857 59972 47515 12457 67314 36450 2191 123 248 25076 64088 3226 70081 0 73307 X 69240 72589 841 718 70081 73307 0 0 70081 73307 X Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. In 2015 LFSA has made continued progress in advancing the science and understanding of LFS by supporting the coordinated research efforts of the LiFE research consortium. The Li-Fraumeni Research Award, granted recently to support the LFS/LiFE Consortium Database Project, will continue this progress. Our mission is to provide ongoing opportunities for unprecedented scientific advancement and collaboration in the years to come. In 2015, the organization gave three grants to Special Love's Camp Fantastic, Paul Newman's The Hole in the Wall Gang Camp, and City of Hope National Medical Center. LFSA sponsored 3 children at Special Love's Camp Fantastic, a week-long summer camp for young cancer patients supported by the National Cancer Institute. LFSA sponsored a camper and 2 family weekend oncology sessions at Paul Newman's The Hole in the Wall Gang Camp, a summer camp for kids with serious diseases. 36450 0 In 2015, Li-Fraumeni Syndrome Association, Inc. (LFSA) provided four patient education webinars and launched Global LFS Education and Awareness Campaign. Families and medical providers now have a comprehensive go to brochure that communicates information regarding LFS. The LFSA website & its presence serves as the hub connecting the global Li-Fraumeni Syndrome (LFS) community offering education resources, clinical trial information, patient support and a community forum, and in 2015 it touched 120 languages in 142 countries & territories, had 100,189 web-site page views and 50,194 unique web-site visitors. 0 21490 21490 Jennifer Perry President/Co-Founder 15.00 0 0 0 Susan Faulkner Vice President 25.00 0 0 0 John Berkeley Treasurer/Co-Founder 2.00 0 0 0 Robert Lufkin Medical Advisor/Co-Founder 1.00 0 0 0 Debra Soprano Marketing Chair/Co-Founder 25.00 0 0 0 Dunyelle Rosen Legal Advisor 1.00 0 0 0 Holly Fraumeni Chief Executive Assistant 10.00 0 0 0 Charlie Newcomb Board of Director 1.00 0 0 0 Patrick Kelleher Secretary 2.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 MA John Berkeley 50 South Main Street Bellingham MA 02019 7742660503 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 1026 40663 156553 54857 253099 1026 40663 156553 54857 253099 253099 253099 59972 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Salute! 2015 52150 52150 45506 Miscellaneous Events 7822 7822 2009 59972 59972 47515 47515 12457 Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid Activity Classification: Sponsored three young cancer patients for a week-long summer camp. Grantee Name: Special Love's Camp Fantastic. Grantee Address: 117 Youth Development Court Winchester, VA 22602. Date of Gift: 05/12/15. Amount Given: 1,950. Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid Activity Classification: Sponsored a camper and two family weekend oncology sessions. Grantee Name: Paul Newman's The Hole in the Wall Gang Camp. Grantee Address: 555 Long Wharf Drive New Haven , CT 06511. Date of Gift: 05/19/15. Amount Given: 4,500. Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts Paid Activity Classification: LiFE Consortium/LFS Family Databank. Grantee Name: City of Hope National Medical Center. Grantee Address: 1500 E. Duarte Road Duarte, CA 91010. Date of Gift: 12/28/15. Amount Given: 30,000. Total included on Form 990-EZ, line 10: 36,450. Form 990-EZ, Part I, Line 14 Description: Depreciation. Amount: 123. Form 990-EZ, Part I, Line 16 - Other Expenses Description: Program Service Expenses. Amount: 21,490. Description: Office Expense. Amount: 1,402. Description: MA State Filings. Amount: 85. Description: Dues & Subscriptions. Amount: 121. Description: Advertising. Amount: 911. Description: Credit Card Proceessing Fees/Bank Charges. Amount: 1,067. Total to Form 990-EZ, line 16: 25,076. Form 990-EZ, Part II, Line 24 - Other Assets Description: Other Depreciable Assets. Beg. of Year Amount: 841. End of Year Amount: 718. The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.