NATIONAL ALOPECIA AREATA FOUNDATION
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Cite this
Plain text NATIONAL ALOPECIA AREATA FOUNDATION. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/national-alopecia-areata-foundation-942780249. Retrieved 2026-11-06.
APA furp.org. (n.d.). NATIONAL ALOPECIA AREATA FOUNDATION [Nonprofit organization profile; tax years 2010–2025]. Retrieved November 6, 2026, from https://furp.org/org/national-alopecia-areata-foundation-942780249
MLA “NATIONAL ALOPECIA AREATA FOUNDATION.” furp.org, tax years 2010–2025, https://furp.org/org/national-alopecia-areata-foundation-942780249. Accessed 6 Nov. 2026.
Retrieved 2026-11-06; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $4.0M · expenses $3.9M · assets $4.7M
- EIN
- 94-2780249
- Address
- 1500 GRANT AVE STE 242, NOVATO, CA 94945-3182
- Website
- www.naaf.org
- NTEE code
- H00 Medical Research (Medical Research) published (IRS Business Master File, as H00Z)
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- April 1982 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those those impacted, and educates the public about the disease.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
15 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Nicole Friedland | President & CEO | 2022-2025 | $352,349 | $1,185,840 | 1 |
| Laura Maciag | Chief Operating Officer | 2022-2025 | $220,640 | $707,427 | 1 |
| Robert Baker III | Chief Growth Officer | 2023-2025 | $205,741 | $516,352 | 1 |
| Lisa Anderson | Vice President of Research and Education | 2023-2025 | $154,306 | $400,426 | 1 |
| George Gondo | Chief Mission Officer | 2025 | $163,166 | $163,166 | 1 |
| Jenna Smith | Marketing and Communications Director | 2025 | $111,319 | $111,319 | 1 |
| Jeanne Rappoport (former) | Chief Administrative Officer | 2015-2023 | $173,555 | $833,430 | 1 |
| Victoria Kalabokes (former) | CEO | 2010-2014 | $143,677 | $416,740 | 1 |
| Dorothy Kranz (former) | CEO | 2014-2015 | $146,415 | $281,110 | 1 |
| Calvin A Bryant (former) | CEO | 2020-2021 | $78,196 | $208,877 | 1 |
| Kathleen Hanni (former) | CDS | 2021 | $136,099 | $136,099 | 1 |
| Dory Kranz (former) | Prior CEO | 2020 | $126,660 | $126,660 | 1 |
| Maureen Smith (former) | PROGRAM | 2015 | $119,309 | $119,309 | 1 |
| Gary Sherwood (former) | Communications Director | 2024 | $112,873 | $112,873 | 1 |
| Judith Williams (former) | Support & Education Director | 2024 | $107,880 | $107,880 | 1 |
Officers and directors, no compensation reported
41 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Ann Hollins | Chair | 2020-2025 | 4 | $0 reported | 1 |
| Bonnie Chong | Director | 2020-2025 | 4 | $0 reported | 1 |
| Jonelle Massey | Director | 2020-2025 | 2 | $0 reported | 1 |
| Jim OConnell | Chief Financial Officer | 2020-2025 | 4 | $0 reported | 1 |
| Tyrone Folliard-Olson | Vice Chair | 2020-2025 | 4 | $0 reported | 1 |
| Simon Rubenstein | Director | 2020-2025 | 2 | $0 reported | 1 |
| Maureen McGettigan | Secretary | 2010-2025 | 4 | $0 reported | 1 |
| Ron Saca | Director | 2022-2025 | 2 | $0 reported | 1 |
| Dr Brett King | Director | 2023-2025 | 2 | $0 reported | 1 |
| Shamsha Damani | Director | 2023-2025 | 2 | $0 reported | 1 |
| David Granson | Director | 2024-2025 | 2 | $0 reported | 1 |
| Lisa Bard Levine | Director | 2024-2025 | 2 | $0 reported | 1 |
| Ruth Rama-Witt | Director | 2025 | 2 | $0 reported | 1 |
| Shawn Borisoff | Director | 2025 | 2 | $0 reported | 1 |
| Wendy Yu (former) | Director | 2022-2024 | 2 | $0 reported | 1 |
| Ann S Hedges (former) | Director | 2013-2024 | 2 | $0 reported | 1 |
| Deirdre Nero (former) | Director | 2022-2024 | 2 | $0 reported | 1 |
| Salman Hussain (former) | Director | 2020-2022 | 2 | $0 reported | 1 |
| Amanda Wagner (former) | Director | 2020-2022 | 2 | $0 reported | 1 |
| Jerry Knutson (former) | Dir. CFO-Part | 2020-2021 | 4 | $0 reported | 1 |
| Deirde Nero (former) | Dir. Sec-Part | 2020-2021 | 4 | $0 reported | 1 |
| Bonnie Chung (former) | Director - Part | 2021 | 2 | $0 reported | 1 |
| Robert Flint (former) | Director-Part | 2013-2021 | 2 | $0 reported | 1 |
| Bob Flint (former) | Director - Part | 2010-2020 | 2 | $0 reported | 1 |
| Kimberly Shanahan (former) | Director - Part | 2020 | 2 | $0 reported | 1 |
| Neal Wasserman (former) | DIRECTOR - PART | 2014-2015 | 2 | $0 reported | 1 |
| Donna Hakim (former) | DIRECTOR - PART | 2010-2015 | 2 | $0 reported | 1 |
| Hoy Lanning Jr (former) | DIRECTOR, SEC - PART | 2010-2015 | 3 | $0 reported | 1 |
| Jeff Daniel (former) | DIRECTOR - PART | 2015 | 2 | $0 reported | 1 |
| Donna Radford (former) | DIRECTOR - PART | 2014-2015 | 2 | $0 reported | 1 |
| Maria Beckett (former) | DIRECTOR - PART | 2013-2015 | 2 | $0 reported | 1 |
| Debora Pellicano (former) | DIRECTOR - PART | 2013-2015 | 2 | $0 reported | 1 |
| Christopher Wiley (former) | DIRECTOR - PART | 2015 | 2 | $0 reported | 1 |
| Brian Ter Haar (former) | DIRECTOR - PART | 2010-2014 | 5 | $0 reported | 1 |
| Gary Gordon (former) | DIRECTOR - PART | 2010-2014 | 2 | $0 reported | 1 |
| Allison Waggoner (former) | DIRECTOR | 2013 | 2 | $0 reported | 1 |
| Harris Barer (former) | DIRECTOR, CHAIRMAN - PART | 2010 | 5 | $0 reported | 1 |
| Alan Pallie (former) | DIRECTOR - PART | 2010 | 2 | $0 reported | 1 |
| Jay Bokulic (former) | DIRECTOR, SEC - PART | 2010 | 2 | $0 reported | 1 |
| Richard Dest (former) | DIRECTOR - PART | 2010 | 2 | $0 reported | 1 |
| Bruce Fiscus (former) | DIRECTOR - PART | 2010 | 2 | $0 reported | 1 |
People by year
2025 · 20 people listed · 6 paid, $1.2M · 18 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Nicole Friedland | President & CEO | 40 | $327,697 | $0 | $24,652 | $352,349 | 1 |
| Laura Maciag | Chief Operating Officer | 40 | $203,975 | $0 | $16,665 | $220,640 | 1 |
