2021-02-12T15:05:06-06:00 2020-06-30 460952065 BOUNTIFUL PEAK ADVISORS 1564 SOUTH 500 WEST SUITE 201 BOUNTIFUL UT 840107400 990 2019-07-01 205776861 THE CHOLANGIOCARCINOMA FOUNDATION CHOL 8889366731 5526 WEST 13400 SOUTH STE 510 HERRIMAN UT 84096 STACIE LINDSEY CEO 8019990455 2020-01-20 true SHALAUN T HOWELL CPA P00969274 8012943155 2021-02-12 2019 2022-09-23 18:48:47Z STACIE LINDSEY 5965 W FRAGRANT LANE HERRIMAN UT 84096 1905550 false X WWW.CHOLANGIOCARCINOMA.ORG X 2006 UT TO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA. 8 7 14 220 0 2210880 1884975 0 816 2907 -2093 -141 2209603 1887741 417936 194000 0 621437 1008060 0 228406 893704 580247 1933077 1782307 276526 105434 815602 1219709 105904 404683 709698 815026 X TO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA. false false 418615 194000 RESEARCH THE CHOLANGIOCARCINOMA FOUNDATION (CCF) CONTINUES TO FOCUS ON COLLABORATIVE RESEARCH EFFORTS WITH MEDICAL, SCIENTIFIC, ACADEMIC, REGULATORY, AND NOT- FOR-PROFIT PARTNERS. DURING THE YEAR ENDED JUNE 30, 2020, THE ORGANIZATION FUNDED EFFORTS TO ENHANCE AND RESEARCH CHOLANGIOCARCINOMA GENOMICS DATA. THE ORGANIZATION HAS ALSO CONTINUED THE SUPPORT OF A SPECIMEN REPOSITORY. 806188 17164 ADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY. 1224803 true true false false false false false false false false true false false false false true true false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 4 0 14 true false false false false false false false false false false false false X 8 7 false false false false false false false true true false false true true true true true true true true false AL AR CA CO CT FL GA HI ID IL KS KY LA MA MD ME MI MN MS MT NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WI WV WA X X X STACIE LINDSEY 8889366731 5965 W FRAGRANT LANE HERRIMAN UT 84096 DONNA MAYER EXECUTIVE DI 40.00 X 111000 0 0 STACIE LINDSEY CEO 40.00 X X 108000 0 0 DANIEL BLUM TREASURER 1.00 X X 0 0 0 BRUCE COPPOCK VICE CHAIR 1.00 X X 0 0 0 BARBARA DUPONT SECRETARY 1.00 X X 0 0 0 ROSS GREEN BOARD MEMBER 1.00 X 0 0 0 SARA HINKLEY BOARD MEMBER 1.00 X 0 0 0 PATRICIA MAXIN BOARD MEMBER 1.00 X 0 0 0 JASON SCOTT CHAIR 1.00 X X 0 0 0 ALLI WARD COO 40.00 X 0 0 0 219000 2 false false false 15000 1869975 550 1884975 3411 3411 504 -504 -504 -504 17164 17305 -141 -141 1887741 -645 3411 X 194000 194000 260927 179814 70313 10800 666294 351800 156551 157943 10651 6100 1871 2680 70188 40241 17118 12829 315 315 14707 14707 190985 179502 11236 247 14314 8140 6174 29379 22609 2938 3832 77099 50784 9529 16786 4868 4868 128045 128045 11059 11059 3499 2006 853 640 4122 789 3081 252 SUPPLIES 44419 27693 4877 11849 BANK FEES 23606 23606 MISCELLANEOUS 16926 14258 2668 DUES & MEMBERSHIP 8763 4567 4196 8141 7963 178 1782307 1224803 329098 228406 287992 178121 342281 917742 136700 56795 26188 35766 12024 15080 23369 8272 9291 15097 1126 1108 815602 1219709 105904 143983 72000 50000 138700 105904 404683 X 572342 749368 137356 65658 709698 815026 815602 1219709 X 105434 -106 X false true X true false X 842813 337479 1526930 2210880 1884975 6803077 842813 337479 1526930 2210880 1884975 6803077 208013 6595064 117 27 599 816 3411 4970 6808047 32984 0.96870 0.94080 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 23369 8272 15097 15097 X 1891024 -106 -13916 -14022 1905046 -17305 -17305 1887741 1785696 17305 17305 1768391 13916 13916 1782307 SCHEDULE D, PAGE 3, PART X THE ORGANIZATION HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE (IRS) AS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3), QUALIFYING FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A)(VI) AND HAS BEEN DETERMINED NOT TO BE A PRIVATE FOUNDATION UNDER SECTION 509(A). THE ORGANIZATION IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) AND IS SUBJECT TO INCOME TAX ON NET INCOME THAT IS DERIVED FROM BUSINESS ACTIVITIES THAT ARE UNRELATED TO THEIR EXEMPT PURPOSES. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION IS NOT SUBJECT TO UNRELATED BUSINESS INCOME TAX. MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN IN ITS ANNUAL FILING AND DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE ORGANIZATION'S FORMS 990 ARE NO LONGER SUBJECT TO TAX EXAMINATION FOR YEARS BEFORE 2016. SCHEDULE D, PAGE 4, PART XI, LINE 2D GRANTS RETURNED -13,916 SCHEDULE D, PAGE 4, PART XI, LINE 4B COST OF GOODS SOLD -17,305 SCHEDULE D, PAGE 4, PART XII, LINE 2D COST OF GOODS SOLD 17,305 SCHEDULE D, PAGE 4, PART XII, LINE 4B GRANTS RETURNED 13,916 true MAYO CLINIC PO BOX 860334 MINNEAPOLIS MN 554860334 416011702 501C3 50000 ICRN BIOREPOSITORY MEMORIAL SLOAN KETTERING CANCER CEN 1275 YORK AVE NEW YORK NY 10065 131924236 501C3 144000 CBIOPORTAL CANCER 2 SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION PROVIDES GRANTS FOR SPECIFIC RESEARCH PROJECTS FOCUSED ON CHOLANGIOCARCINOMA. THE ORGANIZATION MONITORS SUMMARIES OF HOW THE FUNDING IS EXPENDED AND REQUIRES REPORTS OF RESEARCH PROGRESS AND RESULTS. FORM 990, PAGE 2, PART III, LINE 4B ADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY. FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATION'S 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE 990 IS REVIEWED BY THE ORGANIZATION'S ACCOUNTANT, TREASURER, EXECUTIVE DIRECTOR, AND BOARD PRESIDENT FOR ACCURACY AND COMPLETENESS. THE 990 IS PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS PRIOR TO FILING FOR THEIR REVIEW. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION'S CONFLICT OF INTEREST POLICY REQUIRES ANNUAL DISCLOSURE OF POTENTIAL CONFLICTS BY ALL MEMBERS OF MANAGEMENT AND THE BOARD OF DIRECTORS. THE ORGANIZATION'S EXECUTIVE COMMITTEE IS RESPONSIBLE FOR REVIEWING ALL DISCLOSURES AND ASSESSING HOW POTENTIAL CONFLICTS DISCLOSED SHOULD BE ADDRESSED. IF A REAL OR PERCEIVED CONFLICT IS DETERMINED TO EXIST, ANY AFFECTED BOARD MEMBERS WILL BE RECUSED FROM VOTING ON ANY ISSUES RELATED TO THE CONFLICT. FORM 990, PAGE 6, PART VI, LINE 15A COMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS CONTEMPORANEOUSLY DOCUMENTED. FORM 990, PAGE 6, PART VI, LINE 15B COMPENSATION FOR OTHER OFFICERS IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE OTHER OFFICERS. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR OTHER OFFICERS IS CONTEMPORANEOUSLY DOCUMENTED. FORM 990, PAGE 6, PART VI, LINE 17 LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSISSIPPI, MONTANA, NORTH CAROLINA, NORTH DAKOTA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WISCONSIN, WEST VIRGINIA, WASHINGTON FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST TO THE ORGANIZATION'S ADDRESS. FORM 990, PART IX, LINE 11G CONTRACT SERVICES 110,612 11,236 247 BAYER INITIATIVE SERVICES 68,890 0 0 TOTAL 179,502 11,236 247 FORM 990, PART XI, LINE 9 GRANTS RETURNED -13,916 COST OF GOODS SOLD 17,305 COST OF GOODS SOLD -17,305 GRANTS RETURNED 13,916