2019-11-15T08:34:55-06:00 2017-12-31 042523269 DeJordy Dugre Croteau & Co PC 727 Grattan Street Chicopee MA 01020 990 2017-01-01 452284811 Li Fraumeni Syndrome Association Inc LIFR 7742660503 PO Box 6458 Holliston MA 01746 Jennifer Perry President 7742660503 2019-11-14 1 Joseph Croteau Jr CPA P00001558 4135360666 2019-11-14 66.189.135.178 2019-11-14 13:17:51 ES P C6BDC030B01D7584EB44A482A452A11BB9B681EB 61C1619D0D58C96C048E85DB421857CEF4C534BA 2017 2020-04-17 16:48:07Z Jennifer Perry 196 Fletcher Circle Chicopee MA 01020 206087 0 X http://www.lfsassociation.org X 2011 MA Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 10 10 0 0 185 0 704624 205902 29830 0 52 185 0 0 734506 206087 127600 0 0 0 0 0 0 0 1000 161823 369367 289423 369367 445083 -163280 518390 355109 0 0 518390 355109 X Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 0 0 19059 In 2017, LFSA organized and financially supported the first Youth Workshop held at Huntsman Cancer Institute. The workshop was created for teenagers to learn about the science of their syndrome and what the doctors and researchers are doing to make the future without LFS and most importantly to meet kids their own age for the first time with the syndrome. LFSA hosted 21 teens and their guardians from 6 different countries from around the world. 7450 In 2017, LSFA opened 3 new international LFSA chapters. These chapters were created with a medical professional and a patient/key volunteer to bring the LFSA structure of support, education, and programs that are uniquely designed and developed for their specific country and culture. LFSA designed web landing pages on their main site for each chapter that is deisgn to represent their patrient community in their country. 22890 Education and awareness campaign which inluded 6 trade shows, Rare Disease week in Washington DC where LFSA spoke with many legislators, and international and national family conferences that were attended and LFSA spoke at. 49399 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 MA X Michele Giovenelli 6176337188 1789 Great Pond Rd North Andover MA 01845 X Jennifer Perry President/Co- Founder 25.00 X 0 0 0 Holly Fraumeni Vice President 25.00 X 0 0 0 Charlie Newcomb Secretary 1.00 X 0 0 0 Michele Giovenelli Treasurer 2.00 X 0 0 0 0 0 0 0 0 0 0 0 205902 205902 185 185 206087 0 185 0 1619 1619 6550 6550 100923 5960 94963 6465 6465 97626 2645 94981 22794 20245 2549 123 123 Website 82912 7450 75462 Printing and Brochure F 25982 25982 Speakers 13099 13099 Shipping 6381 6381 4893 3893 1000 369367 49399 318968 1000 117743 129401 400052 225236 862 390 595 472 518390 355109 0 0 X 0 0 0 0 518390 355109 518390 355109 518390 355109 -163280 0 X 0 0 0 X 40663 156553 54857 704623 202514 1159210 40663 156553 54857 704623 202514 1159210 1159210 1159210 59972 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 862 390 472 472 Form 990, Part VI, Section B, line 11b Upon Request Form 990, Part VI, Section C, line 19 Upon Request