| Robert Baker III | Chief Growth Officer | 40 | $192,125 | $0 | $13,616 | $205,741 | 1 |
| George Gondo | Chief Mission Officer | 40 | $159,517 | $0 | $3,649 | $163,166 | 1 |
| Lisa Anderson | Vice President of Research and Education | 40 | $144,156 | $0 | $10,150 | $154,306 | 1 |
| Jenna Smith | Marketing and Communications Director | 40 | $110,262 | $0 | $1,057 | $111,319 | 1 |
| Ann Hollins | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chong | Director | 4 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Chief Financial Officer | 4 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Vice Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Ron Saca | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Dr Brett King | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shamsha Damani | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Granson | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Lisa Bard Levine | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ruth Rama-Witt | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shawn Borisoff | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2024 · 21 people listed · 6 paid, $1.1M · 14 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Nicole Friedland | President & CEO | 40 | $294,216 | $0 | $58,213 | $352,429 | 1 |
| Laura Maciag | Chief Operating Officer | 35 | $166,250 | $0 | $45,600 | $211,850 | 1 |
| Robert Baker III | Chief Growth Officer | 40 | $160,000 | $0 | $22,063 | $182,063 | 1 |
| Lisa Anderson | Senior Director, Research | 40 | $119,104 | $0 | $17,866 | $136,970 | 1 |
| Gary Sherwood | Communications Director | 40 | $85,072 | $0 | $27,801 | $112,873 | 1 |
| Judith Williams | Support & Education Director | 40 | $85,072 | $0 | $22,808 | $107,880 | 1 |
| Ann Hollins | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chong | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Wendy Yu | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Chief Financial Officer | 4 | $0 | $0 | $0 | $0 | 1 |
| Ann S Hedges | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Deirdre Nero | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Vice Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Ron Saca | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Dr Brett King | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shamsha Damani | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Granson | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Lisa Bard Levine | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 18 people listed · 5 paid, $831K · 11 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Nicole Friedland | President & CEO | 40 | $266,062 | $0 | $0 | $266,062 | 1 |
| Jeanne Rappoport | Chief Administrative Officer | 40 | $173,555 | $0 | $0 | $173,555 | 1 |
| Laura Maciag | Chief Operating Officer | 35 | $154,000 | $0 | $0 | $154,000 | 1 |
| Robert Baker III | Chief Growth Officer | 40 | $128,548 | $0 | $0 | $128,548 | 1 |
| Lisa Anderson | Senior Director, Research | 40 | $109,150 | $0 | $0 | $109,150 | 1 |
| Ann Hollins | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chong | Vice Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Wendy Yu | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Chief Financial Officer | 4 | $0 | $0 | $0 | $0 | 1 |
| Ann S Hedges | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Deirdre Nero | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ron Saca | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Dr Brett King | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shamsha Damani | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 16 people listed · 3 paid, $473K · 10 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Nicole Friedland | President & CEO | 40 | $215,000 | $0 | $0 | $215,000 | 1 |
| Jeanne Rappoport | Chief Administrative Officer | 40 | $137,400 | $0 | $0 | $137,400 | 1 |
| Laura Maciag | Chief Operating Officer | 35 | $120,937 | $0 | $0 | $120,937 | 1 |
| Ann Hollins | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chong | Vice Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Salman Hussain | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Wendy Yu | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Chief Financial Officer | 4 | $0 | $0 | $0 | $0 | 1 |
| Ann S Hedges | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Deirdre Nero | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Amanda Wagner | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ron Saca | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 16 people listed · 3 paid, $423K · 10 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Jeanne Rappoport | CAO | 40 | $167,508 | $0 | $40,764 | $208,272 | 1 |
| Kathleen Hanni | CDS | 40 | $102,000 | $0 | $34,099 | $136,099 | 1 |
| Calvin A Bryant | CEO | 40 | $60,745 | $0 | $17,451 | $78,196 | 1 |
| Ann Hollins | Dir. Chair-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Jerry Knutson | Dir. CFO-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Deirde Nero | Dir. Sec-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chung | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Ann S Hedges | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Salman Hussain | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Amanda Wagner | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Robert Flint | Director-Part | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 17 people listed · 3 paid, $435K · 10 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Jeanne Rappoport | CAO | 40 | $140,500 | $0 | $36,721 | $177,221 | 1 |
| Calvin A Bryant | CEO | 40 | $105,450 | $0 | $25,231 | $130,681 | 1 |
