CUREPSP INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: CUREPSP INC (EIN 52-1704978)
Tax period: 2012-07-01 to 2013-06-30
Filed: 2013-11-26
IRS object ID: 201323309349300817
Schema version: 2012v2.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule L
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-11-26T13:42:38-08:00	Timestamp
Tax Period End Date	2013-06-30	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	WOLFE AND FIEDLER PA	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	634 Frederick Road	AddressLine1
City	Baltimore	City
State	MD	State
ZIP Code	212284625	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-07-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	521704978	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	Foundation For PSP CBD	BusinessNameLine1
Business Name Line2	and Related Brain Diseases	BusinessNameLine2

Field	Value	IRS element (for citing)
Name Control	FOUN	NameControl
Phone	4107857004	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	30 East Padonia Road	AddressLine1
City	Timonium	City
State	MD	State
ZIP Code	21093	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	RICHARD ZYNE	Name
Title	President & CEO	Title
Date Signed	2013-11-26	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	John R Fiedler	Name
PTIN	P00147612	PTIN
Phone	4107470789	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Gross Receipts	1858100	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	WWW.CUREPSP.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1990	YearFormation
State Legal Domicile	MD	StateLegalDomicile
Activity Or Mission Description	INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	17	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	17	NbrIndependentVotingMembers
Total Nbr Employees	10	TotalNbrEmployees
Total Nbr Volunteers	140	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	2265656	ContributionsGrantsPriorYear
Contributions Grants Current Year	1583318	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	11443	InvestmentIncomePriorYear
Investment Income Current Year	8418	InvestmentIncomeCurrentYear
Other Revenue Prior Year	132546	OtherRevenuePriorYear
Other Revenue Current Year	245181	OtherRevenueCurrentYear
Total Revenue Prior Year	2409645	TotalRevenuePriorYear
Total Revenue Current Year	1836917	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	623172	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	991000	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	601528	SalariesEtcPriorYear
Salaries Etc Current Year	636833	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	236685	TotalFundrsngExpCurrentYear
Other Expense Prior Year	498639	OtherExpensePriorYear
Other Expenses Current Year	519511	OtherExpensesCurrentYear
Total Expenses Prior Year	1723339	TotalExpensesPriorYear
Total Expenses Current Year	2147344	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	686306	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-310427	RevenuesLessExpensesCY
Total Assets BOY	2926706	TotalAssetsBOY
Total Assets EOY	2230181	TotalAssetsEOY
Total Liabilities BOY	904358	TotalLiabilitiesBOY
Total Liabilities EOY	488723	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	2022348	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	1741458	NetAssetsOrFundBalancesEOY
Mission Description	INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	1235276	Expense
Grants	994000	Grants
Description	GOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD) AND CLOSELY RELATED BRAIN DISEASES BY FUNDING RESEARCH FOCUSING ON: A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, B) DEVELOPING EARLY STAGE DIAGNOSTIC TESTS, AND D) DEVELOPING TREATMENTS OR INTERVENTIONS TO AMELIORATE SYMPTOMS AND TO PREVENT, SLOW, HALT OR REVERSE DISEASE PROGRESSION.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	383804	Expense
Description	Goals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	148510	Expense
Description	Goals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders.	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	1767590	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	true	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	false	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	0	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	false	ComplianceWithBackupWitholding
Number Of Employees	10	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	17	NbrVotingGoverningBodyMembers
Number Independent Voting Members	17	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	true	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	RICHARD ZYNE	NamePerson
Telephone Number	4107857004	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	30 East Padonia Road	AddressLine1
City	Timonium	City
State	MD	State
ZIP Code	21093	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (18 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Average Hours Per Week RelatedAverageHoursPerWeekRelated	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer
JUSTIN SHEA
Director	2.00	0.00	X	0	0	0
JIM MCCLELLAN
Director	2.00	0.00	X	0	0	0
JEFFREY FRIEDMAN
Director	2.00	0.00	X	0	0	0
PATRICIA RICHARDSON
Director	2.00	0.00	X	0	0	0
JOHN PORTER
Director	2.00	0.00	X	0	0	0
DAVID PEEBLER
Director	2.00	0.00	X	0	0	0
RICHARD ALLEN JANNEY
Director	2.00	0.00	X	0	0	0
LAURIE HUFFMAN
Director	2.00	0.00	X	0	0	0
RACHEL GROSS
Director	2.00	0.00	X	0	0	0
LAWRENCE GOLBE
Director	4.00	0.00	X	0	0	0
HEATHER CIANCI
Director	2.00	0.00	X	0	0	0
YVETTE BORDELON
Director	2.00	0.00	X	0	0	0
EVERETT COOK
Director	2.00	0.00	X	0	0	0
GEORGE JANKIEWICZ
Treasurer	2.00	0.00		0	0	0	X
JOHN BURHOE
Secretary	4.00	0.00		0	0	0	X
DAN JOHNSON
Vice Chair	4.00	0.00		0	0	0	X
JANET EDMUNSON
Chairman	4.00	0.00		0	0	0	X
RICHARD ZYNE
President & CEO	40.00	0.00		122117	0	0	X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	122117	TotalReportableCompFromOrg
Number Individuals GT100 K	1	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources
Number Of Contractors GT100 K	0	NumberOfContractorsGT100K
Fundraising Events	72095	FundraisingEvents
All Other Contributions	1511223	AllOtherContributions
Total Contributions	1583318	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	8418	TotalRevenueColumn
Exclusion	$8,418	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	141364	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	72095	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	21183	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	120181	TotalRevenueColumn
Exclusion	$120,181	ExclusionAmount

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	GRANT ADJUSTMENT	Description
Total Revenue Column	125000	TotalRevenueColumn
Related Or Exempt Function Income	125000	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Other Revenue	125000	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	1836917	TotalRevenueColumn
Related Or Exempt Function Income	125000	RelatedOrExemptFunctionIncome
Exclusion	$128,599	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	991000	Total
Program Services	991000	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	0	Total

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	122117	Total
Program Services	85482	ProgramServices
Management And General	16085	ManagementAndGeneral
Fundraising	20550	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	418825	Total
Program Services	292759	ProgramServices
Management And General	55169	ManagementAndGeneral
Fundraising	70897	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	9203	Total
Program Services	6350	ProgramServices
Management And General	1196	ManagementAndGeneral
Fundraising	1657	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	39393	Total
Program Services	27180	ProgramServices
Management And General	5123	ManagementAndGeneral
Fundraising	7090	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	47295	Total
Program Services	32634	ProgramServices
Management And General	6148	ManagementAndGeneral
Fundraising	8513	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	21843	Total
Management And General	21843	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	0	Total

Advertising Advertising

Field	Value	IRS element (for citing)
Total	0	Total

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	5697	Total
Program Services	4442	ProgramServices
Management And General	317	ManagementAndGeneral
Fundraising	938	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	29481	Total
Program Services	20868	ProgramServices
Management And General	911	ManagementAndGeneral
Fundraising	7702	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	65628	Total
Program Services	52504	ProgramServices
Management And General	3280	ManagementAndGeneral
Fundraising	9844	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	0	Total

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	111429	Total
Program Services	110415	ProgramServices
Fundraising	1014	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	8260	Total
Program Services	5702	ProgramServices
Management And General	910	ManagementAndGeneral
Fundraising	1648	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	7723	Total
Management And General	7723	ManagementAndGeneral

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Management And GeneralManagementAndGeneral	Program ServicesProgramServices	FundraisingFundraising
MEETINGS/BOARD EXPENSES	19161	19161
BANK AND PAYROLL FEES	23906	531	11043	12332
Printing and Publications	27761	122	27272	367
Postage and Shipping	129408	410	46382	82616

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	69214	Total
Program Services	53557	ProgramServices
Management And General	4140	ManagementAndGeneral
Fundraising	11517	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	2147344	Total
Program Services	1767590	ProgramServices
Management And General	143069	ManagementAndGeneral
Fundraising	236685	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	867614	BOY
EOY	6772	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	1624487	BOY
EOY	1798118	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	42550	BOY
EOY	14850	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	17542	BOY
EOY	6409	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	22931	BOY
EOY	26636	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	227392	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	205223	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	26290	BOY
EOY	22169	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	321309	BOY
EOY	351244	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	3983	BOY
EOY	3983	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	2926706	BOY
EOY	2230181	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	101847	BOY
EOY	76403	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	802511	BOY
EOY	412320	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	904358	BOY
EOY	488723	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	862129	BOY
EOY	795012	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	834850	BOY
EOY	595277	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	325369	BOY
EOY	351169	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	2022348	BOY
EOY	1741458	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	2926706	BOY
EOY	2230181	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	-310427	ReconcilationRevenueExpenses
Reconciliation Unrealized Invest	29537	ReconciliationUnrealizedInvest
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	true	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org509a2	X	PubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	4503914	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1407590	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1213491	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2265656	CurrentTaxYearMinus1Year
Current Tax Year	1583318	CurrentTaxYear
Total	10973969	Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	65112	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	16732	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	11830	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	142536	CurrentTaxYearMinus1Year
Current Tax Year	141364	CurrentTaxYear
Total	377574	Total

