BETA

ANSWER ALS: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
ANSWER ALS (EIN 47-1643994)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-11-15
IRS object ID
201943199349320119
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-15T14:41:26-06:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN721473527PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1HIENZ & MACALUSO LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1110 VETERANS BLVD SUITE 170AddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70005ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN471643994EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ANSWER ALSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlANSWBusinessNameControlTxt
Phone8004902375PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1ONE GALLERIA BLVD NO 1100AddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70001ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonPAUL VARISCOPersonNm
Person TitleDIRECTORPersonTitleTxt
Phone8004902375PhoneNum
Signature2019-11-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonROBERT W HIENZPreparerPersonNm
PTINP00751267PTIN
Phone5048375434PhoneNum
Preparation2019-11-15PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address199.227.118.181IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-11-15IPDt
IP Tm13:06:43IPTm
IP TimezoneCSIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id2B9BA4F925E3FAF85146BC17867204371B52190EAtSubmissionCreationDeviceId
At Submission Filing Device Id59D754DDD91289B0FA5EE6D788F55277DE04D053AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-03-31 21:24:44ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerPAUL VARISCOPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1ONE GALLERIA BLVD NO 1100AddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70001ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$10,144,995GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ANSWERALS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2014FormationYr
Legal Domicile StateLALegalDomicileStateCd
Activity Or MissionTO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers50TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,627,678PYContributionsGrantsAmt
CY Contributions Grants$6,826,026CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$0PYInvestmentIncomeAmt
CY Investment Income$0CYInvestmentIncomeAmt
PY Other Revenue$539,119PYOtherRevenueAmt
CY Other Revenue$1,579,845CYOtherRevenueAmt
PY Total Revenue$2,166,797PYTotalRevenueAmt
CY Total Revenue$8,405,871CYTotalRevenueAmt
PY Grants And Similar Paid$1,500,750PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,500,000CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$0PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$45,668CYTotalFundraisingExpenseAmt
PY Other Expenses$325,954PYOtherExpensesAmt
CY Other Expenses$156,771CYOtherExpensesAmt
PY Total Expenses$1,826,704PYTotalExpensesAmt
CY Total Expenses$1,656,771CYTotalExpensesAmt
PY Revenues Less Expenses$340,093PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$6,749,100CYRevenuesLessExpensesAmt
Total Assets BOY$2,069,660TotalAssetsBOYAmt
Total Assets EOY$9,195,404TotalAssetsEOYAmt
Total Liabilities BOY$75,284TotalLiabilitiesBOYAmt
Total Liabilities EOY$451,928TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,994,376NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,743,476NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,576,415ExpenseAmt
Grant$1,500,000GrantAmt
DescCREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES,PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.Desc
Total Program Service Expenses$1,576,415TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document18IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ORGANIZATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8004902375PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1ONE GALLERIA BLVD NO 1100AddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70001ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
PAUL VARISCO
DIRECTOR5.00Yes (X)Yes (X)$0$0$0
THOMAS CAPELLA
SECRETARY2.00Yes (X)Yes (X)$0$0$0
CLARE DURRETT
BOARD MEMBER20.00Yes (X)$0$0$0
STEVE GLEASON
BOARD MEMBER0.00Yes (X)$0$0$0
BEVERLY GOULET
BOARD MEMBER0.00Yes (X)$0$0$0
PATRICK QUINN
BOARD MEMBER0.00Yes (X)$0$0$0
MICHELLE FARR
BOARD MEMBER0.00Yes (X)$0$0$0
STEVE FINKBEINER
BOARD MEMBER0.00Yes (X)$0$0$0
GIANUGO RABELLINO
BOARD MEMBER0.00Yes (X)$0$0$0
JAY QUINLAN
BOARD MEMBER0.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$6,826,026AllOtherContributionsAmt
Total Contributions$6,826,026TotalContributionsAmt
Fundraising Gross Income$3,318,969FundraisingGrossIncomeAmt
Fundraising Direct Expenses$1,739,124FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,579,845TotalRevenueColumnAmt
Exclusion$1,579,845ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,405,871TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,579,845ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,500,000TotalAmt
Program Services$1,500,000ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$10,229TotalAmt
Program Services$634ProgramServicesAmt
Management And General$9,595ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$64,549TotalAmt
Program Services$39,000ProgramServicesAmt
Management And General$16,485ManagementAndGeneralAmt
Fundraising$9,064FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$974TotalAmt
Program Services$836ProgramServicesAmt