| Dory Kranz | Prior CEO | 40 | $108,375 | $0 | $18,285 | $126,660 | 1 |
| Ann Hollins | Dir. Chair-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Jerry Knutson | Dir. CFO-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Deirde Nero | Dir. Sec-Part | 4 | $0 | $0 | $0 | $0 | 1 |
| Bob Flint | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Bonnie Chong | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Tyrone Folliard-Olson | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Ann S Hedges | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Salman Hussain | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Jonelle Massey | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Amanda Wagner | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen McGettigan | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Simon Rubenstein | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Kimberly Shanahan | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
| Jim OConnell | Director - Part | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 14 people listed · 3 paid, $403K · 11 employees · 200 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DOROTHY KRANZ | CEO | 50 | $118,787 | $0 | $27,628 | $146,415 | 1 |
| JEANNE RAPPOPORT | PROGRAM & ADMIN | 40 | $106,668 | $0 | $30,314 | $136,982 | 1 |
| MAUREEN SMITH | PROGRAM | 40 | $102,083 | $0 | $17,226 | $119,309 | 1 |
| NEAL WASSERMAN | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT FLINT | DIRECTOR, CFO - PART | 4 | $0 | $0 | $0 | $0 | 1 |
| ANN HEDGES | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA HAKIM | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| HOY LANNING JR | DIRECTOR, SEC - PART | 3 | $0 | $0 | $0 | $0 | 1 |
| JEFF DANIEL | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA RADFORD | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA BECKETT | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| MAUREEN MCGETTIGAN | DIRECTOR, CHAIR - PART | 5 | $0 | $0 | $0 | $0 | 1 |
| DEBORA PELLICANO | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER WILEY | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 13 people listed · 2 paid, $278K · 12 employees · 200 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| VICTORIA KALABOKES | CEO | 40 | $52,680 | $0 | $90,997 | $143,677 | 1 |
| DOROTHY KRANZ | CEO | 40 | $112,895 | $0 | $21,800 | $134,695 | 1 |
| NEAL WASSERMAN | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| ROBERT FLINT | DIRECTOR, CFO - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| ANN HEDGES | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA HAKIM | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| HOY LANNING JR | DIRECTOR, SEC - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN TER HAAR | DIRECTOR - PART | 5 | $0 | $0 | $0 | $0 | 1 |
| GARY GORDON | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA BECKETT | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| MAUREEN MCGETTIGAN | DIRECTOR, CHAIR - PART | 5 | $0 | $0 | $0 | $0 | 1 |
| DEBORA PELLICANO | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA RADFORD | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 11 people listed · 1 paid, $147K · 9 employees · 200 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| VICTORIA KALABOKES | CHIEF EXECUTIVE OFFICER | 40 | $127,923 | $0 | $19,560 | $147,483 | 1 |
| MAUREEN MCGETTIGAN | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| ROBERT FLINT | CHIEF FINANCIAL OFFICER | 3 | $0 | $0 | $0 | $0 | 1 |
| HOY LANNING JR | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| ALLISON WAGGONER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANN S HEDGES | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA HAKIM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN TER HAAR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| GARY GORDON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA BECKETT | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBORA PELLICANO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2010 · 12 people listed · 1 paid, $126K · 8 employees · 120 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| VICTORIA KALABOKES | CEO | 40 | $109,200 | $0 | $16,380 | $125,580 | 1 |
| HARRIS BARER | DIRECTOR, CHAIRMAN - PART | 5 | $0 | $0 | $0 | $0 | 1 |
| BOB FLINT | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| ALAN PALLIE | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA HAKIM | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| HOY LANNING JR | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN TER HAAR | DIRECTOR, CFO - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| GARY GORDON | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY BOKULIC | DIRECTOR, SEC - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD DEST | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| MAUREEN MCGETTIGAN | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
| BRUCE FISCUS | DIRECTOR - PART | 2 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 7 grants to organizations · $284K
Listed grants add up to $283,747; the return's “grants paid” expense line says $337,673. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 6 grants to organizations · $227K
Listed grants add up to $227,488; the return's “grants paid” expense line says $163,034. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 4 grants to organizations · $148K
Listed grants add up to $147,728; the return's “grants paid” expense line says $175,339. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 3 grants to organizations · $186K
Listed grants add up to $186,429; the return's “grants paid” expense line says $191,429. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 5 grants to organizations · $161K
