THE SILVERSTEIN FOUNDATION FOR GBA RESEARCH: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
THE SILVERSTEIN FOUNDATION FOR GBA RESEARCH (EIN 82-0656623)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-11-14
IRS object ID
201903189349303000
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-14T08:52:59-06:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1KPMG LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

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Address Line1345 Park AveAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP101540102ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN820656623EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1The Silverstein Foundation for Parkinson'sBusinessNameLine1Txt
Business Name Line2with GBABusinessNameLine2Txt
FieldValueIRS element (for citing)
In Care Of% JONATHAN T SILVERSTEINInCareOfNm
Business Name ControlSILVBusinessNameControlTxt
Phone9175198108PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 237137AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10023ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonNATALIE SILVERSTEINPersonNm
Person Titlevice pres/treasurerPersonTitleTxt
Phone9175198108PhoneNum
Signature2019-11-13SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonDAVID M HIGHFILLPreparerPersonNm
PTINP01517891PTIN
Phone2127589700PhoneNum
Preparation2019-11-13PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address167.68.102.5IPv4AddressTxt
FieldValueIRS element (for citing)
Federal Original Submission Id13407320193185000019FederalOriginalSubmissionId
Federal Original Submission Id2019-11-14FederalOriginalSubmissionIdDt
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id93284FDDF646EB87F938684DE2A1C682925E78BCAtSubmissionCreationDeviceId
At Submission Filing Device IdA1B6C70BDA82892C91F8FD4CA55C0318FEF7210FAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-01-14 16:20:31ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJONATHAN SILVERSTEINPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 237137AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10023ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$661,041GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.silversteinfoundation.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2017FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTO RAISE AWARENESS AROUND PARKINSON'S DISEASE ASSOCIATED WITH GBA MUTATIONS AND RELEVANT CLINICAL TRIALS FOR MUTATION CARRIERS. SEE ALSO PART III AND SCHEDULE O.ActivityOrMissionDesc
Voting Members Governing Body3VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers3TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$6,217,058PYContributionsGrantsAmt
CY Contributions Grants$599,990CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$14,642PYInvestmentIncomeAmt
CY Investment Income$61,051CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$6,231,700PYTotalRevenueAmt
CY Total Revenue$661,041CYTotalRevenueAmt
PY Grants And Similar Paid$940,249PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,651,807CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$0PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$133,176PYOtherExpensesAmt
CY Other Expenses$108,591CYOtherExpensesAmt
PY Total Expenses$1,073,425PYTotalExpensesAmt
CY Total Expenses$2,760,398CYTotalExpensesAmt
PY Revenues Less Expenses$5,158,275PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$2,099,357CYRevenuesLessExpensesAmt
Total Assets BOY$5,237,396TotalAssetsBOYAmt
Total Assets EOY$3,393,950TotalAssetsEOYAmt
Total Liabilities BOY$70,485TotalLiabilitiesBOYAmt
Total Liabilities EOY$155,000TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$5,166,911NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,238,950NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE SILVERSTEIN FOUNDATION FOR PARKINSON'S WITH GBA RESEARCH RAISES AWARENESS AROUND PARKINSON'S DISEASE ASSOCIATED WITH GBA MUTATIONS. SEE SCHEDULE O FOR MORE INFORMATION.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$2,651,807ExpenseAmt
Grant$2,651,807GrantAmt
DescSince the launch of the Silverstein Foundation in March of 2017, it has funded over 30 grants, received donations from over 1000 donors and supported 7 different therapeutic approaches, including autophagy, antisense oligonucleotides, gene therapy, alpha synuclein degraders, glucocerebrosidase activators, substrate reduction therapy, and autologous induced pluripotent stem cells to accelerate research and clinical trials to bring new therapeutic options to patients. SEE SCHEDULE O.Desc
Total Program Service Expenses$2,651,807TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecYes (true)ReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredfalseScheduleORequiredInd
IRP Document1IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee0EmployeeCnt
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members3GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyfalseConflictOfInterestPolicyInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJONATHAN T SILVERSTEINPersonNm
Phone9175198108PhoneNum

