LuMind IDSC Foundation: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- LuMind IDSC Foundation (EIN 37-1483975)
- Tax period
- 2021-10-01 to 2022-09-30
- Filed
- 2023-08-04
- IRS object ID
- 202312169349301556
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2023-08-04T15:26:58-04:00 | ReturnTs |
| Tax Period End | 2022-09-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 263804637 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Duncan Accounting & Tax | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2130 S Academy Blvd Ste 200 | AddressLine1Txt |
| City | Colorado Springs | CityNm |
| State Abbreviation | CO | StateAbbreviationCd |
| ZIP | 80916 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-10-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 371483975 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LUMIND IDSC FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | LUMI | BusinessNameControlTxt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 20 BURLINGTON MALL ROAD STE 200 | AddressLine1Txt |
| City | BURLINGTON | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01803 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | HAMPUS HILLERSTROM | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 7818251300 | PhoneNum |
| Signature | 2023-05-26 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | HAMPUS | PersonFirstNm |
| Person Last | HILLERSTROM | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Beth Ulbrich | PreparerPersonNm |
| PTIN | P01439597 | PTIN |
| Phone | 7194528664 | PhoneNum |
| Preparation | 2023-08-04 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 0 | TrustedCustomerCd |
| OOB Security Verification | 11 | OOBSecurityVerificationCd |
| Authentication Assurance Level | AAL2 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | HAMPUS HILLERSTROM | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 20 BURLINGTON MALL ROAD | AddressLine1Txt |
| City | BURLINGTON | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01803 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,830,368 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | LUMINDRDS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC,DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 21 | TotalEmployeeCnt |
| Total Volunteers | 50 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $5,112,405 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,544,017 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,503 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,465 | CYInvestmentIncomeAmt |
| PY Other Revenue | $153,307 | PYOtherRevenueAmt |
| CY Other Revenue | $195,882 | CYOtherRevenueAmt |
| PY Total Revenue | $5,267,215 | PYTotalRevenueAmt |
| CY Total Revenue | $2,742,364 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,507,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $447,000 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,279,452 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,164,220 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $604,049 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $581,474 | PYOtherExpensesAmt |
| CY Other Expenses | $2,115,637 | CYOtherExpensesAmt |
| PY Total Expenses | $3,367,926 | PYTotalExpensesAmt |
| CY Total Expenses | $4,726,857 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,899,289 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,984,493 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,487,214 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,166,575 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,746,769 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $720,107 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,740,445 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,446,468 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC,DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $1,839,717 | ExpenseAmt |
| Desc | COMMUNITY RESEARCH PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION, PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,312,149 | ExpenseAmt |
| Desc | DS-STN SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATEMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $447,000 | ExpenseAmt |
| Grant | $447,000 | GrantAmt |
| Desc | RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19,GENE THERAPHY, INDEPENDENCE, MEDICAL CARE AND REGULATORY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $3,598,866 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 13 | IRPDocumentCnt |
| IRP Document W2 G | 21 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 21 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MUELLER DOTKONNECT | PersonNm |
| Phone | 6307155486 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7924 PRESTON ROAD STE 350 | AddressLine1Txt |
| City | PLANO | CityNm |
| State Abbreviation | TX | StateAbbreviationCd |
| ZIP | 75024 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| HAMPUS HILLERSTROM | ||||||||
| PRESIDENT AND CEO | 40.00 | 0.00 | Yes (X) | Yes (X) | $318,264 | $0 | $24,045 | |
| DR JAMES HENDRIX | ||||||||
| CHIEF SCIENCE OFFICER | 40.00 | 0.00 | $211,409 | $0 | $24,045 | Yes (X) | ||
| ANGELA BRITTON | ||||||||
| VP OF CLINICAL OFFICER | 40.00 | 0.00 | $213,833 | $0 | $0 | Yes (X) | ||
| MICHELLE PETRONIO | ||||||||
| CHIEF DEVELOPMENT OFFICER | 40.00 | 0.00 | $163,933 | $0 | $24,045 | Yes (X) | ||
| CHRIS SENNA | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| CLAUDIA MOREIRA | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JEFF STROBEL | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| BEVERLY PAPERIELLO | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| COLLETTE DEVITTO | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| HECTOR GUINNESS | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL MURASKO | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| TONY HUNG | ||||||||
| BOARD VICE CHAIR | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| SOHAIL MASOOD | ||||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| PATRICK KANNAN | ||||||||
| TREASURER | 4.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| ANTHONY PROVIDENTI | ||||||||
| BOARD CHAIR | 4.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $907,439 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $72,135 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $2,544,017 | AllOtherContributionsAmt |
| Total Contributions | $2,544,017 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,465 | TotalRevenueColumnAmt |
| Exclusion | $2,465 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $283,886 | FundraisingGrossIncomeAmt |
| Fundraising Direct Expenses | $88,004 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $195,882 | TotalRevenueColumnAmt |
| Exclusion | $195,882 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,742,364 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $198,347 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $447,000 | TotalAmt |
| Program Services | $447,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $907,439 | TotalAmt |
| Program Services | $644,282 | ProgramServicesAmt |
| Management And General | $58,983 | ManagementAndGeneralAmt |
| Fundraising | $204,174 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $911,951 | TotalAmt |
| Program Services | $646,664 | ProgramServicesAmt |
| Management And General | $59,497 | ManagementAndGeneralAmt |
| Fundraising | $205,790 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $46,019 | TotalAmt |
| Program Services | $32,213 | ProgramServicesAmt |
| Management And General | $4,602 | ManagementAndGeneralAmt |
| Fundraising | $9,204 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $173,705 | TotalAmt |
| Program Services | $121,594 | ProgramServicesAmt |
| Management And General | $17,370 | ManagementAndGeneralAmt |
| Fundraising | $34,741 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125,106 | TotalAmt |
| Program Services | $87,574 | ProgramServicesAmt |
| Management And General | $12,511 | ManagementAndGeneralAmt |
| Fundraising | $25,021 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,200 | TotalAmt |
| Management And General | $31,200 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $144,138 | TotalAmt |
| Management And General | $144,138 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $144,200 | TotalAmt |
| Program Services | $6,450 | ProgramServicesAmt |
| Management And General | $102,794 | ManagementAndGeneralAmt |
| Fundraising | $34,956 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,832 | TotalAmt |
| Program Services | $7,495 | ProgramServicesAmt |
| Management And General | $307 | ManagementAndGeneralAmt |
| Fundraising | $1,030 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,746 | TotalAmt |
| Program Services | $26,747 | ProgramServicesAmt |
| Management And General | $3,957 | ManagementAndGeneralAmt |
| Fundraising | $8,042 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $138,071 | TotalAmt |
| Program Services | $98,678 | ProgramServicesAmt |
| Management And General | $13,127 | ManagementAndGeneralAmt |
| Fundraising | $26,266 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,684 | TotalAmt |
| Program Services | $38,279 | ProgramServicesAmt |
| Management And General | $5,468 | ManagementAndGeneralAmt |
| Fundraising | $10,937 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $73,297 | TotalAmt |
| Program Services | $54,358 | ProgramServicesAmt |
| Management And General | $6,313 | ManagementAndGeneralAmt |
| Fundraising | $12,626 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,267 | TotalAmt |
| Program Services | $17,233 | ProgramServicesAmt |
| Management And General | $11 | ManagementAndGeneralAmt |
| Fundraising | $23 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,698 | TotalAmt |
| Management And General | $3,698 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,328 | TotalAmt |
| Program Services | $47,129 | ProgramServicesAmt |
| Management And General | $6,733 | ManagementAndGeneralAmt |
| Fundraising | $13,466 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $37,278 | TotalAmt |
| Management And General | $37,278 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt | Program ServicesProgramServicesAmt |
|---|---|---|---|---|
| BANK FEES AND CREDIT CARD | $15,205 | $15,205 | ||
| STATE FILING FEES | $9,329 | $750 | $8,579 | |
| PRINTING | $20,215 | $9,194 | $11,021 | |
| RESEACH SITE EXPENSES | $1,312,149 | $1,312,149 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,726,857 | TotalAmt |
| Program Services | $3,598,866 | ProgramServicesAmt |
| Management And General | $523,942 | ManagementAndGeneralAmt |
| Fundraising | $604,049 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $914,870 | BOYAmt |
| EOY | $943,623 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $637,017 | BOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,655,533 | BOYAmt |
| EOY | $754,462 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $13,726 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,321 | BOYAmt |
| EOY | $21,585 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $576,991 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $156,001 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $216,053 | BOYAmt |
| EOY | $420,990 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $29,420 | BOYAmt |
| EOY | $12,189 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,487,214 | BOYAmt |
| EOY | $2,166,575 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $167,209 | BOYAmt |
| EOY | $347,366 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,563,845 | BOYAmt |
| EOY | $334,611 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,555 | BOYAmt |
| EOY | $38,130 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,160 | BOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,746,769 | BOYAmt |
| EOY | $720,107 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $832,028 | BOYAmt |
| EOY | -$424,368 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,908,417 | BOYAmt |
| EOY | $1,870,836 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,740,445 | BOYAmt |
| EOY | $1,446,468 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,487,214 | BOYAmt |
| EOY | $2,166,575 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,984,493 | ReconcilationRevenueExpnssAmt |
| Prior Period Adjustments | $690,516 | PriorPeriodAdjustmentsAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $3,589,169 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,577,945 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,112,405 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,544,017 | CurrentTaxYearAmt |
| Total | $12,823,536 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $3,589,169 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,577,945 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,112,405 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,544,017 | CurrentTaxYearAmt |
| Total | $12,823,536 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $3,961,772 | SubstantialContributorsTotAmt |
| Public Support Total170 | $8,861,764 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $1,890 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,301 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,503 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,465 | CurrentTaxYearAmt |
| Total | $7,159 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $12,830,695 | TotalSupportAmt |
| Public Support CY170 | 0.69070 | PublicSupportCY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $576,991 | OtherCostOrOtherBasisAmt |
| Depreciation | $156,001 | DepreciationAmt |
| Book Value | $420,990 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $420,990 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (2 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| 1700 DUE FROM EMPLOYEE | $429 |
| 1800 SECURITY DEPOSITS | $11,760 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $12,189 | TotalBookValueOtherAssetsAmt |
| Total Rev Etc Audited Fincl Stmt | $2,742,364 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $2,742,364 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $2,742,364 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,726,857 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $4,726,857 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $4,726,857 | TotalExpensesPerForm990Amt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | SUMMERDOUBLE | Event1Nm |
| Gross Receipts Event1 | $112,841 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $112,841 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $2,950 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $9,936 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $42,498 | OtherDirectExpensesEvent1Amt |
| Event2 | ARTSANDBLUES | Event2Nm |
| Gross Receipts Event2 | $43,964 | GrossReceiptsEvent2Amt |
| Gross Revenue Event2 | $43,964 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $8,941 | RentFacilityCostsEvent2Amt |
| Other Events Total | 4 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $127,081 | GrossReceiptsOtherEventsAmt |
| Gross Revenue Other Events | $127,081 | GrossRevenueOtherEventsAmt |
| Cash Prizes Other Events | $2,151 | CashPrizesOtherEventsAmt |
| Non Cash Prizes Other Events | $751 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $13,065 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $692 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $1,875 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $5,145 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $283,886 | GrossReceiptsTotalAmt |
| Gross Revenue Total Events | $283,886 | GrossRevenueTotalEventsAmt |
| Cash Prizes Total Events | $2,151 | CashPrizesTotalEventsAmt |
| Non Cash Prizes Total Events | $751 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $24,956 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $10,628 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $1,875 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $47,643 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $88,004 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $195,882 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|
| ADVOCATE HEALTH RESOURCES | ||||||
| 3075 HIGHLAND PEWY STE 600 | DOWNERS GROVE | IL | 60515 | 501C3 | $37,000 | TO SUPPORT DOWN SYNDROME MEDICAL INFO |
| RAND CORPORATION | ||||||
| 1776 MAIN STREET | SANTA MONICA | CA | 90407 | 501C3 | $170,000 | TO SUPPORT DOWN SYNDROME MEDICAL INFO |
| HARVARD UNVERSITY | ||||||
| PO BOX 419209 | BOSTON | MA | 02241 | 501C3 | $150,000 | TO SUPPORT DOWN SYNDROME MEDICAL INFO |
| DSC2U | ||||||
| 152 NASHUA STREET STE 540 | BOSTON | MA | 02109 | 501C3 | $90,000 | TO SUPPORT DOWN MEDICAL SYNDROME |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt |
|---|---|---|---|
| MICHELLE PETRONIO | |||
| CHIEF DEVELOPMENT OFFICER | $163,933 | $24,045 | $187,978 |
| HAMPUS HILLERSTROM | |||
| PRESIDENT AND CEO | $318,264 | $24,045 | $342,309 |
| DR JAMES HENDRIX | |||
| CHIEF SCIENCE OFFICER | $211,409 | $24,045 | $235,454 |
| ANGELA BRITTON | |||
| VP OF CLINICAL OFFICER | $213,833 | $213,833 | |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990 governing body review Part VI line 11 | THE ORGANIZATIONS PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE MANAGEMENT REVIEW RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. |
| Conflict of interest policy compliance Part VI line 12c | THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. |
| CEO executive director top management comp Part VI line 15a | COMPENSATION BY CEO IS APPROVED BY THE BOARD OF DIRECTORS, OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. |
| Other officer or key employee compensation Part VI line 15b | COMPENSATION FOR CEO IS APPROVED BY THE BOARD OF DIRECTORS, OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. |
| Form 990 availability to public Part VI line 18 | FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE THROUGH PUBLIC NON PROFIT WEBSITES. |
| Governing documents etc available to public Part VI line 19 | GOVERNING DOCUMENTS DISCLOSURE,CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. |
| Not undergone required audits or steps for audit part XII line 3b | THE ORGANIZATION HAS MANAGEMENT OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR. |
| Part VI response or note to any other line in Part VI | CA,MA,NY,AL,AK,AZ,AR,CO,CT,DC,FA,GA,IL,KS,KY,ME,MD,MI,MA,MN,MS,NH,NJ,NC,ND,OH,OK,OR,PA,RI,SC,TN,UT,VA,WA,WV,WI |
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