Listed grants add up to $161,190; the return's “grants paid” expense line says $142,354. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 4 grants to organizations · $198K
Listed grants add up to $198,274; the return's “grants paid” expense line says $226,743. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 5 grants to organizations · $342K
Listed grants add up to $342,132; the return's “grants paid” expense line says $468,119. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 3 grants to organizations · $232K
Listed grants add up to $231,888; the return's “grants paid” expense line says $364,704. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 2 grants to organizations · $200K
Listed grants add up to $200,000; the return's “grants paid” expense line says $286,440. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 1 grant to organizations · $33K
Listed grants add up to $33,329; the return's “grants paid” expense line says $61,247. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $3,998,061 | $3,850,182 | $4,739,437 | $4,023,692 | $2,444,229 | $228,385 | $1,137,732 | 18 | 500 |
| 2024 · Form 990 | ||||||||
| $3,418,405 | $2,978,013 | $4,314,356 | $3,759,565 | $2,126,872 | $287,019 | $909,715 | 14 | 500 |
| 2023 · Form 990 | ||||||||
| $3,613,350 | $2,545,046 | $3,489,660 | $3,319,173 | $2,699,475 | $256,841 | $831,315 | 11 | 500 |
| 2022 · Form 990 | ||||||||
| $2,397,922 | $2,381,788 | $2,724,730 | $2,250,869 | $2,083,177 | $112,939 | $473,337 | 10 | 500 |
| 2021 · Form 990 | ||||||||
| $2,187,420 | $1,760,033 | $2,313,900 | $2,234,735 | $2,020,533 | $171,362 | $422,566 | 10 | 500 |
| 2021 · Form 990 | ||||||||
| $2,187,420 | $1,760,033 | $2,313,900 | $2,234,735 | $2,020,533 | $171,362 | $422,566 | 10 | 500 |
| 2020 · Form 990 | ||||||||
| $1,644,129 | $1,957,606 | $2,076,204 | $1,732,659 | $1,500,043 | $134,502 | $431,425 | 10 | 500 |
| 2020 · Form 990 | ||||||||
| $1,644,129 | $1,957,606 | $2,076,204 | $1,732,659 | $1,500,043 | $134,502 | $431,425 | 10 | 500 |
| 2015 · Form 990 | ||||||||
| $1,623,824 | $2,181,342 | $3,493,731 | $3,400,510 | $1,333,517 | $141,517 | $327,538 | 11 | 200 |
| 2014 · Form 990 | ||||||||
| $2,036,597 | $2,299,718 | $4,398,704 | $4,131,743 | $1,377,647 | $523,672 | $112,000 | 12 | 200 |
| 2013 · Form 990 | ||||||||
| $2,417,832 | $2,060,231 | $4,319,519 | $4,295,028 | $1,871,318 | $462,443 | $145,635 | 9 | 200 |
| 2010 · Form 990 | ||||||||
| $1,328,794 | $1,231,959 | $1,210,436 | $1,187,310 | $1,130,169 | $207,959 | $109,200 | 8 | 120 |
Funders of this organization
102 grantors reported grants to this organization, $3,597,483 in all, tax years 2009 to 2025; the 25 largest shown (all 102). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Total given | Grants | Latest year's amount | Latest year | Years given | Type | Match | Grants |
|---|---|---|---|---|---|---|---|---|
| Daniel and Janet Mordecai Foundation | $500,000 | 5 | $100,000 | 2015 | 2011-2015 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| THE KELTER FAMILY FOUNDATION INC | $410,000 | 8 | $10,000 | 2024 | 2010-2012, 2016, 2021-2024 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | $337,516 | 7 | $43,305 | 2025 | 2019-2025 | DAF sponsor | Exact | show |
| SUNSHINE CHARITABLE FOUNDATION | $310,000 | 7 | $40,000 | 2024 | 2017-2022, 2024 | Private foundation | Fuzzy filed as “National Alopecia Areata Foundation” | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | $298,352 | 9 | $60,525 | 2024 | 2016-2024 | DAF sponsor | Exact | show |
| DONOR ADVISED CHARITABLE GIVING | $258,390 | 10 | $36,405 | 2024 | 2014-2017, 2019-2024 | DAF sponsor | Exact | show |
| COMMUNITY FOUNDATION OF NEW JERSEY | $167,400 | 13 | $10,000 | 2023 | 2011-2023 | DAF sponsor | Exact | show |
| FORGOOD INC | $153,664 | 3 | $70,062 | 2019 | 2017-2019 | DAF sponsor | Exact | show |
| BRESLOW FAM FOUNDATION TR | $90,000 | 9 | $10,000 | 2025 | 2017-2025 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | $82,500 | 5 | $16,000 | 2024 | 2020-2024 | DAF sponsor | Exact | show |
| AMERICAN ENDOWMENT FOUNDATION | $79,205 | 4 | $7,500 | 2024 | 2016, 2022-2024 | DAF sponsor | Exact | show |
| THE COMMUNITY FOUNDATIO OF LOUISVILLE DEPOSITORY INC | $78,000 | 5 | $10,000 | 2016 | 2009, 2011, 2013-2014, 2016 | Public charity | Exact | show |
| LAFFEY-MCHUGH FOUNDATION | $70,000 | 4 | $15,000 | 2024 | 2020-2022, 2024 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| THE BLACKBAUD GIVING FUND | $64,991 | 3 | $20,153 | 2025 | 2022-2023, 2025 | DAF sponsor | Exact | show |
| WILLARD & RUTH JOHNSON CHARITABLE FOUNDATION | $60,000 | 1 | $60,000 | 2016 | 2016 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| THE COMMUNITY FOUNDATION OF LOUISVILLE INC | $50,000 | 2 | $25,000 | 2024 | 2022, 2024 | DAF sponsor | Exact | show |
| THE GALLAGHER FAMILY FOUNDATION | $45,000 | 3 | $25,000 | 2019 | 2016-2017, 2019 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| CHARITIES AID FOUNDATION AMERICA | $39,304 | 3 | $15,024 | 2024 | 2022-2024 | DAF sponsor | Exact | show |
| GOLDMAN SACHS CHARITABLE GIFT FUND | $35,000 | 3 | $15,000 | 2024 | 2022, 2024 | DAF sponsor | Exact | show |
| GRANT FAMILY FUND | $30,300 | 15 | $3,000 | 2024 | 2009, 2011-2024 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| COLOR STREET FOUNDATION INC | $30,000 | 1 | $30,000 | 2021 | 2021 | Public charity | Exact | show |
| RAYMOND JAMES CHARITABLE ENDOWMENT FUND | $30,000 | 2 | $15,000 | 2020 | 2019-2020 | DAF sponsor | Exact | show |
| PAYPAL CHARITABLE GIVING FUND | $29,837 | 3 | $13,575 | 2024 | 2018, 2023-2024 | DAF sponsor | Exact | show |
| MATTEL FOUNDATION | $27,500 | 4 | $5,000 | 2019 | 2015-2017, 2019 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
| MAXINE AND JACK ZARROW FAMILY FOUNDATION | $25,000 | 5 | $5,000 | 2024 | 2020-2024 | Private foundation | Fuzzy filed as “NATIONAL ALOPECIA AREATA FOUNDATION” | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| TOWER CANCER RESEARCH FOUNDATION | CA | H00 | $3,146,877 | $3,636,819 | EXECUTIVE DIRECTOR | $295,587 | Same NTEE code H00, revenue within 2x, same state |
| HAWAII HOSPITAL EDUCATION AND RESEARCH FOUNDATION | HI | H00 | $5,121,276 | $4,237,680 | PRESIDENT AND CEO | $639,983 | Same NTEE code H00, revenue within 2x |
| NASSAU HEALTH CARE FOUNDATION INC | NY | H00 | $2,093,917 | $1,755,974 | CHIEF FINANCIAL OFFICER | $10,058 | Same NTEE code H00, revenue within 2x |
| STRAUB FOUNDATION | HI | H00 | $6,804,543 | $2,703,798 | Board of Director | $5,445,826 | Same NTEE code H00, revenue within 2x |
| BALTIMORE RESEARCH & EDUCATION FOUNDATION INC | MD | H00 | $7,666,542 | $5,275,077 | EXECUTIVE DIRECTOR | $264,562 | Same NTEE code H00, revenue within 2x |
| SAINT MARYS FOUNDATION | MI | H00 | $5,508,872 | $3,805,775 | TRUSTEE; TRINITY GRAND RAPIDS PRES | $924,821 | Same NTEE code H00, revenue within 2x |
| AOAC INTERNATIONAL | MD | H00 | $7,175,708 | $7,046,212 | EXECUTIVE DIRECTOR | $377,204 | Same NTEE code H00, revenue within 2x |
| KANSAS STATE UNIVERSITY RESEARCH FOUNDATION | KS | H00 | $6,457,272 | $5,872,619 | CHAIR | $432,727 | Same NTEE code H00, revenue within 2x |
| WALTER J GATTI FOUNDATION INC | FL | H00 | $4,700,000 | $5,502,627 | PRESIDENT | $0 | Same NTEE code H00, revenue within 2x |
| SOCIETY FOR CARDIOVASCULAR | IL | H00 | $2,823,091 | $2,511,771 | VICE SEC/TRE | $75,000 | Same NTEE code H00, revenue within 2x |
| EAST BAY INSTITUTE FOR RESEARCH AND EDUCATION INC | CA | H00 | $1,669,761 | $1,583,838 | Executive Dir. | $121,480 | Same NTEE code H00, revenue within 5x, same state |
| OLIVE VIEW UCLA EDUCATION AND RESEARCH INSTITUTE INC | CA | H00 | $9,289,670 | $8,952,774 | PSYCHOLOGIST | $167,500 | Same NTEE code H00, revenue within 5x, same state |
| LIMBS FOR LIFE FOUNDATION | OK | H00 | $1,417,218 | $1,156,222 | EXECUTIVE DI | $173,561 | Same NTEE code H00, revenue within 5x |
| RELIANT FOUNDATION INC | MA | H00 | $1,965,392 | $1,804,206 | PRESIDENT | $156,908 | Same NTEE code H00, revenue within 5x |
| CRYPTIC MASONS MEDICAL RESEARCH FOUNDATION INC | IN | H00 | $1,219,987 | $431,797 | Treasurer | $17,500 | Same NTEE code H00, revenue within 5x |
| CENTER FOR DIALYSIS CARE AT HEATHER HILLS | OH | H00 | $1,281,002 | $1,362,589 | PRESIDENT | $0 | Same NTEE code H00, revenue within 5x |
| CORPORATION FOR ADVANCEMENT OF MEDICAL TECHNOLOGIES | MA | H00 | $1,195,711 | $1,033,613 | EXECUTIVE DIRECTOR | $202,898 | Same NTEE code H00, revenue within 5x |
| GATEWAY FOR CANCER RESEARCH INC | IL | H00 | $9,653,289 | $11,190,912 | PRESIDENT & CEO (THROUGH MAY 2025) | $307,301 | Same NTEE code H00, revenue within 5x |
| INDIANA INSTITUTE FOR MEDICAL RESEARCH INC | IN | H00 | $1,036,657 | $1,441,523 | DIRECTOR | $448,530 | Same NTEE code H00, revenue within 5x |
| OCEAN STATE RESEARCH INSTITUTE INC | RI | H00 | $8,345,540 | $8,048,515 | DATA SCIENTIST | $155,625 | Same NTEE code H00, revenue within 5x |
| VETERANS HEALTH RESEARCH INSTITUTE OF CENTRAL NEW YORK INC | NY | H00 | $1,559,517 | $1,461,849 | STATUTORY DI | $366,997 | Same NTEE code H00, revenue within 5x |
| BOSTON VA RESEARCH INSTITUTE INC | MA | H00 | $15,893,775 | $14,923,968 | SR DIRECTOR OF PRECISION MEDICINE | $257,899 | Same NTEE code H00, revenue within 5x |
| AMERICAN COLLEGE OF ENDOCRINOLOGY INC | FL | H00 | $13,177,279 | $12,233,669 | CEO | $522,932 | Same NTEE code H00, revenue within 5x |
| PALO ALTO VETERANS INSTITUTE FOR RESEARCH | CA | H00 | $35,854,131 | $33,029,388 | CHIEF EXECUTIVE OFFICER | $346,209 | Same NTEE code H00, revenue within 10x, same state |
| ALZHEIMERS RESEARCH AND PREVENTION FOUNDATION | AZ | H00 | $734,869 | $657,462 | PRESIDENT | $312,000 | Same NTEE code H00, revenue within 10x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $3,850,182 spent · pay $2,060,356 · grants $337,673 · events $504,001
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $1,137,732 | $910,186 | $56,886 | $170,660 | 29.6% | |
| Other salaries and wages | $609,070 | $487,256 | $30,454 | $91,360 | 15.8% | |
| Fees: other services | $478,941 | $176,597 | $249,424 | $52,920 | 12.4% | |
| All other expenses | $427,686 | $174,878 | $30,721 | $222,087 | 11.1% | |
| Grants to US organizations and governments | $337,673 | $337,673 | - | - | 8.8% | |
| Conferences, conventions and meetings | $180,759 | $160,493 | $19,519 | $747 | 4.7% | |
| Other (as described) | Technology and Software | $123,702 | $98,962 | $6,185 | $18,555 | 3.2% |
| Payroll taxes | $117,816 | $94,252 | $5,892 | $17,672 | 3.1% | |
| Other employee benefits | $117,460 | $93,968 | $5,873 | $17,619 | 3.1% | |
| Other (as described) | Advocacy | $85,779 | $85,779 | $0 | $0 | 2.2% |
| Travel | $83,585 | $66,868 | $4,179 | $12,538 | 2.2% | |
| Pension plan contributions | $78,278 | $62,622 | $3,914 | $11,742 | 2.0% | |
| Occupancy | $23,147 | $17,780 | $2,033 | $3,334 | 0.6% | |
| Other (as described) | Supplies and Equipment | $16,503 | $8,240 | $6,399 | $1,864 | 0.4% |
| Other (as described) | Scholarships | $16,333 | $16,333 | $0 | $0 | 0.4% |
| Insurance | $15,718 | $12,574 | $786 | $2,358 | 0.4% | |
| Fundraising events Event | direct expenses; gross income $1,465,149 | $323,242 | reported apart | |||
| Total | $3,850,182 | 100% |
2024 · Form 990 · $2,978,013 spent · pay $1,573,467 · grants $163,034 · events $346,678
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $909,715 | $721,050 | $53,469 | $135,196 | 30.5% | |
| All other expenses | $360,913 | $142,320 | $55,388 | $163,205 | 12.1% | |
