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LI FRAUMENI SYNDROME ASSOCIATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
LI FRAUMENI SYNDROME ASSOCIATION (EIN 45-2284811)
Tax period
2017-01-01 to 2017-12-31
Filed
2019-11-15
IRS object ID
201923199349303207
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-15T08:34:55-06:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN042523269PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1DeJordy Dugre Croteau & Co PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1727 Grattan StreetAddressLine1Txt
CityChicopeeCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01020ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN452284811EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Li Fraumeni Syndrome Association IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlLIFRBusinessNameControlTxt
Phone7742660503PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 6458AddressLine1Txt
CityHollistonCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01746ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJennifer PerryPersonNm
Person TitlePresidentPersonTitleTxt
Phone7742660503PhoneNum
Signature2019-11-14SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJoseph Croteau Jr CPAPreparerPersonNm
PTINP00001558PTIN
Phone4135360666PhoneNum
Preparation2019-11-14PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address66.189.135.178IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-11-14IPDt
IP Tm13:17:51IPTm
IP TimezoneESIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdC6BDC030B01D7584EB44A482A452A11BB9B681EBAtSubmissionCreationDeviceId
At Submission Filing Device Id61C1619D0D58C96C048E85DB421857CEF4C534BAAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2020-04-17 16:48:07ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJennifer PerryPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1196 Fletcher CircleAddressLine1Txt
CityChicopeeCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01020ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$206,087GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttp://www.lfsassociation.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2011FormationYr
Legal Domicile StateMALegalDomicileStateCd
Activity Or MissionLi-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$185TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$704,624PYContributionsGrantsAmt
CY Contributions Grants$205,902CYContributionsGrantsAmt
PY Program Service Revenue$29,830PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$52PYInvestmentIncomeAmt
CY Investment Income$185CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$734,506PYTotalRevenueAmt
CY Total Revenue$206,087CYTotalRevenueAmt
PY Grants And Similar Paid$127,600PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$0CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$0PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,000CYTotalFundraisingExpenseAmt
PY Other Expenses$161,823PYOtherExpensesAmt
CY Other Expenses$369,367CYOtherExpensesAmt
PY Total Expenses$289,423PYTotalExpensesAmt
CY Total Expenses$369,367CYTotalExpensesAmt
PY Revenues Less Expenses$445,083PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$163,280CYRevenuesLessExpensesAmt
Total Assets BOY$518,390TotalAssetsBOYAmt
Total Assets EOY$355,109TotalAssetsEOYAmt
Total Liabilities BOY$0TotalLiabilitiesBOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$518,390NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$355,109NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionLi-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$19,059ExpenseAmt
DescIn 2017, LFSA organized and financially supported the first Youth Workshop held at Huntsman Cancer Institute. The workshop was created for teenagers to learn about the science of their syndrome and what the doctors and researchers are doing to make the future without LFS and most importantly to meet kids their own age for the first time with the syndrome. LFSA hosted 21 teens and their guardians from 6 different countries from around the world.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$7,450ExpenseAmt
DescIn 2017, LSFA opened 3 new international LFSA chapters. These chapters were created with a medical professional and a patient/key volunteer to bring the LFSA structure of support, education, and programs that are uniquely designed and developed for their specific country and culture. LFSA designed web landing pages on their main site for each chapter that is deisgn to represent their patrient community in their country.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$22,890ExpenseAmt
DescEducation and awareness campaign which inluded 6 trade shows, Rare Disease week in Washington DC where LFSA spoke with many legislators, and international and national family conferences that were attended and LFSA spoke at.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$49,399TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To Organizations0GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee0EmployeeCnt
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy0ConflictOfInterestPolicyInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention Policy0DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMichele GiovenelliPersonNm
Phone6176337188PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11789 Great Pond RdAddressLine1Txt
CityNorth AndoverCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01845ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (4 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
Jennifer Perry
President/Co- Founder25.00Yes (X)$0$0$0
Holly Fraumeni
Vice President25.00Yes (X)$0$0$0
Charlie Newcomb
Secretary1.00Yes (X)$0$0$0
Michele Giovenelli
Treasurer2.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$205,902AllOtherContributionsAmt
Total Contributions$205,902TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$185TotalRevenueColumnAmt
Unrelated Business Revenue$185UnrelatedBusinessRevenueAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$206,087TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$185UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$1,619TotalAmt
Management And General$1,619ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$6,550TotalAmt
Management And General$6,550ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$100,923TotalAmt
Program Services$5,960ProgramServicesAmt
Management And General$94,963ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$6,465TotalAmt
Management And General$6,465ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$97,626TotalAmt
Program Services$2,645ProgramServicesAmt
Management And General$94,981ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$22,794TotalAmt
Program Services$20,245ProgramServicesAmt
Management And General$2,549ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$123TotalAmt
Management And General$123ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
Website$82,912$7,450$75,462
Printing and Brochure F$25,982$25,982
Speakers$13,099$13,099
Shipping$6,381$6,381

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$4,893TotalAmt
Management And General$3,893ManagementAndGeneralAmt
Fundraising$1,000FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$369,367TotalAmt
Program Services$49,399ProgramServicesAmt
Management And General$318,968ManagementAndGeneralAmt
Fundraising$1,000FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$117,743BOYAmt
EOY$129,401EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$400,052BOYAmt
EOY$225,236EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$862LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$390LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$595BOYAmt
EOY$472EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$518,390BOYAmt
EOY$355,109EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Org Does Not Follow SFAS117Yes (X)OrgDoesNotFollowSFAS117Ind

Cap Stk Tr Prin Current Funds CapStkTrPrinCurrentFundsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Pd In Cap Srpls Land Bldg Eqp Fund PdInCapSrplsLandBldgEqpFundGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rtn Earn Endowment Incm Oth Fnds RtnEarnEndowmentIncmOthFndsGrp

FieldValueIRS element (for citing)
BOY$518,390BOYAmt
EOY$355,109EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$518,390BOYAmt
EOY$355,109EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$518,390BOYAmt
EOY$355,109EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$163,280ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS Audited0FSAuditedInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$40,663CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$156,553CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$54,857CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$704,623CurrentTaxYearMinus1YearAmt
Current Tax Year$202,514CurrentTaxYearAmt
Total$1,159,210TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$40,663CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$156,553CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$54,857CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$704,623CurrentTaxYearMinus1YearAmt
Current Tax Year$202,514CurrentTaxYearAmt
Total$1,159,210TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$1,159,210PublicSupportTotal170Amt
Total Support$1,159,210TotalSupportAmt
Gross Receipts Rltd Activities$59,972GrossReceiptsRltdActivitiesAmt
Public Support CY1701.00000PublicSupportCY170Pct
Public Support PY1701.00000PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$862OtherCostOrOtherBasisAmt
Depreciation$390DepreciationAmt
Book Value$472BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$472TotalBookValueLandBuildingsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, line 11bUpon Request
Form 990, Part VI, Section C, line 19Upon Request

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