2018-06-12T12:07:04-05:00 2018-01-31 410746749 CLIFTONLARSONALLEN LLP 901 N GLEBE ROAD SUITE 200 ARLINGTON VA 22203 990 2017-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW WASHINGTON DC 20005 GREGORY MITCHELL EXEC VP, FINANCE & ADMIN 2024078580 2018-06-12 1 HEMALI PATEL P01337292 5712279500 2017 2022-09-23 18:48:47Z THE ALS ASSOCIATION CALANEET BALAS 1275 K STREET NW WASHINGTON DC 20005 36510448 0 4119 X WWW.ALSA.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 23 23 102 26 0 0 27407957 23216448 100392 72600 3380924 1546338 -10206 -165651 30879067 24669735 18551544 22156243 0 0 7901975 7936521 345000 290500 4257115 8176211 7434947 34974730 37818211 -4095663 -13148476 110397924 99633005 5929328 3185115 104468596 96447890 X THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 19224349 18536701 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2018, RESEARCH GRANTS WERE $18,536,701. THIS LEVEL OF SPENDING IS MADE POSSIBLE WITH THE HELP OF FUNDING FROM THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT TOOK PLACE IN THE SUMMER OF 2014, THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS, AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. THE ASSOCIATION'S GOAL IS TO FURTHER INCREASE RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH. 9291687 3617339 PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH 'OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE. 3025301 2203 72600 PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2018, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. THE ASSOCIATION ALSO WORKED TO DRAFT AN FDA GUIDANCE DOCUMENT FOR ALS DRUG DEVELOPMENT. 31541337 1 0 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 48 0 102 1 0 0 0 0 0 1 1 0 0 0 1 0 X 23 23 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT WA WV WI NM X X GREGORY MITCHELL 2024078580 1275 K STREET NW SUITE 250 WASHINGTON DC 20005 CAMERON WARD JD TRUSTEE 2.00 X 0 0 0 CHARLES J ROBINSON DSC PE TRUSTEE 2.00 X 0 0 0 CHRISTI KOLARICK PHD TRUSTEE 2.00 X 0 0 0 CONNIE HOUSTON TRUSTEE 2.00 X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 ELLYN C PHILLIPS SECRETARY 4.00 X X 0 0 0 FRED DEGRANDIS TRUSTEE 2.00 X 0 0 0 JOHN P KRAVE TRUSTEE 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 LAWRENCE R BARNETT ESQ TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 2.00 X 0 0 0 MARK CALMES TRUSTEE 2.00 X 0 0 0 MARK STANCIL TREASURER 4.00 X X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 NANCY FRATES TRUSTEE 2.00 X 0 0 0 SCOTT KAUFFMAN TRUSTEE 2.00 X 0 0 0 STEPHEN WINTHROP CHAIRMAN 5.00 X X 0 0 0 STUART OBERMANN TRUSTEE 2.00 X 0 0 0 SUE GORMAN VICE CHAIRMAN 5.00 X X 0 0 0 THOMAS D KETTLER TRUSTEE 2.00 X 0 0 0 TOM CARROLL TRUSTEE 2.00 X 0 0 0 WARREN NELSON TRUSTEE 2.00 X 0 0 0 WILLIAM SOFFEL TRUSTEE 2.00 X 0 0 0 WILLIAM THOET TRUSTEE 2.00 X 0 0 0 CALANEET BALAS CEO (12/4/17) 37.50 X 208761 0 14385 BARBARA NEWHOUSE PRESIDENT/CEO (UNTIL 12/4/17) 37.50 X 303316 0 19863 GREGORY MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATION 37.50 X 218987 0 6481 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GOVERNANCE 37.50 X 199203 0 19490 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION & DEVELOPMENT 37.50 X 186022 0 7259 KIMBERLY HARDING-MAGINNIS SENIOR VP, CARE SERVICES 37.50 X 176961 0 13109 KATHLEEN SHEEHAN VP. PUBLIC POLICY & ADVOCACY 37.50 X 156464 0 14820 MARY BRUNEY VP, CHAPTER RELATIONS 37.50 X 144539 0 11775 TERESSA HARRIS VP, FINANCE 37.50 X 140656 0 16924 MONICA SANTA CRUZ VP, HUMAN RESOURCES & TALENT MANAGEMENT 37.50 X 136543 0 5315 TINA ZEFF VP, DEVELOPMENT 37.50 X 124446 0 19113 STEPHEN GOEWEY VP, COMMUNICATIONS 37.50 X 104888 0 4238 2100786 0 152772 12 0 1 0 NNE MARKETING 1666 MASSACHUSETTS AVENUE SUITE 14 LEXINGTON MA 02420 DIRECT MARKETING SERVICES 290500 LUCIE BRUIJN PO BOX 670236 CHUGIAK AK 99567 SCIENTIFIC OFFICER RESEARCH OVERSIGHT 290000 MCDERMOTT WILL & EMERY PO BOX 6043 CHICAGO IL 60680 ATTORNEY SERVICES 165920 FAEGRE BAKER DANIELS LLP 1050 K STREET NW SUITE 400 WASHINGTON DC 20001 CONSULTANT CDC GRANT & PUBLIC POLICY SER 131462 BURKE WILLIAMS SORENSEN LLP 444 SOUTH FLOWER STREET SUITE 400 LOS ANGELES CA 90071 ATTORNEY SERVICES 127405 7 196078 1177565 370724 21472081 163279 23216448 CONFERENCE FEES 900099 72600 72600 72600 2156702 2156702 11021051 11631415 -610364 -610364 -610364 0 1177565 209298 -209298 -209298 43647 43647 43647 24669735 72600 0 1380687 20208512 20208512 10074 10074 1937657 1937657 1545120 993393 479423 72304 5339070 3512111 270486 1556473 129720 87598 1779 40343 403269 269414 24571 109284 519342 339485 55546 124311 193321 40545 152776 39959 39959 290500 290500 2907442 1392686 39760 1474996 598108 574673 878 22557 294566 155788 93392 45386 192396 192396 737037 479567 73313 184157 1584039 1176078 228756 179205 193426 119143 37380 36903 TELECOMMUNICATIONS 247775 198185 16861 32729 CREDIT CARD & DATA FEES 214123 46428 88109 79586 CHAPTER SUPPORT 148564 140183 8381 BAD DEBT EXPENSE 84191 84191 37818211 31541337 2019759 4257115 X 8646096 5250358 839878 520372 7563559 5417228 284689 98291 161555 27479 967613 841424 256867 126189 88965198 84273526 3680082 3919562 110397924 99633005 1516343 2077642 3453065 174741 959920 932732 5929328 3185115 X 82712789 83168855 20794826 12271237 960981 1007798 104468596 96447890 110397924 99633005 X -13148476 5049747 78023 X 0 1 X 1 0 X 23550946 137917563 23487328 27407957 23216448 235580242 23550946 137917563 23487328 27407957 23216448 235580242 902467 234677775 179732 221293 1466148 2633793 2156702 6657668 15926 29343 2042 47788 43647 138746 242376656 450528 0.96820 0.97540 X 15724 0 450757 466481 0 37351730 37818211 0 1000000 0 250000 0 0 0 1000000 1000000 1000000 1000000 4000000 6000000 422780 546049 529987 466481 1965297 250000 250000 250000 250000 1000000 1500000 53629 48109 33626 15724 151088 6516315 482577 482577 6516315 6333662 386180 203527 6516315 6516315 -182653 6333662 5990000 526315 313081 313081 6516315 240000 5750000 21965 21965 5990000 0.03680 0.96320 0 0 146535 117705 28830 424776 337918 86858 396302 385801 10501 126189 ANNUITY PAYMENT LIABILITY 851460 DEFERRED RENT 81272 932732 X 29797505 5049747 78023 5127770 24669735 0 24669735 37818211 0 37818211 0 37818211 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 46,817. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 31,206. 1 EUROPE 0 0 GRANTS RESEARCH 1361833 NORTH AMERICA 0 0 GRANTS RESEARCH 495734 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 30000 SOUTH AMERICA 0 0 GRANTS RESEARCH 50000 0 0 0 0 0 0 1937567 0 1937567 EUROPE TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 119094 CHECK & WIRE TRANSFER EUROPE POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 25000 CHECK & WIRE TRANSFER EUROPE STRATEGIC CHALLENGE RESEARCH GRANTS 300000 CHECK & WIRE TRANSFER SOUTH AMERICA POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 50000 CHECK & WIRE TRANSFER EUROPE STRATEGIC INITIATIVE RESEARCH GRANTS 95626 CHECK & WIRE TRANSFER EAST ASIA & THE PACIFIC STRATEGIC INITIATIVE RESEARCH GRANTS 30000 CHECK & WIRE TRANSFER NORTH AMERICA LOU GEHRIG CHALLENGE ALS ASSOC INITIATED RESEARCH GRANTS 247523 CHECK & WIRE TRANSFER NORTH AMERICA TREAT ALS 248211 CHECK & WIRE TRANSFER EUROPE DRUG DEVELOPMENT CONTRACT 33333 CHECK & WIRE TRANSFER EUROPE CLINICAL MANAGEMENT 150000 CHECK & WIRE TRANSFER EUROPE INVESTIGATOR INITIATED AWARD 100000 CHECK & WIRE TRANSFER EUROPE CLINICAL PILOT TRIAL 468780 CHECK & WIRE TRANSFER EUROPE CREATE 30000 CHECK & WIRE TRANSFER 14 0 0 0 0 0 0 PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. X X X X X X X 1 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 FUNDRAISING COUNSEL 0 3572889 290500 3282389 3572889 290500 3282389 CA AL AK AR CO DE DC FL GA HI KS KY LA ME MD MA MI MN MS NH NJ NM NV NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI WALK MI - DETROIT, MI 171384 171384 18172 150 6099 GREENVILLE POLO CLASSIC 137754 137754 100368 156 16 868427 868427 21936 658 600 61159 1177565 1177565 140476 658 750 67414 209298 -209298 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP 200 JEFFERSON AVE SE GRAND RAPIDS MI 49503 272491974 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHANY HEALTH NETWORK 320 E NORTH AVE PITTSBURGH PA 15212 251320493 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHENY SINGER RESEARCH INSTITUTE 320 EAST NORTH AVE PITTSBURGH PA 15212 251320493 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALS CENTER AT MAYO CLINIC ARIZONA 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 860800150 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 86667 CLINICAL RESEARCH TRAINING FELLOWSHIP AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 53333 CLINICIAN SCIENTIST DEVELOPMENT AWARD AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVE MINNEAPOLIS MN 554151126 410726167 501(C)3 50000 SHEILA ESSEY AWARD AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 145000 TREAT ALS CLINICAL SCIENTIST AMYLYX PHARMACEUTICALS INC 210 BROADWAY NO 201 CAMBRIDGE MA 02139 464600503 501(C)3 450000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED BALL STATE UNIVERSITY 2000 W UNIVERSITY AVE IN 47304 MUNICE IN 47304 356000221 501(C)3 25000 INVESTIGATOR INITIATED AWARD BAYLOR COLLEGE OF MEDICINE 7200 CAMBRIDGE ST SUITE 9A HOUSTON TX 770304202 741613878 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)3 49366 INVESTIGATOR INITIATED AWARD BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)3 145000 TRADITIONAL INVESTIGATOR INITIATED BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 UNIVERSITY OF WISCONSIN MILWAUKEE WI 53201 391805963 501(C)3 15000 OUTREACH GRANT BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 UNIVERSITY OF WISCONSIN MILWAUKEE WI 53201 391805963 501(C)3 7500 YOUTH EDUCATIONAL MATERIALS GRANT CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 90048 951644600 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 900481865 951644600 501(C)3 140800 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED CEDARS-SINAI MEDICAL CENTER 8700 BEVERLY BLVD LOS ANGELES CA 900481865 951644600 501(C)3 500000 STRATEGIC INITIATIVE CHELSEA JEWISH LIFECARE INC 165 CAPTAINS ROW CHELSEA MA 02150 510141617 501(C)3 15000 OUTREACH GRANT CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02215 042774441 501(C)3 150000 PRESERVE A VOICE, PROTECT A LEGACY CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVE CLEVELAND OH 44195 340714585 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 441950001 340714585 501(C)3 79537 TRADITIONAL INVESTIGATOR INITIATED COMMUNITY FOUNDATION OF GREATER HUNTSVILLE PO BOX 332 HUNTSVILLE AL 35804 263750673 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT CYTOKINETICS INC 280 E GRAND AVE STE 1 SOUTH SAN FRANCISCO CA 940804808 943291317 501(C)3 800000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED DANA-FARBER CANCER INSTITUTE INC 450 BROOKLINE AVENUE BP331 BOSTON MA 02215 042263040 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED DARTMOUTH COLLEGE 11 ROPE FERRY ROAD HANOVER NH 03755 020222111 501(C)3 50000 INVESTIGATOR INITIATED AWARD DARTMOUTH HITCHCOCK FOUNDATION LEBANON CLINIC ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)3 12500 NNE ALS CENTER GRANT DIGNITY HEALTH ST JOSEPH'S HOSPITAL & MEDICAL CENTER ST JOSEPHS HOSPITAL AZ FILE 57431 LOS ANGELES CA 90074 860096787 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ DIGNITY HEALTH-ST JOSEPHS HOSPITAL AZ LOS ANGELES CA 90074 860096787 501(C)3 87150 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ 350 WEST THOMAS ROAD PHOENIX AZ 85013 860096787 501(C)3 105000 TRADITIONAL INVESTIGATOR INITIATED DIGNITY HEALTH-ST JOSEPH'S HOSPITAL AZ 3033 NORTH THIRD AVE PHOENIX AZ 85013 860096787 501(C)3 678308 TREAT ALS DREXEL UNIVERSITY TD BANK P O BOX 95000-1090 PHILADELPHIA PA 19195 231352630 501(C)3 -32259 TRADITIONAL INVESTIGATOR INITIATED DUKE UNIVERSITY DUMC BOX 2900 DURHAM NC 27710 560532129 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT EMORY UNIVERSITY 1784 N DECATUR RD NE ATLANTA GA 303221048 580566256 501(C)3 102489 STRATEGIC INITIATIVE EMORY UNIVERSITY 1784 N DECATUR RD NE ATLANTA GA 303221048 580566256 501(C)3 62329 TRADITIONAL INVESTIGATOR INITIATED FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 942728423 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GEORGIA HEALTH SCIENCES FOUNDATION INC 1120 15TH ST FL-1047 AUGUSTA GA 30912 352310573 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GREENVILLE HEALTH SYSTEMS 300 EAST MCBEE AVE SUITE 503 GREENVILLE SC 296012842 811723202 501(C)3 9000 SC ALS CENTER GRANT HENNEPIN COUNTY MEDICAL CENTER (HCMC) 701 PARK AVE MINNEAPOLIS MN 55415 381357020 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENRY FORD HEALTH SYSTEM 2799 WEST GRAND BLVD DETROIT MI 482022689 381357020 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOPE LOVES COMPANY INC C/O JODI ODONNELL-AMES P O BOX 931 PENNINGTON NJ 08534 208418402 501(C)3 50000 CHILDREN'S CAMP OUTREACH GRANT HOSPITAL FOR SPECIAL CARE 2150 CORBIN AVE NEW BRITAIN CT 06053 060646766 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOSPITAL FOR SPECIAL SURGERY 535 EAST 70TH ST NEW YORK NY 10021 131624135 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HOUSTON METHODIST HOSPITAL FOUNDATION 6565 FANNIN ST 802 HOUSTON TX 77030 760094743 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT INDIANA UNIVERSITY 355 WEST 16TH ST INDIANAPOLIS IN 46202 356001673 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT IZUMI BIOSCIENCES INC 23 BLUEBERRY LN SUITE 100 LEXINGTON MA 02420 472572265 501(C)3 50000 DRUG DEVELOPMENT CONTRACT JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)3 580000 DRUG DEVELOPMENT CONTRACT JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)3 100000 INVESTIGATOR INITIATED AWARD JOHNS HOPKINS UNIVERSITY 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 501(C)3 519913 TRADITIONAL INVESTIGATOR INITIATED KU ENDOWMENT ASSOCIATION 3901 RAINBOW BLVD KANSAS CITY KS 66160 480547734 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC 41 MALL RD BURLINGTON MA 01805 042704683 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LANKENAU INSTITUTE FOR MEDICAL RESEARCH 100 LANCASTER AVENUE WYNNEWOOD PA 19096 232175659 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO 433 BOLIVAR STREET 8TH FLOOR NEW ORLEANS LA 70112 720702002 501(C)3 50000 INVESTIGATOR INITIATED AWARD LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO 433 BOLIVAR STREET 8TH FLOOR NEW ORLEANS LA 70112 720702002 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED LUDWIG INSTITUTE FOR CANCER RESEARCH 3262 HOLIDAY COURT STE 201 LA JOLLA CA 92037 237121131 501(C)3 50000 INVESTIGATOR INITIATED AWARD LUDWIG INSTITUTE FOR CANCER RESEARCH 3262 HOLIDAY COURT STE 201 LA JOLLA CA 92037 237121131 501(C)3 530000 STRATEGIC INITIATIVE LUDWIG INSTITUTE FOR CANCER RESEARCH 3262 HOLIDAY COURT STE 201 LA JOLLA CA 92093 237121131 501(C)3 50000 POSTDOCTORAL FELLOWSHIP MARY HITCHCOCK MEMORIAL HOSPITAL ONE MEDIVAL CENTER DRIVE LEBANON NH 03756 020222140 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 042697983 501(C)3 425000 ALS ONE MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 50000 CLINICAL MANAGEMENT MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 042697983 501(C)3 559697 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 CHARLESTOWN MA 02129 042697983 501(C)3 50000 POSTDOCTORAL FELLOWSHIP MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 042697983 501(C)3 1096507 TREAT ALS MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVE ROOM NE49-3000 NE49-3000 CAMBRIDGE MA 02139 042103594 501(C)3 25000 INVESTIGATOR INITIATED AWARD MAYO CLINIC - ALS CLINIC NEUROLOGY 13400 E SHEA BLVD SCOTTSDALE AZ 85259 860800150 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO CLINIC FLORIDA 4500 SAN PABLO RD S JACKSONVILLE FL 322241865 593337028 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 25000 INVESTIGATOR INITIATED AWARD MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 45542 POSTDOCTORAL FELLOWSHIP MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 237671 TRADITIONAL INVESTIGATOR INITIATED MAYO MEDICAL CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MAYO MEDICAL CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MEDICAL FACULTY ASSOCIATES- NEUROLOGY DEPARTMENT 2150 PENNSYLVANIA AVE NW WASHINGTON DC 20037 522220700 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT MEDICAL UNIVERSITY HOSPITAL AUTHORITY 169 ASHLEY AVE CHARLESTON SC 29425 571098556 501(C)3 24859 OUTREACH GRANT MEDICAL UNIVERSITY OF SOUTH CAROLINA 19 HAGOOD AVENUE SUITE 606 CHARLESTON SC 29403 576000722 501(C)3 25000 INVESTIGATOR INITIATED AWARD MOUNT SINAI HEALTH SYSTEM ONE GUSTAVE L LEVY PLACE NEW YORK NY 10029 135564934 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS 31 CENTER DRIVE MSC 2540 BETHESDA MD 208922540 520858115 501(C)3 550000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED NEBRASKA MEDICINE 988440 NEBRASKA MEDICINE OMAHA NE 681988440 911858433 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT NEUROLOGY ASSOCIATES OF STONY BROOK HSC LEVEL 12 ROOM 020 STONY BROOK NY 117948121 112587430 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT NORTHEASTERN UNIVERSITY 360 HUNTINGTON AVE BOSTON MA 021155000 041679980 501(C)3 50000 INVESTIGATOR INITIATED AWARD NORTHWESTERN UNIVERSITY 750 NORTH LAKE SHORE DRIVE CHICAGO IL 60611 362167817 501(C)3 160000 TRADITIONAL INVESTIGATOR INITIATED OPTIKIRA LLC 20600 CHAGRIN BLVD SUITE 210 CLEVELAND OH 44122 472271820 501(C)3 498500 DRUG DEVELOPMENT CONTRACT OREGON STATE UNIVERSITY 312 KERR ADMINISTRATION BUILDING CORVALLIS OR 97331 481278540 501(C)3 150000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED ORIGENT DATA SCIENCES INC 8245 BOONE BLVD VIENNA VA 22182 383916182 501(C)3 150000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED ORIGENT DATA SCIENCES INC 8245 BOONE BLVD VIENNA VA 22182 383916182 501(C)3 45000 TRADITIONAL INVESTIGATOR INITIATED PENN STATE HERSHEY MEDICAL CENTER 30 HOPE DR HERSHEY PA 17033 246000376 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PISON TECHNOLOGY INC 258 HARVARD STREET BROOKLINE MA 02446 813603539 501(C)3 100000 STRATEGIC CHALLENGE PRESIDENT AND FELLOWS OF HARVARD COLLEGE 1350 MASSACHUSETTS AVENUE 6TH FLOOR FLOOR CAMBRIDGE MA 02138 042103580 501(C)3 137500 INVESTIGATOR INITIATED AWARD PRESIDENT AND FELLOWS OF HARVARD COLLEGE 1350 MASSACHUSETTS AVENUE 6TH FLOOR FLOOR CAMBRIDGE MA 02138 042103580 501(C)3 100000 TRADITIONAL INVESTIGATOR INITIATED PRIZE4LIFE INC PO BOX 5755 BERKELEY CA 94705 205055664 501(C)3 108500 TREAT ALS PROVIDENCE HEALTH & SERVICES-OREGON PO BOX 5977 PORTLAND OR 972285977 930386929 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT REGENTS OF THE UNIVERSITY OF CALIFORINA (200 S MANCHESTER) 200 S MANCHESTER ORAGNE CA 92868 952226406 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS 1855 FOLSOM ST MCB 425 BOX 0897 SAN FRANCISCO CA 94143 946036494 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT RICHARD BEDLACK 9 LOGGING TRAIL DURHAM NC 27707 049543372 501(C)3 60000 CLINICAL MANAGEMENT ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL FOUNDATION 10 PLUM ST NEW BRUNSWICK NJ 08901 201785267 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SCRIPPS FLORIDA 130 SCRIPPS WAY JUPITER FL 33458 330435954 501(C)3 25000 POSTDOCTORAL FELLOWSHIP ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MAIL STOP 733 MEMPHIS TN 38105 620646012 501(C)3 50000 INVESTIGATOR INITIATED AWARD ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MAIL STOP 733 MEMPHIS TN 38105 620646012 501(C)3 167187 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MAIL STOP 733 MEMPHIS TN 38105 620646012 501(C)3 25000 POSTDOCTORAL FELLOWSHIP ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MAIL STOP 733 MEMPHIS TN 381480949 620646012 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED ST LOUIS UNIVERSITY 1438 SOUTH GRAND BLVD ST LOUIS MO 63104 430654872 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT STANFORD UNIVERSITY P O BOX 44253 SAN FRANCISCO CA 94144 941156365 501(C)3 125000 POSTDOCTORAL FELLOWSHIP SWEDISH NEUROSCIENCE INSTITUTE 550 17TH AVE SUITE 400 SEATLE WA 98122 912073120 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SYRACUSE UNIVERSITY BURSARS OFFICE SYRACUSE NY 13244 150532081 501(C)3 50000 INVESTIGATOR INITIATED AWARD SYRACUSE UNIVERSITY BURSARS OFFICE SYRACUSE NY 13244 150532081 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED TACONIC BIOSCIENCES INC 273 HOVER AVE GERMANTOWN NY 125265320 141381104 501(C)3 93692 STRATEGIC INITIATIVE THE ALS ASSOCIATION-FLORIDA CHAPTER 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 943124732 501(C)3 54619 DISASTER RELIEF FUND GRANT THE ALS ASSOCIATION-GREATER SACRAMENTO CHAPTER 2717 COTTAGE WAY SUITE 8 SACRAMENTO CA 95825 680152992 501(C)3 10000 OUTREACH GRANT-CHAPTER RESEARCH AMBASSADOR TRAINING THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER 11725 INDUSTRIPLEX BLVD SUITE 3 BATON ROUGE LA 708095190 201742120 501(C)3 8000 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER 685 CANTON STREET SUITE 103 NORWOOD MA 02062 043085718 501(C)3 100000 ASSISTIVE TECHNOLOGY GRANT REGIONAL OUTREACH PROGRAM THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER 685 CANTON STREET SUITE 103 NORWOOD MA 02062 043085718 501(C)3 831629 PETE FRATES HOME HEALTH INITIATIVE GRANTS THE ALS ASSOCIATION-MID AMERICA CHAPTER 6950 SQUIBB ROAD STE 210 MISSION KS 66202 481021611 501(C)3 15000 HEART TO HEART GRANT 2017 THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER 10855 DOVER ST SUITE 500 WESTMINSTER CO 80021 841337868 501(C)3 40000 CHAPTER SUPPORT GRANT THE ALS ASSOCIATION-TEXAS CHAPTER 5830 GRANITE PWKY 100-320 PLANO TX 75024 742678974 501(C)3 84162 DISASTER RELIEF FUND GRANT THE ALS THERAPY DEVELOPMENT INSTITUTE 300 TECHNOLOGY SQUARE CAMBRIDGE MA 02139 043462719 501(C)3 200000 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED THE CURATORS OF THE UNIVERSITY OF MISSOURI UNIVERSITY OF MISSOURI AR KANSAS CITY MO 64180 436003859 501(C)3 78879 TRADITIONAL INVESTIGATOR INITIATED THE EMORY CLINIC INC 12 EXECUTIVE PARK DR NE ATLANTA GA 30329 582030692 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DR LEBANON NH 037560001 020222139 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE HITCHCOCK FOUNDATION C/O DEPT OF NEUROLOGY ATTENTION KEVIN WILLIAMS ONE MEDICAL CENTER D LEBANON NH 03756 020222139 501(C)3 12500 NNE ALS CENTER GRANT THE J DAVID GLADSTONE INSTITUTE VINCENT MOSELEY SAN FRANCISCO CA 94158 237203666 501(C)3 500000 STRATEGIC INITIATIVE THE MEDICAL COLLEGE OF WISCONSIN INC 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE NORTHEAST ALS CONSORTIUM (NEALS) 165 CAMBRIDGE STREET BOSTON MA 02114 562547779 501(C)3 53045 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 346401599 501(C)3 257508 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED THE PENNSYLVANIA STATE UNIV ATTN TRESSA JILEK COLLEGE OF MEDICINE CONTROLLERS OFFICE G230 50 HERSHEY PA 17033 246000376 501(C)3 99739 CLINICAL MANAGEMENT THE PENNSYLVANIA STATE UNIV TRESSA JILEK COLLEGE OF MEDICINE CONTROLLERS OFFICE G230 500 UNIVERS HERSHEY PA 17033 246000376 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DR LA JOLLA CA 920935004 956006144 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 900 GILMAN DRIVE MC 0954 LA JOLLA CA 92093 946036493 501(C)3 47250 DRUG DEVELOPMENT CONTRACT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO UCSF CONTROLLERS OFFICE CONTRACTS AND GRANTS ACCOUNTING SAN FRANCISCO CA 94143 946036493 501(C)3 100000 TRADITIONAL INVESTIGATOR INITIATED THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET PITTSBURGH PA 15251 386006309 501(C)3 50000 CLINICAL MANAGEMENT AWARD THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 501(C)3 190128 TRADITIONAL INVESTIGATOR INITIATED THE RESEARCH FOUNDATION OF SUNY 750 E ADAMS ST SYRACUSE NY 13210 141368361 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 W 168TH ST 49 NEW YORK NY 100323725 135598093 501(C)3 294672 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK SPONSORED PROJECTS FINANCE NEW YORK NY 10087 135598093 501(C)3 100000 TRADITIONAL INVESTIGATOR INITIATED THE UNIVERSITY OF CHICAGO 5841 S MARYLAND AVE DEPT OF CHICAGO IL 60637 362177139 501(C)3 50000 DRUG DEVELOPMENT CONTRACT THE UNIVERSITY OF CHICAGO MICHAEL LUDWIG CHICAGO IL 60637 362177139 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED THE UNIVERSITY OF CHICAGO MEDICINE 5235 S HARPER CT 4TH FLOOR CHICAGO IL 60615 362177139 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE UNIVERSITY OF VERMONT UNIVERSITY EVENT SERVICES ATTN RENEE BOURASSA THE VILLA 220 COLCHE BURLINGTON VT 05405 030179440 501(C)3 25000 NNE ALS CENTER GRANT THERA NEUROPHARMA 538 NEWTOWN ROAD BERWYN PA 19312 812014147 501(C)3 75000 INVESTIGATOR INITIATED AWARD TRANSLATIONAL GENOMICS RESEARCH INSTITUTE 445 N FIFTH STREET PHOENIX AZ 85004 753065445 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3600 SPRUCE STREET MALONEY BUILDING 3RD FLOOR PHILADELPHIA PA 19107 231352685 501(C)3 25000 INVESTIGATOR INITIATED AWARD TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 19178 231352685 501(C)3 14743 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA OFFICE OF RESEARCH SERVICES PHILADELPHIA PA 19104 231352685 501(C)3 40000 TRADITIONAL INVESTIGATOR INITIATED UC DAVIS MULTIDISCIPLINARY ALS CLINIC ONE SHIELDS AVE DAVIS CA 95616 946036494 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UC DAVIS MULTIDISCIPLINARY ALS CLINIC 4860 Y ST SACRAMENTO CA 95817 946036494 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIV OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO 7703 FLOYD CURL DR MSC 7883 SAN ANTONIO TX 782293900 741586031 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF CALIFORNIA SAN DIEGO CASHIERS OFFICE 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)3 50000 POSTDOCTORAL FELLOWSHIP UNIVERSITY OF CALIFORNIA SAN DIEGO CASHIERS OFFICE 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)3 180000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF COLORADO DENVER MS F428 AMC BLDG 500 13001 E 17TH PL RM W1124 AURORA CO 80045 846000555 501(C)3 25000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 123 GRINTER HALL PO BOX 113001 GAINESVILLE FL 32611 596002052 501(C)3 99973 CLINICAL MANAGEMENT UNIVERSITY OF FLORIDA BOARD OF TRUSTEES CONTRACTS GRANTS GAINESVILLE FL 32611 596002052 501(C)3 25000 INVESTIGATOR INITIATED AWARD UNIVERSITY OF FLORIDA BOARD OF TRUSTEES CONTRACTS GRANTS GAINESVILLE FL 32611 596002052 501(C)3 125000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC 1801 W TAYLOR ST SUITE 4E CHICAGO IL 60612 376000511 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF KENTUCKY 740 SOUTH LIMESTONE ST LEXINGTON KY 40536 616001218 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MARYLAND BALTIMORE 110 SOUTH PACA ST 3RD FLOOR BALTIMORE MD 21202 526002033 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MARYLAND BALTIMORE 620 W LEXINGTON STREET 4TH FLOOR BALTIMORE MD 21208 526002033 501(C)3 50000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL OFFICE OF THE BURSAR WORCESTER MA 01655 043167352 501(C)3 425000 ALS ONE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL YI CHEN BURSAR WORCESTER MA 01655 043167352 501(C)3 50000 DRUG DEVELOPMENT CONTRACT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL JANICE LAGACE WORCESTER MA 01655 043167352 501(C)3 50000 INVESTIGATOR INITIATED AWARD UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL YI CHEN BURSAR WORCESTER MA 01655 043167352 501(C)3 234839 LOU GEHRIG CHALLENGE ALS ASSOC INITIATED UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL OFFICE OF THE BURSAR WORCESTER MA 01655 043167352 501(C)3 150000 POSTDOCTORAL FELLOWSHIP UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL OFFICE OF THE BURSAR WORCESTER MA 01655 043167352 501(C)3 604326 STRATEGIC INITIATIVE UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL YI CHEN BURSAR WORCESTER MA 01655 043167352 501(C)3 90000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF MIAMI 1120 NW 14TH ST SUITE 1318 MIAMI FL 33136 592579826 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MIAMI P O BOX 405803 ATLANTA GA 30384 592579826 501(C)3 100000 TREAT ALS UNIVERSITY OF MICHIGAN ALS CLINIC 1500 E MEDICAL CENTER DR ANN ARBOR MI 48109 386006309 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MINNESOTA NW 5957 P O BOX 1450 MINNEAPOLIS MN 55485 416007513 501(C)3 33598 CLINICAL MANAGEMENT AWARD UNIVERSITY OF MINNESOTA FOUNDATION PO BOX 860266 MINNEAPOLIS MN 554860266 416042488 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF PITTSBURGH OFFICE OF RESEARCH 123 UNIVERSITY PLACE B21 PITTSBURGH PA 15213 125096559 501(C)3 25000 POSTDOCTORAL FELLOWSHIP UNIVERSITY OF PITTSBURGH OFFICE OF RESEARCH 123 UNIVERSITY PLACE B21 PITTSBURGH PA 15213 125096559 501(C)3 25000 STRATEGIC INITIATIVE UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER MEDICAL CENTER ROCHESTER NY 14642 160743209 501(C)3 56310 STRATEGIC INITIATIVE UNIVERSITY OF ROCHESTER ATTN CHERYL WILLIAMS SR RES ADMIN ROCHESTER NY 14627 160743209 501(C)3 80000 TRADITIONAL INVESTIGATOR INITIATED UNIVERSITY OF SOUTHERN CALIFORNIA 3720 SOUTH FLOWER STREET LOS ANGELES CA 90089 951642394 501(C)3 25000 INVESTIGATOR INITIATED AWARD UNIVERSITY OF VERMONT MEDICAL CENTER 1 SOUTH PROSPECT ST BURLINGTON VT 05401 030219309 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF WASHINGTON GRANT AND CONTRACT ACCOUNTING CHICAGO IL 606930001 916001537 501(C)3 25000 TREAT ALS UNIVERSITY OF WISCONSIN-MILWAUKEE BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 MILWAUKEE WI 53201 396006492 501(C)3 22500 YOUTH EDUCATIONAL MATERIALS GRANT VA PUGET SOUND HEALTH CARE SYSTEM 1660 SOUTH COLUMBIAN WAY SEATTLE WA 98108 741612229 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VOYAGER THERAPEUTICS INC 75 SIDNEY STREET CAMBRIDGE MA 02139 463003182 501(C)3 194236 CLINICAL MANAGEMENT WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD WINSTONSALEM NC 271571078 223849199 501(C)3 25000 ALS CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 250000 ALS ACT WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 77750 DRUG DEVELOPMENT CONTRACT WASHINGTON UNIVERSITY IN ST LOUIS 700 ROSEDALE AVE CAMPUS BOX 1056 SAINT LOUIS MO 631121408 430653611 501(C)3 25000 INVESTIGATOR INITIATED AWARD WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY 575 LEXINGTON AVENUE NEW YORK NY 10022 133376695 501(C)3 39785 TRADITIONAL INVESTIGATOR INITIATED 184 DURABLE MEDICAL EQUIPMENT 5 10074 FMV WHEELCHAIR POWER LIFT SEATS PART I, LINE 2: ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X X 0 0 0 0 0 0 0 0 0 CALANEET BALAS CEO (12/4/17) 208761 0 0 0 0 0 6680 0 7705 0 223146 0 0 0 BARBARA NEWHOUSE PRESIDENT/CEO (UNTIL 12/4/17) 297371 0 5945 0 0 0 11514 0 8349 0 323179 0 0 0 GREGORY MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATI 218987 0 0 0 0 0 6481 0 0 0 225468 0 0 0 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GO 199203 0 0 0 0 0 6322 0 13168 0 218693 0 0 0 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION & DEVELO 186022 0 0 0 0 0 5842 0 1417 0 193281 0 0 0 KIMBERLY HARDING-MAGINNIS SENIOR VP, CARE SERVICES 176961 0 0 0 0 0 5439 0 7670 0 190070 0 0 0 KATHLEEN SHEEHAN VP. PUBLIC POLICY & ADVOCACY 156464 0 0 0 0 0 4760 0 10060 0 171284 0 0 0 MARY BRUNEY VP, CHAPTER RELATIONS 144539 0 0 0 0 0 4448 0 7327 0 156314 0 0 0 TERESSA HARRIS VP, FINANCE 140656 0 0 0 0 0 4391 0 12533 0 157580 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. X 156 84022 FMV X 12 79257 AVG HIGH/LOW AT DATE 0 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN PART I, COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTORS FOR STOCK AND NUMBER OF ITEMS FOR THE CAR PROGRAM. PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 1 THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. FORM 990, PART VI, SECTION B, LINE 11B THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART XI, LINE 9: CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS 78,023.