CHOLANGIOCARCINOMA FOUNDATION: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
CHOLANGIOCARCINOMA FOUNDATION (EIN 20-5776861)
Tax period
2019-07-01 to 2020-06-30
Filed
2021-02-12
IRS object ID
202110439349302176
Schema version
2019v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-02-12T15:05:06-06:00ReturnTs
Tax Period End2020-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN460952065PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BOUNTIFUL PEAK ADVISORSBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11564 SOUTH 500 WEST SUITE 201AddressLine1Txt
CityBOUNTIFULCityNm
State AbbreviationUTStateAbbreviationCd
ZIP840107400ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN205776861EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE CHOLANGIOCARCINOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHOLBusinessNameControlTxt
Phone8889366731PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15526 WEST 13400 SOUTH STE 510AddressLine1Txt
CityHERRIMANCityNm
State AbbreviationUTStateAbbreviationCd
ZIP84096ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSTACIE LINDSEYPersonNm
Person TitleCEOPersonTitleTxt
Phone8019990455PhoneNum
Signature2020-01-20SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonSHALAUN T HOWELL CPAPreparerPersonNm
PTINP00969274PTIN
Phone8012943155PhoneNum
Preparation2021-02-12PreparationDt
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSTACIE LINDSEYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line15965 W FRAGRANT LANEAddressLine1Txt
CityHERRIMANCityNm
State AbbreviationUTStateAbbreviationCd
ZIP84096ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,905,550GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CHOLANGIOCARCINOMA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2006FormationYr
Legal Domicile StateUTLegalDomicileStateCd
Activity Or MissionTO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA.ActivityOrMissionDesc
Voting Members Governing Body8VotingMembersGoverningBodyCnt
Voting Members Independent7VotingMembersIndependentCnt
Total Employee14TotalEmployeeCnt
Total Volunteers220TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$2,210,880PYContributionsGrantsAmt
CY Contributions Grants$1,884,975CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$816PYInvestmentIncomeAmt
CY Investment Income$2,907CYInvestmentIncomeAmt
PY Other Revenue-$2,093PYOtherRevenueAmt
CY Other Revenue-$141CYOtherRevenueAmt
PY Total Revenue$2,209,603PYTotalRevenueAmt
CY Total Revenue$1,887,741CYTotalRevenueAmt
PY Grants And Similar Paid$417,936PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$194,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$621,437PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,008,060CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$228,406CYTotalFundraisingExpenseAmt
PY Other Expenses$893,704PYOtherExpensesAmt
CY Other Expenses$580,247CYOtherExpensesAmt
PY Total Expenses$1,933,077PYTotalExpensesAmt
CY Total Expenses$1,782,307CYTotalExpensesAmt
PY Revenues Less Expenses$276,526PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$105,434CYRevenuesLessExpensesAmt
Total Assets BOY$815,602TotalAssetsBOYAmt
Total Assets EOY$1,219,709TotalAssetsEOYAmt
Total Liabilities BOY$105,904TotalLiabilitiesBOYAmt
Total Liabilities EOY$404,683TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$709,698NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$815,026NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$418,615ExpenseAmt
Grant$194,000GrantAmt
DescRESEARCH THE CHOLANGIOCARCINOMA FOUNDATION (CCF) CONTINUES TO FOCUS ON COLLABORATIVE RESEARCH EFFORTS WITH MEDICAL, SCIENTIFIC, ACADEMIC, REGULATORY, AND NOT- FOR-PROFIT PARTNERS. DURING THE YEAR ENDED JUNE 30, 2020, THE ORGANIZATION FUNDED EFFORTS TO ENHANCE AND RESEARCH CHOLANGIOCARCINOMA GENOMICS DATA. THE ORGANIZATION HAS ALSO CONTINUED THE SUPPORT OF A SPECIMEN REPOSITORY.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$806,188ExpenseAmt
Revenue$17,164RevenueAmt
DescADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,224,803TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document4IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee14EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members8GoverningBodyVotingMembersCnt
Independent Voting Member7IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTXStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSTACIE LINDSEYPersonNm
Phone8889366731PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15965 W FRAGRANT LANEAddressLine1Txt
CityHERRIMANCityNm
State AbbreviationUTStateAbbreviationCd
ZIP84096ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
DONNA MAYER
EXECUTIVE DI40.00Yes (X)$111,000$0$0
STACIE LINDSEY
CEO40.00Yes (X)$108,000$0$0Yes (X)
DANIEL BLUM
TREASURER1.00Yes (X)$0$0$0Yes (X)
BRUCE COPPOCK
VICE CHAIR1.00Yes (X)$0$0$0Yes (X)
BARBARA DUPONT
SECRETARY1.00Yes (X)$0$0$0Yes (X)
ROSS GREEN
BOARD MEMBER1.00$0$0$0Yes (X)
SARA HINKLEY
BOARD MEMBER1.00$0$0$0Yes (X)
PATRICIA MAXIN
BOARD MEMBER1.00$0$0$0Yes (X)
JASON SCOTT
CHAIR1.00Yes (X)$0$0$0Yes (X)
ALLI WARD
COO40.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$219,000TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Government Grants$15,000GovernmentGrantsAmt
All Other Contributions$1,869,975AllOtherContributionsAmt
Noncash Contributions$550NoncashContributionsAmt
Total Contributions$1,884,975TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,411TotalRevenueColumnAmt
Exclusion$3,411ExclusionAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Other$504OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Other-$504OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$504TotalRevenueColumnAmt
Related Or Exempt Func Income-$504RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$17,164GrossSalesOfInventoryAmt
Cost Of Goods Sold$17,305CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column-$141TotalRevenueColumnAmt
Related Or Exempt Func Income-$141RelatedOrExemptFuncIncomeAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,887,741TotalRevenueColumnAmt
Related Or Exempt Func Income-$645RelatedOrExemptFuncIncomeAmt
Exclusion$3,411ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$194,000TotalAmt
Program Services$194,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$260,927TotalAmt
Program Services$179,814ProgramServicesAmt
Management And General$70,313ManagementAndGeneralAmt
Fundraising$10,800FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$666,294TotalAmt
Program Services$351,800ProgramServicesAmt
Management And General$156,551ManagementAndGeneralAmt
Fundraising$157,943FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$10,651TotalAmt
Program Services$6,100ProgramServicesAmt
Management And General$1,871ManagementAndGeneralAmt
Fundraising$2,680FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$70,188TotalAmt
Program Services$40,241ProgramServicesAmt
Management And General$17,118ManagementAndGeneralAmt
Fundraising$12,829FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$315TotalAmt
Management And General$315ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$14,707TotalAmt
Management And General$14,707ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$190,985TotalAmt
Program Services$179,502ProgramServicesAmt
Management And General$11,236ManagementAndGeneralAmt
Fundraising$247FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$14,314TotalAmt
Program Services$8,140ProgramServicesAmt
Fundraising$6,174FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$29,379TotalAmt
Program Services$22,609ProgramServicesAmt
Management And General$2,938ManagementAndGeneralAmt
Fundraising$3,832FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$77,099TotalAmt
Program Services$50,784ProgramServicesAmt
Management And General$9,529ManagementAndGeneralAmt
Fundraising$16,786FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$4,868TotalAmt
Management And General$4,868ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$128,045TotalAmt
Program Services$128,045ProgramServicesAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$11,059TotalAmt
Program Services$11,059ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$3,499TotalAmt
Program Services$2,006ProgramServicesAmt
Management And General$853ManagementAndGeneralAmt
Fundraising$640FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$4,122TotalAmt
Program Services$789ProgramServicesAmt
Management And General$3,081ManagementAndGeneralAmt
Fundraising$252FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
SUPPLIES$44,419$27,693$4,877$11,849
BANK FEES$23,606$23,606
MISCELLANEOUS$16,926$14,258$2,668
DUES & MEMBERSHIP$8,763$4,567$4,196

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$8,141TotalAmt
Program Services$7,963ProgramServicesAmt
Fundraising$178FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,782,307TotalAmt
Program Services$1,224,803ProgramServicesAmt
Management And General$329,098ManagementAndGeneralAmt
Fundraising$228,406FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$287,992BOYAmt
EOY$178,121EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$342,281BOYAmt
EOY$917,742EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$136,700BOYAmt
EOY$56,795EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$26,188BOYAmt
EOY$35,766EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$12,024BOYAmt
EOY$15,080EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$23,369LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$8,272LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$9,291BOYAmt
EOY$15,097EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$1,126BOYAmt
EOY$1,108EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$815,602BOYAmt
EOY$1,219,709EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$105,904BOYAmt
EOY$143,983EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
EOY$72,000EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
EOY$50,000EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
EOY$138,700EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$105,904BOYAmt
EOY$404,683EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$572,342BOYAmt
EOY$749,368EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$137,356BOYAmt
EOY$65,658EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$709,698BOYAmt
EOY$815,026EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$815,602BOYAmt
EOY$1,219,709EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$105,434ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$106NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$842,813CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$337,479CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,526,930CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,210,880CurrentTaxYearMinus1YearAmt
Current Tax Year$1,884,975CurrentTaxYearAmt
Total$6,803,077TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$842,813CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$337,479CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,526,930CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,210,880CurrentTaxYearMinus1YearAmt
Current Tax Year$1,884,975CurrentTaxYearAmt
Total$6,803,077TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$208,013SubstantialContributorsTotAmt
Public Support Total170$6,595,064PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$117CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$599CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$816CurrentTaxYearMinus1YearAmt
Current Tax Year$3,411CurrentTaxYearAmt
Total$4,970TotalAmt
FieldValueIRS element (for citing)
Total Support$6,808,047TotalSupportAmt
Gross Receipts Rltd Activities$32,984GrossReceiptsRltdActivitiesAmt
Public Support CY1700.96870PublicSupportCY170Pct
Public Support PY1700.94080PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$23,369OtherCostOrOtherBasisAmt
Depreciation$8,272DepreciationAmt
Book Value$15,097BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$15,097TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,891,024TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$106NetUnrealizedGainsInvstAmt
Other Revenue-$13,916OtherRevenueAmt
Revenue Not Reported-$14,022RevenueNotReportedAmt
Revenue Subtotal$1,905,046RevenueSubtotalAmt
Other Revenues Not Included-$17,305OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt-$17,305RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,887,741TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,785,696TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$17,305OtherExpensesIncludedAmt
Expenses Not Reported$17,305ExpensesNotReportedAmt
Expenses Subtotal$1,768,391ExpensesSubtotalAmt
Other Expenses Not Included$13,916OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$13,916ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$1,782,307TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE D, PAGE 3, PART XTHE ORGANIZATION HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE (IRS) AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3), QUALIFYING FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A)(VI) AND HAS BEEN DETERMINED NOT TO BE A PRIVATE FOUNDATION UNDER SECTION 509(A). THE ORGANIZATION IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) AND IS SUBJECT TO INCOME TAX ON NET INCOME THAT IS DERIVED FROM BUSINESS ACTIVITIES THAT ARE UNRELATED TO THEIR EXEMPT PURPOSES. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION IS NOT SUBJECT TO UNRELATED BUSINESS INCOME TAX. MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN IN ITS ANNUAL FILING AND DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE ORGANIZATION'S FORMS 990 ARE NO LONGER SUBJECT TO TAX EXAMINATION FOR YEARS BEFORE 2016.
SCHEDULE D, PAGE 4, PART XI, LINE 2DGRANTS RETURNED -13,916
SCHEDULE D, PAGE 4, PART XI, LINE 4BCOST OF GOODS SOLD -17,305
SCHEDULE D, PAGE 4, PART XII, LINE 2DCOST OF GOODS SOLD 17,305
SCHEDULE D, PAGE 4, PART XII, LINE 4BGRANTS RETURNED 13,916

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
MAYO CLINIC
PO BOX 860334MINNEAPOLISMN554860334416011702501C3$50,000ICRN BIOREPOSITORY
MEMORIAL SLOAN KETTERING CANCER CEN
1275 YORK AVENEW YORKNY10065131924236501C3$144,000CBIOPORTAL CANCER
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationTHE ORGANIZATION PROVIDES GRANTS FOR SPECIFIC RESEARCH PROJECTS FOCUSED ON CHOLANGIOCARCINOMA. THE ORGANIZATION MONITORS SUMMARIES OF HOW THE FUNDING IS EXPENDED AND REQUIRES REPORTS OF RESEARCH PROGRESS AND RESULTS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PAGE 2, PART III, LINE 4BADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY.
FORM 990, PAGE 6, PART VI, LINE 11BTHE ORGANIZATION'S 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE 990 IS REVIEWED BY THE ORGANIZATION'S ACCOUNTANT, TREASURER, EXECUTIVE DIRECTOR, AND BOARD PRESIDENT FOR ACCURACY AND COMPLETENESS. THE 990 IS PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS PRIOR TO FILING FOR THEIR REVIEW.
FORM 990, PAGE 6, PART VI, LINE 12CTHE ORGANIZATION'S CONFLICT OF INTEREST POLICY REQUIRES ANNUAL DISCLOSURE OF POTENTIAL CONFLICTS BY ALL MEMBERS OF MANAGEMENT AND THE BOARD OF DIRECTORS. THE ORGANIZATION'S EXECUTIVE COMMITTEE IS RESPONSIBLE FOR REVIEWING ALL DISCLOSURES AND ASSESSING HOW POTENTIAL CONFLICTS DISCLOSED SHOULD BE ADDRESSED. IF A REAL OR PERCEIVED CONFLICT IS DETERMINED TO EXIST, ANY AFFECTED BOARD MEMBERS WILL BE RECUSED FROM VOTING ON ANY ISSUES RELATED TO THE CONFLICT.
FORM 990, PAGE 6, PART VI, LINE 15ACOMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS CONTEMPORANEOUSLY DOCUMENTED.
FORM 990, PAGE 6, PART VI, LINE 15BCOMPENSATION FOR OTHER OFFICERS IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE OTHER OFFICERS. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR OTHER OFFICERS IS CONTEMPORANEOUSLY DOCUMENTED.
FORM 990, PAGE 6, PART VI, LINE 17LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSISSIPPI, MONTANA, NORTH CAROLINA, NORTH DAKOTA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WISCONSIN, WEST VIRGINIA, WASHINGTON
FORM 990, PAGE 6, PART VI, LINE 19THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST TO THE ORGANIZATION'S ADDRESS.
FORM 990, PART IX, LINE 11GCONTRACT SERVICES 110,612 11,236 247 BAYER INITIATIVE SERVICES 68,890 0 0 TOTAL 179,502 11,236 247
FORM 990, PART XI, LINE 9GRANTS RETURNED -13,916 COST OF GOODS SOLD 17,305 COST OF GOODS SOLD -17,305 GRANTS RETURNED 13,916

Comments

Anonymous: no account or email. Up to 2,000 characters, at most one link. Comments are checked automatically; some wait for review.