2023-08-04T15:26:58-04:00 2022-09-30 263804637 Duncan Accounting & Tax 2130 S Academy Blvd Ste 200 Colorado Springs CO 80916 990 2021-10-01 371483975 LUMIND IDSC FOUNDATION LUMI 20 BURLINGTON MALL ROAD STE 200 BURLINGTON MA 01803 HAMPUS HILLERSTROM PRESIDENT 7818251300 2023-05-26 true HAMPUS HILLERSTROM Beth Ulbrich P01439597 7194528664 2023-08-04 0 11 AAL2 IAL1 2021 2023-04-26 12:10:37Z HAMPUS HILLERSTROM 20 BURLINGTON MALL ROAD BURLINGTON MA 01803 2830368 false X LUMINDRDS.ORG X 2003 CA TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC,DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 11 11 21 50 0 0 5112405 2544017 0 1503 2465 153307 195882 5267215 2742364 1507000 447000 0 1279452 2164220 0 604049 581474 2115637 3367926 4726857 1899289 -1984493 4487214 2166575 1746769 720107 2740445 1446468 TO ACCELERATE THE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC,DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. false false 1839717 COMMUNITY RESEARCH PROGRAM FOR RESEARCH AWARENESS AND PARTICIPATION, PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES, MEDICAL INFORMATION AND RESEARCH PARTICIPATION OPPORTUNITIES. INCLUDES COST RELATED TO IDSCS MY DOWN SYNDROME COMMUNITY PLATFORM (MYDSC). 1312149 DS-STN SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATEMENT TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 447000 447000 RESEARCH AND MEDICAL GRANTS PROGRAM LUMIND IDSC RESEARCH AND MEDICAL GRANTS PROGRAM SUPPORTED 10 PROJECTS THIS YEAR COVERING PROJECTS IN COVID19,GENE THERAPHY, INDEPENDENCE, MEDICAL CARE AND REGULATORY. 3598866 true true false false false false false false false false true false false false false false true false false false false false false false true false false true false true false false false false false false false false false false false false false false false false false true 13 21 true 21 true false false false false false true true false false false false X 11 11 false false false false false false false true true false false true true true true true true true true false AK AL AR AZ CA CO CT DC FL GA MA NY X X MUELLER DOTKONNECT 6307155486 7924 PRESTON ROAD STE 350 PLANO TX 75024 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 0.00 X X 318264 0 24045 DR JAMES HENDRIX CHIEF SCIENCE OFFICER 40.00 0.00 X 211409 0 24045 ANGELA BRITTON VP OF CLINICAL OFFICER 40.00 0.00 X 213833 0 0 MICHELLE PETRONIO CHIEF DEVELOPMENT OFFICER 40.00 0.00 X 163933 0 24045 CHRIS SENNA DIRECTOR 2.00 0.00 X 0 0 0 CLAUDIA MOREIRA DIRECTOR 2.00 0.00 X 0 0 0 JEFF STROBEL DIRECTOR 2.00 0.00 X 0 0 0 BEVERLY PAPERIELLO DIRECTOR 2.00 0.00 X 0 0 0 COLLETTE DEVITTO DIRECTOR 2.00 0.00 X 0 0 0 HECTOR GUINNESS DIRECTOR 2.00 0.00 X 0 0 0 PAUL MURASKO DIRECTOR 2.00 0.00 X 0 0 0 TONY HUNG BOARD VICE CHAIR 4.00 0.00 X 0 0 0 SOHAIL MASOOD DIRECTOR 2.00 0.00 X 0 0 0 PATRICK KANNAN TREASURER 4.00 0.00 X X 0 0 0 ANTHONY PROVIDENTI BOARD CHAIR 4.00 0.00 X X 0 0 0 907439 0 72135 4 false true false 2544017 2544017 2465 2465 283886 88004 195882 195882 2742364 0 0 198347 447000 447000 907439 644282 58983 204174 911951 646664 59497 205790 46019 32213 4602 9204 173705 121594 17370 34741 125106 87574 12511 25021 31200 31200 144138 144138 144200 6450 102794 34956 8832 7495 307 1030 38746 26747 3957 8042 138071 98678 13127 26266 54684 38279 5468 10937 73297 54358 6313 12626 17267 17233 11 23 3698 3698 67328 47129 6733 13466 37278 37278 BANK FEES AND CREDIT CARD 15205 15205 STATE FILING FEES 9329 750 8579 PRINTING 20215 11021 9194 RESEACH SITE EXPENSES 1312149 1312149 4726857 3598866 523942 604049 914870 943623 637017 2655533 754462 13726 34321 21585 576991 156001 216053 420990 29420 12189 4487214 2166575 167209 347366 1563845 334611 12555 38130 3160 1746769 720107 X 832028 -424368 1908417 1870836 2740445 1446468 4487214 2166575 -1984493 690516 0 X false true X true false X 3589169 1577945 5112405 2544017 12823536 3589169 1577945 5112405 2544017 12823536 3961772 8861764 1890 1301 1503 2465 7159 12830695 0.69070 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 576991 156001 420990 420990 1700 DUE FROM EMPLOYEE 429 1800 SECURITY DEPOSITS 11760 12189 2742364 2742364 2742364 4726857 4726857 4726857 SUMMERDOUBLE 112841 112841 2950 9936 42498 ARTSANDBLUES 43964 43964 8941 4 127081 127081 2151 751 13065 692 1875 5145 283886 283886 2151 751 24956 10628 1875 47643 88004 195882 true ADVOCATE HEALTH RESOURCES 3075 HIGHLAND PEWY STE 600 DOWNERS GROVE IL 60515 501C3 37000 TO SUPPORT DOWN SYNDROME MEDICAL INFO RAND CORPORATION 1776 MAIN STREET SANTA MONICA CA 90407 501C3 170000 TO SUPPORT DOWN SYNDROME MEDICAL INFO HARVARD UNVERSITY PO BOX 419209 BOSTON MA 02241 501C3 150000 TO SUPPORT DOWN SYNDROME MEDICAL INFO DSC2U 152 NASHUA STREET STE 540 BOSTON MA 02109 501C3 90000 TO SUPPORT DOWN MEDICAL SYNDROME X X false false false false false false false false false MICHELLE PETRONIO CHIEF DEVELOPMENT OFFICER 163933 24045 187978 HAMPUS HILLERSTROM PRESIDENT AND CEO 318264 24045 342309 DR JAMES HENDRIX CHIEF SCIENCE OFFICER 211409 24045 235454 ANGELA BRITTON VP OF CLINICAL OFFICER 213833 213833 Form 990 governing body review Part VI line 11 THE ORGANIZATIONS PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE MANAGEMENT REVIEW RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. Conflict of interest policy compliance Part VI line 12c THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. CEO executive director top management comp Part VI line 15a COMPENSATION BY CEO IS APPROVED BY THE BOARD OF DIRECTORS, OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. Other officer or key employee compensation Part VI line 15b COMPENSATION FOR CEO IS APPROVED BY THE BOARD OF DIRECTORS, OTHER EMPLOYEES ARE BENCHMARKED AND BASED ON SALARY RANGES AND USE OF EMPLOYEE COMPENSATION POLICY. INCREASES ARE APPROVED IN THE BUDGET. Form 990 availability to public Part VI line 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE THROUGH PUBLIC NON PROFIT WEBSITES. Governing documents etc available to public Part VI line 19 GOVERNING DOCUMENTS DISCLOSURE,CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. Not undergone required audits or steps for audit part XII line 3b THE ORGANIZATION HAS MANAGEMENT OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR. Part VI response or note to any other line in Part VI CA,MA,NY,AL,AK,AZ,AR,CO,CT,DC,FA,GA,IL,KS,KY,ME,MD,MI,MA,MN,MS,NH,NJ,NC,ND,OH,OK,OR,PA,RI,SC,TN,UT,VA,WA,WV,WI