CUREPSP INC

Cite this

Plain text CUREPSP INC. furp.org, nonprofit organization profile, tax years 2011–2024. https://furp.org/org/curepsp-inc-521704978. Retrieved 2026-10-26.

APA furp.org. (n.d.). CUREPSP INC [Nonprofit organization profile; tax years 2011–2024]. Retrieved October 26, 2026, from https://furp.org/org/curepsp-inc-521704978

MLA “CUREPSP INC.” furp.org, tax years 2011–2024, https://furp.org/org/curepsp-inc-521704978. Accessed 26 Oct. 2026.

Retrieved 2026-10-26; covers tax years 2011–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $7.9M · expenses $5.9M · assets $11.0M

EIN
52-1704978
Address
325 HUDSON STREET 4TH FLOOR, NEW YORK, NY 10013-1045
Website
WWW.CUREPSP.ORG
NTEE code
G90Z
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
June 1991 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

8 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Kristophe J Diaz EXE DIR AND CHIEF SCIENCE OFFICER2020-2024 $290,496$1,141,376 1
Jessica Shurer DIR. CLINICAL AFFAIRS AND ADVOCACY2019-2024 $134,293$377,248 1
Richard T Spain Iv DIRECTOR, DEVELOPMENT2023-2024 $184,228$332,932 1
Jennifer L Brummet ASSOC. DIR. CLINICAL AFFAIRS AND ADVOCACY2023-2024 $171,953$315,040 1
David Kemp (former) President2015-2021 $208,383$1,448,364 1
Richard Zyne (former) FORMER PRESI2011-2015 $108,159$458,184 1
Jaclyn C Zendrian (former) VP-EVENTS2022-2023 $144,507$264,146 1
Alexander Klein - thru 022019 (former) Dir-Scient Affairs2018 $153,439$153,439 1

Officers and directors, no compensation reported

62 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Jack Phillips CHAIR2023-2024 25 $0 reported 1
William Mcfarland DIRECTOR2013-2024 3 $0 reported 1
Amy Branch VICE CHAIR2013-2024 8 $0 reported 1
Justin Shea TREASURER2011-2024 2 $0 reported 1
Lawrence Levien SECRETARY2020-2024 1 $0 reported 1
Lawrence Golbe CHAIR - SCIENTIFIC ADVISOR2011-2024 2 $0 reported 1
James Mcclellan DIRECTOR2020-2024 0 $0 reported 1
Ileen Mcfarland DIRECTOR2015-2024 35 $0 reported 1
Louis Foxwell DIRECTOR2022-2024 3 $0 reported 1
Alexander Pantelyat DIRECTOR2020-2024 3 $0 reported 1
Paul Freeman DIRECTOR2011-2024 3 $0 reported 1
Mana Bhatt Sanghvi DIRECTOR2020-2024 2 $0 reported 1
Nadine Tatton DIRECTOR2022-2024 0 $0 reported 1
Maria Schmidt DIRECTOR2024 2 $0 reported 1
Maggie Orseth (former) DIRECTOR2017-2023 1 $0 reported 1
Andrew Maus (former) CHAIR2020-2022 6 $0 reported 1
Larry Golbe (former) CHAIR SAB2020-2022 12 $0 reported 1
Jack Philips (former) DIRECTOR2020-2022 5 $0 reported 1
Robert Hand (former) DIRECTOR (THROUGH 10/22)2020-2022 1 $0 reported 1
Everett Cook Thru 622 (former) Director2021 2 $0 reported 1
John Sr Burhoe (former) Chair Emeritus2018-2021 3 $0 reported 1
Brent R Bluett thru 522 (former) Director2021 3 $0 reported 1
Jessica Shurer Thru 1021 (former) Director2021 3 $0 reported 1
Everett Cook (former) Director2011-2020 2 $0 reported 1
Brent R Bluett (former) Director2019-2020 3 $0 reported 1
Larry Levien (former) Secretary2018-2019 2 $0 reported 1
Jeff Freidman thru 102019 (former) Director2019 2 $0 reported 1
Larry Golbe rejoined 12020 (former) Director2019 10 $0 reported 1
Andy Maus (former) Director2019 2 $0 reported 1
Stephen Goldman (former) Director2013-2019 2 $0 reported 1
McClellan James (former) Director2018-2019 2 $0 reported 1
Orseth Maggie (former) Director2018-2019 3 $0 reported 1
John Jr Burhoe thru 32020 (former) Director2019 2 $0 reported 1
Alex Pantelyat (former) Director2019 2 $0 reported 1
Bobby Hand (former) Director2019 2 $0 reported 1
Jeff Freidman (former) Director2018 2 $0 reported 1
Larry Golbe thru 022019 (former) Director2018 8 $0 reported 1
John Jr Burhoe (former) Director2017-2018 2 $0 reported 1
Mike Dixon (former) Director2018 2 $0 reported 1
James Shea (former) TREASURER2015-2017 2 $0 reported 1
Brendan Dixon (former) SECRETARY2013-2017 2 $0 reported 1
John Burhoe (former) CHAIR EMERIT2011-2017 10 $0 reported 1
Jeffrey Friedman (former) DIRECTOR2012-2017 2 $0 reported 1
Jim Mcclellan (former) DIRECTOR2011-2017 2 $0 reported 1
Adam Murphy (former) DIRECTOR2013-2016 2 $0 reported 1
George Jankiewicz (former) TREASURER2012-2016 2 $0 reported 1
Yvette Bordelon (former) DIRECTOR2011-2015 2 $0 reported 1
Heather Cianci (former) DIRECTOR2011-2015 2 $0 reported 1
Burton Benjamin (former) DIRECTOR2013-2015 2 $0 reported 1
Dan Johnson (former) Director2011-2013 4 $0 reported 1
Ileen Watson (former) Director2013 2 $0 reported 1
John Porter (former) Director2011-2013 2 $0 reported 1
Patricia Richardson (former) Director2011-2012 2 $0 reported 1
David Peebler (former) Director2011-2012 2 $0 reported 1
Richard Allen Janney (former) Director2011-2012 2 $0 reported 1
Laurie Huffman (former) Director2011-2012 2 $0 reported 1
Rachel Gross (former) Director2012 2 $0 reported 1
Janet Edmunson (former) Chairman2011-2012 4 $0 reported 1
Robert Livernois (former) Director2011 2 $0 reported 1
Ted Zerwin (former) Director2011 2 $0 reported 1
Susan Mclaughlin (former) Director2011 2 $0 reported 1
Murray Goldstein (former) Director2011 2 $0 reported 1

People by year

2024 · 18 people listed · 4 paid, $781K · 17 employees · 350 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KRISTOPHE J DIAZ EXE DIR AND CHIEF SCIENCE OFFICER40 $266,514$0$23,982 $290,4961
RICHARD T SPAIN IV DIRECTOR, DEVELOPMENT40 $161,643$0$22,585 $184,2281
JENNIFER L BRUMMET ASSOC. DIR. CLINICAL AFFAIRS AND ADVOCACY40 $149,533$0$22,420 $171,9531
JESSICA SHURER DIR. CLINICAL AFFAIRS AND ADVOCACY40 $113,088$0$21,205 $134,2931
JACK PHILLIPS CHAIR25 $0$0$0 $01
AMY BRANCH VICE CHAIR8 $0$0$0 $01
JUSTIN SHEA TREASURER2 $0$0$0 $01
LAWRENCE LEVIEN SECRETARY1 $0$0$0 $01
LAWRENCE GOLBE CHAIR - SCIENTIFIC ADVISOR2 $0$0$0 $01
WILLIAM MCFARLAND DIRECTOR3 $0$0$0 $01
JAMES MCCLELLAN DIRECTOR0 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR35 $0$0$0 $01
LOUIS FOXWELL DIRECTOR3 $0$0$0 $01
ALEXANDER PANTELYAT DIRECTOR3 $0$0$0 $01
PAUL FREEMAN DIRECTOR3 $0$0$0 $01
MANA BHATT SANGHVI DIRECTOR2 $0$0$0 $01
NADINE TATTON DIRECTOR0 $0$0$0 $01
MARIA SCHMIDT DIRECTOR2 $0$0$0 $01
2023 · 19 people listed · 5 paid, $813K · 14 employees · 318 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KRISTOPHE J DIAZ EXE DIR AND CHIEF SCIENCE OFFICER40 $234,003$0$17,628 $251,6311
RICHARD T SPAIN IV DIRECTOR, DEVELOPMENT40 $131,237$0$17,467 $148,7041
JACLYN C ZENDRIAN VP-EVENTS40 $126,164$0$18,343 $144,5071
JENNIFER L BRUMMET ASSOC. DIR, SCIENTIFIC AFFAIRS AND PARTNER40 $125,677$0$17,410 $143,0871
JESSICA SHURER DIR. CLINICAL AFFAIRS AND ADVOCACY40 $104,783$0$20,158 $124,9411
JACK PHILLIPS CHAIR (BEGINNING 1/24)21 $0$0$0 $01
WILLIAM MCFARLAND CHAIR (THROUGH 1/24)2 $0$0$0 $01
AMY BRANCH VICE CHAIR10 $0$0$0 $01
JUSTIN SHEA TREASURER2 $0$0$0 $01
LAWRENCE LEVIEN SECRETARY1 $0$0$0 $01
LAWRENCE GOLBE CHAIR - SCIENTIFIC ADVISORY BOARD6 $0$0$0 $01
JAMES MCCLELLAN DIRECTOR1 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR35 $0$0$0 $01
MAGGIE ORSETH DIRECTOR1 $0$0$0 $01
LOUIS FOXWELL DIRECTOR3 $0$0$0 $01
ALEXANDER PANTELYAT DIRECTOR2 $0$0$0 $01
PAUL FREEMAN DIRECTOR2 $0$0$0 $01
MANA BHATT SANGHVI DIRECTOR2 $0$0$0 $01
NADINE TATTON DIRECTOR1 $0$0$0 $01
2022 · 19 people listed · 3 paid, $449K · 13 employees · 270 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KRISTOPHE DIAZ EXECUTIVE DIRECTOR40 $195,042$0$15,937 $210,9791
JACLYN C ZENDRIAN SENIOR DIRECTOR40 $101,689$0$17,950 $119,6391
JESSICA SHURER DIRECTOR, PATIENT AND CAREPARTNER ADVOCACY40 $100,190$0$17,824 $118,0141
ANDREW MAUS CHAIR6 $0$0$0 $01
AMY BRANCH VICE CHAIR12 $0$0$0 $01
LARRY GOLBE CHAIR SAB12 $0$0$0 $01
JUSTIN SHEA TREASURER2 $0$0$0 $01
LAWRENCE LEVIEN SECRETARY1 $0$0$0 $01
JACK PHILIPS DIRECTOR5 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR35 $0$0$0 $01
MANA BHATT SANGHVI DIRECTOR2 $0$0$0 $01
JAMES MCCLELLAN DIRECTOR1 $0$0$0 $01
MAGGIE ORSETH DIRECTOR1 $0$0$0 $01
ALEXANDER PANTELYAT DIRECTOR2 $0$0$0 $01
ROBERT HAND DIRECTOR (THROUGH 10/22)1 $0$0$0 $01
PAUL FREEMAN DIRECTOR2 $0$0$0 $01
WILLIAM MCFARLAND DIRECTOR4 $0$0$0 $01
LOUIS FOXWELL DIRECTOR3 $0$0$0 $01
NADINE TATTON DIRECTOR1 $0$0$0 $01
2021 · 20 people listed · 2 paid, $415K · 12 employees · 260 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
David Kemp President40 $200,000$0$8,383 $208,3831
Kristophe Diaz Executive Dir.40 $190,885$0$15,536 $206,4211
William McFarland Chair6 $0$0$0 $01
Amy Branch Vice Chair10 $0$0$0 $01
Justin Shea Treasurer2 $0$0$0 $01
Lawrence Levien Secretary1 $0$0$0 $01
Everett Cook Thru 622 Director2 $0$0$0 $01
Jack Philips Director5 $0$0$0 $01
John Sr Burhoe Chair Emeritus3 $0$0$0 $01
Larry Golbe Chair SAB12 $0$0$0 $01
Ileen McFarland Director35 $0$0$0 $01
Brent R Bluett thru 522 Director3 $0$0$0 $01
Mana Bhatt Sanghvi Director2 $0$0$0 $01
James McClellan Director1 $0$0$0 $01
Maggie Orseth Director1 $0$0$0 $01
Jessica Shurer Thru 1021 Director3 $0$0$0 $01
Alexander Pantelyat Director2 $0$0$0 $01
Robert Hand Director1 $0$0$0 $01
Andrew Maus Director2 $0$0$0 $01
Paul Freeman Director2 $0$0$0 $01
2020 · 19 people listed · 2 paid, $384K · 12 employees · 170 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
David Kemp President40 $194,000$0$8,377 $202,3771
Kristophe Diaz VP-Sci. Affairs40 $169,932$0$11,917 $181,8491
William McFarland Chair6 $0$0$0 $01
Amy Branch Vice Chair15 $0$0$0 $01
Justin Shea Treasurer2 $0$0$0 $01
Lawrence Levien Secretary2 $0$0$0 $01
Everett Cook Director2 $0$0$0 $01
Jack Philips Director0 $0$0$0 $01
John Sr Burhoe Chair Emeritus3 $0$0$0 $01
Larry Golbe Chair SAB12 $0$0$0 $01
Ileen McFarland Director40 $0$0$0 $01
Andrew Maus Director2 $0$0$0 $01
Brent R Bluett Director3 $0$0$0 $01
Mana Bhatt Sanghvi Director0 $0$0$0 $01
James McClellan Director1 $0$0$0 $01
Maggie Orseth Director3 $0$0$0 $01
Jessica Shurer Director3 $0$0$0 $01
Alexander Pantelyat Director2 $0$0$0 $01
Robert Hand Director1 $0$0$0 $01
2019 · 19 people listed · 1 paid, $228K · 12 employees · 170 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
David Kemp President40 $220,000$0$8,305 $228,3051
William McFarland Chair6 $0$0$0 $01
Amy Branch Vice Chair15 $0$0$0 $01
Justin Shea Treasurer2 $0$0$0 $01
Larry Levien Secretary2 $0$0$0 $01
Everett Cook Director2 $0$0$0 $01
Jeff Freidman thru 102019 Director2 $0$0$0 $01
John Sr Burhoe Chair Emeritus3 $0$0$0 $01
Larry Golbe rejoined 12020 Director10 $0$0$0 $01
Ileen McFarland Director40 $0$0$0 $01
Andy Maus Director2 $0$0$0 $01
Brent Bluett Director3 $0$0$0 $01
Stephen Goldman Director2 $0$0$0 $01
McClellan James Director2 $0$0$0 $01