Gross Receipts From Non UBI GrossReceiptsFromNonUBI

Field	Value	IRS element (for citing)
Total	0	Total

Tax Rev Levied For Org Benefit509 TaxRevLeviedForOrgBenefit509

Field	Value	IRS element (for citing)
Total	0	Total

Value Of Svcs Fclts Furnishd By Govt ValueOfSvcsFcltsFurnishdByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total509 Total509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	4569026	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1424322	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1225321	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2408192	CurrentTaxYearMinus1Year
Current Tax Year	1724682	CurrentTaxYear
Total	11351543	Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	3150000	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	16750	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	30422	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	30500	CurrentTaxYearMinus1Year
Current Tax Year	167351	CurrentTaxYear
Total	3395023	Total

Amts From Subst Contributors AmtsFromSubstContributors

Field	Value	IRS element (for citing)
Total	0	Total

Support From DQ Ps Etc SupportFromDQPsEtc

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	3150000	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	16750	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	30422	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	30500	CurrentTaxYearMinus1Year
Current Tax Year	167351	CurrentTaxYear
Total	3395023	Total

Field	Value	IRS element (for citing)
Public Support Total509	7956520	PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	57673	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	27466	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	15453	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	11443	CurrentTaxYearMinus1Year
Current Tax Year	8418	CurrentTaxYear
Total	120453	Total

Post1975 UBTI Post1975UBTI

Field	Value	IRS element (for citing)
Total	0	Total

Investment Income And UBTI InvestmentIncomeAndUBTI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	57673	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	27466	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	15453	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	11443	CurrentTaxYearMinus1Year
Current Tax Year	8418	CurrentTaxYear
Total	120453	Total

Net Income From Other UBI NetIncomeFromOtherUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income509 OtherIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus3 Years	4973	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	159071	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1529	CurrentTaxYearMinus1Year
Current Tax Year	125000	CurrentTaxYear
Total	290573	Total

Total Support Total TotalSupportTotal

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	4626699	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1456761	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1399845	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2421164	CurrentTaxYearMinus1Year
Current Tax Year	1858100	CurrentTaxYear
Total	11762569	Total

Field	Value	IRS element (for citing)
Public Support Percentage509	0.67640	PublicSupportPercentage509
Prior Year Support Percentage	0.69670	PriorYearSupportPercentage
Investment Income Percentage	0.01020	InvestmentIncomePercentage
Prior Yr Invest Income Percentage	0.01510	PriorYrInvestIncomePercentage
Thirty Three Percnt Tests CY509	X	ThirtyThreePercntTestsCY509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule D IRS990ScheduleD

Current Year CurrentYear

Field	Value	IRS element (for citing)
Beginning Of Year Balance	325369	BeginningOfYearBalance
Investment Earnings Or Losses	29537	InvestmentEarningsOrLosses
Administrative Expenses	3737	AdministrativeExpenses
End Of Year Balance	351169	EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

Field	Value	IRS element (for citing)
Beginning Of Year Balance	341164	BeginningOfYearBalance
Investment Earnings Or Losses	-12480	InvestmentEarningsOrLosses
Administrative Expenses	3315	AdministrativeExpenses
End Of Year Balance	325369	EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	285520	BeginningOfYearBalance
Investment Earnings Or Losses	55644	InvestmentEarningsOrLosses
End Of Year Balance	341164	EndOfYearBalance

Current Year Minus3 Years CurrentYearMinus3Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	262817	BeginningOfYearBalance
Investment Earnings Or Losses	29241	InvestmentEarningsOrLosses
End Of Year Balance	292058	EndOfYearBalance

Current Year Minus4 Years CurrentYearMinus4Years

Field	Value	IRS element (for citing)
Contributions	-25972	Contributions
Administrative Expenses	262817	AdministrativeExpenses
End Of Year Balance	262817	EndOfYearBalance

Field	Value	IRS element (for citing)
Board Designated EOY Balance	0.17000	BoardDesignatedEOYBalance
Permanent Endowment EOY Balance	0.83000	PermanentEndowmentEOYBalance
Endowments Held By Unrelated Orgs	false	EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs	false	EndowmentsHeldByRelatedOrgs
Are Related Orgs Listed Schedule R	false	AreRelatedOrgsListedScheduleR

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	227392	OtherCostOrOtherBasis
Depreciation	205223	Depreciation
Book Value	22169	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	22169	TotalOfBookValueLandBuildings
Tot Revenue Etc Audited Fincl Stmt	1866454	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	29537	NetUnrealizedGainsInvestments
Revenue Not Rptd F990	29537	RevenueNotRptdF990
Revenue Subtotal	1836917	RevenueSubtotal
Total Revenue Per Form990	1836917	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	2147344	TotExpensesEtcAuditedFinclStmt
Expenses Subtotal	2147344	ExpensesSubtotal
Total Expenses Per Form990	2147344	TotalExpensesPerForm990

Form990 Schedule D Part XIII Form990ScheduleDPartXIII

Field	Value	IRS element (for citing)
Identifier	Part V, Line 4	Identifier
Return Reference	Part V, Line 4: Intended uses of the endowment fund.	ReturnReference
Explanation	INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS	Explanation

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Special Fundraising Events	X	SpecialFundraisingEvents
Agreement Ref Fundraising	false	AgreementRefFundraising

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	WRITING CAMPAIGN	NameOfEvent1
Gross Receipts Event1	20200	GrossReceiptsEvent1
Charitable Contributions Event1	20200	CharitableContributionsEvent1
Name Of Event2	MARCO ISLE WALK	NameOfEvent2
Gross Receipts Event2	15537	GrossReceiptsEvent2
Charitable Contributions Event2	10537	CharitableContributionsEvent2
Gross Revenue Event2	5000	GrossRevenueEvent2
Food And Beverage Event2	329	FoodAndBeverageEvent2
Other Direct Expenses Event2	3117	OtherDirectExpensesEvent2
Total Number Of Other Events	8	TotalNumberOfOtherEvents
Gross Receipts Other Events	74889	GrossReceiptsOtherEvents
Charitable Contrib Other Events	41358	CharitableContribOtherEvents
Gross Revenue Other Events	33531	GrossRevenueOtherEvents
Rent Facility Costs Other Events	3623	RentFacilityCostsOtherEvents
Other Direct Expenses Other Events	2797	OtherDirectExpensesOtherEvents
Gross Receipts Total	110626	GrossReceiptsTotal
Charitable Contributions Total	72095	CharitableContributionsTotal
Gross Revenue Total Events	38531	GrossRevenueTotalEvents
Rent Facility Costs Total Events	3623	RentFacilityCostsTotalEvents
Food And Beverage Total Events	329	FoodAndBeverageTotalEvents
Other Direct Expenses Total Events	5914	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	9866	DirectExpenseSummaryEvents
Net Income Summary	28665	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	false	RecordsMaintained

Recipient Table RecipientTable (7 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant
UNIVERSITY OF PA
3451 WALNUT STREET STE P221-A	PHILADELPHIA	PA	19104	231352685	500000	0	GENE ANALYSIS FOLLOW UP AND REPLICA
UNIVERSITY OF CALIFORNIA
3227 CHEADLE HALL	SANTA BARBARA	CA	93106	956006145	75000	0	TAU DIMERIZATION
UNIVERSITY OF CA SF
675 NELSON RISING LANE	SAN FRANCISCO	CA	94158	945036493	100000	0	ALS/PARKINSONISM - DEMENTIA GUAM
UNIVERSITY OF CA
3333 CALIFORNIA STREET	SAN FRANCISCO	CA	94143	946036493	100000	0	TRANSGENIC RATS MUTANT HUMAN TAU
ROSALIND FRANKLIN UNIVERSITY
3333 GREEN BAY ROAD	NORTH CHICAGO	IL	60064	136218197	75000	0	SPLICE VARIANT RISK MARKERS FOR PSP
BOSTON U SCHOOL OF MEDICINE
85 EAST NEWTON STREET	BOSTON	MA	02118	604483045	75000	0	MECHANISM & THERAPY FOR TAU PROTEIN
BIRDSALL MEDICAL CLINIC
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	66000	0	BRAIN BANK

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	7	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	0	TotalNbrOfOtherOrganizations

Schedule L IRS990ScheduleL

Form990 Schedule L Part IV Form990ScheduleLPartIV

Name Of Interested Person NameOfInterestedPerson

Name Business NameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	WOLFE & FIEDLER PA	BusinessNameLine1

Field	Value	IRS element (for citing)
Relationship	CPA	Relationship
Amount Of Transaction	30800	AmountOfTransaction
Description Of Transaction	ACCOUNTING AND CONSULTING	DescriptionOfTransaction
Sharing Of Revenues	false	SharingOfRevenues

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (6 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	UPON REQUEST
Form 990, Part VI, Line 15b	Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees	PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITHIN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS SALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE WITHIN A COMPETITIVE RANGE.
Form 990, Part VI, Line 15a	Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management	BOARD DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICALLY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE SALARY LEVELS.
Form 990, Part VI, Line 12c	Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	EXECUTIVE DIRECTOR REVIEWS FORMS
Form 990, Part VI, Line 11b	Form 990, Part VI, Line 11b: Form 990 Review Process	990 IS PROVIDED TO BOARD FOR REVIEW AND COMMENTS BEFORE FILING
Form 990, Part VI, Line 3	Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company	ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO