AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2017-02-01 to 2018-01-31
Filed: 2018-06-12
IRS object ID: 201821639349300812
Schema version: 2017v2.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2018-06-12T12:07:04-05:00	ReturnTs
Tax Period End	2018-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410746749	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	CLIFTONLARSONALLEN LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	901 N GLEBE ROAD SUITE 200	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22203	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2017-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	GREGORY MITCHELL	PersonNm
Person Title	EXEC VP, FINANCE & ADMIN	PersonTitleTxt
Phone	2024078580	PhoneNum
Signature	2018-06-12	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	HEMALI PATEL	PreparerPersonNm
PTIN	P01337292	PTIN
Phone	5712279500	PhoneNum

Field	Value	IRS element (for citing)
Tax	2017	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	CALANEET BALAS	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$36,510,448	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1985	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.	ActivityOrMissionDesc
Voting Members Governing Body	23	VotingMembersGoverningBodyCnt
Voting Members Independent	23	VotingMembersIndependentCnt
Total Employee	102	TotalEmployeeCnt
Total Volunteers	26	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$27,407,957	PYContributionsGrantsAmt
CY Contributions Grants	$23,216,448	CYContributionsGrantsAmt
PY Program Service Revenue	$100,392	PYProgramServiceRevenueAmt
CY Program Service Revenue	$72,600	CYProgramServiceRevenueAmt
PY Investment Income	$3,380,924	PYInvestmentIncomeAmt
CY Investment Income	$1,546,338	CYInvestmentIncomeAmt
PY Other Revenue	-$10,206	PYOtherRevenueAmt
CY Other Revenue	-$165,651	CYOtherRevenueAmt
PY Total Revenue	$30,879,067	PYTotalRevenueAmt
CY Total Revenue	$24,669,735	CYTotalRevenueAmt
PY Grants And Similar Paid	$18,551,544	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$22,156,243	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$7,901,975	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$7,936,521	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$345,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$290,500	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$4,257,115	CYTotalFundraisingExpenseAmt
PY Other Expenses	$8,176,211	PYOtherExpensesAmt
CY Other Expenses	$7,434,947	CYOtherExpensesAmt
PY Total Expenses	$34,974,730	PYTotalExpensesAmt
CY Total Expenses	$37,818,211	CYTotalExpensesAmt
PY Revenues Less Expenses	-$4,095,663	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$13,148,476	CYRevenuesLessExpensesAmt
Total Assets BOY	$110,397,924	TotalAssetsBOYAmt
Total Assets EOY	$99,633,005	TotalAssetsEOYAmt
Total Liabilities BOY	$5,929,328	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$3,185,115	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$104,468,596	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$96,447,890	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$19,224,349	ExpenseAmt
Grant	$18,536,701	GrantAmt
Desc	RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2018, RESEARCH GRANTS WERE $18,536,701. THIS LEVEL OF SPENDING IS MADE POSSIBLE WITH THE HELP OF FUNDING FROM THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT TOOK PLACE IN THE SUMMER OF 2014, THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS, AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. THE ASSOCIATION'S GOAL IS TO FURTHER INCREASE RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$9,291,687	ExpenseAmt
Grant	$3,617,339	GrantAmt
Desc	PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH 'OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$3,025,301	ExpenseAmt
Grant	$2,203	GrantAmt
Revenue	$72,600	RevenueAmt
Desc	PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2018, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED TO DRAFT AN FDA GUIDANCE DOCUMENT FOR ALS DRUG DEVELOPMENT.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$31,541,337	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	0	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	Yes (1)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	48	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	102	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	23	GoverningBodyVotingMembersCnt
Independent Voting Member	23	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	GREGORY MITCHELL	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1275 K STREET NW SUITE 250	AddressLine1Txt
City	WASHINGTON	CityNm
State Abbreviation	DC	StateAbbreviationCd
ZIP	20005	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (36 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
CAMERON WARD JD
TRUSTEE	2.00	Yes (X)	$0	$0	$0
CHARLES J ROBINSON DSC PE
TRUSTEE	2.00	Yes (X)	$0	$0	$0
CHRISTI KOLARICK PHD
TRUSTEE	2.00	Yes (X)	$0	$0	$0
CONNIE HOUSTON
TRUSTEE	2.00	Yes (X)	$0	$0	$0
DON CASEY
TRUSTEE	2.00	Yes (X)	$0	$0	$0
ELLYN C PHILLIPS
SECRETARY	4.00	Yes (X)	$0	$0	$0	Yes (X)
FRED DEGRANDIS
TRUSTEE	2.00	Yes (X)	$0	$0	$0
JOHN P KRAVE
TRUSTEE	2.00	Yes (X)	$0	$0	$0
JUDY PRATT DMD
TRUSTEE	2.00	Yes (X)	$0	$0	$0
LAWRENCE R BARNETT ESQ
TRUSTEE	2.00	Yes (X)	$0	$0	$0
LOU LIBBY MD
TRUSTEE	2.00	Yes (X)	$0	$0	$0
MARK CALMES
TRUSTEE	2.00	Yes (X)	$0	$0	$0
MARK STANCIL
TREASURER	4.00	Yes (X)	$0	$0	$0	Yes (X)
MILLIE ARNOLD
TRUSTEE	2.00	Yes (X)	$0	$0	$0
NANCY FRATES
TRUSTEE	2.00	Yes (X)	$0	$0	$0
SCOTT KAUFFMAN
TRUSTEE	2.00	Yes (X)	$0	$0	$0
STEPHEN WINTHROP
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
STUART OBERMANN
TRUSTEE	2.00	Yes (X)	$0	$0	$0
SUE GORMAN
VICE CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
THOMAS D KETTLER
TRUSTEE	2.00	Yes (X)	$0	$0	$0
TOM CARROLL
TRUSTEE	2.00	Yes (X)	$0	$0	$0
WARREN NELSON
TRUSTEE	2.00	Yes (X)	$0	$0	$0
WILLIAM SOFFEL
TRUSTEE	2.00	Yes (X)	$0	$0	$0
WILLIAM THOET
TRUSTEE	2.00	Yes (X)	$0	$0	$0
CALANEET BALAS
CEO (12/4/17)	37.50		$208,761	$0	$14,385	Yes (X)
BARBARA NEWHOUSE
PRESIDENT/CEO (UNTIL 12/4/17)	37.50		$303,316	$0	$19,863	Yes (X)
GREGORY MITCHELL
EXECUTIVE VP, FINANCE & ADMINISTRATION	37.50		$218,987	$0	$6,481	Yes (X)
LANCE SLAUGHTER
EXECUTIVE VP, CHAPTER RELATIONS & GOVERNANCE	37.50		$199,203	$0	$19,490		Yes (X)
BRIAN FREDERICK
EXECUTIVE VP, COMMUNICATION & DEVELOPMENT	37.50		$186,022	$0	$7,259		Yes (X)
KIMBERLY HARDING-MAGINNIS
SENIOR VP, CARE SERVICES	37.50		$176,961	$0	$13,109		Yes (X)
KATHLEEN SHEEHAN
VP. PUBLIC POLICY & ADVOCACY	37.50		$156,464	$0	$14,820		Yes (X)
MARY BRUNEY
