2018-08-13T15:35:21-05:00 2017-09-30 042578039 R A HALL & CO LLC CPA'S 183 STATE STREET BOSTON MA 02109 990 2016-10-01 371483975 LUMIND RESEARCH DOWN SYNDROME FOUNDATION LUMI 5086302177 225 CEDAR HILL STREET NO 200 MARLBOROUGH MA 01752 HAMPUS HILLERSTROM PRESIDENT/CEO 5086302177 2018-06-26 1 ERIC J HALL P00303080 6177233333 2018-06-26 2016 2022-09-23 18:48:47Z HAMPUS HILLERSTROM 225 CEDAR HILL STREET NO 200 MARLBOROUGH MA 01752 2457095 0 X LUMINDRDS.ORG X 2003 CA TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. 9 9 7 0 0 0 1576150 1698058 0 0 153 1241 933373 539332 2509676 2238631 1615000 1839000 0 0 620776 550135 0 0 317970 349110 432664 2584886 2821799 -75210 -583168 2247784 2225185 1470876 2031445 776908 193740 TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. 0 0 300000 300000 EMORY UNIVERSITY SCHOOL OF MEDICINE -- CONTINUATION AND EXPANSION OF THE DOWN SYNDROME COGNITION PROJECT (DSCP) WILL SIGNIFICANTLY INCREASE RECRUITMENT OF INDIVIDUALS WITH DS TO DETERMINE AND DOCUMENT VARIABILITY OF COGNITIVE FUNCTION IN DS ASSOCIATED WITH DEVELOPMENTAL ID AS WELL AS CORRELATIONS WITH CO-OCCURRING MEDICAL CONDITIONS AND IDENTIFY GENETIC FACTORS ASSOCIATED WITH THE VARIABILITY AND CORRELATIONS CRITICAL FOR NEW THERAPEUTIC DEVELOPMENT. 269000 269000 UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH. 220000 220000 MASSACHUSETTS INSTITUTE OF TECHNOLOGY - EXPANSION OF IT'S COMMITMENT TO DOWN SYNDROME STUDIES WILL HELP PROVIDE FUNDS TO CREATE A GENERATION OF MIT RESEARCHERS TRAINED TO WORK IN THE FIELDS OF DS AND CUTTING-EDGE NEUROSCIENCE TECHNIQUES, WHILE EXPANDING A NEW RESEARCH AREA AT MIT, AND BUILDING A COLLABORATIVE APPROACH THAT WILL ENCOURAGE GREATER AWARENESS AND INVOLVEMENT WITH DS RESEARCH BY FACULTY AT MIT AND WITH OTHER LEADING RESEARCH INSTITUTIONS. 1551199 1050000 1551199 1050000 2340199 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 7 1 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA MA NY AL AK AZ AR CO CT DC FL GA IL KS KY ME MD MA MI MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X HAMPUS HILLERSTROM PRESIDENT AND C 5086302177 225 CEDAR HILL STREET SUITE 200 MARLBOROUGH MA 01752 X RYAN M HARTMAN BOARD CHAIR AND PRESIDENT 5.00 X X 0 0 0 BJOERN SPERLING MD MEMBER 1.00 X 0 0 0 PATRICK KANNAN TREASURER, FINANCE CHAIR 1.00 X X 0 0 0 MICHAEL J MANNOR PHD SECRETARY 1.00 X 0 0 0 AMY ALLISON MEMBER 1.00 X 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 X X 0 0 0 HECTOR GUINNESS MEMBER 1.00 X 0 0 0 SARAH WERNIKOFF MEMBER AT LARGE 1.00 X 0 0 0 PAUL MURASKO MEMBER, MARKETING CHAIR 1.00 X X 0 0 0 CHRISTOPHER LIS MEMBER 1.00 X 0 0 0 VIRGINIA BENNETT FLYNN AUDIT COMMITTEE CHAIR 1.00 X 0 0 0 MICHAEL M HARPOLD PHD CHIEF SCIENTIFIC OFFICER 50.00 X 185452 0 0 CAROLYN CRONIN FORMER EXECUTIVE DIRECTOR 40.00 X 130789 0 0 316241 0 0 2 1 1 0 0 1698058 1698058 1398 1398 157 -157 -157 -157 757629 218307 539322 539322 OTHER INCOME 900099 10 10 10 2238631 0 0 540573 1839000 1839000 500478 330377 129890 40211 852 573 215 64 5459 3950 829 680 43346 29139 10939 3268 196674 196674 6345 4635 1710 25200 16940 6360 1900 9046 6081 2283 682 41971 11519 121 30331 8104 4075 3105 924 6899 4910 1531 458 29872 23884 3274 2714 50877 35109 15768 22648 15296 -149 7501 4850 3260 1224 366 BANK FEES AND CREDIT CA 11659 0 1038 10621 STATE FILING FEES 8408 5432 2011 965 POSTAGE AND SHIPPING 5422 3590 959 873 PRINTING 4689 2429 0 2260 2821799 2340199 163630 317970 249122 250829 1601397 811138 298855 1123029 32762 26063 56845 11646 9936 9936 0 0 1136 8803 1344 2247784 2225185 48092 127760 1323750 1857750 42554 33541 56480 12394 1470876 2031445 X 751908 -46260 25000 240000 776908 193740 2247784 2225185 -583168 0 X X 0 1 X 1 0 X 1539394 1510791 1426436 1451150 1420558 7348329 1539394 1510791 1426436 1451150 1420558 7348329 7348329 1293 1793 306 152 1241 4785 1036 976 10 2022 7355136 0.99910 0.99890 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9936 9936 0 0 WAGES AND TAXES PAYABLE 12493 CREDIT CARD -99 12394 2238631 0 2238631 0 2238631 2821799 0 2821799 0 2821799 HAYES MECHANICAL GOLF 273044 273044 81454 FUNDING FUTURES 103668 103668 20679 23 380917 380917 116174 757629 757629 218307 218307 539322 0 JOHNS HOPKINS UNIVERSITY 725 N WOLFE STREET BALTIMORE MD 21205 520595110 125000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH UNIVERSITY OF CALIFORNIA AT SAN DIEGO 9500 GILMAN DRIVE IMG BLDG 1 RM 110 110 LA JOLLA CA 92037 956006144 75000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH UNIVERSITY OF ARIZONA 1503 E UNIVERSITY BLVD TUSCON AZ 85721 742652689 215000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH STANFORD UNIVERSITY GILBERT RM 420A STANFORD CA 94305 941156365 160000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH MASSACHUSETTS INSTITUTE OF TECHNOLOGY 43 VASSAR STREET CAMBRIDGE MA 02139 042103594 220000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH AC IMMUNE EPFL INNOVATION PARK LAUSANNE SZ 1015 200000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH EMORY UNIVERSITY 201 DOWMAN DRIVE ATLANTA GA 30322 580566256 300000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVE FARMINGTON CT 06030 060772160 269000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH VANDERBILT UNIVERSITY 2201 WEST END AVE NASHVILLE TN 37235 620476822 125000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH KEY OPINION LEADER MEETINGS 225 CEDAR HILL STREET MARLBOROUGH MA 01752 150000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH 7 10 0 0 0 0 0 0 0 0 0 MICHAEL M HARPOLD PHD CHIEF SCIENTIFIC OFFICER 185452 0 0 0 0 0 0 0 0 0 185452 0 0 0 CAROLYN CRONIN FORMER EXECUTIVE DIRECTOR 130789 0 0 0 0 0 0 0 0 0 130789 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE BOARD AND FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. FORM 990, PART VI, SECTION B, LINE 12C THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN MONTHLY BOARD MEETINGS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS AN AUDIT COMMITTEE TO OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR.