LuMind IDSC Foundation: Form 990, tax year 2016
View the entire original 990 at ProPublica ↗
- Organization
- LuMind IDSC Foundation (EIN 37-1483975)
- Tax period
- 2016-10-01 to 2017-09-30
- Filed
- 2018-08-13
- IRS object ID
- 201842259349301784
- Schema version
- 2016v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2018-08-13T15:35:21-05:00 | ReturnTs |
| Tax Period End | 2017-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 042578039 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | R A HALL & CO LLC CPA'S | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 183 STATE STREET | AddressLine1Txt |
| City | BOSTON | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02109 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2016-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 371483975 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LUMIND RESEARCH DOWN SYNDROME | BusinessNameLine1Txt |
| Business Name Line2 | FOUNDATION | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | LUMI | BusinessNameControlTxt |
| Phone | 5086302177 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 225 CEDAR HILL STREET NO 200 | AddressLine1Txt |
| City | MARLBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01752 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | HAMPUS HILLERSTROM | PersonNm |
| Person Title | PRESIDENT/CEO | PersonTitleTxt |
| Phone | 5086302177 | PhoneNum |
| Signature | 2018-06-26 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ERIC J HALL | PreparerPersonNm |
| PTIN | P00303080 | PTIN |
| Phone | 6177233333 | PhoneNum |
| Preparation | 2018-06-26 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2016 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | HAMPUS HILLERSTROM | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 225 CEDAR HILL STREET NO 200 | AddressLine1Txt |
| City | MARLBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01752 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,457,095 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | LUMINDRDS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. | ActivityOrMissionDesc |
| Voting Members Governing Body | 9 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 9 | VotingMembersIndependentCnt |
| Total Employee | 7 | TotalEmployeeCnt |
| Total Volunteers | 0 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,576,150 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,698,058 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $153 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,241 | CYInvestmentIncomeAmt |
| PY Other Revenue | $933,373 | PYOtherRevenueAmt |
| CY Other Revenue | $539,332 | CYOtherRevenueAmt |
| PY Total Revenue | $2,509,676 | PYTotalRevenueAmt |
| CY Total Revenue | $2,238,631 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,615,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,839,000 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $620,776 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $550,135 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $317,970 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $349,110 | PYOtherExpensesAmt |
| CY Other Expenses | $432,664 | CYOtherExpensesAmt |
| PY Total Expenses | $2,584,886 | PYTotalExpensesAmt |
| CY Total Expenses | $2,821,799 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$75,210 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$583,168 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,247,784 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,225,185 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,470,876 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,031,445 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $776,908 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $193,740 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $300,000 | ExpenseAmt |
| Grant | $300,000 | GrantAmt |
| Desc | EMORY UNIVERSITY SCHOOL OF MEDICINE -- CONTINUATION AND EXPANSION OF THE DOWN SYNDROME COGNITION PROJECT (DSCP) WILL SIGNIFICANTLY INCREASE RECRUITMENT OF INDIVIDUALS WITH DS TO DETERMINE AND DOCUMENT VARIABILITY OF COGNITIVE FUNCTION IN DS ASSOCIATED WITH DEVELOPMENTAL ID AS WELL AS CORRELATIONS WITH CO-OCCURRING MEDICAL CONDITIONS AND IDENTIFY GENETIC FACTORS ASSOCIATED WITH THE VARIABILITY AND CORRELATIONS CRITICAL FOR NEW THERAPEUTIC DEVELOPMENT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $269,000 | ExpenseAmt |
| Grant | $269,000 | GrantAmt |
| Desc | UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $220,000 | ExpenseAmt |
| Grant | $220,000 | GrantAmt |
| Desc | MASSACHUSETTS INSTITUTE OF TECHNOLOGY - EXPANSION OF IT'S COMMITMENT TO DOWN SYNDROME STUDIES WILL HELP PROVIDE FUNDS TO CREATE A GENERATION OF MIT RESEARCHERS TRAINED TO WORK IN THE FIELDS OF DS AND CUTTING-EDGE NEUROSCIENCE TECHNIQUES, WHILE EXPANDING A NEW RESEARCH AREA AT MIT, AND BUILDING A COLLABORATIVE APPROACH THAT WILL ENCOURAGE GREATER AWARENESS AND INVOLVEMENT WITH DS RESEARCH BY FACULTY AT MIT AND WITH OTHER LEADING RESEARCH INSTITUTIONS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,551,199 | ExpenseAmt |
| Grant | $1,050,000 | GrantAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $1,551,199 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $1,050,000 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $2,340,199 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 7 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 7 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 9 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 9 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | HAMPUS HILLERSTROM PRESIDENT AND C | PersonNm |
| Phone | 5086302177 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 225 CEDAR HILL STREET SUITE 200 | AddressLine1Txt |
| City | MARLBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01752 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|
| RYAN M HARTMAN | ||||||||
| BOARD CHAIR AND PRESIDENT | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| BJOERN SPERLING MD | ||||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| PATRICK KANNAN | ||||||||
| TREASURER, FINANCE CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL J MANNOR PHD | ||||||||
| SECRETARY | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| AMY ALLISON | ||||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| HAMPUS HILLERSTROM | ||||||||