VP, CHAPTER RELATIONS	37.50		$144,539	$0	$11,775			Yes (X)
TERESSA HARRIS
VP, FINANCE	37.50		$140,656	$0	$16,924			Yes (X)
MONICA SANTA CRUZ
VP, HUMAN RESOURCES & TALENT MANAGEMENT	37.50		$136,543	$0	$5,315			Yes (X)
TINA ZEFF
VP, DEVELOPMENT	37.50		$124,446	$0	$19,113			Yes (X)
STEPHEN GOEWEY
VP, COMMUNICATIONS	37.50		$104,888	$0	$4,238			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,100,786	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$152,772	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	12	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
NNE MARKETING
1666 MASSACHUSETTS AVENUE SUITE 14	LEXINGTON	MA	02420	DIRECT MARKETING SERVICES	$290,500
LUCIE BRUIJN
PO BOX 670236	CHUGIAK	AK	99567	SCIENTIFIC OFFICER RESEARCH OVERSIGHT	$290,000
MCDERMOTT WILL & EMERY
PO BOX 6043	CHICAGO	IL	60680	ATTORNEY SERVICES	$165,920
FAEGRE BAKER DANIELS LLP
1050 K STREET NW SUITE 400	WASHINGTON	DC	20001	CONSULTANT CDC GRANT & PUBLIC POLICY SER	$131,462
BURKE WILLIAMS SORENSEN LLP
444 SOUTH FLOWER STREET SUITE 400	LOS ANGELES	CA	90071	ATTORNEY SERVICES	$127,405

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	7	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$196,078	FederatedCampaignsAmt
Fundraising	$1,177,565	FundraisingAmt
Government Grants	$370,724	GovernmentGrantsAmt
All Other Contributions	$21,472,081	AllOtherContributionsAmt
Noncash Contributions	$163,279	NoncashContributionsAmt
Total Contributions	$23,216,448	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	CONFERENCE FEES	Desc
Business	900099	BusinessCd
Total Revenue Column	$72,600	TotalRevenueColumnAmt
Related Or Exempt Func Income	$72,600	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$72,600	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,156,702	TotalRevenueColumnAmt
Exclusion	$2,156,702	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$11,021,051	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$11,631,415	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$610,364	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$610,364	TotalRevenueColumnAmt
Exclusion	-$610,364	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$0	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$1,177,565	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$209,298	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$209,298	TotalRevenueColumnAmt
Exclusion	-$209,298	ExclusionAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$43,647	TotalRevenueColumnAmt
Exclusion	$43,647	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$43,647	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$24,669,735	TotalRevenueColumnAmt
Related Or Exempt Func Income	$72,600	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$1,380,687	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$20,208,512	TotalAmt
Program Services	$20,208,512	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$10,074	TotalAmt
Program Services	$10,074	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,937,657	TotalAmt
Program Services	$1,937,657	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,545,120	TotalAmt
Program Services	$993,393	ProgramServicesAmt
Management And General	$479,423	ManagementAndGeneralAmt
Fundraising	$72,304	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$5,339,070	TotalAmt
Program Services	$3,512,111	ProgramServicesAmt
Management And General	$270,486	ManagementAndGeneralAmt
Fundraising	$1,556,473	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$129,720	TotalAmt
Program Services	$87,598	ProgramServicesAmt
Management And General	$1,779	ManagementAndGeneralAmt
Fundraising	$40,343	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$403,269	TotalAmt
Program Services	$269,414	ProgramServicesAmt
Management And General	$24,571	ManagementAndGeneralAmt
Fundraising	$109,284	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$519,342	TotalAmt
Program Services	$339,485	ProgramServicesAmt
Management And General	$55,546	ManagementAndGeneralAmt
Fundraising	$124,311	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$193,321	TotalAmt
Program Services	$40,545	ProgramServicesAmt
Management And General	$152,776	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$39,959	TotalAmt
Management And General	$39,959	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$290,500	TotalAmt
Fundraising	$290,500	FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,907,442	TotalAmt
Program Services	$1,392,686	ProgramServicesAmt
Management And General	$39,760	ManagementAndGeneralAmt
Fundraising	$1,474,996	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$598,108	TotalAmt
Program Services	$574,673	ProgramServicesAmt
Management And General	$878	ManagementAndGeneralAmt
Fundraising	$22,557	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$294,566	TotalAmt
Program Services	$155,788	ProgramServicesAmt
Management And General	$93,392	ManagementAndGeneralAmt
Fundraising	$45,386	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$192,396	TotalAmt
Management And General	$192,396	ManagementAndGeneralAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$737,037	TotalAmt
Program Services	$479,567	ProgramServicesAmt
Management And General	$73,313	ManagementAndGeneralAmt
Fundraising	$184,157	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,584,039	TotalAmt
Program Services	$1,176,078	ProgramServicesAmt
Management And General	$228,756	ManagementAndGeneralAmt
Fundraising	$179,205	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$193,426	TotalAmt
Program Services	$119,143	ProgramServicesAmt
Management And General	$37,380	ManagementAndGeneralAmt
Fundraising	$36,903	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
TELECOMMUNICATIONS	$247,775	$198,185	$16,861	$32,729
CREDIT CARD & DATA FEES	$214,123	$46,428	$88,109	$79,586
CHAPTER SUPPORT	$148,564		$140,183	$8,381
BAD DEBT EXPENSE	$84,191		$84,191

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$37,818,211	TotalAmt
Program Services	$31,541,337	ProgramServicesAmt
Management And General	$2,019,759	ManagementAndGeneralAmt
Fundraising	$4,257,115	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$8,646,096	BOYAmt
EOY	$5,250,358	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$839,878	BOYAmt
EOY	$520,372	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$7,563,559	BOYAmt
EOY	$5,417,228	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$284,689	BOYAmt
EOY	$98,291	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$161,555	BOYAmt
EOY	$27,479	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$967,613	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$841,424	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$256,867	BOYAmt
EOY	$126,189	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$88,965,198	BOYAmt
EOY	$84,273,526	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$3,680,082	BOYAmt
EOY	$3,919,562	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$110,397,924	BOYAmt
EOY	$99,633,005	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$1,516,343	BOYAmt
EOY	$2,077,642	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$3,453,065	BOYAmt
EOY	$174,741	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$959,920	BOYAmt
EOY	$932,732	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$5,929,328	BOYAmt
EOY	$3,185,115	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$82,712,789	BOYAmt
EOY	$83,168,855	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$20,794,826	BOYAmt
EOY	$12,271,237	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$960,981	BOYAmt
EOY	$1,007,798	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$104,468,596	BOYAmt
EOY	$96,447,890	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$110,397,924	BOYAmt
EOY	$99,633,005	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$13,148,476	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$5,049,747	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$78,023	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$23,550,946	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$137,917,563	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,487,328	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$27,407,957	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,216,448	CurrentTaxYearAmt
Total	$235,580,242	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$23,550,946	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$137,917,563	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,487,328	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$27,407,957	CurrentTaxYearMinus1YearAmt
Current Tax Year	$23,216,448	CurrentTaxYearAmt
Total	$235,580,242	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$902,467	SubstantialContributorsTotAmt
Public Support Total170	$234,677,775	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$179,732	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$221,293	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,466,148	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,633,793	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,156,702	CurrentTaxYearAmt
Total	$6,657,668	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$15,926	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$29,343	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,042	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$47,788	CurrentTaxYearMinus1YearAmt
Current Tax Year	$43,647	CurrentTaxYearAmt
Total	$138,746	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$242,376,656	TotalSupportAmt
Gross Receipts Rltd Activities	$450,528	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.96820	PublicSupportCY170Pct
Public Support PY170	0.97540	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$15,724	FilingOrganizationsTotalAmt
Affiliated Group Total	$0	AffiliatedGroupTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$450,757	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$466,481	FilingOrganizationsTotalAmt
Affiliated Group Total	$0	AffiliatedGroupTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$37,351,730	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$37,818,211	FilingOrganizationsTotalAmt
Affiliated Group Total	$0	AffiliatedGroupTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt
Affiliated Group Total	$0	AffiliatedGroupTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt
Affiliated Group Total	$0	AffiliatedGroupTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$422,780	CurrentYearMinus3Amt
Current Year Minus2	$546,049	CurrentYearMinus2Amt
Current Year Minus1	$529,987	CurrentYearMinus1Amt
Current Year	$466,481	CurrentYearAmt
Total	$1,965,297	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$53,629	CurrentYearMinus3Amt
Current Year Minus2	$48,109	CurrentYearMinus2Amt
Current Year Minus1	$33,626	CurrentYearMinus1Amt
Current Year	$15,724	CurrentYearAmt
Total	$151,088	TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	$482,577	InvestmentEarningsOrLossesAmt
Other Expenditures	$482,577	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,333,662	BeginningYearBalanceAmt
Investment Earnings Or Losses	$386,180	InvestmentEarningsOrLossesAmt
Other Expenditures	$203,527	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$182,653	InvestmentEarningsOrLossesAmt
End Year Balance	$6,333,662	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$5,990,000	BeginningYearBalanceAmt
Contributions	$526,315	ContributionsAmt
Investment Earnings Or Losses	$313,081	InvestmentEarningsOrLossesAmt
Other Expenditures	$313,081	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$240,000	BeginningYearBalanceAmt
Contributions	$5,750,000	ContributionsAmt
Investment Earnings Or Losses	$21,965	InvestmentEarningsOrLossesAmt
Other Expenditures	$21,965	OtherExpendituresAmt
End Year Balance	$5,990,000	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	0.03680	PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY	0.96320	TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$146,535	OtherCostOrOtherBasisAmt
Depreciation	$117,705	DepreciationAmt
Book Value	$28,830	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$424,776	OtherCostOrOtherBasisAmt
Depreciation	$337,918	DepreciationAmt
Book Value	$86,858	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$396,302	OtherCostOrOtherBasisAmt
Depreciation	$385,801	DepreciationAmt
Book Value	$10,501	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$126,189	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ANNUITY PAYMENT LIABILITY	$851,460
DEFERRED RENT	$81,272

Field	Value	IRS element (for citing)
Total Liability	$932,732	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$29,797,505	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$5,049,747	NetUnrealizedGainsInvstAmt
Other Revenue	$78,023	OtherRevenueAmt
Revenue Not Reported	$5,127,770	RevenueNotReportedAmt
Revenue Subtotal	$24,669,735	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$24,669,735	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$37,818,211	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$37,818,211	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$37,818,211	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES.
PART X, LINE 2:	THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 46,817. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 31,206.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE	GRANTS	RESEARCH	$1,361,833
NORTH AMERICA	GRANTS	RESEARCH	$495,734
EAST ASIA & THE PACIFIC	GRANTS	RESEARCH	$30,000
SOUTH AMERICA	GRANTS	RESEARCH	$50,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,937,567	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,937,567	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (14 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE	TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS	$40,000	CHECK & WIRE TRANSFER
EUROPE	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS	$119,094	CHECK & WIRE TRANSFER
EUROPE	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	$25,000	CHECK & WIRE TRANSFER
EUROPE	STRATEGIC CHALLENGE RESEARCH GRANTS	$300,000	CHECK & WIRE TRANSFER
SOUTH AMERICA	POST DOCTORAL FELLOWSHIP RESEARCH GRANTS	$50,000	CHECK & WIRE TRANSFER
EUROPE	STRATEGIC INITIATIVE RESEARCH GRANTS	$95,626	CHECK & WIRE TRANSFER
EAST ASIA & THE PACIFIC	STRATEGIC INITIATIVE RESEARCH GRANTS	$30,000	CHECK & WIRE TRANSFER
NORTH AMERICA	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS	$247,523	CHECK & WIRE TRANSFER
NORTH AMERICA	TREAT ALS	$248,211	CHECK & WIRE TRANSFER
EUROPE	DRUG DEVELOPMENT CONTRACT	$33,333	CHECK & WIRE TRANSFER
EUROPE	CLINICAL MANAGEMENT	$150,000	CHECK & WIRE TRANSFER
EUROPE	INVESTIGATOR INITIATED AWARD	$100,000	CHECK & WIRE TRANSFER
EUROPE	CLINICAL PILOT TRIAL	$468,780	CHECK & WIRE TRANSFER
EUROPE	CREATE	$30,000	CHECK & WIRE TRANSFER

Field	Value	IRS element (for citing)
Total501c3 Org	14	Total501c3OrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	NNE MARKETING	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	105 PAUL REVERE RD	AddressLine1Txt
City	CONCORD	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	01742	ZIPCd

Field	Value	IRS element (for citing)
Activity	FUNDRAISING COUNSEL	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$3,572,889	GrossReceiptsAmt
Retained By Contractor	$290,500	RetainedByContractorAmt
Net To Organization	$3,282,389	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,572,889	TotalGrossReceiptsAmt
Total Retained By Contractors	$290,500	TotalRetainedByContractorsAmt
Total Net To Organization	$3,282,389	TotalNetToOrganizationAmt
Licensed States	CA	LicensedStatesCd
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	DC	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	WALK MI - DETROIT, MI	Event1Nm
Gross Receipts Event1	$171,384	GrossReceiptsEvent1Amt
Charitable Contri Event1	$171,384	CharitableContriEvent1Amt
Rent Facility Costs Event1	$18,172	RentFacilityCostsEvent1Amt
Entertainment Event1	$150	EntertainmentEvent1Amt
Other Direct Expenses Event1	$6,099	OtherDirectExpensesEvent1Amt
Event2	GREENVILLE POLO CLASSIC	Event2Nm
Gross Receipts Event2	$137,754	GrossReceiptsEvent2Amt
Charitable Contri Event2	$137,754	CharitableContriEvent2Amt
Rent Facility Costs Event2	$100,368	RentFacilityCostsEvent2Amt
Other Direct Expenses Event2	$156	OtherDirectExpensesEvent2Amt
Other Events Total	16	OtherEventsTotalCnt
Gross Receipts Other Events	$868,427	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$868,427	CharitableContriOtherEventsAmt
Rent Fclty Costs Other Events	$21,936	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$658	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$600	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$61,159	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$1,177,565	GrossReceiptsTotalAmt
Charitable Contributions Tot	$1,177,565	CharitableContributionsTotAmt
Rent Fclty Costs Total Events	$140,476	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$658	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$750	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$67,414	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$209,298	DirectExpenseSummaryEventsAmt
Net Income Summary	-$209,298	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (181 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP
200 JEFFERSON AVE SE	GRAND RAPIDS	MI	49503	272491974	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALLEGHANY HEALTH NETWORK
320 E NORTH AVE	PITTSBURGH	PA	15212	251320493	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALLEGHENY SINGER RESEARCH INSTITUTE
320 EAST NORTH AVE	PITTSBURGH	PA	15212	251320493	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALS CENTER AT MAYO CLINIC ARIZONA
13400 EAST SHEA BLVD	SCOTTSDALE	AZ	852595404	860800150	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	$86,667	CLINICAL RESEARCH TRAINING FELLOWSHIP
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	$53,333	CLINICIAN SCIENTIST DEVELOPMENT AWARD
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVE	MINNEAPOLIS	MN	554151126	410726167	501(C)3	$50,000	SHEILA ESSEY AWARD
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	$145,000	TREAT ALS CLINICAL SCIENTIST
AMYLYX PHARMACEUTICALS INC
210 BROADWAY NO 201	CAMBRIDGE	MA	02139	464600503	501(C)3	$450,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
BALL STATE UNIVERSITY
2000 W UNIVERSITY AVE IN 47304	MUNICE	IN	47304	356000221	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
BAYLOR COLLEGE OF MEDICINE
7200 CAMBRIDGE ST SUITE 9A	HOUSTON	TX	770304202	741613878	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401	MADISON	WI	53715	396006492	501(C)3	$49,366	INVESTIGATOR INITIATED AWARD
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401	MADISON	WI	53715	396006492	501(C)3	$145,000	TRADITIONAL INVESTIGATOR INITIATED
BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM
PO BOX 500 UNIVERSITY OF WISCONSIN	MILWAUKEE	WI	53201	391805963	501(C)3	$15,000	OUTREACH GRANT
BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM
PO BOX 500 UNIVERSITY OF WISCONSIN	MILWAUKEE	WI	53201	391805963	501(C)3	$7,500	YOUTH EDUCATIONAL MATERIALS GRANT
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	900481865	951644600	501(C)3	$140,800	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	900481865	951644600	501(C)3	$500,000	STRATEGIC INITIATIVE
CHELSEA JEWISH LIFECARE INC
165 CAPTAINS ROW	CHELSEA	MA	02150	510141617	501(C)3	$15,000	OUTREACH GRANT
CHILDREN'S HOSPITAL CORPORATION
300 LONGWOOD AVE	BOSTON	MA	02215	042774441	501(C)3	$150,000	PRESERVE A VOICE, PROTECT A LEGACY
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE	CLEVELAND	OH	44195	340714585	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	441950001	340714585	501(C)3	$79,537	TRADITIONAL INVESTIGATOR INITIATED
COMMUNITY FOUNDATION OF GREATER HUNTSVILLE
PO BOX 332	HUNTSVILLE	AL	35804	263750673	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
CYTOKINETICS INC
280 E GRAND AVE STE 1	SOUTH SAN FRANCISCO	CA	940804808	943291317	501(C)3	$800,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
DANA-FARBER CANCER INSTITUTE INC
450 BROOKLINE AVENUE BP331	BOSTON	MA	02215	042263040	501(C)3	$25,000	TRADITIONAL INVESTIGATOR INITIATED
DARTMOUTH COLLEGE
11 ROPE FERRY ROAD	HANOVER	NH	03755	020222111	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
DARTMOUTH HITCHCOCK FOUNDATION
LEBANON CLINIC ONE MEDICAL CENTER	LEBANON	NH	037560001	020222139	501(C)3	$12,500	NNE ALS CENTER GRANT	DRIVE
DIGNITY HEALTH ST JOSEPH'S HOSPITAL & MEDICAL CENTER
ST JOSEPHS HOSPITAL AZ FILE 57431	LOS ANGELES	CA	90074	860096787	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ
DIGNITY HEALTH-ST JOSEPHS HOSPITAL	LOS ANGELES	CA	90074	860096787	501(C)3	$87,150	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED	AZ
DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	860096787	501(C)3	$105,000	TRADITIONAL INVESTIGATOR INITIATED
DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ
3033 NORTH THIRD AVE	PHOENIX	AZ	85013	860096787	501(C)3	$678,308	TREAT ALS
DREXEL UNIVERSITY
TD BANK P O BOX 95000-1090	PHILADELPHIA	PA	19195	231352630	501(C)3	-$32,259	TRADITIONAL INVESTIGATOR INITIATED
DUKE UNIVERSITY
DUMC BOX 2900	DURHAM	NC	27710	560532129	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
EMORY UNIVERSITY
1784 N DECATUR RD NE	ATLANTA	GA	303221048	580566256	501(C)3	$102,489	STRATEGIC INITIATIVE
EMORY UNIVERSITY
1784 N DECATUR RD NE	ATLANTA	GA	303221048	580566256	501(C)3	$62,329	TRADITIONAL INVESTIGATOR INITIATED
FORBES NORRIS ALS RESEARCH CENTER
2324 SACRAMENTO ST	SAN FRANCISCO	CA	94115	942728423	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
GEORGIA HEALTH SCIENCES FOUNDATION INC
1120 15TH ST FL-1047	AUGUSTA	GA	30912	352310573	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
GREENVILLE HEALTH SYSTEMS
300 EAST MCBEE AVE SUITE 503	GREENVILLE	SC	296012842	811723202	501(C)3	$9,000	SC ALS CENTER GRANT
HENNEPIN COUNTY MEDICAL CENTER (HCMC)
701 PARK AVE	MINNEAPOLIS	MN	55415	381357020	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HENRY FORD HEALTH SYSTEM
2799 WEST GRAND BLVD	DETROIT	MI	482022689	381357020	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOPE LOVES COMPANY INC
C/O JODI ODONNELL-AMES P O BOX 931	PENNINGTON	NJ	08534	208418402	501(C)3	$50,000	CHILDREN'S CAMP OUTREACH GRANT
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVE	NEW BRITAIN	CT	06053	060646766	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH ST	NEW YORK	NY	10021	131624135	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOUSTON METHODIST HOSPITAL FOUNDATION
6565 FANNIN ST 802	HOUSTON	TX	77030	760094743	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
INDIANA UNIVERSITY
355 WEST 16TH ST	INDIANAPOLIS	IN	46202	356001673	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
IZUMI BIOSCIENCES INC
23 BLUEBERRY LN SUITE 100	LEXINGTON	MA	02420	472572265	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRIVE	CHICAGO	IL	60693	520595110	501(C)3	$580,000	DRUG DEVELOPMENT CONTRACT
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRIVE	CHICAGO	IL	60693	520595110	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRIVE	CHICAGO	IL	60693	520595110	501(C)3	$519,913	TRADITIONAL INVESTIGATOR INITIATED
KU ENDOWMENT ASSOCIATION
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	480547734	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC
41 MALL RD	BURLINGTON	MA	01805	042704683	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
LANKENAU INSTITUTE FOR MEDICAL RESEARCH
100 LANCASTER AVENUE	WYNNEWOOD	PA	19096	232175659	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO
433 BOLIVAR STREET 8TH FLOOR	NEW ORLEANS	LA	70112	720702002	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO
433 BOLIVAR STREET 8TH FLOOR	NEW ORLEANS	LA	70112	720702002	501(C)3	$25,000	TRADITIONAL INVESTIGATOR INITIATED
LUDWIG INSTITUTE FOR CANCER RESEARCH
3262 HOLIDAY COURT STE 201	LA JOLLA	CA	92037	237121131	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
LUDWIG INSTITUTE FOR CANCER RESEARCH
3262 HOLIDAY COURT STE 201	LA JOLLA	CA	92037	237121131	501(C)3	$530,000	STRATEGIC INITIATIVE
LUDWIG INSTITUTE FOR CANCER RESEARCH
3262 HOLIDAY COURT STE 201	LA JOLLA	CA	92093	237121131	501(C)3	$50,000	POSTDOCTORAL FELLOWSHIP
MARY HITCHCOCK MEMORIAL HOSPITAL
ONE MEDIVAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	BOSTON	MA	02241	042697983	501(C)3	$425,000	ALS ONE
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$50,000	CLINICAL MANAGEMENT
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	BOSTON	MA	02241	042697983	501(C)3	$559,697	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	CHARLESTOWN	MA	02129	042697983	501(C)3	$50,000	POSTDOCTORAL FELLOWSHIP
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	BOSTON	MA	02241	042697983	501(C)3	$1,096,507	TREAT ALS
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVE ROOM NE49-3000	CAMBRIDGE	MA	02139	042103594	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD	NE49-3000
MAYO CLINIC - ALS CLINIC NEUROLOGY
13400 E SHEA BLVD	SCOTTSDALE	AZ	85259	860800150	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO CLINIC FLORIDA
4500 SAN PABLO RD S	JACKSONVILLE	FL	322241865	593337028	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$45,542	POSTDOCTORAL FELLOWSHIP
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$237,671	TRADITIONAL INVESTIGATOR INITIATED
MAYO MEDICAL CLINIC
200 FIRST ST SW	ROCHESTER	MN	55905	416011702	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO MEDICAL CLINIC
200 FIRST ST SW	ROCHESTER	MN	55905	416011702	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MEDICAL FACULTY ASSOCIATES- NEUROLOGY DEPARTMENT
2150 PENNSYLVANIA AVE NW	WASHINGTON	DC	20037	522220700	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MEDICAL UNIVERSITY HOSPITAL AUTHORITY
169 ASHLEY AVE	CHARLESTON	SC	29425	571098556	501(C)3	$24,859	OUTREACH GRANT
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606	CHARLESTON	SC	29403	576000722	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
MOUNT SINAI HEALTH SYSTEM
ONE GUSTAVE L LEVY PLACE	NEW YORK	NY	10029	135564934	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS
31 CENTER DRIVE MSC 2540	BETHESDA	MD	208922540	520858115	501(C)3	$550,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
NEBRASKA MEDICINE
988440 NEBRASKA MEDICINE	OMAHA	NE	681988440	911858433	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
NEUROLOGY ASSOCIATES OF STONY BROOK
HSC LEVEL 12 ROOM 020	STONY BROOK	NY	117948121	112587430	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
NORTHEASTERN UNIVERSITY
360 HUNTINGTON AVE	BOSTON	MA	021155000	041679980	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
NORTHWESTERN UNIVERSITY
750 NORTH LAKE SHORE DRIVE	CHICAGO	IL	60611	362167817	501(C)3	$160,000	TRADITIONAL INVESTIGATOR INITIATED
OPTIKIRA LLC
20600 CHAGRIN BLVD SUITE 210	CLEVELAND	OH	44122	472271820	501(C)3	$498,500	DRUG DEVELOPMENT CONTRACT
OREGON STATE UNIVERSITY
312 KERR ADMINISTRATION BUILDING	CORVALLIS	OR	97331	481278540	501(C)3	$150,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
ORIGENT DATA SCIENCES INC
8245 BOONE BLVD	VIENNA	VA	22182	383916182	501(C)3	$150,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
ORIGENT DATA SCIENCES INC
8245 BOONE BLVD	VIENNA	VA	22182	383916182	501(C)3	$45,000	TRADITIONAL INVESTIGATOR INITIATED
PENN STATE HERSHEY MEDICAL CENTER
30 HOPE DR	HERSHEY	PA	17033	246000376	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
PISON TECHNOLOGY INC
258 HARVARD STREET	BROOKLINE	MA	02446	813603539	501(C)3	$100,000	STRATEGIC CHALLENGE
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
1350 MASSACHUSETTS AVENUE 6TH FLOOR	CAMBRIDGE	MA	02138	042103580	501(C)3	$137,500	INVESTIGATOR INITIATED AWARD	FLOOR
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
1350 MASSACHUSETTS AVENUE 6TH FLOOR	CAMBRIDGE	MA	02138	042103580	501(C)3	$100,000	TRADITIONAL INVESTIGATOR INITIATED	FLOOR
PRIZE4LIFE INC
PO BOX 5755	BERKELEY	CA	94705	205055664	501(C)3	$108,500	TREAT ALS
PROVIDENCE HEALTH & SERVICES-OREGON
PO BOX 5977	PORTLAND	OR	972285977	930386929	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
REGENTS OF THE UNIVERSITY OF CALIFORINA (200 S MANCHESTER)
200 S MANCHESTER	ORAGNE	CA	92868	952226406	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
1855 FOLSOM ST MCB 425 BOX 0897	SAN FRANCISCO	CA	94143	946036494	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
RICHARD BEDLACK
9 LOGGING TRAIL	DURHAM	NC	27707	049543372	501(C)3	$60,000	CLINICAL MANAGEMENT
ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL FOUNDATION
10 PLUM ST	NEW BRUNSWICK	NJ	08901	201785267	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
SCRIPPS FLORIDA
130 SCRIPPS WAY	JUPITER	FL	33458	330435954	501(C)3	$25,000	POSTDOCTORAL FELLOWSHIP
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MAIL STOP	MEMPHIS	TN	38105	620646012	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD	733
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MAIL STOP	MEMPHIS	TN	38105	620646012	501(C)3	$167,187	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED	733
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MAIL STOP	MEMPHIS	TN	38105	620646012	501(C)3	$25,000	POSTDOCTORAL FELLOWSHIP	733
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MAIL STOP	MEMPHIS	TN	381480949	620646012	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED	733
ST LOUIS UNIVERSITY
1438 SOUTH GRAND BLVD	ST LOUIS	MO	63104	430654872	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
STANFORD UNIVERSITY
P O BOX 44253	SAN FRANCISCO	CA	94144	941156365	501(C)3	$125,000	POSTDOCTORAL FELLOWSHIP
SWEDISH NEUROSCIENCE INSTITUTE
550 17TH AVE SUITE 400	SEATLE	WA	98122	912073120	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
SYRACUSE UNIVERSITY
BURSARS OFFICE	SYRACUSE	NY	13244	150532081	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
SYRACUSE UNIVERSITY
BURSARS OFFICE	SYRACUSE	NY	13244	150532081	501(C)3	$25,000	TRADITIONAL INVESTIGATOR INITIATED
TACONIC BIOSCIENCES INC
273 HOVER AVE	GERMANTOWN	NY	125265320	141381104	501(C)3	$93,692	STRATEGIC INITIATIVE
THE ALS ASSOCIATION-FLORIDA CHAPTER
3242 PARKSIDE CENTER CIRCLE	TAMPA	FL	33619	943124732	501(C)3	$54,619	DISASTER RELIEF FUND GRANT
THE ALS ASSOCIATION-GREATER SACRAMENTO CHAPTER
2717 COTTAGE WAY SUITE 8	SACRAMENTO	CA	95825	680152992	501(C)3	$10,000	OUTREACH GRANT-CHAPTER RESEARCH AMBASSADOR TRAINING
THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER
11725 INDUSTRIPLEX BLVD SUITE 3	BATON ROUGE	LA	708095190	201742120	501(C)3	$8,000	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
685 CANTON STREET SUITE 103	NORWOOD	MA	02062	043085718	501(C)3	$100,000	ASSISTIVE TECHNOLOGY GRANT REGIONAL OUTREACH PROGRAM
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
685 CANTON STREET SUITE 103	NORWOOD	MA	02062	043085718	501(C)3	$831,629	PETE FRATES HOME HEALTH INITIATIVE GRANTS
THE ALS ASSOCIATION-MID AMERICA CHAPTER
6950 SQUIBB ROAD STE 210	MISSION	KS	66202	481021611	501(C)3	$15,000	HEART TO HEART GRANT 2017
THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER
10855 DOVER ST SUITE 500	WESTMINSTER	CO	80021	841337868	501(C)3	$40,000	CHAPTER SUPPORT GRANT
THE ALS ASSOCIATION-TEXAS CHAPTER
5830 GRANITE PWKY 100-320	PLANO	TX	75024	742678974	501(C)3	$84,162	DISASTER RELIEF FUND GRANT
THE ALS THERAPY DEVELOPMENT INSTITUTE
300 TECHNOLOGY SQUARE	CAMBRIDGE	MA	02139	043462719	501(C)3	$200,000	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
THE CURATORS OF THE UNIVERSITY OF MISSOURI
UNIVERSITY OF MISSOURI AR	KANSAS CITY	MO	64180	436003859	501(C)3	$78,879	TRADITIONAL INVESTIGATOR INITIATED
THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE	ATLANTA	GA	30329	582030692	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DR	LEBANON	NH	037560001	020222139	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE HITCHCOCK FOUNDATION
C/O DEPT OF NEUROLOGY ATTENTION	LEBANON	NH	03756	020222139	501(C)3	$12,500	NNE ALS CENTER GRANT	KEVIN WILLIAMS ONE MEDICAL CENTER D
THE J DAVID GLADSTONE INSTITUTE
VINCENT MOSELEY	SAN FRANCISCO	CA	94158	237203666	501(C)3	$500,000	STRATEGIC INITIATIVE
THE MEDICAL COLLEGE OF WISCONSIN INC
9200 W WISCONSIN AVE	MILWAUKEE	WI	53226	390806261	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE NORTHEAST ALS CONSORTIUM (NEALS)
165 CAMBRIDGE STREET	BOSTON	MA	02114	562547779	501(C)3	$53,045	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	346401599	501(C)3	$257,508	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
THE PENNSYLVANIA STATE UNIV
ATTN TRESSA JILEK COLLEGE OF	HERSHEY	PA	17033	246000376	501(C)3	$99,739	CLINICAL MANAGEMENT	MEDICINE CONTROLLERS OFFICE G230 50
THE PENNSYLVANIA STATE UNIV
TRESSA JILEK COLLEGE OF MEDICINE	HERSHEY	PA	17033	246000376	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED	CONTROLLERS OFFICE G230 500 UNIVERS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
9500 GILMAN DR	LA JOLLA	CA	920935004	956006144	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
900 GILMAN DRIVE MC 0954	LA JOLLA	CA	92093	946036493	501(C)3	$47,250	DRUG DEVELOPMENT CONTRACT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
UCSF CONTROLLERS OFFICE CONTRACTS	SAN FRANCISCO	CA	94143	946036493	501(C)3	$100,000	TRADITIONAL INVESTIGATOR INITIATED	AND GRANTS ACCOUNTING
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	PITTSBURGH	PA	15251	386006309	501(C)3	$50,000	CLINICAL MANAGEMENT AWARD
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	48109	386006309	501(C)3	$190,128	TRADITIONAL INVESTIGATOR INITIATED
THE RESEARCH FOUNDATION OF SUNY
750 E ADAMS ST	SYRACUSE	NY	13210	141368361	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 W 168TH ST 49	NEW YORK	NY	100323725	135598093	501(C)3	$294,672	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
SPONSORED PROJECTS FINANCE	NEW YORK	NY	10087	135598093	501(C)3	$100,000	TRADITIONAL INVESTIGATOR INITIATED
THE UNIVERSITY OF CHICAGO
5841 S MARYLAND AVE DEPT OF	CHICAGO	IL	60637	362177139	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT
THE UNIVERSITY OF CHICAGO
MICHAEL LUDWIG	CHICAGO	IL	60637	362177139	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED
THE UNIVERSITY OF CHICAGO MEDICINE
5235 S HARPER CT 4TH FLOOR	CHICAGO	IL	60615	362177139	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE UNIVERSITY OF VERMONT
UNIVERSITY EVENT SERVICES ATTN	BURLINGTON	VT	05405	030179440	501(C)3	$25,000	NNE ALS CENTER GRANT	RENEE BOURASSA THE VILLA 220 COLCHE
THERA NEUROPHARMA
538 NEWTOWN ROAD	BERWYN	PA	19312	812014147	501(C)3	$75,000	INVESTIGATOR INITIATED AWARD
TRANSLATIONAL GENOMICS RESEARCH INSTITUTE
445 N FIFTH STREET	PHOENIX	AZ	85004	753065445	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3600 SPRUCE STREET MALONEY BUILDING	PHILADELPHIA	PA	19107	231352685	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD	3RD FLOOR
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
PO BOX 785541	PHILADELPHIA	PA	19178	231352685	501(C)3	$14,743	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
OFFICE OF RESEARCH SERVICES	PHILADELPHIA	PA	19104	231352685	501(C)3	$40,000	TRADITIONAL INVESTIGATOR INITIATED
UC DAVIS MULTIDISCIPLINARY ALS CLINIC
ONE SHIELDS AVE	DAVIS	CA	95616	946036494	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UC DAVIS MULTIDISCIPLINARY ALS CLINIC
4860 Y ST	SACRAMENTO	CA	95817	946036494	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIV OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DR MSC 7883	SAN ANTONIO	TX	782293900	741586031	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF CALIFORNIA SAN DIEGO
CASHIERS OFFICE 9500 GILMAN DRIVE	LA JOLLA	CA	92093	956006144	501(C)3	$50,000	POSTDOCTORAL FELLOWSHIP	MC 0009
UNIVERSITY OF CALIFORNIA SAN DIEGO
CASHIERS OFFICE 9500 GILMAN DRIVE	LA JOLLA	CA	92093	956006144	501(C)3	$180,000	TRADITIONAL INVESTIGATOR INITIATED	MC 0009
UNIVERSITY OF COLORADO DENVER
MS F428 AMC BLDG 500 13001 E 17TH	AURORA	CO	80045	846000555	501(C)3	$25,000	TRADITIONAL INVESTIGATOR INITIATED	PL RM W1124
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
123 GRINTER HALL PO BOX 113001	GAINESVILLE	FL	32611	596002052	501(C)3	$99,973	CLINICAL MANAGEMENT
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
CONTRACTS GRANTS	GAINESVILLE	FL	32611	596002052	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
CONTRACTS GRANTS	GAINESVILLE	FL	32611	596002052	501(C)3	$125,000	TRADITIONAL INVESTIGATOR INITIATED
UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC
1801 W TAYLOR ST SUITE 4E	CHICAGO	IL	60612	376000511	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF KENTUCKY
740 SOUTH LIMESTONE ST	LEXINGTON	KY	40536	616001218	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MARYLAND BALTIMORE
110 SOUTH PACA ST 3RD FLOOR	BALTIMORE	MD	21202	526002033	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOOR	BALTIMORE	MD	21208	526002033	501(C)3	$50,000	TRADITIONAL INVESTIGATOR INITIATED
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF THE BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$425,000	ALS ONE
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
YI CHEN BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
JANICE LAGACE	WORCESTER	MA	01655	043167352	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
YI CHEN BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$234,839	LOU GEHRIG CHALLENGE ALS ASSOC INITIATED
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF THE BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$150,000	POSTDOCTORAL FELLOWSHIP
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF THE BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$604,326	STRATEGIC INITIATIVE
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
YI CHEN BURSAR	WORCESTER	MA	01655	043167352	501(C)3	$90,000	TRADITIONAL INVESTIGATOR INITIATED
UNIVERSITY OF MIAMI
1120 NW 14TH ST SUITE 1318	MIAMI	FL	33136	592579826	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MIAMI
P O BOX 405803	ATLANTA	GA	30384	592579826	501(C)3	$100,000	TREAT ALS
UNIVERSITY OF MICHIGAN ALS CLINIC
1500 E MEDICAL CENTER DR	ANN ARBOR	MI	48109	386006309	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF MINNESOTA
NW 5957 P O BOX 1450	MINNEAPOLIS	MN	55485	416007513	501(C)3	$33,598	CLINICAL MANAGEMENT AWARD
UNIVERSITY OF MINNESOTA FOUNDATION
PO BOX 860266	MINNEAPOLIS	MN	554860266	416042488	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF PITTSBURGH
OFFICE OF RESEARCH 123 UNIVERSITY	PITTSBURGH	PA	15213	125096559	501(C)3	$25,000	POSTDOCTORAL FELLOWSHIP	PLACE B21
UNIVERSITY OF PITTSBURGH
OFFICE OF RESEARCH 123 UNIVERSITY	PITTSBURGH	PA	15213	125096559	501(C)3	$25,000	STRATEGIC INITIATIVE	PLACE B21
UNIVERSITY OF ROCHESTER
UNIVERSITY OF ROCHESTER MEDICAL	ROCHESTER	NY	14642	160743209	501(C)3	$56,310	STRATEGIC INITIATIVE	CENTER
UNIVERSITY OF ROCHESTER
ATTN CHERYL WILLIAMS SR RES ADMIN	ROCHESTER	NY	14627	160743209	501(C)3	$80,000	TRADITIONAL INVESTIGATOR INITIATED
UNIVERSITY OF SOUTHERN CALIFORNIA
3720 SOUTH FLOWER STREET	LOS ANGELES	CA	90089	951642394	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
UNIVERSITY OF VERMONT MEDICAL CENTER
1 SOUTH PROSPECT ST	BURLINGTON	VT	05401	030219309	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF WASHINGTON
GRANT AND CONTRACT ACCOUNTING	CHICAGO	IL	606930001	916001537	501(C)3	$25,000	TREAT ALS
UNIVERSITY OF WISCONSIN-MILWAUKEE
BOARD OF REGENTS OF UNIVERSITY OF	MILWAUKEE	WI	53201	396006492	501(C)3	$22,500	YOUTH EDUCATIONAL MATERIALS GRANT	WISCONSIN SYSTEM PO BOX 500
VA PUGET SOUND HEALTH CARE SYSTEM
1660 SOUTH COLUMBIAN WAY	SEATTLE	WA	98108	741612229	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
VOYAGER THERAPEUTICS INC
75 SIDNEY STREET	CAMBRIDGE	MA	02139	463003182	501(C)3	$194,236	CLINICAL MANAGEMENT
WAKE FOREST BAPTIST MEDICAL CENTER
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571078	223849199	501(C)3	$25,000	ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
WASHINGTON UNIVERSITY IN ST LOUIS
CAMPUS BOX 1034 700 ROSEDALE AVENUE	ST LOUIS	MO	63112	430653611	501(C)3	$250,000	ALS ACT	AVENUE
WASHINGTON UNIVERSITY IN ST LOUIS
CAMPUS BOX 1034 700 ROSEDALE AVENUE	ST LOUIS	MO	63112	430653611	501(C)3	$77,750	DRUG DEVELOPMENT CONTRACT	AVENUE
WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE CAMPUS BOX 1056	SAINT LOUIS	MO	631121408	430653611	501(C)3	$25,000	INVESTIGATOR INITIATED AWARD
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
575 LEXINGTON AVENUE	NEW YORK	NY	10022	133376695	501(C)3	$39,785	TRADITIONAL INVESTIGATOR INITIATED

Field	Value	IRS element (for citing)
Total501c3 Org	184	Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	DURABLE MEDICAL EQUIPMENT	GrantTypeTxt
Recipient	5	RecipientCnt
Non Cash Assistance	$10,074	NonCashAssistanceAmt
Valuation Method Used	FMV	ValuationMethodUsedDesc
Non Cash Assistance	WHEELCHAIR POWER LIFT SEATS	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Substantiation Required	Yes (1)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
CALANEET BALAS
CEO (12/4/17)	$208,761	$0	$0	$0	$0	$0	$6,680	$0	$7,705	$0	$223,146	$0	$0	$0
BARBARA NEWHOUSE
PRESIDENT/CEO (UNTIL 12/4/17)	$297,371	$0	$5,945	$0	$0	$0	$11,514	$0	$8,349	$0	$323,179	$0	$0	$0
GREGORY MITCHELL
EXECUTIVE VP, FINANCE & ADMINISTRATI	$218,987	$0	$0	$0	$0	$0	$6,481	$0	$0	$0	$225,468	$0	$0	$0
LANCE SLAUGHTER
EXECUTIVE VP, CHAPTER RELATIONS & GO	$199,203	$0	$0	$0	$0	$0	$6,322	$0	$13,168	$0	$218,693	$0	$0	$0
BRIAN FREDERICK
EXECUTIVE VP, COMMUNICATION & DEVELO	$186,022	$0	$0	$0	$0	$0	$5,842	$0	$1,417	$0	$193,281	$0	$0	$0
KIMBERLY HARDING-MAGINNIS
SENIOR VP, CARE SERVICES	$176,961	$0	$0	$0	$0	$0	$5,439	$0	$7,670	$0	$190,070	$0	$0	$0
KATHLEEN SHEEHAN
VP. PUBLIC POLICY & ADVOCACY	$156,464	$0	$0	$0	$0	$0	$4,760	$0	$10,060	$0	$171,284	$0	$0	$0
MARY BRUNEY
VP, CHAPTER RELATIONS	$144,539	$0	$0	$0	$0	$0	$4,448	$0	$7,327	$0	$156,314	$0	$0	$0
TERESSA HARRIS
VP, FINANCE	$140,656	$0	$0	$0	$0	$0	$4,391	$0	$12,533	$0	$157,580	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 3	FormAndLineReferenceDesc
Explanation	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT.	ExplanationTxt

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	156	ContributionCnt
Noncash Contributions Rpt F990	$84,022	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	12	ContributionCnt
Noncash Contributions Rpt F990	$79,257	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG HIGH/LOW AT DATE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	0	Form8283ReceivedCnt
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, COLUMN (B):	THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTORS FOR STOCK AND NUMBER OF ITEMS FOR THE CAR PROGRAM.
PART I, LINE 32B:	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1	THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING.
FORM 990, PART VI, SECTION B, LINE 11B	THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.
FORM 990, PART XI, LINE 9:	CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS 78,023.