US Address USAddress

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Address Line111 RIVERSIDE DRIVE APT PH-W2AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10023ZIPCd
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No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (3 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
JONATHAN SILVERSTEIN
PRESIDENT / SECRETARY2.00.0Yes (X)Yes (X)$0$0$0
NATALIE SILVERSTEIN
VICE PRESIDENT / TREASURER1.00.0Yes (X)Yes (X)$0$0$0
GEOFFREY LEVIN
BOARD MEMBER1.00.0Yes (X)$0$0$0
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Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$599,990AllOtherContributionsAmt
Noncash Contributions$5,440NoncashContributionsAmt
Total Contributions$599,990TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

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Total Revenue Column$61,051TotalRevenueColumnAmt
Exclusion$61,051ExclusionAmt

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Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

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Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

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Total Revenue Column$0TotalRevenueColumnAmt
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Net Income From Gaming NetIncomeFromGamingGrp

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Total Revenue Column$0TotalRevenueColumnAmt
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Total Revenue TotalRevenueGrp

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Total Revenue Column$661,041TotalRevenueColumnAmt
Exclusion$61,051ExclusionAmt
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Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

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Total$2,651,807TotalAmt
Program Services$2,651,807ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

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Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

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Comp Disqual Persons CompDisqualPersonsGrp

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Payroll Taxes PayrollTaxesGrp

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Fees For Services Management FeesForServicesManagementGrp

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Fees For Services Legal FeesForServicesLegalGrp

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Management And General$64,275ManagementAndGeneralAmt

Advertising AdvertisingGrp

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Information Technology InformationTechnologyGrp

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Occupancy OccupancyGrp

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Travel TravelGrp

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Total$2,292TotalAmt
Management And General$2,292ManagementAndGeneralAmt

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Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

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Total$0TotalAmt

Interest InterestGrp

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Depreciation Depletion DepreciationDepletionGrp

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Total$0TotalAmt

Insurance InsuranceGrp

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Total$0TotalAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtManagement And GeneralManagementAndGeneralAmt
DUES AND SUBSCRIPTIONS$1,548$1,548
SERVICE FEE & CHARGES$2,475$2,475
MERCHANT FEES$702$702

Total Functional Expenses TotalFunctionalExpensesGrp

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Program Services$2,651,807ProgramServicesAmt
Management And General$108,591ManagementAndGeneralAmt
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Info In Schedule O Part XYes (X)InfoInScheduleOPartXInd

Cash Non Interest Bearing CashNonInterestBearingGrp

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EOY$3,116,831EOYAmt

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Investments Pub Traded Sec InvestmentsPubTradedSecGrp

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BOY$50,133BOYAmt
EOY$50,119EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

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BOY$50,000BOYAmt
EOY$227,000EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

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BOY$0BOYAmt
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Intangible Assets IntangibleAssetsGrp

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Other Assets Total OtherAssetsTotalGrp

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BOY$0BOYAmt
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Total Assets TotalAssetsGrp

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BOY$5,237,396BOYAmt
EOY$3,393,950EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

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BOY$0BOYAmt
EOY$5,000EOYAmt

Grants Payable GrantsPayableGrp

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BOY$0BOYAmt
EOY$150,000EOYAmt

Deferred Revenue DeferredRevenueGrp

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BOY$0BOYAmt
EOY$0EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

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EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

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BOY$0BOYAmt
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Other Liabilities OtherLiabilitiesGrp

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BOY$70,485BOYAmt
EOY$0EOYAmt

Total Liabilities TotalLiabilitiesGrp

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BOY$70,485BOYAmt
EOY$155,000EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

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BOY$5,166,911BOYAmt
EOY$3,238,950EOYAmt

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BOY$0BOYAmt
EOY$0EOYAmt

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BOY$0BOYAmt
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Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

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BOY$5,166,911BOYAmt
EOY$3,238,950EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,237,396BOYAmt
EOY$3,393,950EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$2,099,357ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$171,396NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteefalseAuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$6,217,058CurrentTaxYearMinus1YearAmt
Current Tax Year$599,990CurrentTaxYearAmt
Total$6,817,048TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

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Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

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Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$6,217,058CurrentTaxYearMinus1YearAmt
Current Tax Year$599,990CurrentTaxYearAmt
Total$6,817,048TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$5,161,436SubstantialContributorsTotAmt
Public Support Total170$1,655,612PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$14,642CurrentTaxYearMinus1YearAmt
Current Tax Year$61,051CurrentTaxYearAmt
Total$75,693TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$6,892,741TotalSupportAmt
First5 Years170Yes (X)First5Years170Ind

Schedule B IRS990ScheduleB

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
CY Minus3 Yr Endwmt FundCYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt FundCYMinus4YrEndwmtFundGrp
LandLandGrp
BuildingsBuildingsGrp
Leasehold ImprovementsLeaseholdImprovementsGrp
EquipmentEquipmentGrp
Other Land BuildingsOtherLandBuildingsGrp
Financial DerivativesFinancialDerivativesGrp
Closely Held Equity InterestsCloselyHeldEquityInterestsGrp
Total Book Value Securities$0TotalBookValueSecuritiesAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt
Total Liability$0TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$832,437TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$171,396NetUnrealizedGainsInvstAmt
Revenue Not Reported$171,396RevenueNotReportedAmt
Revenue Subtotal$661,041RevenueSubtotalAmt
Total Revenue Per Form990$661,041TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,760,398TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,760,398ExpensesSubtotalAmt
Total Expenses Per Form990$2,760,398TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule D, Part X, Line 2FormAndLineReferenceDesc
ExplanationUncertain tax positions The Foundation is exempt from federal income tax under Section 501(c)(3). Accounting standards prescribe a recognition threshold and measurement attribute for the financial statement recognition and measurement of a tax position taken or expected to be taken in a tax return. These standards also provide guidance on de-recognition of tax benefits, classification on the balance sheet, interest and penalties, accounting in interim periods, disclosure, and transition. The Foundation has evaluated any uncertain tax positions and related income tax contingencies and determined uncertain positions, if any, are not material to the financial statements. Penalties and interest assessed by income taxing authorities are included in operating expenses, if incurred. Tax Returns are generally subject to examination by federal and state taxing authorities for three years.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceDescPurpose Of GrantPurposeOfGrantTxt
Michael J Fox Foundation
Grand Central Station PO Box 4777New YorkNY10163134141945501(c)(3)$1,000,000N/ARESEARCH
Arvinas Inc
5 Science ParkNEW HAVENCT06511463139663$600,000N/ARESEARCH
Restorbio Inc
500 Boylston Street 13th FloorBostonMA02116813305277$500,000N/ARESEARCH
Yale University
PO Box 208239NEW HAVENCT06520060646973501(c)(3)$400,000N/ARESEARCH
Alector
131 Oyster Point Blvd Suite 600South San FranciscoCA94080462702363$70,435N/ARESEARCH
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org3TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule I, Line 1The Silverstein Foundation for Parkinsons with GBA maintains records to substantiate the funding amount, eligibility criteria and selection criteria used to award the grants. A Grant Contracting Process Summary provides detailed instructions and guidance for the Board and Scientific Advisory Board (SAB) as they seek new, cutting-edge therapeutic approaches for treating and preventing Parkinsons Disease in GBA mutation carriers. The SAB, which guides decision making in the selection process, is comprised of eleven (11) world renowned researchers and drug-developers. They are able to rapidly comb through GBA-related research to advance our goals and determine which grants shall be awarded. The Grant Contracting Process outlines the steps the Foundation takes to substantiate amounts and eligibility as follows; Primary Investigators (PI's) are asked to submit a detailed research plan and complete milestone and budget templates which are reviewed by Foundation staff and SAB members. Budget justification may be required. For private companies, high-level financial documents are requested in order to provide confirmation that the company has financial stability throughout the duration of the grant and beyond. Once all documents are received from grantee, internal review by all scientists ensures that all requests and goals are appropriate. A contract template, which includes payment schedule, is completed once all documents have been vetted by internal staff. A payment schedule is determined and payments are based upon milestones and deliverables being met. Clear go/no-go points for the research are required. Final executed contract, including budget and milestones are signed by the Foundation and the grantee, and are kept on file. Foundation personnel are assigned to oversee the progress of the grant, both scientifically and administratively. Progress updates, check-ins and reporting requirements are outlined and agreed upon in the contract and are monitored closely by personnel.
Schedule I, Line 2Describe the Foundation's procedures for monitoring the use of grant funds. The Silverstein Foundation for Parkinson's with GBA maintains a rigorous grant management process which involves the following steps: Identify point of contact (POC) internally and communicate this to grantee. Inform grantee that they will be in touch with POC proactively on: - First month progress on recruitment and hires (clinical grant) - Monthly progress on recruitment (clinical grant) - Scheduling a three (3) month call, midpoint assessment call and final assessment meeting/call. - Submit midpoint report and final report to the POC progress against milestones. Payments will only be released if milestones are met. Grantee will need to stay in touch to share updates. Adjust payments if milestones are delayed. If work cannot continue, modification of work or early termination of grant would be required. Upon confirmation that payment can be sent, inform Foundation Treasurer (Natalie Silverstein) three (3) days in advance to issue payment. Share grantee name, amount and bank information. Track information in grants tracker, payment tab. During midpoint and final report submission, ensure all high-level data, findings and results are shared in written form, even if grantee plans to share information via phone or in person during assessment meeting. Foundation shall save all reports and final presentations in grantee's file as "reports & results".

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArtGrp
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution40ContributionCnt
Noncash Contributions Rpt F990$5,440NoncashContributionsRptF990Amt
Method Of Determining Revenuesstock priceMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, LINE 1, Organization's missionCONTINUE FROM PART III: WE AGGRESSIVELY SEEK OUT NEW CUTTING EDGE THERAPEUTIC APPROACHES TO TREATING AND PREVENTING PARKINSON'S IN GBA MUTATION CARRIERS. THROUGH CLINICIANS, SCIENTISTS AND BIOTECH COMPANIES, WE SEEK TO ACCELERATE RESEARCH AND CLINICAL TRIALS IN AN EFFORT TO RAPIDLY BRING NEW THERAPEUTIC OPTIONS TO PATIENTS. FORM 990, PART III, LINE 4a, PROGRAM SERVICES CONTINUE FROM PART III: In 2018, the Silverstein Foundation launched a joint RFP with the Michael J. Fox Foundation for Parkinson's Research, making up to $3.5 million in research funding available to expand the understanding of the GBA gene in Parkinson's disease and to accelerate the development of basic science and novel therapeutics. The Silverstein Foundation contributed &1,000,000 to this effort, and twenty programs were selected to receive grants from this partnership. Additionally, the following grants were made by The Silverstein Foundation in 2018: A grant was made to acclaimed stem cell researcher, Dr. Jeanne Loring of the Scripps Research Institute, and her new company, Aspen Neuroscience. Dr. Loring is using patient-specific cells from induced pluripotent stem cells (IPSCs) to treat disease. In addition to her work in idiopathic PD, she will use this grant to focus on Parkinson's with GBA. A grant was made to Q-State Biosciences, a global leader in antisense oligonucleotide (ASO) research, to design ASOs that prevent production of toxic proteins or rescue expression of a protein to yield a beneficial effect. E-Scape Bio is focused on the development of small molecule drugs to treat genetically-defined subpopulations in neurodegenerative diseases. E-scape has been given a grant and will enter the clinic this year with an S1P5 substrate reduction therapy.
form 990, Part VI, LINE 2, Family/Business RelationshipDIRECTORS JONATHAN SILVERSTEIN AND NATALIE SILVERSTEIN HAVE A FAMILY RELATIONSHIP. Form 990, Part VI, line 11, Form 990 Review The Form 990 is prepared, using information provided by the Foundation, by an independent accounting firm. the 990, as will be filed with the IRS, is reviewed by the board prior to its filing.
Form 990, Part X, Balance SheetThe BOY balances were restated following adjusting journal entries made with the issuance of the first set of the audited financial statements. No material mistatements were made on the 2017 Form 990.

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