Management And General$120ManagementAndGeneralAmt
Fundraising$18FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$4,639TotalAmt
Program Services$625ProgramServicesAmt
Management And General$3,568ManagementAndGeneralAmt
Fundraising$446FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$8,893TotalAmt
Program Services$5,113ProgramServicesAmt
Management And General$1,076ManagementAndGeneralAmt
Fundraising$2,704FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$11,954TotalAmt
Program Services$1,394ProgramServicesAmt
Management And General$55ManagementAndGeneralAmt
Fundraising$10,505FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$604TotalAmt
Management And General$604ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$17,233TotalAmt
Program Services$12,063ProgramServicesAmt
Fundraising$5,170FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$2,167TotalAmt
Management And General$2,167ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtFundraisingFundraisingAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
OTHER FUNDRAISING$16,975$16,975
VIDEO AND PHOTOGRAPHY$11,174$786$10,388
MISCELLANEOUS$4,683$3,665$1,018
COMMUNICATIONS TO ALS C$1,549$1,549

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$1,148TotalAmt
Program Services$1,148ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,656,771TotalAmt
Program Services$1,576,415ProgramServicesAmt
Management And General$34,688ManagementAndGeneralAmt
Fundraising$45,668FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,766,830BOYAmt
EOY$7,053,184EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$250,000BOYAmt
EOY$1,900,000EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,707BOYAmt
EOY$210,626EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$48,827BOYAmt
EOY$31,594EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$2,296BOYAmt
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,069,660BOYAmt
EOY$9,195,404EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$75,284BOYAmt
EOY$250,998EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$200,930EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$75,284BOYAmt
EOY$451,928EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,744,376BOYAmt
EOY$6,843,476EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$250,000BOYAmt
EOY$1,900,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,994,376BOYAmt
EOY$8,743,476EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,069,660BOYAmt
EOY$9,195,404EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$6,749,100ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$440,835CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,142,342CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,877,678CurrentTaxYearMinus1YearAmt
Current Tax Year$6,826,026CurrentTaxYearAmt
Total$10,286,881TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$440,835CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,142,342CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,877,678CurrentTaxYearMinus1YearAmt
Current Tax Year$6,826,026CurrentTaxYearAmt
Total$10,286,881TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,470,557SubstantialContributorsTotAmt
Public Support Total170$5,816,324PublicSupportTotal170Amt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$285CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus1 Year$868,576CurrentTaxYearMinus1YearAmt
Current Tax Year$3,318,969CurrentTaxYearAmt
Total$4,187,830TotalAmt
FieldValueIRS element (for citing)
Total Support$14,474,711TotalSupportAmt
First5 Years170Yes (X)First5Years170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDUE TO RELATED PARTYDesc
Amt$200,930Amt
FieldValueIRS element (for citing)
Total Liability$200,930TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$8,444,271TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$38,400DonatedServicesAndUseFcltsAmt
Revenue Not Reported$38,400RevenueNotReportedAmt
Revenue Subtotal$8,405,871RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,405,871TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,695,171TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$38,400DonatedServicesUseFcltsAmt
Expenses Not Reported$38,400ExpensesNotReportedAmt
Expenses Subtotal$1,656,771ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$1,656,771TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GOLF TOURNAMENTEvent1Nm
Gross Receipts Event1$873,746GrossReceiptsEvent1Amt
Gross Revenue Event1$873,746GrossRevenueEvent1Amt
Other Direct Expenses Event1$262,829OtherDirectExpensesEvent1Amt
Event2GALAEvent2Nm
Gross Receipts Event2$2,398,563GrossReceiptsEvent2Amt
Gross Revenue Event2$2,398,563GrossRevenueEvent2Amt
Other Direct Expenses Event2$1,475,575OtherDirectExpensesEvent2Amt
Gross Receipts Other Events$46,660GrossReceiptsOtherEventsAmt
Gross Revenue Other Events$46,660GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$720OthDirectExpnssOtherEventsAmt
Gross Receipts Total$3,318,969GrossReceiptsTotalAmt
Gross Revenue Total Events$3,318,969GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$1,739,124OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$1,739,124DirectExpenseSummaryEventsAmt
Net Income Summary$1,579,845NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
ROBERT PACKARD CENTER FOR ALS RESEARCH JOHN HOPKINS UNIVERSITY SCHOOL OF ME
855 NORTH WOLFE STREET RM 270BALTIMOREMD21205$1,500,000$0HELP PEOPLE WITH DISABILITIES OBTAIN FAIR ACCESS TO MEDICARE AND QUALITY HEALTH CARE.