| PRESIDENT AND CEO | 40.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| HECTOR GUINNESS | ||||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| SARAH WERNIKOFF | ||||||||
| MEMBER AT LARGE | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| PAUL MURASKO | ||||||||
| MEMBER, MARKETING CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| CHRISTOPHER LIS | ||||||||
| MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| VIRGINIA BENNETT FLYNN | ||||||||
| AUDIT COMMITTEE CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| MICHAEL M HARPOLD PHD | ||||||||
| CHIEF SCIENTIFIC OFFICER | 50.00 | $185,452 | $0 | $0 | Yes (X) | |||
| CAROLYN CRONIN | ||||||||
| FORMER EXECUTIVE DIRECTOR | 40.00 | $130,789 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $316,241 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $1,698,058 | FederatedCampaignsAmt |
| Total Contributions | $1,698,058 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,398 | TotalRevenueColumnAmt |
| Exclusion | $1,398 | ExclusionAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $157 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$157 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$157 | TotalRevenueColumnAmt |
| Exclusion | -$157 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $757,629 | FundraisingGrossIncomeAmt |
| Fundraising Direct Expenses | $218,307 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $539,322 | TotalRevenueColumnAmt |
| Exclusion | $539,322 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $10 | TotalRevenueColumnAmt |
| Exclusion | $10 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $10 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,238,631 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $540,573 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,839,000 | TotalAmt |
| Program Services | $1,839,000 | ProgramServicesAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $500,478 | TotalAmt |
| Program Services | $330,377 | ProgramServicesAmt |
| Management And General | $129,890 | ManagementAndGeneralAmt |
| Fundraising | $40,211 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $852 | TotalAmt |
| Program Services | $573 | ProgramServicesAmt |
| Management And General | $215 | ManagementAndGeneralAmt |
| Fundraising | $64 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,459 | TotalAmt |
| Program Services | $3,950 | ProgramServicesAmt |
| Management And General | $829 | ManagementAndGeneralAmt |
| Fundraising | $680 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,346 | TotalAmt |
| Program Services | $29,139 | ProgramServicesAmt |
| Management And General | $10,939 | ManagementAndGeneralAmt |
| Fundraising | $3,268 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $196,674 | TotalAmt |
| Fundraising | $196,674 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,345 | TotalAmt |
| Program Services | $4,635 | ProgramServicesAmt |
| Fundraising | $1,710 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,200 | TotalAmt |
| Program Services | $16,940 | ProgramServicesAmt |
| Management And General | $6,360 | ManagementAndGeneralAmt |
| Fundraising | $1,900 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,046 | TotalAmt |
| Program Services | $6,081 | ProgramServicesAmt |
| Management And General | $2,283 | ManagementAndGeneralAmt |
| Fundraising | $682 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,971 | TotalAmt |
| Program Services | $11,519 | ProgramServicesAmt |
| Management And General | $121 | ManagementAndGeneralAmt |
| Fundraising | $30,331 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,104 | TotalAmt |
| Program Services | $4,075 | ProgramServicesAmt |
| Management And General | $3,105 | ManagementAndGeneralAmt |
| Fundraising | $924 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,899 | TotalAmt |
| Program Services | $4,910 | ProgramServicesAmt |
| Management And General | $1,531 | ManagementAndGeneralAmt |
| Fundraising | $458 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $29,872 | TotalAmt |
| Program Services | $23,884 | ProgramServicesAmt |
| Management And General | $3,274 | ManagementAndGeneralAmt |
| Fundraising | $2,714 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,877 | TotalAmt |
| Program Services | $35,109 | ProgramServicesAmt |
| Fundraising | $15,768 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,648 | TotalAmt |
| Program Services | $15,296 | ProgramServicesAmt |
| Management And General | -$149 | ManagementAndGeneralAmt |
| Fundraising | $7,501 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,850 | TotalAmt |
| Program Services | $3,260 | ProgramServicesAmt |
| Management And General | $1,224 | ManagementAndGeneralAmt |
| Fundraising | $366 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| BANK FEES AND CREDIT CA | $11,659 | $0 | $1,038 | $10,621 |
| STATE FILING FEES | $8,408 | $5,432 | $2,011 | $965 |
| POSTAGE AND SHIPPING | $5,422 | $3,590 | $959 | $873 |
| PRINTING | $4,689 | $2,429 | $0 | $2,260 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,821,799 | TotalAmt |
| Program Services | $2,340,199 | ProgramServicesAmt |
| Management And General | $163,630 | ManagementAndGeneralAmt |
| Fundraising | $317,970 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $249,122 | BOYAmt |
| EOY | $250,829 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,601,397 | BOYAmt |
| EOY | $811,138 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $298,855 | BOYAmt |
| EOY | $1,123,029 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,762 | BOYAmt |
| EOY | $26,063 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $56,845 | BOYAmt |
| EOY | $11,646 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $9,936 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $9,936 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $1,136 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,803 | BOYAmt |
| EOY | $1,344 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,247,784 | BOYAmt |
| EOY | $2,225,185 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $48,092 | BOYAmt |
| EOY | $127,760 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,323,750 | BOYAmt |
| EOY | $1,857,750 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $42,554 | BOYAmt |
| EOY | $33,541 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $56,480 | BOYAmt |
| EOY | $12,394 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,470,876 | BOYAmt |
| EOY | $2,031,445 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $751,908 | BOYAmt |