| Other salaries and wages | $320,301 | $253,874 | $18,825 | $47,602 | 10.8% | |
| Fees: other services | $313,443 | $99,804 | $178,164 | $35,475 | 10.5% | |
| Conferences, conventions and meetings | $166,520 | $154,268 | $12,152 | $100 | 5.6% | |
| Grants to US organizations and governments | $163,034 | $163,034 | - | - | 5.5% | |
| Pension plan contributions | $158,525 | $126,820 | $7,927 | $23,778 | 5.3% | |
| Travel | $138,767 | $111,014 | $6,938 | $20,815 | 4.7% | |
| Other employee benefits | $98,278 | $78,622 | $4,914 | $14,742 | 3.3% | |
| Payroll taxes | $86,648 | $69,318 | $4,333 | $12,997 | 2.9% | |
| Occupancy | $72,689 | $60,462 | $890 | $11,337 | 2.4% | |
| Other (as described) | Other Grants and Awards | $69,000 | $0 | $69,000 | $0 | 2.3% |
| Other (as described) | Advocacy | $62,549 | $62,549 | $0 | $0 | 2.1% |
| Insurance | $33,962 | $27,169 | $1,699 | $5,094 | 1.1% | |
| Other (as described) | Telephone and Internet | $13,103 | $10,482 | $656 | $1,965 | 0.4% |
| Other (as described) | Supplies and Equipment | $10,566 | $8,452 | $529 | $1,585 | 0.4% |
| Fundraising events Event | direct expenses; gross income $930,530 | $180,158 | reported apart | |||
| Total | $2,978,013 | 100% |
2023 · Form 990 · $2,545,046 spent · pay $1,559,023 · grants $175,339 · events $385,623
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Pay: officers, directors, trustees, key employees | $831,315 | $665,053 | $41,565 | $124,697 | 32.7% | |
| Other salaries and wages | $389,819 | $311,855 | $19,491 | $58,473 | 15.3% | |
| All other expenses | $190,788 | $106,862 | $31,680 | $52,246 | 7.5% | |
| Grants to US organizations and governments | $175,339 | $175,339 | - | - | 6.9% | |
| Conferences, conventions and meetings | $160,633 | $80,317 | $0 | $80,316 | 6.3% | |
| Pension plan contributions | $127,358 | $101,886 | $6,369 | $19,103 | 5.0% | |
| Other employee benefits | $126,498 | $101,198 | $6,325 | $18,975 | 5.0% | |
| Travel | $122,400 | $97,920 | $6,120 | $18,360 | 4.8% | |
| Fees: other services | $114,749 | $42,855 | $71,324 | $570 | 4.5% | |
| Occupancy | $84,638 | $67,711 | $4,231 | $12,696 | 3.3% | |
| Payroll taxes | $84,033 | $67,226 | $4,202 | $12,605 | 3.3% | |
| Fees: accounting | $40,840 | $0 | $40,840 | $0 | 1.6% | |
| Other (as described) | Research Program | $36,017 | $36,017 | $0 | $0 | 1.4% |
| Insurance | $19,037 | $15,230 | $951 | $2,856 | 0.7% | |
| Other (as described) | Supplies and Equipment | $13,616 | $10,892 | $682 | $2,042 | 0.5% |
| Other (as described) | Telephone and Internet | $12,578 | $10,063 | $628 | $1,887 | 0.5% |
| Other (as described) | Scholarships | $12,524 | $12,524 | $0 | $0 | 0.5% |
| Fees: legal | $2,864 | $0 | $2,864 | $0 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $735,936 | $224,990 | reported apart | |||
| Total | $2,545,046 | 100% |
2022 · Form 990 · $2,381,788 spent · pay $1,406,362 · grants $191,429 · events $188,303
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $676,007 | $565,064 | $34,794 | $76,149 | 28.4% | |
| Pay: officers, directors, trustees, key employees | $473,337 | $362,860 | $34,649 | $75,828 | 19.9% | |
| Grants to US organizations and governments | $186,429 | $186,429 | - | - | 7.8% | |
| All other expenses | $176,440 | $124,194 | $17,934 | $34,312 | 7.4% | |
| Fees: other services | $159,601 | $130,401 | $6,678 | $22,522 | 6.7% | |
| Conferences, conventions and meetings | $141,681 | $70,841 | $0 | $70,840 | 5.9% | |
| Other employee benefits | $111,940 | $85,814 | $8,193 | $17,933 | 4.7% | |
| Occupancy | $87,015 | $68,798 | $6,471 | $11,746 | 3.7% | |
| Travel | $83,163 | $68,218 | $3,298 | $11,647 | 3.5% | |
| Pension plan contributions | $74,343 | $56,991 | $5,442 | $11,910 | 3.1% | |
| Payroll taxes | $70,735 | $54,226 | $5,177 | $11,332 | 3.0% | |
| Other (as described) | Research Program | $43,422 | $43,422 | $0 | $0 | 1.8% |
| Fees: accounting | $26,661 | $0 | $26,661 | $0 | 1.1% | |
| Other (as described) | Scholarships | $16,304 | $16,304 | $0 | $0 | 0.7% |
| Other (as described) | Telephone and Internet | $13,428 | $11,010 | $538 | $1,880 | 0.6% |
| Fees: legal | $13,421 | $0 | $13,421 | $0 | 0.6% | |
| Insurance | $11,483 | $9,416 | $459 | $1,608 | 0.5% | |
| Other (as described) | Supplies and Equipment | $11,378 | $9,331 | $454 | $1,593 | 0.5% |
| Grants to US individuals | $5,000 | $5,000 | - | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $327,759 | $46,622 | reported apart | |||
| Total | $2,381,788 | 100% |
2021 · Form 990 · $1,760,033 spent · pay $1,170,097 · grants $142,354 · events $69,176
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $483,990 | $415,524 | $21,828 | $46,638 | 27.5% | |
| Pay: officers, directors, trustees, key employees | $422,566 | $324,523 | $30,393 | $67,650 | 24.0% | |
| Grants to US organizations and governments | $139,680 | $139,680 | - | - | 7.9% | |
| Other employee benefits | $112,175 | $85,993 | $8,211 | $17,971 | 6.4% | |
| Pension plan contributions | $95,813 | $73,450 | $7,014 | $15,349 | 5.4% | |
| Occupancy | $83,616 | $68,565 | $3,345 | $11,706 | 4.8% | |
| Payroll taxes | $55,553 | $42,586 | $4,067 | $8,900 | 3.2% | |
| Information technology | $52,218 | $42,818 | $2,090 | $7,310 | 3.0% | |
| Conferences, conventions and meetings | $52,050 | $26,025 | - | $26,025 | 3.0% | |
| Other (as described) | Printing and Publications | $44,089 | $36,153 | $1,763 | $6,173 | 2.5% |
| Other (as described) | Research Program | $36,997 | $36,997 | - | - | 2.1% |
| Fees: other services | $32,067 | $5,624 | $12,531 | $13,912 | 1.8% | |
| All other expenses | $30,795 | $19,289 | $2,279 | $9,227 | 1.7% | |
| Other (as described) | Equipment Maintence & Leasing | $26,371 | $21,624 | $1,055 | $3,692 | 1.5% |
| Office expenses | $23,150 | $18,983 | $925 | $3,242 | 1.3% | |
| Fees: accounting | $20,812 | - | $20,812 | - | 1.2% | |
| Other (as described) | Postage and Shipping | $20,209 | $16,572 | $808 | $2,829 | 1.1% |
| Insurance | $13,727 | $11,256 | $549 | $1,922 | 0.8% | |
| Fees: legal | $8,165 | - | $8,165 | - | 0.5% | |
| Travel | $3,316 | $2,720 | $132 | $464 | 0.2% | |
| Grants to US individuals | $2,674 | $2,674 | - | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $17,126 | reported apart | |||
| Total | $1,760,033 | 100% |
2020 · Form 990 · $1,957,606 spent · pay $1,244,955 · grants $226,743 · events $49,482
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $525,719 | $403,016 | $38,483 | $84,220 | 26.9% | |
| Pay: officers, directors, trustees, key employees | $431,425 | $330,731 | $31,580 | $69,114 | 22.0% | |
| Grants to US organizations and governments | $211,237 | $211,237 | - | - | 10.8% | |
| Other employee benefits | $121,868 | $93,424 | $8,920 | $19,524 | 6.2% | |
| Pension plan contributions | $103,145 | $79,071 | $7,550 | $16,524 | 5.3% | |
| Other (as described) | Printing and Publications | $80,890 | $66,330 | $3,235 | $11,325 | 4.1% |
| Occupancy | $80,454 | $65,972 | $3,218 | $11,264 | 4.1% | |
| Payroll taxes | $62,798 | $48,140 | $4,598 | $10,060 | 3.2% | |
| Conferences, conventions and meetings | $42,421 | $34,785 | $1,697 | $5,939 | 2.2% | |
| Information technology | $40,624 | $33,311 | $1,626 | $5,687 | 2.1% | |
| All other expenses | $39,383 | $34,292 | $2,134 | $2,957 | 2.0% | |
| Other (as described) | Research Program | $39,342 | $39,342 | - | - | 2.0% |
| Fees: other services | $34,028 | $6,148 | $10,546 | $17,334 | 1.7% | |
| Other (as described) | Bad Debt Expense | $34,020 | - | $34,020 | - | 1.7% |
| Other (as described) | Postage and Shipping | $27,303 | $22,389 | $1,092 | $3,822 | 1.4% |
| Fees: accounting | $23,091 | - | $23,091 | - | 1.2% | |
| Office expenses | $19,702 | $16,159 | $784 | $2,759 | 1.0% | |
| Grants to US individuals | $15,506 | $15,506 | - | - | 0.8% | |
| Insurance | $11,813 | $9,686 | $473 | $1,654 | 0.6% | |
| Travel | $10,817 | $8,870 | $433 | $1,514 | 0.6% | |
| Fees: legal | $2,020 | - | $2,020 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $7,061 | reported apart | |||
| Total | $1,957,606 | 100% |
2015 · Form 990 · $2,181,342 spent · pay $854,099 · grants $468,119 · events $181,624
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $345,632 | $345,632 | - | - | 15.8% | |
| Pay: officers, directors, trustees, key employees | $327,538 | $279,606 | $22,362 | $25,570 | 15.0% | |
| Other salaries and wages | $313,801 | $267,880 | $21,424 | $24,497 | 14.4% | |
| Conferences, conventions and meetings | $181,624 | $178,425 | $1,401 | $1,798 | 8.3% | |
| Other (as described) | PRINTING & PUBLICATIONS | $122,008 | $91,307 | $307 | $30,394 | 5.6% |
| Other (as described) | TREATMENT DEVELOPMENT | $110,120 | $110,120 | $0 | $0 | 5.0% |
| All other expenses | $91,321 | $73,122 | $5,069 | $13,130 | 4.2% | |
| Pension plan contributions | $86,506 | $73,824 | $5,922 | $6,760 | 4.0% | |
| Other employee benefits | $73,824 | $64,135 | $4,245 | $5,444 | 3.4% | |
| Grants to US individuals | $72,487 | $72,487 | - | - | 3.3% | |
| Occupancy | $66,502 | $57,774 | $3,824 | $4,904 | 3.0% | |
| Travel | $55,987 | $54,897 | $424 | $666 | 2.6% | |
| Other (as described) | POSTAGE & SHIPPING | $52,717 | $37,558 | $279 | $14,880 | 2.4% |
| Payroll taxes | $52,430 | $44,744 | $3,589 | $4,097 | 2.4% | |
| Grants outside the US | $50,000 | $50,000 | - | - | 2.3% | |
| Information technology | $43,248 | $29,632 | $1,874 | $11,742 | 2.0% | |
| Fees: accounting | $40,372 | $0 | $33,322 | $7,050 | 1.9% | |
| Other (as described) | AWARENESS FUNDRAISING EXPENSES | $24,798 | $12,908 | $0 | $11,890 | 1.1% |
| Fees: investment management | $19,424 | $0 | $19,424 | $0 | 0.9% | |
| Insurance | $14,675 | $12,749 | $844 | $1,082 | 0.7% | |
| Office expenses | $14,363 | $13,185 | $291 | $887 | 0.7% | |
| Fees: legal | $11,276 | $10,235 | $1,018 | $23 | 0.5% | |
| Fees: other services | $6,227 | $5,410 | $358 | $459 | 0.3% | |
| Depreciation and depletion | $4,462 | $957 | $3,424 | $81 | 0.2% | |
| Total | $2,181,342 | 100% |
2014 · Form 990 · $2,299,718 spent · pay $896,160 · grants $364,704 · events $196,682
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $512,916 | $431,389 | $39,858 | $41,669 | 22.3% | |
| Grants to US organizations and governments | $237,738 | $237,738 | - | - | 10.3% | |
| Conferences, conventions and meetings | $196,682 | $196,223 | $18 | $441 | 8.6% | |
| Other (as described) | PRINTING & PUBLICATIONS | $194,716 | $148,042 | $2,708 | $43,966 | 8.5% |
| Fees: other services | $160,078 | $154,628 | $5,450 | $0 | 7.0% | |
| Other employee benefits | $146,056 | $136,913 | $4,523 | $4,620 | 6.4% | |
| Pay: officers, directors, trustees, key employees | $112,000 | $94,198 | $8,703 | $9,099 | 4.9% | |
| Travel | $107,411 | $97,543 | $4,660 | $5,208 | 4.7% | |
| Office expenses | $104,707 | $90,688 | $9,718 | $4,301 | 4.6% | |
| Information technology | $79,777 | $68,972 | $1,138 | $9,667 | 3.5% | |
| Grants to US individuals | $76,966 | $76,966 | - | - | 3.3% | |
| Pension plan contributions | $72,795 | $61,314 | $6,135 | $5,346 | 3.2% | |
| Fees: accounting | $52,423 | $0 | $48,349 | $4,074 | 2.3% | |
| Payroll taxes | $52,393 | $43,620 | $4,448 | $4,325 | 2.3% | |
| Grants outside the US | $50,000 | $50,000 | - | - | 2.2% | |
| Other (as described) | AWARENESS FUNDRAISING EXPENSES | $49,486 | $0 | $0 | $49,486 | 2.2% |
| Occupancy | $47,780 | $41,808 | $2,723 | $3,249 | 2.1% | |
| Fees: investment management | $18,700 | $3,207 | $9,998 | $5,495 | 0.8% | |
| Insurance | $11,722 | $10,061 | $774 | $887 | 0.5% | |
| Other (as described) | FED STATE TAX & REGISTRATIONS | $9,843 | $4,013 | $2,669 | $3,161 | 0.4% |
| Depreciation and depletion | $3,716 | $3,251 | $212 | $253 | 0.2% | |
| Fees: legal | $1,063 | $0 | $1,063 | $0 | 0.0% | |
| Other (as described) | OTHER | $750 | $0 | $750 | $0 | 0.0% |
| Total | $2,299,718 | 100% |
2013 · Form 990 · $2,060,231 spent · pay $755,788 · grants $286,440 · events $192,366
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $449,120 | $403,510 | $27,459 | $18,151 | 21.8% | |
| Office expenses | $243,237 | $187,306 | $1,957 | $53,974 | 11.8% | |
| Grants to US organizations and governments | $200,000 | $200,000 | - | - | 9.7% | |
| Conferences, conventions and meetings | $192,366 | $189,055 | $3,311 | - | 9.3% | |
| Other (as described) | REGISTRY & TREATMENT DE | $176,959 | $176,959 | $0 | $0 | 8.6% |
| Pay: officers, directors, trustees, key employees | $145,635 | $109,226 | $14,563 | $21,846 | 7.1% | |
| Fees: other services | $120,553 | $91,088 | $17,617 | $11,848 | 5.9% | |
| Grants outside the US | $86,440 | $86,440 | - | - | 4.2% | |
| Other employee benefits | $64,141 | $55,626 | $4,446 | $4,069 | 3.1% | |
| Occupancy | $63,401 | $47,551 | $9,510 | $6,340 | 3.1% | |
| Pension plan contributions | $49,432 | $43,197 | $3,618 | $2,617 | 2.4% | |
| Other (as described) | ALOPECIA AWARENESS, LIN | $47,498 | $34,825 | $0 | $12,673 | 2.3% |
| Payroll taxes | $47,460 | $41,392 | $3,171 | $2,897 | 2.3% | |
| Information technology | $43,662 | $40,317 | $1,162 | $2,183 | 2.1% | |
| All other expenses | $41,931 | $32,569 | $2,606 | $6,756 | 2.0% | |
| Other (as described) | SUPPORT GROUPS & ASCOT | $35,365 | $35,365 | $0 | $0 | 1.7% |
| Fees: accounting | $26,681 | $10,220 | $16,461 | - | 1.3% | |
| Other (as described) | FED - STATE TAX & REGIS | $14,467 | $0 | $4,340 | $10,127 | 0.7% |
| Insurance | $8,880 | $5,328 | $2,664 | $888 | 0.4% | |
| Depreciation and depletion | $3,003 | $1,235 | $1,768 | - | 0.1% | |
| Total | $2,060,231 | 100% |
2010 · Form 990 · $1,231,959 spent · pay $501,262 · grants $61,247 · events $206,918
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $272,919 | $230,587 | $19,827 | $22,505 | 22.2% | |
| Conferences, conventions and meetings | $185,801 | $183,638 | $2,163 | $0 | 15.1% | |
| Pay: officers, directors, trustees, key employees | $109,200 | $65,520 | $10,920 | $32,760 | 8.9% | |
| Other (as described) | PRINTING & PUBLICATIONS | $106,760 | $77,834 | $0 | $28,926 | 8.7% |
| Other (as described) | RESEARCH | $82,131 | $82,131 | $0 | $0 | 6.7% |
| Occupancy | $60,460 | $42,322 | $12,092 | $6,046 | 4.9% | |
| Other (as described) | POSTAGE & SHIPPING | $57,488 | $39,844 | $0 | $17,644 | 4.7% |
| Pension plan contributions | $54,448 | $41,546 | $4,612 | $8,290 | 4.4% | |
| All other expenses | $43,050 | $22,327 | $7,714 | $13,009 | 3.5% | |
| Information technology | $37,157 | $33,441 | $0 | $3,716 | 3.0% | |
| Grants to US organizations and governments | $33,329 | $33,329 | - | - | 2.7% | |
| Other employee benefits | $32,556 | $25,228 | $2,620 | $4,708 | 2.6% | |
| Payroll taxes | $32,139 | $25,185 | $2,489 | $4,465 | 2.6% | |
| Grants to US individuals | $27,918 | $27,918 | - | - | 2.3% | |
| Other (as described) | AWARENESS | $23,154 | $23,154 | $0 | $0 | 1.9% |
| Insurance | $17,107 | $9,739 | $5,464 | $1,904 | 1.4% | |
| Fees: accounting | $16,570 | $4,739 | $11,831 | $0 | 1.3% | |
| Other (as described) | ALOPECIA MARKETPLACE | $16,000 | $16,000 | $0 | $0 | 1.3% |
| Fees: other services | $10,032 | $8,343 | $814 | $875 | 0.8% | |
| Office expenses | $8,575 | $6,431 | $1,715 | $429 | 0.7% | |
| Depreciation and depletion | $5,165 | $4,132 | $1,033 | $0 | 0.4% | |
| Fundraising events Event | direct expenses; gross income - | $21,117 | reported apart | |||
| Total | $1,231,959 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2025 | $10,000 | 1 | |
| 2024 | $50,000 | 5 | |
| 2023 | $60,000 | 6 | |
| 2022 | $40,000 | 4 | |
| 2021 | $40,000 | 4 | |
| 2020 | $50,000 | 5 | |
| 2019 | $40,000 | 4 | |
| 2018 | $40,000 | 4 | |
| 2017 | $40,000 | 4 | |
| 2016 | $40,000 | 4 | |
| 2015 | $20,000 | 4 | |
| 2014 | 8 | ||
| 2013 | 8 | ||
| 2012 | 7 | ||
| 2011 | 1 | ||
| 2010 | 4 | ||
| 2009 | 7 | ||
| 2008 | 4 |
Issues: Health Issues, Budget/Appropriations
Firms hired: HEALTH AND MEDICINE COUNSEL, HEALTH AND MEDICINE COUNSEL, LLC, LOBBYIT.COM, SPARKLIGHT COMMUNICATIONS
State business registration
- NATIONAL ALOPECIA AREATA FOUNDATION CA, Employee benefit plan sponsor (Form 5500), Filed for plan year 2025
The same business name in the same state, from the state’s official registry data.
Trademarks
6 US trademarks, 6 live.
- National Alopecia Areata Foundation 6 marks, CA EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| WALK FOR ALOPECIA NATIONAL ALOPECIA AREATA FOUNDATION. | 98049677 | 2023-06-19 | Registered | TRTYRAP, file of 2026-04-03 |
| NATIONAL ALOPECIA AREATA FOUNDATION | 98049572 | 2023-06-19 | Registered | TRTYRAP, file of 2026-04-03 |
| WALK FOR ALOPECIA | 98049545 | 2023-06-19 | Registered | TRTYRAP, file of 2026-04-03 |
| NATIONAL ALOPECIA AREATA FOUNDATION | 98049523 | 2023-06-19 | Registered | TRTYRAP, file of 2026-04-03 |
| NAAF | 97902004 | 2023-04-22 | Registered | TRTYRAP, file of 2026-04-03 |
| TORTOISE & HAIR | 77147647 | 2007-04-03 | Registered and renewed | TRTYRAP, file of 2026-04-03 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Also on this site Fuzzy
| Record | Name as filed | Where | Dataset | Matched by |
|---|---|---|---|---|
| Plan sponsor | NATIONAL ALOPECIA AREATA FOUNDATION | CA | Form 5500 (employee benefit plans) | EIN (EXACT) |
Matched by name (and state) or EIN only; a shared name is not proof of the same person or organization.
Comments