(no name)
ASSIST IN ALS RESEARCH.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BA COPY OF THE ORGANIZATION'S FORM 990 WILL BE PROVIDED TO THE ORGANIZATION'S GOVERNING BODY FOR REVIEW PRIOR TO IT BEING FILED.
FORM 990, PART VI, SECTION B, LINE 12CTHE BOARD REVIEWS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY.
FORM 990, PART VI, SECTION C, LINE 19NO DOCUMENTS ARE PROVIDED TO THE GENERAL PUBLIC.
FORM 990- PAGE 12- PART XII- LINE 1THE ORGANIZATION HAS CHANGED FROM THE CASH TO ACCRUAL BASIS OF ACCOUNTING.THE ACCRUAL BASIS OF ACCOUNTING OFFERS A MORE COMPLETE VIEW FOR MONTHLY AND QUARTERLY FINANCIAL STATEMENTS, ALLOWING THE ORGANIZATION TO GET A MORE COMPLETE PICTURE OF ITS FINANCIAL POSITION AND USAGE OF THE CASH BASIS PRESENTS CHALLENGES IN VISIBILITY, ESPECIALLY FOR LARGER NON-PROFITS.
FORM 990- PAGE 12- PART XII- LINE 2(C)THE ORGANIZATION HAS NOT CHANGED ITS OVERSIGHT OR SELECTION PROCESS DURING THE CURRENT TAX YEAR.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1GLEASON INITIATIVE FOUNDATIONBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 24493AddressLine1Txt
CityNEW ORLEANSCityNm
State AbbreviationLAStateAbbreviationCd
ZIP70124ZIPCd
FieldValueIRS element (for citing)
EIN453689316EIN
Primary ActivitiesSEE PART VII EXPLANATIONPrimaryActivitiesTxt
Legal Domicile StateLALegalDomicileStateCd
Exempt Code Section501(C)(3)ExemptCodeSectionTxt
Public Charity StatusLINE 7PublicCharityStatusTxt
Direct Controlling NAN/ADirectControllingNACd
Controlled Organization0ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990- SCHEDULE R- PAGE 5- PART VII- SUPPLEMENTAL INFORMATIONFormAndLineReferenceDesc
ExplanationTO HELP PROVIDE INDIVIDUALS WITH MUSCULAR DISEASES OR INJURIES WITH LEADING EDGE TECHNOLOGY, EQUIPMENT AND SERVICES; CREATE A GLOBAL CONVERSATION ABOUT ALS TO ULTIMATELY FIND SOLUTIONS AND AN END TO THE DISEASE; RAISE PUBLIC AWARENESS TOWARD ALS BY PROVIDING AND DOCUMENTING EXTRAORDINARY LIFE ADVENTURES FOR INDIVIDUALS WITH MUSCULAR DISEASES OR INJURIES.ExplanationTxt

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