2019-11-15T14:41:26-06:00 2018-12-31 721473527 HIENZ & MACALUSO LLC 110 VETERANS BLVD SUITE 170 METAIRIE LA 70005 990 2018-01-01 471643994 ANSWER ALS ANSW 8004902375 ONE GALLERIA BLVD NO 1100 METAIRIE LA 70001 PAUL VARISCO DIRECTOR 8004902375 2019-11-15 1 ROBERT W HIENZ P00751267 5048375434 2019-11-15 199.227.118.181 2019-11-15 13:06:43 CS P 2B9BA4F925E3FAF85146BC17867204371B52190E 59D754DDD91289B0FA5EE6D788F55277DE04D053 2018 2020-03-31 21:24:44Z PAUL VARISCO ONE GALLERIA BLVD NO 1100 METAIRIE LA 70001 10144995 0 X WWW.ANSWERALS.ORG X 2014 LA TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. 10 10 0 50 0 0 1627678 6826026 0 0 0 0 539119 1579845 2166797 8405871 1500750 1500000 0 0 0 0 0 0 45668 325954 156771 1826704 1656771 340093 6749100 2069660 9195404 75284 451928 1994376 8743476 X TO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS. 0 0 1576415 1500000 CREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES,PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS. 1576415 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 18 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X THE ORGANIZATION 8004902375 ONE GALLERIA BLVD NO 1100 METAIRIE LA 70001 X PAUL VARISCO DIRECTOR 5.00 X X 0 0 0 THOMAS CAPELLA SECRETARY 2.00 X X 0 0 0 CLARE DURRETT BOARD MEMBER 20.00 X 0 0 0 STEVE GLEASON BOARD MEMBER 0.00 X 0 0 0 BEVERLY GOULET BOARD MEMBER 0.00 X 0 0 0 PATRICK QUINN BOARD MEMBER 0.00 X 0 0 0 MICHELLE FARR BOARD MEMBER 0.00 X 0 0 0 STEVE FINKBEINER BOARD MEMBER 0.00 X 0 0 0 GIANUGO RABELLINO BOARD MEMBER 0.00 X 0 0 0 JAY QUINLAN BOARD MEMBER 0.00 X 0 0 0 0 0 0 0 0 0 0 0 6826026 6826026 3318969 1739124 1579845 1579845 8405871 0 0 1579845 1500000 1500000 10229 634 9595 64549 39000 16485 9064 974 836 120 18 4639 625 3568 446 8893 5113 1076 2704 11954 1394 55 10505 604 604 17233 12063 5170 2167 2167 OTHER FUNDRAISING 16975 16975 VIDEO AND PHOTOGRAPHY 11174 10388 786 MISCELLANEOUS 4683 3665 1018 COMMUNICATIONS TO ALS C 1549 1549 1148 1148 1656771 1576415 34688 45668 1766830 7053184 250000 1900000 1707 210626 48827 31594 2296 0 2069660 9195404 75284 250998 0 200930 75284 451928 X 1744376 6843476 250000 1900000 1994376 8743476 2069660 9195404 6749100 0 X X 0 1 X 0 0 X 440835 1142342 1877678 6826026 10286881 440835 1142342 1877678 6826026 10286881 4470557 5816324 285 868576 3318969 4187830 14474711 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 DUE TO RELATED PARTY 200930 200930 X 8444271 38400 38400 8405871 0 8405871 1695171 38400 38400 1656771 0 1656771 PART X, LINE 2: ACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. GOLF TOURNAMENT 873746 873746 262829 GALA 2398563 2398563 1475575 46660 46660 720 3318969 3318969 1739124 1739124 1579845 0 ROBERT PACKARD CENTER FOR ALS RESEARCH JOHN HOPKINS UNIVERSITY SCHOOL OF ME 855 NORTH WOLFE STREET RM 270 BALTIMORE MD 21205 1500000 0 HELP PEOPLE WITH DISABILITIES OBTAIN FAIR ACCESS TO MEDICARE AND QUALITY HEALTH CARE. ASSIST IN ALS RESEARCH. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE ORGANIZATION'S FORM 990 WILL BE PROVIDED TO THE ORGANIZATION'S GOVERNING BODY FOR REVIEW PRIOR TO IT BEING FILED. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REVIEWS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY. FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS ARE PROVIDED TO THE GENERAL PUBLIC. FORM 990- PAGE 12- PART XII- LINE 1 THE ORGANIZATION HAS CHANGED FROM THE CASH TO ACCRUAL BASIS OF ACCOUNTING.THE ACCRUAL BASIS OF ACCOUNTING OFFERS A MORE COMPLETE VIEW FOR MONTHLY AND QUARTERLY FINANCIAL STATEMENTS, ALLOWING THE ORGANIZATION TO GET A MORE COMPLETE PICTURE OF ITS FINANCIAL POSITION AND USAGE OF THE CASH BASIS PRESENTS CHALLENGES IN VISIBILITY, ESPECIALLY FOR LARGER NON-PROFITS. FORM 990- PAGE 12- PART XII- LINE 2(C) THE ORGANIZATION HAS NOT CHANGED ITS OVERSIGHT OR SELECTION PROCESS DURING THE CURRENT TAX YEAR. GLEASON INITIATIVE FOUNDATION PO BOX 24493 NEW ORLEANS LA 70124 453689316 SEE PART VII EXPLANATION LA 501(C)(3) LINE 7 N/A 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 FORM 990- SCHEDULE R- PAGE 5- PART VII- SUPPLEMENTAL INFORMATION TO HELP PROVIDE INDIVIDUALS WITH MUSCULAR DISEASES OR INJURIES WITH LEADING EDGE TECHNOLOGY, EQUIPMENT AND SERVICES; CREATE A GLOBAL CONVERSATION ABOUT ALS TO ULTIMATELY FIND SOLUTIONS AND AN END TO THE DISEASE; RAISE PUBLIC AWARENESS TOWARD ALS BY PROVIDING AND DOCUMENTING EXTRAORDINARY LIFE ADVENTURES FOR INDIVIDUALS WITH MUSCULAR DISEASES OR INJURIES.