| EOY | -$46,260 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,000 | BOYAmt |
| EOY | $240,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $776,908 | BOYAmt |
| EOY | $193,740 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,247,784 | BOYAmt |
| EOY | $2,225,185 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$583,168 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,539,394 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,510,791 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,426,436 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,451,150 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,420,558 | CurrentTaxYearAmt |
| Total | $7,348,329 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,539,394 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,510,791 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,426,436 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,451,150 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,420,558 | CurrentTaxYearAmt |
| Total | $7,348,329 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $7,348,329 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,293 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,793 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $306 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $152 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,241 | CurrentTaxYearAmt |
| Total | $4,785 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,036 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus2 Years | $976 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year | $10 | CurrentTaxYearAmt |
| Total | $2,022 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $7,355,136 | TotalSupportAmt |
| Public Support CY170 | 0.99910 | PublicSupportCY170Pct |
| Public Support PY170 | 0.99890 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $9,936 | OtherCostOrOtherBasisAmt |
| Depreciation | $9,936 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $0 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| WAGES AND TAXES PAYABLE | $12,493 |
| CREDIT CARD | -$99 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $12,394 | TotalLiabilityAmt |
| Total Rev Etc Audited Fincl Stmt | $2,238,631 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,238,631 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,238,631 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,821,799 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,821,799 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,821,799 | TotalExpensesPerForm990Amt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | HAYES MECHANICAL GOLF | Event1Nm |
| Gross Receipts Event1 | $273,044 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $273,044 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $81,454 | OtherDirectExpensesEvent1Amt |
| Event2 | FUNDING FUTURES | Event2Nm |
| Gross Receipts Event2 | $103,668 | GrossReceiptsEvent2Amt |
| Gross Revenue Event2 | $103,668 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $20,679 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 23 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $380,917 | GrossReceiptsOtherEventsAmt |
| Gross Revenue Other Events | $380,917 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $116,174 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $757,629 | GrossReceiptsTotalAmt |
| Gross Revenue Total Events | $757,629 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $218,307 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $218,307 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $539,322 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (10 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt | Address Line1ForeignAddress/AddressLine1Txt | CityForeignAddress/CityNm | CountryForeignAddress/CountryCd | Foreign PostalForeignAddress/ForeignPostalCd |
|---|---|---|---|---|---|---|---|---|---|---|---|
| JOHNS HOPKINS UNIVERSITY | |||||||||||
| 725 N WOLFE STREET | BALTIMORE | MD | 21205 | 520595110 | $125,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| UNIVERSITY OF CALIFORNIA AT SAN DIEGO | |||||||||||
| 9500 GILMAN DRIVE IMG BLDG 1 RM 110 | LA JOLLA | CA | 92037 | 956006144 | $75,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | 110 | ||||
| UNIVERSITY OF ARIZONA | |||||||||||
| 1503 E UNIVERSITY BLVD | TUSCON | AZ | 85721 | 742652689 | $215,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| STANFORD UNIVERSITY | |||||||||||
| GILBERT RM 420A | STANFORD | CA | 94305 | 941156365 | $160,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY | |||||||||||
| 43 VASSAR STREET | CAMBRIDGE | MA | 02139 | 042103594 | $220,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| AC IMMUNE | |||||||||||
| $200,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | EPFL INNOVATION PARK | LAUSANNE | SZ | 1015 | ||||||
| EMORY UNIVERSITY | |||||||||||
| 201 DOWMAN DRIVE | ATLANTA | GA | 30322 | 580566256 | $300,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| UNIVERSITY OF CONNECTICUT HEALTH CENTER | |||||||||||
| 263 FARMINGTON AVE | FARMINGTON | CT | 06030 | 060772160 | $269,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| VANDERBILT UNIVERSITY | |||||||||||
| 2201 WEST END AVE | NASHVILLE | TN | 37235 | 620476822 | $125,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | |||||
| KEY OPINION LEADER MEETINGS | |||||||||||
| 225 CEDAR HILL STREET | MARLBOROUGH | MA | 01752 | $150,000 | TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH | ||||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 7 | Total501c3OrgCnt |
| Total Other Org | 10 | TotalOtherOrgCnt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| MICHAEL M HARPOLD PHD | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $185,452 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $185,452 | $0 | $0 | $0 |
| CAROLYN CRONIN | ||||||||||||||
| FORMER EXECUTIVE DIRECTOR | $130,789 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $130,789 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE BOARD AND FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN MONTHLY BOARD MEETINGS. |
| FORM 990, PART VI, SECTION B, LINE 15 | COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET. |
| FORM 990, PART VI, SECTION C, LINE 18 | FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE ORGANIZATION HAS AN AUDIT COMMITTEE TO OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR. |
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