Orseth Maggie Director3 $0$0$0 $01
John Jr Burhoe thru 32020 Director2 $0$0$0 $01
Jessica Shurer Director3 $0$0$0 $01
Alex Pantelyat Director2 $0$0$0 $01
Bobby Hand Director2 $0$0$0 $01
2018 · 16 people listed · 2 paid, $369K · 14 employees · 170 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
David Kemp President40 $199,955$0$15,500 $215,4551
Alexander Klein - thru 022019 Dir-Scient Affairs40 $153,439$0$0 $153,4391
William McFarland Chair6 $0$0$0 $01
Amy Branch Vice Chair30 $0$0$0 $01
Justin Shea Treasurer2 $0$0$0 $01
Larry Levien Secretary2 $0$0$0 $01
Everett Cook Director2 $0$0$0 $01
Jeff Freidman Director2 $0$0$0 $01
John Sr Burhoe Director4 $0$0$0 $01
Larry Golbe thru 022019 Director8 $0$0$0 $01
Ileen McFarland Director35 $0$0$0 $01
John Jr Burhoe Director2 $0$0$0 $01
Mike Dixon Director2 $0$0$0 $01
Stephen Goldman Director2 $0$0$0 $01
McClellan James Director2 $0$0$0 $01
Orseth Maggie Director3 $0$0$0 $01
2017 · 14 people listed · 1 paid, $200K · 10 employees · 170 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DAVID KEMP PRESIDENT45 $199,998$0$0 $199,9981
WILLIAM MCFARLAND CHAIR8 $0$0$0 $01
EVERETT COOK VICE CHAIR3 $0$0$0 $01
JAMES SHEA TREASURER2 $0$0$0 $01
BRENDAN DIXON SECRETARY2 $0$0$0 $01
MAGGIE ORSETH DIRECTOR2 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR30 $0$0$0 $01
JOHN BURHOE CHAIR EMERIT10 $0$0$0 $01
LAWRENCE GOLBE DIRECTOR2 $0$0$0 $01
AMY BRANCH DIRECTOR30 $0$0$0 $01
JOHN T BURHOE JR DIRECTOR2 $0$0$0 $01
STEPHEN GOLDMAN DIRECTOR4 $0$0$0 $01
JEFFREY FRIEDMAN DIRECTOR2 $0$0$0 $01
JIM MCCLELLAN DIRECTOR2 $0$0$0 $01
2016 · 14 people listed · 1 paid, $200K · 17 employees · 180 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DAVID KEMP PRESIDENT45 $200,000$0$0 $200,0001
EVERETT COOK VICE CHAIR2 $0$0$0 $01
ADAM MURPHY DIRECTOR2 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR2 $0$0$0 $01
JOHN BURHOE CHAIR EMERIT2 $0$0$0 $01
LAWRENCE GOLBE DIRECTOR2 $0$0$0 $01
AMY BRANCH DIRECTOR2 $0$0$0 $01
BRENDAN DIXON SECRETARY2 $0$0$0 $01
GEORGE JANKIEWICZ TREASURER2 $0$0$0 $01
STEPHEN GOLDMAN DIRECTOR2 $0$0$0 $01
WILLIAM MCFARLAND CHAIR2 $0$0$0 $01
JEFFREY FRIEDMAN DIRECTOR2 $0$0$0 $01
JIM MCCLELLAN DIRECTOR2 $0$0$0 $01
JAMES SHEA DIRECTOR2 $0$0$0 $01
2015 · 18 people listed · 2 paid, $302K · 19 employees · 100 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DAVID KEMP PRESIDENT40 $193,846$0$0 $193,8461
RICHARD ZYNE FORMER PRESI- $108,159$0$0 $108,1591
EVERETT COOK VICE CHAIR2 $0$0$0 $01
PAUL FREEMAN DIRECTOR2 $0$0$0 $01
ADAM MURPHY DIRECTOR2 $0$0$0 $01
ILEEN MCFARLAND DIRECTOR2 $0$0$0 $01
YVETTE BORDELON DIRECTOR2 $0$0$0 $01
HEATHER CIANCI DIRECTOR2 $0$0$0 $01
LAWRENCE GOLBE DIRECTOR2 $0$0$0 $01
AMY BRANCH DIRECTOR2 $0$0$0 $01
BRENDAN DIXON SECRETARY2 $0$0$0 $01
GEORGE JANKIEWICZ TREASURER2 $0$0$0 $01
STEPHEN GOLDMAN DIRECTOR2 $0$0$0 $01
WILLIAM MCFARLAND CHAIR2 $0$0$0 $01
JEFFREY FRIEDMAN DIRECTOR2 $0$0$0 $01
JIM MCCLELLAN DIRECTOR2 $0$0$0 $01
JAMES SHEA DIRECTOR2 $0$0$0 $01
BURTON BENJAMIN DIRECTOR2 $0$0$0 $01
2013 · 19 people listed · 1 paid, $119K · 9 employees · 140 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RICHARD ZYNE President & CEO40 $119,498$0$0 $119,4981
BURTON BENJAMIN Director2 $0$0$0 $01
DAN JOHNSON Director4 $0$0$0 $01
ILEEN WATSON Director2 $0$0$0 $01
YVETTE BORDELON Director2 $0$0$0 $01
HEATHER CIANCI Director2 $0$0$0 $01
LAWRENCE GOLBE Director4 $0$0$0 $01
ADAM MURPHY Director2 $0$0$0 $01
AMY BRANCH Director2 $0$0$0 $01
BRENDAN DIXON Director2 $0$0$0 $01
STEPHEN GOLDMAN Director2 $0$0$0 $01
JOHN PORTER Director2 $0$0$0 $01
JEFFREY FRIEDMAN Director2 $0$0$0 $01
JIM MCCLELLAN Director2 $0$0$0 $01
JUSTIN SHEA Director2 $0$0$0 $01
EVERETT COOK Vice President4 $0$0$0 $01
JOHN BURHOE Chairman4 $0$0$0 $01
GEORGE JANKIEWICZ Treasurer2 $0$0$0 $01
WILLIAM MCFARLAND Secretary4 $0$0$0 $01
2012 · 18 people listed · 1 paid, $122K · 10 employees · 140 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RICHARD ZYNE President & CEO40 $122,117$0$0 $122,1171
JUSTIN SHEA Director2 $0$0$0 $01
JIM MCCLELLAN Director2 $0$0$0 $01
JEFFREY FRIEDMAN Director2 $0$0$0 $01
PATRICIA RICHARDSON Director2 $0$0$0 $01
JOHN PORTER Director2 $0$0$0 $01
DAVID PEEBLER Director2 $0$0$0 $01
RICHARD ALLEN JANNEY Director2 $0$0$0 $01
LAURIE HUFFMAN Director2 $0$0$0 $01
RACHEL GROSS Director2 $0$0$0 $01
LAWRENCE GOLBE Director4 $0$0$0 $01
HEATHER CIANCI Director2 $0$0$0 $01
YVETTE BORDELON Director2 $0$0$0 $01
EVERETT COOK Director2 $0$0$0 $01
GEORGE JANKIEWICZ Treasurer2 $0$0$0 $01
JOHN BURHOE Secretary4 $0$0$0 $01
DAN JOHNSON Vice Chair4 $0$0$0 $01
JANET EDMUNSON Chairman4 $0$0$0 $01
2011 · 20 people listed · 1 paid, $108K · 12 employees · 140 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RICHARD ZYNE President & CEO40 $108,410$0$0 $108,4101
JUSTIN SHEA Director2 $0$0$0 $01
JIM MCCLELLAN Director2 $0$0$0 $01
ROBERT LIVERNOIS Director2 $0$0$0 $01
TED ZERWIN Director2 $0$0$0 $01
PATRICIA RICHARDSON Director2 $0$0$0 $01
JOHN PORTER Director2 $0$0$0 $01
DAVID PEEBLER Director2 $0$0$0 $01
SUSAN MCLAUGHLIN Director2 $0$0$0 $01
RICHARD ALLEN JANNEY Director2 $0$0$0 $01
LAURIE HUFFMAN Director2 $0$0$0 $01
MURRAY GOLDSTEIN Director2 $0$0$0 $01
LAWRENCE GOLBE Director4 $0$0$0 $01
HEATHER CIANCI Director2 $0$0$0 $01
YVETTE BORDELON Director2 $0$0$0 $01
EVERETT COOK Director2 $0$0$0 $01
JOHN BURHOE Secretary4 $0$0$0 $01
PAUL H FREEMAN Treasurer4 $0$0$0 $01
DAN JOHNSON Vice Chair4 $0$0$0 $01
JANET EDMUNSON Chairman4 $0$0$0 $01

Highest-paid independent contractors

2024 · 3 contractors · $629K
NameLocationServicePaid
REGINA PRINTINGMIDDLESEX, NJPRINTING SERVICES$407,797
DEVELOPING NOW INCBROOKLYN, NYWEBSITE DEVELOPEMENT SERVICES$114,000
ARABELLA ADVISORS LLCWASHINGTON, DCACCOUNTING SERVICES$107,487
2023 · 3 contractors · $614K
NameLocationServicePaid
REGINA PRINTINGMIDDLESEX, NJPRINTING SERVICES$307,161
DEVELOPING NOW INCBROOKLYN, NYWEBSITE DEVELOPEMENT SERVICES$177,144
ARABELLA ADVISORS LLCWASHINGTON, DCACCOUNTING SERVICES$129,457
2022 · 2 contractors · $407K
NameLocationServicePaid
REGINA PRINTINGMIDDLESEX, NJPRINTING SERVICES$290,526
ARABELLA ADVISORS LLCWASHINGTON, DCACCOUNTING SERVICES$116,572
2021 · 2 contractors · $541K
NameLocationServicePaid
Regina PrintingMiddlesex, NJPrinting Services$433,298
Kiwi Partners IncNew York, NYAccounting Services$108,041
2020 · 2 contractors · $286K
NameLocationServicePaid
Regina PrintingMiddlesex, NJPrinting Services$181,522
Kiwi Partners IncNew York, NYAccounting Services$104,045
2019 · 2 contractors · $393K
NameLocationServicePaid
Regina PrintingMiddlesex, NJPrinting Services$284,568
Kiwi Partners IncNew York, NYAccounting Services$107,977

Trademarks

5 US trademarks, 4 live.

MarkSerialFiledStatusSource
BECAUSE HOPE MATTERS872984882017-01-12RegisteredTRTDXFAP, file of 2026-10-21
POWERING CLINICAL TRIALS869436282016-03-17Registration cancelledTRCFECO2, file of 2024-03-27
UNLOCKING THE SECRETS OF BRAIN DISEASE866025172015-04-20Registered and renewedTRTYRAP, file of 2026-04-03
CUREPSP866025162015-04-20Registered and renewedTRTYRAP, file of 2026-04-03
CUREPSP866025122015-04-20Registered and renewedTRTYRAP, file of 2026-04-03

The newest marks of the trademark owners above, matched to this record by name (and state).

Federal lobbying

Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.

YearSpentEarnedReports
2026$50,0006
2025$42,0005

Issues: Health Issues, Environment/Superfund, Medical/Disease Research/Clinical Labs

Firms hired: FAEGRE DRINKER BIDDLE & REATH LLP, CUREPSP

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 16 grants to organizations · $1.2M

Listed grants add up to $1,235,474; the return's “grants paid” expense line says $1,740,086. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2023 · 8 grants to organizations · $562K

Listed grants add up to $562,321; the return's “grants paid” expense line says $1,171,461. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 10 grants to organizations · $689K

Listed grants add up to $689,310; the return's “grants paid” expense line says $1,243,837. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 8 grants to organizations · $702K

Listed grants add up to $701,900; the return's “grants paid” expense line says $991,063. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2020 · 9 grants to organizations · $647K

Listed grants add up to $647,195; the return's “grants paid” expense line says $1,006,395. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2019 · 5 grants to organizations · $390K

Listed grants add up to $390,000; the return's “grants paid” expense line says $471,836. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2018 · 2 grants to organizations · $110K

Listed grants add up to $110,000; the return's “grants paid” expense line says $306,291. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2017 · 7 grants to organizations · $500K

Listed grants add up to $499,715; the return's “grants paid” expense line says $577,725. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2016 · 6 grants to organizations · $330K
2015 · 4 grants to organizations · $368K

Listed grants add up to $367,501; the return's “grants paid” expense line says $477,501. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2013 · 11 grants to organizations · $1.6M

Listed grants add up to $1,633,000; the return's “grants paid” expense line says $1,996,786. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2012 · 7 grants to organizations · $991K
2011 · 6 grants to organizations · $561K

Listed grants add up to $561,172; the return's “grants paid” expense line says $623,172. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2025-06-30 · view filing · original 990 ↗
$7,903,274$5,865,853 $11,029,404$9,889,995 $7,506,914$0 $310,12717350
2023 · Form 990 period ending 2024-06-30 · view filing · original 990 ↗
$5,127,686$4,845,918 $8,687,169$7,553,397 $5,179,385$0 $282,17014318
2022 · Form 990 period ending 2023-06-30 · view filing · original 990 ↗
$3,308,947$4,256,576 $7,777,249$6,372,751 $3,237,361$0 $235,27113270
2021 · Form 990 period ending 2022-06-30 · view filing · original 990 ↗
$3,806,911$3,461,407 $7,863,202$6,757,427 $3,585,545$0 $324,95412260
2020 · Form 990 period ending 2021-06-30 · view filing · original 990 ↗
$6,342,039$3,488,363 $8,414,669$7,498,145 $6,290,908$0 $202,38312170
2019 · Form 990 period ending 2020-06-30 · view filing · original 990 ↗
$3,522,143$2,632,741 $5,358,201$4,573,913 $3,419,168$0 $200,00012170
2018 · Form 990 period ending 2019-06-30 · view filing · original 990 ↗
$3,115,437$2,394,117 $4,347,464$3,610,448 $2,845,244$205,367 $200,00014170
2017 · Form 990 period ending 2018-06-30 · view filing · original 990 ↗
$2,838,978$2,564,520 $3,716,323$2,905,096 $2,456,446$191,356 $199,99810170
2016 · Form 990 period ending 2017-06-30 · view filing · original 990 ↗
$2,704,782$2,357,223 $3,074,588$2,608,161 $2,577,806$106,430 $200,00017180
2015 · Form 990 period ending 2016-06-30 · view filing · original 990 ↗
$3,223,821$3,152,221 $3,162,762$2,226,006 $3,119,335$101,521 $193,84619100
2013 · Form 990 period ending 2014-06-30 · view filing · original 990 ↗
$3,302,536$3,165,278 $3,282,151$1,913,895 $3,173,974$0 $119,4989140
2012 · Form 990 period ending 2013-06-30 · view filing · original 990 ↗
$1,836,917$2,147,344 $2,230,181$1,741,458 $1,583,318$0 $122,11710140
2011 · Form 990 period ending 2012-06-30 · view filing · original 990 ↗
$2,409,645$1,723,339 $2,926,706$2,022,348 $2,265,656$0 $108,41012140

Funders of this organization

70 grantors reported grants to this organization, $5,386,196 in all, tax years 2010 to 2025; the 25 largest shown (all 70). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
SKYLIGHT CHARITABLE TR Private foundation Fuzzy filed as “CUREPSP INC” 2022-2024 4$1,150,000 2024$800,000
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FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2016-2024 9$948,157 2024$134,525
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LIGHT OF DAY FOUNDATION INC Public charity Exact 2011-2014, 2017-2024 12$664,254 2024$75,000
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AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2019-2025 7$410,447 2025$106,265
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DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2017-2024 8$266,026 2024$64,525
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RAINWATER CHARITABLE FOUNDATION Private foundation Fuzzy filed as “CUREPSP INC” 2023-2024 4$254,500 2024$230,000
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COMMUNITY FOUNDATION OF NEW JERSEY DAF sponsor Exact 2021-2024 4$213,327 2024$54,180
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FRED AND MABEL R PARKS FOUNDATION Private foundation Fuzzy filed as “CUREPSP INC” 2022-2025 5$210,000 2025$50,000
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DAYTON FOUNDATION DAF sponsor Exact 2013-2019, 2021-2024 11$193,863 2024$20,810
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PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2018, 2022-2024 4$160,936 2024$95,808
show
NATIONAL PHILANTHROPIC TR DAF sponsor Exact 2018, 2020-2021, 2023-2024 5$145,000 2024$12,000
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FORGOOD INC DAF sponsor Exact 2017-2018, 2021 3$128,636 2021$6,151
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DAYTON FOUNDATION DEPOSITORY DAF sponsor Exact 2019 1$70,795 2019$70,795
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THE BLACKBAUD GIVING FUND DAF sponsor Exact 2022-2023, 2025 3$58,455 2025$15,643
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WILLIAM H HERRMAN FOUNDATION INC Private foundation Fuzzy filed as “CUREPSP INC” 2022 1$50,000 2022$50,000
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THE COMMUNITY FOUNDATION FOR GREATER ATLANTA INC DAF sponsor Exact 2022-2024 3$46,600 2024$6,200
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JEWISH COMMUNAL FUND DAF sponsor Exact 2011, 2016, 2020 3$38,420 2020$17,410
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THE AYCO CHARITABLE FOUNDATION DAF sponsor Exact 2019-2022, 2024 5$35,750 2024$7,000
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VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor Exact 2020, 2022-2024 4$33,350 2024$13,850
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SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor Exact 2021, 2024 2$32,000 2024$26,000
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COMMUNITY FOUNDATION OF NORTH TEXAS DAF sponsor Exact 2019-2021 3$30,000 2021$10,000
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ALASKA COMMUNITY FOUNDATION DAF sponsor Exact 2023 1$28,413 2023$28,413
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AMERICAN ENDOWMENT FOUNDATION DAF sponsor Exact 2016, 2024 2$27,254 2024$10,000
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UNITED WAY WORLDWIDE DAF sponsor Exact 2018-2020 3$18,380 2020$5,439
show
CHARITY BRIDGE FUND DAF sponsor Exact 2020 1$16,612 2020$16,612
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Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
WYCKOFF EMERGENCY MEDICINE SERVICES P CNYG90 $7,720,435$13,933,140 PRESIDENT AND TREASURER$845,869 Same NTEE code G90, revenue within 2x, same state
INTERNATIONAL COUNCIL FOR VETERINARY ASSESSMENTILG90 $10,153,275$9,022,511 CHIEF EXECUTIVE OFFICER$333,588 Same NTEE code G90, revenue within 2x
TRANSPLANTATION SOCIETYG90 $4,888,511$4,504,915 EXECUTIVE DIRECTOR$131,422 Same NTEE code G90, revenue within 2x
HAWAII RESIDENCY PROGRAMS INCHIG90 $28,300,551$28,034,977 EXECUTIVE DIRECTOR$300,374 Same NTEE code G90, revenue within 5x
AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INCCAG90 $23,138,316$26,025,819 CEO THROUGH AUGUST 2024$596,658 Same NTEE code G90, revenue within 5x
COMPASSION HEALTH TOLEDOOHG90 $3,213,653$2,997,218 Doctor$148,387 Same NTEE code G90, revenue within 5x
ENDOCRINE SOCIETYDCG90 $27,332,119$28,871,883 CHIEF EXECUTIVE OFFICER$794,805 Same NTEE code G90, revenue within 5x
WEST FRESNO HEALTH CARE COALITIONCAG90 $2,135,648$2,817,784 EXECUTIVE DIRECTOR$86,010 Same NTEE code G90, revenue within 5x
NATIONAL ASSOCIATION OF MEDICAL EXAMINERS INCMOG90 $1,910,056$1,335,003 EXECUTIVE DI$240,154 Same NTEE code G90, revenue within 5x
MUNSON MEDICAL GROUPMIG90 $34,227,081$67,721,032 DIRECTOR$2,922,871 Same NTEE code G90, revenue within 5x
AEROSPACE MEDICAL ASSOCIATIONVAG90 $2,863,645$1,946,505 Executive Director$80,514 Same NTEE code G90, revenue within 5x
AMERICAN OSTEOPATHIC ASSOCIATIONILG90 $35,774,516$35,070,149 CEO, BOARD SECRETARY$560,272 Same NTEE code G90, revenue within 5x
MEDERI FOUNDATIONORG90 $1,602,890$1,455,050 KEY EMPLOYEE$172,790 Same NTEE code G90, revenue within 5x
MAGNET HCCNMSG90 $1,979,188$2,059,402 Executive Director$90,002 Same NTEE code G90, revenue within 5x
HEARTLAND WHOLE HEALTH INSTITUTEARG90 $32,216,923$10,558,291 PRESIDENT AND CEO$792,364 Same NTEE code G90, revenue within 5x
DIAGNOSTIC IMAGING FOUNDATIONRIG90 $2,640,000$2,623,139 PRESIDENT$0 Same NTEE code G90, revenue within 5x
MILE BLUFF MEDICAL CENTER FOUNDATION INCWIG90 $964,900$1,902,789 PRESIDENT & CEO$514,130 Same NTEE code G90, revenue within 10x
FEDERATION OF CLINICAL IMMUNOLOGY SOCIETIES INCWIG90 $1,302,486$1,694,426 PRESIDENT$0 Same NTEE code G90, revenue within 10x
INDY HEMATOLOGY EDUCATION INCING90 $1,365,571$944,425 SECRETARY AND DIRECTOR$0 Same NTEE code G90, revenue within 10x
ASSOCIATION OF PATHOLOGY CHAIRS INCDEG90 $1,558,788$1,609,221 EXECUTIVE DIRECTOR EMERITA$180,759 Same NTEE code G90, revenue within 10x
AMERICAN ACADEMY OF DERMATOLOGY INCILG90 $53,579,298$54,092,775 EXECUTIVE DIRECTOR & CEO$898,747 Same NTEE code G90, revenue within 10x
SOCIETY OF MILITARY ORTHOPAEDIC SURGEONSMDG90 $1,196,153$1,268,334 TREASURER/SECRETARY$0 Same NTEE code G90, revenue within 10x
HANLEY CENTER FOR HEALTH LEADERSHIP AND EDUCATIONMEG90 $1,283,550$1,529,742 PRESIDENT EL$0 Same NTEE code G90, revenue within 10x
AMERICAN ACADEMY OF FAMILY PHYSICIANSVAG90 $1,190,437$1,070,317 EXECUTIVE VI$179,817 Same NTEE code G90, revenue within 10x
AMERICAN ACADEMY OF PERIODONTOLOGY FOUNDATIONILG90 $1,371,766$1,447,871 EXECUTIVE DIRECTOR THRU 12/31/24$191,977 Same NTEE code G90, revenue within 10x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
VANGUARD CHARITABLE ENDOWMENT PROGRAM funds this one DAF sponsor$10,058,80017 72020–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; ACUPUNCTURE FOR THE PEOPLE FOUNDATION INC; MEDERI FOUNDATION; FOXG1 RESEARCH INC and 3 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$5,222,92184 162016–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; GLAUCOMA FOUNDATION INC; TOURETTE ASSOCIATION OF AMERICA INC; JBI INTERNATIONAL INC and 12 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$2,666,60357 122014–2024 FOXG1 RESEARCH INC; TOURETTE ASSOCIATION OF AMERICA INC; AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; MEDERI FOUNDATION and 8 more
THE JEWISH FEDERATION OF GREATER WASHINGTON INC DAF sponsor$2,450,0002 12023–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC
PAYPAL CHARITABLE GIVING FUND funds this one DAF sponsor$2,167,68118 82016–2024 WEST COAST SPORTS MEDICINE FOUNDATION; AUTISMUP INC; AMERICAN TAMIL MEDICAL ASSOCIATION; FOXG1 RESEARCH INC and 4 more
KOUM FAMILY FOUNDATION Private foundation$2,000,0001 12024–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC funds this one DAF sponsor$1,719,51421 72014–2024 TOURETTE ASSOCIATION OF AMERICA INC; FOXG1 RESEARCH INC; AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; ASSOCIATION OF PATHOLOGY CHAIRS INC and 3 more
NATIONAL PHILANTHROPIC TR funds this one DAF sponsor$1,664,54327 82014–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; FOXG1 RESEARCH INC; TOURETTE ASSOCIATION OF AMERICA INC; MILE BLUFF MEDICAL CENTER FOUNDATION INC and 4 more
JEWISH COMMUNAL FUND funds this one DAF sponsor$1,400,43745 52009–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC; JBI INTERNATIONAL INC; TOURETTE ASSOCIATION OF AMERICA INC; MEDERI FOUNDATION and 1 more
MAINE COMMUNITY FOUNDATION INC DAF sponsor$1,030,9215 12016–2023 HANLEY CENTER FOR HEALTH LEADERSHIP AND EDUCATION
THE@MAURICE MARCIANO FAMILY FOUNDATION Private foundation$1,000,0002 12021–2022 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC
INDEPENDENT CHARITABLE GIFT FUND DAF sponsor$850,0006 12020–2025 TOURETTE ASSOCIATION OF AMERICA INC
ALFRED E MANN CHARITIES INC Private foundation$825,0003 12022–2024 AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC
JEWISH COMMUNITY FEDERATION OF S F MARIN PENINSULA & SONOMA COUNTIES DAF sponsor$763,80012 32009–2024 TOURETTE ASSOCIATION OF AMERICA INC; AMERICAN ACADEMY OF DERMATOLOGY INC; AMERICAN FRIENDS OF SHEBA MEDICAL CENTER INC
JEWISH FEDERATION OF METROPOLITAN CHICAGO DAF sponsor$704,3584 22011–2022 JBI INTERNATIONAL INC; TOURETTE ASSOCIATION OF AMERICA INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $5,865,853 spent · pay $2,059,203 · grants $1,740,086 · events $189,288
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,385,868$1,079,462$128,010$178,396 23.6%
Grants to US organizations and governments $1,361,000$1,361,000-- 23.2%
Advertising and promotion $418,829$318,356$2,011$98,462 7.1%
Pay: officers, directors, trustees, key employees $310,127$248,101$31,013$31,013 5.3%
Other (as described)RESEARCH $291,903$291,903-- 5.0%
Grants to US individuals $255,643$255,643-- 4.4%
Travel $242,177$179,915$27,131$35,131 4.1%
Other employee benefits $220,885$183,780$7,595$29,510 3.8%
Information technology $210,206$142,180$11,482$56,544 3.6%
Fees: other services $159,526$128,631$21,895$9,000 2.7%
Other (as described)OTHER EXPENSES $143,335$32,564$105,218$5,553 2.4%
Fees: accounting $135,576-$135,576- 2.3%
Conferences, conventions and meetings $124,825$98,640$6,796$19,389 2.1%
Grants outside the US $123,443$123,443-- 2.1%
Payroll taxes $114,517$89,626$10,711$14,180 2.0%
Depreciation and depletion $110,254$86,289$10,313$13,652 1.9%
Occupancy $65,209$50,900$3,995$10,314 1.1%
Other (as described)POSTAGE AND SHIPPING $62,309$47,992$759$13,558 1.1%
Fees: legal $61,277-$61,277- 1.0%
Pension plan contributions $27,806$21,638$2,555$3,613 0.5%
Fees: investment management $16,874-$16,874- 0.3%
Insurance $8,789-$8,789- 0.1%
Other (as described)PHOTOGRAPHY AND VIDEOGR $7,000$7,000-- 0.1%
Office expenses $6,524$5,693$332$499 0.1%
All other expenses $1,951-$1,951- 0.0%
Fundraising events Eventdirect expenses; gross income $64,463$64,463reported apart
Total$5,865,853100%

View the filing

2023 · Form 990 · $4,845,918 spent · pay $1,688,770 · grants $1,171,461 · events $170,993
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,099,108$863,810$84,276$151,022 22.7%
Grants to US organizations and governments $722,321$722,321-- 14.9%
Advertising and promotion $541,814$432,032$8,450$101,332 11.2%
Grants outside the US $328,735$328,735-- 6.8%
Other (as described)RESEARCH $314,950$314,950-- 6.5%
Pay: officers, directors, trustees, key employees $282,170$225,736$28,217$28,217 5.8%
Information technology $198,160$146,733$7,936$43,491 4.1%
Travel $197,099$180,499$3,887$12,713 4.1%
Other employee benefits $185,461$147,531$12,987$24,943 3.8%
Fees: accounting $143,506-$143,506- 3.0%
Other (as described)OTHER EXPENSES $139,185$36,851$96,020$6,314 2.9%
Grants to US individuals $120,405$120,405-- 2.5%
Fees: other services $114,475$82,817$25,034$6,624 2.4%
Payroll taxes $98,429$78,371$7,119$12,939 2.0%
Conferences, conventions and meetings $84,634$54,833$15,577$14,224 1.7%
Occupancy $59,846$50,104$3,460$6,282 1.2%
Other (as described)POSTAGE AND SHIPPING $55,744$45,667$892$9,185 1.2%
Depreciation and depletion $54,756$43,598$3,960$7,198 1.1%
Fees: legal $52,172-$52,172- 1.1%
Pension plan contributions $23,602$18,786$1,662$3,154 0.5%
Insurance $18,772$364$16,869$1,539 0.4%
Office expenses $8,046$6,208$455$1,383 0.2%
Other (as described)EQUIPMENT RENTAL $2,003-$2,003- 0.0%
All other expenses $525$525-- 0.0%
Fundraising events Eventdirect expenses; gross income $86,359$86,359reported apart
Total$4,845,918100%

View the filing

2022 · Form 990 · $4,256,576 spent · pay $1,361,644 · grants $1,243,837 · events $104,704
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $875,133$875,133-- 20.6%
Other salaries and wages $871,378$716,193$72,722$82,463 20.5%
Advertising and promotion $455,166$272,592$3,611$178,963 10.7%
Grants to US individuals $358,704$358,704-- 8.4%
Other (as described)RESEARCH $257,452$257,452-- 6.0%
Pay: officers, directors, trustees, key employees $235,271$188,217$23,527$23,527 5.5%
Travel $162,847$114,626$29,869$18,352 3.8%
Other employee benefits $152,148$126,435$11,012$14,701 3.6%
Fees: accounting $146,344-$146,344- 3.4%
Information technology $130,987$113,717$7,428$9,842 3.1%
Other (as described)OTHER EXPENSES $103,004$23,716$75,988$3,300 2.4%
Fees: other services $93,821$81,624$6,597$5,600 2.2%
Payroll taxes $86,786$71,863$6,509$8,414 2.0%
Occupancy $63,965$53,048$4,751$6,166 1.5%
Conferences, conventions and meetings $52,123$44,307$6,714$1,102 1.2%
Other (as described)DIRECT MAIL $51,400$51,400-- 1.2%
Fees: legal $48,870-$48,870- 1.1%
Other (as described)POSTAGE AND SHIPPING $34,884$28,575$1,936$4,373 0.8%
Pension plan contributions $16,061$13,299$1,205$1,557 0.4%
Insurance $14,196-$12,655$1,541 0.3%
Fees: investment management $11,445-$11,445- 0.3%
Depreciation and depletion $10,936$9,058$816$1,062 0.3%
Grants outside the US $10,000$10,000-- 0.2%
All other expenses $7,180$4,778$2,402- 0.2%
Office expenses $6,475$5,423$458$594 0.2%
Fundraising events Eventdirect expenses; gross income $52,581$52,581reported apart
Total$4,256,576100%

View the filing

2021 · Form 990 · $3,461,407 spent · pay $1,122,055 · grants $991,063 · events $5,372
LineAs describedTotalProgramManagementFundraisingShare
Grants to US individuals $826,900$826,900-- 23.9%
Other salaries and wages $598,358$524,668$42,218$31,472 17.3%
Other (as described)Direct mail $364,357$307,816-$56,541 10.5%
Pay: officers, directors, trustees, key employees $324,954$242,268$50,191$32,495 9.4%
Other (as described)Recruiting and marketing $167,203$95,469$3,214$68,520 4.8%
Fees: other services $157,630$117,417$17,713$22,500 4.6%
Information technology $153,229$124,288$9,263$19,678 4.4%
Fees: accounting $123,675-$123,675- 3.6%
Other employee benefits $121,633$101,592$12,332$7,709 3.5%
Grants outside the US $103,500$103,500-- 3.0%
Travel $93,313$63,007$29,329$977 2.7%
Other (as described)Other expenses $78,098$19,969$56,735$1,394 2.3%
Payroll taxes $68,361$56,614$7,093$4,654 2.0%
Occupancy $66,686$55,329$6,867$4,490 1.9%
Fees: legal $61,530$10,830$49,750$950 1.8%
Grants to US organizations and governments $60,663$60,663-- 1.8%
Other (as described)Postage and Shipping $23,353$20,596$1,515$1,242 0.7%
Office expenses $20,252$17,664$1,620$968 0.6%
Insurance $15,382-$15,382- 0.4%
Fees: investment management $12,957-$12,957- 0.4%
Pension plan contributions $8,749$8,315$30$404 0.3%
Conferences, conventions and meetings $5,372$5,222$150- 0.2%
Depreciation and depletion $3,338$2,764$347$227 0.1%
All other expenses $1,914$1,481$311$122 0.1%
Total$3,461,407100%

View the filing

2020 · Form 990 · $3,488,363 spent · pay $1,138,833 · grants $1,006,395 · events $4,040
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $734,849$647,017$60,353$27,479 21.1%
Grants to US organizations and governments $650,327$650,327-- 18.6%
Other (as described)Direct mail $336,361$294,749-$41,612 9.6%
Grants outside the US $299,840$299,840-- 8.6%
Pay: officers, directors, trustees, key employees $202,383$131,549$50,596$20,238 5.8%
Fees: other services $171,668$52,127$28,460$91,081 4.9%
Information technology $157,000$100,494$19,226$37,280 4.5%
Other (as described)Recruiting and marketing $148,737$116,902$7,261$24,574 4.3%
Other employee benefits $119,702$102,184$11,466$6,052 3.4%
Fees: accounting $106,706-$106,706- 3.1%
All other expenses $97,670$89,817$7,229$624 2.8%
Other (as described)Postage and Shipping $79,794$37,767$12,829$29,198 2.3%
Other (as described)Other expenses $79,718$22,091$55,718$1,909 2.3%
Occupancy $72,430$61,505$7,196$3,729 2.1%
Payroll taxes $71,337$60,612$7,049$3,676 2.0%
Grants to US individuals $56,228$56,228-- 1.6%
Fees: legal $52,324$44,849$7,475- 1.5%
Insurance $18,288-$18,288- 0.5%
Travel $12,745$6,468$6,277- 0.4%
Pension plan contributions $10,562$10,173$136$253 0.3%
Depreciation and depletion $5,654$4,803$560$291 0.2%
Conferences, conventions and meetings $4,040$3,790-$250 0.1%
Total$3,488,363100%

View the filing

2019 · Form 990 · $2,632,741 spent · pay $920,284 · grants $471,836 · events $33,749
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $556,528$463,432$69,707$23,389 21.1%
Grants to US organizations and governments $391,836$391,836-- 14.9%
Other (as described)Recruiting and marketing $229,209$155,644$20,054$53,511 8.7%
Other (as described)Direct mail $206,881$179,926-$26,955 7.9%
Pay: officers, directors, trustees, key employees $200,000$130,000$50,000$20,000 7.6%
All other expenses $103,874$60,663$40,586$2,625 3.9%
Fees: accounting $100,425-$100,425- 3.8%
Information technology $99,475$65,817$17,541$16,117 3.8%
Occupancy $97,314$77,131$14,544$5,639 3.7%
Other employee benefits $87,975$70,521$12,298$5,156 3.3%
Other (as described)Research support $83,054$83,054-- 3.2%
Grants outside the US $80,000$80,000-- 3.0%
Other (as described)Postage and Shipping $69,087$7,832$11,519$49,736 2.6%
Fees: other services $67,294$37,365$29,629$300 2.6%
Travel $65,433$48,100$14,390$2,943 2.5%
Payroll taxes $61,773$49,517$8,635$3,621 2.3%
Fees: legal $50,191$42,662$7,529- 1.9%
Conferences, conventions and meetings $33,749$31,917$735$1,097 1.3%
Depreciation and depletion $22,378$17,925$3,142$1,311 0.8%
Pension plan contributions $14,008$11,229$1,958$821 0.5%
Insurance $12,257$276$11,981- 0.5%
Total$2,632,741100%

View the filing

2018 · Form 990 · $2,394,117 spent · pay $835,694 · grants $306,291 · events $67,203
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $529,928$444,217$74,778$10,933 22.1%
Grants to US organizations and governments $216,291$216,291-- 9.0%
Pay: officers, directors, trustees, key employees $200,000$140,000$50,000$10,000 8.4%
Other (as described)Direct mail $172,745$143,862-$28,883 7.2%
Other (as described)Recruiting and marketing $156,867$71,847$1,888$83,132 6.6%
All other expenses $156,011$131,893$8,400$15,718 6.5%
Other (as described)Research symposium/roundtable $136,895$136,895-- 5.7%
Occupancy $102,466$82,208$17,361$2,897 4.3%
Information technology $92,731$56,678$16,359$19,694 3.9%
Grants outside the US $90,000$90,000-- 3.8%
Fees: accounting $82,750-$82,750- 3.5%
Other (as described)Other expenses $80,189$33,330$45,828$1,031 3.3%
Depreciation and depletion $65,035$52,052$11,118$1,865 2.7%
Conferences, conventions and meetings $62,451$53,595$7,466$1,390 2.6%
Payroll taxes $53,247$42,623$9,097$1,527 2.2%
Fees: legal $50,122$41,924$8,198- 2.1%
Other employee benefits $39,971$31,995$6,829$1,147 1.7%
Travel $38,286$16,365$6,667$15,254 1.6%
Fees: other services $28,727$9,078$19,463$186 1.2%
Insurance $26,857-$26,857- 1.1%
Pension plan contributions $12,548$10,044$2,144$360 0.5%
Fundraising events Eventdirect expenses; gross income $4,752$4,752reported apart
Total$2,394,117100%

View the filing

2017 · Form 990 · $2,564,520 spent · pay $891,055 · grants $577,725 · events $133,236
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $588,891$368,679$134,694$85,518 23.0%
Grants to US organizations and governments $502,543$502,543-- 19.6%
Office expenses $275,696$99,274$4,974$171,448 10.8%
Pay: officers, directors, trustees, key employees $199,998$125,199$45,799$29,000 7.8%
All other expenses $139,483$80,637$32,801$26,045 5.4%
Occupancy $121,258$68,552$35,661$17,045 4.7%
Conferences, conventions and meetings $102,431$102,431-- 4.0%
Grants outside the US $75,182$75,182-- 2.9%
Other (as described)RESEARCH ROUNDTABLE $72,340$72,340-- 2.8%
Information technology $71,124$41,999$8,170$20,955 2.8%
Depreciation and depletion $65,197$56,783$1,582$6,832 2.5%
Fees: legal $63,987$29,823$34,164- 2.5%
Fees: other services $56,781$56,781-- 2.2%
Payroll taxes $55,717$34,883$12,748$8,086 2.2%
Other (as described)PATIENT PROFILES $31,451$31,451-- 1.2%
Other employee benefits $31,326$19,610$7,167$4,549 1.2%
Fees: accounting $31,145-$31,145- 1.2%
Other (as described)BRAIN BANK TISSUE HARVEST $24,961$24,961-- 1.0%
Other (as described)BANK & PAYROLL FEES $18,574-$3,856$14,718 0.7%
Pension plan contributions $15,123$9,467$3,460$2,196 0.6%
Insurance $13,959$9,399$2,790$1,770 0.5%
Fees: investment management $3,620$3,620-- 0.1%
Travel $2,838$2,057$251$530 0.1%
Advertising and promotion $895$448$447- 0.0%
Fundraising events Eventdirect expenses; gross income $172,757$30,805reported apart
Total$2,564,520100%

View the filing

2016 · Form 990 · $2,357,223 spent · pay $930,159 · grants $329,500 · events $185,536
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $621,904$431,479$97,203$93,222 26.4%
Grants to US organizations and governments $329,500$329,500-- 14.0%
Office expenses $329,010$108,327$2,332$218,351 14.0%
Pay: officers, directors, trustees, key employees $200,000$135,260$35,860$28,880 8.5%
Conferences, conventions and meetings $168,896$168,896-- 7.2%
Occupancy $145,318$84,489$34,772$26,057 6.2%
All other expenses $116,989$67,524$18,884$30,581 5.0%
Information technology $67,788$36,523$2,720$28,545 2.9%
Payroll taxes $61,126$41,523$10,856$8,747 2.6%
Depreciation and depletion $51,390$35,157$8,991$7,242 2.2%
Fees: legal $49,153$13,226$35,927- 2.1%
Fees: accounting $37,974-$37,974- 1.6%
Other employee benefits $33,375$22,672$5,930$4,773 1.4%
Other (as described)MEETINGS & BOARD EXPENSES $25,491$3,648$21,843- 1.1%
Other (as described)BANK & PAYROLL FEES $23,783$15$7,198$16,570 1.0%
Other (as described)BRAIN BANK TISSUE HARVEST $21,989$21,989-- 0.9%
Other (as described)SUPPORT GROUPS $20,866$20,866-- 0.9%
Pension plan contributions $13,754$9,343$2,443$1,968 0.6%
Insurance $12,217$9,157$1,695$1,365 0.5%
Advertising and promotion $12,026$11,957$69- 0.5%
Travel $6,411$235$6,176- 0.3%
Fees: other services $4,993$4,993-- 0.2%
Fees: investment management $3,270$3,270-- 0.1%
Fundraising events Eventdirect expenses; gross income $23,024$16,640reported apart
Total$2,357,223100%

View the filing

2015 · Form 990 · $3,152,221 spent · pay $1,165,951 · grants $477,501 · events $161,659
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $839,942$533,097$157,356$149,489 26.6%
Grants to US organizations and governments $367,501$367,501-- 11.7%
Fees: other services $292,734$196,484-$96,250 9.3%
Advertising and promotion $285,851$282,513$3,338- 9.1%
Office expenses $207,635$107,239$5,815$94,581 6.6%
Pay: officers, directors, trustees, key employees $193,846$123,030$36,317$34,499 6.1%
All other expenses $168,665$132,510$19,118$17,037 5.4%
Conferences, conventions and meetings $144,404$144,404-- 4.6%
Grants outside the US $110,000$110,000-- 3.5%
Occupancy $101,737$57,834$17,446$26,457 3.2%
Payroll taxes $73,344$45,180$14,441$13,723 2.3%
Information technology $65,502$36,918$7,576$21,008 2.1%
Fees: legal $64,719$25,457$39,262- 2.1%
Other employee benefits $49,932$30,739$9,845$9,348 1.6%
Other (as described)CORPORATE/DONOR DEVELOP $31,750--$31,750 1.0%
Other (as described)BANK & PAYROLL FEES $29,456$3,127$3,719$22,610 0.9%
Fees: accounting $26,763-$26,763- 0.8%
Other (as described)MEETINGS & BOARD EXPENSES $26,521$3,558$22,963- 0.8%
Other (as described)SUPPORT GROUPS $24,360$24,360-- 0.8%
Travel $19,407$3,046$16,361- 0.6%
Depreciation and depletion $10,756$6,561$2,151$2,044 0.3%
Pension plan contributions $8,887$5,474$1,750$1,663 0.3%
Insurance $8,509$5,191$1,702$1,616 0.3%
Fundraising events Eventdirect expenses; gross income $10,764$17,255reported apart
Total$3,152,221100%

View the filing

2013 · Form 990 · $3,165,278 spent · pay $662,807 · grants $1,996,786 · events $83,921
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $1,633,000$1,633,000-- 51.6%
Other salaries and wages $445,591$307,521$57,846$80,224 14.1%
Grants outside the US $363,786$363,786-- 11.5%
Other (as described)Postage and Shipping $133,230$38,364$974$93,892 4.2%
Pay: officers, directors, trustees, key employees $119,498$82,471$15,513$21,514 3.8%
All other expenses $86,220$68,646$6,012$11,562 2.7%
Conferences, conventions and meetings $67,163$67,148-$15 2.1%
Occupancy $67,104$53,683$3,355$10,066 2.1%
Payroll taxes $47,084$32,332$6,188$8,564 1.5%
Other employee benefits $40,686$27,935$5,346$7,405 1.3%
Information technology $30,610$22,177$755$7,678 1.0%
Other (as described)BANK AND PAYROLL FEES $23,566$10,697$296$12,573 0.7%
Fees: accounting $21,972-$21,972- 0.7%
Other (as described)MEETINGS/BOARD EXPENSES $20,046-$20,046- 0.6%
Other (as described)Printing and Publications $18,450$17,718$183$549 0.6%
Advertising and promotion $16,004$16,004-- 0.5%
Pension plan contributions $9,948$6,830$1,307$1,811 0.3%
Insurance $7,444-$7,444- 0.2%
Depreciation and depletion $5,688$4,606$514$568 0.2%
Office expenses $5,300$4,315$246$739 0.2%
Fees: legal $2,888$2,310$145$433 0.1%
Fundraising events Eventdirect expenses; gross income $134,375$16,758reported apart
Total$3,165,278100%

View the filing

2012 · Form 990 · $2,147,344 spent · pay $636,833 · grants $991,000 · events $132,612
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $991,000$991,000-- 46.2%
Other salaries and wages $418,825$292,759$55,169$70,897 19.5%
Other (as described)Postage and Shipping $129,408$46,382$410$82,616 6.0%
Pay: officers, directors, trustees, key employees $122,117$85,482$16,085$20,550 5.7%
Conferences, conventions and meetings $111,429$110,415-$1,014 5.2%
All other expenses $69,214$53,557$4,140$11,517 3.2%
Occupancy $65,628$52,504$3,280$9,844 3.1%
Payroll taxes $47,295$32,634$6,148$8,513 2.2%
Other employee benefits $39,393$27,180$5,123$7,090 1.8%
Information technology $29,481$20,868$911$7,702 1.4%
Other (as described)Printing and Publications $27,761$27,272$122$367 1.3%
Other (as described)BANK AND PAYROLL FEES $23,906$11,043$531$12,332 1.1%
Fees: accounting $21,843-$21,843- 1.0%
Other (as described)MEETINGS/BOARD EXPENSES $19,161-$19,161- 0.9%
Pension plan contributions $9,203$6,350$1,196$1,657 0.4%
Depreciation and depletion $8,260$5,702$910$1,648 0.4%
Insurance $7,723-$7,723- 0.4%
Office expenses $5,697$4,442$317$938 0.3%
Fundraising events Eventdirect expenses; gross income -$21,183reported apart
Total$2,147,344100%

View the filing

2011 · Form 990 · $1,723,339 spent · pay $601,528 · grants $623,172 · events $119,372
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $561,172$561,172-- 32.6%
Other salaries and wages $404,292$279,467$53,295$71,530 23.5%
Pay: officers, directors, trustees, key employees $108,410$76,790$8,237$23,383 6.3%
Conferences, conventions and meetings $107,853$107,815$6$32 6.3%
Other employee benefits $88,826$61,423$27,403- 5.2%
Other (as described)Postage and Shipping $87,887$24,723$540$62,624 5.1%
Occupancy $65,627$52,502$3,281$9,844 3.8%
All other expenses $64,374$51,247$1,657$11,470 3.7%
Grants outside the US $62,000$62,000-- 3.6%
Other (as described)Printing and Publications $41,096$40,723$85$288 2.4%
Fees: accounting $26,305-$26,305- 1.5%
Information technology $22,846$16,441$574$5,831 1.3%
Other (as described)BANK AND PAYROLL FEES $21,271$9,715$373$11,183 1.2%
Other (as described)BRAIN BANK TISSUE HARVESTING $16,789$16,789-- 1.0%
Depreciation and depletion $16,273$10,986$2,101$3,186 0.9%
Other (as described)MEETINGS/BOARD EXPENSES $15,836-$15,836- 0.9%
Insurance $7,434-$7,434- 0.4%
Office expenses $5,048$4,051$231$766 0.3%
Fundraising events Eventdirect expenses; gross income -$11,519reported apart
Total$1,723,339100%

View the filing

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