2013-11-26T13:42:38-08:00 2013-06-30 WOLFE AND FIEDLER PA 634 Frederick Road Baltimore MD 212284625 990 2012-07-01 521704978 Foundation For PSP CBD and Related Brain Diseases FOUN 4107857004 30 East Padonia Road Timonium MD 21093 RICHARD ZYNE 2013-11-26 true John R Fiedler P00147612 4107470789 2012 2015-11-30 17:44:51Z 1858100 false false X WWW.CUREPSP.ORG X 1990 MD INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. 17 17 10 140 0 2265656 1583318 0 11443 8418 132546 245181 2409645 1836917 623172 991000 0 601528 636833 0 236685 498639 519511 1723339 2147344 686306 -310427 2926706 2230181 904358 488723 2022348 1741458 INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROF; AND PROVIDE SUPPORT, INFO AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. false false 1235276 994000 GOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD) AND CLOSELY RELATED BRAIN DISEASES BY FUNDING RESEARCH FOCUSING ON: A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, B) DEVELOPING EARLY STAGE DIAGNOSTIC TESTS, AND D) DEVELOPING TREATMENTS OR INTERVENTIONS TO AMELIORATE SYMPTOMS AND TO PREVENT, SLOW, HALT OR REVERSE DISEASE PROGRESSION. 383804 Goals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders. 148510 Goals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders. 1767590 true true false false false false false false false true true false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false false false false false true 0 0 false 10 true false false false false false false false false 0 false false false false false false false false false false X 17 17 false true false false false false false true true false false true true true true true true true true false WV WI VA UT TN SC RI PA OR OK NY NM NJ NH NC MS MN MI MD MA KY KS IL HI GA FL CT CA AZ AR AL AK X X RICHARD ZYNE 4107857004 30 East Padonia Road Timonium MD 21093 JUSTIN SHEA 2.00 0.00 X 0 0 0 JIM MCCLELLAN 2.00 0.00 X 0 0 0 JEFFREY FRIEDMAN 2.00 0.00 X 0 0 0 PATRICIA RICHARDSON 2.00 0.00 X 0 0 0 JOHN PORTER 2.00 0.00 X 0 0 0 DAVID PEEBLER 2.00 0.00 X 0 0 0 RICHARD ALLEN JANNEY 2.00 0.00 X 0 0 0 LAURIE HUFFMAN 2.00 0.00 X 0 0 0 RACHEL GROSS 2.00 0.00 X 0 0 0 LAWRENCE GOLBE 4.00 0.00 X 0 0 0 HEATHER CIANCI 2.00 0.00 X 0 0 0 YVETTE BORDELON 2.00 0.00 X 0 0 0 EVERETT COOK 2.00 0.00 X 0 0 0 GEORGE JANKIEWICZ 2.00 0.00 X 0 0 0 JOHN BURHOE 4.00 0.00 X 0 0 0 DAN JOHNSON 4.00 0.00 X 0 0 0 JANET EDMUNSON 4.00 0.00 X 0 0 0 RICHARD ZYNE 40.00 0.00 X 122117 0 0 122117 1 false false false 0 72095 1511223 1583318 0 8418 8418 0 0 0 0 141364 72095 21183 120181 120181 0 0 GRANT ADJUSTMENT 125000 125000 125000 1836917 125000 128599 991000 991000 0 0 0 122117 85482 16085 20550 0 418825 292759 55169 70897 9203 6350 1196 1657 39393 27180 5123 7090 47295 32634 6148 8513 0 0 21843 21843 0 0 0 0 0 5697 4442 317 938 29481 20868 911 7702 0 65628 52504 3280 9844 0 0 111429 110415 1014 0 0 8260 5702 910 1648 7723 7723 MEETINGS/BOARD EXPENSES 19161 19161 BANK AND PAYROLL FEES 23906 11043 531 12332 Printing and Publications 27761 27272 122 367 Postage and Shipping 129408 46382 410 82616 69214 53557 4140 11517 2147344 1767590 143069 236685 867614 6772 1624487 1798118 42550 14850 17542 6409 0 0 0 0 22931 26636 227392 205223 26290 22169 321309 351244 0 0 0 3983 3983 2926706 2230181 101847 76403 802511 412320 904358 488723 X 862129 795012 834850 595277 325369 351169 2022348 1741458 2926706 2230181 -310427 29537 X false true X true false X 4503914 1407590 1213491 2265656 1583318 10973969 65112 16732 11830 142536 141364 377574 0 0 0 4569026 1424322 1225321 2408192 1724682 11351543 3150000 16750 30422 30500 167351 3395023 0 3150000 16750 30422 30500 167351 3395023 7956520 57673 27466 15453 11443 8418 120453 0 57673 27466 15453 11443 8418 120453 0 4973 159071 1529 125000 290573 4626699 1456761 1399845 2421164 1858100 11762569 0.67640 0.69670 0.01020 0.01510 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 325369 29537 3737 351169 341164 -12480 3315 325369 285520 55644 341164 262817 29241 292058 -25972 262817 262817 0.17000 0.83000 false false false 227392 205223 22169 22169 1866454 29537 29537 1836917 1836917 2147344 2147344 2147344 Part V, Line 4 Part V, Line 4: Intended uses of the endowment fund. INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS X false WRITING CAMPAIGN 20200 20200 MARCO ISLE WALK 15537 10537 5000 329 3117 8 74889 41358 33531 3623 2797 110626 72095 38531 3623 329 5914 9866 28665 false UNIVERSITY OF PA 3451 WALNUT STREET STE P221-A PHILADELPHIA PA 19104 231352685 500000 0 GENE ANALYSIS FOLLOW UP AND REPLICA UNIVERSITY OF CALIFORNIA 3227 CHEADLE HALL SANTA BARBARA CA 93106 956006145 75000 0 TAU DIMERIZATION UNIVERSITY OF CA SF 675 NELSON RISING LANE SAN FRANCISCO CA 94158 945036493 100000 0 ALS/PARKINSONISM - DEMENTIA GUAM UNIVERSITY OF CA 3333 CALIFORNIA STREET SAN FRANCISCO CA 94143 946036493 100000 0 TRANSGENIC RATS MUTANT HUMAN TAU ROSALIND FRANKLIN UNIVERSITY 3333 GREEN BAY ROAD NORTH CHICAGO IL 60064 136218197 75000 0 SPLICE VARIANT RISK MARKERS FOR PSP BOSTON U SCHOOL OF MEDICINE 85 EAST NEWTON STREET BOSTON MA 02118 604483045 75000 0 MECHANISM & THERAPY FOR TAU PROTEIN BIRDSALL MEDICAL CLINIC 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 66000 0 BRAIN BANK 7 0 WOLFE & FIEDLER PA CPA 30800 ACCOUNTING AND CONSULTING false Form 990, Part VI, Line 19 Form 990, Part VI, Line 19: Other Organization Documents Publicly Available UPON REQUEST Form 990, Part VI, Line 15b Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITHIN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS SALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE WITHIN A COMPETITIVE RANGE. Form 990, Part VI, Line 15a Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management BOARD DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICALLY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE SALARY LEVELS. Form 990, Part VI, Line 12c Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts EXECUTIVE DIRECTOR REVIEWS FORMS Form 990, Part VI, Line 11b Form 990, Part VI, Line 11b: Form 990 Review Process 990 IS PROVIDED TO BOARD FOR REVIEW AND COMMENTS BEFORE FILING Form 990, Part VI, Line 3 Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO